Materiały źródłowe

• #1 Improving Care in Pediatric Neuro-oncology Patients:An Overview of the Unique Needs of Children with Brain Tumors

  https://pmc.ncbi.nlm.nih.gov/articles/PMC5032907/

  Brain tumors represent the most common solid tumors in childhood, accounting for almost 25% of all childhood cancer, second only to leukemia. Management of children with CNS tumors requires knowledge of the unique aspects of care associated with this particular patient population, beyond general oncology care. Pediatric brain tumor patients have unique needs during treatment, as cancer survivors, and at end of life. A multidisciplinary team approach, including advanced practice nurses with a specialty in neuro-oncology, allows for better supportive care. Knowledge of the unique aspects of care for children with brain tumors, and the appropriate interventions required, allows for improved quality of life. […] With appropriate interventions and management pediatric patients with CNS tumors can have improved quality of life during treatment, survivorship, and at end of life.

• #2 TheTruth365 – Childhood brain tumors are the leading cause…FacebookShared with Public

  https://www.facebook.com/theTruth365film/posts/childhood-brain-tumors-are-the-leading-cause-of-cancer-deaths-in-children-and-th/1099477392215739/

  Childhood brain tumors are the leading cause of cancer deaths in children and the most diagnosed cancer in those 14 years old and younger. […] Unfortunately, no treatments are specifically developed and approved for pediatric brain tumors, and many pediatric brain tumor types lack a defined standard of care. […] In addition, survival rates for pediatric high-grade gliomas are unacceptably low.

• #3 Essential Management of Pediatric Brain Tumors

  https://pmc.ncbi.nlm.nih.gov/articles/PMC9031600/

  Brain tumors are the most common solid tumors in children and are associated with high mortality. […] Pediatric brain tumor related symptoms and signs can be unspecific, thus delaying diagnosis. […] It is recommended that pediatric patients should be seen by a pediatric neurologist and/or neurosurgeon with extensive experience in pediatric neuro-oncology (ideally by a pediatric neurosurgeon). […] Whenever a child presents with neurologic symptoms, acute ICP should always be considered, and immediate admission to a specialized clinic should be sought, because any delay in diagnosis and treatment is potentially life-threatening. […] To ensure an optimum treatment strategy in the management of children with brain tumors, a multidisciplinary team of specialized clinicians is mandatory.

• #4 #81: Pediatric Brain Tumors – Let’s Think About It! – The Curbsiders

  https://thecurbsiders.com/cribsiders-podcast/81

  In cases in which you have high concern for a brain mass, consider referring to an Emergency Department to expedite work up. […] The majority of pediatric brain tumors are in the posterior fossa (60%). The most common types, in decreasing frequency, include medulloblastoma, juvenile pilocytic astrocytoma (JPA), ependymoma, diffuse intrinsic pontine glioma (DIPG), and atypical teratoid rhabdoid tumor (ATRT). […] Depending on the type of tumor, treatment can range from various combinations of surgical resection, chemotherapy, radiation and/or immunotherapy. […] If you are in an outpatient setting, and have concern for a brain mass, Dr. Hummel says to consider deferring dexamethasone until your patient is evaluated by neurosurgery unless you have concern for acute increased intracranial pressure.

• #5 Brain Tumors – Pediatric Neurosurgery | UCLA Health

  https://www.uclahealth.org/medical-services/pediatric-neurosurgery/conditions-treatment/pediatric-brain-tumor-program/brain-tumors

  Medulloblastomas are the most common malignant brain tumors found in children. […] Surgery is the first step in treating medulloblastoma, followed by chemotherapy and/or radiation therapy. […] The best treatment for these tumors is maximal safe surgical resection. […] The most important treatment is surgery, obtaining the maximal safe resection. […] Treatment involves a combination of surgery, chemotherapy, and radiation. […] Complete surgical resection is the most important form of treatment, with other treatment modalities typically reserved for cases of recurrence. […] Treatment for these patients should be provided by multi-disciplinary pediatric neuro-oncology programs, due to the complexity of their needs. […] Surgery to remove the tumor is usually the first step in treatment.

• #6 Pediatric brain tumors – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/pediatric-brain-tumor/diagnosis-treatment/drc-20361706

  Children may need support after treatment to help them recover. Brain tumors can develop in parts of the brain that control motor skills, speech, vision and thinking. Rehabilitation services to help regain these functions include physical therapy to help your child regain lost motor skills or muscle strength, occupational therapy to help your child get back to daily activities, speech therapy if your child has difficulty speaking, and tutoring if your school-age child needs help to cope with changes in memory and thinking after brain tumor treatment.

• #7 Essential Management of Pediatric Brain Tumors

  https://pmc.ncbi.nlm.nih.gov/articles/PMC9031600/

  Brain tumors are the most common solid tumors in children and are associated with high mortality. […] Pediatric brain tumor related symptoms and signs can be unspecific, thus delaying diagnosis. […] It is recommended that pediatric patients should be seen by a pediatric neurologist and/or neurosurgeon with extensive experience in pediatric neuro-oncology (ideally by a pediatric neurosurgeon). […] Whenever a child presents with neurologic symptoms, acute ICP should always be considered, and immediate admission to a specialized clinic should be sought, because any delay in diagnosis and treatment is potentially life-threatening. […] To ensure an optimum treatment strategy in the management of children with brain tumors, a multidisciplinary team of specialized clinicians is mandatory.

• #8 Pediatric Brain Tumors | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/pediatric-brain-tumors

  Surgery is usually the first step in treating brain tumors in children. Our goal within the Pediatric Surgical Oncology Program is to remove all or as much of the tumor as possible while maintaining neurological function. […] Pediatric brain tumor patients have a particular advantage when coming to CHOP because of the extensive experience of our neurosurgeons and the close collaboration between neurosurgery, neuro-oncology, radiation oncology and diagnostic radiology. […] Surgery is also performed for a biopsy a sample of tissue taken to examine the types of cells found in the tumor. This helps establish a diagnosis and treatment plan. This is frequently done when the tumor is surrounded by sensitive structures that may be damaged by surgical removal. […] Other therapies used to treat brain tumors include: Chemotherapy (cancer drugs), Radiation therapy (high-energy rays that kill or shrink cancer cells), Proton therapy (a precise form of radiation therapy that is less damaging to surrounding tissue), Steroids to treat and prevent swelling in the brain, High-dose chemotherapy, stem-cell rescue, and blood and marrow transplantation, Supportive care for the side effects of the tumor or treatment, Rehabilitation to regain lost motor skills and muscle strength, Continuous follow-up care to manage disease, detect recurrence of the tumor and manage late effects of treatment.

• #9 Improving Care in Pediatric Neuro-oncology Patients:An Overview of the Unique Needs of Children with Brain Tumors

  https://pmc.ncbi.nlm.nih.gov/articles/PMC5032907/

  Treating a child with a primary CNS lesion requires a multi-disciplinary approach and involves family members. Ideally treatment should be administered at an academic medical center so that all levels of care are coordinated. Teaching and support are ongoing as the team and family relationship develops. The ideal goal of treatment is to eradicate the disease while sparing healthy tissue and structures. Early interventions are vital to help each child to reach their highest potential and live a fulfilling, happy life. […] Lifelong medical surveillance with a multi-disciplinary team approach is essential to maximize health and improve quality of life. […] The neurologic deficits experienced by pediatric CNS tumor population are chronic or evolving issues that can impair function and quality of life and require referrals to specialists and long term management. With proper intervention and further research, pediatric patients with CNS tumors can have improved quality of life during treatment, survivorship, and at end of life.

• #10 Brain and spine tumors | St. Jude Care & Treatment

  https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors.html

  St. Jude Childrens Research Hospital specializes in treating the most challenging pediatric brain tumors. […] When your child has a brain tumor or other type of tumor, you need medical experts who understand: How to fight the disease, How to protect your child’s growing body, How to cope with life after treatment. […] Our team of specialists walks with you and your child through each stage of the treatment journey. […] Doctors send some of their toughest brain tumor cases to St. Jude because of our expert care team. Your child will have a team of specialists, all on the St. Jude campus, who will develop a treatment plan for your child. They will also guide you on how to care for your child after their treatment. Your child’s care team may include these specialists: Pediatric neuro-oncologists treat cancers in the brain or spine. This doctor may be your child’s primary doctor to coordinate their care. Advanced practice providers (APPs), also called nurse practitioners (NPs) or physician assistants (PAs), are specially trained health care providers who see and prescribe medicines for your child regularly in clinic or in the hospital. Your child’s primary care team will have a doctor, an APP, and a nurse to coordinate care. Nurses (RNs) give specialized care for your child’s brain tumor. […] After your child is treated, they may need rehabilitation therapy and follow-up care when they go home. Your care team will work with your family physician to help manage your child’s care and develop a survivorship care plan after treatment.

• #11 Pediatric Brain Tumors | Memorial Sloan Kettering Cancer Center

  https://www.mskcc.org/pediatrics/cancer-care/types/pediatric-brain-tumors

  Complete surgical removal of the tumor without secondary neurologic side effects is critical in improving the chance that your child can make a full recovery. […] It is necessary that a closely-knit interdisciplinary team of experienced medical professionals evaluate these children. Such a team exists at Memorial Sloan Kettering to care for children, teenagers, and young adults with brain and spinal cord tumors.

• #12 Brain and spine tumors | St. Jude Care & Treatment

  https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors.html

  St. Jude Childrens Research Hospital specializes in treating the most challenging pediatric brain tumors. […] When your child has a brain tumor or other type of tumor, you need medical experts who understand: How to fight the disease, How to protect your child’s growing body, How to cope with life after treatment. […] Our team of specialists walks with you and your child through each stage of the treatment journey. […] Doctors send some of their toughest brain tumor cases to St. Jude because of our expert care team. Your child will have a team of specialists, all on the St. Jude campus, who will develop a treatment plan for your child. They will also guide you on how to care for your child after their treatment. Your child’s care team may include these specialists: Pediatric neuro-oncologists treat cancers in the brain or spine. This doctor may be your child’s primary doctor to coordinate their care. Advanced practice providers (APPs), also called nurse practitioners (NPs) or physician assistants (PAs), are specially trained health care providers who see and prescribe medicines for your child regularly in clinic or in the hospital. Your child’s primary care team will have a doctor, an APP, and a nurse to coordinate care. Nurses (RNs) give specialized care for your child’s brain tumor. […] After your child is treated, they may need rehabilitation therapy and follow-up care when they go home. Your care team will work with your family physician to help manage your child’s care and develop a survivorship care plan after treatment.

• #13 Pediatric Brain Tumor Clinic | University of Iowa Health Care Stead Family Children’s Hospital

  https://uihc.org/childrens/services/pediatric-brain-tumor-clinic

  We care for pediatric patients with brain tumors, as well as management of problems related to injuries to their still-developing brains. […] The Pediatric Brain Tumor Clinic at University of Iowa Stead Family Childrens Hospital is the first of its kind in Iowa and one of just a few in the United States. […] The clinic is multidisciplinary and collaborative, which means specialists from a variety of areas come together to create a personalized treatment plan for every patient. […] Bringing pediatric specialists from multiple medical areas into one clinic helps facilitate communication between providers, streamline care, and deliver a unified message to our patients and their families. […] Your family will meet with all members of your childs care team on one day, at one location, eliminating the need for scheduling several appointments with different specialists over multiple days. […] These coordinated discussions are focused on determining the best course of treatment for your childs tumor. […] Nurse Coordinator Amber Reiten, RN, BSN, CPHON.

• #14 #81: Pediatric Brain Tumors – Let’s Think About It! – The Curbsiders

  https://thecurbsiders.com/cribsiders-podcast/81

  Brain tumors can be intimidating, for families and providers alike! Tune into this episode as Dr. Trent Hummel, Pediatric Neuro-Oncologist, guides us through the red flags to look for, when to escalate care and how to approach discussions with families. This conversation will blow your mind! […] When a patient presents with headache, be on the lookout for red-flag signs and symptoms, including severe and sudden onset, persistent and progressive pain, pain upon waking in the morning, alleviation of pain with vomiting or new-onset neurologic symptoms (frequent falls, dizziness, lack of use of an extremity, etc.). […] Complete a thorough neurologic and fundoscopic exam in patients with red flag symptoms. […] If you have concern for a potential mass-like process, you should have a low threshold for obtaining imaging. CT scans are good for screening, and MRIs are more definitive.

• #15 Brain Tumors in Children | Children’s Hospital Colorado

  https://www.childrenscolorado.org/conditions-and-advice/conditions-and-symptoms/conditions/brain-tumors/

  Brain tumors seem to occur more often in children under 3 years old and in teenagers. […] The most common first signs of a brain tumor include vomiting, headache and falling down or having poor balance (called ataxia). […] Because brain tumors in young adults are usually caused from faulty cells that form during childhood, our pediatric experts also specialize in treating and curing tumors in young adults into their 20s. […] Our Neuro-Oncology Program is the only clinic in the surrounding eight states where your child can get state-of-the-art treatment for a pediatric brain tumor. […] Our radiation therapy is planned and administered for the sensitive nature of a child’s growing brain. […] In addition, doctors and nurses who specialize in anesthesia will take care of your child during radiation.

• #16 #81: Pediatric Brain Tumors – Let’s Think About It! – The Curbsiders

  https://thecurbsiders.com/cribsiders-podcast/81

  Brain tumors can be intimidating, for families and providers alike! Tune into this episode as Dr. Trent Hummel, Pediatric Neuro-Oncologist, guides us through the red flags to look for, when to escalate care and how to approach discussions with families. This conversation will blow your mind! […] When a patient presents with headache, be on the lookout for red-flag signs and symptoms, including severe and sudden onset, persistent and progressive pain, pain upon waking in the morning, alleviation of pain with vomiting or new-onset neurologic symptoms (frequent falls, dizziness, lack of use of an extremity, etc.). […] Complete a thorough neurologic and fundoscopic exam in patients with red flag symptoms. […] If you have concern for a potential mass-like process, you should have a low threshold for obtaining imaging. CT scans are good for screening, and MRIs are more definitive.

• #17 Brain Tumors in Children – Stanford Medicine Children’s Health

  https://www.stanfordchildrens.org/en/topic/default?id=brain-tumors-in-children-90-P02745

  In addition, both the American Academy of Pediatrics and the National Cancer Institute recommend that children receive cancer diagnosis and treatment at one of the more than 200 medical centers in the U.S. that specialize in pediatric cancers. The organizations cite research studies that show 20% to 40% higher survival rates when children receive care in such specialized centers. […] Specific treatment for brain tumors will be determined by your child’s doctor based on: Your child’s age, overall health, and medical history; Type, location, and size of the tumor; Extent of the disease; Your child’s tolerance for specific medications, procedures, or therapies; Expectations for the course of the disease; Your opinion or preference. […] Treatment may include (alone or in combination): Surgery. Surgery is usually the first step in the treatment of brain tumors. The goal is to remove as much of the tumor as possible while maintaining neurological function.

• #18 Pediatric brain tumors – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/pediatric-brain-tumor/diagnosis-treatment/drc-20361706

  Pediatric brain tumor diagnosis often begins with questions about your child’s symptoms and an exam. The exam can give your child’s healthcare team clues about what’s happening in your child’s brain. It can help the healthcare team decide which tests are needed next. […] Our caring team of Mayo Clinic experts can help you with your pediatric brain tumors-related health concerns. […] Treatment for pediatric brain tumors depends on many factors. Your child’s healthcare team considers the type, size and location of the tumor. The care team also considers your child’s age and overall health. Treatment options might include surgery, radiation therapy, radiosurgery, chemotherapy and targeted therapy. […] Palliative care is a special type of healthcare that helps children with serious illnesses feel better. For children with brain tumors, palliative care can help relieve pain and other symptoms. A team of healthcare professionals offers palliative care. The team can include doctors, nurses and other specially trained professionals. The goal is to improve the quality of life for your child and your family.

• #19 Brain Tumors in Children – Stanford Medicine Children’s Health

  https://www.stanfordchildrens.org/en/topic/default?id=brain-tumors-in-children-90-P02745

  In addition, both the American Academy of Pediatrics and the National Cancer Institute recommend that children receive cancer diagnosis and treatment at one of the more than 200 medical centers in the U.S. that specialize in pediatric cancers. The organizations cite research studies that show 20% to 40% higher survival rates when children receive care in such specialized centers. […] Specific treatment for brain tumors will be determined by your child’s doctor based on: Your child’s age, overall health, and medical history; Type, location, and size of the tumor; Extent of the disease; Your child’s tolerance for specific medications, procedures, or therapies; Expectations for the course of the disease; Your opinion or preference. […] Treatment may include (alone or in combination): Surgery. Surgery is usually the first step in the treatment of brain tumors. The goal is to remove as much of the tumor as possible while maintaining neurological function.

• #20 Pediatric Brain Tumors | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/pediatric-brain-tumors

  Surgery is usually the first step in treating brain tumors in children. Our goal within the Pediatric Surgical Oncology Program is to remove all or as much of the tumor as possible while maintaining neurological function. […] Pediatric brain tumor patients have a particular advantage when coming to CHOP because of the extensive experience of our neurosurgeons and the close collaboration between neurosurgery, neuro-oncology, radiation oncology and diagnostic radiology. […] Surgery is also performed for a biopsy a sample of tissue taken to examine the types of cells found in the tumor. This helps establish a diagnosis and treatment plan. This is frequently done when the tumor is surrounded by sensitive structures that may be damaged by surgical removal. […] Other therapies used to treat brain tumors include: Chemotherapy (cancer drugs), Radiation therapy (high-energy rays that kill or shrink cancer cells), Proton therapy (a precise form of radiation therapy that is less damaging to surrounding tissue), Steroids to treat and prevent swelling in the brain, High-dose chemotherapy, stem-cell rescue, and blood and marrow transplantation, Supportive care for the side effects of the tumor or treatment, Rehabilitation to regain lost motor skills and muscle strength, Continuous follow-up care to manage disease, detect recurrence of the tumor and manage late effects of treatment.

• #21 Brain Tumors in Children – Stanford Medicine Children’s Health

  https://www.stanfordchildrens.org/en/topic/default?id=brain-tumors-in-children-90-P02745

  In addition, both the American Academy of Pediatrics and the National Cancer Institute recommend that children receive cancer diagnosis and treatment at one of the more than 200 medical centers in the U.S. that specialize in pediatric cancers. The organizations cite research studies that show 20% to 40% higher survival rates when children receive care in such specialized centers. […] Specific treatment for brain tumors will be determined by your child’s doctor based on: Your child’s age, overall health, and medical history; Type, location, and size of the tumor; Extent of the disease; Your child’s tolerance for specific medications, procedures, or therapies; Expectations for the course of the disease; Your opinion or preference. […] Treatment may include (alone or in combination): Surgery. Surgery is usually the first step in the treatment of brain tumors. The goal is to remove as much of the tumor as possible while maintaining neurological function.

• #22 Pediatric Brain Tumors | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/pediatric-brain-tumors

  Surgery is usually the first step in treating brain tumors in children. Our goal within the Pediatric Surgical Oncology Program is to remove all or as much of the tumor as possible while maintaining neurological function. […] Pediatric brain tumor patients have a particular advantage when coming to CHOP because of the extensive experience of our neurosurgeons and the close collaboration between neurosurgery, neuro-oncology, radiation oncology and diagnostic radiology. […] Surgery is also performed for a biopsy a sample of tissue taken to examine the types of cells found in the tumor. This helps establish a diagnosis and treatment plan. This is frequently done when the tumor is surrounded by sensitive structures that may be damaged by surgical removal. […] Other therapies used to treat brain tumors include: Chemotherapy (cancer drugs), Radiation therapy (high-energy rays that kill or shrink cancer cells), Proton therapy (a precise form of radiation therapy that is less damaging to surrounding tissue), Steroids to treat and prevent swelling in the brain, High-dose chemotherapy, stem-cell rescue, and blood and marrow transplantation, Supportive care for the side effects of the tumor or treatment, Rehabilitation to regain lost motor skills and muscle strength, Continuous follow-up care to manage disease, detect recurrence of the tumor and manage late effects of treatment.

• #23 Essential Management of Pediatric Brain Tumors

  https://pmc.ncbi.nlm.nih.gov/articles/PMC9031600/

  The extent of tumor resection remains the most important factor with respect to event free and overall survival in nearly all kinds of tumor types. […] The surgical anatomy of pediatric brain tumors differs substantially from those in adult patients. […] The role of the neuropathologist has changed over time and with new developments. […] The role of pediatric oncologists is crucial in the treatment of pediatric brain tumors. […] The diagnosis of a brain tumor can cause stress for children and their families. […] Psychological support plays a central role, as does physical activity.

• #24 Pediatric Brain Tumors | Memorial Sloan Kettering Cancer Center

  https://www.mskcc.org/pediatrics/cancer-care/types/pediatric-brain-tumors

  Complete surgical removal of the tumor without secondary neurologic side effects is critical in improving the chance that your child can make a full recovery. […] It is necessary that a closely-knit interdisciplinary team of experienced medical professionals evaluate these children. Such a team exists at Memorial Sloan Kettering to care for children, teenagers, and young adults with brain and spinal cord tumors.

• #25 Cancer Treatment for Children | Brain Tumors in Children | Oklahoma Children’s Hospital OU Health

  https://www.ouhealth.com/oklahoma-childrens-hospital/childrens-services/cancer-treatment-for-children/brain-tumors-in-children/

  Your childs surgical team includes world-class pediatric neuro-oncologists, pediatric neurosurgeons and pediatric radiation oncologists with years of experience in advanced surgical procedures and techniques, including open and endoscopic craniotomy, endonasal and transcranial endoscopic procedures, targeted biopsy, minimally invasive procedures and laser therapy. Whatever type of procedure your child needs, theyll be in skilled hands with the experts at Jimmy Everest Center. […] Once your child completes treatment, youll have the full support of our pediatric brain tumor survivorship program to help you and your family navigate the transition back into daily life and provide specialized follow-up care for medical issues related to treatment for pediatric brain tumors, such as neurological conditions, and psychosocial support to help kids with emotional challenges. […] At Jimmy Everest Center, your child’s care team includes specialists from many healthcare fields who work together to create a personalized treatment plan designed to fit your child’s individual needs.

• #26 Pediatric Brain Tumors

  https://www.rwjbh.org/treatment-care/neuroscience/neurosurgery/conditions-treated/pediatric-brain-tumors/

  The main treatments for pediatric brain tumors include surgery, radiation therapy, chemotherapy, targeted therapy drugs, and drugs to help alleviate symptoms. Most often, the goal for the neurosurgeon is to remove or destroy as much of the tumor as possible without impairing normal brain and/or nerve function. […] This surgery is performed by making a sort of keyhole into the skull to access the brain. It is the most common surgery for brain tumor removal. […] Radiation uses high-energy, carefully targeted x-rays to kill some tumors. […] Chemotherapy, often called chemo, kills cancer cells and is usually administered intravenously or taken in pill form by mouth. […] Of all children with brain tumors, both malignant or benign, about 75% will survive at least 5 years upon diagnosis.

• #27 Dana-Farber/Boston Children’s Brain Tumor Center | Boston Children’s Hospital

  https://www.childrenshospital.org/programs/brain-tumor-center

  Together, we offer patients the most advanced therapies and diagnostic approaches available, including: […] Our physicians have deep expertise in complex neuro-endoscopy and minimally invasive neurosurgery. […] We have two intraoperative MRI surgical suites, which allow us to obtain advanced MR imaging during surgery to ensure the highest level of safely along with maximal tumor removal. […] We have access to New England’s only pediatric positron emission tomography (PET) scanner and PET fusion imaging to help guide treatment decisions. […] We work closely with the Pediatric Cancer Genetic Risk Program — one of the few cancer genetic risk programs in the U.S. focused specifically on pediatric cancer risk — to provide comprehensive assessment and recommendations for managing cancer risk in children.

• #28 Essential Management of Pediatric Brain Tumors

  https://pmc.ncbi.nlm.nih.gov/articles/PMC9031600/

  The exact treatment approach to treating children with brain tumors is described in the following. […] The initial consultation also sets the time schedule. […] The presence of a (neuro-) psychologist is particularly important, so that the family can be supported from the beginning of the process, and any fears will be made apparent to the (neuro-) psychologist and can be considered. […] After multidisciplinary discussion, the family should be informed of all possible consequences of the disease. […] Immediate postoperative care should be provided by an experienced team of pediatric and neurosurgical intensivists. […] The timing depends on the urgency of the operation (e.g., signs of elevated ICP) and the optimal conditions required in the operating theater. […] The safety of the child should always be the focus.

• #29 Essential Management of Pediatric Brain Tumors

  https://www.mdpi.com/2227-9067/9/4/498

  (Neuro-) Psychological care must be provided for not only acute situations, but also long-term consequences. […] The extent of tumor resection remains the most important factor with respect to event free and overall survival in nearly all kinds of tumor types. […] The safety of the child should always be the focus. […] Immediate postoperative care should be provided by an experienced team of pediatric and neurosurgical intensivists. […] Regular wound checks are performed by a (pediatric) neurosurgeon. […] The role of the neuropathologist has changed over time and with new developments. […] These new methods are leading to further subdivision of known tumor entities and may result in new targeted therapeutic approaches in pediatric neuro-oncology. […] Important advances have been made in pediatric neuro-oncology during the past decade.

• #30 Pediatric Brain Tumors | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/pediatric-brain-tumors

  Surgery is usually the first step in treating brain tumors in children. Our goal within the Pediatric Surgical Oncology Program is to remove all or as much of the tumor as possible while maintaining neurological function. […] Pediatric brain tumor patients have a particular advantage when coming to CHOP because of the extensive experience of our neurosurgeons and the close collaboration between neurosurgery, neuro-oncology, radiation oncology and diagnostic radiology. […] Surgery is also performed for a biopsy a sample of tissue taken to examine the types of cells found in the tumor. This helps establish a diagnosis and treatment plan. This is frequently done when the tumor is surrounded by sensitive structures that may be damaged by surgical removal. […] Other therapies used to treat brain tumors include: Chemotherapy (cancer drugs), Radiation therapy (high-energy rays that kill or shrink cancer cells), Proton therapy (a precise form of radiation therapy that is less damaging to surrounding tissue), Steroids to treat and prevent swelling in the brain, High-dose chemotherapy, stem-cell rescue, and blood and marrow transplantation, Supportive care for the side effects of the tumor or treatment, Rehabilitation to regain lost motor skills and muscle strength, Continuous follow-up care to manage disease, detect recurrence of the tumor and manage late effects of treatment.

• #31 Cancer Treatment for Children | Brain Tumors in Children | Oklahoma Children’s Hospital OU Health

  https://www.ouhealth.com/oklahoma-childrens-hospital/childrens-services/cancer-treatment-for-children/brain-tumors-in-children/

  Your childs oncologist may recommend targeted treatments or chemotherapy as part of a comprehensive treatment plan. Depending on your child’s specific situation, they may benefit from oral chemotherapy one of the many advanced therapy options available to you at OU Health pharmacies near the Jimmy Everest Center. Whether your child needs in-patient or out-patient treatment, your OU Health pediatric chemotherapy nurses provide high-level compassionate care. […] OU Health is one of the few health facilities in the U.S. that offers proton beam therapy. This highly targeted radiation therapy that delivers precise doses of cancer-fighting protons to brain tumors and minimizes exposure to nearby healthy tissue. Proton therapy is especially beneficial for children and their developing brains. When you choose the Jimmy Everest Center, youll gain access to innovative treatments and highly trained radiation oncologists with additional training in pediatrics.

• #32 Pediatric Brain Tumors | Conditions & Treatments | UTSW

  https://utswmed.org/conditions-treatments/pediatric-brain-tumor/

  Surgery is the primary form of treatment. The most important factor in prognosis appears to be the degree or extent of surgical resection. Radiation is often needed to improve survival. Our specialized team offers advanced techniques to minimize the effect of radiation on critical parts of the brain while treating the tumor. […] While open surgery has been the mainstay of treatment for many of these tumors and often offers curative resection, it is not without risks. Radiation, intratumoral therapy, and minimally invasive surgery have also shown success. […] Surgery is necessary to establish a diagnosis, relieve symptoms, and remove the brain tumor. If we can remove all or most of the tumor, a child has a better chance for cure. […] Our team also offers Gamma Knife and LINAC-based forms of radiosurgery for pediatric brain tumors techniques that no other institution in North Texas has readily available for children. These treatments offer a safer, more effective way to deliver radiation to children than conventional radiation therapy, which is used sparingly in children because of the risks of cognitive problems later in life.

• #33 #81: Pediatric Brain Tumors – Let’s Think About It! – The Curbsiders

  https://thecurbsiders.com/cribsiders-podcast/81

  Consult neurosurgery and oncology to help formulate a treatment plan. […] Surgical Resection: Gold standard treatment; goal is total resection & pathology. […] Immunotherapy: Genomic alterations identified within pediatric brain tumors can provide definitive diagnosis and offer potential therapeutic interventions with less side effects than traditional chemotherapy. […] Chemotherapy: Typically a carboplatin based regimen. […] Radiation: Kids have developing brains, so not typically used unless last line. Be aware of endocrinopathies as a result of radiation – growth hormone deficiency, thyroid abnormalities, reproductive potential (radiation and chemotherapy). […] Dr. Hummel recommends using the phrasing, “mass”, in place of definitive words like “malignant” or “cancer”. This is often unsettling to parents and can be premature. […] Dr. Hummel emphasizes the importance of defining benign, malignant and metastatic.

• #34 Cancer Treatment for Children | Brain Tumors in Children | Oklahoma Children’s Hospital OU Health

  https://www.ouhealth.com/oklahoma-childrens-hospital/childrens-services/cancer-treatment-for-children/brain-tumors-in-children/

  Your childs oncologist may recommend targeted treatments or chemotherapy as part of a comprehensive treatment plan. Depending on your child’s specific situation, they may benefit from oral chemotherapy one of the many advanced therapy options available to you at OU Health pharmacies near the Jimmy Everest Center. Whether your child needs in-patient or out-patient treatment, your OU Health pediatric chemotherapy nurses provide high-level compassionate care. […] OU Health is one of the few health facilities in the U.S. that offers proton beam therapy. This highly targeted radiation therapy that delivers precise doses of cancer-fighting protons to brain tumors and minimizes exposure to nearby healthy tissue. Proton therapy is especially beneficial for children and their developing brains. When you choose the Jimmy Everest Center, youll gain access to innovative treatments and highly trained radiation oncologists with additional training in pediatrics.

• #35 #81: Pediatric Brain Tumors – Let’s Think About It! – The Curbsiders

  https://thecurbsiders.com/cribsiders-podcast/81

  Consult neurosurgery and oncology to help formulate a treatment plan. […] Surgical Resection: Gold standard treatment; goal is total resection & pathology. […] Immunotherapy: Genomic alterations identified within pediatric brain tumors can provide definitive diagnosis and offer potential therapeutic interventions with less side effects than traditional chemotherapy. […] Chemotherapy: Typically a carboplatin based regimen. […] Radiation: Kids have developing brains, so not typically used unless last line. Be aware of endocrinopathies as a result of radiation – growth hormone deficiency, thyroid abnormalities, reproductive potential (radiation and chemotherapy). […] Dr. Hummel recommends using the phrasing, “mass”, in place of definitive words like “malignant” or “cancer”. This is often unsettling to parents and can be premature. […] Dr. Hummel emphasizes the importance of defining benign, malignant and metastatic.

• #36 Brain Tumors – Cancer Care – MultiCare Mary Bridge Children’s Hospital & Health NetworkLevel Access website accessibility icon.

  https://www.marybridge.org/services/cancer-care/conditions/brain-tumors/

  Surgery. If possible, physicians will surgically remove a brain tumor. Mary Bridge Children’s has a pediatric neurosurgeon who understands the unique challenges of treating brain tumors in children. […] Chemotherapy. Chemotherapy uses powerful drugs to kill cancer cells. Some chemotherapy is given orally, while other types require an intravenous (IV) infusion. […] Radiation therapy. Radiation therapy uses high-energy radiation beams to destroy cancer cells. Our radiation oncologists use the most sophisticated and accurate equipment currently available to minimize side effects on your child.

• #37 Pediatric Brain Tumors | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/pediatric-brain-tumors

  Surgery is usually the first step in treating brain tumors in children. Our goal within the Pediatric Surgical Oncology Program is to remove all or as much of the tumor as possible while maintaining neurological function. […] Pediatric brain tumor patients have a particular advantage when coming to CHOP because of the extensive experience of our neurosurgeons and the close collaboration between neurosurgery, neuro-oncology, radiation oncology and diagnostic radiology. […] Surgery is also performed for a biopsy a sample of tissue taken to examine the types of cells found in the tumor. This helps establish a diagnosis and treatment plan. This is frequently done when the tumor is surrounded by sensitive structures that may be damaged by surgical removal. […] Other therapies used to treat brain tumors include: Chemotherapy (cancer drugs), Radiation therapy (high-energy rays that kill or shrink cancer cells), Proton therapy (a precise form of radiation therapy that is less damaging to surrounding tissue), Steroids to treat and prevent swelling in the brain, High-dose chemotherapy, stem-cell rescue, and blood and marrow transplantation, Supportive care for the side effects of the tumor or treatment, Rehabilitation to regain lost motor skills and muscle strength, Continuous follow-up care to manage disease, detect recurrence of the tumor and manage late effects of treatment.

• #38 Get Brain Tumor Treatment | Cleveland Clinic Children’s

  https://my.clevelandclinic.org/pediatrics/services/brain-tumor-treatment

  For some tumors, our care team may choose to do watchful waiting to see if the tumor stays the same or starts to grow. This means your child will have regular check-ins with their providers and regular tests. […] When possible, our pediatric neurosurgery team will do brain surgery (craniotomy). Theyll remove all or part of the tumor. Or they may place a hollow drainage tube (shunt) in your childs brain. This can help drain excess fluid and remove the pressure. […] We may use medications to kill cancer cells or help relieve symptoms. When we want to destroy tumor cells, we may use systemic therapies, like chemotherapy, targeted therapy, or immunotherapy. […] Radiation therapy uses high doses of X-rays before or after surgery to shrink tumors and destroy tumor cells. […] Once your child finishes treatment, theyll have regular appointments with their care team. And theyll get tests often to make sure the tumor isnt coming back.

• #39 #81: Pediatric Brain Tumors – Let’s Think About It! – The Curbsiders

  https://thecurbsiders.com/cribsiders-podcast/81

  Consult neurosurgery and oncology to help formulate a treatment plan. […] Surgical Resection: Gold standard treatment; goal is total resection & pathology. […] Immunotherapy: Genomic alterations identified within pediatric brain tumors can provide definitive diagnosis and offer potential therapeutic interventions with less side effects than traditional chemotherapy. […] Chemotherapy: Typically a carboplatin based regimen. […] Radiation: Kids have developing brains, so not typically used unless last line. Be aware of endocrinopathies as a result of radiation – growth hormone deficiency, thyroid abnormalities, reproductive potential (radiation and chemotherapy). […] Dr. Hummel recommends using the phrasing, “mass”, in place of definitive words like “malignant” or “cancer”. This is often unsettling to parents and can be premature. […] Dr. Hummel emphasizes the importance of defining benign, malignant and metastatic.

• #40 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Use this nursing care plan and management guide to provide care for patients with brain tumor. Enhance your understanding of nursing assessment, interventions, goals, and nursing diagnosis, all specifically tailored to address the unique needs of individuals with brain tumor. […] Nursing care planning goals for a patient with a brain tumor center on relieving pain, reducing anxiety, and promoting an understanding of the signs and symptoms of increased ICP and expected changes in body appearance related to the planned cranial surgery. […] The following are the nursing priorities for patients with brain tumors: Assess neurological status, Manage symptoms and provide comfort, Monitor for complications and changes in condition, Provide education and support to patients and their families, Promote self-care and independence, Provide palliative care, if needed.

• #41 Pediatric Brain Tumor Nursing Interventions – Acibadem Health Point – ACIBADEM Hospitals – Acibadem Health Group

  https://www.acibademhealthpoint.com/pediatric-brain-tumor-nursing-interventions/

  Pediatric Brain Tumor Nursing Interventions Dealing with pediatric neuro-oncology is complex and requires a special touch. Nurses are key, offering care that meets the special needs of kids. This part will look into the important nursing steps for managing brain tumors in children. It focuses on a care plan that puts the patient first and follows the best practices. […] Nurses are key in caring for kids with brain tumors. They check on patients to make sure they get the best care. This includes checking at the start and keeping an eye on them over time. […] Making care plans for kids with brain tumors means looking at their medical and emotional needs. It uses personalized nursing care strategies and teamwork in pediatric oncology. This helps get the best results. […] Managing pain for kids with brain tumors is key for their comfort and well-being. Using both medicine and other ways to help offers a full plan for pain relief for pediatric patients.

• #42 Pediatric Brain Tumor Nursing Interventions – Acibadem Health Point – ACIBADEM Hospitals – Acibadem Health Group

  https://www.acibademhealthpoint.com/pediatric-brain-tumor-nursing-interventions/

  It’s very important to give good nutrition to kids with brain tumors. Good food helps them stay strong and recover better during treatment. […] Psychosocial support is key for kids with brain tumors and their families. It includes emotional help and joining cancer support groups. This way, kids and their families get the mental and emotional care they need. […] Nurses play a big role in helping kids with brain tumors. They do many things like giving chemotherapy and making sure patients are safe. They also help manage symptoms to make kids and their families feel better. […] Pediatric Brain Tumor Nursing Interventions Nurses do more than just give treatments. They watch closely for side effects in kids with brain tumors. These effects can happen right away or later, so they need to be watched over a long time. […] Important nursing actions include giving chemotherapy, keeping patients safe, handling symptoms, and teaching and supporting the child and their family. These actions help make treatment work better and improve life quality.

• #43 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Following a thorough assessment, a nursing diagnosis is formulated to specifically address the challenges associated with brain tumors based on the nurses clinical judgement and understanding of the patients unique health condition. […] Goals and expected outcomes may include: The child will rate pain as less than (specify pain rating and scale used), The parent will verbalize reduced anxiety, The child will appear relaxed, with an absence of crying or irritability, The child will not exhibit signs of increased intracranial pressure and will participate in teaching about treatment options. […] Therapeutic interventions and nursing actions for patients with brain tumors may include: Managing Pain, Reducing Anxiety and Fear, Promoting Safety and Preventing Injury Risk. […] Patients with brain tumors may experience pain due to the compression of sensitive structures, increased pressure within the skull, and the invasion of nerve pathways.

• #44 Nursing Care Plan – Brain Neoplasm – Nursing Student Assistance

  https://allnurses.com/nursing-care-plan-brain-t284872/

  Impaired verbal communication r/t impaired cognitive ability as manifested by lack of speaking […] Fatigue r/t radiation therapy as manifested by constant sleepiness and weakness of body […] Risk for impaired skin integrity r/t impaired mobility as manifested by blanching of skin […] impaired verbal communication r/t impaired cognitive ability as manifested by lack of speaking […] fatigue r/t radiation therapy as manifested by constant sleepiness and weakness of body […] risk for impaired skin integrity r/t impaired mobility as manifested by blanching of skin […] impaired skin integrity r/t impaired mobility as evidence by redness and blanching of skin.

• #45 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Following a thorough assessment, a nursing diagnosis is formulated to specifically address the challenges associated with brain tumors based on the nurses clinical judgement and understanding of the patients unique health condition. […] Goals and expected outcomes may include: The child will rate pain as less than (specify pain rating and scale used), The parent will verbalize reduced anxiety, The child will appear relaxed, with an absence of crying or irritability, The child will not exhibit signs of increased intracranial pressure and will participate in teaching about treatment options. […] Therapeutic interventions and nursing actions for patients with brain tumors may include: Managing Pain, Reducing Anxiety and Fear, Promoting Safety and Preventing Injury Risk. […] Patients with brain tumors may experience pain due to the compression of sensitive structures, increased pressure within the skull, and the invasion of nerve pathways.

• #46 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Patients with a brain tumor may experience anxiety due to uncertainty about prognosis, fear of the unknown, concerns about the tumors impact on their daily life, and changes in cognitive function or personality caused by the tumor or treatment. […] Patients with brain tumors are prone to injury due to several factors, such as impaired cognition, altered sensory perception, and motor deficits. These can lead to falls, seizures, and other accidents. Safety and injury prevention for patients with brain tumors involves implementing measures to minimize the risk of falls and ensuring a safe environment.

• #47 Nursing Care Plan – Brain Neoplasm – Nursing Student Assistance

  https://allnurses.com/nursing-care-plan-brain-t284872/

  Impaired verbal communication r/t impaired cognitive ability as manifested by lack of speaking […] Fatigue r/t radiation therapy as manifested by constant sleepiness and weakness of body […] Risk for impaired skin integrity r/t impaired mobility as manifested by blanching of skin […] impaired verbal communication r/t impaired cognitive ability as manifested by lack of speaking […] fatigue r/t radiation therapy as manifested by constant sleepiness and weakness of body […] risk for impaired skin integrity r/t impaired mobility as manifested by blanching of skin […] impaired skin integrity r/t impaired mobility as evidence by redness and blanching of skin.

• #48 Nursing Care Plan – Brain Neoplasm – Nursing Student Assistance

  https://allnurses.com/nursing-care-plan-brain-t284872/

  Impaired verbal communication r/t impaired cognitive ability as manifested by lack of speaking […] Fatigue r/t radiation therapy as manifested by constant sleepiness and weakness of body […] Risk for impaired skin integrity r/t impaired mobility as manifested by blanching of skin […] impaired verbal communication r/t impaired cognitive ability as manifested by lack of speaking […] fatigue r/t radiation therapy as manifested by constant sleepiness and weakness of body […] risk for impaired skin integrity r/t impaired mobility as manifested by blanching of skin […] impaired skin integrity r/t impaired mobility as evidence by redness and blanching of skin.

• #49 Nursing Care Plan – Brain Neoplasm – Nursing Student Assistance

  https://allnurses.com/nursing-care-plan-brain-t284872/

  Impaired verbal communication r/t impaired cognitive ability as manifested by lack of speaking […] Fatigue r/t radiation therapy as manifested by constant sleepiness and weakness of body […] Risk for impaired skin integrity r/t impaired mobility as manifested by blanching of skin […] impaired verbal communication r/t impaired cognitive ability as manifested by lack of speaking […] fatigue r/t radiation therapy as manifested by constant sleepiness and weakness of body […] risk for impaired skin integrity r/t impaired mobility as manifested by blanching of skin […] impaired skin integrity r/t impaired mobility as evidence by redness and blanching of skin.

• #50 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Following a thorough assessment, a nursing diagnosis is formulated to specifically address the challenges associated with brain tumors based on the nurses clinical judgement and understanding of the patients unique health condition. […] Goals and expected outcomes may include: The child will rate pain as less than (specify pain rating and scale used), The parent will verbalize reduced anxiety, The child will appear relaxed, with an absence of crying or irritability, The child will not exhibit signs of increased intracranial pressure and will participate in teaching about treatment options. […] Therapeutic interventions and nursing actions for patients with brain tumors may include: Managing Pain, Reducing Anxiety and Fear, Promoting Safety and Preventing Injury Risk. […] Patients with brain tumors may experience pain due to the compression of sensitive structures, increased pressure within the skull, and the invasion of nerve pathways.

• #51 Pediatric Brain Tumor Nursing Interventions – Acibadem Health Point – ACIBADEM Hospitals – Acibadem Health Group

  https://www.acibademhealthpoint.com/pediatric-brain-tumor-nursing-interventions/

  It’s very important to give good nutrition to kids with brain tumors. Good food helps them stay strong and recover better during treatment. […] Psychosocial support is key for kids with brain tumors and their families. It includes emotional help and joining cancer support groups. This way, kids and their families get the mental and emotional care they need. […] Nurses play a big role in helping kids with brain tumors. They do many things like giving chemotherapy and making sure patients are safe. They also help manage symptoms to make kids and their families feel better. […] Pediatric Brain Tumor Nursing Interventions Nurses do more than just give treatments. They watch closely for side effects in kids with brain tumors. These effects can happen right away or later, so they need to be watched over a long time. […] Important nursing actions include giving chemotherapy, keeping patients safe, handling symptoms, and teaching and supporting the child and their family. These actions help make treatment work better and improve life quality.

• #52 Pediatric Caregiver Resources Center – Learn More or Donate Today!

  https://www.abta.org/about-brain-tumors/caregiving/pediatric-caregiver-resources-center/

  Set up regular meetings with your childs teachers to check on them. Ask about behavior, tiredness, frustration, and sadness. […] Talk to your child often and pay attention to changes in how your child thinks, feels, and acts. […] Our Mentor Program offers patients and caregivers the opportunity to connect with someone who has gone through a similar brain tumor diagnosis, treatment, and care. […] Being diagnosed with a brain tumor takes a toll on the patient and their family physically, emotionally, and financially. Medical bills and related costs can quickly add up. We have a list of resources to help. […] The free educational webinar series is an excellent resource for brain tumor patients and caregivers to learn more about brain tumor types, treatments, well-being topics, and research updates from nationally recognized experts. […] The ABTA has been a top resource for brain tumor educational materials for over 50 years. All of our educational brochures are carefully reviewed by brain tumor medical experts, and brain tumor patients and caregivers. These brochures are 100% free for patients and caregivers.

• #53 Nurses on the Front Lines Are Helping Patients Navigate Brain Tumor Cancer Care

  https://www.oncnursingnews.com/view/nurses-on-the-front-lines-are-helping-patients-navigate-brain-tumor-cancer-care

  Difficulties in drug development to permeate the BBB have stalled advances for patients with brain tumors. […] Nurse navigators help patients understand their diagnosis, seek out expert second opinions, and investigate available treatment options. […] Clinical trials continue to represent the best opportunity for advancing treatment for these patients. […] It is important to help connect patients to these opportunities whenever possible. […] Despite the challenges in treating these patients, all the nurses agreed that connecting patients to clinical trials is an important step in helping patients find the best possible treatment for them. […] It is not our job to tell the patient what to do, but it is our job to give them every possible treatment option. […] There is a significant need to improve the drug development and delivery methods for patients with this disease.

• #54 Pediatric brain tumors – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/pediatric-brain-tumor/diagnosis-treatment/drc-20361706

  Children may need support after treatment to help them recover. Brain tumors can develop in parts of the brain that control motor skills, speech, vision and thinking. Rehabilitation services to help regain these functions include physical therapy to help your child regain lost motor skills or muscle strength, occupational therapy to help your child get back to daily activities, speech therapy if your child has difficulty speaking, and tutoring if your school-age child needs help to cope with changes in memory and thinking after brain tumor treatment.

• #55 Brain Tumors in Children – Stanford Medicine Children’s Health

  https://www.stanfordchildrens.org/en/topic/default?id=brain-tumors-in-children-90-P02745

  Continuous follow-up care is essential for a child diagnosed with a brain tumor. Side effects of radiation and chemotherapy, as well as second malignancies, can occur in survivors of brain tumors. […] Rehabilitation for lost motor skill and muscle strength may be required for an extended amount of time. Speech therapists and physical and occupational therapists may be involved in some form of rehabilitation.

• #56 Pediatric brain tumors | Altru Health System

  https://www.altru.org/health-library/conditions/pediatric-brain-tumors

  Palliative care is a special type of healthcare that helps children with serious illnesses feel better. For children with brain tumors, palliative care can help relieve pain and other symptoms. A team of healthcare professionals offers palliative care. The team can include doctors, nurses and other specially trained professionals. The goal is to improve the quality of life for your child and your family. […] Children may need support after treatment to help them recover. Brain tumors can develop in parts of the brain that control motor skills, speech, vision and thinking. Rehabilitation services to help regain these functions include physical therapy to help your child regain lost motor skills or muscle strength, occupational therapy to help your child get back to daily activities, speech therapy if your child has difficulty speaking, and tutoring if your school-age child needs help to cope with changes in memory and thinking after brain tumor treatment.

• #57 Brain Tumors in Children: Symptoms, Diagnosis and Treatment at Nationwide Children’s Hospital

  https://www.nationwidechildrens.org/conditions/brain-tumors

  Continuous follow-up care is essential for a child diagnosed with a brain tumor. Side effects of radiation and chemotherapy, as well as second malignancies, can occur in survivors of brain tumors. […] Rehabilitation for lost motor skill and muscle strength may be required for an extended amount of time. Speech therapists and physical and occupational therapists may be involved in some form of rehabilitation.

• #58 Pediatric Brain Tumors | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/pediatric-brain-tumors

  Continuous follow-up care is essential for a child diagnosed with a brain tumor, because the side effects of radiation and chemotherapy as well as second malignancies can occur in survivors of brain tumors. […] Rehabilitation for lost motor skills and muscle strength may be required. Children’s Hospital speech, physical and occupational therapists specialize in the unique needs of children undergoing this type of rehabilitation. […] Our Cancer Survivorship Program provides information about the potential long-term effects of the specific treatment your child received, including ways of monitoring and treating these effects.

• #59 Pediatric Brain Tumors | Vanderbilt Children’s Hospital Nashville, TN

  https://www.childrenshospitalvanderbilt.org/program/pediatric-brain-tumors

  We provide unique psychosocial resources to help your child manage the emotional challenges of a cancer diagnosis. These include our exclusive Behavioral Hematology Oncology Program, with licensed psychologists dedicated to working with and supporting your child’s and family’s mental and emotional needs. […] All patients have access to the REACH Survivorship Clinic after completing treatment. We offer a full range of follow-up care designed to meet your child’s physical, emotional and practical needs. You will receive a personalized Cancer Survivorship Care Plan that will be your child’s roadmap for future health and well-being.

• #60 Pediatric Brain Tumor | Memorial Hermann

  https://memorialhermann.org/services/conditions/pediatric-brain-tumor

  With a family-centered approach, the team treats a variety of brain and spinal cord tumors. […] Physicians with the Pediatric Brain Tumor Program partner with patients and families to deliver the best treatment tailored to children with brain and spinal tumors. […] The program includes surgical treatment by board-certified, fellowship-trained pediatric neurosurgeons, comprehensive care provided by subspecialists from pediatric neuro-oncology, pediatric neurosurgery, radiation oncology and neuroradiology, and expert diagnosis provided by board-certified oncologic neuropathologists. […] Survivorship clinic offering integrated, long-term care for patients.

• #61

  https://www.advocatechildrenshospital.com/services/neurosciences/conditions-we-treat/brain-tumors

  Our services include: Clinic for follow-up care to check your childs health and discuss how theyre doing socially and educationally, Family support including events for teens and young adults who have gone through brain tumor care, Pediatric Oncology Survivors in Transition (POST) program to help children move beyond treatment, School support to help make adjustments for your childs education during and after treatment.

• #62 #81: Pediatric Brain Tumors – Let’s Think About It! – The Curbsiders

  https://thecurbsiders.com/cribsiders-podcast/81

  Consult neurosurgery and oncology to help formulate a treatment plan. […] Surgical Resection: Gold standard treatment; goal is total resection & pathology. […] Immunotherapy: Genomic alterations identified within pediatric brain tumors can provide definitive diagnosis and offer potential therapeutic interventions with less side effects than traditional chemotherapy. […] Chemotherapy: Typically a carboplatin based regimen. […] Radiation: Kids have developing brains, so not typically used unless last line. Be aware of endocrinopathies as a result of radiation – growth hormone deficiency, thyroid abnormalities, reproductive potential (radiation and chemotherapy). […] Dr. Hummel recommends using the phrasing, “mass”, in place of definitive words like “malignant” or “cancer”. This is often unsettling to parents and can be premature. […] Dr. Hummel emphasizes the importance of defining benign, malignant and metastatic.

• #63

  https://www.advocatechildrenshospital.com/services/neurosciences/conditions-we-treat/brain-tumors

  We created the Midwests first pediatric brain tumor center more than 20 years ago, knowing that children need care just for them. […] An advanced practice nurse serves as your familys dedicated guide all along the way. We offer comprehensive support services for your child and your family. […] Regardless of the specific recommendations, we work to relieve symptoms and minimize side effects. We also focus on the fact that children are still developing and that critical brain areas need protection. We support your family and help you navigate the many decisions and questions likely to come up along the way. […] From meeting other families during treatment to making sure cancer doesnt return, were here to help with whatever you may need. We work to protect your childs physical and mental health, while easing stresses for your family and providing encouragement.

• #64 Pediatric Caregiver Resources Center – Learn More or Donate Today!

  https://www.abta.org/about-brain-tumors/caregiving/pediatric-caregiver-resources-center/

  When your child is diagnosed with a brain tumor, your life is instantly turned upside down. As a parent, your natural instinct is to protect your child, but a brain tumor diagnosis is something you cant control. […] Please know that you are not alone. Our resources and community of patients, survivors, and caregivers can help with information, insight, and support. […] The process of discovering that your child has a brain tumor is overwhelming and emotional. We have detailed information on the process of diagnosing a brain tumor so that you can better understand what is happening. […] When a child has a brain tumor, it affects the entire family. Emotions can be raw. Stress and anxiety levels rise. Here you will find information on family communication, managing stress, and getting support.

• #65 Brain and Spinal Cord Tumor Program | Texas Children’s

  https://www.texaschildrens.org/departments/brain-tumor-program

  We believe that caring for the psychosocial and emotional needs of our patients and families are just as important as the medical care they receive. The Brain and Spinal Cord Tumor Program offers comprehensive support services for the entire family, including: support groups for patients, parents and siblings; psychosocial and pastoral support; teen retreats, recreational camps and education/learning support. […] The Brain and Spinal Cord Tumor Program develops and participates in national and international research studies and clinical trials, allowing us to treat our patients with the latest and most innovative therapies. Our investigators are leaders in the development of new drugs, sophisticated radiotherapy approaches and the application of other novel approaches to brain tumor therapy. […] We are leaders in the development of personalized medicine based on genome sequencing of each patient’s tumor. This enables us to deliver targeted therapies that are unique to each individual patient, with the potential for greater efficacy and fewer side effects.

• #66 Cancer Treatment for Children | Brain Tumors in Children | Oklahoma Children’s Hospital OU Health

  https://www.ouhealth.com/oklahoma-childrens-hospital/childrens-services/cancer-treatment-for-children/brain-tumors-in-children/

  As a parent, youd travel far and wide to get the best possible care for your child. At Oklahoma Childrens Hospital Jimmy Everest Center, you gain access to leading-edge care close to home including the most advanced diagnostic tools, treatments and clinical trials available in the state and a team of experts who specialize in kid-friendly care for pediatric brain tumors. […] When you choose the Jimmy Everest Center, youll feel the reassuring comfort of knowing your child is getting the best possible care. Your childs comprehensive care starts from the moment of diagnosis and continues throughout treatment. […] As part of the support systems available to you, child life specialists can help your child cope with the physical, emotional and social challenges that may come with treatment for pediatric brain tumors. This comprehensive approach to care provides whole-child support throughout treatment and beyond.

• #67 Pediatric Caregiver Resources Center – Learn More or Donate Today!

  https://www.abta.org/about-brain-tumors/caregiving/pediatric-caregiver-resources-center/

  Set up regular meetings with your childs teachers to check on them. Ask about behavior, tiredness, frustration, and sadness. […] Talk to your child often and pay attention to changes in how your child thinks, feels, and acts. […] Our Mentor Program offers patients and caregivers the opportunity to connect with someone who has gone through a similar brain tumor diagnosis, treatment, and care. […] Being diagnosed with a brain tumor takes a toll on the patient and their family physically, emotionally, and financially. Medical bills and related costs can quickly add up. We have a list of resources to help. […] The free educational webinar series is an excellent resource for brain tumor patients and caregivers to learn more about brain tumor types, treatments, well-being topics, and research updates from nationally recognized experts. […] The ABTA has been a top resource for brain tumor educational materials for over 50 years. All of our educational brochures are carefully reviewed by brain tumor medical experts, and brain tumor patients and caregivers. These brochures are 100% free for patients and caregivers.

• #68 Pediatric brain tumors – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/pediatric-brain-tumor/diagnosis-treatment/drc-20361706

  Pediatric brain tumor diagnosis often begins with questions about your child’s symptoms and an exam. The exam can give your child’s healthcare team clues about what’s happening in your child’s brain. It can help the healthcare team decide which tests are needed next. […] Our caring team of Mayo Clinic experts can help you with your pediatric brain tumors-related health concerns. […] Treatment for pediatric brain tumors depends on many factors. Your child’s healthcare team considers the type, size and location of the tumor. The care team also considers your child’s age and overall health. Treatment options might include surgery, radiation therapy, radiosurgery, chemotherapy and targeted therapy. […] Palliative care is a special type of healthcare that helps children with serious illnesses feel better. For children with brain tumors, palliative care can help relieve pain and other symptoms. A team of healthcare professionals offers palliative care. The team can include doctors, nurses and other specially trained professionals. The goal is to improve the quality of life for your child and your family.

• #69 Pediatric brain tumors | Altru Health System

  https://www.altru.org/health-library/conditions/pediatric-brain-tumors

  Palliative care is a special type of healthcare that helps children with serious illnesses feel better. For children with brain tumors, palliative care can help relieve pain and other symptoms. A team of healthcare professionals offers palliative care. The team can include doctors, nurses and other specially trained professionals. The goal is to improve the quality of life for your child and your family. […] Children may need support after treatment to help them recover. Brain tumors can develop in parts of the brain that control motor skills, speech, vision and thinking. Rehabilitation services to help regain these functions include physical therapy to help your child regain lost motor skills or muscle strength, occupational therapy to help your child get back to daily activities, speech therapy if your child has difficulty speaking, and tutoring if your school-age child needs help to cope with changes in memory and thinking after brain tumor treatment.

• #70 Pediatric Brain Tumors | Vanderbilt Children’s Hospital Nashville, TN

  https://www.childrenshospitalvanderbilt.org/program/pediatric-brain-tumors

  The Pediatric Brain Tumor Program at Monroe Carell is designed for young patients and their families. […] Our dedicated team of pediatric neurosurgeons, neuro-oncologists, radiation oncologists, pathologists, nurse practitioners, pharmacists and nutritionists are experts in treating brain tumors. […] The overall goal is for your child to receive care that will result in a return to normal life patterns as soon as possible. We provide ongoing support including follow-up visits with our team. Our hope is to prevent a tumor’s return and minimize complications resulting from the tumor and treatment. […] Our connection with Monroe Carell’s Palliative Care Services demonstrates our commitment to the whole child. These compassionate experts provide help and support to all children living with cancer, at every stage of the care experience.

• #71 Brain Tumors | Loma Linda University Children’s Health

  https://lluch.org/conditions/brain-tumors

  Since brain tumors in children are rare, it’s important to find a health care team that has experience and skill in treating children with brain tumors. Treatment may include 1 or more of the below: Surgery is usually the first step in treating brain tumors. The goal is to remove as much of the tumor as possible, while keeping brain function. The surgery is also done to take a sample of the tumor to determine what kind it is. […] […] These treatments are called supportive or palliative care. They’re used to treat side effects and problems caused by the tumor, but not the tumor itself. Medicines and other treatments can be used for pain, fever, infection, nausea, and vomiting. […] […] Ongoing follow-up care is important to watch for effects of tumors or treatment and the cancer growing back.

• #72 Pediatric Brain Tumors | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/pediatric-brain-tumors

  Surgery is usually the first step in treating brain tumors in children. Our goal within the Pediatric Surgical Oncology Program is to remove all or as much of the tumor as possible while maintaining neurological function. […] Pediatric brain tumor patients have a particular advantage when coming to CHOP because of the extensive experience of our neurosurgeons and the close collaboration between neurosurgery, neuro-oncology, radiation oncology and diagnostic radiology. […] Surgery is also performed for a biopsy a sample of tissue taken to examine the types of cells found in the tumor. This helps establish a diagnosis and treatment plan. This is frequently done when the tumor is surrounded by sensitive structures that may be damaged by surgical removal. […] Other therapies used to treat brain tumors include: Chemotherapy (cancer drugs), Radiation therapy (high-energy rays that kill or shrink cancer cells), Proton therapy (a precise form of radiation therapy that is less damaging to surrounding tissue), Steroids to treat and prevent swelling in the brain, High-dose chemotherapy, stem-cell rescue, and blood and marrow transplantation, Supportive care for the side effects of the tumor or treatment, Rehabilitation to regain lost motor skills and muscle strength, Continuous follow-up care to manage disease, detect recurrence of the tumor and manage late effects of treatment.

• #73 Pediatric Brain Tumors

  https://www.rwjbh.org/treatment-care/neuroscience/neurosurgery/conditions-treated/pediatric-brain-tumors/

  The main treatments for pediatric brain tumors include surgery, radiation therapy, chemotherapy, targeted therapy drugs, and drugs to help alleviate symptoms. Most often, the goal for the neurosurgeon is to remove or destroy as much of the tumor as possible without impairing normal brain and/or nerve function. […] This surgery is performed by making a sort of keyhole into the skull to access the brain. It is the most common surgery for brain tumor removal. […] Radiation uses high-energy, carefully targeted x-rays to kill some tumors. […] Chemotherapy, often called chemo, kills cancer cells and is usually administered intravenously or taken in pill form by mouth. […] Of all children with brain tumors, both malignant or benign, about 75% will survive at least 5 years upon diagnosis.

• #74 Pediatric brain tumors – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/pediatric-brain-tumor/diagnosis-treatment/drc-20361706

  Pediatric brain tumor diagnosis often begins with questions about your child’s symptoms and an exam. The exam can give your child’s healthcare team clues about what’s happening in your child’s brain. It can help the healthcare team decide which tests are needed next. […] Our caring team of Mayo Clinic experts can help you with your pediatric brain tumors-related health concerns. […] Treatment for pediatric brain tumors depends on many factors. Your child’s healthcare team considers the type, size and location of the tumor. The care team also considers your child’s age and overall health. Treatment options might include surgery, radiation therapy, radiosurgery, chemotherapy and targeted therapy. […] Palliative care is a special type of healthcare that helps children with serious illnesses feel better. For children with brain tumors, palliative care can help relieve pain and other symptoms. A team of healthcare professionals offers palliative care. The team can include doctors, nurses and other specially trained professionals. The goal is to improve the quality of life for your child and your family.

• #75 Nurses on the Front Lines Are Helping Patients Navigate Brain Tumor Cancer Care

  https://www.oncnursingnews.com/view/nurses-on-the-front-lines-are-helping-patients-navigate-brain-tumor-cancer-care

  Difficulties in drug development to permeate the BBB have stalled advances for patients with brain tumors. […] Nurse navigators help patients understand their diagnosis, seek out expert second opinions, and investigate available treatment options. […] Clinical trials continue to represent the best opportunity for advancing treatment for these patients. […] It is important to help connect patients to these opportunities whenever possible. […] Despite the challenges in treating these patients, all the nurses agreed that connecting patients to clinical trials is an important step in helping patients find the best possible treatment for them. […] It is not our job to tell the patient what to do, but it is our job to give them every possible treatment option. […] There is a significant need to improve the drug development and delivery methods for patients with this disease.

• #76 Pediatric Brain Tumors | Conditions & Treatments | UTSW

  https://utswmed.org/conditions-treatments/pediatric-brain-tumor/

  Clinical trials allow access to the latest treatments before they become the standard of care. Our clinicians direct the clinical operations of the Childrens Health NONC (neuro-oncology) program and are members of the Childrens Oncology Group (COG), a national childhood brain tumor consortium that provides our patients access to experimental therapies and new treatment developments.

• #77 What are Childhood Brain Tumors? Symptoms, Risk Factors & Treatments | MD Anderson Cancer Center

  https://www.mdanderson.org/cancer-types/childhood-brain-tumors.html

  We provide the most advanced diagnostic and treatment approaches, many of which are available at only a few hospitals in the nation. Our surgeons are top in their fields, and their expertise helps target the tumor while saving as much of the surrounding tissue as possible. […] Children’s Cancer Hospital offers clinical trials for innovative new treatments for brain tumors in children. And, behind the scenes we are working on groundbreaking basic science research to change the future of pediatric cancer. […] Children’s Cancer Hospital is designed just for children, with a full range of services and amenities that help make the child and family’s experience as comfortable as possible. We go beyond medical care to deliver a comprehensive experience that treats the whole child.

• #78 Brain and Spinal Cord Tumor Program | Texas Children’s

  https://www.texaschildrens.org/departments/brain-tumor-program

  We believe that caring for the psychosocial and emotional needs of our patients and families are just as important as the medical care they receive. The Brain and Spinal Cord Tumor Program offers comprehensive support services for the entire family, including: support groups for patients, parents and siblings; psychosocial and pastoral support; teen retreats, recreational camps and education/learning support. […] The Brain and Spinal Cord Tumor Program develops and participates in national and international research studies and clinical trials, allowing us to treat our patients with the latest and most innovative therapies. Our investigators are leaders in the development of new drugs, sophisticated radiotherapy approaches and the application of other novel approaches to brain tumor therapy. […] We are leaders in the development of personalized medicine based on genome sequencing of each patient’s tumor. This enables us to deliver targeted therapies that are unique to each individual patient, with the potential for greater efficacy and fewer side effects.

• #79 Nurses on the Front Lines Are Helping Patients Navigate Brain Tumor Cancer Care

  https://www.oncnursingnews.com/view/nurses-on-the-front-lines-are-helping-patients-navigate-brain-tumor-cancer-care

  Difficulties in drug development to permeate the BBB have stalled advances for patients with brain tumors. […] Nurse navigators help patients understand their diagnosis, seek out expert second opinions, and investigate available treatment options. […] Clinical trials continue to represent the best opportunity for advancing treatment for these patients. […] It is important to help connect patients to these opportunities whenever possible. […] Despite the challenges in treating these patients, all the nurses agreed that connecting patients to clinical trials is an important step in helping patients find the best possible treatment for them. […] It is not our job to tell the patient what to do, but it is our job to give them every possible treatment option. […] There is a significant need to improve the drug development and delivery methods for patients with this disease.

• #80 Essential Management of Pediatric Brain Tumors

  https://www.mdpi.com/2227-9067/9/4/498

  (Neuro-) Psychological care must be provided for not only acute situations, but also long-term consequences. […] The extent of tumor resection remains the most important factor with respect to event free and overall survival in nearly all kinds of tumor types. […] The safety of the child should always be the focus. […] Immediate postoperative care should be provided by an experienced team of pediatric and neurosurgical intensivists. […] Regular wound checks are performed by a (pediatric) neurosurgeon. […] The role of the neuropathologist has changed over time and with new developments. […] These new methods are leading to further subdivision of known tumor entities and may result in new targeted therapeutic approaches in pediatric neuro-oncology. […] Important advances have been made in pediatric neuro-oncology during the past decade.

• #81 Pediatric Brain Tumor Types & Diagnosis | MSK Kids | Memorial Sloan Kettering Cancer Center

  https://www.mskcc.org/pediatrics/cancer-care/types/pediatric-brain-tumors/diagnosis

  Ependymomas develop within the ependymal cells lining the brains ventricles (a series of fluid filled cavities in the brain) and are treated with surgery and often radiation therapy. Children who have ependymomas that cannot be completely surgically removed are often also treated with chemotherapy. Though there are no treatments unique to ependymomas, radiation therapy is an extremely important part of the typical treatment plan. […] Treatment for medulloblastomas usually includes surgery, radiation therapy (except in the very young), and chemotherapy. […] Most germ cell tumors are malignant and can often be cured with current treatments that may include surgery, radiation therapy, and chemotherapy. […] At Memorial Sloan Kettering Cancer Center (MSK), new efforts now focus on applying the power of immunotherapy to treat DIPG. […] This area of research offers newfound hope to patients diagnosed with this brain tumor. Additional studies, already in the planning stages, are critical to maintaining the pace and progress of research so that we can help children fighting these cancers not just at MSK, but everywhere.

• #82 Brain and Spinal Cord Tumor Program | Texas Children’s

  https://www.texaschildrens.org/departments/brain-tumor-program

  We believe that caring for the psychosocial and emotional needs of our patients and families are just as important as the medical care they receive. The Brain and Spinal Cord Tumor Program offers comprehensive support services for the entire family, including: support groups for patients, parents and siblings; psychosocial and pastoral support; teen retreats, recreational camps and education/learning support. […] The Brain and Spinal Cord Tumor Program develops and participates in national and international research studies and clinical trials, allowing us to treat our patients with the latest and most innovative therapies. Our investigators are leaders in the development of new drugs, sophisticated radiotherapy approaches and the application of other novel approaches to brain tumor therapy. […] We are leaders in the development of personalized medicine based on genome sequencing of each patient’s tumor. This enables us to deliver targeted therapies that are unique to each individual patient, with the potential for greater efficacy and fewer side effects.

• #83 Pediatric Brain Tumor Types & Diagnosis | MSK Kids | Memorial Sloan Kettering Cancer Center

  https://www.mskcc.org/pediatrics/cancer-care/types/pediatric-brain-tumors/diagnosis

  Memorial Sloan Kettering Cancer Centers Pediatric Brain Tumor team diagnose and treat children, adolescents, and young adults who have any type of brain tumor. We tailor our innovative treatments for each patient, based on the characteristics of your child and their disease. […] Establishing the proper diagnosis is the crucial first step to ensure that your child receives the most appropriate treatment at Memorial Sloan Kettering. Once a child exhibits symptoms that may be caused by a brain tumor, imaging tests such as CT or MRI scans are performed. These tests help doctors see the extent of the tumor and plan for either the removal of the tumor or a biopsy. Doing this allows the doctors to know exactly what type of tumor they are treating. We also incorporate DNA methylation profiling, a diagnostic tool that significantly improves the accuracy of a diagnosis compared with standard methods alone.

• #84 Essential Management of Pediatric Brain Tumors

  https://www.mdpi.com/2227-9067/9/4/498

  (Neuro-) Psychological care must be provided for not only acute situations, but also long-term consequences. […] The extent of tumor resection remains the most important factor with respect to event free and overall survival in nearly all kinds of tumor types. […] The safety of the child should always be the focus. […] Immediate postoperative care should be provided by an experienced team of pediatric and neurosurgical intensivists. […] Regular wound checks are performed by a (pediatric) neurosurgeon. […] The role of the neuropathologist has changed over time and with new developments. […] These new methods are leading to further subdivision of known tumor entities and may result in new targeted therapeutic approaches in pediatric neuro-oncology. […] Important advances have been made in pediatric neuro-oncology during the past decade.

• #85 Improving Care in Pediatric Neuro-oncology Patients:An Overview of the Unique Needs of Children with Brain Tumors

  https://pmc.ncbi.nlm.nih.gov/articles/PMC5032907/

  Treating a child with a primary CNS lesion requires a multi-disciplinary approach and involves family members. Ideally treatment should be administered at an academic medical center so that all levels of care are coordinated. Teaching and support are ongoing as the team and family relationship develops. The ideal goal of treatment is to eradicate the disease while sparing healthy tissue and structures. Early interventions are vital to help each child to reach their highest potential and live a fulfilling, happy life. […] Lifelong medical surveillance with a multi-disciplinary team approach is essential to maximize health and improve quality of life. […] The neurologic deficits experienced by pediatric CNS tumor population are chronic or evolving issues that can impair function and quality of life and require referrals to specialists and long term management. With proper intervention and further research, pediatric patients with CNS tumors can have improved quality of life during treatment, survivorship, and at end of life.

• #86 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Use this nursing care plan and management guide to provide care for patients with brain tumor. Enhance your understanding of nursing assessment, interventions, goals, and nursing diagnosis, all specifically tailored to address the unique needs of individuals with brain tumor. […] Nursing care planning goals for a patient with a brain tumor center on relieving pain, reducing anxiety, and promoting an understanding of the signs and symptoms of increased ICP and expected changes in body appearance related to the planned cranial surgery. […] The following are the nursing priorities for patients with brain tumors: Assess neurological status, Manage symptoms and provide comfort, Monitor for complications and changes in condition, Provide education and support to patients and their families, Promote self-care and independence, Provide palliative care, if needed.

• #87

  https://apps.aann.org/store/product-details?productId=192053377

  The purpose of the Care of the Pediatric Patient with a Brain Tumor clinical practice guideline (CPG) is to provide an up-to-date and thorough review and assessment of the literature; nursing care recommendations based on the evidence in the literature; and, in the absence of published scientific evidence, recommendations based on expert opinion. […] The intended audience is bedside nurses caring for pediatric patients with brain tumors. […] The goal of this CPG is to establish current and consistent practices among nurses providing direct care to pediatric patients with brain tumors. […] The basic understanding of pediatric brain tumors, including the epidemiology, etiology, and most common types of brain tumors, is covered, as well as diagnostic testing, acute care, surgical management, treatments and long-term effects and the nursing assessment, and interventions related to those topics.

• #88 TheTruth365 – Childhood brain tumors are the leading cause…FacebookShared with Public

  https://www.facebook.com/theTruth365film/posts/childhood-brain-tumors-are-the-leading-cause-of-cancer-deaths-in-children-and-th/1099477392215739/

  Childhood brain tumors are the leading cause of cancer deaths in children and the most diagnosed cancer in those 14 years old and younger. […] Unfortunately, no treatments are specifically developed and approved for pediatric brain tumors, and many pediatric brain tumor types lack a defined standard of care. […] In addition, survival rates for pediatric high-grade gliomas are unacceptably low.

• #89 Nurses on the Front Lines Are Helping Patients Navigate Brain Tumor Cancer Care

  https://www.oncnursingnews.com/view/nurses-on-the-front-lines-are-helping-patients-navigate-brain-tumor-cancer-care

  Difficulties in drug development to permeate the BBB have stalled advances for patients with brain tumors. […] Nurse navigators help patients understand their diagnosis, seek out expert second opinions, and investigate available treatment options. […] Clinical trials continue to represent the best opportunity for advancing treatment for these patients. […] It is important to help connect patients to these opportunities whenever possible. […] Despite the challenges in treating these patients, all the nurses agreed that connecting patients to clinical trials is an important step in helping patients find the best possible treatment for them. […] It is not our job to tell the patient what to do, but it is our job to give them every possible treatment option. […] There is a significant need to improve the drug development and delivery methods for patients with this disease.

• #90

  https://journals.lww.com/indianjcancer/fulltext/2016/53040/pediatric_brain_tumors__an_analysis_of_5_years_of.20.aspx

  Pediatric brain tumors are the most common solid tumors in children and a leading cause of mortality and morbidity in children worldwide. […] To study the patterns of care, and to assess the treatment response. […] Surgery was the main modality of treatment. Chemotherapy was given to 16% of patients. Even though radiation therapy was offered to 74% of patients, only 42% completed radiotherapy. There was subjective clinical improvement in 68% of patient population after treatment. […] Multimodality management including surgery, chemotherapy, and radiation therapy remains the cornerstone in the management of pediatric brain tumors. […] The completeness of surgical excision usually determines the outcome of treatment. […] In our present study, the percentage of patients defaulted for radiation is quite high (32%). This reflects the inherent fear of parents about radiation therapy and the need for proper counseling about the benefits of a completely noninvasive treatment modality like radiation. […] Multimodality management including surgery, chemotherapy, and radiation therapy remains the cornerstone in the management of pediatric brain tumors. The study also reflects the need to strengthen the follow-up practices for providing the best possible care to our children.

• #91 Improving Care in Pediatric Neuro-oncology Patients:An Overview of the Unique Needs of Children with Brain Tumors

  https://pmc.ncbi.nlm.nih.gov/articles/PMC5032907/

  Brain tumors represent the most common solid tumors in childhood, accounting for almost 25% of all childhood cancer, second only to leukemia. Management of children with CNS tumors requires knowledge of the unique aspects of care associated with this particular patient population, beyond general oncology care. Pediatric brain tumor patients have unique needs during treatment, as cancer survivors, and at end of life. A multidisciplinary team approach, including advanced practice nurses with a specialty in neuro-oncology, allows for better supportive care. Knowledge of the unique aspects of care for children with brain tumors, and the appropriate interventions required, allows for improved quality of life. […] With appropriate interventions and management pediatric patients with CNS tumors can have improved quality of life during treatment, survivorship, and at end of life.

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