Hidradenitis suppurativa (trądzik odwrócony)
Charakterystyka, pielęgnacja i opieka

Hidradenitis suppurativa (HS) to przewlekła, zapalna choroba skóry, manifestująca się bolesnymi guzkami, ropniami i przetokami, lokalizującymi się głównie w fałdach skórnych (pachy, pachwiny, okolice anogenitalne, pod piersiami). Klasyfikacja Hurleya dzieli HS na trzy stadia: I – łagodne zmiany bez przetok i blizn, II – zmiany z przetokami i bliznowaceniem, III – rozległe zmiany z licznymi przetokami i ropniami. Dominującym objawem jest ból, często oceniany na 10/10, który znacząco obniża jakość życia pacjentów. Kompleksowa opieka wymaga wielodyscyplinarnego zespołu, w tym dermatologów, chirurgów, specjalistów leczenia ran, psychologów, dietetyków oraz personelu pielęgniarskiego, który odgrywa kluczową rolę w codziennej pielęgnacji, edukacji i wsparciu psychospołecznym. Leczenie miejscowe obejmuje antybiotyki (np. klindamycyna 1%), rezorcynol 15%, środki antyseptyczne i glikokortykosteroidy, natomiast w umiarkowanych i ciężkich stadiach stosuje się leczenie systemowe, w tym antybiotyki ogólnoustrojowe, leki hormonalne, retinoidy oraz biologiczne (adalimumab). Interwencje chirurgiczne, takie jak nacięcie i drenaż, deroofing czy szerokie wycięcie, są zarezerwowane dla zaawansowanych przypadków.

  1. Hidradenitis suppurativa (trądzik odwrócony) – wprowadzenie do opieki pielęgniarskiej
    1. Podejście wielodyscyplinarne w opiece nad pacjentem z HS
  2. Ocena pielęgniarska pacjenta z hidradenitis suppurativa
    1. Ocena stopnia zaawansowania choroby (klasyfikacja Hurleya)
    2. Ocena zmian skórnych i ran
    3. Ocena bólu
    4. Ocena aspektów psychospołecznych
  3. Interwencje pielęgniarskie w hidradenitis suppurativa
    1. Pielęgnacja ran i zmienionych chorobowo obszarów skóry
    2. Zarządzanie bólem
    3. Edukacja pacjenta i wsparcie w samoopiece
    4. Wspieranie modyfikacji stylu życia
  4. Farmakologiczne aspekty opieki w hidradenitis suppurativa
    1. Leczenie miejscowe
    2. Leczenie ogólnoustrojowe
  5. Aspekty opieki chirurgicznej w hidradenitis suppurativa
    1. Procedury chirurgiczne stosowane w HS
    2. Opieka okołooperacyjna
  6. Wsparcie psychologiczne pacjentów z hidradenitis suppurativa
    1. Wpływ HS na zdrowie psychiczne
    2. Wsparcie pielęgniarskie w aspektach psychologicznych
  7. Zarządzanie przypadkiem i koordynacja opieki w hidradenitis suppurativa
    1. Rola pielęgniarki w zespole wielodyscyplinarnym
    2. Planowanie opieki długoterminowej
    3. Dokumentacja pielęgniarska
  8. Wpływ hidradenitis suppurativa na jakość życia i praktyczne aspekty codziennego funkcjonowania
    1. Wpływ HS na codzienne funkcjonowanie
    2. Praktyczne porady dla pacjentów
    3. Funkcjonowanie w pracy i szkole
  9. Opieka nad szczególnymi grupami pacjentów z hidradenitis suppurativa
    1. Pacjentki w ciąży i karmiące piersią
    2. Młodzież z HS
    3. Pacjenci w podeszłym wieku
  10. Przyszłość opieki nad pacjentami z hidradenitis suppurativa
    1. Postępy w badaniach i nowe metody leczenia
    2. W kierunku spersonalizowanej opieki
    3. Rzecznictwo i zwiększanie świadomości
  11. Podsumowanie
    1. Kolejne rozdziały

Hidradenitis suppurativa (trądzik odwrócony) – wprowadzenie do opieki pielęgniarskiej

Hidradenitis suppurativa (HS), w języku polskim znana również jako trądzik odwrócony, jest przewlekłą zapalną chorobą skóry charakteryzującą się bolesnymi, nawracającymi zmianami skórnymi w postaci guzków, ropni i przetok, występującymi głównie w obszarach fałdów skórnych, takich jak pachy, pachwiny, okolice odbytu, krocze oraz pod piersiami.12 Choroba ta może mieć niszczący wpływ na jakość życia pacjentów, powodując ból, dyskomfort oraz problemy natury psychospołecznej, co czyni kompleksową opiekę medyczną i pielęgniarską kluczowym elementem w zarządzaniu tym schorzeniem.3

HS nie jest wynikiem złej higieny ani nie jest chorobą zakaźną, lecz złożonym schorzeniem o podłożu immunologicznym, które wymaga zrozumienia i specjalistycznej wiedzy ze strony personelu medycznego.4 Wczesne rozpoznanie i wielodyscyplinarne podejście do leczenia są niezbędne, aby zapobiec progresji choroby do bardziej zaawansowanych stadiów, które mogą prowadzić do poważnych powikłań i nieodwracalnych zmian w strukturze skóry.56

Podejście wielodyscyplinarne w opiece nad pacjentem z HS

Opieka nad pacjentem z HS wymaga współpracy specjalistów z różnych dziedzin medycyny. Dermatolog zwykle odgrywa kluczową rolę w diagnozowaniu i koordynowaniu leczenia, jednak kompleksowa opieka często wymaga zaangażowania innych specjalistów.7 Wielodyscyplinarny zespół w zarządzaniu HS może obejmować:

  • Dermatologów – diagnostyka, leczenie farmakologiczne i nadzorowanie planu terapeutycznego
  • Chirurgów – interwencje chirurgiczne w zaawansowanych przypadkach
  • Specjalistów od leczenia ran – zarządzanie przewlekłymi ranami i przetokmi
  • Specjalistów od leczenia bólu – kontrola przewlekłego bólu
  • Psychologów/psychiatrów – wsparcie w radzeniu sobie z psychologicznymi aspektami choroby
  • Dietetyków – porada dietetyczna, zwłaszcza u pacjentów z nadwagą
  • Personel pielęgniarski – koordynacja opieki, edukacja pacjenta, pielęgnacja ran

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Personel pielęgniarski pełni szczególnie istotną funkcję w codziennej opiece nad pacjentem z HS, zapewniając ciągłość leczenia, wsparcie emocjonalne oraz edukację w zakresie samodzielnego zarządzania chorobą.10

Ocena pielęgniarska pacjenta z hidradenitis suppurativa

Dokładna ocena stanu pacjenta jest fundamentalnym elementem opieki pielęgniarskiej w przypadku hidradenitis suppurativa. Prawidłowe rozpoznanie objawów i stadiów zaawansowania choroby pozwala na wdrożenie odpowiednich interwencji i monitorowanie postępów leczenia.11

Ocena stopnia zaawansowania choroby (klasyfikacja Hurleya)

W praktyce klinicznej powszechnie stosowana jest klasyfikacja Hurleya, która dzieli HS na trzy stadia zaawansowania:

  • Stadium I (łagodne): Pojedyncze lub mnogie odosobnione guzki bez przetok i bliznowacenia
  • Stadium II (umiarkowane): Nawracające guzki z przetokami i bliznowaceniem, zmiany pojedyncze lub mnogie, ale z zachowanymi obszarami niezmienionej skóry między zmianami patologicznymi
  • Stadium III (ciężkie): Rozległe zajęcie całego obszaru anatomicznego z licznymi połączonymi przetokami i ropniami, z niewielką ilością lub brakiem prawidłowej skóry między zmianami chorobowymi

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Ocena stopnia zaawansowania choroby jest kluczowa dla określenia odpowiedniej strategii leczenia i opieki pielęgniarskiej. W przypadku pacjentów z stadium I zwykle wystarczające są miejscowe metody leczenia, podczas gdy stadium III często wymaga agresywnego leczenia systemowego i interwencji chirurgicznych.14

Ocena zmian skórnych i ran

Podczas badania pacjenta z HS należy dokładnie ocenić:

  • Lokalizację zmian skórnych – najczęściej w okolicach pach, pachwin, okolicy anogenitalnej, pod piersiami
  • Rodzaj zmian – guzki, ropnie, przetoki, tunele, blizny
  • Stan ran – obecność wysięku, krwawienia, wydzieliny ropnej, nieprzyjemnego zapachu
  • Okolice skóry wokół ran (skóra okołoranowa) – oznaki maceracji, nadżerek, podrażnienia
  • Oznaki infekcji – zwiększone zaczerwienienie, obrzęk, ocieplenie, nasilony ból

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Dokumentowanie stanu zmian skórnych, najlepiej z użyciem fotografii (za zgodą pacjenta), może pomóc w monitorowaniu postępu leczenia i skuteczności interwencji pielęgniarskich.17

Ocena bólu

Ból jest dominującym objawem u pacjentów z HS i znacząco wpływa na jakość życia. Badanie przeprowadzone wśród pacjentów hospitalizowanych z powodu HS wykazało, że ponad 40% zgłaszało ból na poziomie 10/10 w skali bólu.18 W ramach oceny bólu należy uwzględnić:

  • Intensywność bólu (przy użyciu skali numerycznej lub wizualnej skali analogowej)
  • Charakter bólu (pulsujący, kłujący, piekący, tępy)
  • Czynniki nasilające ból (ruch, ucisk, tarcie)
  • Czynniki łagodzące ból
  • Wpływ bólu na codzienne funkcjonowanie (sen, mobilność, aktywność zawodową)

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Regularna ocena bólu pozwala na dostosowanie planu leczenia przeciwbólowego i monitorowanie skuteczności wdrożonych interwencji.21

Ocena aspektów psychospołecznych

Hidradenitis suppurativa ma znaczący wpływ na aspekty psychospołeczne życia pacjenta. W ramach kompleksowej oceny pielęgniarskiej należy uwzględnić:

  • Wpływ choroby na wizerunek ciała i samoocenę
  • Oznaki depresji, lęku i innych zaburzeń psychicznych (pacjenci z HS mają ok. 50% wyższe ryzyko depresji i dwukrotnie wyższe ryzyko samobójstwa)22
  • Wpływ choroby na relacje społeczne i intymne
  • Ograniczenia w aktywności zawodowej i codziennym funkcjonowaniu
  • Mechanizmy radzenia sobie z chorobą

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Wczesne rozpoznanie problemów psychospołecznych pozwala na wdrożenie odpowiedniego wsparcia i skierowanie pacjenta do specjalistów zdrowia psychicznego, gdy jest to konieczne.25

Interwencje pielęgniarskie w hidradenitis suppurativa

Pielęgnacja ran i zmienionych chorobowo obszarów skóry

Opieka nad ranami jest kluczowym elementem zarządzania HS, szczególnie w stadium II i III choroby, gdy obecne są przetoki i tunele skórne z wysiękiem. Celem pielęgnacji ran jest kontrola wysięku, zapobieganie infekcjom wtórnym, minimalizowanie nieprzyjemnego zapachu i wspieranie procesu gojenia.2627

Podstawowe zasady pielęgnacji ran w HS obejmują:

  • Oczyszczanie ran – delikatne przemywanie zmian ciepłą wodą z łagodnym środkiem myjącym lub antyseptykami (np. 4% roztwór chlorheksydyny, oktenidyna)
  • Stosowanie odpowiednich opatrunków – chłonnych, nieklejących się do rany, redukujących tarcie
  • Ochrona skóry okoloranowej – stosowanie preparatów barierowych zapobiegających maceracji i podrażnieniom
  • Kontrola zapachu – opatrunki zawierające węgiel aktywowany lub srebro mogą pomóc w redukcji nieprzyjemnego zapachu
  • Kąpiele lecznicze – w niektórych przypadkach zalecane są kąpiele z dodatkiem środków antyseptycznych lub rozcieńczonego roztworu podchlorynu sodu (kąpiele wybielaczem)

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Wybór opatrunków powinien być dostosowany do charakteru ran i preferencji pacjenta. Wśród rekomendowanych typów opatrunków dla pacjentów z HS znajdują się:

  • Opatrunki piankowe – absorbujące wysięk i redukujące tarcie
  • Hydrokoloidy – zapewniające wilgotne środowisko gojenia
  • Opatrunki z jonami srebra – przy oznakach infekcji
  • Opatrunki alginianowe – przy ranach z obfitym wysiękiem

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Częstość zmiany opatrunków zależy od ilości wysięku – badania pokazują, że pacjenci z HS potrzebują średnio 2,8 zmian opatrunków dziennie, a niektórzy wymagają nawet 5 lub więcej zmian dziennie.33

Zarządzanie bólem

Ból jest jednym z najbardziej dotkliwych objawów HS, który znacząco ogranicza codzienne funkcjonowanie pacjentów. Kompleksowe podejście do zarządzania bólem obejmuje:

  • Farmakoterapia bólu – stosowanie niesteroidowych leków przeciwzapalnych (NLPZ), paracetamolu, a w cięższych przypadkach opioidów (pod ścisłą kontrolą lekarza)
  • Miejscowe metody łagodzenia bólu – ciepłe okłady, które mogą zmniejszyć obrzęk i ból ostrych zmian (guzków zapalnych)
  • Techniki niefarmakologiczne – relaksacja, wizualizacja, odwracanie uwagi
  • Modyfikacja codziennych czynności – unikanie ruchów nasilających ból, odpowiednia pozycja podczas snu i odpoczynku

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W przypadku pacjentek w ciąży i karmiących piersią, paracetamol jest najlepszym wyborem w łagodzeniu bólu związanego z HS.37 Ważne jest również, aby pacjenci zgłaszali personelowi medycznemu, gdy stosowane metody leczenia przeciwbólowego są niewystarczające, co może wymagać konsultacji ze specjalistą leczenia bólu.38

Edukacja pacjenta i wsparcie w samoopiece

Edukacja pacjenta jest fundamentalnym elementem zarządzania HS, ponieważ większość opieki odbywa się w warunkach domowych. Kompleksowa edukacja powinna obejmować:

  • Informacje o chorobie – wyjaśnienie przyczyn, przebiegu i charakteru HS
  • Techniki pielęgnacji skóry i ran – prawidłowe oczyszczanie, stosowanie opatrunków, rozpoznawanie oznak infekcji
  • Zarządzanie bólem – stosowanie leków przeciwbólowych, metody niefarmakologiczne
  • Modyfikacja stylu życia – znaczenie rzucenia palenia, redukcji masy ciała, odpowiedniej diety
  • Radzenie sobie z aspektami psychospołecznymi – strategie radzenia sobie ze stresem, zarządzanie emocjami

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Kluczowe zasady samoopieki, które powinny być przekazane pacjentom z HS, obejmują:

  • Mycie zmienionej chorobowo skóry delikatnie, przy użyciu rąk zamiast myjek czy gąbek, z zastosowaniem łagodnych środków myjących lub antybakteryjnych41
  • Unikanie wyciskania, ściskania czy przekłuwania zmian42
  • Noszenie luźnej, przewiewnej odzieży z naturalnych materiałów, aby zmniejszyć tarcie i podrażnienie skóry43
  • Stosowanie ciepłych okładów na bolesne zmiany, ale unikanie nadmiernego pocenia się i przegrzewania, które mogą nasilać objawy44
  • Unikanie golenia lub woskowania w obszarach dotkniętych chorobą45

Warto również poinformować pacjentów o dostępnych grupach wsparcia i organizacjach pacjenckich, które mogą stanowić dodatkowe źródło informacji i wsparcia emocjonalnego.46

Wspieranie modyfikacji stylu życia

Modyfikacje stylu życia mogą znacząco wpłynąć na przebieg HS i skuteczność leczenia. Rola personelu pielęgniarskiego obejmuje wspieranie pacjentów w następujących obszarach:

  • Rzucenie palenia – palenie tytoniu jest silnie powiązane z HS i może nasilać objawy. Zaprzestanie palenia może zmniejszyć częstość zaostrzeń i poprawić ogólny przebieg choroby47
  • Redukcja masy ciała – u pacjentów z nadwagą utrata masy ciała może zmniejszyć tarcie skóry w fałdach oraz zmniejszyć częstość i nasilenie zaostrzeń48
  • Modyfikacja diety – niektóre składniki diety mogą nasilać objawy HS. Zaleca się dietę o niskim indeksie glikemicznym, ograniczenie produktów wysokoprzetworzonych i eliminację potencjalnych alergenów pokarmowych49
  • Zarządzanie stresem – stres może przyczyniać się do zaostrzeń HS, dlatego techniki redukcji stresu, takie jak medytacja, joga czy regularna aktywność fizyczna, mogą być pomocne50

Personel pielęgniarski powinien ocenić gotowość pacjenta do wprowadzenia zmian w stylu życia i zapewnić odpowiednie wsparcie i motywację w tym procesie.51

Farmakologiczne aspekty opieki w hidradenitis suppurativa

Leczenie miejscowe

Leczenie miejscowe stanowi pierwszą linię terapii w łagodnych przypadkach HS (stadium I wg Hurleya) oraz może być stosowane jako leczenie uzupełniające w bardziej zaawansowanych stadiach choroby. Personel pielęgniarski powinien być zaznajomiony z najczęściej stosowanymi preparatami miejscowymi:52

  • Antybiotyki miejscoweklindamycyna 1% w postaci roztworu lub żelu stosowana 2 razy dziennie na zmiany skórne może zmniejszyć stan zapalny i ograniczyć namnażanie bakterii53
  • Rezorcynol – 15% krem z rezorcynolem może pomóc w zmniejszeniu zatykania mieszków włosowych i leczeniu aktywnych zmian HS54
  • Środki antyseptyczne – preparaty zawierające chlorheksydynę, oktenidynę czy nadtlenek benzoilu mogą być stosowane do oczyszczania skóry i zmniejszenia liczby bakterii55
  • Glikokortykosteroidy – iniekcje doogniskowe triamcynolonu mogą być stosowane w celu zmniejszenia stanu zapalnego pojedynczych, bolesnych guzków56

Rola personelu pielęgniarskiego w leczeniu miejscowym obejmuje edukację pacjenta w zakresie prawidłowej aplikacji leków, monitorowanie skuteczności leczenia i potencjalnych działań niepożądanych, takich jak podrażnienie skóry czy reakcje alergiczne.57

Leczenie ogólnoustrojowe

W umiarkowanych i ciężkich przypadkach HS (stadium II i III wg Hurleya) często konieczne jest włączenie leczenia ogólnoustrojowego. Personel pielęgniarski powinien posiadać wiedzę na temat najczęściej stosowanych leków systemowych:58

Zadania personelu pielęgniarskiego w zakresie leczenia ogólnoustrojowego obejmują:

  • Edukację pacjenta na temat prawidłowego przyjmowania leków, potencjalnych działań niepożądanych i interakcji
  • Monitorowanie skuteczności leczenia i występowania działań niepożądanych
  • W przypadku leków biologicznych – szkolenie pacjenta w zakresie techniki wykonywania samodzielnych iniekcji (np. adalimumabu)
  • Pobieranie krwi do badań laboratoryjnych monitorujących bezpieczeństwo leczenia

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Warto podkreślić, że w przypadku pacjentek w ciąży i karmiących piersią, wybór leków systemowych jest ograniczony. Antybiotyki, takie jak klindamycyna i ryfampicyna, czy dapson są uważane za bezpieczne, natomiast niektóre leki biologiczne (adalimumab, infliksymab) są uznawane za generalnie bezpieczne w ciąży, choć czasami zaleca się ich odstawienie w trzecim trymestrze.66

Aspekty opieki chirurgicznej w hidradenitis suppurativa

Procedury chirurgiczne stosowane w HS

Interwencje chirurgiczne są ważnym elementem leczenia HS, szczególnie w zaawansowanych stadiach choroby (II i III wg Hurleya) lub gdy leczenie zachowawcze nie przynosi oczekiwanych rezultatów. Personel pielęgniarski powinien być zaznajomiony z najczęściej wykonywanymi zabiegami:6768

  • Nacięcie i drenaż – prosty zabieg polegający na nacięciu i opróżnieniu bolesnego ropnia w celu doraźnego złagodzenia bólu. Należy zaznaczyć, że zabieg ten nie zapobiega nawrotom i stanowi jedynie formę doraźnej pomocy69
  • Unroofing (deroofing) – procedura polegająca na usunięciu „dachu” przetoki lub tunelu skórnego, pozostawiając otwartą ranę, która goi się przez ziarninowanie. Ta technika jest mniej inwazyjna niż całkowite wycięcie zmian i charakteryzuje się niższym odsetkiem nawrotów70
  • Wycięcie miejscowe – usunięcie pojedynczych zmian chorobowych wraz z marginesem zdrowej tkanki71
  • Szerokie wycięcie chirurgiczne – radykalne usunięcie całego obszaru zajętego przez chorobę wraz z marginesem zdrowej tkanki. Jest to najskuteczniejsza metoda chirurgiczna, choć wiąże się z większym ryzykiem powikłań i dłuższym okresem rekonwalescencji72

Inne metody interwencyjne stosowane w leczeniu HS obejmują:

  • Terapia laserowa – szczególnie laser CO2 może być skuteczny w usuwaniu zmian HS i zapobieganiu nawrotom73
  • Usuwanie owłosienia laserem – redukcja liczby mieszków włosowych może zmniejszyć częstość zaostrzeń HS74
  • Terapia fotodynamiczna – wykorzystanie światła do aktywacji substancji fotouczulających, które niszczą komórki zapalne75

Wybór metody chirurgicznej zależy od stadium zaawansowania choroby, lokalizacji zmian, preferencji pacjenta oraz doświadczenia chirurga.76

Opieka okołooperacyjna

Prawidłowa opieka okołooperacyjna jest kluczowa dla optymalizacji wyników leczenia chirurgicznego w HS. Obejmuje ona:

Opieka przedoperacyjna
  • Przygotowanie pacjenta do zabiegu – edukacja na temat procedury, oczekiwanych wyników i okresu rekonwalescencji
  • Optymalizacja stanu ogólnego – leczenie aktywnych infekcji, kontrola chorób współistniejących
  • Farmakoterapia przygotowawcza – antybiotyki, leki przeciwzapalne, kortykosteroidy mogą być stosowane przed zabiegiem w celu zmniejszenia stanu zapalnego77
  • Wsparcie psychologiczne – zmniejszenie lęku przedoperacyjnego, przygotowanie pacjenta na potencjalne zmiany w wyglądzie ciała
Opieka pooperacyjna
  • Kontrola bólu – odpowiednie dawkowanie leków przeciwbólowych, techniki niefarmakologiczne
  • Pielęgnacja ran – odpowiednie opatrunki, zapobieganie infekcjom, monitorowanie procesu gojenia
  • W przypadku rozległych wycięć – możliwe zastosowanie terapii podciśnieniowej (VAC) przez około tydzień przed ewentualnym przeszczepem skóry78
  • Edukacja pacjenta w zakresie samodzielnej pielęgnacji rany w warunkach domowych
  • Planowanie wizyt kontrolnych – monitorowanie procesu gojenia, wczesne wykrywanie potencjalnych powikłań

Ważne jest, aby pamiętać, że kolonizacja bakteryjna i infekcja rany mogą utrudniać gojenie, szczególnie w obszarach takich jak pachy czy krocze. Przedwczesne zamknięcie rany może prowadzić do jej rozejścia się i nawrotu choroby.79 Dlatego właściwe leczenie przeciwbakteryjne i dokładne monitorowanie procesu gojenia są kluczowe w opiece pooperacyjnej.80

Wsparcie psychologiczne pacjentów z hidradenitis suppurativa

Hidradenitis suppurativa ma głęboki wpływ na zdrowie psychiczne i jakość życia pacjentów. Chroniczny ból, widoczne zmiany skórne, nieprzyjemny zapach wydzielin, ograniczenia w aktywności fizycznej i społecznej oraz problemy z intymnością mogą prowadzić do poważnych problemów psychologicznych.8182

Wpływ HS na zdrowie psychiczne

Badania pokazują, że pacjenci z HS doświadczają znacząco wyższego poziomu problemów psychologicznych w porównaniu z populacją ogólną:

  • Zwiększone ryzyko depresji (około 50% wyższe niż w populacji ogólnej)83
  • Podwyższony poziom lęku
  • Dwukrotnie wyższe ryzyko samobójstwa84
  • Obniżona samoocena i negatywny obraz ciała
  • Izolacja społeczna i problemy w relacjach interpersonalnych
  • Problemy z funkcjonowaniem w pracy i aktywności zawodowej

8586

Pacjenci często doświadczają wstydu, zażenowania i poczucia stygmatyzacji, szczególnie gdy zmiany chorobowe występują w intymnych częściach ciała lub gdy towarzyszą im nieprzyjemny zapach i wydzielina.87

Wsparcie pielęgniarskie w aspektach psychologicznych

Personel pielęgniarski odgrywa kluczową rolę w zapewnianiu wsparcia psychologicznego pacjentom z HS. Interwencje pielęgniarskie w tym zakresie obejmują:

  • Budowanie relacji terapeutycznej opartej na zaufaniu, empatii i zrozumieniu
  • Edukację pacjenta na temat choroby, co może zmniejszyć poczucie winy i stygmatyzacji
  • Przekazywanie informacji o tym, że HS nie jest wynikiem złej higieny ani nie jest chorobą zakaźną88
  • Ocenę stanu psychicznego i wczesne rozpoznawanie oznak depresji czy myśli samobójczych
  • Skierowanie do specjalistów zdrowia psychicznego (psycholog, psychiatra), gdy jest to konieczne
  • Informowanie o dostępnych grupach wsparcia i organizacjach pacjenckich89

Warto podkreślić, że profesjonalne wsparcie psychologiczne powinno być oferowane wszystkim pacjentom z HS, niezależnie od stadium zaawansowania choroby.90 Kompleksowe podejście do leczenia HS powinno uwzględniać zarówno aspekty fizyczne, jak i psychologiczne choroby.91

Zarządzanie przypadkiem i koordynacja opieki w hidradenitis suppurativa

Rola pielęgniarki w zespole wielodyscyplinarnym

Kompleksowe zarządzanie HS wymaga współpracy specjalistów z różnych dziedzin medycyny. Pielęgniarka, szczególnie specjalizująca się w dermatologii lub leczeniu ran, może pełnić kluczową rolę w koordynacji opieki wielodyscyplinarnej.9293

Pielęgniarka jako koordynator opieki może:

  • Stanowić pierwszy punkt kontaktu dla pacjenta w systemie opieki zdrowotnej
  • Koordynować komunikację między różnymi specjalistami zaangażowanymi w leczenie (dermatolog, chirurg, psycholog, dietetyk)
  • Organizować i planować wizyty kontrolne
  • Monitorować przestrzeganie zaleceń przez pacjenta
  • Zapewniać ciągłość opieki, szczególnie podczas przejścia między różnymi poziomami opieki (np. ambulatoryjna, szpitalna)
  • Dokonywać regularnej oceny efektów leczenia i identyfikować potrzebę modyfikacji planu terapeutycznego

94

Efektywna koordynacja opieki może znacząco poprawić wyniki leczenia, zmniejszyć liczbę niepotrzebnych hospitalizacji i wizyt na oddziałach ratunkowych oraz poprawić jakość życia pacjentów z HS.95

Planowanie opieki długoterminowej

Hidradenitis suppurativa jest chorobą przewlekłą, która wymaga długoterminowego planowania opieki. Indywidualny plan opieki powinien uwzględniać:96

  • Regularne wizyty kontrolne u dermatologa i innych specjalistów według potrzeb
  • Plan leczenia farmakologicznego, w tym strategie eskalacji terapii w przypadku zaostrzeń
  • Planowanie ewentualnych interwencji chirurgicznych
  • Strategie zarządzania bólem
  • Plan pielęgnacji ran i skóry
  • Wsparcie psychologiczne
  • Cele modyfikacji stylu życia (redukcja masy ciała, rzucenie palenia)
  • Monitorowanie i zarządzanie chorobami współistniejącymi (np. zespół metaboliczny, choroby zapalne jelit, choroby stawów)97

Plan opieki powinien być regularnie aktualizowany w oparciu o odpowiedź na leczenie, zmiany w stanie zdrowia pacjenta oraz preferencje pacjenta.98

Dokumentacja pielęgniarska

Dokładna i kompleksowa dokumentacja pielęgniarska jest niezbędna dla zapewnienia ciągłości opieki nad pacjentem z HS. Dokumentacja powinna obejmować:99

  • Szczegółową ocenę stanu pacjenta, w tym opis zmian skórnych (lokalizacja, charakter, stadium wg klasyfikacji Hurleya)
  • Pomiary parametrów życiowych i antropometrycznych (waga, BMI)
  • Ocenę bólu z użyciem standaryzowanych skal
  • Ocenę stanu psychicznego
  • Zastosowane interwencje pielęgniarskie i ich efekty
  • Edukację przekazaną pacjentowi
  • Plan dalszej opieki

Fotodokumentacja (za zgodą pacjenta) może być cennym narzędziem do monitorowania postępu leczenia i zmian w wyglądzie zmian skórnych w czasie.100

Wpływ hidradenitis suppurativa na jakość życia i praktyczne aspekty codziennego funkcjonowania

Wpływ HS na codzienne funkcjonowanie

Hidradenitis suppurativa znacząco wpływa na codzienne funkcjonowanie pacjentów, ograniczając ich aktywność fizyczną, zawodową i społeczną. Choroba może utrudniać:101

  • Podstawowe czynności życia codziennego – chodzenie, siedzenie, przytulanie, podnoszenie rąk może być bolesne, szczególnie gdy zmiany występują w okolicach pachwin, pach czy pośladków
  • Aktywność zawodową – ból, dyskomfort, częste wizyty lekarskie i zabiegi mogą prowadzić do nieobecności w pracy, zmniejszonej wydajności i problemów finansowych102
  • Aktywność fizyczną – ból i dyskomfort mogą ograniczać możliwość uprawiania sportu i innych form aktywności fizycznej
  • Relacje intymne – zmiany w intymnych obszarach ciała, ból, nieprzyjemny zapach i wydzielina mogą wpływać negatywnie na życie seksualne i relacje partnerskie103
  • Sen – ból i dyskomfort mogą utrudniać zasypianie i prowadzić do zaburzeń snu

Pacjenci z HS często muszą dostosowywać swój ubiór (wybierając luźne, nieobniszczające ubrania), modyfikować codzienne aktywności i planować dzień z uwzględnieniem konieczności częstej zmiany opatrunków.104

Praktyczne porady dla pacjentów

Personel pielęgniarski może przekazać pacjentom praktyczne porady, które pomogą im w codziennym funkcjonowaniu z HS:105106

  • Higiena:
    • Delikatne mycie zmian antybakteryjnym mydłem
    • Unikanie drażniących substancji zapachowych w kosmetykach
    • Stosowanie bezzapachowych, hipoalergicznych dezodorantów
  • Ubiór:
    • Noszenie luźnych, przewiewnych ubrań z naturalnych materiałów
    • Wybieranie bielizny bawełnianej, a w przypadku kobiet – bokserk zamiast tradycyjnych majtek
    • Unikanie ubrań z szwami w miejscach występowania zmian
  • Radzenie sobie z wyciekiem i nieprzyjemnym zapachem:
    • Stosowanie chłonnych opatrunków
    • Używanie bawełnianych wkładek higienicznych jako opatrunków (przylepną stroną do ubrania)
    • Noszenie zapasowych ubrań na zmianę
    • Stosowanie opatrunków zawierających węgiel aktywowany, które redukują zapach
  • Łagodzenie bólu:
    • Stosowanie ciepłych okładów na bolesne zmiany
    • Korzystanie z kąpieli z dodatkiem soli kuchennej lub sody oczyszczonej
    • Unikanie nadmiernego pocenia się i przegrzewania organizmu
  • Usuwanie owłosienia:
    • Unikanie golenia żyletką w miejscach dotkniętych chorobą
    • Rozważenie depilacji laserowej, która może zmniejszyć częstość zaostrzeń
    • Jeśli konieczne jest przycinanie włosów, używanie trymera elektrycznego zamiast golenia

Zaleca się również pacjentom prowadzenie dziennika objawów, co może pomóc w identyfikacji czynników wyzwalających zaostrzenia i ocenie skuteczności stosowanych metod leczenia.107

Funkcjonowanie w pracy i szkole

Hidradenitis suppurativa może znacząco wpływać na funkcjonowanie zawodowe i edukacyjne. Personel pielęgniarski może pomóc pacjentom w radzeniu sobie z tymi wyzwaniami poprzez:108

  • Edukację na temat praw pracowniczych i możliwości dostosowania stanowiska pracy do potrzeb wynikających z choroby
  • Pomoc w komunikacji z pracodawcą lub szkołą na temat choroby i potrzebnych udogodnień
  • Porady dotyczące zarządzania pielęgnacją ran i kontrolą bólu w środowisku pracy/szkoły
  • Wskazówki dotyczące radzenia sobie z nieprzyjemnym zapachem i wyciekiem w miejscu publicznym
  • Informacje o możliwościach pracy zdalnej lub elastycznego czasu pracy

Warto podkreślić, że dla wielu pacjentów możliwość pracy jest kluczowa dla ich dobrostanu psychicznego i finansowego.109 Dlatego wsparcie w utrzymaniu aktywności zawodowej powinno być ważnym elementem kompleksowej opieki nad pacjentem z HS.

Opieka nad szczególnymi grupami pacjentów z hidradenitis suppurativa

Pacjentki w ciąży i karmiące piersią

Zarządzanie HS u pacjentek w ciąży i karmiących piersią wymaga szczególnej uwagi ze względu na ograniczenia w stosowaniu wielu standardowych metod leczenia. Personel pielęgniarski powinien być świadomy następujących aspektów opieki nad tą grupą pacjentek:110

  • Leczenie miejscowe:
    • Antybiotyki miejscowe (klindamycyna, erytromycyna, metronidazol) są uważane za bezpieczne w ciąży i podczas karmienia piersią i stanowią pierwszą linię leczenia111
    • Należy unikać stosowania miejscowych retinoidów
  • Antybiotyki ogólnoustrojowe:
    • Kombinacja klindamycyny i ryfampicyny jest uważana za pierwszą linię leczenia w umiarkowanym do ciężkiego HS u kobiet w ciąży112
    • Dapson jest innym antybiotykiem bezpiecznym zarówno dla kobiet w ciąży, jak i karmiących piersią113
  • Leki biologiczne:
    • Adalimumab i infliksymab są uważane za bezpieczne w czasie ciąży i laktacji, choć czasami zaleca się ich odstawienie w trzecim trymestrze, aby uniknąć przeniesienia przeciwciał na dziecko114
  • Leczenie bólu:
    • Paracetamol jest najlepszym wyborem do kontroli bólu w czasie ciąży i karmienia piersią115
    • Należy unikać NLPZ, szczególnie w trzecim trymestrze ciąży
  • Interwencje chirurgiczne:
    • Zabiegi chirurgiczne powinny być generalnie unikane w ciąży, chyba że są bezwzględnie konieczne116
    • W przypadku gdy leczenie farmakologiczne jest nieskuteczne, chirurgia wycięciowa może być bezpieczną opcją zarówno dla kobiet w ciąży, jak i karmiących117

Dodatkowe zalecenia dla kobiet w ciąży i karmiących z HS obejmują:

  • Bezwzględne unikanie palenia tytoniu, które zwiększa ryzyko wad wrodzonych u dziecka i może nasilać objawy HS118
  • Dbanie o odpowiednią dietę i kontrolę masy ciała119
  • Stosowanie kąpieli z dodatkiem niewielkiej ilości wybielacza (podobnie jak chlor w basenie), które mogą zmniejszyć nieprzyjemny zapach120
  • Szczególną uwagę należy zwrócić na zdrowie psychiczne, gdyż HS jest trudną chorobą, a pacjentki często doświadczają objawów depresji121

Młodzież z HS

Hidradenitis suppurativa często rozpoczyna się po okresie dojrzewania, przed 40. rokiem życia, co oznacza, że wielu pacjentów doświadcza pierwszych objawów choroby w okresie nastoletnim.122 Opieka nad nastolatkami z HS wymaga uwzględnienia specyficznych aspektów rozwojowych i psychospołecznych tej grupy wiekowej:

  • Wpływ na obraz ciała i samoocenę – okres dojrzewania jest krytyczny dla rozwoju obrazu ciała i tożsamości, a choroba skórna może znacząco wpływać na samoocenę nastolatków123
  • Wpływ na relacje rówieśnicze – nastolatki mogą doświadczać izolacji społecznej, dręczenia lub stygmatyzacji z powodu objawów HS
  • Przestrzeganie zaleceń terapeutycznych – nastolatki mogą mieć trudności z systematycznym stosowaniem się do złożonych schematów leczenia
  • Specyficzne wyzwania – aktywność sportowa, pierwsza praca, pierwsze relacje intymne mogą stanowić dodatkowe wyzwania dla nastolatków z HS

Personel pielęgniarski może wspierać młodzież z HS poprzez:

  • Dostosowanie komunikacji i edukacji do poziomu rozwojowego nastolatka
  • Włączanie rodziców/opiekunów w proces leczenia, przy jednoczesnym respektowaniu autonomii nastolatka
  • Wspieranie w rozwijaniu umiejętności samoopieki i przejmowaniu odpowiedzialności za własne zdrowie
  • Pomoc w radzeniu sobie z psychospołecznymi aspektami choroby
  • Ułatwianie przejścia z pediatrycznej do dorosłej opieki zdrowotnej

Pacjenci w podeszłym wieku

Choć HS częściej dotyka młodszych dorosłych, choroba może występować również u osób w podeszłym wieku lub pacjenci mogą wchodzić w starszy wiek z wieloletnim przebiegiem HS. Opieka nad starszymi pacjentami z HS powinna uwzględniać:

  • Choroby współistniejące – starsi pacjenci częściej cierpią na inne schorzenia przewlekłe, które mogą wpływać na wybór metod leczenia HS124
  • Polipragmazję – stosowanie wielu leków jednocześnie zwiększa ryzyko interakcji lekowych
  • Zmiany fizjologiczne związane z wiekiem – mogą wpływać na farmakokinetykę i farmakodynamikę leków
  • Ograniczenia funkcjonalne – mogą utrudniać samodzielną pielęgnację ran i stosowanie leków miejscowych
  • Aspekty psychospołeczne – izolacja społeczna, samotność, depresja często występują u starszych osób i mogą być nasilone przez HS

Personel pielęgniarski powinien dostosować plan opieki do indywidualnych potrzeb i możliwości starszego pacjenta, uwzględniając potencjalne ograniczenia fizyczne, poznawcze i społeczne. Szczególną uwagę należy zwrócić na:

  • Uproszczenie schematów leczenia
  • Dokładną edukację pacjenta i/lub opiekuna
  • Ocenę możliwości samodzielnej pielęgnacji ran i ewentualne zapewnienie pomocy
  • Regularne monitorowanie działań niepożądanych leków
  • Zapewnienie odpowiedniego wsparcia społecznego i psychologicznego

Przyszłość opieki nad pacjentami z hidradenitis suppurativa

Postępy w badaniach i nowe metody leczenia

Mimo że wiedza na temat HS znacząco się poszerzyła w ostatnich latach, wiele aspektów tej choroby pozostaje niezrozumiałych, a opcje terapeutyczne są wciąż ograniczone. Trwające badania koncentrują się na:125126

  • Nowych lekach biologicznych – poza adalimumabem, badane są inne inhibitory TNF-α, inhibitory IL-17 (sekukinumab, bimekizumab), inhibitory IL-23 i inne molekuły ukierunkowane na konkretne szlaki zapalne127
  • Małych cząsteczkachinhibitory JAK są badane jako potencjalne leki dla pacjentów z HS128
  • Lepszym zrozumieniu patogenezy HS – badania genetyczne, immunologiczne i mikrobiologiczne mogą prowadzić do odkrycia nowych celów terapeutycznych129
  • Optymalizacji leczenia chirurgicznego – badania nad najlepszymi technikami chirurgicznymi, optymalnym czasem interwencji i metodami rekonstrukcji130
  • Innowacyjnych metodach pielęgnacji ran – nowatorskie opatrunki i systemy mocowania opatrunków dostosowane do specyficznych potrzeb pacjentów z HS131

Personel pielęgniarski powinien śledzić najnowsze doniesienia naukowe i wytyczne kliniczne, aby zapewnić pacjentom opiekę opartą na aktualnej wiedzy medycznej.132

W kierunku spersonalizowanej opieki

Przyszłość opieki nad pacjentami z HS zmierza w kierunku bardziej spersonalizowanego podejścia, uwzględniającego indywidualne cechy pacjenta, specyfikę choroby i preferencje dotyczące leczenia.133 Elementy spersonalizowanej opieki obejmują:

  • Fenotypowanie kliniczne – identyfikacja podtypów HS, które mogą wymagać różnych strategii leczenia
  • Biomarkery – identyfikacja markerów biologicznych, które mogą przewidywać odpowiedź na określone terapie
  • Medycyna precyzyjna – dostosowanie leczenia do profilu genetycznego i immunologicznego pacjenta
  • Wspólne podejmowanie decyzji – aktywne włączanie pacjenta w proces decyzyjny dotyczący leczenia
  • Integracja nowych technologii – telemedycyna, aplikacje mobilne do monitorowania objawów, zdalne konsultacje mogą zwiększyć dostęp do specjalistycznej opieki134

Personel pielęgniarski odgrywa kluczową rolę w realizacji spersonalizowanej opieki, pomagając pacjentom w nawigacji przez złożony system opieki zdrowotnej i zapewniając, że ich indywidualne potrzeby i preferencje są uwzględniane w planie leczenia.135

Rzecznictwo i zwiększanie świadomości

Hidradenitis suppurativa pozostaje chorobą stosunkowo mało znaną, zarówno wśród ogółu społeczeństwa, jak i wśród pracowników ochrony zdrowia. Prowadzi to do opóźnień w diagnozie, nieodpowiedniego leczenia i stygmatyzacji pacjentów.136137

Personel pielęgniarski może przyczynić się do zwiększenia świadomości i poprawy opieki nad pacjentami z HS poprzez:

  • Edukację innych pracowników ochrony zdrowia na temat rozpoznawania i leczenia HS
  • Udział w opracowywaniu i wdrażaniu standardów i wytycznych opieki
  • Współpracę z organizacjami pacjenckimi i fundacjami zajmującymi się HS138139
  • Rzecznictwo na rzecz lepszego dostępu do specjalistycznej opieki i nowoczesnych metod leczenia
  • Uczestnictwo w badaniach naukowych dotyczących HS
  • Wspieranie pacjentów w samoorzecznictwie i zwiększanie ich kompetencji zdrowotnych140

Działania rzecznicze mogą przyczynić się do wcześniejszego rozpoznawania HS, lepszego dostępu do skutecznego leczenia i zmniejszenia stygmatyzacji związanej z tą chorobą.141

Podsumowanie

Opieka pielęgniarska nad pacjentami z hidradenitis suppurativa stanowi złożone i wielowymiarowe wyzwanie, wymagające kompleksowego podejścia uwzględniającego zarówno aspekty fizyczne, jak i psychospołeczne tej przewlekłej choroby. Personel pielęgniarski odgrywa kluczową rolę w zarządzaniu objawami, edukacji pacjenta, wsparciu psychologicznym oraz koordynacji opieki wielodyscyplinarnej.

Efektywna opieka pielęgniarska w HS obejmuje dokładną ocenę stanu pacjenta, profesjonalną pielęgnację ran, zarządzanie bólem, wsparcie w modyfikacji stylu życia oraz pomoc w radzeniu sobie z psychologicznymi i społecznymi konsekwencjami choroby. Szczególną uwagę należy zwrócić na indywidualne potrzeby i preferencje pacjenta, dostosowując plan opieki do jego unikalnej sytuacji zdrowotnej i życiowej.

Wraz z postępem badań naukowych i pojawianiem się nowych metod leczenia, personel pielęgniarski powinien stale aktualizować swoją wiedzę i umiejętności, aby zapewnić pacjentom opiekę opartą na najnowszych dowodach naukowych. Jednocześnie, poprzez działania edukacyjne i rzecznicze, pielęgniarki mogą przyczyniać się do zwiększania świadomości na temat HS i poprawy dostępu do specjalistycznej opieki dla pacjentów z tą trudną chorobą.

Całościowe i empatyczne podejście do opieki nad pacjentem z HS, łączące profesjonalną wiedzę medyczną z wrażliwością na indywidualne potrzeby i doświadczenia pacjenta, stanowi fundament skutecznej praktyki pielęgniarskiej w zarządzaniu tą przewlekłą i obciążającą chorobą skóry.

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  1. 10.04.2026
  2. www.leksykon.com.pl

Materiały źródłowe

  • #1 Hidradenitis Suppurativa – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK534867/
    Hidradenitis suppurativa is a chronic inflammatory skin condition characterized by painful lesions such as deep-seated nodules, abscesses, skin tunnels, and fibrotic scars. These manifestations primarily emerge in intertriginous areas, notably the axillary, groin, perianal, perineal, and inframammary regions. […] Treatment involves lifestyle modifications, medications such as antibiotics and anti-inflammatory drugs, procedures like laser therapy and excision with skin grafting. Supportive therapies like pain management and psychological support may also benefit patients. Interprofessional care is crucial to creating a personalized treatment plan, with regular follow-up appointments to monitor effectiveness and make adjustments as necessary. […] Hidradenitis suppurativa treatment should address comorbidities contributing to disease development or worsening, regardless of disease stage. Counseling and support for weight loss and smoking cessation are crucial, as obesity and smoking are associated with more severe disease progression.
  • #2 Hidradenitis suppurativa – Symptoms and causes – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/hidradenitis-suppurativa/symptoms-causes/syc-20352306
    Hidradenitis suppurativa tends to start after puberty, usually before age 40. It can persist for many years and worsen over time. It can affect your daily life and emotional well-being. Combined medical and surgical therapy can help manage the disease and prevent complications. […] Hidradenitis suppurativa is not just a boil, and many people with this condition also have related conditions. People with hidradenitis suppurativa benefit from a health care team with medical and surgical dermatologists at the core. Other specialists are involved as needed. […] Early diagnosis of hidradenitis suppurativa is key to effective treatment. See your dermatologist if your condition: Is painful. Makes it difficult to move. Doesn’t improve in a few weeks. Returns within weeks of treatment. Appears in several locations. Flares often. […] Hidradenitis suppurativa care at Mayo Clinic.
  • #3 Interventions for hidradenitis suppurativa
    https://pmc.ncbi.nlm.nih.gov/articles/PMC6464653/
    Hidradenitis suppurativa has a large impact on peoples’ lives because of chronic pain, which may prevent those affected from working during disease flares. […] Current management typically follows a stepwise approach depending on disease severity, commencing with topical treatment for mild disease, prolonged courses of oral antibiotics for moderate disease, and systemic immunosuppressants or surgery for more severe disease. […] The evidence base for many of these interventions is relatively weak, and there is little published guidance to aid decision-making in the treatment of HS. […] Our review has demonstrated that, with the exception perhaps of adalimumab treatment, there remains incomplete RCT evidence for most interventions used to treat HS. […] Overall, our review found that knowledge gaps predominate over robust evidence for the treatment of hidradenitis suppurativa (HS). […] Our review has highlighted a need for further RCTs to improve the evidence base for most interventions in HS.
  • #4 Hidradenitis Suppurativa: Early Recognition and Treatment by Primary Care Providers – Clinical Advisor
    https://www.clinicaladvisor.com/features/hidradenitis-suppurativa-early-recognition-and-treatment-by-primary-care-providers/
    Hidradenitis suppurativa early recognition and treatment Treatment of hidradenitis suppurativa early in the disease course is crucial to prevent progression to more severe manifestations. […] Treatment of HS early in the disease course is crucial to prevent progression to these more severe manifestations. […] Primary care providers can employ multiple tools to initiate the management of HS. Educating patients on the etiology of the disease is crucial. Patients may have misconceptions that HS results from poor hygiene or is somehow self-induced; it is important to dissuade patients from this misconception. […] Professional psychological support should be offered to all patients with HS. […] Additional education on pain management and wound care is recommended, as lesions are frequently painful and can become open wounds.
  • #5 Management of hidradenitis suppurativa: an Australasian consensus statement
    https://dermnetnz.org/topics/hidradenitis-suppurativa-guidelines
    Hidradenitis suppurativa (HS) is a debilitating and distressing chronic inflammatory skin disease affecting about one in every 150 Australians. It is characterised by recurrent, painful, deep-seated, multiple skin nodules, most commonly located in the axillary, inguinal, perineal and perianal regions, the submammary and intermammary folds, and the buttocks. […] Comprehensive care of HS should include encouragement of smoking cessation and weight control, wound care, and management of pain, itch and psychosocial health. […] Early diagnosis and timely referral to expert care are the key to achieving effective multimodal care of HS. […] We recommend that comprehensive care of HS should include encouragement of smoking cessation and weight control, wound care, and management of pain, itch and psychosocial health.
  • #6 Hidradenitis Suppurativa | University Hospitals
    https://www.uhhospitals.org/health-information/health-and-wellness-library/article/diseases-and-conditions/hidradenitis-suppurativa
    Hidradenitis suppurativa (HS) is a chronic skin disease. It causes deep, painful boils or pockets of infection (abscesses) in your skin. […] Early treatment is important to prevent HS from getting worse. […] Treatment for this skin disease may include: Antibiotics. Many people find some relief by using antibiotics, either spread on the skin (topical) or taken by mouth. […] Follow your healthcare providers advice on medicine, surgical choices, and care of your skin after treatment. […] It’s critical to get treatment early. This can help reduce scarring and more severe problems later in life.
  • #7 Hidradenitis Suppurativa (HS) Patient Support Team
    https://www.hsdiseasesource.com/multi-disciplinary-care-team
    Patients with hidradenitis suppurativa (HS) may first be seen in a wide range of care settings, including primary care offices, at the pediatrician, in consultation with an obstetrician or gynecologist (OB/GYN), or in the emergency room. […] Close collaboration with healthcare professionals specializing in dermatology is preferred given their experience in working with and treating more complex skin diseases. Holistic management of an HS patient may require the intervention of different disciplines and healthcare professionals, ranging from mental health to surgery. […] HS Specialist: Dermatologist; NP or PA in Dermatology provide or confirm diagnosis and develop management plan including prescribing appropriate treatments. […] Partner with an HS specialist in dermatology to develop a treatment and management plan in hopes of preventing disease progression.
  • #8 HS Treatment and Management | HS Awareness | HCP
    https://www.hs-awareness.com/treatment-and-management
    The physical and emotional effects of hidradenitis suppurativa (HS) can be vast. Early recognition remains critical. Treatment and management of hidradenitis suppurativa requires a multidisciplinary and individualized approach. While there are no curative treatments, pharmacological approaches and other interventions could help. While dermatology providers have a key role in treating HS, they may need to partner with other providers and specialists to deliver comprehensive care as part of a patient’s ongoing treatment. Today’s treatment options encompass several approaches, including lifestyle modifications, topicals, and surgery. Treatments should be individualized according to a patient’s needs. A multidisciplinary care team is essential throughout a patient’s journey. Management strategies should be coordinated by an HS-treating dermatology provider, but a full team can be comprised of numerous specialties depending on a patient’s specific needs. Additional care may be implemented by other healthcare providers, such as urologists and endocrinologists, among others. HS is a systemic condition requiring prompt action to help limit disease progression. Mild cases can often be managed by topical treatments and lifestyle adjustments. Moderate or severe cases may require more. Consider treatment strategies based on the individual. Topical treatment of HS includes skin cleansers, keratolytic agents, and a topical antibiotic. These options may work for some patients, depending on disease severity. Immunomodulation is rapidly becoming the mainstay of therapy for patients with moderate to severe HS. Pain is a prominent feature of HS, and if lifestyle changes or certain medications are not effective, a pain management referral can help. Recommendations for postsurgical and nonsurgical HS wound care are based on limited evidence, may be costly, and could be complex based on the severity of a patient’s condition. HS treatment approaches are not limited only to those listed. A large part of a patient’s HS journey is spent at home and immediate family members often serve as caregivers. Helping patients and their families feel supported outside a care facility is an important aspect of disease management. Educate about the systemic nature of HS and help patients understand it is not their fault. Build trust with meaningful and empathetic conversations during each appointment. Consider the impact on caregivers when developing a patient’s treatment plan. Assure patients they are not alone and provide information about HS support groups and other resources.
  • #9 Global Hidradenitis Suppurativa Treatment Guidelines: 7 Takeaways | Integra LifeSciences
    https://tissuetechnologies.integralife.com/global-hidradenitis-suppurativa-treatment-guidelines-7-takeaways/
    Hidradenitis suppurativa management requires a team-centered approach. […] All of the HS treatment guidelines endorse a multidisciplinary treatment approach, including dermatology, primary care, gynecology, mental health, pain management and surgery. […] Because there is no one treatment for hidradenitis suppurativa, all nine of the guidelines favor a broad treatment approach that may include lifestyle changes, topicals, antibiotics, anti-inflammatories and biologics, lasers, phototherapy and surgery. […] There is strong and uniform support for the following treatments for hidradenitis suppurativa lesions and most have been tested in random clinical trials with HS patients: topical clindamycin, oral tetracyclines, combination clindamycin and rifampicin therapy, adalimumab and WLE. […] There’s a lack of wound care dressings made specifically for hidradenitis suppurativa management. […] All guidelines acknowledge the pain with hidradenitis suppurativa. Specific recommended therapies include topical analgesics and non-steroidal anti-inflammatories. Guidelines hold that opioids should only be as a last resort if other methods are ineffective.
  • #10 Hidradenitis Suppurativa (HS) Patient Support Team
    https://www.hsdiseasesource.com/multi-disciplinary-care-team
    Provide ongoing care for the patient, particularly for comorbidities that may be associated with HS. […] Provide either disease-related or surgery-related wound care for patients with HS usually to protect open wounds, manage inflammation and infection, or to manage sinus tract drainage. […] Provide care for psychosocial symptoms of HS, such as severe depression, anxiety, or feelings of helplessness. […] Work with HS specialists to help patients manage acute pain episodes or chronic HS-related pain with appropriate pain management techniques and medications. […] Partner with an experienced HS specialist in dermatology to co-manage your HS patients.
  • #11 Hidradenitis suppurativa: Management – UpToDate
    https://www.uptodate.com/contents/hidradenitis-suppurativa-management
    Hidradenitis suppurativa (HS) is a chronic, painful, follicular, occlusive disease that affects the folliculopilosebaceous unit mainly, but not exclusively, in intertriginous axillary, groin, perianal, perineal, genital, and inframammary skin. The clinical course is highly variable, ranging from relatively mild disease characterized by the recurrent appearance of papules, pustules, and a few inflammatory nodules to severe cases demonstrating deep, fluctuant abscesses; draining skin tunnels; and severe, rope-like scars (picture 1A-D). […] Numerous interventions exist for the treatment of HS, including topical therapies, oral therapies, biologic therapies, surgery, and laser and light interventions. Disease severity, patient tolerance of specific agents, comorbidities, and treatment cost and availability guide treatment selection (algorithm 1). […] The management of HS will be reviewed here. Information on the pathogenesis, clinical features, and diagnosis of HS and a detailed discussion of the surgical techniques used in the treatment of HS are provided separately.
  • #12 family medicine approach to hidradenitis suppurativa | UAMS Department of Family and Preventive Medicine
    https://medicine.uams.edu/familymedicine/tag/family-medicine-approach-to-hidradenitis-suppurativa/
    Hidradenitis suppurativa (HS) is a skin disorder that starts with blocked hair follicles, leading to painful nodules, abscesses and scarring. […] An HS team including all of these specialists and dermatology providers are the principal providers, but we really lean on front-line providers to detect, treat, refer and to collaboratively manage. […] If the answer is yes, there is a 90 percent chance of HS. […] Theres no reason healthcare providers should be missing this if they ask these questions, said Dr. Shi. […] HS can show up anywhere on the body behind the ears, outer arms or legs not just the skin folds and areas with sweat glands. […] The most advanced stage is Hurley 3, characterized by multiple connected sinus tracts and abscesses across the entire area with little to no normal-looking skin between.
  • #13 Hidradenitis Suppurativa FAQ | UPMC
    https://www.upmc.com/services/plastic-surgery/services/hidradenitis-suppurativa/faq
    Hidradenitis suppurativa (HS) is a chronic, recurrent, and progressive inflammatory disease that causes sweat glands to become inflamed, resulting in swollen and typically painful bumps. […] HS can present with varying forms of severity. The Hurley clinical staging system classifies the disease into three stages: […] Stage I (Mild): Local care, topical agents, topical or oral antibiotics, abscess drainage. […] Stage II (Moderate): Extended oral antibiotic suppression therapy, abscess drainage, excision of lesions. […] Stage III (Severe): In addition to the above treatments, immunotherapy and surgical excision and reconstruction of the area. […] Untreated or inadequately treated HS will eventually progress into more advanced forms of the disease. As HS advances and the symptoms become more severe, medical treatments tend to be less effective. Surgery is often the only option to treat advanced HS.
  • #14 Hidradenitis Suppurativa Treatment & Management: Approach Considerations, Medical Care, Surgical Care
    https://emedicine.medscape.com/article/1073117-treatment
    Treatment of hidradenitis suppurativa (HS) remains a considerable challenge. The ideal treatment should provide a high likelihood of cure with a low recurrence rate, as well as minimal inconvenience and loss of work time. It should be individualized according to the state and extent of the disease. […] Medical management is recommended in early stages. Absolute cessation of smoking is essential in the treatment of HS. Management with antibiotics or other medications may relieve symptoms. Surgery should be performed as early as possible after the formation of abscesses, fistulas, scars, and sinus tracts. […] For patients in Hurley stage I, antibiotics and intralesional injections of corticosteroids represent a good first-line therapy, while flares should be treated with short courses of systemic corticosteroids. If this regimen fails, zinc, or, in females of non-childbearing age, antiandrogen therapy may be effective. Long-term immunosuppressive therapy including biologics or surgical therapy may be required in some patients. For patients in Hurley stage III, wide excision may prove to be the only effective treatment.
  • #15 British Journal of Nursing – The challenges of wound management for hidradenitis suppurativa
    https://www.britishjournalofnursing.com/content/personal-perspective/the-challenges-of-wound-management-for-hidradenitis-suppurativa/
    Hidradenitis suppurativa (HS) is an under-reported, poorly understood and often mismanaged inflammatory skin condition that manifests itself as painful, inflamed areas or boils. […] While advances have been made in surgical and pharmaceutical interventions to interrupt the disease and prevent infection, effective wound management, evidence and guidelines remain limited. […] It is hoped that the author’s criteria for the ideal wound management system for HS will be the starting point for discussion and development of sound HS wound care guidelines. […] Painful chronic wounds appear with discharge, odour, and complications such as infection and tunnelling, which can lead to scarring and disfigurement. […] Additionally, periwound skin may become macerated and excoriated in the presence of mismanaged exudate, and patients are at risk of adhesive-related skin injury.
  • #16 Management of hidradenitis suppurativa: an Australasian consensus statement
    https://dermnetnz.org/topics/hidradenitis-suppurativa-guidelines
    Wound care in HS aims to manage odour, pain, and exudate (which is sometimes profuse), and minimise bacterial colonisation and secondary infection. […] HS can have a profound impact on quality of life and psychological wellbeing. It is essential to recognise the psychosocial costs of the disease and either provide, or refer for, appropriate support and treatment for consequences such as depression and anxiety. […] Surgery is an effective adjunct to medical treatment for HS but no randomised controlled trials have assessed this approach. […] The largest published case series included 590 consecutive surgically-treated patients in whom excision was most common (68.6%), followed unroofing (deroofing), exteriorisation or curettage (28.5%) and incision and drainage (2.9%). […] Laser therapy, photodynamic therapy, intense pulsed light and hyperbaric oxygen have been investigated in the treatment of HS. […] Further efforts are required to educate healthcare professionals and the general public about HS, and to encourage research on its epidemiology and pathophysiology.
  • #17 Hidradenitis suppurativa: Diagnosis and treatment
    https://www.aad.org/public/diseases/a-z/hidradenitis-suppurativa-treatment
    A dermatologist is often the doctor who diagnoses a patient with hidradenitis suppurativa. Getting an accurate diagnosis and an individualized treatment plan can help prevent this condition from worsening. If you have hidradenitis suppurativa, your dermatologist will create a treatment plan tailored to your needs. While this condition cannot be cured, your dermatologist will create a treatment plan that can: Reduce flare-ups […] Heal wounds […] Relieve pain and itch […] Prevent the condition from worsening […] Allow you to participate comfortably in regular activities, such as walking and exercise. When creating a treatment plan, your dermatologist considers the types of bumps and sores you have, whether you have pain or an infection, and how the condition is affecting your life. This allows your dermatologist to customize a treatment plan for your specific needs. Some soaps and other skin care products may irritate skin with hidradenitis suppurativa. To reduce irritation, your dermatologist can create a skin care plan for you. This plan may include using an antibacterial wash and switching to a gentle antiperspirant. If you have nodules (hard lumps beneath your skin), cysts (lumps that may contain pus, oil, or another substance), or abscesses (infected lumps that contain pus), your dermatologist may prescribe: Antibiotic: A topical (applied to the skin) antibiotic called clindamycin is often prescribed to treat mild hidradenitis suppurativa. This medication can reduce lumps, including lumps that contain pus, and pus-filled swollen areas beneath your skin. It can also help treat an infection. Your treatment plan may include one or more of the following: Medication that works throughout the body
  • #18 When Should You Go to the Hospital with Hidradenitis Suppurativa (HS)?
    https://www.healthline.com/health/hidradenitis-suppurativa/when-hospital-visits-are-needed
    Being proactive about managing HS is the best way to avoid a trip to the hospital. Working closely with a dermatologist can help reduce the frequency and severity of HS flares, which may also lessen how often you visit the hospital. […] The 2020 cross-sectional study found more than 40% of people visiting the hospital for HS reported 10/10 pain, which typically requires prescription-strength medications to manage. If you cant get in touch with your regular doctor when severe pain strikes, the emergency room or urgent care center may be your best option. […] HS is a chronic skin condition that can be extremely painful and distressing enough to send you to the hospital.
  • #19 What is hidradenitis suppurativa? – Women’s Healthcare
    https://www.npwomenshealthcare.com/what-is-hidradenitis-suppurativa/
    Treatment options are based on Hurley staging and include antibiotics, topical cleansers, hormonal therapies, biologics, adjunct treatments, or surgical interventions. […] Pain is often a significant burden to sufferers of HS. It is important to acknowledge that treatment of the underlying inflammatory state is essential to controlling the pain and reduce the number and severity of flares. […] Surgical intervention can be a consideration for unresponsive lesions or extensive scarring in addition to medical management; however, the technique remains a challenge as there is no clarity in the literature regarding which surgical intervention is the most optimal. […] It is important to reinforce that HS is not a result of infection, poor hygiene, is not sexually transmitted, or contagious. Even though the contributory mechanisms remain poorly understood, patients may benefit from select lifestyle modifications to help ease the development or exacerbation of HS. […] Hidradenitis suppurativa is a chronic and debilitating disease that can have great impact on an individuals quality of life. It is important that patients receive prompt diagnosis and appropriate management to avoid the long-term physical and psychological effects that often accompany it.
  • #20 Global Hidradenitis Suppurativa Treatment Guidelines: 7 Takeaways | Integra LifeSciences
    https://tissuetechnologies.integralife.com/global-hidradenitis-suppurativa-treatment-guidelines-7-takeaways/
    Hidradenitis suppurativa management requires a team-centered approach. […] All of the HS treatment guidelines endorse a multidisciplinary treatment approach, including dermatology, primary care, gynecology, mental health, pain management and surgery. […] Because there is no one treatment for hidradenitis suppurativa, all nine of the guidelines favor a broad treatment approach that may include lifestyle changes, topicals, antibiotics, anti-inflammatories and biologics, lasers, phototherapy and surgery. […] There is strong and uniform support for the following treatments for hidradenitis suppurativa lesions and most have been tested in random clinical trials with HS patients: topical clindamycin, oral tetracyclines, combination clindamycin and rifampicin therapy, adalimumab and WLE. […] There’s a lack of wound care dressings made specifically for hidradenitis suppurativa management. […] All guidelines acknowledge the pain with hidradenitis suppurativa. Specific recommended therapies include topical analgesics and non-steroidal anti-inflammatories. Guidelines hold that opioids should only be as a last resort if other methods are ineffective.
  • #21 Hidradenitis Suppurativa – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK534867/
    Patients with hidradenitis suppurativa should be thoroughly educated about the condition’s nature, wound care, and pain management. Individualized pain management plans must address potential inpatient admissions. […] A critically important but often overlooked aspect of treatment involves hidradenitis suppurativa’s psychosocial aspect. Pain, drainage, odor, and involvement of sensitive areas reduce patients’ quality of life. […] Treatment for acute symptomatic lesions may include intralesional corticosteroid injection (usually triamcinolone), punch debridement, and topical resorcinol. […] Topical antibiotics are the first-line treatment for early uncomplicated disease. Topical clindamycin has been proven the most effective and may be an appropriate adjunctive treatment to oral therapy.
  • #22 Hidradenitis suppurativa: identification, symptoms and management – The Pharmaceutical Journal
    https://pharmaceutical-journal.com/article/ld/hidradenitis-suppurativa-identification-symptoms-and-management
    Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful inflammatory lesions in the folds of skin in areas of the body such as the armpits and groin, where hair follicles and apocrine sweat glands are present in abundance. […] Patients struggle with the social impact of the disease, with HS patients experiencing an estimated 50% higher risk of depression and double the risk of suicide. […] Raising awareness of the disease among pharmacists and pharmacy technicians is one way in which this delay may be shortened. […] Pharmacists can help support patients in appropriate use of over-the-counter pain management and the selection of dressings, which will be discussed in more detail later. […] Smoking cessation and support in weight loss are areas where community pharmacy teams can be of great help, through advanced services, counselling and signposting to other NHS resources.
  • #23 Management of hidradenitis suppurativa: an Australasian consensus statement
    https://dermnetnz.org/topics/hidradenitis-suppurativa-guidelines
    Wound care in HS aims to manage odour, pain, and exudate (which is sometimes profuse), and minimise bacterial colonisation and secondary infection. […] HS can have a profound impact on quality of life and psychological wellbeing. It is essential to recognise the psychosocial costs of the disease and either provide, or refer for, appropriate support and treatment for consequences such as depression and anxiety. […] Surgery is an effective adjunct to medical treatment for HS but no randomised controlled trials have assessed this approach. […] The largest published case series included 590 consecutive surgically-treated patients in whom excision was most common (68.6%), followed unroofing (deroofing), exteriorisation or curettage (28.5%) and incision and drainage (2.9%). […] Laser therapy, photodynamic therapy, intense pulsed light and hyperbaric oxygen have been investigated in the treatment of HS. […] Further efforts are required to educate healthcare professionals and the general public about HS, and to encourage research on its epidemiology and pathophysiology.
  • #24 Hidradenitis Suppurativa – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK534867/
    Patients with hidradenitis suppurativa should be thoroughly educated about the condition’s nature, wound care, and pain management. Individualized pain management plans must address potential inpatient admissions. […] A critically important but often overlooked aspect of treatment involves hidradenitis suppurativa’s psychosocial aspect. Pain, drainage, odor, and involvement of sensitive areas reduce patients’ quality of life. […] Treatment for acute symptomatic lesions may include intralesional corticosteroid injection (usually triamcinolone), punch debridement, and topical resorcinol. […] Topical antibiotics are the first-line treatment for early uncomplicated disease. Topical clindamycin has been proven the most effective and may be an appropriate adjunctive treatment to oral therapy.
  • #25 Hidradenitis Suppurativa: Early Recognition and Treatment by Primary Care Providers – Clinical Advisor
    https://www.clinicaladvisor.com/features/hidradenitis-suppurativa-early-recognition-and-treatment-by-primary-care-providers/
    Hidradenitis suppurativa early recognition and treatment Treatment of hidradenitis suppurativa early in the disease course is crucial to prevent progression to more severe manifestations. […] Treatment of HS early in the disease course is crucial to prevent progression to these more severe manifestations. […] Primary care providers can employ multiple tools to initiate the management of HS. Educating patients on the etiology of the disease is crucial. Patients may have misconceptions that HS results from poor hygiene or is somehow self-induced; it is important to dissuade patients from this misconception. […] Professional psychological support should be offered to all patients with HS. […] Additional education on pain management and wound care is recommended, as lesions are frequently painful and can become open wounds.
  • #26 British Journal of Nursing – The challenges of wound management for hidradenitis suppurativa
    https://www.britishjournalofnursing.com/content/personal-perspective/the-challenges-of-wound-management-for-hidradenitis-suppurativa/
    Hidradenitis suppurativa (HS) is an under-reported, poorly understood and often mismanaged inflammatory skin condition that manifests itself as painful, inflamed areas or boils. […] While advances have been made in surgical and pharmaceutical interventions to interrupt the disease and prevent infection, effective wound management, evidence and guidelines remain limited. […] It is hoped that the author’s criteria for the ideal wound management system for HS will be the starting point for discussion and development of sound HS wound care guidelines. […] Painful chronic wounds appear with discharge, odour, and complications such as infection and tunnelling, which can lead to scarring and disfigurement. […] Additionally, periwound skin may become macerated and excoriated in the presence of mismanaged exudate, and patients are at risk of adhesive-related skin injury.
  • #27 Management of hidradenitis suppurativa: an Australasian consensus statement
    https://dermnetnz.org/topics/hidradenitis-suppurativa-guidelines
    Wound care in HS aims to manage odour, pain, and exudate (which is sometimes profuse), and minimise bacterial colonisation and secondary infection. […] HS can have a profound impact on quality of life and psychological wellbeing. It is essential to recognise the psychosocial costs of the disease and either provide, or refer for, appropriate support and treatment for consequences such as depression and anxiety. […] Surgery is an effective adjunct to medical treatment for HS but no randomised controlled trials have assessed this approach. […] The largest published case series included 590 consecutive surgically-treated patients in whom excision was most common (68.6%), followed unroofing (deroofing), exteriorisation or curettage (28.5%) and incision and drainage (2.9%). […] Laser therapy, photodynamic therapy, intense pulsed light and hyperbaric oxygen have been investigated in the treatment of HS. […] Further efforts are required to educate healthcare professionals and the general public about HS, and to encourage research on its epidemiology and pathophysiology.
  • #28 British Journal of Nursing – The challenges of wound management for hidradenitis suppurativa
    https://www.britishjournalofnursing.com/content/personal-perspective/the-challenges-of-wound-management-for-hidradenitis-suppurativa/
    In the aftermath of an HS flare-up areas of the skin are left scarred, pitted and disfigured, while the damaged skin tries to heal. This results in pain and restricted movement affecting clothing choices, especially because regular drainage requires management that includes frequently applied, effective wound care with dressings that remain in place. […] The biggest challenge is everyday wound care. […] Adhesive dressings pinch the skin, move about and often fall off, making them difficult to apply, adjust and remove. […] Frequent dressing changes also add to the embarrassment and inconvenience experienced as part of daily living. […] In 81% of cases, respondents reported experiencing a negative impact on quality of life due to frequent dressing changes; 16% required five or more dressing changes a day and 12% had to spend more than 30 minutes a day on their wound care.
  • #29 Hidradenitis suppurativa: identification, symptoms and management – The Pharmaceutical Journal
    https://pharmaceutical-journal.com/article/ld/hidradenitis-suppurativa-identification-symptoms-and-management
    Pharmacists can support access to new treatment options, such as monoclonal antibodies. […] Treatment success is assessed based upon reduction in pain and lesion count, more infrequent disease flares and by improved scores on quality-of-life questionnaires. […] Pharmacists can counsel patients on the important safety points and ensure suitability. […] Patients can also benefit from other treatment modalities and lifestyle adjustments. […] Patients who require additional support with wound care can be signposted to speak with specialist dermatology nurses or members of the local tissue viability team, who are best placed to provide expert individualised advice. […] Surgery is used to remove chronic lesions that have not responded to medical intervention and to address sequelae, such as scars, contractions of the skin and sinus tracts. […] Monitoring for adverse events when using intensive treatments is important. […] Identification and early treatment of HS can reduce the likelihood of developing severe disease.
  • #30 Hidradenitis Suppurativa Clinic | Dermatology | DHMC and Clinics
    https://www.dartmouth-hitchcock.org/dermatology/hs-clinic
    The Hidradenitis Suppurativa (HS) Clinic treats patients suffering from HS, an inflammatory skin disorder that affects up to 1% of the U.S. population. […] HS affects hair follicles, most often in the armpits, under the breasts, the groin, and buttocks. […] The HS Clinic at Dartmouth Hitchcock Medical Center (DHMC) is led by Dr. Natalie Fragosa. […] A thorough review of your health history and outside records, including prior blood tests and skin biopsies, if applicable, will be performed, as well as a medical examination of your skin to determine disease severity. […] Your dermatologist may order additional blood work to evaluate the safety of systemic medications. […] Ask your dermatologist for a referral to the HS Clinic.
  • #31 Hidradenitis suppurativa (syn. acne inversa)
    https://www.pcds.org.uk/clinical-guidance/hidradenitis-suppurativa
    In patients with PCOS and/or pre-menstrual flares, consider spironolactone (max. 100mg OD; off-license) and/or an oral contraceptive with a favourable progestogen profile (eg Yasmin, Eloine, Mercilon). […] Patients may need multiple dressings for differing needs and preferences: Absorbent, low adhesive, foam and gentle border dressings reduce friction. […] Severe psychological impact. […] No improvement following adequate first-line treatment (mild-moderate disease; refer whilst instituting second-line treatment). […] Severe disease (refer whilst instituting first-line treatment). […] The biologic therapies adalimumab and secukinumab.
  • #32 British Journal of Nursing – The challenges of wound management for hidradenitis suppurativa
    https://www.britishjournalofnursing.com/content/personal-perspective/the-challenges-of-wound-management-for-hidradenitis-suppurativa/
    Unsurprisingly, 81% reported experiencing pain during the dressing changes and there was an overall dissatisfaction with currently available wound dressings. […] The majority of patients reported requiring dressings for more than 6 months of the year, with an average of 2.8 dressings changes a day. […] The solution […] I founded a company called HidraMed Solutions with a mission to design and develop viable and acceptable wound-care solutions to manage HS and difficult-to-dress areas of the body that would allow patients to self-manage their wound-care regimen. […] Correct diagnosis is the first step to providing an effective solution, taking account of the severity rating in each individual case using the simple, reliable Hurley scoring tool, which classifies HS severity into: stage 1 (mild), stage 2 (moderate) and stage 3 (severe).
  • #33 British Journal of Nursing – The challenges of wound management for hidradenitis suppurativa
    https://www.britishjournalofnursing.com/content/personal-perspective/the-challenges-of-wound-management-for-hidradenitis-suppurativa/
    In the aftermath of an HS flare-up areas of the skin are left scarred, pitted and disfigured, while the damaged skin tries to heal. This results in pain and restricted movement affecting clothing choices, especially because regular drainage requires management that includes frequently applied, effective wound care with dressings that remain in place. […] The biggest challenge is everyday wound care. […] Adhesive dressings pinch the skin, move about and often fall off, making them difficult to apply, adjust and remove. […] Frequent dressing changes also add to the embarrassment and inconvenience experienced as part of daily living. […] In 81% of cases, respondents reported experiencing a negative impact on quality of life due to frequent dressing changes; 16% required five or more dressing changes a day and 12% had to spend more than 30 minutes a day on their wound care.
  • #34 Global Hidradenitis Suppurativa Treatment Guidelines: 7 Takeaways | Integra LifeSciences
    https://tissuetechnologies.integralife.com/global-hidradenitis-suppurativa-treatment-guidelines-7-takeaways/
    Hidradenitis suppurativa management requires a team-centered approach. […] All of the HS treatment guidelines endorse a multidisciplinary treatment approach, including dermatology, primary care, gynecology, mental health, pain management and surgery. […] Because there is no one treatment for hidradenitis suppurativa, all nine of the guidelines favor a broad treatment approach that may include lifestyle changes, topicals, antibiotics, anti-inflammatories and biologics, lasers, phototherapy and surgery. […] There is strong and uniform support for the following treatments for hidradenitis suppurativa lesions and most have been tested in random clinical trials with HS patients: topical clindamycin, oral tetracyclines, combination clindamycin and rifampicin therapy, adalimumab and WLE. […] There’s a lack of wound care dressings made specifically for hidradenitis suppurativa management. […] All guidelines acknowledge the pain with hidradenitis suppurativa. Specific recommended therapies include topical analgesics and non-steroidal anti-inflammatories. Guidelines hold that opioids should only be as a last resort if other methods are ineffective.
  • #35 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #36 How Hidradenitis Suppurativa Is Treated
    https://www.verywellhealth.com/hidradenitis-suppurativa-treatment-4777730
    Sometimes boils caused by hidradenitis suppurativa burst, leaving behind open wounds. […] If you develop a chronic bacterial infection as a result of your hidradenitis suppurativa, soaking in a highly diluted bleach bath may help kill the bacteria and prevent future infections. […] Certain foods have been found to worsen HS symptoms. […] There’s a strong link between cigarette smoking and hidradenitis suppurativa. […] Self-care measures like proper skin care, dietary changes, and quitting smoking are important to managing HS. […] You may be able to relieve mild pain and inflammation with over-the-counter (OTC) drugs and skincare products from your local pharmacy. […] If OTC treatments aren’t effective, there are prescription-strength options that may work better to prevent and control hidradenitis suppurativa symptoms.
  • #37 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #38 Hidradenitis Suppurativa – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK534867/
    Patients with hidradenitis suppurativa should be thoroughly educated about the condition’s nature, wound care, and pain management. Individualized pain management plans must address potential inpatient admissions. […] A critically important but often overlooked aspect of treatment involves hidradenitis suppurativa’s psychosocial aspect. Pain, drainage, odor, and involvement of sensitive areas reduce patients’ quality of life. […] Treatment for acute symptomatic lesions may include intralesional corticosteroid injection (usually triamcinolone), punch debridement, and topical resorcinol. […] Topical antibiotics are the first-line treatment for early uncomplicated disease. Topical clindamycin has been proven the most effective and may be an appropriate adjunctive treatment to oral therapy.
  • #39 Hidradenitis Suppurativa – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK534867/
    Patients with hidradenitis suppurativa should be thoroughly educated about the condition’s nature, wound care, and pain management. Individualized pain management plans must address potential inpatient admissions. […] A critically important but often overlooked aspect of treatment involves hidradenitis suppurativa’s psychosocial aspect. Pain, drainage, odor, and involvement of sensitive areas reduce patients’ quality of life. […] Treatment for acute symptomatic lesions may include intralesional corticosteroid injection (usually triamcinolone), punch debridement, and topical resorcinol. […] Topical antibiotics are the first-line treatment for early uncomplicated disease. Topical clindamycin has been proven the most effective and may be an appropriate adjunctive treatment to oral therapy.
  • #40 HS Treatment and Management | HS Awareness | HCP
    https://www.hs-awareness.com/treatment-and-management
    The physical and emotional effects of hidradenitis suppurativa (HS) can be vast. Early recognition remains critical. Treatment and management of hidradenitis suppurativa requires a multidisciplinary and individualized approach. While there are no curative treatments, pharmacological approaches and other interventions could help. While dermatology providers have a key role in treating HS, they may need to partner with other providers and specialists to deliver comprehensive care as part of a patient’s ongoing treatment. Today’s treatment options encompass several approaches, including lifestyle modifications, topicals, and surgery. Treatments should be individualized according to a patient’s needs. A multidisciplinary care team is essential throughout a patient’s journey. Management strategies should be coordinated by an HS-treating dermatology provider, but a full team can be comprised of numerous specialties depending on a patient’s specific needs. Additional care may be implemented by other healthcare providers, such as urologists and endocrinologists, among others. HS is a systemic condition requiring prompt action to help limit disease progression. Mild cases can often be managed by topical treatments and lifestyle adjustments. Moderate or severe cases may require more. Consider treatment strategies based on the individual. Topical treatment of HS includes skin cleansers, keratolytic agents, and a topical antibiotic. These options may work for some patients, depending on disease severity. Immunomodulation is rapidly becoming the mainstay of therapy for patients with moderate to severe HS. Pain is a prominent feature of HS, and if lifestyle changes or certain medications are not effective, a pain management referral can help. Recommendations for postsurgical and nonsurgical HS wound care are based on limited evidence, may be costly, and could be complex based on the severity of a patient’s condition. HS treatment approaches are not limited only to those listed. A large part of a patient’s HS journey is spent at home and immediate family members often serve as caregivers. Helping patients and their families feel supported outside a care facility is an important aspect of disease management. Educate about the systemic nature of HS and help patients understand it is not their fault. Build trust with meaningful and empathetic conversations during each appointment. Consider the impact on caregivers when developing a patient’s treatment plan. Assure patients they are not alone and provide information about HS support groups and other resources.
  • #41 Hidradenitis Suppurativa: Care Instructions | Kaiser Permanente
    https://healthy.kaiserpermanente.org/health-wellness/health-encyclopedia/he.hidradenitis-suppurativa-care-instructions.abr6585
    Wash the area every day with mild soap. Use your hands rather than a washcloth or sponge when you wash that part of your body. […] Wear-loose fitting clothes that don’t rub against the area. Avoid activities that cause skin to rub together. […] Be safe with medicines. Take your medicines exactly as prescribed. Call your doctor if you think you are having a problem with your medicine. You will get more details on the specific medicines your doctor prescribes. […] If your doctor prescribed antibiotics, take them as directed. Do not stop taking them just because you feel better. You need to take the full course of antibiotics. […] If you smoke, think about quitting. Smoking can make the condition worse. If you need help quitting, talk to your doctor about stop-smoking programs and medicines. These can increase your chances of quitting for good.
  • #42 Hidradenitis suppurativa: Self-care
    https://www.aad.org/public/diseases/a-z/hidradenitis-suppurativa-self-care
    Patients often ask their dermatologist if they should squeeze hidradenitis suppurativa (HS). The answer is no. Squeezing or popping the nodules, cysts, and sores can injure or irritate your skin. Anything that injures or irritates your skin can worsen HS. […] To help their patients who have hidradenitis suppurativa (HS) get the best results from treatment, here’s what dermatologists recommend you do at home: […] Wash your skin with an antimicrobial wash. This helps reduce bacteria on your skin. When there’s less bacteria, you may have fewer flare-ups. […] Quit scrubbing your skin. Patients often think that having HS means they have dirty skin. You don’t have dirty skin. If you’re scrubbing your skin to get it clean, stop. Scrubbing causes inflammation, which can worsen HS. […] Take care when shaving or waxing skin with HS. In general, dermatologists recommend that patients with HS never wax. Waxing can irritate the skin, which may cause more HS.
  • #43 Hidradenitis Suppurativa: Causes, Symptoms, Diagnosis, Stages, and Treatment
    https://www.webmd.com/skin-problems-and-treatments/hidradenitis-suppurativa
    Surgery. If your bumps grow deep into your skin, you might have a surgical procedure. […] Try these tips to make your HS less severe and slow outbreaks. […] Lose extra weight. This can ease your symptoms by making your skin rub together less. […] Quit smoking. Not only does this cut your risk of cancer and heart disease, but it can make your HS less severe. […] Don’t shave trouble spots. This can keep you from irritating your skin. […] Wear loose-fitting clothes. Outfits that are tight can cause your skin to rub, making your flare-ups worse. […] Keep clean. Wash HS areas gently every day with your fingers. […] Talk to your doctor about the best diet for you based on your overall health, type of HS, and any food sensitivities. […] Losing weight, quitting smoking, and caring for your skin properly can make a significant difference in the severity of the condition and your quality of life. […] HS can last for years, but early treatment can help you feel better and lower the risk of flare-ups.
  • #44 Hidradenitis suppurativa: Self-care
    https://www.aad.org/public/diseases/a-z/hidradenitis-suppurativa-self-care
    Consider laser hair removal as a way to remove hair where you have HS. Studies have shown that getting laser hair removal can reduce flare-ups of HS. […] Treat a painful lump at home with heat. […] Avoid sweating and overheating. While applying heat to a painful lump can bring relief, sweating and overheating tend to worsen HS. […] Use a mild and effective antiperspirant or deodorant. Some products are too harsh for skin with HS. […] If you have a wound-care treatment plan, follow it. If HS has caused wounds, your dermatologist will create a treatment plan to help heal wounds and prevent infection. […] Wear looser clothing if your HS flares when you wear tight or form-fitting clothes. […] Tell your dermatologist if you have joint pain. People living with HS have a higher risk of developing diseases that affect the joints like arthritis.
  • #45 Soap for hidradenitis suppurativa: What to use and avoid
    https://www.medicalnewstoday.com/articles/best-soap-for-hidradenitis-suppurativa
    Some additional skin care tips that may help manage HS and reduce flares include: Avoiding waxing: Dermatologists generally recommend that people with HS avoid waxing their skin, as waxing can irritate the skin and worsen HS. […] A person should also follow their dermatologists advice on caring for painful or non-healing HS wounds.
  • #46 HS Foundation
    https://www.hs-foundation.org/
    Hidradenitis Suppurativa Foundation is a non-profit organization improving the lives of people affected by HS through advocacy, education and research. […] HS treatments arent one-size-fits-all, and thats a good thing. With the help of a dedicated dermatologist, each of the factors that affect HS can be addressed alone or in combination to help you get relief. […] Our programs directed toward both patients and medical professionals are capped by an annual international conference, the Symposium on Hidradenitis Suppurativa Advances, where the latest breakthroughs in the cause, diagnosis, control, and cure of Hidradenitis Suppurativa are shared in a three-day educational conference. Educational resources on our website include the latest treatment guidelines, online courses addressing the unmet needs of patients, and the research changing the landscape in Hidradenitis Suppurativa.
  • #47 Hidradenitis suppurativa: Self-care
    https://www.aad.org/public/diseases/a-z/hidradenitis-suppurativa-self-care
    Patients who quit smoking or lose extra weight can have fewer HS flare-ups (and sometimes get rid of) hidradenitis suppurativa. […] If you are overweight, lose weight. For many patients who are overweight and have HS, losing weight can reduce flare-ups and prevent HS from worsening. […] If you smoke, stop smoking. Quitting smoking can help you live a longer, healthier life. It can also reduce HS flare-ups and prevent HS from worsening. […] While these self-care tips can help, HS may affect your skin in different ways. By working one-on-one with a board-certified dermatologist, you can find what works best for you.
  • #48 Hidradenitis Suppurativa Clinic | Dermatology | DHMC and Clinics
    https://www.dartmouth-hitchcock.org/dermatology/hs-clinic
    The Hidradenitis Suppurativa (HS) Clinic treats patients suffering from HS, an inflammatory skin disorder that affects up to 1% of the U.S. population. […] HS affects hair follicles, most often in the armpits, under the breasts, the groin, and buttocks. […] The HS Clinic at Dartmouth Hitchcock Medical Center (DHMC) is led by Dr. Natalie Fragosa. […] A thorough review of your health history and outside records, including prior blood tests and skin biopsies, if applicable, will be performed, as well as a medical examination of your skin to determine disease severity. […] Your dermatologist may order additional blood work to evaluate the safety of systemic medications. […] Ask your dermatologist for a referral to the HS Clinic.
  • #49 family medicine approach to hidradenitis suppurativa | UAMS Department of Family and Preventive Medicine
    https://medicine.uams.edu/familymedicine/tag/family-medicine-approach-to-hidradenitis-suppurativa/
    Dr. Shi recommended a pyramid of treatment. […] Regardless of disease stage, providers should refer the patient to a dermatologist for advanced therapy, while collaboratively managing the patient. […] The first tier of the pyramid is lifestyle modifications where the provider would screen for comorbidities and start treatments. […] Weight loss surgery is also a strong consideration if the patient is greater than 35 BMI, and if the patient smokes, encourage them to quit since cigarette smoke has dioxin-like compounds that can cause acne and scarring. […] Dr. Shi cautioned that dosage may need to exceed 100 milligrams for it to work, so ensure the patient doesnt have anemia. […] Dr. Shi recommends these hormonal / metabolic therapies: Hormonal and Metabolic Therapies For Women – Spironolactone 50 – 150 mg daily.
  • #50 Hidradenitis Suppurativa Tips and Tricks | No BS About HS
    https://www.nobsabouths.com/hs-patient-stories/hidradenitis-suppurativa-tips
    Use clean petroleum jelly to keep the wound moist. This keeps it from drying out and forming a scab. […] Change your bandage daily to keep the wound clean while it heals. […] To help avoid scars, apply sunscreen to the wound after it heals. […] If you have more questions about healing wounds, speak to your dermatologist. […] Lose weight, which may decrease the number of areas where your skin rubs together. […] Get more exercise. […] Eat healthy. […] Avoid stress. […] Quit smoking.
  • #51 Hidradenitis suppurativa: identification, symptoms and management – The Pharmaceutical Journal
    https://pharmaceutical-journal.com/article/ld/hidradenitis-suppurativa-identification-symptoms-and-management
    Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful inflammatory lesions in the folds of skin in areas of the body such as the armpits and groin, where hair follicles and apocrine sweat glands are present in abundance. […] Patients struggle with the social impact of the disease, with HS patients experiencing an estimated 50% higher risk of depression and double the risk of suicide. […] Raising awareness of the disease among pharmacists and pharmacy technicians is one way in which this delay may be shortened. […] Pharmacists can help support patients in appropriate use of over-the-counter pain management and the selection of dressings, which will be discussed in more detail later. […] Smoking cessation and support in weight loss are areas where community pharmacy teams can be of great help, through advanced services, counselling and signposting to other NHS resources.
  • #52 diagnosis and treatment of hidradenitis suppurativa | UAMS Department of Family and Preventive Medicine
    https://medicine.uams.edu/familymedicine/tag/diagnosis-and-treatment-of-hidradenitis-suppurativa/
    Dr. Shi recommended a pyramid of treatment. […] Regardless of disease stage, providers should refer the patient to a dermatologist for advanced therapy, while collaboratively managing the patient. […] The first tier of the pyramid is lifestyle modifications where the provider would screen for comorbidities and start treatments. […] Weight loss surgery is also a strong consideration if the patient is greater than 35 BMI, and if the patient smokes, encourage them to quit since cigarette smoke has dioxin-like compounds that can cause acne and scarring. […] If the patient has draining sinus tracts, bathing helps to rinse out the tunnels. […] The next level is topical treatments. […] Dr. Shi cautioned against benzoyl peroxide wash used together with topical dapsone because theyll have reversible yellowing of the hair follicles.
  • #53 Hidradenitis suppurativa (syn. acne inversa)
    https://www.pcds.org.uk/clinical-guidance/hidradenitis-suppurativa
    Assess and record affected sites, and effects on quality of life (DLQI). […] They are often sterile so consider an intra-lesional steroid injection (eg triamcinolone acetonide 10 mg/ml) or a short course of oral prednisolone 30-40 mg OD for 3-4 days. […] For infective flares with tense and fluctuant abscess formation consider referring for incision and drainage to relieve pain. […] All patients should be prescribed topical antiseptics. Octenisan is preferable as it has the advantage of breaking biofilms and may gentler on the skin than some of the other products e.g. 4% chlorhexidine solution. […] For mild HS, consider topical clindamycin BD, or oral doxycycline 200 mg OD (or lymecycline 408 mg caps, two caps once a day) both initially for 3 months. Aim for reduction in flares and improved disease control.
  • #54 Hidradenitis Suppurativa – Canadian Dermatology Association
    https://dermatology.ca/public-patients/diseases-conditions/skin-conditions/hidradenitis-suppurativa/
    Topical Antibiotics: Clindamycin is a topical antibiotic that can applied to affected areas. […] Topical Resorcinol (15% cream): This is a topical cream that needs to be filled at a compounding pharmacy. This cream helps to reduce plugging of hair follicles and can help treat active HS lesions. […] Zinc Supplement: 100 mg oral zinc supplement once a day for 3-4 months. This has been shown to reduce inflammatory lesions in HS patients. […] Hormonal Therapies: Reduces plugging of the hair follicles by blocking the activity of androgen hormones. […] Oral Antibiotics: HS is not an infectious or a contagious condition, but certain antibiotics have anti-inflammatory effects and can be used to treat HS. […] Biologics: Adalimumab is the only biologic medications that is approved by the FDA to treat HS.
  • #55 Soap for hidradenitis suppurativa: What to use and avoid
    https://www.medicalnewstoday.com/articles/best-soap-for-hidradenitis-suppurativa
    Certain soaps and other skin care products may irritate hidradenitis suppurativa (HS), whereas others can help manage the condition and its symptoms. […] The American Academy of Dermatology (AAD) recommends that people with HS use an antibacterial or antiseptic wash to help control the bacteria and other pathogens that may contribute to HS. […] People with HS can look for soaps and body washes containing the following active ingredients: Benzoyl peroxide: This bactericidal reduces the number of bacteria on the skin. […] Medicated soaps or washes containing benzoyl peroxide or zinc pyrithione can help reduce bacteria on the skin and the likelihood of HS flares. […] The AAD notes that some common skin care ingredients can trigger HS or worsen an existing flare. […] A 2024 review refers to previous research in which individuals with HS who switched from using harsh soaps and detergents to gentler products reported an improvement in their condition.
  • #56 Hidradenitis Suppurativa – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK534867/
    Patients with hidradenitis suppurativa should be thoroughly educated about the condition’s nature, wound care, and pain management. Individualized pain management plans must address potential inpatient admissions. […] A critically important but often overlooked aspect of treatment involves hidradenitis suppurativa’s psychosocial aspect. Pain, drainage, odor, and involvement of sensitive areas reduce patients’ quality of life. […] Treatment for acute symptomatic lesions may include intralesional corticosteroid injection (usually triamcinolone), punch debridement, and topical resorcinol. […] Topical antibiotics are the first-line treatment for early uncomplicated disease. Topical clindamycin has been proven the most effective and may be an appropriate adjunctive treatment to oral therapy.
  • #57 Hidradenitis suppurativa: Diagnosis and treatment
    https://www.aad.org/public/diseases/a-z/hidradenitis-suppurativa-treatment
    A dermatologist is often the doctor who diagnoses a patient with hidradenitis suppurativa. Getting an accurate diagnosis and an individualized treatment plan can help prevent this condition from worsening. If you have hidradenitis suppurativa, your dermatologist will create a treatment plan tailored to your needs. While this condition cannot be cured, your dermatologist will create a treatment plan that can: Reduce flare-ups […] Heal wounds […] Relieve pain and itch […] Prevent the condition from worsening […] Allow you to participate comfortably in regular activities, such as walking and exercise. When creating a treatment plan, your dermatologist considers the types of bumps and sores you have, whether you have pain or an infection, and how the condition is affecting your life. This allows your dermatologist to customize a treatment plan for your specific needs. Some soaps and other skin care products may irritate skin with hidradenitis suppurativa. To reduce irritation, your dermatologist can create a skin care plan for you. This plan may include using an antibacterial wash and switching to a gentle antiperspirant. If you have nodules (hard lumps beneath your skin), cysts (lumps that may contain pus, oil, or another substance), or abscesses (infected lumps that contain pus), your dermatologist may prescribe: Antibiotic: A topical (applied to the skin) antibiotic called clindamycin is often prescribed to treat mild hidradenitis suppurativa. This medication can reduce lumps, including lumps that contain pus, and pus-filled swollen areas beneath your skin. It can also help treat an infection. Your treatment plan may include one or more of the following: Medication that works throughout the body
  • #58 Hidradenitis Suppurativa: Causes, Symptoms, Diagnosis, Stages, and Treatment
    https://www.webmd.com/skin-problems-and-treatments/hidradenitis-suppurativa
    NSAIDs (nonsteroidal anti-inflammatory drugs). These over-the-counter medicines can ease your pain and help manage swelling. […] Antibiotics. These medications fight infections. You can swallow them as a pill, or you can use a cream, ointment, cleanser, wash, or gel on your skin. […] Corticosteroids. Your doctor injects these medicines into the bumps. They can ease inflammation, pain, and swelling. […] Oral retinoids. Your doctor may suggest a retinoid medication in a pill such as acitretin (Soriatane) or isotretinoin (Accutane). Both can improve severe cases of HS. […] Hormone therapy. Some women find that their condition gets better if they take birth control pills or a drug called spironolactone. […] Biologics. These medications work on your immune system, your body’s defense system against germs.
  • #59 diagnosis and treatment of hidradenitis suppurativa | UAMS Department of Family and Preventive Medicine
    https://medicine.uams.edu/familymedicine/tag/diagnosis-and-treatment-of-hidradenitis-suppurativa/
    Dr. Shis office typically starts with the tetracycline family because its better at reducing inflammation in the hair follicle and less costly. […] One combination is clindamycin with rifampin. […] Another supplement to consider is Vitamin D since most patients with HS are deficient. […] Dr. Shi recommends these hormonal / metabolic therapies: Hormonal and Metabolic Therapies For Women – Spironolactone 50 – 150 mg daily. […] Biologics is the last step of treatment. […] The patient must be on at least 90 days of an oral antibiotic before most insurance will allow biologics. […] Ask the three questions to have a high confidence of diagnosing HS. […] Refer to dermatology once diagnosed. […] Start antibiotics if the patient has any scarring because biologics is the next step.
  • #60 family medicine approach to hidradenitis suppurativa | UAMS Department of Family and Preventive Medicine
    https://medicine.uams.edu/familymedicine/tag/family-medicine-approach-to-hidradenitis-suppurativa/
    Dr. Shi recommended a pyramid of treatment. […] Regardless of disease stage, providers should refer the patient to a dermatologist for advanced therapy, while collaboratively managing the patient. […] The first tier of the pyramid is lifestyle modifications where the provider would screen for comorbidities and start treatments. […] Weight loss surgery is also a strong consideration if the patient is greater than 35 BMI, and if the patient smokes, encourage them to quit since cigarette smoke has dioxin-like compounds that can cause acne and scarring. […] Dr. Shi cautioned that dosage may need to exceed 100 milligrams for it to work, so ensure the patient doesnt have anemia. […] Dr. Shi recommends these hormonal / metabolic therapies: Hormonal and Metabolic Therapies For Women – Spironolactone 50 – 150 mg daily.
  • #61 Hidradenitis Suppurativa: Causes, Symptoms, Diagnosis, Stages, and Treatment
    https://www.webmd.com/skin-problems-and-treatments/hidradenitis-suppurativa
    NSAIDs (nonsteroidal anti-inflammatory drugs). These over-the-counter medicines can ease your pain and help manage swelling. […] Antibiotics. These medications fight infections. You can swallow them as a pill, or you can use a cream, ointment, cleanser, wash, or gel on your skin. […] Corticosteroids. Your doctor injects these medicines into the bumps. They can ease inflammation, pain, and swelling. […] Oral retinoids. Your doctor may suggest a retinoid medication in a pill such as acitretin (Soriatane) or isotretinoin (Accutane). Both can improve severe cases of HS. […] Hormone therapy. Some women find that their condition gets better if they take birth control pills or a drug called spironolactone. […] Biologics. These medications work on your immune system, your body’s defense system against germs.
  • #62 Hidradenitis Suppurativa – Canadian Dermatology Association
    https://dermatology.ca/public-patients/diseases-conditions/skin-conditions/hidradenitis-suppurativa/
    Topical Antibiotics: Clindamycin is a topical antibiotic that can applied to affected areas. […] Topical Resorcinol (15% cream): This is a topical cream that needs to be filled at a compounding pharmacy. This cream helps to reduce plugging of hair follicles and can help treat active HS lesions. […] Zinc Supplement: 100 mg oral zinc supplement once a day for 3-4 months. This has been shown to reduce inflammatory lesions in HS patients. […] Hormonal Therapies: Reduces plugging of the hair follicles by blocking the activity of androgen hormones. […] Oral Antibiotics: HS is not an infectious or a contagious condition, but certain antibiotics have anti-inflammatory effects and can be used to treat HS. […] Biologics: Adalimumab is the only biologic medications that is approved by the FDA to treat HS.
  • #63 Don’t Under-Treat Hidradenitis Suppurativa: A Roadmap from Hesitant to Confident
    https://www.dermatologytimes.com/view/don-t-under-treat-hidradenitis-suppurativa-a-roadmap-from-hesitant-to-confident
    When we avoid addressing HS, we leave patients to navigate a condition that impacts their physical, emotional, and social well-being. […] Early intervention and adaptable treatment strategies are the way forward. […] The goal isnt perfectionits progress. […] Every patient regardless of their stage is going to get these topicals. […] For mild disease, antibiotics can help. […] Patients with frequent flares or structural changes such as tunnels need more than topicals or antibiotics—they need systemic therapies, especially biologics. […] Treatments such as adalimumab, secukinumab, and bimekizumab are FDA-approved for HS, and they’ve transformed the way we approach this disease. […] Simple in-office procedures can make a huge difference. […] Pain is a major issue for patients with HS, and validating that pain is important for building rapport. […] A holistic approach strengthens trust and improves outcomes. […] Early diagnosis and appropriate treatment is the key. […] Every patient you treat for HS is a patient who can regain control over their life.
  • #64 Hidradenitis suppurativa: identification, symptoms and management – The Pharmaceutical Journal
    https://pharmaceutical-journal.com/article/ld/hidradenitis-suppurativa-identification-symptoms-and-management
    Pharmacists can support access to new treatment options, such as monoclonal antibodies. […] Treatment success is assessed based upon reduction in pain and lesion count, more infrequent disease flares and by improved scores on quality-of-life questionnaires. […] Pharmacists can counsel patients on the important safety points and ensure suitability. […] Patients can also benefit from other treatment modalities and lifestyle adjustments. […] Patients who require additional support with wound care can be signposted to speak with specialist dermatology nurses or members of the local tissue viability team, who are best placed to provide expert individualised advice. […] Surgery is used to remove chronic lesions that have not responded to medical intervention and to address sequelae, such as scars, contractions of the skin and sinus tracts. […] Monitoring for adverse events when using intensive treatments is important. […] Identification and early treatment of HS can reduce the likelihood of developing severe disease.
  • #65 Interventions for hidradenitis suppurativa
    https://pmc.ncbi.nlm.nih.gov/articles/PMC6464653/
    Hidradenitis suppurativa has a large impact on peoples’ lives because of chronic pain, which may prevent those affected from working during disease flares. […] Current management typically follows a stepwise approach depending on disease severity, commencing with topical treatment for mild disease, prolonged courses of oral antibiotics for moderate disease, and systemic immunosuppressants or surgery for more severe disease. […] The evidence base for many of these interventions is relatively weak, and there is little published guidance to aid decision-making in the treatment of HS. […] Our review has demonstrated that, with the exception perhaps of adalimumab treatment, there remains incomplete RCT evidence for most interventions used to treat HS. […] Overall, our review found that knowledge gaps predominate over robust evidence for the treatment of hidradenitis suppurativa (HS). […] Our review has highlighted a need for further RCTs to improve the evidence base for most interventions in HS.
  • #66 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #67 Hidradenitis Suppurativa Treatment & Management: Approach Considerations, Medical Care, Surgical Care
    https://emedicine.medscape.com/article/1073117-treatment
    Treatment of hidradenitis suppurativa (HS) remains a considerable challenge. The ideal treatment should provide a high likelihood of cure with a low recurrence rate, as well as minimal inconvenience and loss of work time. It should be individualized according to the state and extent of the disease. […] Medical management is recommended in early stages. Absolute cessation of smoking is essential in the treatment of HS. Management with antibiotics or other medications may relieve symptoms. Surgery should be performed as early as possible after the formation of abscesses, fistulas, scars, and sinus tracts. […] For patients in Hurley stage I, antibiotics and intralesional injections of corticosteroids represent a good first-line therapy, while flares should be treated with short courses of systemic corticosteroids. If this regimen fails, zinc, or, in females of non-childbearing age, antiandrogen therapy may be effective. Long-term immunosuppressive therapy including biologics or surgical therapy may be required in some patients. For patients in Hurley stage III, wide excision may prove to be the only effective treatment.
  • #68 Management of hidradenitis suppurativa: an Australasian consensus statement
    https://dermnetnz.org/topics/hidradenitis-suppurativa-guidelines
    Wound care in HS aims to manage odour, pain, and exudate (which is sometimes profuse), and minimise bacterial colonisation and secondary infection. […] HS can have a profound impact on quality of life and psychological wellbeing. It is essential to recognise the psychosocial costs of the disease and either provide, or refer for, appropriate support and treatment for consequences such as depression and anxiety. […] Surgery is an effective adjunct to medical treatment for HS but no randomised controlled trials have assessed this approach. […] The largest published case series included 590 consecutive surgically-treated patients in whom excision was most common (68.6%), followed unroofing (deroofing), exteriorisation or curettage (28.5%) and incision and drainage (2.9%). […] Laser therapy, photodynamic therapy, intense pulsed light and hyperbaric oxygen have been investigated in the treatment of HS. […] Further efforts are required to educate healthcare professionals and the general public about HS, and to encourage research on its epidemiology and pathophysiology.
  • #69 Hidradenitis Suppurativa Treatment & Management: Approach Considerations, Medical Care, Surgical Care
    https://emedicine.medscape.com/article/1073117-treatment
    Treatment may include the following: Local hygiene and ordinary hygiene, Weight reduction in patients who are obese, Use of ordinary soaps and antiseptic and antiperspirant agents, Application of warm compresses with sodium chloride solution or Burow solution, Wearing of loose-fitting clothing, Laser hair removal, Cessation of cigarette smoking, Medical anti-inflammatory or antiandrogen therapy such as oral or topical antibiotics, intralesional triamcinolone, spironolactone, or finasteride, Biologic therapy. […] Surgery is necessary at times, especially in chronic HS. Wide surgical excision, with margins well beyond the clinical borders of activity, remains the most definitive surgical therapy. […] Surgery is most valuable in the chronic and recurrent stages of HS. […] Local incision and drainage of purulent lesions are often required in the acute phase; although these procedures are helpful in providing short-term relief, recurrent inflammation is almost inevitable. […] The goal of surgery is to achieve complete removal of lesional tissue, but it is important to spare as much healthy tissue as possible to prevent the formation of serious contractures.
  • #70 How Hidradenitis Suppurativa Is Treated
    https://www.verywellhealth.com/hidradenitis-suppurativa-treatment-4777730
    Both oral and topical antibiotics may be prescribed to destroy bacteria that can cause infections. […] Two types of corticosteroids may be used to treat hidradenitis suppurativa. […] Biologics are highly effective for treating moderate to severe HS. […] It is sometimes necessary to remove boils and sinus tracts caused by hidradenitis suppurativa. […] A doctor can use any of several laser treatments during an office visit to reduce inflammation from HS, remove hair, and destroy hair follicles to help prevent new boils from forming. […] Deroofing is a minimally-invasive procedure to remove chronic lesions, sinus tracts, and any tissue affected by hidradenitis suppurativa. […] When a boil becomes severely inflamed and painful, it can be drained with an incision and drainage procedure.
  • #71 Hidradenitis Suppurativa Drainage: When and How It’s Done
    https://www.healthline.com/health/hidradenitis-suppurativa/hs-drainage-how-to-do-it-safely-and-more
    If incision and drainage is necessary, though, you should schedule this appointment with a dermatologist. These doctors are familiar with these procedures, and using a dermatologist can lessen the risk of complications. […] Treatment for HS depends on the severity of your condition. If you have mild symptoms, you might relieve them with an over-the-counter (OTC) topical antibiotic and pain medication. Pain medication helps reduce swelling and inflammation. […] In severe cases, your dermatologist might suggest excision. This involves complete removal of the lump, and the wound is then stitched and closed. This procedure is for lumps that don’t improve with treatment. […] Your dermatologist may also recommend a surgical procedure known as deroofing, which is the removal of the skin that covers sinus tracts or abscesses.
  • #72 Hidradenitis Suppurativa: Practice Essentials, Pathophysiology, Etiology
    https://emedicine.medscape.com/article/1073117-overview
    Hidradenitis suppurativa (HS) is a disorder of the terminal follicular epithelium in the apocrine glandbearing skin. This condition is a chronic disabling disorder that relentlessly progresses, frequently causing keloids, contractures, and immobility. […] Medical management is recommended in early stages, whereas surgery should be performed after the formation of abscesses, fistulas, scars, and sinus tracts. […] Systemic treatment does not restore the skins original architecture; therefore, once the inflammation has been treated, epithelialized cysts and sinus tracts remain in the affected skin. […] Conservative treatment may include the following: Local hygiene, Weight reduction in patients who are obese, Use of ordinary soaps and antiseptic and antiperspirant agents (eg, 6.25% aluminum chloride hexahydrate in absolute ethanol), Application of warm compresses with sodium chloride solution or Burow solution, Wearing of loose-fitting clothing, Laser hair removal, Discontinuance of cigarette smoking, Medical anti-inflammatory or antiandrogen therapy (eg, oral or topical antibiotics, intralesional triamcinolone, spironolactone, finasteride), Biologic therapy.
  • #73 Hidradenitis Suppurativa | Skin Care | Henry Ford Health – Detroit, MI
    https://www.henryford.com/services/skin/treatments/treatments/hidradenitis-suppurativa
    Medications that may be prescribed to manage symptoms: Topical or systemic antibiotics, Corticosteroids, Immunosuppressants, Biologics. […] Surgical options can range from: Drainage of abscesses, Deroofing of HS lesions, Complete removal of affected areas, CO2 laser excision of HS lesions. This treatment offers a low rate of recurrence of HS at the site of surgery compared to traditional surgical excision.
  • #74 Hidradenitis suppurativa: Self-care
    https://www.aad.org/public/diseases/a-z/hidradenitis-suppurativa-self-care
    Consider laser hair removal as a way to remove hair where you have HS. Studies have shown that getting laser hair removal can reduce flare-ups of HS. […] Treat a painful lump at home with heat. […] Avoid sweating and overheating. While applying heat to a painful lump can bring relief, sweating and overheating tend to worsen HS. […] Use a mild and effective antiperspirant or deodorant. Some products are too harsh for skin with HS. […] If you have a wound-care treatment plan, follow it. If HS has caused wounds, your dermatologist will create a treatment plan to help heal wounds and prevent infection. […] Wear looser clothing if your HS flares when you wear tight or form-fitting clothes. […] Tell your dermatologist if you have joint pain. People living with HS have a higher risk of developing diseases that affect the joints like arthritis.
  • #75 Management of hidradenitis suppurativa: an Australasian consensus statement
    https://dermnetnz.org/topics/hidradenitis-suppurativa-guidelines
    Wound care in HS aims to manage odour, pain, and exudate (which is sometimes profuse), and minimise bacterial colonisation and secondary infection. […] HS can have a profound impact on quality of life and psychological wellbeing. It is essential to recognise the psychosocial costs of the disease and either provide, or refer for, appropriate support and treatment for consequences such as depression and anxiety. […] Surgery is an effective adjunct to medical treatment for HS but no randomised controlled trials have assessed this approach. […] The largest published case series included 590 consecutive surgically-treated patients in whom excision was most common (68.6%), followed unroofing (deroofing), exteriorisation or curettage (28.5%) and incision and drainage (2.9%). […] Laser therapy, photodynamic therapy, intense pulsed light and hyperbaric oxygen have been investigated in the treatment of HS. […] Further efforts are required to educate healthcare professionals and the general public about HS, and to encourage research on its epidemiology and pathophysiology.
  • #76 Hidradenitis Suppurativa FAQ | UPMC
    https://www.upmc.com/services/plastic-surgery/services/hidradenitis-suppurativa/faq
    Surgical procedures to treat HS vary based on severity and individual patient needs. […] There is no known medical cure for HS. However, the surgical team at UPMC offers a novel surgical treatment involving total removal of the disease in each anatomical area with almost no recurrence. […] Surgeons in the UPMC Department of Plastic and Reconstructive Surgery use an innovative approach to effectively treat advanced cases of HS. Our surgeons remove all skin and tissue affected by the disease and reconstruct the area using nearby, uninvolved tissue. […] Due to the lack of apocrine sweat glands in the nearby tissue, HS will not recur in the axilla. This is the definitive solution to clearing HS from any anatomical area.
  • #77 Hidradenitis Suppurativa – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK534867/
    Surgical management may be pursued at any stage to remove areas of active disease and limit complications, but it should be combined with medical therapy. Preoperative management should include antibiotics, anti-inflammatory agents (eg, biologics or cyclosporine), and corticosteroids (eg, prednisone or glucocorticoids).
  • #78
    https://www.nursingcenter.com/journalarticle?Article_ID=4682957&Journal_ID=496448&Issue_ID=4682944
    When performing wide excision with planned skin grafting, Chen and Friedman (2011) recommend applying a wound VAC to the exposed adipose tissue for 1 week, then bringing patients back to the operating room for STSG placement. […] Bacterial colonization and wound infection inhibit successful healing, and as such, premature closure of excision of tissue in the axilla and perineum can lead to wound dehiscence and recurrence of disease. […] Hidradenitis suppurativa is a complex disease that requires large-scale randomized controlled trials to define optimal treatment strategies for patients’ suffering from this painful condition.
  • #79
    https://www.nursingcenter.com/journalarticle?Article_ID=4682957&Journal_ID=496448&Issue_ID=4682944
    When performing wide excision with planned skin grafting, Chen and Friedman (2011) recommend applying a wound VAC to the exposed adipose tissue for 1 week, then bringing patients back to the operating room for STSG placement. […] Bacterial colonization and wound infection inhibit successful healing, and as such, premature closure of excision of tissue in the axilla and perineum can lead to wound dehiscence and recurrence of disease. […] Hidradenitis suppurativa is a complex disease that requires large-scale randomized controlled trials to define optimal treatment strategies for patients’ suffering from this painful condition.
  • #80
    https://www.nursingcenter.com/journalarticle?Article_ID=4682957&Journal_ID=496448&Issue_ID=4682944
    Hidradenitis suppurativa (HS) is a painful and debilitating, chronic inflammatory disease affecting the skin bearing apocrine glands. HS causes painful abscesses and nodules that can eventually progress to interconnected sinus tracts, scarring, and contractures of the skin. […] There are limited curative options for HS; however, depending on the severity of the disease, there are treatment options available. […] Treatment options for Stage I disease include meticulous hygiene of the affected area, topical and/or oral antibiotics, immunosuppression, and antiandrogen therapy. […] Stages II and III disease may require incision and drainage, local excision of tissue, surgical deroofing of skin tracts, or even wide excision of all involved hair bearing skin. […] With regard to wide surgical excision, Chen and Friedman (2011) state, „Not only does it definitively treat the disease process, but also can relieve problematic wound contractures that limit function, as well as removing the risk of future conversion to squamous cell carcinoma.”
  • #81 Hidradenitis suppurativa: identification, symptoms and management – The Pharmaceutical Journal
    https://pharmaceutical-journal.com/article/ld/hidradenitis-suppurativa-identification-symptoms-and-management
    Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful inflammatory lesions in the folds of skin in areas of the body such as the armpits and groin, where hair follicles and apocrine sweat glands are present in abundance. […] Patients struggle with the social impact of the disease, with HS patients experiencing an estimated 50% higher risk of depression and double the risk of suicide. […] Raising awareness of the disease among pharmacists and pharmacy technicians is one way in which this delay may be shortened. […] Pharmacists can help support patients in appropriate use of over-the-counter pain management and the selection of dressings, which will be discussed in more detail later. […] Smoking cessation and support in weight loss are areas where community pharmacy teams can be of great help, through advanced services, counselling and signposting to other NHS resources.
  • #82 Hidradenitis Suppurativa – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK534867/
    Patients with hidradenitis suppurativa should be thoroughly educated about the condition’s nature, wound care, and pain management. Individualized pain management plans must address potential inpatient admissions. […] A critically important but often overlooked aspect of treatment involves hidradenitis suppurativa’s psychosocial aspect. Pain, drainage, odor, and involvement of sensitive areas reduce patients’ quality of life. […] Treatment for acute symptomatic lesions may include intralesional corticosteroid injection (usually triamcinolone), punch debridement, and topical resorcinol. […] Topical antibiotics are the first-line treatment for early uncomplicated disease. Topical clindamycin has been proven the most effective and may be an appropriate adjunctive treatment to oral therapy.
  • #83 Hidradenitis suppurativa: identification, symptoms and management – The Pharmaceutical Journal
    https://pharmaceutical-journal.com/article/ld/hidradenitis-suppurativa-identification-symptoms-and-management
    Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful inflammatory lesions in the folds of skin in areas of the body such as the armpits and groin, where hair follicles and apocrine sweat glands are present in abundance. […] Patients struggle with the social impact of the disease, with HS patients experiencing an estimated 50% higher risk of depression and double the risk of suicide. […] Raising awareness of the disease among pharmacists and pharmacy technicians is one way in which this delay may be shortened. […] Pharmacists can help support patients in appropriate use of over-the-counter pain management and the selection of dressings, which will be discussed in more detail later. […] Smoking cessation and support in weight loss are areas where community pharmacy teams can be of great help, through advanced services, counselling and signposting to other NHS resources.
  • #84 Hidradenitis suppurativa: identification, symptoms and management – The Pharmaceutical Journal
    https://pharmaceutical-journal.com/article/ld/hidradenitis-suppurativa-identification-symptoms-and-management
    Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful inflammatory lesions in the folds of skin in areas of the body such as the armpits and groin, where hair follicles and apocrine sweat glands are present in abundance. […] Patients struggle with the social impact of the disease, with HS patients experiencing an estimated 50% higher risk of depression and double the risk of suicide. […] Raising awareness of the disease among pharmacists and pharmacy technicians is one way in which this delay may be shortened. […] Pharmacists can help support patients in appropriate use of over-the-counter pain management and the selection of dressings, which will be discussed in more detail later. […] Smoking cessation and support in weight loss are areas where community pharmacy teams can be of great help, through advanced services, counselling and signposting to other NHS resources.
  • #85 Hidradenitis suppurativa (HS)
    https://www.nhs.uk/conditions/hidradenitis-suppurativa/
    Although hidradenitis suppurativa can persist for many years, if it’s diagnosed early the symptoms can be improved with treatment. […] However, the condition can have a significant impact on a person’s everyday life. Having to regularly change dressings and constantly live with the pain and discomfort of the symptoms can affect your quality of life and lead to depression.
  • #86 Management of hidradenitis suppurativa: an Australasian consensus statement
    https://dermnetnz.org/topics/hidradenitis-suppurativa-guidelines
    Wound care in HS aims to manage odour, pain, and exudate (which is sometimes profuse), and minimise bacterial colonisation and secondary infection. […] HS can have a profound impact on quality of life and psychological wellbeing. It is essential to recognise the psychosocial costs of the disease and either provide, or refer for, appropriate support and treatment for consequences such as depression and anxiety. […] Surgery is an effective adjunct to medical treatment for HS but no randomised controlled trials have assessed this approach. […] The largest published case series included 590 consecutive surgically-treated patients in whom excision was most common (68.6%), followed unroofing (deroofing), exteriorisation or curettage (28.5%) and incision and drainage (2.9%). […] Laser therapy, photodynamic therapy, intense pulsed light and hyperbaric oxygen have been investigated in the treatment of HS. […] Further efforts are required to educate healthcare professionals and the general public about HS, and to encourage research on its epidemiology and pathophysiology.
  • #87 4 Home Remedies for Hidradenitis Suppurativa
    https://health.clevelandclinic.org/hidradenitis-suppurativa-home-treatment
    A lot of patients that come in are so embarrassed to even mention this condition that they hide their condition for very long periods of time because they think theyre doing something wrong with their hygiene, but thats not the case, shares dermatology resident Taylor Bullock, MD. […] If left undiagnosed, HS can spread or worsen and cause infection. It can also cause quality-of-life issues, like making it difficult to exercise or wear comfortable clothing. […] Hidradenitis can become debilitating, adds Dr. Bullock. It can progress over time and delivers irreversible damage. […] Thats why its so important to do whatever you can to seek treatment whenever you have an HS flare-up so you can alleviate your symptoms, reduce your pain, treat your cysts and prevent scarring. […] While you can soothe your symptoms with these at-home remedies, they wont cure the condition, stresses Dr. Bullock. The best thing you can do for hidradenitis suppurativa is see your doctor as soon as possible. Theyll get you on the right course of treatment.
  • #88 Hidradenitis suppurativa diagnosis and management in primary care: not just recurrent boils | British Journal of General Practice
    https://bjgp.org/content/73/726/43
    Education and support should be provided, explaining to the patient that this is a chronic inflammatory condition and not related to poor hygiene, nor is it contagious. […] The pain from HS lesions can be profound. It is important to discuss this with the patient and provide appropriate analgesia as a GP would for other chronic pain conditions. […] Monitoring for comorbidities should be carried out and annual screening is recommended for cardiovascular disease, obesity, tobacco and alcohol use, psychological disorders, inflammatory bowel disease, and inflammatory arthropathies. […] For mild disease where no tunnelling or scarring is present, topical clindamycin can be commenced and should be applied twice daily to areas that are prone to recurrent flares. […] In the UK the HS Trust offers support through its Facebook page.
  • #89 Hidradenitis suppurativa diagnosis and management in primary care: not just recurrent boils | British Journal of General Practice
    https://bjgp.org/content/73/726/43
    Education and support should be provided, explaining to the patient that this is a chronic inflammatory condition and not related to poor hygiene, nor is it contagious. […] The pain from HS lesions can be profound. It is important to discuss this with the patient and provide appropriate analgesia as a GP would for other chronic pain conditions. […] Monitoring for comorbidities should be carried out and annual screening is recommended for cardiovascular disease, obesity, tobacco and alcohol use, psychological disorders, inflammatory bowel disease, and inflammatory arthropathies. […] For mild disease where no tunnelling or scarring is present, topical clindamycin can be commenced and should be applied twice daily to areas that are prone to recurrent flares. […] In the UK the HS Trust offers support through its Facebook page.
  • #90 Hidradenitis Suppurativa: Early Recognition and Treatment by Primary Care Providers – Clinical Advisor
    https://www.clinicaladvisor.com/features/hidradenitis-suppurativa-early-recognition-and-treatment-by-primary-care-providers/
    Hidradenitis suppurativa early recognition and treatment Treatment of hidradenitis suppurativa early in the disease course is crucial to prevent progression to more severe manifestations. […] Treatment of HS early in the disease course is crucial to prevent progression to these more severe manifestations. […] Primary care providers can employ multiple tools to initiate the management of HS. Educating patients on the etiology of the disease is crucial. Patients may have misconceptions that HS results from poor hygiene or is somehow self-induced; it is important to dissuade patients from this misconception. […] Professional psychological support should be offered to all patients with HS. […] Additional education on pain management and wound care is recommended, as lesions are frequently painful and can become open wounds.
  • #91 Don’t Under-Treat Hidradenitis Suppurativa: A Roadmap from Hesitant to Confident
    https://www.dermatologytimes.com/view/don-t-under-treat-hidradenitis-suppurativa-a-roadmap-from-hesitant-to-confident
    When we avoid addressing HS, we leave patients to navigate a condition that impacts their physical, emotional, and social well-being. […] Early intervention and adaptable treatment strategies are the way forward. […] The goal isnt perfectionits progress. […] Every patient regardless of their stage is going to get these topicals. […] For mild disease, antibiotics can help. […] Patients with frequent flares or structural changes such as tunnels need more than topicals or antibiotics—they need systemic therapies, especially biologics. […] Treatments such as adalimumab, secukinumab, and bimekizumab are FDA-approved for HS, and they’ve transformed the way we approach this disease. […] Simple in-office procedures can make a huge difference. […] Pain is a major issue for patients with HS, and validating that pain is important for building rapport. […] A holistic approach strengthens trust and improves outcomes. […] Early diagnosis and appropriate treatment is the key. […] Every patient you treat for HS is a patient who can regain control over their life.
  • #92 HS Treatment and Management | HS Awareness | HCP
    https://www.hs-awareness.com/treatment-and-management
    The physical and emotional effects of hidradenitis suppurativa (HS) can be vast. Early recognition remains critical. Treatment and management of hidradenitis suppurativa requires a multidisciplinary and individualized approach. While there are no curative treatments, pharmacological approaches and other interventions could help. While dermatology providers have a key role in treating HS, they may need to partner with other providers and specialists to deliver comprehensive care as part of a patient’s ongoing treatment. Today’s treatment options encompass several approaches, including lifestyle modifications, topicals, and surgery. Treatments should be individualized according to a patient’s needs. A multidisciplinary care team is essential throughout a patient’s journey. Management strategies should be coordinated by an HS-treating dermatology provider, but a full team can be comprised of numerous specialties depending on a patient’s specific needs. Additional care may be implemented by other healthcare providers, such as urologists and endocrinologists, among others. HS is a systemic condition requiring prompt action to help limit disease progression. Mild cases can often be managed by topical treatments and lifestyle adjustments. Moderate or severe cases may require more. Consider treatment strategies based on the individual. Topical treatment of HS includes skin cleansers, keratolytic agents, and a topical antibiotic. These options may work for some patients, depending on disease severity. Immunomodulation is rapidly becoming the mainstay of therapy for patients with moderate to severe HS. Pain is a prominent feature of HS, and if lifestyle changes or certain medications are not effective, a pain management referral can help. Recommendations for postsurgical and nonsurgical HS wound care are based on limited evidence, may be costly, and could be complex based on the severity of a patient’s condition. HS treatment approaches are not limited only to those listed. A large part of a patient’s HS journey is spent at home and immediate family members often serve as caregivers. Helping patients and their families feel supported outside a care facility is an important aspect of disease management. Educate about the systemic nature of HS and help patients understand it is not their fault. Build trust with meaningful and empathetic conversations during each appointment. Consider the impact on caregivers when developing a patient’s treatment plan. Assure patients they are not alone and provide information about HS support groups and other resources.
  • #93 Global Hidradenitis Suppurativa Treatment Guidelines: 7 Takeaways | Integra LifeSciences
    https://tissuetechnologies.integralife.com/global-hidradenitis-suppurativa-treatment-guidelines-7-takeaways/
    Hidradenitis suppurativa management requires a team-centered approach. […] All of the HS treatment guidelines endorse a multidisciplinary treatment approach, including dermatology, primary care, gynecology, mental health, pain management and surgery. […] Because there is no one treatment for hidradenitis suppurativa, all nine of the guidelines favor a broad treatment approach that may include lifestyle changes, topicals, antibiotics, anti-inflammatories and biologics, lasers, phototherapy and surgery. […] There is strong and uniform support for the following treatments for hidradenitis suppurativa lesions and most have been tested in random clinical trials with HS patients: topical clindamycin, oral tetracyclines, combination clindamycin and rifampicin therapy, adalimumab and WLE. […] There’s a lack of wound care dressings made specifically for hidradenitis suppurativa management. […] All guidelines acknowledge the pain with hidradenitis suppurativa. Specific recommended therapies include topical analgesics and non-steroidal anti-inflammatories. Guidelines hold that opioids should only be as a last resort if other methods are ineffective.
  • #94 Hidradenitis Suppurativa (HS) Patient Support Team
    https://www.hsdiseasesource.com/multi-disciplinary-care-team
    Provide ongoing care for the patient, particularly for comorbidities that may be associated with HS. […] Provide either disease-related or surgery-related wound care for patients with HS usually to protect open wounds, manage inflammation and infection, or to manage sinus tract drainage. […] Provide care for psychosocial symptoms of HS, such as severe depression, anxiety, or feelings of helplessness. […] Work with HS specialists to help patients manage acute pain episodes or chronic HS-related pain with appropriate pain management techniques and medications. […] Partner with an experienced HS specialist in dermatology to co-manage your HS patients.
  • #95 When Should You Go to the Hospital with Hidradenitis Suppurativa (HS)?
    https://www.healthline.com/health/hidradenitis-suppurativa/when-hospital-visits-are-needed
    Being proactive about managing HS is the best way to avoid a trip to the hospital. Working closely with a dermatologist can help reduce the frequency and severity of HS flares, which may also lessen how often you visit the hospital. […] The 2020 cross-sectional study found more than 40% of people visiting the hospital for HS reported 10/10 pain, which typically requires prescription-strength medications to manage. If you cant get in touch with your regular doctor when severe pain strikes, the emergency room or urgent care center may be your best option. […] HS is a chronic skin condition that can be extremely painful and distressing enough to send you to the hospital.
  • #96 Hidradenitis suppurativa – Diagnosis and treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/hidradenitis-suppurativa/diagnosis-treatment/drc-20352311
    Hidradenitis suppurativa can be difficult to diagnose and requires specialized care. […] Our caring team of Mayo Clinic experts can help you with your hidradenitis suppurativa-related health concerns. […] Treatment with medicines, surgery or both can help control symptoms and prevent complications of hidradenitis suppurativa. […] Expect to have regular follow-up visits with your dermatologist. Some people might need the comprehensive care provided by a health care team with members from multiple medical specialties. […] Combined medical and surgical approaches help manage hidradenitis suppurativa. Surgery is an important part of disease management when a tunnel, and bump, or abscess, are present. […] Mild hidradenitis suppurativa can sometimes be effectively controlled with self-care measures. Self-care is also an important complement to medical treatment. […] Try to find support among your family and friends. The concern and understanding of other people with hidradenitis suppurativa also might be comforting. […] Your health care provider is likely to ask you several questions, such as: When did your symptoms begin?
  • #97 Hidradenitis Suppurativa (HS) Signs & Symptoms | Rush
    https://www.rush.edu/conditions/hidradenitis-suppurativa-hs
    If your dermatologist thinks you can improve your HS symptoms with lifestyle changes such as these or youd like to receive mental or emotional support they can refer you to specialists who can help (or recommend services at Rush or in the community). […] People with HS are at risk for other health problems, including metabolic syndrome, joint pain, inflammatory bowel disease and depression. […] At Rush, you have access to a team of specialists who can treat any of the physical and emotional challenges associated with HS. […] RUSH offers a unique infusion center for people with skin disorders who need IV medicines. […] Having HS can increase your risk of a type of skin cancer called squamous cell carcinoma.
  • #98 Interventions for hidradenitis suppurativa
    https://pmc.ncbi.nlm.nih.gov/articles/PMC6464653/
    Hidradenitis suppurativa has a large impact on peoples’ lives because of chronic pain, which may prevent those affected from working during disease flares. […] Current management typically follows a stepwise approach depending on disease severity, commencing with topical treatment for mild disease, prolonged courses of oral antibiotics for moderate disease, and systemic immunosuppressants or surgery for more severe disease. […] The evidence base for many of these interventions is relatively weak, and there is little published guidance to aid decision-making in the treatment of HS. […] Our review has demonstrated that, with the exception perhaps of adalimumab treatment, there remains incomplete RCT evidence for most interventions used to treat HS. […] Overall, our review found that knowledge gaps predominate over robust evidence for the treatment of hidradenitis suppurativa (HS). […] Our review has highlighted a need for further RCTs to improve the evidence base for most interventions in HS.
  • #99 Hidradenitis suppurativa (syn. acne inversa)
    https://www.pcds.org.uk/clinical-guidance/hidradenitis-suppurativa
    Assess and record affected sites, and effects on quality of life (DLQI). […] They are often sterile so consider an intra-lesional steroid injection (eg triamcinolone acetonide 10 mg/ml) or a short course of oral prednisolone 30-40 mg OD for 3-4 days. […] For infective flares with tense and fluctuant abscess formation consider referring for incision and drainage to relieve pain. […] All patients should be prescribed topical antiseptics. Octenisan is preferable as it has the advantage of breaking biofilms and may gentler on the skin than some of the other products e.g. 4% chlorhexidine solution. […] For mild HS, consider topical clindamycin BD, or oral doxycycline 200 mg OD (or lymecycline 408 mg caps, two caps once a day) both initially for 3 months. Aim for reduction in flares and improved disease control.
  • #100 Hidradenitis suppurativa: Diagnosis and treatment
    https://www.aad.org/public/diseases/a-z/hidradenitis-suppurativa-treatment
    A dermatologist is often the doctor who diagnoses a patient with hidradenitis suppurativa. Getting an accurate diagnosis and an individualized treatment plan can help prevent this condition from worsening. If you have hidradenitis suppurativa, your dermatologist will create a treatment plan tailored to your needs. While this condition cannot be cured, your dermatologist will create a treatment plan that can: Reduce flare-ups […] Heal wounds […] Relieve pain and itch […] Prevent the condition from worsening […] Allow you to participate comfortably in regular activities, such as walking and exercise. When creating a treatment plan, your dermatologist considers the types of bumps and sores you have, whether you have pain or an infection, and how the condition is affecting your life. This allows your dermatologist to customize a treatment plan for your specific needs. Some soaps and other skin care products may irritate skin with hidradenitis suppurativa. To reduce irritation, your dermatologist can create a skin care plan for you. This plan may include using an antibacterial wash and switching to a gentle antiperspirant. If you have nodules (hard lumps beneath your skin), cysts (lumps that may contain pus, oil, or another substance), or abscesses (infected lumps that contain pus), your dermatologist may prescribe: Antibiotic: A topical (applied to the skin) antibiotic called clindamycin is often prescribed to treat mild hidradenitis suppurativa. This medication can reduce lumps, including lumps that contain pus, and pus-filled swollen areas beneath your skin. It can also help treat an infection. Your treatment plan may include one or more of the following: Medication that works throughout the body
  • #101 Hidradenitis suppurativa – Wikipedia
    https://en.wikipedia.org/wiki/Hidradenitis_suppurativa
    Hidradenitis suppurativa can take the form of growths on the skin that are extremely painful and debilitating. […] HS may significantly limit many everyday activities, for instance, walking, hugging, moving, and sitting down. […] No cure is known, though surgical excision with wet-to-dry dressings, proper wound care, and warm baths or showering with a pulse-jet shower may be used in those with mild disease. […] Treatment depends upon the presentation and severity of the disease. […] Clear and sensitive communication from health care professionals, and social and psychological interventions can help manage the emotional impact of the condition and aid necessary lifestyle changes. […] In May 2023, the European Commission (EC) approved Cosentyx (secukinumab) for active moderate to severe hidradenitis suppurativa in adults.
  • #102 Hidradenitis Suppurativa Patient Guide
    https://hspatientguide.com/guide/experiences-from-people-living-with-hs/
    As with most patients, I have had varied experiences with medical care professionals treating my HS. Most have a very limited understanding of HS, and a very small toolbox for treating this disease. […] It is so important to have a knowledgeable and dedicated healthcare provider to manage this disease. […] My life has drastically improved since my first appointment, and my anxiety has gone down considerably because I know I have a healthcare provider who is fighting this disease right along with me. […] Trying to maintain a career with HS can be daunting; tips on wound care, odor, dress codes, accommodations, and knowing how to deal with human resources (HR) can help. […] Addressing your wound care needs at work can be difficult, but being prepared for emergency situations can help.
  • #103 Hidradenitis Suppurativa Patient Guide
    https://hspatientguide.com/guide/experiences-from-people-living-with-hs/
    Dealing with odor can not only be hard, but extremely embarrassing. […] It is important to remember that you ARE NOT at fault. […] Trying to adhere to a specific dress code is not always possible for HS sufferers. […] For many of us, being able to work outside the home is crucial to our wellbeing. […] To be a community or patient advocate takes desire, dedication, and passion. Most importantly, you must fully be educated on the illness. […] Patient Advocacy requires being able to communicate with clinicians, researchers, multiple personality types, and navigate challenging situations. […] If they are not being heard or not understanding the process, being their Advocate and speaking on behalf, if necessary. […] Making sure they are being heard when they dont have a voice. […] This also requires you to work with the prescribing provider to ensure they are writing the letter properly able to appeal to, and even work on, outside insurance appeals. […] Assisting with setting up payment plans or help lower overall costs; working closely with the person you are advocating for; teaching them how to call around to set up payment plans, if they qualify; finding them a charity organization that might be able to help them pay bills.
  • #104 British Journal of Nursing – The challenges of wound management for hidradenitis suppurativa
    https://www.britishjournalofnursing.com/content/personal-perspective/the-challenges-of-wound-management-for-hidradenitis-suppurativa/
    In the aftermath of an HS flare-up areas of the skin are left scarred, pitted and disfigured, while the damaged skin tries to heal. This results in pain and restricted movement affecting clothing choices, especially because regular drainage requires management that includes frequently applied, effective wound care with dressings that remain in place. […] The biggest challenge is everyday wound care. […] Adhesive dressings pinch the skin, move about and often fall off, making them difficult to apply, adjust and remove. […] Frequent dressing changes also add to the embarrassment and inconvenience experienced as part of daily living. […] In 81% of cases, respondents reported experiencing a negative impact on quality of life due to frequent dressing changes; 16% required five or more dressing changes a day and 12% had to spend more than 30 minutes a day on their wound care.
  • #105 Hidradenitis Suppurativa Tips and Tricks | No BS About HS
    https://www.nobsabouths.com/hs-patient-stories/hidradenitis-suppurativa-tips
    HS symptoms can be painful, unpredictable, messy, and embarrassing. These tips come from others who have HS and could help you relieve discomfort and promote healing. For starters, avoid stress, get plenty of rest, and try to eat healthy. While these tips may help, be sure to talk to your doctor about anything new you’re doing to manage your disease. […] Keep the affected area clean by gently washing with antibacterial soap. […] Wear loose-fitting and breathable clothing to reduce friction on your skin. […] Try not to shave where you have breakouts. […] Some patients dont shave their underarms. Instead, they use an electric trimmer to closely trim the hair. […] Other patients make their own deodorant using essential oils like lavender or tea tree. […] Having a hot bath or placing a warm washcloth on the sore spots can really help with the pain, as well as stimulate draining. DO NOT SQUEEZE YOUR SORES. DO NOT ATTEMPT TO DRAIN YOUR OWN ABSCESSES!
  • #106 Hidradenitis Suppurativa Tips and Tricks | No BS About HS
    https://www.nobsabouths.com/hs-patient-stories/hidradenitis-suppurativa-tips
    For the ladies with groin spots: if you must wear underwear (its better to not wear any sometimes), wear breathable cotton boyshorts! […] Only use soaps and deodorants that are fragrance-free. […] For me, an aluminum-free deodorant wasn’t enough. I whipped up a homemade baking soda deodorant. […] Inserting a feminine hygiene pad between a lesion, with the adhesive side to your clothing. The pad is absorbent, keeps a lesion covered and clean, allows it to breathe, stays in place, and a thin pad is seamless under a t-shirt. […] Apply warm compresses or a warm washcloth to help reduce swelling. […] Put a hot tea bag that’s been steeped for a minute on the painful abscess or nodule. […] Bathe with antibacterial soap and use hypoallergenic products. […] Always keep your lesions and abscesses clean.
  • #107 Hidradenitis Suppurativa Patient Guide
    https://hspatientguide.com/
    The contents of this website are not meant to be a substitute for medical advice. Please consult with your qualified healthcare professional for any health and medically related concerns. […] Chapter 11: Making the Most of Your HS Doctor Visit […] Chapter 12: HS Treatment Goals […] Chapter 13: Multidisciplinary Care […] Chapter 14: Lifestyle Changes and Complementary and Alternative Medicines […] Chapter 15: Skin and Wound Care […] Chapter 16: Topical Medications and Washes […] Chapter 17: Antibiotics […] Chapter 18: Non-Antibiotic Oral Medications […] Chapter 19: Biologics and Small Molecule Immunomodulators […] Chapter 20: Pain Control […] Chapter 21: The Right Surgery for the Right Time […] Chapter 22: Surgical Excisions […] Chapter 23: Procedures in the Office
  • #108 Hidradenitis Suppurativa Patient Guide
    https://hspatientguide.com/guide/experiences-from-people-living-with-hs/
    As with most patients, I have had varied experiences with medical care professionals treating my HS. Most have a very limited understanding of HS, and a very small toolbox for treating this disease. […] It is so important to have a knowledgeable and dedicated healthcare provider to manage this disease. […] My life has drastically improved since my first appointment, and my anxiety has gone down considerably because I know I have a healthcare provider who is fighting this disease right along with me. […] Trying to maintain a career with HS can be daunting; tips on wound care, odor, dress codes, accommodations, and knowing how to deal with human resources (HR) can help. […] Addressing your wound care needs at work can be difficult, but being prepared for emergency situations can help.
  • #109 Hidradenitis Suppurativa Patient Guide
    https://hspatientguide.com/guide/experiences-from-people-living-with-hs/
    Dealing with odor can not only be hard, but extremely embarrassing. […] It is important to remember that you ARE NOT at fault. […] Trying to adhere to a specific dress code is not always possible for HS sufferers. […] For many of us, being able to work outside the home is crucial to our wellbeing. […] To be a community or patient advocate takes desire, dedication, and passion. Most importantly, you must fully be educated on the illness. […] Patient Advocacy requires being able to communicate with clinicians, researchers, multiple personality types, and navigate challenging situations. […] If they are not being heard or not understanding the process, being their Advocate and speaking on behalf, if necessary. […] Making sure they are being heard when they dont have a voice. […] This also requires you to work with the prescribing provider to ensure they are writing the letter properly able to appeal to, and even work on, outside insurance appeals. […] Assisting with setting up payment plans or help lower overall costs; working closely with the person you are advocating for; teaching them how to call around to set up payment plans, if they qualify; finding them a charity organization that might be able to help them pay bills.
  • #110 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa? […] For safety, research studies usually dont include pregnant and nursing patients, so most of our knowledge about the treatment of Hidradenitis suppurativa (HS) is based on non-pregnant and non-nursing patients. […] The authors reviewed 143 articles to create a comprehensive list of treatment options available for both pregnant and nursing mothers. […] Topical (meaning applied to the skin) antibiotics (clindamycin, erythromycin, metronidazole) are the first choice to treat HS for pregnant and nursing mothers. […] For moderate to severe HS patients, the oral antibiotic combination of clindamycin and rifampin is the first choice for treatment. […] Dapsone is another antibiotic safe for both pregnant and nursing mothers.
  • #111 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa? […] For safety, research studies usually dont include pregnant and nursing patients, so most of our knowledge about the treatment of Hidradenitis suppurativa (HS) is based on non-pregnant and non-nursing patients. […] The authors reviewed 143 articles to create a comprehensive list of treatment options available for both pregnant and nursing mothers. […] Topical (meaning applied to the skin) antibiotics (clindamycin, erythromycin, metronidazole) are the first choice to treat HS for pregnant and nursing mothers. […] For moderate to severe HS patients, the oral antibiotic combination of clindamycin and rifampin is the first choice for treatment. […] Dapsone is another antibiotic safe for both pregnant and nursing mothers.
  • #112 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa? […] For safety, research studies usually dont include pregnant and nursing patients, so most of our knowledge about the treatment of Hidradenitis suppurativa (HS) is based on non-pregnant and non-nursing patients. […] The authors reviewed 143 articles to create a comprehensive list of treatment options available for both pregnant and nursing mothers. […] Topical (meaning applied to the skin) antibiotics (clindamycin, erythromycin, metronidazole) are the first choice to treat HS for pregnant and nursing mothers. […] For moderate to severe HS patients, the oral antibiotic combination of clindamycin and rifampin is the first choice for treatment. […] Dapsone is another antibiotic safe for both pregnant and nursing mothers.
  • #113 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa? […] For safety, research studies usually dont include pregnant and nursing patients, so most of our knowledge about the treatment of Hidradenitis suppurativa (HS) is based on non-pregnant and non-nursing patients. […] The authors reviewed 143 articles to create a comprehensive list of treatment options available for both pregnant and nursing mothers. […] Topical (meaning applied to the skin) antibiotics (clindamycin, erythromycin, metronidazole) are the first choice to treat HS for pregnant and nursing mothers. […] For moderate to severe HS patients, the oral antibiotic combination of clindamycin and rifampin is the first choice for treatment. […] Dapsone is another antibiotic safe for both pregnant and nursing mothers.
  • #114 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #115 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #116 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #117 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #118 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #119 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #120 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #121 How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
    https://www.hs-foundation.org/pregnant-and-nursing-mothers-manage-hs
    Biologics, like adalimumab and infliximab, are antibodies used to treat HS. They are considered safe during pregnancy and lactation and are sometimes stopped during the third trimester to avoid transferring the antibodies to the baby. […] To manage pain, acetaminophen is the best choice in pregnancy and the nursing period. […] Surgery should generally be avoided in pregnancy. However when medications dont work well enough, excisional surgery (removing areas of skin affected by HS) is a safe choice for pregnant and nursing populations. […] Smoking increases risk for potential birth defects in babies and can worsen HS symptoms for mothers. […] Proper diet and weight management are important to reduce HS symptoms and promote good health overall. […] Taking bleach baths (a bath with a tiny amount of chlorine bleach, similar to swimming pool chlorine) can reduce odor. […] Lastly, mental health wellness is important as HS is a difficult disease, and patients often experience symptoms of depression.
  • #122 Hidradenitis suppurativa – Symptoms and causes – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/hidradenitis-suppurativa/symptoms-causes/syc-20352306
    Hidradenitis suppurativa tends to start after puberty, usually before age 40. It can persist for many years and worsen over time. It can affect your daily life and emotional well-being. Combined medical and surgical therapy can help manage the disease and prevent complications. […] Hidradenitis suppurativa is not just a boil, and many people with this condition also have related conditions. People with hidradenitis suppurativa benefit from a health care team with medical and surgical dermatologists at the core. Other specialists are involved as needed. […] Early diagnosis of hidradenitis suppurativa is key to effective treatment. See your dermatologist if your condition: Is painful. Makes it difficult to move. Doesn’t improve in a few weeks. Returns within weeks of treatment. Appears in several locations. Flares often. […] Hidradenitis suppurativa care at Mayo Clinic.
  • #123 Reddit – The heart of the internet
    https://www.reddit.com/r/Hidradenitis/comments/1h8ha06/things_that_helped_my_hs/
    I’m 15, I’ve had HS around my labia and groin since I got my period so around 4 years. I’ve been in stage 1 this entire time and I have to say, it’s only getting better. […] Here are things I’ve tried that actually help: […] Washing yourself regularly. This will decrease any sort of bacteria around your area. […] Avoiding shaving on or around an active boil. […] Aloe Vera. I use aloe vera (100% natural) on open boils to calm them down and keep them moist during the healing process. […] Vitamin E Oil. I use this to smooth out the scarring but also to keep it moist (works like a charm!) […] Citrus. Anything that has citrus in it has acidity. Acidity is great for hyperpigmentation. […] Seeing a nutritionist and figuring out what triggers your HS. […] Drinking lots of water. Similar to staying away from junk food, giving your body the resources it needs to function as well as possible is extremely important. […] Finally, the number one: Laser Hair Removal. Guys, getting my groin (butt) lasered is probably what helped my HS the most. […] I try to stay away from any chemicals. Your body is an organic object, try using organic medicine.
  • #124 Hidradenitis Suppurativa (HS) Signs & Symptoms | Rush
    https://www.rush.edu/conditions/hidradenitis-suppurativa-hs
    If your dermatologist thinks you can improve your HS symptoms with lifestyle changes such as these or youd like to receive mental or emotional support they can refer you to specialists who can help (or recommend services at Rush or in the community). […] People with HS are at risk for other health problems, including metabolic syndrome, joint pain, inflammatory bowel disease and depression. […] At Rush, you have access to a team of specialists who can treat any of the physical and emotional challenges associated with HS. […] RUSH offers a unique infusion center for people with skin disorders who need IV medicines. […] Having HS can increase your risk of a type of skin cancer called squamous cell carcinoma.
  • #125 Interventions for hidradenitis suppurativa
    https://pmc.ncbi.nlm.nih.gov/articles/PMC6464653/
    Hidradenitis suppurativa has a large impact on peoples’ lives because of chronic pain, which may prevent those affected from working during disease flares. […] Current management typically follows a stepwise approach depending on disease severity, commencing with topical treatment for mild disease, prolonged courses of oral antibiotics for moderate disease, and systemic immunosuppressants or surgery for more severe disease. […] The evidence base for many of these interventions is relatively weak, and there is little published guidance to aid decision-making in the treatment of HS. […] Our review has demonstrated that, with the exception perhaps of adalimumab treatment, there remains incomplete RCT evidence for most interventions used to treat HS. […] Overall, our review found that knowledge gaps predominate over robust evidence for the treatment of hidradenitis suppurativa (HS). […] Our review has highlighted a need for further RCTs to improve the evidence base for most interventions in HS.
  • #126 Hidradenitis Suppurativa Patient Guide
    https://hspatientguide.com/
    Chapter 24: Laser Therapy […] Chapter 25: The HS Toolbox […] Chapter 26: Tracking Your HS […] Chapter 27: Experiences from People Living with HS […] Chapter 28: Experiences from HS Caregivers […] Chapter 29: Pipeline Therapeutics for Hidradenitis Suppurativa […] Chapter 30: The Future of HS.
  • #127 Hidradenitis suppurativa – Wikipedia
    https://en.wikipedia.org/wiki/Hidradenitis_suppurativa
    Hidradenitis suppurativa can take the form of growths on the skin that are extremely painful and debilitating. […] HS may significantly limit many everyday activities, for instance, walking, hugging, moving, and sitting down. […] No cure is known, though surgical excision with wet-to-dry dressings, proper wound care, and warm baths or showering with a pulse-jet shower may be used in those with mild disease. […] Treatment depends upon the presentation and severity of the disease. […] Clear and sensitive communication from health care professionals, and social and psychological interventions can help manage the emotional impact of the condition and aid necessary lifestyle changes. […] In May 2023, the European Commission (EC) approved Cosentyx (secukinumab) for active moderate to severe hidradenitis suppurativa in adults.
  • #128 Hidradenitis Suppurativa Patient Guide
    https://hspatientguide.com/
    The contents of this website are not meant to be a substitute for medical advice. Please consult with your qualified healthcare professional for any health and medically related concerns. […] Chapter 11: Making the Most of Your HS Doctor Visit […] Chapter 12: HS Treatment Goals […] Chapter 13: Multidisciplinary Care […] Chapter 14: Lifestyle Changes and Complementary and Alternative Medicines […] Chapter 15: Skin and Wound Care […] Chapter 16: Topical Medications and Washes […] Chapter 17: Antibiotics […] Chapter 18: Non-Antibiotic Oral Medications […] Chapter 19: Biologics and Small Molecule Immunomodulators […] Chapter 20: Pain Control […] Chapter 21: The Right Surgery for the Right Time […] Chapter 22: Surgical Excisions […] Chapter 23: Procedures in the Office
  • #129 Hidradenitis Suppurativa Center
    https://www.umassmed.edu/hs-center/
    Hidradenitis suppurativa (HS) is a debilitating chronic inflammatory disease with substantial health and economic impact, affecting 1-4% of the U.S. population at an estimated annual direct health care cost of $63 billion. […] HS manifests as painful abscesses, malodorous sinus tracts/fistulas, and tethering scars in apocrine-gland bearing skin. […] HS patients suffer high rates of depression and experience a significantly diminished quality of life (QoL). […] Existing therapies for HS fail to consistently remit disease, thus there remains a great unmet need for better treatments. […] Dr. Whitley is co-director of the UMass Chan Hidradenitis Suppurativa Center. Her career goal is to accelerate development of more effective therapies for hidradenitis suppurativa (HS). […] She uses basic, translational, and clinical research approaches to better understand the epithelial and immune defects underlying HS, and leads a team of researchers dedicated to developing and testing novel HS therapeutics. […] Jessica St. John is a dermatologist that co-directs the HS center along with Dr. Whitley. She specializes in HS, wound care, inpatient dermatology, and medical dermatology.
  • #130 Interventions for hidradenitis suppurativa
    https://pmc.ncbi.nlm.nih.gov/articles/PMC6464653/
    Hidradenitis suppurativa has a large impact on peoples’ lives because of chronic pain, which may prevent those affected from working during disease flares. […] Current management typically follows a stepwise approach depending on disease severity, commencing with topical treatment for mild disease, prolonged courses of oral antibiotics for moderate disease, and systemic immunosuppressants or surgery for more severe disease. […] The evidence base for many of these interventions is relatively weak, and there is little published guidance to aid decision-making in the treatment of HS. […] Our review has demonstrated that, with the exception perhaps of adalimumab treatment, there remains incomplete RCT evidence for most interventions used to treat HS. […] Overall, our review found that knowledge gaps predominate over robust evidence for the treatment of hidradenitis suppurativa (HS). […] Our review has highlighted a need for further RCTs to improve the evidence base for most interventions in HS.
  • #131 British Journal of Nursing – The challenges of wound management for hidradenitis suppurativa
    https://www.britishjournalofnursing.com/content/personal-perspective/the-challenges-of-wound-management-for-hidradenitis-suppurativa/
    Unsurprisingly, 81% reported experiencing pain during the dressing changes and there was an overall dissatisfaction with currently available wound dressings. […] The majority of patients reported requiring dressings for more than 6 months of the year, with an average of 2.8 dressings changes a day. […] The solution […] I founded a company called HidraMed Solutions with a mission to design and develop viable and acceptable wound-care solutions to manage HS and difficult-to-dress areas of the body that would allow patients to self-manage their wound-care regimen. […] Correct diagnosis is the first step to providing an effective solution, taking account of the severity rating in each individual case using the simple, reliable Hurley scoring tool, which classifies HS severity into: stage 1 (mild), stage 2 (moderate) and stage 3 (severe).
  • #132 Hidradenitis suppurativa: identification, symptoms and management – The Pharmaceutical Journal
    https://pharmaceutical-journal.com/article/ld/hidradenitis-suppurativa-identification-symptoms-and-management
    Pharmacists can support access to new treatment options, such as monoclonal antibodies. […] Treatment success is assessed based upon reduction in pain and lesion count, more infrequent disease flares and by improved scores on quality-of-life questionnaires. […] Pharmacists can counsel patients on the important safety points and ensure suitability. […] Patients can also benefit from other treatment modalities and lifestyle adjustments. […] Patients who require additional support with wound care can be signposted to speak with specialist dermatology nurses or members of the local tissue viability team, who are best placed to provide expert individualised advice. […] Surgery is used to remove chronic lesions that have not responded to medical intervention and to address sequelae, such as scars, contractions of the skin and sinus tracts. […] Monitoring for adverse events when using intensive treatments is important. […] Identification and early treatment of HS can reduce the likelihood of developing severe disease.
  • #133 HS Treatment and Management | HS Awareness | HCP
    https://www.hs-awareness.com/treatment-and-management
    The physical and emotional effects of hidradenitis suppurativa (HS) can be vast. Early recognition remains critical. Treatment and management of hidradenitis suppurativa requires a multidisciplinary and individualized approach. While there are no curative treatments, pharmacological approaches and other interventions could help. While dermatology providers have a key role in treating HS, they may need to partner with other providers and specialists to deliver comprehensive care as part of a patient’s ongoing treatment. Today’s treatment options encompass several approaches, including lifestyle modifications, topicals, and surgery. Treatments should be individualized according to a patient’s needs. A multidisciplinary care team is essential throughout a patient’s journey. Management strategies should be coordinated by an HS-treating dermatology provider, but a full team can be comprised of numerous specialties depending on a patient’s specific needs. Additional care may be implemented by other healthcare providers, such as urologists and endocrinologists, among others. HS is a systemic condition requiring prompt action to help limit disease progression. Mild cases can often be managed by topical treatments and lifestyle adjustments. Moderate or severe cases may require more. Consider treatment strategies based on the individual. Topical treatment of HS includes skin cleansers, keratolytic agents, and a topical antibiotic. These options may work for some patients, depending on disease severity. Immunomodulation is rapidly becoming the mainstay of therapy for patients with moderate to severe HS. Pain is a prominent feature of HS, and if lifestyle changes or certain medications are not effective, a pain management referral can help. Recommendations for postsurgical and nonsurgical HS wound care are based on limited evidence, may be costly, and could be complex based on the severity of a patient’s condition. HS treatment approaches are not limited only to those listed. A large part of a patient’s HS journey is spent at home and immediate family members often serve as caregivers. Helping patients and their families feel supported outside a care facility is an important aspect of disease management. Educate about the systemic nature of HS and help patients understand it is not their fault. Build trust with meaningful and empathetic conversations during each appointment. Consider the impact on caregivers when developing a patient’s treatment plan. Assure patients they are not alone and provide information about HS support groups and other resources.
  • #134 Hidradenitis Suppurativa – Tono Health
    https://www.tonohealth.com/hs/
    Get expert care for Hidradenitis Suppurativa. Tono provides you with high-quality care from the convenience of home. We also work with your local providers when necessary for in-person care. We have a large network of subspecialists so you can connect with the best doctor for your needs and preferences. We provide ongoing support for any emergencies and questions that may arise. Enjoy the convenience of video visits with your doctor from your home, car, or even a private room at work. Care isn’t one size fits all. Experience personalized, comprehensive treatment every step of the way. Get a diagnosis with an HS expert. Ongoing care for your HS. Augment your in-person care between visits. Management before and after surgery. Access to secure chat with your doctor care team. Dr. Ghias completed an HS fellowship and is a member of the HS Foundation. Respected for her extensive HS research publications, she is a leader in HS care. Dr. Nguyen, a member of the HS Foundation, is renowned for his extensive HS research publications. He is recognized as a leader in HS care, earning respect in the field. Dr. Soliman completed an HS fellowship. She is respected for her extensive HS research publications, she is a leader in HS care. Dr. Cohen, currently leading Cornell’s HS center, previously established Montefiore’s renowned HS center. His extensive HS research publications have earned him respect and recognition as a leader in HS care and a key opinion leader in dermatology. Dr. Indigo is dedicated to advancing care for patients living with Hidradenitis Suppurativa. She is respected for her HS research publications and is a passionate leader in HS care. Dr. Lenczowski co-founded the multi-disciplinary Hidradenitis Suppurativa clinic at Virginia Commonwealth University Health Systems.
  • #135 Advocating for Change in the Lives of People with Hidradenitis Suppurativa | UCB
    https://www.ucb.com/solutions/magazine/detail/article/advocating-for-change-in-the-lives-of-people-with-hidradenitis-suppurativa
    At UCB, we are committed to improving the lives of people living with hidradenitis suppurativa (HS), a chronic, painful, inflammatory skin condition that can have a significant and detrimental impact on patients lives. […] These factors can impact the timely and appropriate care that people with HS receive. […] The report highlights ten priority recommendations including raising awareness of HS among the general public, employers and healthcare professionals. […] At UCB, we firmly believe that implementing these recommendations will significantly enhance the lives of people with HS. By collaborating with the community to enact these changes, we can collectively help to ensure that people living with HS receive the necessary care and support they need today and into the future.
  • #136 Hidradenitis Suppurativa: Early Recognition and Treatment by Primary Care Providers – Clinical Advisor
    https://www.clinicaladvisor.com/features/hidradenitis-suppurativa-early-recognition-and-treatment-by-primary-care-providers/
    Medication selection ultimately depends on the patients individual disease course and clinical decision-making by the provider. […] Surgical intervention is reserved primarily for Hurley stage II to III disease. […] Timely diagnosis of HS represents an unmet medical need, as patients are frequently diagnosed years after the onset of symptoms. […] The management of HS should be individualized to the patient and provider. Because the initial presentation is variable, accurate diagnosis and prompt treatment may be difficult. Nonetheless, these are crucial to preventing progression to more severe stages, and providers should approach patients with recurrent intertriginous lesions with a high suspicion for HS.
  • #137 Advocating for Change in the Lives of People with Hidradenitis Suppurativa | UCB
    https://www.ucb.com/solutions/magazine/detail/article/advocating-for-change-in-the-lives-of-people-with-hidradenitis-suppurativa
    At UCB, we are committed to improving the lives of people living with hidradenitis suppurativa (HS), a chronic, painful, inflammatory skin condition that can have a significant and detrimental impact on patients lives. […] These factors can impact the timely and appropriate care that people with HS receive. […] The report highlights ten priority recommendations including raising awareness of HS among the general public, employers and healthcare professionals. […] At UCB, we firmly believe that implementing these recommendations will significantly enhance the lives of people with HS. By collaborating with the community to enact these changes, we can collectively help to ensure that people living with HS receive the necessary care and support they need today and into the future.
  • #138 HS Foundation
    https://www.hs-foundation.org/
    Hidradenitis Suppurativa Foundation is a non-profit organization improving the lives of people affected by HS through advocacy, education and research. […] HS treatments arent one-size-fits-all, and thats a good thing. With the help of a dedicated dermatologist, each of the factors that affect HS can be addressed alone or in combination to help you get relief. […] Our programs directed toward both patients and medical professionals are capped by an annual international conference, the Symposium on Hidradenitis Suppurativa Advances, where the latest breakthroughs in the cause, diagnosis, control, and cure of Hidradenitis Suppurativa are shared in a three-day educational conference. Educational resources on our website include the latest treatment guidelines, online courses addressing the unmet needs of patients, and the research changing the landscape in Hidradenitis Suppurativa.
  • #139 HS Foundation
    https://www.hs-foundation.org/
    Our advocacy goals strive toward more and better treatment options, easier access to care and better coverage from insurance, and patient-centered outcomes in research and drug development. The HS Foundation actively advocates for people with HS as a member of the Coalition of Skin Diseases (CSD), a coalition that includes over 30 organizations representing over 80 million Americans with dermatological conditions.
  • #140 Your Interactive Patient Guide to Hidradenitis Suppurativa – GHLF.org
    https://ghlf.org/hspatientguide/
    Your Interactive Patient Guide to Hidradenitis Suppurativa (HS) is here to support you on your journey with HS. Inside, youll find practical tips and patient-friendly resources to help you understand your symptoms, care for wounds, explore treatment options, manage insurance, and tackle challenges at work, school, and in relationships. […] Youll also hear from other HS patients who share their experiences and offer real-life advice on advocating for yourself with your doctor. With a focus on shared decision-making, this guide encourages you to work with your health care team to make sure your voice is heard and you get the care you need and deserve. […] Your Interactive Patient Guide to Hidradenitis Suppurativa (HS) is part of The CreakyJoints Patient Guidelines series created specifically for people living with chronic illness. These guides provide detailed, easy-to-understand explanations about symptoms, treatment options, co-occurring conditions, and practical strategies for managing your condition in daily life.
  • #141 Advocating for Change in the Lives of People with Hidradenitis Suppurativa | UCB
    https://www.ucb.com/solutions/magazine/detail/article/advocating-for-change-in-the-lives-of-people-with-hidradenitis-suppurativa
    At UCB, we are committed to improving the lives of people living with hidradenitis suppurativa (HS), a chronic, painful, inflammatory skin condition that can have a significant and detrimental impact on patients lives. […] These factors can impact the timely and appropriate care that people with HS receive. […] The report highlights ten priority recommendations including raising awareness of HS among the general public, employers and healthcare professionals. […] At UCB, we firmly believe that implementing these recommendations will significantly enhance the lives of people with HS. By collaborating with the community to enact these changes, we can collectively help to ensure that people living with HS receive the necessary care and support they need today and into the future.