Materiały źródłowe

• #1 Chordoma – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK430846/

  A chordoma is a low-grade, slow-growing but locally invasive and locally aggressive tumor that is a type of sarcoma. […] This activity describes the clinical evaluation of chordoma and explains the role of the health professional team in coordinating the care of this condition. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist. […] Nurses are involved in perioperative care, recovery, and rehabilitation. […] Due to the high local recurrence of chordomas, most physicians recommend lifelong surveillance with magnetic resonance imaging (MRI) with and without gadolinium contrast. […] Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment.

• #2 Northwestern Medicine Chordoma Center | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center

  Chordomas are rare tumors that occur in the bones of the skull base and spine. They are malignant, potentially fatal tumors that tend to grow slowly and spread to other parts of the body if left untreated. […] Navigating a medical system can be particularly daunting for patients seeking physicians experienced in treating chordomas. At the Northwestern Medicine Chordoma Center, part of the Lou and Jean Malnati Brain Tumor Institute of Robert H. Lurie Comprehensive Cancer Center of Northwestern University at Northwestern Memorial Hospital, we provide advanced treatment options for patients from around the world who have chordomas. Our patients are cared for by a team of experts, including neurosurgeons, orthopaedic surgeons, radiation oncologists, medical oncologists, reconstructive/plastic surgeons, oncology social workers and rehabilitation specialists.

• #3 Chordoma | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/19489

  Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment. […] Nurses are involved in perioperative care, recovery, and rehabilitation. They monitor patient status, educate patients and their families, and update the rest of the team. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist.

• #4 Chordoma | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/19489

  Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment. […] Nurses are involved in perioperative care, recovery, and rehabilitation. They monitor patient status, educate patients and their families, and update the rest of the team. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist.

• #5 Chordoma – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK430846/

  A chordoma is a low-grade, slow-growing but locally invasive and locally aggressive tumor that is a type of sarcoma. […] This activity describes the clinical evaluation of chordoma and explains the role of the health professional team in coordinating the care of this condition. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist. […] Nurses are involved in perioperative care, recovery, and rehabilitation. […] Due to the high local recurrence of chordomas, most physicians recommend lifelong surveillance with magnetic resonance imaging (MRI) with and without gadolinium contrast. […] Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment.

• #6 Chordoma | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/19489

  Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment. […] Nurses are involved in perioperative care, recovery, and rehabilitation. They monitor patient status, educate patients and their families, and update the rest of the team. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist.

• #7 Chordoma: Symptoms & Treatment | Massachusetts General Hospital

  https://www.massgeneral.org/cancer-center/treatments-and-services/sarcoma/chordoma/about

  Our multidisciplinary team provides expert care for patients with chordoma, a slow-growing bone cancer that can occur anywhere along the spine from the base of the skull to the tailbone. […] Because Chordoma develops close to vital structures in the central nervous system, treatment is complex and can be difficult, but the prognosis is not always grim. […] The primary treatment for chordoma is the complete surgical removal of the tumor. […] To ensure the best outcome and prevent the spread of chordoma, the surgeon(s) must remove the chordoma and a margin of normal tissue surrounding it. […] It is vital that an experienced, expert team of surgeons perform the initial operative procedure. […] The multidisciplinary approach continues throughout the patient admission including general surgical oncologists; thoracic surgeons; ear, nose and throat specialists (ENT); and reconstructive surgeons; neurological surgeons; orthopaedic oncology surgeons; radiation oncologists; orthopaedic pathologists; medical oncologists; and clinical nurse specialists; social workers; physical therapists; and occupational therapists working as a disciplined team to achieve the best possible outcome for the individual patient.

• #8 Chordomas | Duke Health

  https://www.dukehealth.org/treatments/chordoma

  A medical oncologist may discuss the potential use of a systemic (whole body) therapy to treat your chordoma. […] Chordomas have about a 30% to 50% chance of recurrence. […] Our nurse coordinators help you navigate your chordoma evaluation and treatment from start to finish. […] Our team of orthopaedic surgical oncologists, skull base tumor experts, spine surgeons, and others work together to design a unique treatment plan, with your best interests in mind. […] This technology allows our surgeons to identify your cancer and operate under the guidance of high-resolution, 3D imaging. […] As a National Cancer Institute-designated Comprehensive Cancer Center, we offer a level of expertise found only in the top cancer centers across the country.

• #9 Chordomas | Duke Health

  https://www.dukehealth.org/treatments/chordoma

  A medical oncologist may discuss the potential use of a systemic (whole body) therapy to treat your chordoma. […] Chordomas have about a 30% to 50% chance of recurrence. […] Our nurse coordinators help you navigate your chordoma evaluation and treatment from start to finish. […] Our team of orthopaedic surgical oncologists, skull base tumor experts, spine surgeons, and others work together to design a unique treatment plan, with your best interests in mind. […] This technology allows our surgeons to identify your cancer and operate under the guidance of high-resolution, 3D imaging. […] As a National Cancer Institute-designated Comprehensive Cancer Center, we offer a level of expertise found only in the top cancer centers across the country.

• #10 Northwestern Medicine Chordoma Center | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center

  Our physicians are internationally recognized for their expertise in diagnosing and treating chordomas. We understand the importance of seamless, coordinated care for patients facing this complex disease. […] Choosing the best tumor surgeon is the most important decision you can make when facing a chordoma because it is one of the few tumors that can seed its cells to surrounding tissues. If the tumor happens to be ruptured during surgery, tumor cells can spill into surrounding areas and grow uncontrolled. The first surgery is your best chance at a cure. […] Your care team at Northwestern Medicine Chordoma Center works closely with specialists at Northwestern Medicine Proton Center, one of the few proton therapy centers in the Midwest and the first one in Illinois. […] Northwestern Medicine Chordoma Center offers comprehensive post-operative care services, including physical and occupational therapy, through Northwestern Medicine Marianjoy Rehabilitation Hospital and the Shirley Ryan AbilityLab, formerly known as Rehabilitation Institute of Chicago (RIC). Your rehabilitation team will work closely with your medical and surgical team to help ensure the best recovery possible.

• #11 Northwestern Medicine Chordoma Center | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center

  Our physicians are internationally recognized for their expertise in diagnosing and treating chordomas. We understand the importance of seamless, coordinated care for patients facing this complex disease. […] Choosing the best tumor surgeon is the most important decision you can make when facing a chordoma because it is one of the few tumors that can seed its cells to surrounding tissues. If the tumor happens to be ruptured during surgery, tumor cells can spill into surrounding areas and grow uncontrolled. The first surgery is your best chance at a cure. […] Your care team at Northwestern Medicine Chordoma Center works closely with specialists at Northwestern Medicine Proton Center, one of the few proton therapy centers in the Midwest and the first one in Illinois. […] Northwestern Medicine Chordoma Center offers comprehensive post-operative care services, including physical and occupational therapy, through Northwestern Medicine Marianjoy Rehabilitation Hospital and the Shirley Ryan AbilityLab, formerly known as Rehabilitation Institute of Chicago (RIC). Your rehabilitation team will work closely with your medical and surgical team to help ensure the best recovery possible.

• #12 Diagnosing and Treating a Chordoma | Neurological Surgery

  https://neurosurgery.weillcornell.org/condition/chordoma/diagnosing-and-treating-chordoma

  A person suspected of having a chordoma will have an initial examination that includes a detailed medical history, blood and urine tests, and a basic neurological examination to check for alertness, coordination, eye movement, muscle strength, and reflexes. […] It is vital that an individual with a chordoma seek care from a highly trained, experienced multidisciplinary team, including neurosurgeons and neuro-oncologists at a major medical center where the physicians have proven skills in diagnosis and treatment. […] Successful treatment demands a medical team with extensive experience since removal and follow-up management of a chordoma is a delicate, complicated matter, and requires special attention to preserve neurological function. […] The usual treatment options are surgery, stereotactic radiotherapy and sometimes chemotherapy. […] The most effective treatment for chordoma is surgery and the goal is to remove most or all of the tumor. […] Close monitoring is important following treatment for chordomas, since they have a high recurrence rate.

• #13 Frequently Asked Questions | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center/chordoma/frequently-asked-questions

  Chordoma is a rare type of cancer that occurs in the bones of the skull base and spine. […] Chordomas are complicated tumors to treat due to the involvement of critical structures such as the brainstem, spinal cord, and important nerves and arteries. […] Because we treat chordomas aggressively, establishing the correct diagnosis before embarking on a treatment plan is critical. […] A biopsy can be percutaneous (a needle through the skin) or open (through surgery). […] The best treatment for a chordoma is to remove it in one piece (en bloc resection) with negative margins. […] One or more surgeries, called stages, may be needed. […] In some cases, if your physician is concerned that a negative margin might be difficult to achieve, pre-operative radiation therapy will be considered.

• #14 Diagnosing and Treating a Chordoma | Neurological Surgery

  https://neurosurgery.weillcornell.org/condition/chordoma/diagnosing-and-treating-chordoma

  A person suspected of having a chordoma will have an initial examination that includes a detailed medical history, blood and urine tests, and a basic neurological examination to check for alertness, coordination, eye movement, muscle strength, and reflexes. […] It is vital that an individual with a chordoma seek care from a highly trained, experienced multidisciplinary team, including neurosurgeons and neuro-oncologists at a major medical center where the physicians have proven skills in diagnosis and treatment. […] Successful treatment demands a medical team with extensive experience since removal and follow-up management of a chordoma is a delicate, complicated matter, and requires special attention to preserve neurological function. […] The usual treatment options are surgery, stereotactic radiotherapy and sometimes chemotherapy. […] The most effective treatment for chordoma is surgery and the goal is to remove most or all of the tumor. […] Close monitoring is important following treatment for chordomas, since they have a high recurrence rate.

• #15 Chordoma Signs & Symptoms | Rush

  https://www.rush.edu/conditions/chordoma

  Surgeons at Rush are recognized leaders in minimally invasive chordoma surgery and will create a personalized plan to reduce pain and speed up recovery. […] Our goal is to treat your chordoma in the least invasive way possible. We are leaders in minimally invasive and innovative technologies and therapies that reduce your length of hospital stay and allow you to return to normal, day-to-day activities faster. […] Because of the risk of chordomas spreading, a successful first surgery is very important to remove as much of the tumor as possible. […] Your surgery is done in conjunction with radiation therapy (a proton beam radiation or radiosurgery). You’ll receive radiation before the surgery to help improve the likelihood that the tumor can be removed in one piece. And, you’ll receive radiation after after surgery to destroy any remaining cancer cells or to slow the growth of tumors that cant be removed with surgery.

• #16 Chordoma – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK430846/

  A chordoma is a low-grade, slow-growing but locally invasive and locally aggressive tumor that is a type of sarcoma. […] This activity describes the clinical evaluation of chordoma and explains the role of the health professional team in coordinating the care of this condition. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist. […] Nurses are involved in perioperative care, recovery, and rehabilitation. […] Due to the high local recurrence of chordomas, most physicians recommend lifelong surveillance with magnetic resonance imaging (MRI) with and without gadolinium contrast. […] Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment.

• #17 Chordomas of the Skull Base | Stanford Health Care

  https://stanfordhealthcare.org/medical-conditions/cancer/chordomas-skull-base.html

  Globally-recognized expertise in the diagnosis and treatment of chordomas of the skull base. […] Comprehensive support services like nutritional and emotional support to help you with your specific symptoms and the challenges of this experience. […] Surgery is often performed jointly with an ear, nose and throat surgeon and neurosurgeon. Surgery involves the use of a high-powered microscope to enable the surgeon to dissect the tumor off of delicate structures such as blood vessels or nerves. An endoscopic endonasal surgical technique is typically used to preserve surrounding tissue. Our goal is to achieve a complete or supra total resection of the tumor to maximize the chances of survival. […] Clinical trials evaluate new approaches, devices, or medications in the treatment of chordomas. Ask your doctor or clinical trials coordinator about available trials that may be additional options for your care.

• #18 Chordoma Causes, Symptoms, and Treatments

  https://www.upmc.com/services/orthopaedics/conditions/chordoma

  Chordomas can be very difficult to treat. The tumors are often enmeshed in the delicate tissues, nerves, and blood vessels of the spinal column. […] Doctors usually treat chordoma with surgery to remove as much of the tumor as possible. It can be difficult to get rid of all the tumor and not harm the essential nerves and blood vessels of the spine. The surgeon must remove the tumor and a portion of healthy tissue around it to make sure the cancer doesn’t spread. […] Radiation alone rarely cures chordoma, but doctors will often use it along with surgery. Because it’s often difficult to remove all the cancer with surgery, high-dose radiation can help kill any remaining cancer cells. […] Your doctor may recommend proton beam therapy, a type of radiotherapy where beams of protons are used instead of beams of x-rays. Proton beam therapy is more targeted than traditional radiation, so it does less damage to the healthy tissues around the tumor. It allows doctors to treat sensitive areas near the spinal cord.

• #19 Chordoma Diagnosis & Treatment – NYC | Columbia Neurosurgery in New York City

  https://www.neurosurgery.columbia.edu/patient-care/conditions/chordoma

  A chordoma is a tumor that develops in the bones of the skull or spine. At the Spine Hospital at the Neurological Institute of New York, we specialize in chordomas of the spine. […] These rare tumors are slow-growing. However, they may invade nearby structures, have a tendency to recur after treatment, and may spread to other parts of the body. […] The goal of chordoma surgery is complete tumor removal. However, the location of these tumors and their involvement with important structures in the body may make complete removal difficult or impossible. […] The neurosurgeons at the Spine Hospital at the Neurological Institute of New York tailor a surgical plan to each individual patient. Complete removal, when possible, may involve combined or multiple surgical procedures or approaches. Spinal fusion and stabilization is often performed following tumor removal. Possible surgical procedures include: anterior cervical corpectomy, thoracic or lumbar corpectomy, sacrectomy.

• #20 Chordoma | Brain Tumor Center | Stanford Medicine

  https://med.stanford.edu/brain-tumor/conditions/chordoma.html

  Chordoma treatment begins with surgery. […] As stated by The Chordoma Foundation: No matter what stage of the disease you are facing [new, recurrent, advanced, metastatic] or where your tumor is located, the way surgery is performed is very important. […] At Stanford, the preferred surgical treatment for most chordomas of the skull base is the Endoscopic Endonasal Approach (EEA). This innovative, minimally invasive technique uses the nose and nasal cavities as natural corridors to access hard-to-reach or previously inoperable tumors. […] The goal of the Stanford Skull Base team is to perform, whenever possible, a supratotal tumor resection, where the entire tumor is removed along with at least 1 millimeter of healthy tissue around the tumor, and at the same time minimize side effects and surgical complications.

• #21 Frequently Asked Questions | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center/chordoma/frequently-asked-questions

  Removal of a chordoma in the spine is called a spondylectomy (or multi-level spondylectomy). […] Because these surgeries are so extensive, surgeons from multiple specialties work together to achieve success. […] It is critical that patients with chordomas get their treatment at centers with specialists who are experienced in treating these tumors. […] Most patients stay one or two nights in the neurosurgery intensive care unit after their tumor has been removed. […] Patients are then transferred to regular care on the neurosurgery unit, where they may stay for up to two weeks. […] Many patients who have had chordomas removed from their spine or sacrum will have their spine stabilized and fused. […] Since these tumors can reoccur sometimes years later we recommend lifelong monitoring for patients.

• #22

  https://link.springer.com/article/10.1007/s12070-019-01746-3

  The primary management of the rare tumor chordoma is always surgical. […] Endoscopic endonasal transphenoidal approach for clival chordoma provides a safe and reliable tumor resection. […] This less invasive surgery can be considered as an alternative to traditional surgical technique with reduced morbidity. […] This approach represents a combination of various endoscopic surgical techniques which are minimally invasive and can be applied to ventral skull base surgery.

• #23 Frequently Asked Questions | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center/chordoma/frequently-asked-questions

  Removal of a chordoma in the spine is called a spondylectomy (or multi-level spondylectomy). […] Because these surgeries are so extensive, surgeons from multiple specialties work together to achieve success. […] It is critical that patients with chordomas get their treatment at centers with specialists who are experienced in treating these tumors. […] Most patients stay one or two nights in the neurosurgery intensive care unit after their tumor has been removed. […] Patients are then transferred to regular care on the neurosurgery unit, where they may stay for up to two weeks. […] Many patients who have had chordomas removed from their spine or sacrum will have their spine stabilized and fused. […] Since these tumors can reoccur sometimes years later we recommend lifelong monitoring for patients.

• #24 Chordoma: Symptoms & Treatment | Massachusetts General Hospital

  https://www.massgeneral.org/cancer-center/treatments-and-services/sarcoma/chordoma/about

  Surgical intervention for the removal and treatment of cervical, thoracic, lumber or sacral chordoma by and large requires a hospital admission of 3-10 days and likely follow-up rehabilitation in a hospital or specialty facility. […] Our support programs can help patients and their families cope with the challenges of a cancer diagnosis.

• #25 Chordoma | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/19489

  Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment. […] Nurses are involved in perioperative care, recovery, and rehabilitation. They monitor patient status, educate patients and their families, and update the rest of the team. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist.

• #26 Improving balance and mobility | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/balance-and-mobility/

  Mobility the ability to move freely and easily in ones environment can be affected by chordoma tumors and their treatments. Patients and survivors with tumors at any location along their spine report experiencing issues that impact their mobility, including balance deficits; loss of function in their arms, hands, legs, and feet; decreased ability to walk; numbness; bone fractures; and even some types of vision issues. […] If your mobility has been affected by chordoma, there are ways to address and manage the issues you’re experiencing. Work with your care team, including the doctors and nurses treating your chordoma, a palliative care specialist, or your primary care doctor to create a plan for managing it. Getting the right care can improve your physical functioning, decrease the length of your hospital stays, reduce your risk of injury due to falls, and improve your overall quality of life.

• #27 Chordoma: Symptoms & Treatment | Massachusetts General Hospital

  https://www.massgeneral.org/cancer-center/treatments-and-services/sarcoma/chordoma/about

  Surgical intervention for the removal and treatment of cervical, thoracic, lumber or sacral chordoma by and large requires a hospital admission of 3-10 days and likely follow-up rehabilitation in a hospital or specialty facility. […] Our support programs can help patients and their families cope with the challenges of a cancer diagnosis.

• #28 Chordoma | Conditions | UCSF Benioff Children’s Hospitals

  https://www.ucsfbenioffchildrens.org/conditions/chordoma

  Chordoma Nursing, Care […] The treatment approach for chordoma depends on the tumor’s size and location as well as whether it has invaded nerves or other tissues. Complete removal of the tumor followed by radiation provides the best long-term outcomes. Some chordomas are challenging to treat, particularly large ones that are difficult to fully remove. […] For most children, the first step is surgery to remove as much of the tumor as possible. This is followed by radiation therapy to destroy remaining cancer cells and reduce the risk of recurrence. […] Chordomas often recur, so children who have been treated for one need to be monitored with periodic MRI scans. They may need additional surgery or radiation. […] Knowing that dealing with chordoma can be a lifelong issue, the expert team at UCSF aims to support not only long-term survival but also quality of life. Our focus is on minimizing the immediate and long-term side effects of chordoma treatment. In addition, UCSF researchers are investigating new ways to treat chordoma, including immunotherapy, a method that uses the patient’s own immune system to fight their cancer. Your child may be eligible to participate in clinical trials of promising treatments for chordoma. Learn more about the process and benefits of participating in a clinical trial.

• #29 Chordoma | Brain Tumor Center | Stanford Medicine

  https://med.stanford.edu/brain-tumor/conditions/chordoma.html

  When the entire tumor is successfully removed with surgery, patients statistically live longer and the tumor is less likely to recur, or grow back. […] Chordomas have a high local recurrence rate, meaning they can come back after successful treatment usually in the same place as the first tumor. […] Even in cases where all visible tumor has been removed, it is still likely that microscopic chordoma cells were left behind during surgery. Therefore, radiation therapy is generally recommended after surgery to prevent any remaining cells from re-growing or spreading to other parts of the body. […] Radiation treatments will typically begin within three to six months after surgery. […] Chemotherapy uses drugs to stop cancer cells from growing. Modern chemotherapy and immunotherapy for chordomas is under investigation at Stanford Cancer Center.

• #30 Chordoma Causes, Symptoms, and Treatments

  https://www.upmc.com/services/orthopaedics/conditions/chordoma

  Chordomas can be very difficult to treat. The tumors are often enmeshed in the delicate tissues, nerves, and blood vessels of the spinal column. […] Doctors usually treat chordoma with surgery to remove as much of the tumor as possible. It can be difficult to get rid of all the tumor and not harm the essential nerves and blood vessels of the spine. The surgeon must remove the tumor and a portion of healthy tissue around it to make sure the cancer doesn’t spread. […] Radiation alone rarely cures chordoma, but doctors will often use it along with surgery. Because it’s often difficult to remove all the cancer with surgery, high-dose radiation can help kill any remaining cancer cells. […] Your doctor may recommend proton beam therapy, a type of radiotherapy where beams of protons are used instead of beams of x-rays. Proton beam therapy is more targeted than traditional radiation, so it does less damage to the healthy tissues around the tumor. It allows doctors to treat sensitive areas near the spinal cord.

• #31 Chordoma in Children | Symptoms, Diagnosis and Treatment

  https://www.cincinnatichildrens.org/health/c/chordoma

  Chordoma treatment requires a multidisciplinary team of doctors and surgeons. Specialists in chordoma care include: […] Chordoma surgery is used to remove chordoma tumors. Surgeons use surgical resection to remove as much of the chordoma tumor as possible. […] After surgery, some patients benefit from radiation therapy. Proton therapy is the best form of radiation therapy after chordoma surgery. Its available at select hospitals and medical centers nationwide, including Cincinnati Childrens. […] Proton therapy is a painless and precise form of radiation therapy. Unlike traditional radiation therapy, proton therapy is given by a very thin beam. Such targeted therapy protects nearby healthy tissue and organs. Protecting nearby tissue and organs reduces treatment side effects and long-term complications. […] The Pituitary and Skull Base Surgery Center can help your child.

• #32 Proton Therapy for Pediatric Chordoma | Mass General Brigham

  https://www.massgeneralbrigham.org/en/about/newsroom/patient-stories/chordoma-proton-therapy

  Resection surgery followed by proton therapy is now the standard of care for treating chordoma. […] According to Dr. MacDonald, Mass General Cancer Center has by far the most experience in treating chordoma with proton therapy. That has a major impact on patient outcomes. […] Chris took a semester off from college to undergo and recover from radiation and proton therapy. […] Chris is now scheduled to see Dr. MacDonald for MRIs every two years. She said that lifelong monitoring is essential. […] Like so many other patients with chordoma, Chris has benefitted from the multidisciplinary care available at Mass General. […] Dr. MacDonald added that the quality of chordoma care at Mass General is enhanced by a bi-monthly multidisciplinary skull base tumor board that reviews cases from around the world. Furthermore, the Stephan L. Harris Center for Chordoma Care brings Mass General Cancer Center’s multidisciplinary expertise to the evaluation, treatment, and support of patients with chordoma.

• #33 Chordoma Causes, Symptoms, and Treatments

  https://www.upmc.com/services/orthopaedics/conditions/chordoma

  Chemotherapy usually isn’t effective against chordomas. The exception is dedifferentiated chordomas, which grow faster than other forms of chordoma and are more sensitive to chemotherapy. […] Your doctor will recommend coming back for MRI scans at regular intervals. You may need to keep having these scans for the rest of your life, to make sure the cancer hasn’t come back.

• #34 Northwestern Medicine Chordoma Center | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center

  Northwestern Medicine physicians are working to develop new treatments for chordoma, including use of 3-D printing for spine reconstruction and other new technologies for the removal of spinal tumors. There are also new chemotherapeutic options for patients through clinical trials, as well as the use of radiation therapy in the form of proton beam, the newest type of stereotactic radiosurgery, available at only a few research centers in the country.

• #35 Signs of effective treatment of rare spine cancer emerge from clinical trial at Providence Saint John’s Health Center’s Cancer Institute Pilot study shows promise in treating chordoma – Saint John’s Cancer Institute

  https://www.saintjohnscancer.org/about-us/news/news/signs-of-effective-treatment-of-rare-spine-cancer-emerge-from-clinical-trial-at-providence-saint-johns-health-centers-cancer-institute-pilot-study-shows-promise-in-treating-chordoma/

  Two of the 14 patients in the study experienced significant tumor shrinkage, seven additional patients experienced minor tumor shrinkage and the majority experienced improvements in their symptoms. […] While no drugs have been approved by the Food and Drug Administration to treat chordoma, pemetrexed appears to be an effective drug in our study. A subset of patients had tremendous clinical benefit, Dr. Kesari said. […] The purpose of the study was to test the safety and tolerability of high doses of pemetrexed in patients with progressive chordoma, monitor any new side effects, understand how the drug might affect the growth of tumor cells, and collect tumor and blood samples for identifying biomarkers of response. […] Treatment was well tolerated without any unexpected side effects.

• #36 Signs of effective treatment of rare spine cancer emerge from clinical trial at Providence Saint John’s Health Center’s Cancer Institute Pilot study shows promise in treating chordoma – Saint John’s Cancer Institute

  https://www.saintjohnscancer.org/about-us/news/news/signs-of-effective-treatment-of-rare-spine-cancer-emerge-from-clinical-trial-at-providence-saint-johns-health-centers-cancer-institute-pilot-study-shows-promise-in-treating-chordoma/

  Two of the 14 patients in the study experienced significant tumor shrinkage, seven additional patients experienced minor tumor shrinkage and the majority experienced improvements in their symptoms. […] While no drugs have been approved by the Food and Drug Administration to treat chordoma, pemetrexed appears to be an effective drug in our study. A subset of patients had tremendous clinical benefit, Dr. Kesari said. […] The purpose of the study was to test the safety and tolerability of high doses of pemetrexed in patients with progressive chordoma, monitor any new side effects, understand how the drug might affect the growth of tumor cells, and collect tumor and blood samples for identifying biomarkers of response. […] Treatment was well tolerated without any unexpected side effects.

• #37 Signs of effective treatment of rare spine cancer emerge from clinical trial at Providence Saint John’s Health Center’s Cancer Institute Pilot study shows promise in treating chordoma – Saint John’s Cancer Institute

  https://www.saintjohnscancer.org/about-us/news/news/signs-of-effective-treatment-of-rare-spine-cancer-emerge-from-clinical-trial-at-providence-saint-johns-health-centers-cancer-institute-pilot-study-shows-promise-in-treating-chordoma/

  Several patients reported remarkable disease-related symptom improvement. […] Given the limitations of available systemic therapy options, this early evidence of activity of pemetrexed is very encouraging and provides opportunities for further development of combinations to improve upon this backbone. […] For chordoma patients like me, the possibility suggested by these preliminary results of having a drug that can control recurrent tumors and improve quality of life for some patients is deeply encouraging.

• #38 Improving balance and mobility | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/balance-and-mobility/

  Rehabilitation is an important part of recovery after surgery, and plays a critical role in regaining lost functions. […] Palliative care is an important part of cancer care. Sometimes called supportive care, it is recommended for all cancer patients from the time of diagnosis, through all stages of treatment, and after treatment is complete. It can address symptoms of the disease itself or side effects of its treatment. […] Chordoma experts recommend that all chordoma patients treatment plans and survivorship care plans include palliative care. No matter what treatment you have for chordoma, palliative care can help address pain, mobility and functional issues, mental and emotional health, nutrition, fatigue, and many other concerns to help you feel well and live fully while managing your chordoma.

• #39 Improving balance and mobility | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/balance-and-mobility/

  The Chordoma Survivorship Survey, completed in 2021, found that chordoma patients and survivors often experience balance or mobility issues during and after treatment. Up to 39% report experiencing balance issues and up to 40% experience loss of mobility in their arms, hands, legs, or feet. […] If you have just had surgery or radiation and are experiencing mobility issues, your chordoma care team can refer you to specialists who can help. These may include a doctor of physical medicine and rehabilitation, occupational therapists, physical therapists, or balance therapists. Many chordoma patients work with these rehabilitation specialists as part of their recovery from surgery, often before being released from the hospital. […] Working with your providers to build a personalized plan for improving your balance, strength, and mobility is the best way to cope with any challenges that may arise.

• #40 Improving balance and mobility | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/balance-and-mobility/

  The Chordoma Survivorship Survey, completed in 2021, found that chordoma patients and survivors often experience balance or mobility issues during and after treatment. Up to 39% report experiencing balance issues and up to 40% experience loss of mobility in their arms, hands, legs, or feet. […] If you have just had surgery or radiation and are experiencing mobility issues, your chordoma care team can refer you to specialists who can help. These may include a doctor of physical medicine and rehabilitation, occupational therapists, physical therapists, or balance therapists. Many chordoma patients work with these rehabilitation specialists as part of their recovery from surgery, often before being released from the hospital. […] Working with your providers to build a personalized plan for improving your balance, strength, and mobility is the best way to cope with any challenges that may arise.

• #41 Northwestern Medicine Chordoma Center | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center

  Our physicians are internationally recognized for their expertise in diagnosing and treating chordomas. We understand the importance of seamless, coordinated care for patients facing this complex disease. […] Choosing the best tumor surgeon is the most important decision you can make when facing a chordoma because it is one of the few tumors that can seed its cells to surrounding tissues. If the tumor happens to be ruptured during surgery, tumor cells can spill into surrounding areas and grow uncontrolled. The first surgery is your best chance at a cure. […] Your care team at Northwestern Medicine Chordoma Center works closely with specialists at Northwestern Medicine Proton Center, one of the few proton therapy centers in the Midwest and the first one in Illinois. […] Northwestern Medicine Chordoma Center offers comprehensive post-operative care services, including physical and occupational therapy, through Northwestern Medicine Marianjoy Rehabilitation Hospital and the Shirley Ryan AbilityLab, formerly known as Rehabilitation Institute of Chicago (RIC). Your rehabilitation team will work closely with your medical and surgical team to help ensure the best recovery possible.

• #42 Improving balance and mobility | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/balance-and-mobility/

  Rehabilitation is an important part of recovery after surgery, and plays a critical role in regaining lost functions. […] Palliative care is an important part of cancer care. Sometimes called supportive care, it is recommended for all cancer patients from the time of diagnosis, through all stages of treatment, and after treatment is complete. It can address symptoms of the disease itself or side effects of its treatment. […] Chordoma experts recommend that all chordoma patients treatment plans and survivorship care plans include palliative care. No matter what treatment you have for chordoma, palliative care can help address pain, mobility and functional issues, mental and emotional health, nutrition, fatigue, and many other concerns to help you feel well and live fully while managing your chordoma.

• #43 Improving balance and mobility | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/balance-and-mobility/

  Rehabilitation is an important part of recovery after surgery, and plays a critical role in regaining lost functions. […] Palliative care is an important part of cancer care. Sometimes called supportive care, it is recommended for all cancer patients from the time of diagnosis, through all stages of treatment, and after treatment is complete. It can address symptoms of the disease itself or side effects of its treatment. […] Chordoma experts recommend that all chordoma patients treatment plans and survivorship care plans include palliative care. No matter what treatment you have for chordoma, palliative care can help address pain, mobility and functional issues, mental and emotional health, nutrition, fatigue, and many other concerns to help you feel well and live fully while managing your chordoma.

• #44 Survivorship care plans | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/survivorship-care-plans/

  After your chordoma treatment ends, your body and mind will still need time to recover. […] A tool that can help you prepare for and answer these questions is a survivorship care plan. […] A survivorship care plan is a detailed, written plan provided after treatment ends that is customized to an individual patients needs. […] Care plans are widely recognized as a critical part of supporting a persons health and well-being after cancer treatment ends. […] Because there is no universal standard for survivorship care planning, the process differs across medical centers and even among individual providers within a center. […] If you are in treatment now, talk with your care team about what to expect after treatment ends. […] If you have finished treatment but dont remember being given a survivorship care plan, talk with your chordoma treatment team and your primary care physician.

• #45 Survivorship care plans | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/survivorship-care-plans/

  A complete record of your chordoma treatment, including diagnostic testing, pathology reports and tumor characteristics, treatment details, and contact information for the center(s) where you were treated as well as your individual doctors. […] A schedule for follow-up exams and imaging to make sure the chordoma has not come back or spread to other parts of the body. […] Guidance about side effects and quality of life challenges you are experiencing, whether these are physical, emotional, cognitive, or social. […] Information on dealing with practical challenges like paying for medical bills, dealing with insurance providers, or going back to work. […] Life after chordoma treatment can bring new challenges, but you dont have to face them alone. […] Our Patient Navigation Service offers personalized survivorship care plans specifically designed for chordoma patients and survivors to provide guidance related to navigating side effects and quality of life changes, coordinating care between doctors, accessing support services, and more.

• #46 Survivorship care plans | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/survivorship-care-plans/

  After your chordoma treatment ends, your body and mind will still need time to recover. […] A tool that can help you prepare for and answer these questions is a survivorship care plan. […] A survivorship care plan is a detailed, written plan provided after treatment ends that is customized to an individual patients needs. […] Care plans are widely recognized as a critical part of supporting a persons health and well-being after cancer treatment ends. […] Because there is no universal standard for survivorship care planning, the process differs across medical centers and even among individual providers within a center. […] If you are in treatment now, talk with your care team about what to expect after treatment ends. […] If you have finished treatment but dont remember being given a survivorship care plan, talk with your chordoma treatment team and your primary care physician.

• #47 Chordoma – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK430846/

  A chordoma is a low-grade, slow-growing but locally invasive and locally aggressive tumor that is a type of sarcoma. […] This activity describes the clinical evaluation of chordoma and explains the role of the health professional team in coordinating the care of this condition. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist. […] Nurses are involved in perioperative care, recovery, and rehabilitation. […] Due to the high local recurrence of chordomas, most physicians recommend lifelong surveillance with magnetic resonance imaging (MRI) with and without gadolinium contrast. […] Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment.

• #48 Chordoma | Brain Tumor Center | Stanford Medicine

  https://med.stanford.edu/brain-tumor/conditions/chordoma.html

  When the entire tumor is successfully removed with surgery, patients statistically live longer and the tumor is less likely to recur, or grow back. […] Chordomas have a high local recurrence rate, meaning they can come back after successful treatment usually in the same place as the first tumor. […] Even in cases where all visible tumor has been removed, it is still likely that microscopic chordoma cells were left behind during surgery. Therefore, radiation therapy is generally recommended after surgery to prevent any remaining cells from re-growing or spreading to other parts of the body. […] Radiation treatments will typically begin within three to six months after surgery. […] Chemotherapy uses drugs to stop cancer cells from growing. Modern chemotherapy and immunotherapy for chordomas is under investigation at Stanford Cancer Center.

• #49 Chordoma | Brain Tumor Center | Stanford Medicine

  https://med.stanford.edu/brain-tumor/conditions/chordoma.html

  When the entire tumor is successfully removed with surgery, patients statistically live longer and the tumor is less likely to recur, or grow back. […] Chordomas have a high local recurrence rate, meaning they can come back after successful treatment usually in the same place as the first tumor. […] Even in cases where all visible tumor has been removed, it is still likely that microscopic chordoma cells were left behind during surgery. Therefore, radiation therapy is generally recommended after surgery to prevent any remaining cells from re-growing or spreading to other parts of the body. […] Radiation treatments will typically begin within three to six months after surgery. […] Chemotherapy uses drugs to stop cancer cells from growing. Modern chemotherapy and immunotherapy for chordomas is under investigation at Stanford Cancer Center.

• #50 Azthena logo with the word Azthena

  https://www.news-medical.net/health/What-is-Chordoma.aspx

  Chordomas can be extremely recurring, aggressive, and locally invasive. They have a high tendency of metastasizing to the lungs, bones, and liver. The mainstay of treatment for these patients is surgical resection. Chemotherapy and radiotherapy are ineffective against these malignancies. […] When possible, surgery is the backbone of treatment for primary and/or recurrent chordoma, and the outcome of surgery is directly tied to the patient’s projected outcome. Surgical procedures vary depending on the location of the tumor, but the goal is to obtain a local excision with clear margins in most cases. In chordoma, cytotoxic chemotherapy, which is still the gold standard for advanced soft tissue and bone sarcomas, is ineffective. Few anecdotal responses to irinotecan, anthracycline, cisplatin, and alkylating drugs have been described, mostly in dedifferentiated chordoma in the pediatric population, however, prospective evidence is scarce.

• #51 Chordoma | Baylor Scott & White Health

  https://www.bswhealth.com/conditions/chordoma

  Your surgeon will attempt to remove the chordoma tumor and possibly the surrounding tissue during surgery. This is generally the primary option for removing chordomas. […] Radiation to reduce the tumor’s size and limit the chances of it metastasizing is also an option. […] Following a successful chordoma surgery, you will generally need an MRI every three months to ensure the tumor does not return. […] We have an entire network of support resources designed just for you across Texas from diagnosis to after you finish cancer treatment. Whether its coordinating your care or connecting you with other survivors, well arm you with support for your fight. […] Connect with a patient navigator to help you every step of the way.

• #52 Frequently Asked Questions | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center/chordoma/frequently-asked-questions

  Removal of a chordoma in the spine is called a spondylectomy (or multi-level spondylectomy). […] Because these surgeries are so extensive, surgeons from multiple specialties work together to achieve success. […] It is critical that patients with chordomas get their treatment at centers with specialists who are experienced in treating these tumors. […] Most patients stay one or two nights in the neurosurgery intensive care unit after their tumor has been removed. […] Patients are then transferred to regular care on the neurosurgery unit, where they may stay for up to two weeks. […] Many patients who have had chordomas removed from their spine or sacrum will have their spine stabilized and fused. […] Since these tumors can reoccur sometimes years later we recommend lifelong monitoring for patients.

• #53 Chordoma | AdventHealth Brain and Spine Institute

  https://institute.adventhealth.com/brain-and-spine/west-florida/chordoma

  Finding out that you have a chordoma tumor can feel overwhelming. But knowing you have an experienced and compassionate team beside you can give you hope and strength for the road ahead. […] Our team is ready to meet you and your family where you are to answer your questions, ease your mind, help you understand your chordoma prognosis and develop a treatment plan thats right for you. […] Chordoma treatment varies. What your doctor recommends will depend on the size and location of the chordoma tumor and your overall health. Chordomas can be especially difficult to treat if theyre on or near the carotid artery, the spinal cord, brain tissue and other nerves. […] For this reason, each patients chordoma treatment plan needs to be personalized. Your doctor may recommend: […] When youre being treated for a chordoma tumor, you need to feel confident in the care youre getting. At the AdventHealth Brain and Spine Institute, were dedicated to using all of our expertise to surround you with compassionate care that works for you.

• #54 Quality of life in chordoma survivors: results from the Chordoma Foundation Survivorship Survey in: Neurosurgical Focus Volume 56 Issue 5 (2024) Journals

  https://thejns.org/focus/view/journals/neurosurg-focus/56/5/article-pE12.xml

  Chordomas are rare malignant bone tumors whose location in the skull base or spine, invasive surgical treatment, and accompanying adjuvant radiotherapy may all lead patients to experience poor quality of life (QOL). Limited research has been conducted on specific demographic and clinical factors associated with decreased QOL in chordoma survivors. Thus, the aim of the present study was to investigate several potential variables and their impact on specific QOL domains in these patients as well the frequencies of specific QOL challenges within these domains. […] The authors findings suggest that younger survivors, female survivors, and survivors currently undergoing treatment for chordoma are at high risk for adverse QOL outcomes. Additionally, although nearly half of the participants reported a FCR, very few reported having adequate emotional/cognitive care. These findings may be useful in identifying specific groups of chordoma survivors vulnerable to QOL challenges and bring to light the need to expand care to meet the QOL needs for these patients. […] Only 41% of the participants reported having their needs met for their physical QOL challenges as well as 25% for emotional/cognitive and 18% for social.

• #55 Chordoma: New Updates and Breakthroughs 2024

  https://oncodaily.com/oncolibrary/cancer-types/76224

  Psychological support is essential, as the journey through cancer treatment can be emotionally taxing. Support groups, counseling, and mental health services can help manage stress, anxiety, and depression. […] Chordoma treatment, which often involves surgery and radiation therapy, can lead to a range of complications and side effects. These can be immediate or develop over time. […] Pain is a common issue for chordoma patients, both during and after treatment. Effective pain management strategies include medications, physical therapy, and, in some cases, nerve blocks. […] Survivorship care focuses on the overall health and well-being of a person who has been through treatment for cancer. This care includes addressing physical, emotional, spiritual, and practical issues that a cancer survivor and their loved ones may face beyond diagnosis and treatment.

• #56 Survivorship care plans | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/survivorship-care-plans/

  A complete record of your chordoma treatment, including diagnostic testing, pathology reports and tumor characteristics, treatment details, and contact information for the center(s) where you were treated as well as your individual doctors. […] A schedule for follow-up exams and imaging to make sure the chordoma has not come back or spread to other parts of the body. […] Guidance about side effects and quality of life challenges you are experiencing, whether these are physical, emotional, cognitive, or social. […] Information on dealing with practical challenges like paying for medical bills, dealing with insurance providers, or going back to work. […] Life after chordoma treatment can bring new challenges, but you dont have to face them alone. […] Our Patient Navigation Service offers personalized survivorship care plans specifically designed for chordoma patients and survivors to provide guidance related to navigating side effects and quality of life changes, coordinating care between doctors, accessing support services, and more.

• #57 Survivorship care plans | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/survivorship-care-plans/

  A complete record of your chordoma treatment, including diagnostic testing, pathology reports and tumor characteristics, treatment details, and contact information for the center(s) where you were treated as well as your individual doctors. […] A schedule for follow-up exams and imaging to make sure the chordoma has not come back or spread to other parts of the body. […] Guidance about side effects and quality of life challenges you are experiencing, whether these are physical, emotional, cognitive, or social. […] Information on dealing with practical challenges like paying for medical bills, dealing with insurance providers, or going back to work. […] Life after chordoma treatment can bring new challenges, but you dont have to face them alone. […] Our Patient Navigation Service offers personalized survivorship care plans specifically designed for chordoma patients and survivors to provide guidance related to navigating side effects and quality of life changes, coordinating care between doctors, accessing support services, and more.

• #58 Spinal Chordoma: A Rare Tumor Requiring Complex Surgical Care | Department of Neurological Surgery

  https://neurosurgery.ucsf.edu/news/spinal-chordoma-rare-tumor-requiring-complex-surgical-care

  With an estimated 300 new cases diagnosed each year in the United States, chordoma is a rare tumor that occurs in the brain or spine. […] However, spinal chordomas also lend themselves to en bloc resection, in which the tumor is extracted in a single piece. […] For spinal chordomas, en bloc resection provides the best prognosis for disease-free survival, said co-author and neurosurgeon Dean Chou, MD. […] To operate on the tumor and remove it piecemeal would impact recurrence and ultimately be detrimental. […] A multidisciplinary surgical team is needed to remove chordomas from the thoracic spine when the tumor is abutting the heart and lungs and invading the spinal canal, said Mummaneni. […] Overall, no matter where in the spine these tumors occur, chordomas require complex and technically demanding surgical approaches.

• #59 Find a doctor – The Chordoma Foundation – EU

  https://chordomafoundation.eu/find-a-doctor/

  Chordoma should be treated by doctors who have substantial experience with this disease. Because chordoma is so rare, many chordoma patients find it necessary to travel to get the best care possible from doctors who have the most experience with chordoma. Chordoma patients are strongly encouraged to get multiple opinions to help them make the most informed treatment decisions. […] Chordoma care varies across European countries. Alongside our Doctor Directory, there are European Reference Networks and national sarcoma networks available to support patients. […] National sarcoma networks exist in several European countries, aiming to coordinate and improve the care for patients with sarcomas, including chordoma. When contacting these centers, please ask about their experience in treating chordoma specifically.

• #60 Find a doctor – The Chordoma Foundation – EU

  https://chordomafoundation.eu/find-a-doctor/

  Chordoma should be treated by doctors who have substantial experience with this disease. Because chordoma is so rare, many chordoma patients find it necessary to travel to get the best care possible from doctors who have the most experience with chordoma. Chordoma patients are strongly encouraged to get multiple opinions to help them make the most informed treatment decisions. […] Chordoma care varies across European countries. Alongside our Doctor Directory, there are European Reference Networks and national sarcoma networks available to support patients. […] National sarcoma networks exist in several European countries, aiming to coordinate and improve the care for patients with sarcomas, including chordoma. When contacting these centers, please ask about their experience in treating chordoma specifically.

• #61 Northwestern Medicine Chordoma Center | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center

  Our physicians are internationally recognized for their expertise in diagnosing and treating chordomas. We understand the importance of seamless, coordinated care for patients facing this complex disease. […] Choosing the best tumor surgeon is the most important decision you can make when facing a chordoma because it is one of the few tumors that can seed its cells to surrounding tissues. If the tumor happens to be ruptured during surgery, tumor cells can spill into surrounding areas and grow uncontrolled. The first surgery is your best chance at a cure. […] Your care team at Northwestern Medicine Chordoma Center works closely with specialists at Northwestern Medicine Proton Center, one of the few proton therapy centers in the Midwest and the first one in Illinois. […] Northwestern Medicine Chordoma Center offers comprehensive post-operative care services, including physical and occupational therapy, through Northwestern Medicine Marianjoy Rehabilitation Hospital and the Shirley Ryan AbilityLab, formerly known as Rehabilitation Institute of Chicago (RIC). Your rehabilitation team will work closely with your medical and surgical team to help ensure the best recovery possible.

• #62 Chordoma | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/19489

  Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment. […] Nurses are involved in perioperative care, recovery, and rehabilitation. They monitor patient status, educate patients and their families, and update the rest of the team. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist.

• #63 Understanding chordoma, a bone tumor in the skull base, sacrum or spine | MD Anderson Cancer Center

  https://www.mdanderson.org/cancerwise/understanding-chordoma-bone-cancer-skull-base-tumor-spine-sacrum.h00-159149190.html

  Chordoma treatment begins with surgery. When the entire tumor is successfully removed with surgery, patients statistically live longer and the tumor is less likely to recur, or grow back. The type of surgery and next treatment steps depend on the location of the tumor. […] Its important to have an experienced neurosurgeon who can realistically explain the potential neurological consequences of the surgery upfront, so you can make an educated decision. […] We work very hard with our patients to help them back to a high a quality of life after surgery. At MD Anderson, radiation therapy is most often used for a spinal chordoma if the tumor recurs or if the tumor is not removed in one piece. […] After surgery, most skull base chordoma patients receive proton therapy. Chordomas require a high radiation dose, and proton therapy provides the most precise, concentrated dose while minimizing disruption to surrounding normal tissue. […] If youre researching treatment options, look for a center with multidisciplinary expertise in treating chordomas. Know that you have reason to be hopeful. This is a new and exciting time for chordoma research, and the future is bright.

• #64 Chordoma | Tampa General Hospital

  https://www.tgh.org/institutes-and-services/conditions/chordoma

  The team in Tampa General Hospitals Neuroscience Institute and Skull Base Surgery Center includes globally acclaimed experts in open skull base surgery, endoscopic endonasal surgery and radiation treatment for skull base chordomas. Our multidisciplinary approach ensures comprehensive care beginning with the initial diagnosis and continuing through surgery and postoperative radiation therapy. […] Surgery is the main form of treatment for chordomas. While the goal is to remove the entire tumor (en bloc resection), this is often not possible for skull base chordomas that are situated near critical structures, such as the brainstem, cranial nerves and spinal cord. Therefore, the neurosurgeon will aim to remove as much of the tumor as is safely possible. […] Although chordomas tend to be resistant to chemotherapy and radiation therapy, these treatments may be performed along with surgery to help prevent a recurrence. […] The compassionate team of chordoma and skull base surgery experts at TGH provides safe, precise and personalized care for our patients.

• #65 Chordoma | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/19489

  Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment. […] Nurses are involved in perioperative care, recovery, and rehabilitation. They monitor patient status, educate patients and their families, and update the rest of the team. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist.

• #66 Improving balance and mobility | Chordoma Foundation

  https://www.chordomafoundation.org/survivorship/balance-and-mobility/

  Rehabilitation is an important part of recovery after surgery, and plays a critical role in regaining lost functions. […] Palliative care is an important part of cancer care. Sometimes called supportive care, it is recommended for all cancer patients from the time of diagnosis, through all stages of treatment, and after treatment is complete. It can address symptoms of the disease itself or side effects of its treatment. […] Chordoma experts recommend that all chordoma patients treatment plans and survivorship care plans include palliative care. No matter what treatment you have for chordoma, palliative care can help address pain, mobility and functional issues, mental and emotional health, nutrition, fatigue, and many other concerns to help you feel well and live fully while managing your chordoma.

• #67 Chordoma: New Updates and Breakthroughs 2024

  https://oncodaily.com/oncolibrary/cancer-types/76224

  Psychological support is essential, as the journey through cancer treatment can be emotionally taxing. Support groups, counseling, and mental health services can help manage stress, anxiety, and depression. […] Chordoma treatment, which often involves surgery and radiation therapy, can lead to a range of complications and side effects. These can be immediate or develop over time. […] Pain is a common issue for chordoma patients, both during and after treatment. Effective pain management strategies include medications, physical therapy, and, in some cases, nerve blocks. […] Survivorship care focuses on the overall health and well-being of a person who has been through treatment for cancer. This care includes addressing physical, emotional, spiritual, and practical issues that a cancer survivor and their loved ones may face beyond diagnosis and treatment.

• #68 Diagnosing and Treating a Chordoma | Neurological Surgery

  https://neurosurgery.weillcornell.org/condition/chordoma/diagnosing-and-treating-chordoma

  A person suspected of having a chordoma will have an initial examination that includes a detailed medical history, blood and urine tests, and a basic neurological examination to check for alertness, coordination, eye movement, muscle strength, and reflexes. […] It is vital that an individual with a chordoma seek care from a highly trained, experienced multidisciplinary team, including neurosurgeons and neuro-oncologists at a major medical center where the physicians have proven skills in diagnosis and treatment. […] Successful treatment demands a medical team with extensive experience since removal and follow-up management of a chordoma is a delicate, complicated matter, and requires special attention to preserve neurological function. […] The usual treatment options are surgery, stereotactic radiotherapy and sometimes chemotherapy. […] The most effective treatment for chordoma is surgery and the goal is to remove most or all of the tumor. […] Close monitoring is important following treatment for chordomas, since they have a high recurrence rate.

• #69 Northwestern Medicine Chordoma Center | Northwestern Medicine

  https://www.nm.org/conditions-and-care-areas/neurosciences/chordoma-center

  Northwestern Medicine physicians are working to develop new treatments for chordoma, including use of 3-D printing for spine reconstruction and other new technologies for the removal of spinal tumors. There are also new chemotherapeutic options for patients through clinical trials, as well as the use of radiation therapy in the form of proton beam, the newest type of stereotactic radiosurgery, available at only a few research centers in the country.

• #70 Chordoma Program | Neurosurgery | Stanford Medicine

  https://med.stanford.edu/neurosurgery/divisions/brain-tumor/Chordoma.html

  At Stanford, our primary goal when performing chordoma surgery is maximal and safe resection of the tumor. Supratotal resection, including margins of normal tissue, is desirable as long as surgical complications are kept to a minimum, but only achievable in selected tumors by very experienced surgeons. Our team has greatly contributed to the development and refinement of endoscopic endonasal surgery for skull base chordomas, describing innovative surgical approaches and techniques that increase the safety and efficacy of chordoma surgery. […] Our chordoma experts are also researchers in the field, using the latest technologies to discover the most effective, less invasive, and more personalized treatment options. Our researchers are devising new approaches to study genomic changes in chordoma, to understand chordoma origins and progression, and to determine which altered genes might be developed into drug targets.

• #71 Chordoma | Conditions | UCSF Benioff Children’s Hospitals

  https://www.ucsfbenioffchildrens.org/conditions/chordoma

  Chordoma Nursing, Care […] The treatment approach for chordoma depends on the tumor’s size and location as well as whether it has invaded nerves or other tissues. Complete removal of the tumor followed by radiation provides the best long-term outcomes. Some chordomas are challenging to treat, particularly large ones that are difficult to fully remove. […] For most children, the first step is surgery to remove as much of the tumor as possible. This is followed by radiation therapy to destroy remaining cancer cells and reduce the risk of recurrence. […] Chordomas often recur, so children who have been treated for one need to be monitored with periodic MRI scans. They may need additional surgery or radiation. […] Knowing that dealing with chordoma can be a lifelong issue, the expert team at UCSF aims to support not only long-term survival but also quality of life. Our focus is on minimizing the immediate and long-term side effects of chordoma treatment. In addition, UCSF researchers are investigating new ways to treat chordoma, including immunotherapy, a method that uses the patient’s own immune system to fight their cancer. Your child may be eligible to participate in clinical trials of promising treatments for chordoma. Learn more about the process and benefits of participating in a clinical trial.

• #72 Chordoma | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/19489

  Chordomas are locally aggressive tumors and wide en bloc resection is the ideal treatment. […] Nurses are involved in perioperative care, recovery, and rehabilitation. They monitor patient status, educate patients and their families, and update the rest of the team. […] The management of chordoma is best done with an interprofessional team that includes an orthopedic surgeon, radiologist, neurologist, and pathologist.

• #73 Chordoma | Tampa General Hospital

  https://www.tgh.org/institutes-and-services/conditions/chordoma

  The team in Tampa General Hospitals Neuroscience Institute and Skull Base Surgery Center includes globally acclaimed experts in open skull base surgery, endoscopic endonasal surgery and radiation treatment for skull base chordomas. Our multidisciplinary approach ensures comprehensive care beginning with the initial diagnosis and continuing through surgery and postoperative radiation therapy. […] Surgery is the main form of treatment for chordomas. While the goal is to remove the entire tumor (en bloc resection), this is often not possible for skull base chordomas that are situated near critical structures, such as the brainstem, cranial nerves and spinal cord. Therefore, the neurosurgeon will aim to remove as much of the tumor as is safely possible. […] Although chordomas tend to be resistant to chemotherapy and radiation therapy, these treatments may be performed along with surgery to help prevent a recurrence. […] The compassionate team of chordoma and skull base surgery experts at TGH provides safe, precise and personalized care for our patients.

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