Materiały źródłowe

• #1 Ewing Sarcoma: Symptoms, Treatment & Prognosis

  https://my.clevelandclinic.org/health/diseases/21752-ewings-sarcoma

  Ewing sarcoma is a group of bone or soft tissue cancers that affects children, teenagers and young adults. […] Symptoms may include bone pain, swelling and fever. […] Chemotherapy is the most common initial treatment. Other treatments may include: Radiation therapy. Surgery following radiation therapy to remove remaining cancer cells. […] Regardless of treatment, people with Ewing sarcoma may want to consider palliative care. Palliative care helps ease symptoms and treatment side effects. Palliative care providers also help people understand treatment options. […] In a way, your child will be living with Ewing sarcoma for the rest of their life. […] You can help your child by: Ensuring they have regular follow-up appointments after treatment. Encouraging them to develop good self-care habits, like having a healthy diet and getting exercise. Encouraging them to avoid activities, like smoking, that increase their risk of developing cancer again.

• #2 Ewing Sarcoma Treatment | St. Jude Care & Treatment

  https://www.stjude.org/care-treatment/treatment/childhood-cancer/solid-tumors/ewing-sarcoma.html

  Ewing sarcoma is a cancerous tumor. It starts in the bone, often the leg, pelvis, ribs, arm, or spine. In about 1/3 of patients with Ewing sarcoma, the cancer has already spread to the lungs, lymph nodes, bones, or bone marrow by the time it is diagnosed. Ewing sarcoma is the second most common type of bone cancer in children. Your child’s care team will likely use several things to treat Ewing sarcoma: Chemotherapy („chemo”) to kill cancer cells or stop them from growing (dividing) and making more cancer cells. Surgery to remove as much of the tumor as possible. Radiation therapy to kill or decrease cancer cells that cannot be removed surgically. St. Jude provides the highest quality of care for patients with Ewing sarcoma: St. Jude researchers identified important drug combinations that target the Ewing sarcoma tumor cells inability to repair DNA. If the tumor cell cannot repair DNA, then it dies. St. Jude has a team of experts who pioneered limb-salvage procedures (surgery) in children with bone tumors, such as Ewing sarcoma. Limb salvage surgeries allow the surgeon to remove the disease in the bone and replace the bone with a prosthesis. This procedure allows the patient to keep the rest of their limb (leg or arm). The nurse-to-patient ratio at St. Jude is unmatched. It is about 1:3 in hematology and oncology and 1:1 in the Intensive Care Unit.

• #3 Ewing Sarcoma – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK559183/

  Ewing sarcoma (ES) is a highly metastatic form of sarcoma that ranks as the second most prevalent primary malignant bone tumor, predominantly afflicting adolescents. […] Timely recognition and treatment are imperative to mitigate Ewing sarcoma-related morbidity and mortality risks. […] By participating in this course, healthcare professionals will enhance their competence in Ewing sarcoma’s early recognition, diagnosis, and management. […] The course enriches clinical knowledge and emphasizes the importance of effective communication and coordination among diverse healthcare professionals, ultimately contributing to a more competent and well-coordinated care team in Ewing sarcoma. […] The standard of care for patients with or without metastasis includes interprofessional treatment with chemotherapy and local therapy, including surgery and radiotherapy.

• #4 Nursing Care Plan For Ewing Sarcoma – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-ewing-sarcoma/

  Ewing sarcoma is a rare and aggressive form of bone cancer that primarily affects children and young adults. Providing comprehensive nursing care to patients with Ewing sarcoma is crucial in addressing their unique medical and psychosocial needs. This nursing care plan outlines the approach to caring for individuals diagnosed with Ewing sarcoma, focusing on assessment, intervention, and ongoing support. […] Nurses play a pivotal role in coordinating care, managing symptoms, and supporting patients and their families throughout the treatment journey. […] By adhering to the principles outlined in this care plan, nurses can optimize patient outcomes, minimize complications, and improve the quality of life for those affected by Ewing sarcoma. Effective care requires not only clinical expertise but also empathy, communication, and patient advocacy. The nursing care plan serves as a roadmap for providing the best possible care to individuals diagnosed with Ewing sarcoma and supporting them on their journey toward recovery and remission.

• #5 Ewing Sarcoma – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK559183/

  Symptoms of bone pain, joint pain, or palpable mass warrant assessment. […] A comprehensive physical examination is critical. […] Ewing sarcoma is managed best with an interprofessional team approach. […] Optimal treatment of childhood cancer requires a high level of suspicion by the primary clinicians and early referral to the pediatric oncologist. […] Early detection and treatment may reduce disease-related morbidity and complications.

• #6 Ewing sarcoma | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/ewing-sarcoma

  Ewing sarcoma is the second most common malignant (cancerous) bone tumor affecting children, adolescents and young adults, but it is still a rare disorder. […] Ewing sarcoma is a cancer, which means it can spread to other organs or tissues in the body, most commonly starting with the lungs, bone or bone marrow. […] The symptoms of Ewing sarcoma depend on the size and location of the tumor, as well as your child’s age and general health. Indications may include: Pain, stiffness or tenderness at the site of the tumor. […] If your child has been referred to an orthopedic or oncology specialist, your child’s diagnostic evaluation begins with a thorough medical history and physical examination. […] There are many treatment options available for bone and soft tissue tumors, and some children will need a combination of these therapies.

• #6 Ewing sarcoma | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/ewing-sarcoma

  In addition to treatment of the primary tumor, treatment for Ewing sarcoma always involves chemotherapy to target cancer cells that may have already spread but have not yet been detected. […] Surgery for Ewing sarcoma has two goals: To remove the tumor and to restore function at the site of the tumor. […] Most children with Ewing sarcoma of an extremity (arm or leg) can be treated with limb-sparing (also known as limb-salvage) and reconstructive surgery. […] Though surgery for malignant tumors is highly effective, we understand that any surgery can be a stressful experience for children and families. […] Regular monitoring by trained clinicians is strongly encouraged to check for possible recurrence of the growth and manage any side effects of treatment. […] CHOP has an excellent track record of improving the quality of life for children diagnosed with Ewing sarcoma. […] As with any cancer, prognosis and long-term survival can vary greatly from child to child, however.

• #7 Complex Multidisciplinary Care of an AYA With Ewing Sarcoma

  https://www.oncnursingnews.com/view/complex-multidisciplinary-care-of-an-aya-with-ewing-sarcoma

  Ewing sarcoma is a highly aggressive bone and soft tissue cancer that is the second most common primary bone tumor for patients younger than 18 years. […] Sarcoma, a specialty disease, requires multidisciplinary expertise to ensure the best outcome and to provide an aggressive, tailored treatment plan with a multimodality therapy consisting of chemotherapy, surgery, and radiation. […] Chemotherapy is highly toxic, with potential for significant complications such as cardiotoxicity, neutropenic fever, hemorrhagic cystitis, nephrotoxicity, infertility, and sepsis. In such a situation, multidisciplinary care involving not only multispecialty physician care but also all multilevel care, including nurses, social workers, and APPs, is critical to survival outcomes. Identifying potential complications for early intervention and optimally maintaining the well-being of patients is crucial to positive patient outcomes and quality of life.

• #8 Localized Ewing’s Sarcoma – Virginia Cancer Institute

  https://www.vacancer.com/cancer/sarcoma/ewings-sarcoma-overview/localized-ewings-sarcoma/

  Localized Ewing’s sarcoma affects only the bone in which it developed and the tissues next to the bone, such as muscle and tendon. There is no detectable spread of the cancer to other areas of the body as detected by computed tomography (CT) or magnetic resonance imaging (MRI) scans. […] The multi-modality approach to treatment for Ewing’s sarcoma requires that patients be treated by a multi-disciplinary team consisting of the primary care physician, an orthopedic surgeon experienced in bone tumors, a pathologist, radiation oncologists, pediatric oncologists, rehabilitation specialists, pediatric nurse specialists, social workers, and others. An experienced team is best found in specialty cancer centers that treat many patients with Ewing’s sarcoma. Engaging a multidisciplinary team at one of these centers helps ensure that the patient receives treatment, supportive care, and rehabilitation that will achieve optimal survival and quality of life.

• #9 Ewing Sarcoma | Orthopedic Surgery | Patient Care | Montefiore Einstein

  https://montefioreeinstein.org/patient-care/services/orthopedics/specialties/orthopedic-oncology/ewing-sarcoma

  Ewing sarcoma requires a comprehensive team approach, including the multidisciplinary expertise of orthopedic oncologists, pediatric oncologists, medical oncologists, radiation oncologists, musculoskeletal radiologists, bone and soft tissue pathologists, nuclear medicine specialists, surgical oncologists and plastic and reconstructive surgeons, among others. […] Treatment includes both systemic chemotherapy and controlling the site of the tumor using surgery and/or radiation. After a few months of chemotherapy, the tumor is removed surgically or with radiation. Thereafter, additional chemotherapy is administered. Treatment generally spans nine to 10 months. […] Patients treated for Ewing sarcoma require close monitoring for a period of five years. This includes physical examinations and periodic imaging studies. Many patients continue to follow up even after five years, though at a reduced frequency.

• #10 Ewing sarcoma – Care at Mayo Clinic – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/ewing-sarcoma/care-at-mayo-clinic/mac-20351074

  Mayo Clinic experts are known for the highest quality expertise and resources to meet the needs of children and adults with Ewing sarcoma. Our experienced sarcoma teams care for hundreds of people each year who have various types of sarcoma. […] Mayo Clinic’s pediatric specialists come together as a team to create a customized treatment plan for your child. Pediatric oncologists work with multiple medical and surgical specialists, including but not limited to orthopedic surgeons, pediatric surgeons, pediatric radiation oncologists, radiologists and pediatric rehabilitation specialists. The care team also includes pediatric nurses, child life specialists, social workers and others as needed. […] If you are an adult with Ewing sarcoma, Mayo Clinic’s experienced team of experts who treat adults will customize care to your specific needs.

• #11 Complex Multidisciplinary Care of an AYA With Ewing Sarcoma

  https://www.oncnursingnews.com/view/complex-multidisciplinary-care-of-an-aya-with-ewing-sarcoma

  This case report highlights the importance of multidisciplinary management in providing complex oncology care in AYAs with Ewing sarcoma. […] Throughout the patients treatment, he had immense social support from his family and our AYA social worker, along with emotional encouragement from the whole care team. As the primary oncology APP, there is a high level of responsibility in focusing on direct patient care with adverse effect management, patient care coordination, and emotional support. […] Oncology APPs not only provide direct patient care, but they also play a vital role in communicating with patients and their families. […] Throughout this patients care, additional specialty APPs were also directly involved in overseeing his chemotherapy and any complications. To this day, providing reassurance and encouragement throughout this patients journey, even during surveillance, has been paramount in his overall well-being and mental health.

• #12 Nursing Care Plan (NCP) for Bone Cancer (Osteosarcoma, Chondrosarcoma, and Ewing Sarcoma) | Free NURSING.com Courses

  https://nursing.com/lesson/nursing-care-plan-ncp-for-bone-cancer-osteosarcoma-chondrosarcoma-and-ewing-sarcoma

  To equip nurses with a detailed understanding and effective strategies for managing patients with bone cancer, specifically Osteosarcoma, Chondrosarcoma, and Ewing Sarcoma. This plan emphasizes understanding the distinct characteristics of each type, recognizing symptoms, and implementing comprehensive nursing interventions for symptom management, complication prevention, and psychological support. […] Ewing Sarcoma: Affects children and adolescents, and its believed to arise from nerve tissue within bones, commonly occurring in the pelvis, legs, and arms. […] Pain Management: Administer prescribed analgesics and monitor effectiveness. Employ non-pharmacological pain management techniques. […] Emotional Support: Provide psychological support and refer to counseling if needed. […] Patient and Family Education: Educate about disease process, treatment regimen, and self-care practices.

• #13 Nursing Care Plan For Ewing Sarcoma – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-ewing-sarcoma/

  This nursing assessment serves as the foundation for developing a personalized care plan for individuals with Ewing sarcoma. It helps in tailoring interventions to manage symptoms, prevent complications, and provide the best possible care. Regular reassessment is essential to monitor progress, adapt the care plan as needed, and optimize the patients outcomes. Additionally, emotional support and open communication are critical for patients and their families facing the challenges of Ewing sarcoma. […] Effective nursing care for individuals with Ewing sarcoma involves a comprehensive and patient-centered approach. […] These nursing interventions aim to provide comprehensive care for individuals with Ewing sarcoma, addressing their medical, emotional, and psychosocial needs throughout the treatment and survivorship phases. Individualized care plans should be developed to cater to the specific circumstances and requirements of each patient, with the goal of enhancing their overall health and quality of life. […] The care plan highlights the significance of a tailored, multidisciplinary approach that addresses the unique needs and challenges of patients on their journey to survivorship.

• #14 Ewing sarcoma – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/ewing-sarcoma/diagnosis-treatment/drc-20351072

  Our caring team of Mayo Clinic experts can help you with your Ewing sarcoma-related health concerns […] Ewing sarcoma care at Mayo Clinic […] Ewing sarcoma treatment most often includes chemotherapy and surgery. […] After surgery or radiation therapy, chemotherapy treatments might be used to kill any cancer cells that might remain. […] Surgery for Ewing sarcoma might mean removing a small portion of bone and some surrounding tissue. […] Radiation therapy might be suggested after surgery to kill cancer cells that remain. […] For advanced Ewing sarcoma, radiation therapy can slow the growth of the cancer and help relieve pain. […] Targeted therapy for cancer is a treatment that uses medicines that attack specific ways that cancer cells can grow. […] Ewing sarcoma typically needs to be treated by a team of specialists, which may include orthopedic surgeons who specialize in operating on cancers that affect the bones, called orthopedic oncologists. […] Ask your healthcare team for options for professional mental health support for you and your child.

• #15 Childhood Ewing Sarcoma | Dana-Farber Cancer Institute

  https://www.dana-farber.org/cancer-care/types/childhood-ewing-sarcoma

  At Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, the pediatric cancer doctors and orthopedic surgeons in our Bone and Soft Tissue Tumors Program have extensive experience treating children with Ewing sarcoma. Our goal is to help your child achieve the best outcome and remain active and healthy. […] We typically treat children with Ewing sarcoma with two approaches: local control and systemic therapy. Local control involves treating the tumor itself, usually through surgery, radiation, or both. Systemic therapy treats any tumor cells throughout the body, generally through chemotherapy. Ewing sarcoma can usually only be cured by using local control together with systemic therapy. […] Your child’s treatment may include (alone or in combination): Chemotherapy: Ewing sarcoma treatment almost always begins with chemotherapy, aiming to destroy or shrink cancer cells and prevent them from spreading. Most children with Ewing sarcoma respond very well to chemotherapy.

• #16 Ewing Sarcoma – Together by St. Jude™

  https://together.stjude.org/en-us/conditions/cancers/ewing-sarcoma.html

  Ewing sarcoma is usually treated with chemotherapy, surgery and/or radiation. Patients can have treatment that has already been studied in clinical trials. Or they may get treatment that is being studied at the time of diagnosis. […] Ewing sarcoma is usually treated with chemotherapy followed by surgery and more chemotherapy. Radiation therapy may be used in place of surgery or added to the treatment. […] Ewing sarcoma has 3 main treatment goals: Shrink the primary tumor (the first tumor) and kill any other cancer cells in the body, Remove the primary tumor, Treat any remaining cancer to reduce risk that the cancer will return. […] Chemotherapy is usually the first treatment for Ewing sarcoma. These medicines kill cancer cells or stop them from growing and making new cancer cells. The chemotherapy used includes a combination of medicines to treat the cancer.

• #17 Childhood Ewing Sarcoma | Dana-Farber Cancer Institute

  https://www.dana-farber.org/cancer-care/types/childhood-ewing-sarcoma

  Local control of Ewing sarcoma is achieved with surgery or radiation therapy. We may perform surgery after the first 12 weeks of chemotherapy to remove any remaining tumor parts. […] Children with Ewing sarcoma occurring in a location where surgical removal would lead to unacceptable side effects will receive radiation therapy instead of surgery. Some children need both surgery and radiation therapy. We use radiation to shrink the tumor or to destroy it completely. Ewing sarcoma is very sensitive to radiation therapy. […] Our solid tumor treatment team includes experts in childhood cancer and pediatric orthopedic surgery. We work collaboratively to determine the best treatment plan for your child’s unique needs.

• #18 Ewing Sarcoma Causes, Symptoms, and Treatments

  https://www.upmc.com/services/orthopaedics/conditions/ewings-sarcoma

  Doctors administer chemotherapy for Ewing sarcoma in a series of cycles. There’s a rest period between cycles of chemotherapy to allow your childs body to recover from the treatment. […] Doctors may use radiation therapy with or instead of surgery. They may combine radiation with chemotherapy before, during, or after surgery for Ewings sarcoma. […] Doctors use surgery, if possible, to remove Ewing’s tumors. They also remove some healthy surrounding tissue to keep the cancer from growing. […] Physical therapy and rehabilitation are necessary after Ewing’s tumor surgery.

• #19 Ewing Sarcoma in Children – UChicago Medicine

  https://www.uchicagomedicine.org/comer/conditions-services/pediatric-cancer/pediatric-sarcomas/ewing-sarcoma

  Radiation is often given to sites where the Ewing sarcoma is visible. In situations where surgery cannot be used, radiation treatments can effectively control the tumor and prevent the cancer from growing. […] Chemotherapy for Ewing sarcoma is usually given in cycles, with each cycle covering a period of two to five days in the hospital. […] Your treatment team will do everything they can to reduce or prevent side effects of treatment. […] The prognosis for survival varies depending on the stage of the tumor when it is detected and treated and other factors.

• #20 Localized Ewing’s Sarcoma

  https://www.texasoncology.com/types-of-cancer/sarcoma/ewings-sarcoma/localized-ewings-sarcoma

  Ewings sarcoma is generally responsive to chemotherapy, and its possible that high-risk patients will benefit from increased doses of chemotherapy. […] Neupogen (filgrastim) and Neulasta (pegfilgrastim) have been used to shorten the duration of severe neutropenia and to decrease the incidence of febrile neutropenia in patients with Ewings sarcoma receiving chemotherapy. […] Ewings sarcoma is a radiosensitive cancer and many of the more modern radiation therapy techniques may improve outcomes. […] New drugs are being developed which target enzyme pathways necessary for cancer survival.

• #21 Localized Ewing’s Sarcoma – Virginia Cancer Institute

  https://www.vacancer.com/cancer/sarcoma/ewings-sarcoma-overview/localized-ewings-sarcoma/

  Supportive Care: Neupogen® (filgrastim) and Neulasta® (pegfilgrastim) have been used to shorten the duration of severe neutropenia and to decrease the incidence of febrile neutropenia in patients with Ewing’s sarcoma receiving chemotherapy. […] Ewing’s sarcoma is a radiosensitive cancer and many of the more modern radiation therapy techniques may improve outcomes.

• #22 Surgery for Ewing Tumors | American Cancer Society

  https://www.cancer.org/cancer/types/ewing-tumor/treating/surgery.html

  Surgery is an important part of treatment for most Ewing tumors (Ewing sarcomas). Surgery is usually done for two reasons: […] The main goal of surgery is to remove all of the cancer. If even a small amount of cancer is left behind, it might continue to grow to make a new tumor, and might even spread to other parts of the body. […] Physical therapy and rehabilitation are very important for patients who have had surgery for Ewing tumors. Following the recommended rehab program offers the best chance for good long-term limb function. […] Even when only the tumor and part of the bone is removed in a limb-sparing operation, the situation can still be complicated, especially in growing children. […] If a limb is amputated, the patient must learn to adjust to new ways of doing some things, often with the use of a prosthetic limb. […] Both limb-sparing surgery and amputation can have pros and cons. For example, limb-sparing surgery, although often preferred by patients over amputation, tends to lead to more complications because of its complexity.

• #23 Ewing Sarcoma | Boston Children’s Hospital

  https://www.childrenshospital.org/conditions/ewing-sarcoma

  Ewing sarcoma is a kind of cancer that grows in bones or soft tissues. […] Most of the time, there are two components in treating children with newly diagnosed Ewing sarcoma: local control, which involves treating the tumor itself, usually through surgery, radiation, or both; and systemic therapy, which treats any tumor cells throughout the body, usually through chemotherapy. […] Local control of Ewing sarcoma is achieved with surgery and/or radiation therapy. Surgery may be performed after the first 12 weeks of chemotherapy to remove any parts of the tumor that remain. […] Limb-salvage surgery helps preserve the limb by removing the tumor and wide margins of healthy tissue surrounding the tumor. […] Amputation may be necessary if the tumor cannot be completely removed (for example, if it involves the nerves and blood vessels) or if limb function cannot be preserved through limb-salvage surgery.

• #24 Pediatric Ewing’s Sarcoma | Children’s Hospital Colorado

  https://www.childrenscolorado.org/conditions-and-advice/conditions-and-symptoms/conditions/ewings-sarcoma/

  The Ewing’s sarcoma tumor may be surgically removed. The kind of surgery that your child will have depends on the size of the tumor and where the tumor is located. Surgical options may include: Limb-sparing surgery: This type of surgery removes the tumor, bone and tissues surrounding it that contain cancer cells, while leaving the surrounding muscles, nerves and blood vessels. A bone graft or metal implant will replace the bone and soft tissues that have been removed, thereby preserving the patients extremity (arm, leg, etc). […] Sometimes the tumor has to be taken out with removal of the affected limb. This may be done because the tumor is too large to treat with limb-sparing surgery, or the tumor has a high risk of recurring. Children are typically very good at using and adapting to an artificial limb (prosthetics). With the help of the experts at our Amputee Program, many kids and young adults with artificial limbs are quite active and participate in sports.

• #25 Localized Ewing’s Sarcoma

  https://www.texasoncology.com/types-of-cancer/sarcoma/ewings-sarcoma/localized-ewings-sarcoma

  Even with the advent of chemotherapy as systemic treatment and radiation as local treatment, surgery is still an important component of treatment for Ewings sarcoma. […] Radiation Therapy is used to prevent local recurrences following complete or incomplete surgery. […] The main improvement in the treatment of localized Ewings sarcoma over the past 30 years has been the advent of combination chemotherapy. […] The most common approach for the treatment of localized Ewings sarcoma is to remove as much tumor as possible surgically, deliver local radiation to eradicate microscopic tumor not removed by surgery and to administer systemic combination chemotherapy to eradicate micrometastases. […] Patients with Ewings sarcoma who have inoperable tumors or tumors in sites not suitable for surgery are generally treated with radiation therapy and chemotherapy.

• #26 Nursing Care Plan (NCP) for Bone Cancer (Osteosarcoma, Chondrosarcoma, and Ewing Sarcoma) | Free NURSING.com Courses

  https://nursing.com/lesson/nursing-care-plan-ncp-for-bone-cancer-osteosarcoma-chondrosarcoma-and-ewing-sarcoma

  This care plan aims to provide a comprehensive approach to managing bone cancers like Osteosarcoma, Chondrosarcoma, and Ewing Sarcoma, focusing on pain relief, maintaining mobility, nutritional support, and providing emotional and educational support. Tailoring interventions to individual patient needs and the specific type of bone cancer is essential for effective management and improved outcomes.

• #27 Ewing Sarcoma and Palliative Care | Quality of Life | Get Palliative Care

  https://getpalliativecare.org/a-quality-life-pauls-ewing-sarcoma-and-palliative-care-story/

  Sensing that Paul could benefit from better pain management and support for his emotional well-being, Pauls oncology team referred him to palliative care. […] Palliative care (pronounced pal-lee-uh-tiv) is specialized medical care for people living with a serious illness. This type of care is focused on providing relief from the symptoms and stress of serious illness. The goal is to improve quality of life for both the patient and the family. Palliative care is provided by a specially-trained team of doctors, nurses and other specialists who work together with a patients other doctors to provide an extra layer of support. It is appropriate at any age and at any stage in a serious illness, and it can be provided along with curative treatment. […] In order to get Paul more active again, Dr. Razzak and his palliative care team reviewed Pauls pain medications and made adjustments to find the right combination and doses to help Paul feel better with fewer side effects.

• #28 Ewing Sarcoma and Palliative Care | Quality of Life | Get Palliative Care

  https://getpalliativecare.org/a-quality-life-pauls-ewing-sarcoma-and-palliative-care-story/

  The pain management process continues today, but in over two years with the palliative care team, Paul has seen results. […] Paul also connects with other specialists on the palliative care team, including a social worker for emotional support and a pharmacist when he has questions about medication.

• #29 Pediatric Ewing Sarcoma – Conditions and Treatments | Children’s National Hospital

  https://www.childrensnational.org/get-care/health-library/ewing-sarcoma

  Ewing sarcoma is treated with chemotherapy followed by surgery and/or radiation therapy. High-dose chemotherapy and stem cell transplant may be used in some children. […] Continuous follow-up care during and after treatment is necessary. […] A child with a Ewing sarcoma needs ongoing care. Your child will be seen by oncologists and other healthcare providers to treat any late effects of treatment and to watch for signs or symptoms of the tumor returning. Your child will be checked with imaging tests and other tests. And your child may see other healthcare providers for problems from the tumor or from treatment. Your child may need therapy to help with movement and muscle strength. This may be done by physical and occupational therapists. […] You can help your child manage his or her treatment in many ways. For example: Your child may have trouble eating. A dietitian may be able to help. Your child may be very tired. He or she will need to balance rest and activity. Encourage your child to get some exercise. This is good for overall health. And it may help to lessen tiredness. Get emotional support for your child. Find a counselor or child support group can help. Make sure your child attends all follow-up appointments. […] Ongoing follow-up care during and after treatment is needed.

• #30 Complex Multidisciplinary Care of an AYA With Ewing Sarcoma

  https://www.oncnursingnews.com/view/complex-multidisciplinary-care-of-an-aya-with-ewing-sarcoma

  Taking into account the psychological impacts of the treatment, these patients require ongoing encouragement and support well beyond their initial treatment that extends into their survivorship. […] APPs particularly play a multifaceted role in providing direct medical care, as well as essential emotional support and advocacy for patients and their families. Multidisciplinary care can lead to successful management and positive outcomes, even in the face of such a complex and aggressive oncologic diagnosis.

• #31 Ewing sarcoma | EBSCO Research Starters

  https://www.ebsco.com/research-starters/health-and-medicine/ewing-sarcoma

  Other types of treatment may include rehabilitation, including occupational or physical therapy. Patients may also need supportive care to help with the side effects of chemotherapy, radiation, or surgery. Some patients may benefit from blood stem cells or bone marrow transplants. […] Diagnosis of Ewing sarcoma usually occurs during the teenage years, sometimes an already turbulent period. Surgery may cause disfigurement during a period of life when looks are very important. Support groups in which teens meet other people with this condition may be especially helpful in dealing with the psychological trauma that this disease can cause. […] Generally, patients with Ewing sarcoma benefit from treatment at a childrens hospital or medical center with doctors who have experience treating pediatric cancers.

• #32 Surgical Procedures: Surgery and Staging for Ewing Sarcoma | OncoLink

  https://www.oncolink.org/cancers/sarcomas/sarcoma-ewing/surgery-for-ewing-sarcoma

  Surgery is often used to treat Ewing sarcoma. The surgery you have depends on many things, such as the size and location of the tumor, your age, and more. […] Your healthcare team will talk with you about your plan of care after surgery. They will teach you about any medications you may be prescribed, such as those for blood clot, constipation and infection prevention, pain management, nausea management, and any others. […] You may need a family member or friend to help you with your daily tasks until you are feeling better. It may take some time before your team tells you that it is okay to go back to your normal activity. […] Be sure to take your prescribed medications as directed to prevent pain, infection, and/or constipation. Call your team with any new or worsening symptoms. […] Taking deep breaths and resting can help manage pain, keep your lungs healthy after anesthesia, and promote good drainage of lymphatic fluid. Try to do deep breathing and relaxation exercises a few times a day in the first week, or when you notice you are extra tense.

• #33 Ewing Sarcoma – Together by St. Jude™

  https://together.stjude.org/en-us/conditions/cancers/ewing-sarcoma.html

  Surgery is used to remove the primary tumor when possible. The surgeon also removes a small amount of tissue around the tumor to make sure that no cancer cells are left behind. […] Radiation therapy may be used to treat Ewing sarcoma along with chemotherapy and surgery. […] Balancing quality of life with cancer-directed therapy is important. Talk to your care team about problems to expect and how to help manage them. Palliative care can help families manage symptoms, promote quality of life, and make informed decisions. […] Your child should have an annual exam to check muscle and bone function. It is important to make sure there are no ongoing problems. […] Children treated for Ewing sarcoma are at risk side effects related to therapy. Your child needs to have regular physical checkups and screenings. Living a healthy lifestyle with healthy eating habits can help, too. […] Your child’s care team should give you a survivorship care plan after treatment ends. This report will include needed screening tests and tips for a healthy lifestyle.

• #34 Ewing Sarcoma: Symptoms, Treatment & Prognosis

  https://my.clevelandclinic.org/health/diseases/21752-ewings-sarcoma

  Ewing sarcoma can come back. Once your child completes treatment, theyll continue to see their provider for follow-up tests, including X-rays, CT scans and bone scans so their provider can detect any recurring cancer as soon as possible. […] A cancer diagnosis is tough at any age. But it can be especially hard when its Ewing sarcoma, which typically affects children and teenagers. If your child has this condition, please remember chemotherapy and other treatments have helped other children live longer cancer-free.

• #35 Treatments for childhood Ewing sarcoma of the bone | Canadian Cancer Society

  https://cancer.ca/en/cancer-information/cancer-types/bone-childhood/treatment/ewing-sarcoma

  Surgery may be used to remove tumours that recur in the lungs. If radiation therapy was not used before to treat the lungs, it may be given after surgery if needed. […] Follow-up after treatment is an important part of cancer care. Children will need to have regular follow-up visits, especially in the first 10 years after treatment has finished. These visits allow the healthcare team to monitor your child’s progress and recovery from treatment and to watch for recurrence.

• #36 Ewing sarcoma | EBSCO Research Starters

  https://www.ebsco.com/research-starters/health-and-medicine/ewing-sarcoma

  People who have had Ewing sarcoma need continual follow-up care. Even if the cancer is treated and its spread stopped, it often develops again in the place where it first arose and tends to spread throughout the body. Health issues may develop later due to treatment. These issues may involve heart and lung problems, slowed or decreased growth and development, and problems with sexual development. Monitoring is essential for patients who have this disease.

• #37 Ewing Sarcoma | Boston Children’s Hospital

  https://www.childrenshospital.org/conditions/ewing-sarcoma

  Rotationplasty is a partial amputation that preserves a cancer-free lower leg, attaches it to the thighbone, and uses the ankle as a knee joint especially useful in very young children where limb length can be an issue. […] Our integrated pediatric oncology service offers in one specialized program the combined expertise of a leading cancer center and a world-renowned children’s hospital. […] We provide the full set of options that can be used to treat bone and soft tissue tumors, and our specialists can help you determine which option is best for your child. […] Our pediatric oncologists have access to, and even lead, the most innovative clinical trials for Ewing sarcoma. […] Through the David B. Perini Jr. Quality of Life Clinic, our cancer survivorship clinic, childhood cancer survivors receive a comprehensive follow-up evaluation from their cancer care team. […] Because Ewing sarcoma does have a tendency to recur later in life even as many as 10 years after treatment long-term follow-up care is essential.

• #38 Ewing’s sarcoma | The Royal Marsden

  https://www.royalmarsden.nhs.uk/your-care/cancer-types/ewings-sarcoma

  Having and being treated for Ewings sarcoma can cause fatigue. You will also need to have regular checkups after treatment is finished. […] Do talk about how you are feeling with your consultant or clinical nurse specialist. They will be able to suggest ways of conserving your energy or may be able to treat the causes of your tiredness, such as not being able to sleep or anaemia. […] After your treatment is finished you will continue to be monitored with regular checkups, scans and blood tests. If you notice new symptoms or have any concerns about your health between appointments, please contact your hospital.

• #39 Ewing Sarcoma | Mays Cancer Center

  https://cancer.uthscsa.edu/cancer-care/types-and-treatments/ewing-sarcoma

  Children and adolescents with Ewing sarcoma usually receive a combination of chemotherapy, surgery and radiation therapy. […] Our team includes several experts in sarcoma cancer care. […] You’ll work with pediatric oncologists, orthopedic oncologists and radiation oncologists. […] Children with Ewing sarcoma receive chemotherapy at University Hospital, where a dedicated inpatient unit tailors care to the needs of teen and young adults. […] Our orthopedic surgeons perform intricate procedures to remove Ewing sarcoma tumors. […] Rehabilitative doctors use physical therapy and other supportive approaches. […] Our center offers some of today’s most advanced radiation therapies to treat cancer in sophisticated ways. […] Your child’s care doesn’t end with successful treatment. […] A dedicated team (including pediatric and orthopedic oncologists, a psychologist and social workers) follows pediatric bone tumor survivors after treatment ends. […] Our pediatric orthopedic oncology survivorship team and childhood cancer survivorship program help pediatric cancer survivors stay healthy as they grow up.

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