Materiały źródłowe

• #1 Practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care

  https://pmc.ncbi.nlm.nih.gov/articles/PMC10326633/

  This serves as a white paper by the North American Neuroendocrine Tumor Society (NANETS) on the practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care. […] Palliative care is a medical subspecialty that focuses on alleviating the symptoms and stress associated with serious medical illness. […] Palliative care seeks to treat the whole patient by managing their physical, emotional, and psychosocial distress. […] Patients with neuroendocrine tumors (NETs) represent a unique population, as many have metastatic disease at presentation, yet can have prolonged survival rates for years. […] The indication for palliative interventions in NET patients is to improve the quality of life without respect for other goals of care, such as disease treatment or management.

• #1 Endocrine and Neuroendocrine Tumor Program | Rutgers Cancer Institute of New Jersey

  https://cinj.org/patient-care/endocrine-and-neuroendocrine-tumor-program

  Our team of endocrine surgeons, neurosurgeons, surgical oncologists, endocrinologists, medical oncologists, radiation oncologists, radiologists, advanced practice nurses, nurse navigators, social workers, and genetic counselors collaborate to ensure that each patient is cared for with an individualized approach, providing the most advanced treatment options available. […] Via a patient-centered approach, our program aims to provide the latest in diagnostic and treatment strategies as well as oncology support services throughout the course of treatment. […] Sondra Patella, MSN, APNC […] Advanced Practice Nurse […] Inpatient Surgery Advanced Practice Provider […] Sonia Vasil, MSN, APN, CDCES […] Advanced Practice Nurse.

• #1 About Neuroendocrine and Carcinoid Tumors Program | Dana-Farber Cancer Institute

  https://www.dana-farber.org/cancer-care/treatment/gastrointestinal/programs/neuroendocrine-carcinoid

  Our specialists work closely together to offer coordinated, advanced treatments, including access to novel therapies that were discovered in our own labs, and several clinical trials. […] We offer an approach to treatment that includes: A team of oncologists specializing in neuroendocrine tumors. A multidisciplinary approach to care based on each patient’s unique situation. Highly advanced diagnostic procedures. Complex surgical procedures. Interventional radiology techniques, including embolization. Access to leading-edge clinical trials. Pathologic and molecular testing of tumor specimens. Genetic testing and counseling for families with a cancer history. Easy access and timely appointments. […] Our innovative approach is also reflected in our collaborative, multi-disciplinary model of care that includes some of the best practitioners in every medical discipline. Specialists from gastroenterology, pathology, radiology, surgical oncology, surgery, medical oncology, radiation oncology, nursing, research and other specialties meet regularly to review all approaches to treatment, and to ensure that patients receive the best care plan and most effective treatment.

• #1 Gastrointestinal Neuroendocrine Tumors: MSK’s Approach and Expertise | Memorial Sloan Kettering Cancer Center

  https://www.mskcc.org/cancer-care/types/gastrointestinal-neuroendocrine/approach

  Pathologist Michael Roehrl is part of a multidisciplinary team that evaluates and treats hundreds of people with neuroendocrine tumors every year. […] At Memorial Sloan Kettering Cancer Center, our doctors are working to improve the understanding and treatment of neuroendocrine tumors of the gastrointestinal system. Neuroendocrine tumors act quite differently and, as a result, are managed differently than other types of tumors. Making an accurate diagnosis before treatment begins is crucial to ensuring the best outcome for patients with these uncommon tumors. […] Our neuroendocrine tumor experts a team that includes medical oncologists, gastroenterologists, gastrointestinal cancer surgeons, endocrinologists, pathologists, and other specialists have the experience needed to evaluate neuroendocrine tumors and select the appropriate treatment plan for each patient. The team treats hundreds of patients with neuroendocrine tumors each year.

• #1 Diagnosing and Treating Patients with Neuroendocrine Tumors and Carcinoid Syndrome

  https://www.oncnursingnews.com/view/diagnosing-and-treating-patients-with-neuroendocrine-tumors-and-carcinoid-syndrome

  Neuroendocrine tumors (NETs) are rare and often misdiagnosed. These tips can help with the diagnosing and treatment of patients with NETs, and carcinoid syndrome. […] Since joining the Rocky Mountain Cancer Centers team, I have immersed myself in the world of neuroendocrine tumors (NETs), a rare cancer that develops in cells that secrete hormones. […] Some people with NETs develop carcinoid syndrome, which is most often marked by debilitating diarrhea and facial flushing. […] I believe its important for oncology nurses to encourage our patients to accurately describe their life-disrupting symptoms. […] The good news is that with proper diagnosis and treatment, these symptoms can be successfully managed and our patients lives can be significantly prolonged. […] Because NETs and carcinoid syndrome can often be challenging to diagnose, as nurses, we need to encourage our patients to share all of their disease symptoms, whether they believe its related to cancer or not.

• #1 Neuroendocrine Tumors Care Team | Fred Hutchinson Cancer Center

  https://www.fredhutch.org/en/diseases/neuroendocrine-tumors/care-team.html

  Your medical oncologist offers you ways to prevent, relieve and cope with side effects of treatment like medicine to help with nausea. […] Your patient care coordinator works closely with you and your physician. They will schedule your appointments. […] This physician treats cancer with radiation. They prescribe and manage this part of your care if you need it. […] This person sees you when you come in for radiation treatment. They explain your treatment, check your health, answer your questions and help you with side effects. […] Your nurse manages your care alongside your physician. They also assist with procedures and treatments. Nurses are resources for you and your caregiver. They answer questions and help with a wide range of topics, like how to cope with side effects or get other services you need at Fred Hutch.

• #1 Neuroendocrine Tumors | Hoag Family Cancer Institute

  https://www.hoag.org/specialties-services/cancer/conditions/neuroendocrine-tumors/

  Hoag’s Neuroendocrine Tumor Program provides academic level care from a multidisciplinary, specialized team experienced in the accurate diagnosis and treatment of neuroendocrine tumors. […] If neuroendocrine tumors are suspected, it’s important to seek proper evaluation and treatment from a healthcare expert experienced in the diagnosis and treatment of gastrointestinal issues. […] A clinical nurse navigator serves an important role as facilitator and guide for patients, providing resources, access to clinical providers and answering questions throughout the cancer journey.

• #1 What to do when you are diagnosed with neuroendocrine cancer

  https://netrf.org/for-patients/newly-diagnosed/

  You are not alone. The Neuroendocrine Tumor Research Foundation offers information and resources to those who have been diagnosed with a neuroendocrine tumor. Our goal is to equip you with the knowledge you need to be an active participant in your care so you can feel confident in your care team and in your treatment choices. […] Any and all of these emotions are common following a neuroendocrine cancer diagnosis. It may help to share your emotions with a friend, family member, religious leader, or your care team. Many people with neuroendocrine tumors find support and encouragement by attending support groups. […] When you meet with your doctor, you will hear a lot of information. Before your appointment, make a list of questions. Organize your question list so you ask the most important ones first.

• #1 8 Innovative Neuroendocrine Tumor Treatment Options | MD Anderson Cancer Center

  https://www.mdanderson.org/cancer-types/neuroendocrine-tumors/neuroendocrine-tumor-treatment.html

  Since neuroendocrine tumors (NETs) are rare, finding a care team with experience treating them is especially important. At MD Anderson, we have physicians who specialize in treating neuroendocrine tumors. This gives them incredible experience when designing treatment plans for patients diagnosed with a NET. […] Regardless of location, the preferred treatment for most NETs is surgery to remove the entire tumor. This may cure the patient. […] Most surgeries meant to cure NETs are performed on patients whose disease has not metastasized, or spread. In some cases, though, patients whose disease has metastasized can be effectively cured by surgery that removes the primary tumor and the metastases. […] For the vast majority of patients, it is not possible to remove the entire tumor through surgery. This may be because it is located in a spot that is hard to reach surgically or because it has spread in such a way that the metastases cannot be removed. In these cases, doctors may still perform surgery to remove part of the tumor. This can help relieve symptoms.

• #1 Neuroendocrine Tumors – Brigham and Women’s Hospital

  https://www.brighamandwomens.org/surgery/general-and-gastrointestinal-surgery/services/neuroendocrine-tumors

  After surgery, you will recover in the post-surgical care unit where you will receive comprehensive care by an experienced surgical and nursing staff. […] The Program of Neuroendocrine and Carcinoid Tumors at the Gastrointestinal Cancer Treatment Center at Dana-Farber Brigham Cancer Center provides advanced and innovative multidisciplinary care for patients with neuroendocrine tumors. Our treatment team includes surgeons, medical and radiation oncologists, pathologists, radiologists, anesthesiologists, gastroenterologists and nursing and research staff.

• #1 Neuroendocrine tumours (NETs) | Macmillan Cancer Support

  https://www.macmillan.org.uk/cancer-information-and-support/neuroendocrine-tumours-nets

  A team of specialists will meet to discuss the best possible treatment for you. This is called a multidisciplinary team (MDT). They will discuss the results of your tests to plan your treatment. They will look at factors including: […] Your doctor or cancer specialist or nurse will explain the different treatments and their side effects. They will also talk to you about things to think about when making treatment decisions. The main treatment is surgery to remove the tumour. The aim of this is to cure the cancer. If surgery cannot completely remove the NET, treatment will aim to relieve symptoms and improve quality of life. […] If you have a functioning NET, there is a risk that an operation can cause carcinoid crisis. Your doctors will try to prevent this and monitor you during treatment.

• #1 Neuroendocrine Tumor | Ochsner Health

  https://www.ochsner.org/services/neuroendocrine-tumor-program

  Treatments using medication are used to destroy cancer cells. Medications can be given through an intravenous (IV) tube placed into a vein using a needle, in a pill or capsule that is swallowed, or intramuscular (IM) injections. Depending on the type of NET, medications that may be used include: Somatostatin analogs: Somatostatin is a hormone in the body that controls the release of several other hormones, such as insulin. Somatostatin analogs are drugs that are used to control the symptoms created by the hormone-like substances released by a NET. They may also slow the growth of a NET, although they do not generally shrink the tumors. […] Chemotherapy is the use of drugs to destroy cancer cells, usually by keeping the cancer cells from growing, dividing and making more cells. Chemotherapy for a NET may be used when the tumor has spread from where it started to other organs, if the tumor is causing severe symptoms, or if hormonal therapies or targeted therapies are no longer working. Chemotherapy may be used alone or in combination with other treatments.

• #1 logo–sylvester

  https://umiamihealth.org/en/sylvester-comprehensive-cancer-center/treatments-and-services/stomach-cancer/neuroendocrine-neoplasms-(nens)

  Somatostatin analogues (SSAs) are medications that bind to somatostatin receptors (SSTR) on neuroendocrine tumor cells and can help to slow tumor growth and relieve symptoms. These are given as an injection into the muscle. […] Chemotherapy uses strong drugs to kill the tumor cells. Chemotherapy is usually recommended for advanced tumors that cannot be removed with surgery. It can be used alone or in combination with other treatments. A patient may take these medications intravenously (through the vein using a needle) or in a pill or capsule form. […] Immunotherapy, also known as biological therapy, is a treatment that uses substances to activate or suppress a person’s own immune system to fight cancer. […] Targeted drug therapy is a type of cancer treatment that uses drugs or other substances to precisely identify and attack certain types of cancer cells. Targeted drug therapy is often combined with chemotherapy for advanced tumors.

• #1 Neuroendocrine Tumor | Ochsner Health

  https://www.ochsner.org/services/neuroendocrine-tumor-program

  Peptide receptor radionuclide therapy delivers high doses of radiation to tumors in the body to destroy or slow their growth and reduce disease side effects. PRRT is administered through an IV over the course of four infusions lasting about four hours each. Infusions are given approximately eight weeks apart. This form of treatment can increase a patients survival rate and improve their quality of life. PRRT is generally well tolerated, but common side effects can include nausea, vomiting and fatigue. […] Radiation therapy is the use of high-energy X-rays or other particles to destroy tumor cells. A radiation therapy regimen usually consists of a specific number of treatments given over a set time. The most common type of radiation treatment for a NET is called external-beam radiation therapy, which is radiation given from a machine outside the body.

• #1 Practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care in: Endocrine-Related Cancer Volume 30 Issue 7 (2023)

  https://erc.bioscientifica.com/view/journals/erc/30/7/ERC-22-0226.xml

  This serves as a white paper by the North American Neuroendocrine Tumor Society (NANETS) on the practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care. […] Palliative care is a medical subspecialty that focuses on alleviating the symptoms and stress associated with serious medical illness. Palliative care is appropriate for any patient with a high symptom burden at any point in the illness trajectory. […] Patients with neuroendocrine tumors (NETs) represent a unique population, as many have metastatic disease at presentation, yet can have prolonged survival rates for years. Since these patients can have a heavy symptom burden, a common criterion for referral to palliative care is to help manage debilitating physical symptoms such as pain, dyspnea, nausea and vomiting, diarrhea, and fatigue.

• #1 Practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care

  https://pmc.ncbi.nlm.nih.gov/articles/PMC10326633/

  For patients with NETs in particular, however, there are several special considerations around the use of palliative treatments. […] The most common functional pancreatic neuroendocrine tumors (PNETs) are insulinomas associated with hypoglycemia with symptoms of confusion, diaphoresis, syncope and even hastened death from stroke or MI. […] Symptoms of anxiety and depression are normal given the uncertainties of living with NETs at all stages, including at the end of life. […] Patients with neuroendocrine neoplasms have unique disease-related symptoms that impact palliative care needs during routine disease management and at the end of life. […] There are special considerations around the use of palliative treatments when caring for patients with advanced neuroendocrine neoplasms that should be taken into account: disease biology and prognosis, as well as symptoms that may be related to location and burden of disease and/or hormone secretion. […] Awareness of these issues and other important medical and cost issues covered in this white paper will allow well-informed discussion and multidisciplinary care to maximize the patient quality of life during routine care and at the end of life.

• #1 Neuroendocrine Tumors (NETs): Symptoms & Treatment

  https://my.clevelandclinic.org/health/diseases/22006-neuroendocrine-tumors-net

  Neuroendocrine tumors (NETs) are a group of uncommon tumors that start in specialized cells in your neuroendocrine system. […] Care at Cleveland Clinic Neuroendocrine Tumor Treatment Find A Doctor and Specialists Make an Appointment […] Surgery is the most common treatment for a NET. If your tumors are large or have spread, other treatments you might need include: […] Neuroendocrine tumors and their treatment can take a toll on your body. You may have to manage common symptoms like fatigue feeling extremely tired day after day and diarrhea throughout your treatment. […] Contact your healthcare provider if you have a NET and are noticing changes in your body that may be signs of carcinoid syndrome, like flushing, diarrhea or wheezing. You should also contact your provider if your symptoms become worse or if you’re experiencing treatment side effects. […] Cleveland Clinic can help find the answers.

• #1 Follow-up after treatment for neuroendocrine tumours (NETs) | Canadian Cancer Society

  https://cancer.ca/en/cancer-information/cancer-types/neuroendocrine-tumours/treatment/follow-up

  Follow-up after treatment is an important part of cancer care. Follow-up for a neuroendocrine tumour (NET) is often shared among the cancer specialists, such as the surgeon, oncologist and endocrinologist, and your family doctor. Your healthcare team will work with you to decide on follow-up care to meet your needs. […] Dont wait until your next scheduled appointment to report any new symptoms and symptoms that dont go away. Tell your healthcare team if you have: diarrhea, flushing of the skin, pain in the abdomen. […] The chance that neuroendocrine cancer will come back (recur) is greatest within 5 years, so close follow-up is needed during this time. The risk of recurrence depends on several factors, including whether surgery was done, the size of the tumour, if there was cancer in the lymph nodes and how fast the cells are growing and dividing.

• #1 Eating Right with a Neuroendocrine Tumor (NET)

  https://netrf.org/old-for-patients/living-with-nets/nutrition/

  Proper nutrition helps support cancer treatment goals for improving outcomes, improving quality of life, and minimizing nutrition-related side effects. What, when, and how you eat can help ease burdensome symptoms associated with neuroendocrine cancer. […] Diet is important for those with neuroendocrine tumors. Fifty-eight percent of NET patients say they had to make dietary changes as a result of their disease. As a rule of thumb, choose foods and drinks that are gentle on your digestive system. […] Talk to your doctor about your diet. Maybe even ask for a referral to see a registered dietitian who is well versed in nutrition for neuroendocrine tumor patients. […] Minor adjustments in when and how you eat can also help alleviate diarrhea for those with neuroendocrine tumors. Eat small, frequent meals. Don’t drink while you are eating. Drink 30-45 minutes before a meal. […] Work with your doctor, dietitian, and treatment team on a personalized nutritional plan to support your health. Your medical history and any co-occurring conditions will drive your daily food choices.

• #1 Neuroendocrine Tumors

  https://www.cancercare.org/diagnosis/neuroendocrine_tumors

  CancerCare provides free, professional support services for people affected by neuroendocrine tumors, as well as treatment information and additional resources. […] Oncology social workers help you cope with the emotional and practical challenges of neuroendocrine tumors. […] CancerCare offers a free, private online support group for individuals in treatment for carcinoid and neuroendocrine tumors. […] A support group can be a wonderful way to find social connection, resources and information from others going through similar experiences. […] CancerCare offers a number of general face-to-face, telephone, and online support groups that may meet your needs.

• #1 Neuroendocrine Tumors | Fred Hutchinson Cancer Center

  https://www.fredhutch.org/en/diseases/neuroendocrine-tumors.html

  Along with treating your cancer, a group of world-class professionals is here to support you. This team includes nurses, dietitians, physical therapists, social workers, psychologists and palliative care specialists. We integrate supportive care services to promote your well-being in every sense. […] When someone close to you is diagnosed with a NET, you might step into the role of caregiver. On a practical level, this can mean many things, from cooking meals to helping with medical decisions. It probably also means dealing with emotions and stress yourself. […] In our eyes, you are a true member of a patients care team. We see every day that your presence and your support make a difference. We also see that what your friend or family member is going through affects you too. […] Part of our mission is to help you take care of yourself. Doing so is good for your own physical, mental and emotional health. It also helps you give your best to your loved one. Our social workers, chaplains and Patient and Family Resource Center can help.

• #1 Follow-up after treatment for neuroendocrine tumours (NETs) | Canadian Cancer Society

  https://cancer.ca/en/cancer-information/cancer-types/neuroendocrine-tumours/treatment/follow-up

  Follow-up visits for NETs are usually scheduled every 3 to 6 months for the first 3 to 5 years and once a year after that. They may be more often if you have an aggressive type of NET. […] During a follow-up visit, your healthcare team will usually ask questions about the side effects of treatment and how youre coping. They may also ask about any symptoms that you are having and if they are getting worse. […] Tests are often part of follow-up care. You may have: CgA (chromogranin A) measured in your blood every 3 to 6 months to check for increased levels, which may mean the cancer has come back, a CT scan every 6 to 12 months to check for cancer in other parts of the body. […] If the cancer has come back, you and your healthcare team will discuss a plan for your treatment and care.

• #1 Diagnosing and Treating Patients with Neuroendocrine Tumors and Carcinoid Syndrome

  https://www.oncnursingnews.com/view/diagnosing-and-treating-patients-with-neuroendocrine-tumors-and-carcinoid-syndrome

  Postdiagnosis, it is often the nurse, or nurse practitioner, who will support the patient and doctor to ensure that all information is shared across the integrated treatment team. […] Although rare, the prevalence of NETs has been increasing over the last 30 years, partly due to better diagnostic tools. […] Therefore, they require specialists who understand the different types to determine the best treatment strategy, and a multidisciplinary approach because the disease crosses into so many different medical subspecialties. […] Carcinoid syndrome is real. […] I always ask every patient whether they are experiencing any GI or flushing symptoms and whether their symptoms have persisted with no explanation. […] When my patients have a severe diarrhea flare-up, I talk to them every day if needed to ensure we are caring for them properly.

• #1

  https://pmc.ncbi.nlm.nih.gov/articles/PMC6378464/

  Currently there is no established protocol regarding follow up of patients with NENs as evidence-based studies are missing. Recently published ENETS recommendations suggest that follow up should be performed in specialized centers with regular tumor boards with expert panels. […] Follow-up evaluation should include clinical examination, tumor marker measurement and imaging studies. Shorter intervals between follow ups are recommended in patients with high-grade tumors, a large tumor burden or aggressive disease, uncontrolled functional syndromes or extremely high CgA levels. […] As the tissue of origin is highly related to the metastatic potential and prognosis of NENs and affects their management, currently applied and evolving treatments will be presented according to tumor localization and origin.

• #1 Neuroendocrine tumors – Care at Mayo Clinic – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors/care-at-mayo-clinic/mac-20354135

  Once you complete treatment, cancer survivorship clinics can help you cope with post-treatment issues and assist you as you adjust to life after cancer. […] At Mayo Clinic, doctors from a variety of specialties, including oncologists, endocrinologists, gastroenterologists, pathologists, surgeons, transplant specialists and radiologists, form a team to make sure all of your individual needs are addressed in your care plan. […] Mayo Clinic doctors have extensive experience diagnosing and treating neuroendocrine tumors. Each year, Mayo Clinic doctors care for more than 1,900 people with neuroendocrine tumors, including people with very rare types. […] Mayo Clinic Comprehensive Cancer Center meets the strict standards for a National Cancer Institute comprehensive cancer center, which recognize scientific excellence and a multispecialty approach focused on cancer prevention, diagnosis and treatment.

• #1 Neuroendocrine Cancer: An Ideal Patient Care Pathway – Neuroendocrine Cancer UK

  https://www.neuroendocrinecancer.org.uk/campaigns/nc-pathway/

  Welcome to the Neuroendocrine Cancer Pathway Campaign Page! Explore our initiative dedicated to improving care for individuals living with neuroendocrine neoplasms (NENs) in England. Our campaign focuses on addressing the challenges faced by neuroendocrine cancer patients, including delayed diagnosis and limited access to specialised care. […] Through the development and implementation of the Neuroendocrine Cancer Ideal Pathway, we aim to streamline diagnosis, enhance multidisciplinary care, and empower patients in navigating their treatment journey. […] The Ideal Pathway provides evidence-based recommendations to improve neuroendocrine cancer care, focusing on faster diagnosis, access to specialist care, and overcoming barriers identified in the research. […] The Ideal Pathway recommends strategies for faster diagnosis, multidisciplinary care teams, and patient empowerment to decision-makers for improving neuroendocrine cancer care, based on thorough literature review and expert consensus.

• #1 Neuroendocrine Tumors – Gastrointestinal Cancer | UCLA Health Jonsson Comprehensive Cancer Center

  https://www.uclahealth.org/cancer/cancer-services/gi-cancer/conditions/neuroendocrine-tumors

  Our integrated care team provides comprehensive treatment plans to give you the best chance for a cure. […] UCLA hosts the largest neuroendocrine tumor program in southern California and the Southwest. Our experts are nationally and internationally renowned in the diagnosis and treatment of neuroendocrine tumors (NETs). Clinicians in all disciplines join together to take care of people with neuroendocrine tumors. […] The UCLA Neuroendocrine Tumor Program helped develop the latest treatments for neuroendocrine tumors, including the current gold-standard treatment, peptide receptor radiotherapy (PRRT). […] Diagnosing neuroendocrine tumors requires exceptional expertise. UCLA has a multidisciplinary team including experts in surgery, medical oncology, gastroenterology, pathology, radiology and nuclear medicine dedicated to treating patients with NETs.

• #1 Highest-Quality Neuroendocrine Cancer Care Close to You | Providence

  https://www.providence.org/services/cancer/neuroendocrine-cancer

  When youre a patient at Providence, we dont just treat your neuroendocrine cancer we treat you. We use the most advanced treatments to create a highly personalized care plan. […] Youll experience this through our multidisciplinary tumor boards, where your oncology team collaborates with other cancer care experts about your specific diagnosis. […] As a patient, youll be supported through your entire cancer journey by a multidisciplinary cancer care team. […] We also provide you and your family with a full range of support services well beyond conventional treatment, from genetic counseling and education to nutrition and pain management. […] At Providence, we are deeply committed to making sure every patient we treat has access to the best cancer care. […] Your multidisciplinary cancer care team will work with you to design an individualized cancer care plan, from diagnosis to post-treatment support.

• #1 ENETS Guidelines & Standards of Care – enets.org

  https://www.enets.org/guidelines.html

  ENETS 2017 Consensus Guidelines for the Diagnosis and Treatment of Neuroendocrine Tumors […] 1. Introduction – ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Tumors […] 2. ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Tumors: Pathology Diagnosis and Prognostic Stratification […] 3. ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Tumors: Biochemical Markers […] 4. ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Tumors: Radiological, Nuclear Medicine and Hybrid Imaging […] 5. ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Tumors: Pre- and Perioperative Therapy in Patients with Neuroendocrine Tumors […] 6. ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Tumours: Surgery for Small Intestinal and Pancreatic Neuroendocrine Tumours

• #1 Home

  https://nanets.net/

  The management of NET disease poses a significant challenge because of the heterogeneous clinical presentations and varying degrees of aggressiveness. […] NANETS comprehensive, one-day regional NET Education programs are offered in conjunction with local cancer centers to provide multidisciplinary training to medical professionals across North America. Local physicians, advanced practice professionals and nurses come together with leaders in neuroendocrine medicine to educate and discuss NET disease and patient care in the community and across the U.S. Participants learn about standard management of patients with neuroendocrine tumors, as well as new diagnostic and therapeutic techniques. […] NANETS is committed to identifying opportunities for training and mentoring within the organization for early career professionals. In addition to education and mentorship, opportunities include peer to peer networking, speaking opportunities, abstract presentations, and content at NANETS’ annual symposium developed specifically to support and advance early career MDs, PhDs, advanced practice providers and nurses.

• #1 Neuroendocrine Tumor Care | Rush

  https://www.rush.edu/services/neuroendocrine-tumor-care

  Your care team will work with you to develop a comprehensive neuroendocrine tumor treatment plan based on up-to-date research and tailored to your needs. […] Because neuroendocrine tumors are rare and their treatment is complex, its important to make sure you have an expert team in your corner. […] When you come to Rush, your expert care team will go over all of your options for neuroendocrine tumor care and work closely with you to develop a comprehensive treatment plan. […] When you come to Rush you can expect to get the most advanced care for neuroendocrine tumors. […] Your treatment may include peptide receptor radionuclide therapy (PRRT), an innovative treatment for metastatic neuroendocrine tumors that targets cancer cells in multiple places in the body without damaging healthy tissue.

• #1 Expert Neuroendocrine Tumor Care | Henry Ford Health – Detroit, MI

  https://www.henryford.com/services/neuroendocrine

  Once a neuroendocrine tumor is identified and located, you may need surgery to remove most or all of the tumor. Our cancer surgeons who specialize in gastroenterology, pulmonology and pancreatic surgery (among other specialties) are experienced in performing the most complex procedures. […] As part of your personalized treatment plan, you may need drug therapies, such as chemotherapy or other medications. […] This new targeted therapy blends elements of radiation therapy and medical oncology and it is not offered at most cancer centers. […] Our team is conducting ongoing research to improve existing therapies and investigate newer therapies and instruments that can offer additional treatment options. […] In some cases, a liver transplant may be needed. Henry Ford Health Transplant Services, which is internationally renowned, offers the most comprehensive organ transplant program in Michigan, and it handles some of the most complex cases in the nation.

• #1 Neuroendocrine Tumors, Neuroendocrine Cancer – UChicago Medicine

  https://www.uchicagomedicine.org/cancer/types-treatments/neuroendocrine-tumors

  Our integrated approach to neuroendocrine tumor care means patients can meet with surgical and medical oncology experts during the same clinic visit. […] The NETs care team at University of Chicago Medicine includes experts across many specialties. They work together to accurately diagnose neuroendocrine tumors, and to determine the most effective treatment for each patient. […] At UChicago Medicine, treatment for NETs often includes surgery, even for tumors that have spread to other organs. […] If detected early, many neuroendocrine tumors can be cured through treatment such as surgery. […] UChicago Medicine offers unique therapy options for even the most advanced neuroendocrine cancers. […] UChicago Medicine Comprehensive Cancer Center offers a multidisciplinary and dedicated neuroendocrine tumor program consisting of nationally recognized experts who specialize in diagnosing and treating all forms of NETs.

• #1 Neuroendocrine tumours | Cancer Council

  https://www.cancer.org.au/cancer-information/types-of-cancer/rare-cancers/neuroendocrine-tumours

  Neuroendocrine tumours can be difficult to find and are sometimes diagnosed when patients are undergoing tests for a different condition. […] To ensure you receive the best care, your specialist will arrange for a team of health professionals to plan your treatment based on your overall health, how far the cancer has spread and your preferences and needs. […] Discussion with your doctor will help you decide on the best treatment for your tumour depending on the type of NET you have; the symptoms you have; where it is in your body; how far it has spread; your age, fitness and general health and your preferences. […] The main treatment options for neuroendocrine tumours include surgery, chemotherapy, targeted therapy, theranostics peptide receptor radionuclide therapy (PRRT) and drug therapy (to control any symptoms caused by extra hormones).

• #1 Diagnosing and Treating Patients with Neuroendocrine Tumors and Carcinoid Syndrome

  https://www.oncnursingnews.com/view/diagnosing-and-treating-patients-with-neuroendocrine-tumors-and-carcinoid-syndrome

  Despite the reputation as an indolent disease, NETs are highly malignant and nearly all disease recurs. […] Quality of life can be dramatically improved for NET and carcinoid syndrome patients. […] Its also important to tailor a treatment plan based on the patients specific symptoms and then work collaboratively with all relevant care team members to treat the whole patient.

• #2 Practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care

  https://pmc.ncbi.nlm.nih.gov/articles/PMC10326633/

  For patients with NETs in particular, however, there are several special considerations around the use of palliative treatments. […] The most common functional pancreatic neuroendocrine tumors (PNETs) are insulinomas associated with hypoglycemia with symptoms of confusion, diaphoresis, syncope and even hastened death from stroke or MI. […] Symptoms of anxiety and depression are normal given the uncertainties of living with NETs at all stages, including at the end of life. […] Patients with neuroendocrine neoplasms have unique disease-related symptoms that impact palliative care needs during routine disease management and at the end of life. […] There are special considerations around the use of palliative treatments when caring for patients with advanced neuroendocrine neoplasms that should be taken into account: disease biology and prognosis, as well as symptoms that may be related to location and burden of disease and/or hormone secretion. […] Awareness of these issues and other important medical and cost issues covered in this white paper will allow well-informed discussion and multidisciplinary care to maximize the patient quality of life during routine care and at the end of life.

• #2 Expert Neuroendocrine Tumor Care | Henry Ford Health – Detroit, MI

  https://www.henryford.com/services/neuroendocrine

  Our multidisciplinary team works together to diagnose and treat your condition. Our neuroendocrine clinic brings together experts in gastroenterology, endocrinology, pulmonology, surgical oncology, transplant surgery, interventional radiology, medical oncology, nuclear medicine and other specialties. […] Unlike some types of cancer, most neuroendocrine tumors develop and grow at a slow rate–even at advanced stages. Given that the cancer may not be diagnosed until it has advanced, this means that people diagnosed with neuroendocrine tumors may receive multiple treatments and live longer with this unique cancer. […] One size does not fit all when it comes to treating neuroendocrine tumors. We study each case and personalize your treatment options to meet your specific needs. […] Given the complexity of neuroendocrine tumors, an accurate diagnosis is critical to ensuring the most effective treatment. We offer the most advanced imaging and diagnostic procedures available.

• #2 Neuroendocrine Tumor | Ochsner Health

  https://www.ochsner.org/services/neuroendocrine-tumor-program

  The Ochsner Neuroendocrine Tumor Program includes a team of gastroenterologists, interventional radiologists, medical oncologists, nuclear medicine physicians, hepatobiliary surgeons, surgical oncologists and transplant surgeons who are prepared to manage your care and deliver clinical trials, targeted therapies, focal therapies and complex surgical care. We are a leader in the diagnosis and management of all forms of neuroendocrine tumors. […] All treatment, testing and other services are offered on-site at Ochsner Medical Center Kenner. Patients benefit from weekly tumor boards, a collaborative approach to planning treatments and evaluating decisions. Our multidisciplinary approach means you have an entire network of specialists to lean on. Ours is an environment that fosters innovation and collaboration. We provide our patients with specialized knowledge that can make all the difference in treatment, quality of life and recovery.

• #2 Center for Neuroendocrine Tumors | UCSF Health

  https://www.ucsfhealth.org/clinics/center-for-neuroendocrine-tumors

  The UCSF Center for Neuroendocrine Tumors provides comprehensive care for patients with all types of neuroendocrine tumors (NETs). […] Our team includes surgeons, medical oncologists, radiation oncologists, radiologists, cardiologists, endocrinologists, symptom management experts, genetic counselors, nutritionists, psychologists, social workers and other specialists. […] Our goal is to deliver world-class care from a holistic perspective. We make sure that our patients and their families have the support they need to face the physical, emotional and financial challenges that can arise after a cancer diagnosis. […] UCSF offers a wide range of cancer support services, including a bimonthly education and support group for patients with NETs and their loved ones. […] Social workers offer support, problem-solving, help accessing UCSF cancer-related resources and more. Find out how to contact the social worker for your clinic. […] The center offers wellness programming, community, support groups, classes, workshops and more at no cost to people facing cancer and their loved ones.

• #2 Diagnosing and Treating Patients with Neuroendocrine Tumors and Carcinoid Syndrome

  https://www.oncnursingnews.com/view/diagnosing-and-treating-patients-with-neuroendocrine-tumors-and-carcinoid-syndrome

  Postdiagnosis, it is often the nurse, or nurse practitioner, who will support the patient and doctor to ensure that all information is shared across the integrated treatment team. […] Although rare, the prevalence of NETs has been increasing over the last 30 years, partly due to better diagnostic tools. […] Therefore, they require specialists who understand the different types to determine the best treatment strategy, and a multidisciplinary approach because the disease crosses into so many different medical subspecialties. […] Carcinoid syndrome is real. […] I always ask every patient whether they are experiencing any GI or flushing symptoms and whether their symptoms have persisted with no explanation. […] When my patients have a severe diarrhea flare-up, I talk to them every day if needed to ensure we are caring for them properly.

• #2 Neuroendocrine Tumors Care Team | Fred Hutchinson Cancer Center

  https://www.fredhutch.org/en/diseases/neuroendocrine-tumors/care-team.html

  Many types of supportive care team members are here to help you and your family. They include registered dietitians, physical therapists, pain medicine specialists, psychologists, social workers, spiritual health staff, palliative care specialists, naturopaths and acupuncturists. […] This physician does surgery to remove as much of your cancer as possible, along with a margin of healthy tissue around the cancer. They might also remove lymph nodes to check for cancer spread.

• #2 Neuroendocrine Tumors Program | Huntsman Cancer Institute | University of Utah Health

  https://healthcare.utah.edu/huntsmancancerinstitute/neuroendocrine-tumor

  Your treatment team will help you decide the best next steps if the cancer returns. […] Doctors treat many NETs with medications. […] Some people benefit from surgically removing all or part of a neuroendocrine tumor. […] As the NET Program Coordinator, my goal is to ensure every patient feels welcomed, informed, and cared for from their very first visit. […] You will meet with a provider who specializes in treating neuroendocrine tumors at your first appointment. […] After discussing your case, our specialists may recommend additional diagnostic testing.

• #2 What to do when you are diagnosed with neuroendocrine cancer

  https://netrf.org/for-patients/newly-diagnosed/

  Your doctor needs to know your questions and concerns. Let your doctor know you have questions in advance. That way he or she can plan extra time to address them or schedule a follow-up appointment. […] All your questions are important and deserve an answer. It’s okay to ask the same question more than once. It’s also okay to ask your doctor to use simpler words and explain terms that are new to you. To make sure you understand, use your own words to repeat back what you heard the doctor say. […] Ask a family member or friend to go with you when you see your doctor. This person can help by listening, taking notes, and asking questions. […] Browse this website to learn more about neuroendocrine tumors. Also, check out the NETRF YouTube channel, which offers a wide range of talks from NET specialists. Try to attend a NETRF patient and caregiver conference. These full-day, free educational programs offer information on the latest NET tests and treatments. Learning as much as you can help reduce some of the uncertainty that comes with a neuroendocrine cancer diagnosis and can help you get more involved in your care.

• #2 8 Innovative Neuroendocrine Tumor Treatment Options | MD Anderson Cancer Center

  https://www.mdanderson.org/cancer-types/neuroendocrine-tumors/neuroendocrine-tumor-treatment.html

  If all of the patients tumors cannot be removed through surgery, a complete cure is not possible. Instead, the disease is managed through treatments designed to slow or stop its progression. […] The treatments and treatment plans for a NET depend on many factors. These include the location of the tumor, whether it is functional or non-functional, and how advanced the disease is. […] Since NETs can be slow growing, doctors may recommend active surveillance. With this approach, the patient undergoes regular tests, including blood, urine and imaging exams, to see if the tumor is growing. No treatments are given unless and until the disease progresses. This is a popular approach for older patients who might find surgery or other therapies difficult to bear. […] Many neuroendocrine tumors can be removed with surgery, especially if they are diagnosed before they have metastasized, or spread beyond the main tumor and nearby lymph nodes. If the surgeon cannot remove the entire tumor, only part of it may be removed in order to help treat a patients tumor-related symptoms.

• #2 Neuroendocrine Carcinoid/Pancreatic Tumors | Patient Care

  https://weillcornell.org/neuroendocrine-carcinoid-tumors

  Minimally invasive procedures are better tolerated than traditional surgery (often called open surgery). Patients have less bleeding during minimally invasive surgery and less pain during recovery. Other benefits for those who choose these procedures include a shorter hospital stay and quick return to daily activities.

• #2 Neuroendocrine Tumor | Ochsner Health

  https://www.ochsner.org/services/neuroendocrine-tumor-program

  Peptide receptor radionuclide therapy delivers high doses of radiation to tumors in the body to destroy or slow their growth and reduce disease side effects. PRRT is administered through an IV over the course of four infusions lasting about four hours each. Infusions are given approximately eight weeks apart. This form of treatment can increase a patients survival rate and improve their quality of life. PRRT is generally well tolerated, but common side effects can include nausea, vomiting and fatigue. […] Radiation therapy is the use of high-energy X-rays or other particles to destroy tumor cells. A radiation therapy regimen usually consists of a specific number of treatments given over a set time. The most common type of radiation treatment for a NET is called external-beam radiation therapy, which is radiation given from a machine outside the body.

• #2 Neuroendocrine Tumors: Diagnosis and Treatment | NewYork-Presbyterian

  https://www.nyp.org/cancer/endocrine-cancer/neuroendocrine-tumors

  Neuroendocrine tumors that develop in the stomach, small intestine, colon, and rectum are known as carcinoid tumors. […] At New York Presbyterian the goal is to try to identify the nature of the tumor and tailor the treatment to what is best for each patient. […] Depending on the type, size, and location of the tumor, we have some surgical and non-surgical options available. […] Surgery is an effective treatment option to remove both indolent and aggressive neuroendocrine tumors and is typically the initial step in treatment. […] Though we always attempt to remove the whole tumor, in cases in which we can only reduce the size of the tumor, we follow up with chemotherapy or radiation. […] Our oncology nurses oversee the administration of immunotherapies in our comfortable and modern infusion centers.

• #2 Neuroendocrine Tumors: Options for Initial Therapy

  https://www.onclive.com/view/neuroendocrine-tumors-options-for-initial-therapy

  Really, the first set of treatment options for most patients, I would say, are somatostatin analogues. These are agents that target the somatostatin receptor, which is expressed on 90% of neuroendocrine tumors. There are 2 commonly used ones that are used, lanreotide and octreotide. They have very few side effects. They are given as monthly injections. They have a couple benefits. One is that they can decrease hormone secretion for tumors that secrete hormones. Another important action that has been identified more recently is the fact that these agents can also slow tumor growth and improve progression-free survival (PFS). […] They have very few adverse effects. They are highly effective in many patients, and that is usually our first treatment option for patients with advanced neuroendocrine tumors.

• #2 logo–sylvester

  https://umiamihealth.org/en/sylvester-comprehensive-cancer-center/treatments-and-services/stomach-cancer/neuroendocrine-neoplasms-(nens)

  Peptide receptor radionuclide therapy (PRRT) is a highly targeted and effective form of radiopharmaceutical therapy with minimal side effects. This radiopharmaceutical releases throughout the body but attaches onto the SSTR and only radiate the tumor. This therapy is given intravenously. […] Radiation therapy uses high-energy X-rays to destroy tumor cells. External-beam radiation therapy is the most common type of radiation treatment for neuroendocrine tumors.

• #2 Practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care in: Endocrine-Related Cancer Volume 30 Issue 7 (2023)

  https://erc.bioscientifica.com/view/journals/erc/30/7/ERC-22-0226.xml

  This serves as a white paper by the North American Neuroendocrine Tumor Society (NANETS) on the practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care. […] Palliative care is a medical subspecialty that focuses on alleviating the symptoms and stress associated with serious medical illness. Palliative care is appropriate for any patient with a high symptom burden at any point in the illness trajectory. […] Patients with neuroendocrine tumors (NETs) represent a unique population, as many have metastatic disease at presentation, yet can have prolonged survival rates for years. Since these patients can have a heavy symptom burden, a common criterion for referral to palliative care is to help manage debilitating physical symptoms such as pain, dyspnea, nausea and vomiting, diarrhea, and fatigue.

• #2 Practical considerations when providing palliative care to patients with neuroendocrine tumors in the context of routine disease management or hospice care in: Endocrine-Related Cancer Volume 30 Issue 7 (2023)

  https://erc.bioscientifica.com/view/journals/erc/30/7/ERC-22-0226.xml

  The indication for palliative interventions in NET patients is to improve the quality of life without respect for other goals of care, such as disease treatment or management. […] For patients with NETs in particular, however, there are several special considerations around the use of palliative treatments. […] The most common functional pancreatic neuroendocrine tumors (PNETs) are insulinomas associated with hypoglycemia with symptoms of confusion, diaphoresis, syncope and even hastened death from stroke or MI. […] Symptoms of anxiety and depression are normal given the uncertainties of living with NETs at all stages, including at the end of life. […] Patients with neuroendocrine neoplasms have unique disease-related symptoms that impact palliative care needs during routine disease management and at the end of life.

• #2 Take Care of Yourself With Neuroendocrine Tumors: Food, Exercise, and Vitamins

  https://www.webmd.com/cancer/neuroendocrine-tumors-feel-better

  From diet to exercise to tapping into a good support network, you can do several things to help yourself feel better when you have neuroendocrine tumors (NET). […] A lot depends on where your tumor is and the kind of symptoms it causes. […] No matter your priority, lifestyle changes can go a long way to keep your mind and body healthy. […] If you cut back on wine and other alcoholic drinks, you can get some relief from skin flushing in particular. […] Eating healthy foods can keep your strength and energy up while you get treatment for your tumor. […] While no diet or vitamin can treat your disease, a healthy lifestyle can help you feel better in general. […] It’s natural to feel anxious, stressed out, and sometimes depressed when you find out you’ve got a NET. […] It can help a lot to set up a support network you rely on. […] Meditation helps some people manage stress.

• #2 Take Care of Yourself With Neuroendocrine Tumors: Diet, Exercise, and Vitamins

  https://www.webmd.com/cancer/features/neuroendocrine-tumors-self-care

  From diet to exercise to tapping into a good support network, you can do several things to help yourself feel better when you have a neuroendocrine tumors (NET). […] A healthy diet can keep your strength and energy up while you get treatment for your tumor, Shivaswamy says. If you’re going into chemotherapy, make sure to get enough calories and protein. […] It’s natural to feel anxious, stressed out, and sometimes depressed when you find out you’ve got a NET. If you don’t take care of your emotional needs, it can make it harder to treat your tumor. […] Go to support groups for people who have NETs. „Just talking with other people, or trying things like meditation, can help you feel more relaxed,” she says. […] It can help a lot to set up a support network you rely on.

• #2 Neuroendocrine tumors – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors/diagnosis-treatment/drc-20465865

  Our caring team of Mayo Clinic experts can help you with your neuroendocrine tumors-related health concerns […] The treatment options for your neuroendocrine tumor will depend on the type of tumor, its location, and whether you’re experiencing signs and symptoms of excess hormones produced by the tumor. […] Other treatments might be available to you depending on your particular situation and your specific type of neuroendocrine tumor. […] Being diagnosed with a neuroendocrine tumor can be stressful and overwhelming. With time, you’ll find ways to cope with the distress and uncertainty. Until then, you may find that it helps to: […] Learn enough about your diagnosis to make decisions about your care. […] Your time with your doctor is limited, so preparing a list of questions will help make the most of your time together. […] Neuroendocrine tumors care at Mayo Clinic

• #2 Neuroendocrine Tumors Care Team | Fred Hutchinson Cancer Center

  https://www.fredhutch.org/en/diseases/neuroendocrine-tumors/care-team.html

  Your medical oncologist offers you ways to prevent, relieve and cope with side effects of treatment like medicine to help with nausea. […] Your patient care coordinator works closely with you and your physician. They will schedule your appointments. […] This physician treats cancer with radiation. They prescribe and manage this part of your care if you need it. […] This person sees you when you come in for radiation treatment. They explain your treatment, check your health, answer your questions and help you with side effects. […] Your nurse manages your care alongside your physician. They also assist with procedures and treatments. Nurses are resources for you and your caregiver. They answer questions and help with a wide range of topics, like how to cope with side effects or get other services you need at Fred Hutch.

• #2 Follow-up after treatment for neuroendocrine tumours (NETs) | Canadian Cancer Society

  https://cancer.ca/en/cancer-information/cancer-types/neuroendocrine-tumours/treatment/follow-up

  Follow-up visits for NETs are usually scheduled every 3 to 6 months for the first 3 to 5 years and once a year after that. They may be more often if you have an aggressive type of NET. […] During a follow-up visit, your healthcare team will usually ask questions about the side effects of treatment and how youre coping. They may also ask about any symptoms that you are having and if they are getting worse. […] Tests are often part of follow-up care. You may have: CgA (chromogranin A) measured in your blood every 3 to 6 months to check for increased levels, which may mean the cancer has come back, a CT scan every 6 to 12 months to check for cancer in other parts of the body. […] If the cancer has come back, you and your healthcare team will discuss a plan for your treatment and care.

• #2 Carcinoid Tumor Care | Nebraska Medicine Omaha, NE

  https://www.nebraskamed.com/cancer/carcinoid-neuroendocrine

  Surgery to remove the tumor is the first line of treatment. […] These types of tumors tend to recur so we will continue to monitor you for the rest of your life. […] Addressing a patients physical, educational, emotional and spiritual needs are important aspects of providing a more complete and holistic approach to care. […] Nebraska Medicine offers a host of cancer support services to help you with your physical, emotional, educational and financial needs. […] Our Survivorship Clinic is designed to help you deal with the emotional and physical challenges cancer can leave behind such as fear of recurrence, physical and medical long-term side effects and helping you return to a normal life again.

• #2 Neuroendocrine and Carcinoid Tumors | Patient Support, Education and Care | Dana-Farber Cancer Institute

  https://www.dana-farber.org/cancer-care/treatment/gastrointestinal/programs/neuroendocrine-carcinoid/patient-support

  Patients can work with nutrition counselors from the very beginning of their treatment to create a customized eating plan. […] Our center offers pain management and palliative care to our patients. […] We understand that a neuroendocrine tumor diagnosis can be challenging, both physically and emotionally. […] We believe that all our patients should receive expert post-treatment care, in a comprehensive, personalized way. […] Some of our patients participate in the Adult Survivorship Program, a member of the LIVESTRONG Survivorship Center of Excellence Network.

• #2 Neuroendocrine Tumors | MD Anderson Cancer Center

  https://www.mdanderson.org/cancer-types/neuroendocrine-tumors.html

  Many clinical trials at MD Anderson are not available at other cancer centers. In fact, we offer clinical trials for patients with many different types of NETS, including NETs that are functional and non-functional, and located in different parts of the body. […] We have all the support and wellness services needed to treat the whole person not just the disease.

• #2

  https://winshipcancer.emory.edu/cancer-types-and-treatments/neuroendocrine-tumors/

  With more clinical trials than any other cancer center in the state, youll have access to the most advanced and innovative treatments and resources for treating your specific neuroendocrine tumor. […] We focus on lowering rates of recurrence and strive to deliver treatment with fewer side effects. […] Our nutritionists, nurse navigators, social workers, counselors and more do everything in their power to support you throughout your cancer experience. […] Our promise is to provide you with support, exceptional care and an individualized plan utilizing the most advanced treatment possible, and even a second opinion.

• #2 Staging and Management Updates for Neuroendocrine Tumors (NET) – InventUMPage 1arrow–buttonPage 1arrow–buttonPage 1arrow–buttonPage 1arrow–buttonPage 1arrow–button

  https://news.med.miami.edu/management-of-neuroendocrine-tumors/

  Neuroendocrine tumors form from specialized cells that receive and send messages from and to neurons and release hormones. […] A growing role for endoscopic management of many of these tumors, decreasing the need for surgery. Many neuroendocrine tumors of the gastrointestinal system are picked up during endoscopies or colonoscopies. They can often be removed during the course of the scoping procedures, if they are small enough. […] The guidelines also call out future directions for the field Dr. Chauhan is helping drive through his leadership of Sylvester’s Neuroendocrine Tumor Program. It’s one of the few U.S. programs for neuroendocrine cancers that treats and studies all types of these tumors and merges care and research from multiple disciplines. […] Dr. Chauhan is particularly excited about an emerging area of neuroendocrine cancer treatment related to the molecular imaging techniques called out in the updated guidelines. This method, known as theranostics, brings the cancer-killing power of radiation to bear on tumor cells in a targeted manner.

• #2 Neuroendocrine Cancer: An Ideal Patient Care Pathway – Neuroendocrine Cancer UK

  https://www.neuroendocrinecancer.org.uk/campaigns/nc-pathway/

  This document clearly highlights the challenges facing patients with neuroendocrine tumours in obtaining the treatment and care they need. Many of the barriers to consistent, multidisciplinary care in the UK will only be overcome through National Commissioning of Services to these patients. […] I fully support Neuroendocrine Cancer UK’s ideal care pathway as it aims to address inequities in diagnosis, care, and support and assist all people with Neuroendocrine Cancer to access best cancer care across the NHS. […] This new proposed Pathway will benefit not only the physical health but mental health of NEN/NC patients by helping to reduce the uncertainty and anxiety that is endemic to the NEN experience, pre-diagnosis and beyond. […] This report concisely explains exactly what the current problems are for patients with NENs, from diagnosis through to accessing the appropriate treatment and care at the right time in the right place, and even the lack of understanding by health professionals of what a NEN is. Given the increasing diagnostic rate combined with delays in diagnosis, the report is an essential tool that can help improve the pathway for this patient community and save lives. […] We have been very proud to contribute to the development of this important milestone in the management of patients with NEN and sincerely hope that the Ideal Patient Care Pathway brings about improvements in diagnosis, care and support for patients.

• #2 Neuroendocrine Tumors: Causes, Symptoms & Treatments

  https://www.cancercenter.com/cancer-types/neuroendocrine-tumors

  Neuroendocrine tumors are such an important focus at City of Hope that each of our hospitals has a GI Cancer Center dedicated to treating patients with all stages of gastrointestinal diseases. […] They work with you to create an individualized treatment plan that includes evidence-based treatments and technologies to fight neuroendocrine cancer, combined with supportive care services to help reduce side effects and keep you strong in body, mind and spirit. […] Your multidisciplinary team will work with you to develop a personalized plan to treat your neuroendocrine tumor in a way that fits your individual needs and goals. […] The clinicians at our GI Cancer Centers located at each of our hospitals are committed to offering state-of-the-art treatments for patients with neuroendocrine tumors.

• #2 ENETS Guidelines & Standards of Care – enets.org

  https://www.enets.org/guidelines.html

  7. ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Neoplasms: Systemic Therapy Biotherapy and Novel Targeted Agents […] 8. ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Neoplasms: Systemic Therapy Chemotherapy […] 9. ENETS 2017 Consensus Guidelines for the Standards of Care in Neuroendocrine Neoplasms: Peptide Receptor Radionuclide Therapy with Radiolabelled Somatostatin Analogues […] 10. ENETS 2017 Consensus Recommendations for the Standards of Care in Neuroendocrine Neoplasms: Follow-Up and Documentation

• #2 Diagnosing and Treating Patients with Neuroendocrine Tumors and Carcinoid Syndrome

  https://www.oncnursingnews.com/view/diagnosing-and-treating-patients-with-neuroendocrine-tumors-and-carcinoid-syndrome

  Despite the reputation as an indolent disease, NETs are highly malignant and nearly all disease recurs. […] Quality of life can be dramatically improved for NET and carcinoid syndrome patients. […] Its also important to tailor a treatment plan based on the patients specific symptoms and then work collaboratively with all relevant care team members to treat the whole patient.

• #2 Guidelines

  https://nanets.net/net-guidelines-library

  Practical Considerations when providing Palliative Care to patients with Neuroendocrine Tumors in the context of routine disease management or hospice care […] 2017 The North American Neuroendocrine Tumor Society Consensus Guidelines for Surveillance and Medical Management of Midgut Neuroendocrine Tumors […] The guideline process will include patient and service users engagement, as aligned with the Armstrong framework for enhancing clinical practice guidelines through continuous patient engagement.

• #2 Neuroendocrine Tumors (NETs) | Knight Cancer Institute | OHSU

  https://www.ohsu.edu/knight-cancer-institute/neuroendocrine-tumors-nets

  Somatostatin analogs are medications given by shot that slow a tumor’s hormone production and control its growth. […] Targeted therapy works at the molecular level, attacking cancer cells while minimizing damage to healthy cells. […] Radiation therapy uses targeted beams of energy to kill cancer cells. For NETs, it’s often used to control cancer that has spread to another part of the body. […] Nuclear medicine is a newer type of treatment for NETs that combines the precision of targeted therapy with the power of radiation therapy. […] When NETs spread, they often spread to the liver. If the cancer can’t be removed with surgery, it may be treated with embolization. […] Chemotherapy medications fight cancer cells by preventing them from growing or dividing. Chemo is usually given as pills or by IV. It can be used before surgery to shrink a tumor or after surgery to kill any cancer cells that remain. […] We are running clinical trials to test promising treatments for NETs.

• #2 Neuroendocrine Tumors – Gastrointestinal Cancer | UCLA Health Jonsson Comprehensive Cancer Center

  https://www.uclahealth.org/cancer/cancer-services/gi-cancer/conditions/neuroendocrine-tumors

  Before you decide on a treatment plan, our tumor board will discuss your case. The tumor board is a meeting of doctors in many different specialties. These experts consider state-of-the-art treatment approaches, innovative research protocols and evidence-based medicine to offer your best treatment options. […] With world-class programs for pancreas diseases, liver transplantation, cancer and nuclear medicine, our team is committed to finding the best treatment for each individual. Your care may include: […] PRRT combines a cell-targeting protein (or peptide) with a small radionuclide (or radioactive material). You take this hormone-like drug intravenously, so that it travels to tumor cells and delivers a high dose of radiation to destroy the tumor. […] For NETs in the upper GI tract, your doctor may be able to use an endoscope inserted through your throat to reach the tumor.

• #2 Neuroendocrine Tumors, Neuroendocrine Cancer – UChicago Medicine

  https://www.uchicagomedicine.org/cancer/types-treatments/neuroendocrine-tumors

  A neuroendocrine tumor clinic that allows patients to be seen by medical oncologists and surgeons at the same time, reducing visits to the medical center. […] Advanced techniques for surgical removal of NETs, including minimally invasive and robotic procedures, as well as complex approaches to remove and destroy NETs that have spread to the liver even in those cases where multiple liver lesions are detected. […] UChicago Medicine physicians can analyze your genetic profile to help determine whether precision medicine treatments may be effective with your individual disease. […] Researchers conducting the latest studies on NETs, both in the laboratory and the clinic.

• #2 Neuroendocrine tumours | Cancer Council

  https://www.cancer.org.au/cancer-information/types-of-cancer/rare-cancers/neuroendocrine-tumours

  In some cases of neuroendocrine tumours, your medical team may talk to you about palliative care. Palliative care aims to improve your quality of life by alleviating symptoms of cancer. […] As well as slowing the spread of neuroendocrine tumours, palliative treatment can relieve pain and help manage other symptoms. […] Depending on your treatment, your treatment team may consist of a number of different health professionals, such as: GP (General Practitioner) – looks after your general health and works with your specialists to coordinate treatment. […] Cancer nurse – assists with treatment and provides information and support throughout your treatment.

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