Materiały źródłowe

• #1 Trimethylaminuria: MedlinePlus GeneticsLock

  https://medlineplus.gov/genetics/condition/trimethylaminuria/

  Trimethylaminuria is a disorder in which the body is unable to break down trimethylamine, a chemical compound that has a pungent odor. Trimethylamine has been described as smelling like rotten or decaying fish. As this compound builds up in the body, it causes affected people to give off a strong fishy odor in their sweat, urine, and breath. The intensity of the odor may vary over time. The odor can interfere with many aspects of daily life, affecting a person’s relationships, social life, and career. Some people with trimethylaminuria experience depression and social isolation as a result of this condition. […] Most cases of trimethylaminuria appear to be inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have variants. Most often, the parents of an individual with an autosomal recessive condition each carry one copy of the altered gene, but typically do not show signs and symptoms of the condition. Carriers of an FMO3 variant, however, may have mild symptoms of trimethylaminuria or experience temporary episodes of strong body odor.

• #2 Trimethylaminuria (Fish Odor Syndrome or TMAU)

  https://my.clevelandclinic.org/health/diseases/22356-trimethylaminuria-fish-odor-syndrome

  Trimethylaminuria (TMAU, fish odor syndrome) is an uncommon condition that makes people smell like rotten fish. Its a metabolic disorder. […] Theres no cure for TMAU. But healthcare providers may recommend that you change food choices, stress management techniques and medication to reduce symptoms. […] Changing the kinds of food that you eat, using certain soaps and lotions, and managing stress can help reduce trimethylaminuria symptoms. […] Your healthcare provider may recommend avoiding certain foods that make your body produce the chemical that causes TMAU. They may also suggest using specific soaps and lotions to help remove the fishy smell from your skin. They may prescribe medication and mental health support. […] Self-care is an important part of living with TMAU, including: Using low pH soaps and lotions may reduce your body odor.

• #3 Monell’s TMAU Legacy – Monell Chemical Senses Center

  https://monell.org/tmau/

  Trimethylaminuria (TMAU), sometimes known as “Fish-Odor Syndrome,” is a genetically transmitted metabolic disorder. The main symptom of TMAU is a foul-smelling body odor. The odor can smell like fish in some patients and like garbage in others. […] Currently there is no cure for TMAU, but treatment options, including avoidance of choline-containing foods, may help reduce odor production. However, choline is an essential nutrient that is needed by your body for many functions. This means that restricting your choline intake without having definitive biochemical TMAU testing and diagnosis could be detrimental to your health. Always consult your physician before trying to restrict dietary choline. […] Experts who have tackled the choline question to better understand TMAU recommend consulting a registered dietitian and/or a licensed nutritionist before making major changes in your diet.

• #4 Azthena logo with the word Azthena

  https://www.news-medical.net/health/Fish-Odour-Syndrome-(Trimethylaminuria).aspx

  Fish odour syndrome, also known as trimethylaminuria, is a disorder that causes a strong odour in the urine, sweat and breath of affected individuals, described as similar to rotting fish. […] Currently there is no specific treatment or cure for fish odour syndrome, but those affected can manage the condition using several recognized techniques. Using a slightly acidic soap (pH 5.5-6.5) can effectively remove traces of trimethylamine from skin and hair, helping to reduce associated odour. Additionally, recognising the foods that worsen the condition and changing the diet accordingly can lessen the impact. […] It is important for individuals to receive sufficient psychosocial help to assist them in daily life and address the issues that fish odour syndrome places on their wellbeing.

• #5 Trimethylaminuria

  https://dermnetnz.org/topics/trimethylaminuria

  Trimethylaminuria is also known as fish (mal)odour syndrome because of the characteristic fishy body odour. […] In trimethylaminuria, this malodourous molecule is excreted in sweat, urine, breath, saliva, vaginal and other body secretions. It is one of the causes of bromhidrosis (malodorous sweat). […] The only feature of this condition is the bad body smell (including halitosis bad breath), of which the sufferer may be completely unaware. Sufferers are otherwise physically well with normal mental and general development. […] However, this offensive body odour causes major social issues resulting in psychological distress and some develop an obsession about personal cleanliness. […] Counselling sufferers is a most important part of treatment as it acknowledges their medical condition and explains the cause.

• #6 Trimethylaminuria: Understanding and Treating Fish Odor Syndrome

  https://www.healthline.com/health/trimethylaminuria

  Those with trimethylaminuria produce a body scent thats fish-like. Avoiding certain seafood and eggs can help you manage the smell but will not cure it. […] People who live with it may find themselves feeling self-conscious because their breath and urine have a strong fish odor. […] Trimethylaminuria is typically caused by mutations to the FMO3 gene. […] The most common sign and symptom of trimethylaminuria is a strong fish-like odor. It may be released in sweat, breath, urine, and reproductive fluids. […] While trimethylaminuria does not typically have any other physical symptoms besides a fishy odor, it can cause people to socially isolate themselves and lead to depression. […] No cure currently exists for trimethylaminuria. However, you may be able to manage it by carefully choosing what foods you consume.

• #7 Trimethylaminuria: Understanding and Treating Fish Odor Syndrome

  https://www.healthline.com/health/trimethylaminuria

  Those with trimethylaminuria produce a body scent thats fish-like. Avoiding certain seafood and eggs can help you manage the smell but will not cure it. […] People who live with it may find themselves feeling self-conscious because their breath and urine have a strong fish odor. […] Trimethylaminuria is typically caused by mutations to the FMO3 gene. […] The most common sign and symptom of trimethylaminuria is a strong fish-like odor. It may be released in sweat, breath, urine, and reproductive fluids. […] While trimethylaminuria does not typically have any other physical symptoms besides a fishy odor, it can cause people to socially isolate themselves and lead to depression. […] No cure currently exists for trimethylaminuria. However, you may be able to manage it by carefully choosing what foods you consume.

• #8 Trimethylaminuria: MedlinePlus GeneticsLock

  https://medlineplus.gov/genetics/condition/trimethylaminuria/

  Trimethylaminuria is a disorder in which the body is unable to break down trimethylamine, a chemical compound that has a pungent odor. Trimethylamine has been described as smelling like rotten or decaying fish. As this compound builds up in the body, it causes affected people to give off a strong fishy odor in their sweat, urine, and breath. The intensity of the odor may vary over time. The odor can interfere with many aspects of daily life, affecting a person’s relationships, social life, and career. Some people with trimethylaminuria experience depression and social isolation as a result of this condition. […] Most cases of trimethylaminuria appear to be inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have variants. Most often, the parents of an individual with an autosomal recessive condition each carry one copy of the altered gene, but typically do not show signs and symptoms of the condition. Carriers of an FMO3 variant, however, may have mild symptoms of trimethylaminuria or experience temporary episodes of strong body odor.

• #9 Reddit – The heart of the internet

  https://www.reddit.com/r/offmychest/comments/12gfsvl/i_suffer_from_a_condition_that_makes_me_smell_bad/

  I suffer from a condition that makes me smell bad and it has affected my quality of life for so long. I’m a 25 year old woman and I have been dealing with a condition called TMAU type 2. Here’s a short description of what it is: „TMA is formed by bacteria in the mammalian gut from reduction of compounds such as trimethylamine-N-oxide (TMAO) and choline. Primary trimethylaminuria sufferers have an inherited enzyme deficiency where TMA is not efficiently converted to the non-odorous TMAO in the liver.” […] There is no cure for this as of yet. So basically I’m missing an enzyme that most people have and so it causes chronic body odor. […] For now, the best thing that helps keep this at a minimum is a very very restrictive diet and consumption of probiotics through kefir or kombucha. It does help but it’s not a perfect solution. […] The other thing that makes this difficult for me is the paranoia whenever I go out. It’s mainly anxiety and paranoia. I do better now but it caused a serious depression when I was younger.

• #10 Is There A Cure for Fish Odor Syndrome?

  https://www.medicinenet.com/is_there_a_cure_for_fish_odor_syndrome/article.htm

  Excess trimethylamine is the cause of the fishy odor or rotten fish odor. […] To this day, there is no cure for fish odor syndrome or trimethylaminuria, and only palliative care exists that mainly involves: […] Diet modification that includes avoidance of choline-rich foods such as: […] Treatment with antibiotics and probiotics […] Activated charcoal to remove an excess of trimethylamine. […] Moreover, behavioral counseling may also prove beneficial in treating depression, anxiety, and other psychological disorders associated with fish odor syndrome. […] Fish odor syndrome or trimethylaminuria is a condition characterized by a fishy body odor that is released in the sweat, urine, breath and reproductive fluids due to excessive excretion of trimethylamine. […] The fishy odor may get worse with increased sweating, exercising, and emotional stress.

• #11 Trimethylaminuria

  https://dermnetnz.org/topics/trimethylaminuria

  Trimethylaminuria is also known as fish (mal)odour syndrome because of the characteristic fishy body odour. […] In trimethylaminuria, this malodourous molecule is excreted in sweat, urine, breath, saliva, vaginal and other body secretions. It is one of the causes of bromhidrosis (malodorous sweat). […] The only feature of this condition is the bad body smell (including halitosis bad breath), of which the sufferer may be completely unaware. Sufferers are otherwise physically well with normal mental and general development. […] However, this offensive body odour causes major social issues resulting in psychological distress and some develop an obsession about personal cleanliness. […] Counselling sufferers is a most important part of treatment as it acknowledges their medical condition and explains the cause.

• #12 Trimethylaminuria: Understanding and Treating Fish Odor Syndrome

  https://www.healthline.com/health/trimethylaminuria

  Those with trimethylaminuria produce a body scent thats fish-like. Avoiding certain seafood and eggs can help you manage the smell but will not cure it. […] People who live with it may find themselves feeling self-conscious because their breath and urine have a strong fish odor. […] Trimethylaminuria is typically caused by mutations to the FMO3 gene. […] The most common sign and symptom of trimethylaminuria is a strong fish-like odor. It may be released in sweat, breath, urine, and reproductive fluids. […] While trimethylaminuria does not typically have any other physical symptoms besides a fishy odor, it can cause people to socially isolate themselves and lead to depression. […] No cure currently exists for trimethylaminuria. However, you may be able to manage it by carefully choosing what foods you consume.

• #13 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  The characteristic fishy odor associated with TMAU can lead to significant social and psychological distress. Individuals with TMAU may experience embarrassment, social isolation, and low self-esteem due to the persistent and often unpredictable nature of the odor. Patient education plays a vital role in TMAU management by empowering individuals with knowledge about their condition and providing them with strategies to cope with its challenges.

• #14 A Review of Trimethylaminuria: (Fish Odor Syndrome)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3848652/

  Trimethylaminuria, better known as fish odor syndrome, is a psychologically disabling condition in which a patient emits a foul odor, which resembles that of rotting fish. […] While there is no cure, many simple treatment options exist that may drastically improve the quality of life of these patients. […] This article provides a brief review of the literature with an emphasis on the psychosocial impact of the condition and treatment options. […] Patients with FOS are often ridiculed and suffer from low self-esteem. […] It is of great importance to offer a referral to psychiatric counseling and to screen regularly for depression and suicidal ideation. […] While there is no definitive cure at present, it is worth pursuing this diagnosis if clinically indicated as there are reliable diagnostic tests and efficacious treatment options. […] There are many options to reduce the severity of the condition, which range from simple lifestyle changes, such as washing with acidic soap and eating a choline-deficient diet to utilizing antibiotics and sequestering agents.

• #15 Trimethylaminuria

  https://dermnetnz.org/topics/trimethylaminuria

  Trimethylaminuria is also known as fish (mal)odour syndrome because of the characteristic fishy body odour. […] In trimethylaminuria, this malodourous molecule is excreted in sweat, urine, breath, saliva, vaginal and other body secretions. It is one of the causes of bromhidrosis (malodorous sweat). […] The only feature of this condition is the bad body smell (including halitosis bad breath), of which the sufferer may be completely unaware. Sufferers are otherwise physically well with normal mental and general development. […] However, this offensive body odour causes major social issues resulting in psychological distress and some develop an obsession about personal cleanliness. […] Counselling sufferers is a most important part of treatment as it acknowledges their medical condition and explains the cause.

• #16 Reddit – The heart of the internet

  https://www.reddit.com/r/offmychest/comments/12gfsvl/i_suffer_from_a_condition_that_makes_me_smell_bad/

  I suffer from a condition that makes me smell bad and it has affected my quality of life for so long. I’m a 25 year old woman and I have been dealing with a condition called TMAU type 2. Here’s a short description of what it is: „TMA is formed by bacteria in the mammalian gut from reduction of compounds such as trimethylamine-N-oxide (TMAO) and choline. Primary trimethylaminuria sufferers have an inherited enzyme deficiency where TMA is not efficiently converted to the non-odorous TMAO in the liver.” […] There is no cure for this as of yet. So basically I’m missing an enzyme that most people have and so it causes chronic body odor. […] For now, the best thing that helps keep this at a minimum is a very very restrictive diet and consumption of probiotics through kefir or kombucha. It does help but it’s not a perfect solution. […] The other thing that makes this difficult for me is the paranoia whenever I go out. It’s mainly anxiety and paranoia. I do better now but it caused a serious depression when I was younger.

• #17 Trimethylaminuria (’fish odour syndrome’) | Health Information from Mediclinic Pharmacy

  https://mediclinicpharmacy.com/nhs_conditions_trimethylaminuria

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. It’s an uncommon condition and they may not have heard of it. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] It can help to avoid certain foods that make the smell worse, such as: cows’ milk, seafood and shellfish, eggs, beans, peanuts, liver and kidney, supplements containing lecithin. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] Many people find living with trimethylaminuria difficult. Feelings of isolation, embarrassment and depression are common. […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #18 Trimethylaminuria: MedlinePlus GeneticsLock

  https://medlineplus.gov/genetics/condition/trimethylaminuria/

  Trimethylaminuria is a disorder in which the body is unable to break down trimethylamine, a chemical compound that has a pungent odor. Trimethylamine has been described as smelling like rotten or decaying fish. As this compound builds up in the body, it causes affected people to give off a strong fishy odor in their sweat, urine, and breath. The intensity of the odor may vary over time. The odor can interfere with many aspects of daily life, affecting a person’s relationships, social life, and career. Some people with trimethylaminuria experience depression and social isolation as a result of this condition. […] Most cases of trimethylaminuria appear to be inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have variants. Most often, the parents of an individual with an autosomal recessive condition each carry one copy of the altered gene, but typically do not show signs and symptoms of the condition. Carriers of an FMO3 variant, however, may have mild symptoms of trimethylaminuria or experience temporary episodes of strong body odor.

• #19 A Review of Trimethylaminuria: (Fish Odor Syndrome)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3848652/

  Trimethylaminuria, better known as fish odor syndrome, is a psychologically disabling condition in which a patient emits a foul odor, which resembles that of rotting fish. […] While there is no cure, many simple treatment options exist that may drastically improve the quality of life of these patients. […] This article provides a brief review of the literature with an emphasis on the psychosocial impact of the condition and treatment options. […] Patients with FOS are often ridiculed and suffer from low self-esteem. […] It is of great importance to offer a referral to psychiatric counseling and to screen regularly for depression and suicidal ideation. […] While there is no definitive cure at present, it is worth pursuing this diagnosis if clinically indicated as there are reliable diagnostic tests and efficacious treatment options. […] There are many options to reduce the severity of the condition, which range from simple lifestyle changes, such as washing with acidic soap and eating a choline-deficient diet to utilizing antibiotics and sequestering agents.

• #20 Is There A Cure for Fish Odor Syndrome?

  https://www.medicinenet.com/is_there_a_cure_for_fish_odor_syndrome/article.htm

  Excess trimethylamine is the cause of the fishy odor or rotten fish odor. […] To this day, there is no cure for fish odor syndrome or trimethylaminuria, and only palliative care exists that mainly involves: […] Diet modification that includes avoidance of choline-rich foods such as: […] Treatment with antibiotics and probiotics […] Activated charcoal to remove an excess of trimethylamine. […] Moreover, behavioral counseling may also prove beneficial in treating depression, anxiety, and other psychological disorders associated with fish odor syndrome. […] Fish odor syndrome or trimethylaminuria is a condition characterized by a fishy body odor that is released in the sweat, urine, breath and reproductive fluids due to excessive excretion of trimethylamine. […] The fishy odor may get worse with increased sweating, exercising, and emotional stress.

• #21 Is There A Cure for Fish Odor Syndrome?

  https://www.medicinenet.com/is_there_a_cure_for_fish_odor_syndrome/article.htm

  The odor may vary from person to person and can interfere with daily aspects of life, leading to social or psychological problems. […] Fish odor syndrome is usually diagnosed based on the symptoms, a clinical examination, and a test to measure the level of trimethylamine in the urine. […] Genetic testing can help to diagnose fish odor syndrome.

• #22 Trimethylaminuria (’fish odour syndrome’) | Health Information from Mediclinic Pharmacy

  https://mediclinicpharmacy.com/nhs_conditions_trimethylaminuria

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. It’s an uncommon condition and they may not have heard of it. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] It can help to avoid certain foods that make the smell worse, such as: cows’ milk, seafood and shellfish, eggs, beans, peanuts, liver and kidney, supplements containing lecithin. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] Many people find living with trimethylaminuria difficult. Feelings of isolation, embarrassment and depression are common. […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #23 Trimethylaminuria (’fish odour syndrome’) – EM Doctors

  https://www.em-doctors.com/conditions/trimethylaminuria

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. It’s an uncommon condition and they may not have heard of it. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] Your doctor may recommend short courses of antibiotics this can help reduce the amount of trimethylamine produced in your gut. […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #24 Trimethylaminuria (Fish Odor Syndrome or TMAU)

  https://my.clevelandclinic.org/health/diseases/22356-trimethylaminuria-fish-odor-syndrome

  Trimethylaminuria (TMAU, fish odor syndrome) is an uncommon condition that makes people smell like rotten fish. Its a metabolic disorder. […] Theres no cure for TMAU. But healthcare providers may recommend that you change food choices, stress management techniques and medication to reduce symptoms. […] Changing the kinds of food that you eat, using certain soaps and lotions, and managing stress can help reduce trimethylaminuria symptoms. […] Your healthcare provider may recommend avoiding certain foods that make your body produce the chemical that causes TMAU. They may also suggest using specific soaps and lotions to help remove the fishy smell from your skin. They may prescribe medication and mental health support. […] Self-care is an important part of living with TMAU, including: Using low pH soaps and lotions may reduce your body odor.

• #25 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  Trimethylaminuria (TMAU) is a rare metabolic disorder resulting in the accumulation of trimethylamine. Proper diagnosis and implementation of appropriate management strategies can help improve symptoms and overall quality of life for patients with TMAU. The management of TMAU focuses on minimizing the symptoms and improving the quality of life for affected individuals. While there is currently no cure for TMAU, various approaches can produce symptom management. Dietary modifications to reduce the intake of TMA precursors are often recommended. Foods rich in choline, carnitine, and TMAO should be limited or avoided. Maintaining good personal hygiene practices, including regular bathing or showering using odor-reducing soaps or washes, can help minimize the odor associated with TMAU. Seeking support from mental health professionals, joining support groups, and engaging in counseling can be valuable in managing the emotional and psychological aspects of living with TMAU. Interprofessional management of TMAU involves a collaborative approach among various healthcare professionals to address the complex challenges associated with this condition. By leveraging the expertise and collaboration of multiple healthcare professionals, the interprofessional management of TMAU aims to provide comprehensive care that addresses the medical, dietary, psychological, and social aspects of the condition.

• #26 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  Trimethylaminuria (TMAU) is a rare metabolic disorder resulting in the accumulation of trimethylamine. Proper diagnosis and implementation of appropriate management strategies can help improve symptoms and overall quality of life for patients with TMAU. The management of TMAU focuses on minimizing the symptoms and improving the quality of life for affected individuals. While there is currently no cure for TMAU, various approaches can produce symptom management. Dietary modifications to reduce the intake of TMA precursors are often recommended. Foods rich in choline, carnitine, and TMAO should be limited or avoided. Maintaining good personal hygiene practices, including regular bathing or showering using odor-reducing soaps or washes, can help minimize the odor associated with TMAU. Seeking support from mental health professionals, joining support groups, and engaging in counseling can be valuable in managing the emotional and psychological aspects of living with TMAU. Interprofessional management of TMAU involves a collaborative approach among various healthcare professionals to address the complex challenges associated with this condition. By leveraging the expertise and collaboration of multiple healthcare professionals, the interprofessional management of TMAU aims to provide comprehensive care that addresses the medical, dietary, psychological, and social aspects of the condition.

• #27 Trimethylaminuria

  https://dermnetnz.org/topics/trimethylaminuria

  Dietary modification is the basis of treatment as avoidance of trimethylamine precursors reduces the body odour. […] Washing with low pH (pH5.5-6.5) soaps and shampoos removes traces of trimethylamine from the skin and hair. […] Some sufferers respond well to courses of neomycin, amoxicillin or metronidazole as these alter the bowel bacteria, reducing the production of trimethylamine. […] Oral copper-chlorophyllin may also give temporary improvement by altering the bowel bacteria.

• #28

  https://111.wales.nhs.uk/encyclopaedia/t/article/Trimethylaminuria(’fishodoursyndrome’)/

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] It can help to avoid certain foods that make the smell worse, such as: cows’ milk, seafood and shellfish, eggs, beans, peanuts, liver and kidney, supplements containing lecithin. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] It can also be helpful to: avoid strenuous exercise, try to find ways to relax, wash your skin with slightly acidic soap or shampoo, use anti-perspirant, wash your clothes frequently. […] Your doctor may recommend: short courses of antibiotics, taking certain supplements such as charcoal or riboflavin (vitamin B2). […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #29 Trimethylaminuria (’fish odour syndrome’) | Health Information from Mediclinic Pharmacy

  https://mediclinicpharmacy.com/nhs_conditions_trimethylaminuria

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. It’s an uncommon condition and they may not have heard of it. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] It can help to avoid certain foods that make the smell worse, such as: cows’ milk, seafood and shellfish, eggs, beans, peanuts, liver and kidney, supplements containing lecithin. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] Many people find living with trimethylaminuria difficult. Feelings of isolation, embarrassment and depression are common. […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #30 Is There A Cure for Fish Odor Syndrome?

  https://www.medicinenet.com/is_there_a_cure_for_fish_odor_syndrome/article.htm

  Excess trimethylamine is the cause of the fishy odor or rotten fish odor. […] To this day, there is no cure for fish odor syndrome or trimethylaminuria, and only palliative care exists that mainly involves: […] Diet modification that includes avoidance of choline-rich foods such as: […] Treatment with antibiotics and probiotics […] Activated charcoal to remove an excess of trimethylamine. […] Moreover, behavioral counseling may also prove beneficial in treating depression, anxiety, and other psychological disorders associated with fish odor syndrome. […] Fish odor syndrome or trimethylaminuria is a condition characterized by a fishy body odor that is released in the sweat, urine, breath and reproductive fluids due to excessive excretion of trimethylamine. […] The fishy odor may get worse with increased sweating, exercising, and emotional stress.

• #31 Monell’s TMAU Legacy – Monell Chemical Senses Center

  https://monell.org/tmau/

  Trimethylaminuria (TMAU), sometimes known as “Fish-Odor Syndrome,” is a genetically transmitted metabolic disorder. The main symptom of TMAU is a foul-smelling body odor. The odor can smell like fish in some patients and like garbage in others. […] Currently there is no cure for TMAU, but treatment options, including avoidance of choline-containing foods, may help reduce odor production. However, choline is an essential nutrient that is needed by your body for many functions. This means that restricting your choline intake without having definitive biochemical TMAU testing and diagnosis could be detrimental to your health. Always consult your physician before trying to restrict dietary choline. […] Experts who have tackled the choline question to better understand TMAU recommend consulting a registered dietitian and/or a licensed nutritionist before making major changes in your diet.

• #32

  https://111.wales.nhs.uk/encyclopaedia/t/article/Trimethylaminuria(’fishodoursyndrome’)/

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] It can help to avoid certain foods that make the smell worse, such as: cows’ milk, seafood and shellfish, eggs, beans, peanuts, liver and kidney, supplements containing lecithin. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] It can also be helpful to: avoid strenuous exercise, try to find ways to relax, wash your skin with slightly acidic soap or shampoo, use anti-perspirant, wash your clothes frequently. […] Your doctor may recommend: short courses of antibiotics, taking certain supplements such as charcoal or riboflavin (vitamin B2). […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #33 Trimethylaminuria: Understanding and Treating Fish Odor Syndrome

  https://www.healthline.com/health/trimethylaminuria

  Additionally, its important to avoid milk from wheat-fed cows. The milk may contain high amounts of TMA. […] You can consult your doctor or healthcare team about the right dosage for any of these medications or supplements. […] People who have trimethylaminuria may feel isolated or develop depression. To find support and get help in dealing with this condition, you can reach out to a therapist, talk with a registered dietitian, or join a support group for people with trimethylaminuria. […] Although theres no cure for trimethylaminuria, changes to your eating habits may help manage it. Therapy and online support groups can also provide important emotional support if you find that your mental and social health are impacted by the condition.

• #34 Azthena logo with the word Azthena

  https://www.news-medical.net/health/Fish-Odour-Syndrome-(Trimethylaminuria).aspx

  Fish odour syndrome, also known as trimethylaminuria, is a disorder that causes a strong odour in the urine, sweat and breath of affected individuals, described as similar to rotting fish. […] Currently there is no specific treatment or cure for fish odour syndrome, but those affected can manage the condition using several recognized techniques. Using a slightly acidic soap (pH 5.5-6.5) can effectively remove traces of trimethylamine from skin and hair, helping to reduce associated odour. Additionally, recognising the foods that worsen the condition and changing the diet accordingly can lessen the impact. […] It is important for individuals to receive sufficient psychosocial help to assist them in daily life and address the issues that fish odour syndrome places on their wellbeing.

• #35

  https://111.wales.nhs.uk/encyclopaedia/t/article/Trimethylaminuria(’fishodoursyndrome’)/

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] It can help to avoid certain foods that make the smell worse, such as: cows’ milk, seafood and shellfish, eggs, beans, peanuts, liver and kidney, supplements containing lecithin. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] It can also be helpful to: avoid strenuous exercise, try to find ways to relax, wash your skin with slightly acidic soap or shampoo, use anti-perspirant, wash your clothes frequently. […] Your doctor may recommend: short courses of antibiotics, taking certain supplements such as charcoal or riboflavin (vitamin B2). […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #36 Trimethylaminuria

  https://dermnetnz.org/topics/trimethylaminuria

  Dietary modification is the basis of treatment as avoidance of trimethylamine precursors reduces the body odour. […] Washing with low pH (pH5.5-6.5) soaps and shampoos removes traces of trimethylamine from the skin and hair. […] Some sufferers respond well to courses of neomycin, amoxicillin or metronidazole as these alter the bowel bacteria, reducing the production of trimethylamine. […] Oral copper-chlorophyllin may also give temporary improvement by altering the bowel bacteria.

• #37 Trimethylaminuria (Fish Odor Syndrome or TMAU)

  https://my.clevelandclinic.org/health/diseases/22356-trimethylaminuria-fish-odor-syndrome

  Trimethylaminuria (TMAU, fish odor syndrome) is an uncommon condition that makes people smell like rotten fish. Its a metabolic disorder. […] Theres no cure for TMAU. But healthcare providers may recommend that you change food choices, stress management techniques and medication to reduce symptoms. […] Changing the kinds of food that you eat, using certain soaps and lotions, and managing stress can help reduce trimethylaminuria symptoms. […] Your healthcare provider may recommend avoiding certain foods that make your body produce the chemical that causes TMAU. They may also suggest using specific soaps and lotions to help remove the fishy smell from your skin. They may prescribe medication and mental health support. […] Self-care is an important part of living with TMAU, including: Using low pH soaps and lotions may reduce your body odor.

• #38 Trimethylaminuria (’fish odour syndrome’) – EM Doctors

  https://www.em-doctors.com/conditions/trimethylaminuria

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. It’s an uncommon condition and they may not have heard of it. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] Your doctor may recommend short courses of antibiotics this can help reduce the amount of trimethylamine produced in your gut. […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #39

  https://111.wales.nhs.uk/encyclopaedia/t/article/Trimethylaminuria(’fishodoursyndrome’)/

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] It can help to avoid certain foods that make the smell worse, such as: cows’ milk, seafood and shellfish, eggs, beans, peanuts, liver and kidney, supplements containing lecithin. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] It can also be helpful to: avoid strenuous exercise, try to find ways to relax, wash your skin with slightly acidic soap or shampoo, use anti-perspirant, wash your clothes frequently. […] Your doctor may recommend: short courses of antibiotics, taking certain supplements such as charcoal or riboflavin (vitamin B2). […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #40 Trimethylaminuria

  https://dermnetnz.org/topics/trimethylaminuria

  Dietary modification is the basis of treatment as avoidance of trimethylamine precursors reduces the body odour. […] Washing with low pH (pH5.5-6.5) soaps and shampoos removes traces of trimethylamine from the skin and hair. […] Some sufferers respond well to courses of neomycin, amoxicillin or metronidazole as these alter the bowel bacteria, reducing the production of trimethylamine. […] Oral copper-chlorophyllin may also give temporary improvement by altering the bowel bacteria.

• #41 Is There A Cure for Fish Odor Syndrome?

  https://www.medicinenet.com/is_there_a_cure_for_fish_odor_syndrome/article.htm

  Excess trimethylamine is the cause of the fishy odor or rotten fish odor. […] To this day, there is no cure for fish odor syndrome or trimethylaminuria, and only palliative care exists that mainly involves: […] Diet modification that includes avoidance of choline-rich foods such as: […] Treatment with antibiotics and probiotics […] Activated charcoal to remove an excess of trimethylamine. […] Moreover, behavioral counseling may also prove beneficial in treating depression, anxiety, and other psychological disorders associated with fish odor syndrome. […] Fish odor syndrome or trimethylaminuria is a condition characterized by a fishy body odor that is released in the sweat, urine, breath and reproductive fluids due to excessive excretion of trimethylamine. […] The fishy odor may get worse with increased sweating, exercising, and emotional stress.

• #42 Reddit – The heart of the internet

  https://www.reddit.com/r/offmychest/comments/12gfsvl/i_suffer_from_a_condition_that_makes_me_smell_bad/

  I suffer from a condition that makes me smell bad and it has affected my quality of life for so long. I’m a 25 year old woman and I have been dealing with a condition called TMAU type 2. Here’s a short description of what it is: „TMA is formed by bacteria in the mammalian gut from reduction of compounds such as trimethylamine-N-oxide (TMAO) and choline. Primary trimethylaminuria sufferers have an inherited enzyme deficiency where TMA is not efficiently converted to the non-odorous TMAO in the liver.” […] There is no cure for this as of yet. So basically I’m missing an enzyme that most people have and so it causes chronic body odor. […] For now, the best thing that helps keep this at a minimum is a very very restrictive diet and consumption of probiotics through kefir or kombucha. It does help but it’s not a perfect solution. […] The other thing that makes this difficult for me is the paranoia whenever I go out. It’s mainly anxiety and paranoia. I do better now but it caused a serious depression when I was younger.

• #43 Trimethylaminuria: Understanding and Treating Fish Odor Syndrome

  https://www.healthline.com/health/trimethylaminuria

  Additionally, its important to avoid milk from wheat-fed cows. The milk may contain high amounts of TMA. […] You can consult your doctor or healthcare team about the right dosage for any of these medications or supplements. […] People who have trimethylaminuria may feel isolated or develop depression. To find support and get help in dealing with this condition, you can reach out to a therapist, talk with a registered dietitian, or join a support group for people with trimethylaminuria. […] Although theres no cure for trimethylaminuria, changes to your eating habits may help manage it. Therapy and online support groups can also provide important emotional support if you find that your mental and social health are impacted by the condition.

• #44 A Review of Trimethylaminuria: (Fish Odor Syndrome)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3848652/

  Trimethylaminuria, better known as fish odor syndrome, is a psychologically disabling condition in which a patient emits a foul odor, which resembles that of rotting fish. […] While there is no cure, many simple treatment options exist that may drastically improve the quality of life of these patients. […] This article provides a brief review of the literature with an emphasis on the psychosocial impact of the condition and treatment options. […] Patients with FOS are often ridiculed and suffer from low self-esteem. […] It is of great importance to offer a referral to psychiatric counseling and to screen regularly for depression and suicidal ideation. […] While there is no definitive cure at present, it is worth pursuing this diagnosis if clinically indicated as there are reliable diagnostic tests and efficacious treatment options. […] There are many options to reduce the severity of the condition, which range from simple lifestyle changes, such as washing with acidic soap and eating a choline-deficient diet to utilizing antibiotics and sequestering agents.

• #45 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  The characteristic fishy odor associated with TMAU can lead to significant social and psychological distress. Individuals with TMAU may experience embarrassment, social isolation, and low self-esteem due to the persistent and often unpredictable nature of the odor. Patient education plays a vital role in TMAU management by empowering individuals with knowledge about their condition and providing them with strategies to cope with its challenges.

• #46 Trimethylaminuria: Understanding and Treating Fish Odor Syndrome

  https://www.healthline.com/health/trimethylaminuria

  Additionally, its important to avoid milk from wheat-fed cows. The milk may contain high amounts of TMA. […] You can consult your doctor or healthcare team about the right dosage for any of these medications or supplements. […] People who have trimethylaminuria may feel isolated or develop depression. To find support and get help in dealing with this condition, you can reach out to a therapist, talk with a registered dietitian, or join a support group for people with trimethylaminuria. […] Although theres no cure for trimethylaminuria, changes to your eating habits may help manage it. Therapy and online support groups can also provide important emotional support if you find that your mental and social health are impacted by the condition.

• #47 Is There A Cure for Fish Odor Syndrome?

  https://www.medicinenet.com/is_there_a_cure_for_fish_odor_syndrome/article.htm

  Excess trimethylamine is the cause of the fishy odor or rotten fish odor. […] To this day, there is no cure for fish odor syndrome or trimethylaminuria, and only palliative care exists that mainly involves: […] Diet modification that includes avoidance of choline-rich foods such as: […] Treatment with antibiotics and probiotics […] Activated charcoal to remove an excess of trimethylamine. […] Moreover, behavioral counseling may also prove beneficial in treating depression, anxiety, and other psychological disorders associated with fish odor syndrome. […] Fish odor syndrome or trimethylaminuria is a condition characterized by a fishy body odor that is released in the sweat, urine, breath and reproductive fluids due to excessive excretion of trimethylamine. […] The fishy odor may get worse with increased sweating, exercising, and emotional stress.

• #48 Trimethylaminuria (Fish Odor Syndrome or TMAU)

  https://my.clevelandclinic.org/health/diseases/22356-trimethylaminuria-fish-odor-syndrome

  Stress can make TMAU symptoms worse. Ask your provider about stress management techniques that can help you lower stress that leads to a more noticeable odor. […] If changing the kinds of food that you eat or managing stress doesnt help ease your symptoms. Theyll have other treatment options for you to consider. […] Trimethylaminuria is an uncommon metabolic condition that makes people smell bad. […] Social isolation may make you feel depressed or anxious. If thats your situation, ask your healthcare provider for help, including mental health support.

• #49 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  Trimethylaminuria (TMAU) is a rare metabolic disorder resulting in the accumulation of trimethylamine. Proper diagnosis and implementation of appropriate management strategies can help improve symptoms and overall quality of life for patients with TMAU. The management of TMAU focuses on minimizing the symptoms and improving the quality of life for affected individuals. While there is currently no cure for TMAU, various approaches can produce symptom management. Dietary modifications to reduce the intake of TMA precursors are often recommended. Foods rich in choline, carnitine, and TMAO should be limited or avoided. Maintaining good personal hygiene practices, including regular bathing or showering using odor-reducing soaps or washes, can help minimize the odor associated with TMAU. Seeking support from mental health professionals, joining support groups, and engaging in counseling can be valuable in managing the emotional and psychological aspects of living with TMAU. Interprofessional management of TMAU involves a collaborative approach among various healthcare professionals to address the complex challenges associated with this condition. By leveraging the expertise and collaboration of multiple healthcare professionals, the interprofessional management of TMAU aims to provide comprehensive care that addresses the medical, dietary, psychological, and social aspects of the condition.

• #50 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  Trimethylaminuria (TMAU) is a rare metabolic disorder resulting in the accumulation of trimethylamine. Proper diagnosis and implementation of appropriate management strategies can help improve symptoms and overall quality of life for patients with TMAU. The management of TMAU focuses on minimizing the symptoms and improving the quality of life for affected individuals. While there is currently no cure for TMAU, various approaches can produce symptom management. Dietary modifications to reduce the intake of TMA precursors are often recommended. Foods rich in choline, carnitine, and TMAO should be limited or avoided. Maintaining good personal hygiene practices, including regular bathing or showering using odor-reducing soaps or washes, can help minimize the odor associated with TMAU. Seeking support from mental health professionals, joining support groups, and engaging in counseling can be valuable in managing the emotional and psychological aspects of living with TMAU. Interprofessional management of TMAU involves a collaborative approach among various healthcare professionals to address the complex challenges associated with this condition. By leveraging the expertise and collaboration of multiple healthcare professionals, the interprofessional management of TMAU aims to provide comprehensive care that addresses the medical, dietary, psychological, and social aspects of the condition.

• #51 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  The characteristic fishy odor associated with TMAU can lead to significant social and psychological distress. Individuals with TMAU may experience embarrassment, social isolation, and low self-esteem due to the persistent and often unpredictable nature of the odor. Patient education plays a vital role in TMAU management by empowering individuals with knowledge about their condition and providing them with strategies to cope with its challenges.

• #52 A Review of Trimethylaminuria: (Fish Odor Syndrome)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3848652/

  Trimethylaminuria, better known as fish odor syndrome, is a psychologically disabling condition in which a patient emits a foul odor, which resembles that of rotting fish. […] While there is no cure, many simple treatment options exist that may drastically improve the quality of life of these patients. […] This article provides a brief review of the literature with an emphasis on the psychosocial impact of the condition and treatment options. […] Patients with FOS are often ridiculed and suffer from low self-esteem. […] It is of great importance to offer a referral to psychiatric counseling and to screen regularly for depression and suicidal ideation. […] While there is no definitive cure at present, it is worth pursuing this diagnosis if clinically indicated as there are reliable diagnostic tests and efficacious treatment options. […] There are many options to reduce the severity of the condition, which range from simple lifestyle changes, such as washing with acidic soap and eating a choline-deficient diet to utilizing antibiotics and sequestering agents.

• #53 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  Trimethylaminuria (TMAU) is a rare metabolic disorder resulting in the accumulation of trimethylamine. Proper diagnosis and implementation of appropriate management strategies can help improve symptoms and overall quality of life for patients with TMAU. The management of TMAU focuses on minimizing the symptoms and improving the quality of life for affected individuals. While there is currently no cure for TMAU, various approaches can produce symptom management. Dietary modifications to reduce the intake of TMA precursors are often recommended. Foods rich in choline, carnitine, and TMAO should be limited or avoided. Maintaining good personal hygiene practices, including regular bathing or showering using odor-reducing soaps or washes, can help minimize the odor associated with TMAU. Seeking support from mental health professionals, joining support groups, and engaging in counseling can be valuable in managing the emotional and psychological aspects of living with TMAU. Interprofessional management of TMAU involves a collaborative approach among various healthcare professionals to address the complex challenges associated with this condition. By leveraging the expertise and collaboration of multiple healthcare professionals, the interprofessional management of TMAU aims to provide comprehensive care that addresses the medical, dietary, psychological, and social aspects of the condition.

• #54 Trimethylaminuria (Fish Odor Syndrome or TMAU)

  https://my.clevelandclinic.org/health/diseases/22356-trimethylaminuria-fish-odor-syndrome

  Trimethylaminuria (TMAU, fish odor syndrome) is an uncommon condition that makes people smell like rotten fish. Its a metabolic disorder. […] Theres no cure for TMAU. But healthcare providers may recommend that you change food choices, stress management techniques and medication to reduce symptoms. […] Changing the kinds of food that you eat, using certain soaps and lotions, and managing stress can help reduce trimethylaminuria symptoms. […] Your healthcare provider may recommend avoiding certain foods that make your body produce the chemical that causes TMAU. They may also suggest using specific soaps and lotions to help remove the fishy smell from your skin. They may prescribe medication and mental health support. […] Self-care is an important part of living with TMAU, including: Using low pH soaps and lotions may reduce your body odor.

• #55

  https://111.wales.nhs.uk/encyclopaedia/t/article/Trimethylaminuria(’fishodoursyndrome’)/

  Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It’s also called „fish odour syndrome.” […] There’s currently no cure, but there are things that can help. […] See a GP if you notice a strong, unpleasant smell that doesn’t go away. […] Tell your GP if you think it might be trimethylaminuria. […] There’s currently no cure for trimethylaminuria, but some things might help with the smell. […] It can help to avoid certain foods that make the smell worse, such as: cows’ milk, seafood and shellfish, eggs, beans, peanuts, liver and kidney, supplements containing lecithin. […] Your specialist can refer you to a dietitian for advice. They’ll help you make sure your diet still contains all the nutrients you need. […] It can also be helpful to: avoid strenuous exercise, try to find ways to relax, wash your skin with slightly acidic soap or shampoo, use anti-perspirant, wash your clothes frequently. […] Your doctor may recommend: short courses of antibiotics, taking certain supplements such as charcoal or riboflavin (vitamin B2). […] Tell your doctor if you’re struggling to cope. They may recommend seeing a counsellor for emotional support.

• #56 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  Trimethylaminuria (TMAU) is a rare metabolic disorder resulting in the accumulation of trimethylamine. Proper diagnosis and implementation of appropriate management strategies can help improve symptoms and overall quality of life for patients with TMAU. The management of TMAU focuses on minimizing the symptoms and improving the quality of life for affected individuals. While there is currently no cure for TMAU, various approaches can produce symptom management. Dietary modifications to reduce the intake of TMA precursors are often recommended. Foods rich in choline, carnitine, and TMAO should be limited or avoided. Maintaining good personal hygiene practices, including regular bathing or showering using odor-reducing soaps or washes, can help minimize the odor associated with TMAU. Seeking support from mental health professionals, joining support groups, and engaging in counseling can be valuable in managing the emotional and psychological aspects of living with TMAU. Interprofessional management of TMAU involves a collaborative approach among various healthcare professionals to address the complex challenges associated with this condition. By leveraging the expertise and collaboration of multiple healthcare professionals, the interprofessional management of TMAU aims to provide comprehensive care that addresses the medical, dietary, psychological, and social aspects of the condition.

• #57 Trimethylaminuria: Understanding and Treating Fish Odor Syndrome

  https://www.healthline.com/health/trimethylaminuria

  Additionally, its important to avoid milk from wheat-fed cows. The milk may contain high amounts of TMA. […] You can consult your doctor or healthcare team about the right dosage for any of these medications or supplements. […] People who have trimethylaminuria may feel isolated or develop depression. To find support and get help in dealing with this condition, you can reach out to a therapist, talk with a registered dietitian, or join a support group for people with trimethylaminuria. […] Although theres no cure for trimethylaminuria, changes to your eating habits may help manage it. Therapy and online support groups can also provide important emotional support if you find that your mental and social health are impacted by the condition.

• #58 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  The characteristic fishy odor associated with TMAU can lead to significant social and psychological distress. Individuals with TMAU may experience embarrassment, social isolation, and low self-esteem due to the persistent and often unpredictable nature of the odor. Patient education plays a vital role in TMAU management by empowering individuals with knowledge about their condition and providing them with strategies to cope with its challenges.

• #59 Is There A Cure for Fish Odor Syndrome?

  https://www.medicinenet.com/is_there_a_cure_for_fish_odor_syndrome/article.htm

  The odor may vary from person to person and can interfere with daily aspects of life, leading to social or psychological problems. […] Fish odor syndrome is usually diagnosed based on the symptoms, a clinical examination, and a test to measure the level of trimethylamine in the urine. […] Genetic testing can help to diagnose fish odor syndrome.

• #60 Trimethylaminuria: Understanding and Treating Fish Odor Syndrome

  https://www.healthline.com/health/trimethylaminuria

  Additionally, its important to avoid milk from wheat-fed cows. The milk may contain high amounts of TMA. […] You can consult your doctor or healthcare team about the right dosage for any of these medications or supplements. […] People who have trimethylaminuria may feel isolated or develop depression. To find support and get help in dealing with this condition, you can reach out to a therapist, talk with a registered dietitian, or join a support group for people with trimethylaminuria. […] Although theres no cure for trimethylaminuria, changes to your eating habits may help manage it. Therapy and online support groups can also provide important emotional support if you find that your mental and social health are impacted by the condition.

• #61 Azthena logo with the word Azthena

  https://www.news-medical.net/health/Fish-Odour-Syndrome-(Trimethylaminuria).aspx

  Fish odour syndrome, also known as trimethylaminuria, is a disorder that causes a strong odour in the urine, sweat and breath of affected individuals, described as similar to rotting fish. […] Currently there is no specific treatment or cure for fish odour syndrome, but those affected can manage the condition using several recognized techniques. Using a slightly acidic soap (pH 5.5-6.5) can effectively remove traces of trimethylamine from skin and hair, helping to reduce associated odour. Additionally, recognising the foods that worsen the condition and changing the diet accordingly can lessen the impact. […] It is important for individuals to receive sufficient psychosocial help to assist them in daily life and address the issues that fish odour syndrome places on their wellbeing.

• #62 Trimethylaminuria – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK594255/

  Trimethylaminuria (TMAU) is a rare metabolic disorder resulting in the accumulation of trimethylamine. Proper diagnosis and implementation of appropriate management strategies can help improve symptoms and overall quality of life for patients with TMAU. The management of TMAU focuses on minimizing the symptoms and improving the quality of life for affected individuals. While there is currently no cure for TMAU, various approaches can produce symptom management. Dietary modifications to reduce the intake of TMA precursors are often recommended. Foods rich in choline, carnitine, and TMAO should be limited or avoided. Maintaining good personal hygiene practices, including regular bathing or showering using odor-reducing soaps or washes, can help minimize the odor associated with TMAU. Seeking support from mental health professionals, joining support groups, and engaging in counseling can be valuable in managing the emotional and psychological aspects of living with TMAU. Interprofessional management of TMAU involves a collaborative approach among various healthcare professionals to address the complex challenges associated with this condition. By leveraging the expertise and collaboration of multiple healthcare professionals, the interprofessional management of TMAU aims to provide comprehensive care that addresses the medical, dietary, psychological, and social aspects of the condition.

• #63 A Review of Trimethylaminuria: (Fish Odor Syndrome)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3848652/

  Trimethylaminuria, better known as fish odor syndrome, is a psychologically disabling condition in which a patient emits a foul odor, which resembles that of rotting fish. […] While there is no cure, many simple treatment options exist that may drastically improve the quality of life of these patients. […] This article provides a brief review of the literature with an emphasis on the psychosocial impact of the condition and treatment options. […] Patients with FOS are often ridiculed and suffer from low self-esteem. […] It is of great importance to offer a referral to psychiatric counseling and to screen regularly for depression and suicidal ideation. […] While there is no definitive cure at present, it is worth pursuing this diagnosis if clinically indicated as there are reliable diagnostic tests and efficacious treatment options. […] There are many options to reduce the severity of the condition, which range from simple lifestyle changes, such as washing with acidic soap and eating a choline-deficient diet to utilizing antibiotics and sequestering agents.

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