Materiały źródłowe

• #1 Sjögren’s Syndrome: Symptoms & Treatment

  https://my.clevelandclinic.org/health/diseases/4929-sjogrens-syndrome

  Because experts dont know what causes it, theres no way to prevent Sjgrens syndrome. Theres no way to know if (or when) someone will develop it.

• #2 Sjogren’s Syndrome Prevention | Natural Solution For Dry Eyes

  https://www.theralife.com/sjogrens-syndrome-prevention/?srsltid=AfmBOope2O8KQFLpGM7fi_KLl7zoadVTFyiJcxz5FBQy9eGybLEn4rvk

  Because Sjogrens syndrome is felt to be inherited, there is no particular way to prevent developing the disease. […] Although, you can prevent complications and stop symptoms from getting worse by avoiding certain medications, dry environments, caffeine and alcohol, infections, and cavities.

• #3 Sjögren’s Syndrome – European Association of Oral Medicine

  https://eaom.eu/education/eaom-handbook/sjogrens-syndrome/

  In the light of current knowledge the cause of Sjgrens syndrome remains unknown and therefore prevention is not possible. […] Many of the complications of Sjgrens syndrome may however be prevented or symptoms satisfactorily controlled by the strategies already discussed. Early recognition is the key to preventing many of the long-term complications of Sjgrens syndrome and it is important that patients with multi-system involvement are treated by a team of health care professionals. […] Patients with Sjgrens syndrome, like the rest of the population, should strive to maintain a healthy lifestyle with a balanced diet and regular exercise; tobacco smoking and excessive alcohol consumption are best avoided. […] Many European countries now have patient support groups for patients with Sjgrens syndrome; these provide mutual support and helpful advice for coping with symptoms and improving quality of life.

• #4 Sjögren’s Syndrome Program

  https://www.massgeneral.org/medicine/rheumatology/treatments-and-services/sjogrens-syndrome

  In order to slow the progression and minimize the clinical impact of Sjgren’s syndrome, our rheumatologists work closely with specialists throughout Mass General, including ophthalmologists, oral surgeons, neurologists and nephrologists. […] Although there is no cure for Sjgren’s syndrome, early intervention and expert management may help prevent debilitating complications. […] Ongoing basic research in the Division of Rheumatology, Allergy and Immunology aims to identify the events that initiate autoimmune disease. We are hopeful the findings will lead to earlier diagnosis and treatment and even prevention of Sjgren’s syndrome.

• #5 Sjogren’s syndrome | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/sjogrens-syndrome

  There is no cure, but the condition can be managed with medications and products such as artificial tears and saliva as well as mouth washes and lozenges. […] Early diagnosis and treatment are important for preventing future complications. […] There are many things you can do to manage your Sjogren’s syndrome including: Avoid dry and dusty environments. Avoid air drafts or windy weather. Wear protective glasses when outside in the wind and sun. Sip water regularly or suck ice cubes. Avoid strong soaps that may dry out your skin. Try to increase the humidity in your home. Exercise regularly, eat a healthy diet, stop smoking and reduce stress to help your overall health and wellbeing. Eat soft, moist foods if you have trouble swallowing. Eat smaller, more frequent meals to stimulate saliva flow. Use warm (not hot) water when taking a shower or bath. Chew sugarless gum to stimulate saliva. Avoid salty, acidic or spicy foods and carbonated drinks that may be painful if your mouth is dry. Practice good dental hygiene and visit your dentist often.

• #6 Dry eyes, mouth? Patients needed for Sjögren’s syndrome studies at OMRF

  https://omrf.org/2020/07/21/dry-eyes-mouth-patients-needed-for-sjogrens-syndrome-studies-at-omrf/

  Identifying the pathways and targets that drive the abnormal immune response could help uncover the actual cause of the disease, not just the symptoms. This could lead to new approaches for disease prevention, diagnosis and treatment that could directly address the dryness in the disease, restore saliva production and improve other Sjgrens symptoms, said Farris.

• #7 Sjögren Disease | American Dental Association

  https://www.ada.org/resources/ada-library/oral-health-topics/sjogren-disease

  Treatment of Sjgren disease is primarily supportive/palliative, focusing on symptom relief and prevention. […] Alcohol, smoking, and environmental factors such as wind and low humidity can be avoided as they may exacerbate sicca symptoms. […] Although no study results link improved salivary flow to caries prevention, the oral health community generally accepts that increasing saliva may contribute to decreased caries incidence, so increasing saliva through gustatory, masticatory, or pharmaceutical stimulation may be considered.

• #8 Sjögren’s syndrome: state of the art on clinical practice guidelines | RMD Open

  https://rmdopen.bmj.com/content/4/Suppl_1/e000789

  Good quality CPGs on diagnosis and management of SS have been recently published. […] There is a major gap in effective specific therapies capable of decisively impacting on the outcomes of SS. […] Common aspects focused by the majority of CPGs include: (i) the need to reinforce patient education in terms of the disease itself and general measures of symptom relief and complications prevention; (ii) the importance of collaborative multidisciplinary care in diagnosis and follow-up of patients with SS; (iii) the central role of specialised assessment of patients with SS by physicians with expertise and experience in the disease and its various aspects. […] A specific focus should be given to the use/usefulness and standardisation of diagnostic tools, including key ones such as minor salivary gland biopsy and salivary gland ultrasound and others with potentially less current impact like salivary gland scintigraphy and sialography.

• #9 Sjögren’s syndrome – USZ

  https://www.usz.ch/en/disease/sjoegrens-syndrome/

  The diagnosis of Sjgrens syndrome should be made by specialist physicians and regular check-ups are important, especially for the early detection of possible lymphoma or organ involvement that requires therapy adjustment. […] The risk can be significantly reduced if the drug hydroxychloroquine is started before the planned pregnancy.

• #10 Sjögren’s syndrome: state of the art on clinical practice guidelines | RMD Open

  https://rmdopen.bmj.com/content/4/Suppl_1/e000789

  Importantly, EBM recommendations for screening, identification and monitoring of patients at high risk of developing haematological malignant disorders (most importantly non-Hodgkins lymphoma) are also missing. […] Disease self-management programme patient education; lifestyle guidelines along with non-pharmacological approaches exercise; meditation; occupational therapies are interesting resources that lack to be explored and can be key to restore quality of life.

• #11 What Is Sjögren’s Syndrome? Symptoms, Causes, Diagnosis, Treatment, and Prevention

  https://www.everydayhealth.com/sjogrens-syndrome/guide/

  There is no known way to prevent Sjgrens syndrome, but there are treatments and measures you can take to alleviate symptoms like dry eyes and mouth and joint pain. […] Your doctor may suggest the following strategies and treatments: Practice good oral hygiene. Dryness in the mouth can increase your risk for cavities and infections, which is why dental problems are common in people with Sjgrens syndrome. To prevent tooth decay and other problems, brush your teeth after every meal and before bedtime, and floss every day. Your doctor may also recommend prescription toothpastes or mouthwashes that are formulated to treat dry mouth. […] Prevent dry mouth. Take sips of water frequently throughout the day and chew sugar-free gum or suck on sugar-free candy to keep your mouth moist and boost saliva production. (Avoid sugary foods and drinks as they can lead to tooth decay.)

• #12 Sjögren Syndrome

  https://childrenslibrary.ouhealth.com/coronavirus/134,120

  Don’t sit near air conditioning or heating vents. The dry air can also contribute to dry eyes. […] Use preservative-free artificial tears frequently and regularly daily, even if you dont have symptoms. Try sleeping with special eye gels that your healthcare provider can prescribe. […] Use warm compresses daily to soothe irritated eyelids. […] Brush your teeth after each meal. Floss daily to help prevent cavities caused by dry mouth. […] Get routine dental checkups at least twice a year. […] Increase your intake of fluids during the day with small sips of water. […] Chew sugarless gum or suck on sugar-free candy, if needed, to help lubricate your mouth. […] Don’t use mouthwash that contains alcohol. […] Try using a room humidifier at home or at your workplace, especially during winter months. […] When reading, watching TV, or doing computer work, take blink breaks to rest and stabilize the surface of eyes.

• #12 Sjögren Syndrome

  https://childrenslibrary.ouhealth.com/coronavirus/134,120

  There are treatments to help with dry eyes, dry mouth, and pain. But changing your diet can also play a role in easing Sjgren syndrome symptoms. For example, it may be helpful to avoid alcohol, acidic drinks, carbonated drinks, and foods that are spicy, hard, crunchy, or acidic. All of these tend to make symptoms worse. Smooth, soft, and creamy foods like soups, casseroles, and pasta dishes are often good choices. Some people with Sjgren syndrome also have celiac disease and need to avoid gluten as well. […] Experts think that omega-3 fatty acids may help relieve dry eye symptoms. Clinical trials on using supplements are underway. […] The Sjgren’s Foundation also suggests that you: Don’t use medicines that might further dry your eyes, such as certain blood pressure medicines, antihistamines, and antidepressants. Talk with your healthcare provider about these choices.

• #13 Sjogrens syndrome & Symptoms and causes | Apollo Hospitals

  https://www.apollohospitals.com/health-library/sjogrens-syndrome-symptoms-and-causes

  Sjogrens syndrome is an autoimmune disease which is genetic and preventing it might not be possible. However, it is possible to manage the symptoms associated with the condition from getting worse. By taking simple self-care measures, it is possible to lead a healthy and normal life with Sjogrens syndrome. […] Applying eye lubricant or using artificial tears: Applying eye lubricant (ointment, gel) overnight can help restore the moisture in your eyes. Ointments or gels are thick in consistency and tend to blur your vision for sometime after application, so its best to use them during bedtime. For day time eye dryness, use tear drops with no preservatives. The preservatives cause itchiness and redness in people with dry eye syndrome. […] Quit smoking: Smoking increases dryness in the mouth, causing irritation and inflammation.

• #14 Dry Eye in Sjogren’s Syndrome – EyeWiki

  https://eyewiki.org/Dry_Eye_in_Sjogren%27s_Syndrome

  Wearing spectacles or goggles is beneficial in preventing ocular surface drying secondary to exposure. […] In addition, avoidance of desiccating environments, such as proximity of open fireplaces or smoke-filled rooms, should be considered. […] The placement of air conditioning or heating ducts at home and at the workplace should also be considered. […] Systemic medications can adversely affect the ocular surface. […] Reduction or elimination of such medications could decrease the drying of the ocular surface. […] Patients should know to seek ophthalmic care if their eyes become red or painful, or if they develop a mucopurulent discharge.

• #15 Sjogren’s Syndrome – Harvard Health

  https://www.health.harvard.edu/diseases-and-conditions/sjogrens-syndrome-a-to-z

  There is no known way to prevent Sjgren’s syndrome, although you can prevent symptoms from getting worse by avoiding certain medications, dry environments, caffeine, and alcohol. Complications, such as cavities, may be prevented as well. […] Brush your teeth immediately after eating with toothpaste that contains fluoride, and see your dentist frequently. You have a higher risk of tooth decay because you have less saliva, which has antibacterial properties that help protect your teeth, and also washes the surfaces of your teeth. Fluoride and anti-bacterial rinses (such as chlorhexidine-fluoride) may be helpful to prevent dental and periodontal disease.

• #16 Sjogrens syndrome & Symptoms and causes | Apollo Hospitals

  https://www.apollohospitals.com/health-library/sjogrens-syndrome-symptoms-and-causes

  Make your oral hygiene a priority by brushing your teeth twice a day and flossing every day. […] Visit your dentist for regular dental checkups every six months. […] Using an antimicrobial mouthwash and topical fluoride treatments every day can help keep the cavities and infections in your mouth away. […] Avoid using hot water for a shower, as it dries up your skin faster. […] Pat dry with a towel, instead of rubbing. Immediately apply the moisturizer when your skin is still damp. This helps restore the moisture in your skin faster. […] Wear gloves while using household cleaning, like washing dishes etc. to prevent dry hands. […] For women with vaginal dryness, using vaginal lubricants will help.

• #17 Sjögren’s Syndrome Foundation Clinical Practice Guidelines for Oral Disease Management: Caries Prevention – ACR Meeting Abstracts

  https://acrabstracts.org/abstract/sjgrens-syndrome-foundation-clinical-practice-guidelines-for-oral-disease-management-caries-prevention/

  Sjgrens Syndrome Foundation Clinical Practice Guidelines for Oral Disease Management: Caries Prevention […] Final recommendations include: 1) Topical fluoride SHOULD BE USED in all Sjgrens patients with dry mouth (Strong); 2) Chlorhexidine administered by varnish, gel or rinse MAY BE CONSIDERED in SS patients with dry mouth and high root caries rate (Weak); 3) While no studies link improved salivary flow to caries prevention, it is generally accepted by the oral health community that increasing saliva may contribute to decreased caries incidence. Therefore, in SS patients with dry mouth, increasing saliva through gustatory, masticatory or pharmaceutical stimulation (e.g. sugar-free lozenges or chewing gum, pilocarpine or cevimeline) MAY BE CONSIDERED (Weak); and 4) Non-fluoride remineralizing agents MAY BE CONSIDERED as an adjunct therapy in Sjgrens patients with dry mouth and a high root caries rate. (Moderate). […] The incidence of caries in SS patients can be lessened with the use of topical fluoride and other preventative strategies. Development of guidelines for caries management, restoration and oral mucosal management are currently in progress.

• #18 Maintaining the Oral Health of Patients With Sjögren’s Syndrome

  https://dimensionsofdentalhygiene.com/article/maintaining-oral-health-patients-sjogrens/

  The use of xylitol, either ingested or applied topically, has been recommended to help prevent decay. The rationale is that acid-producing bacteria in the oral cavity cannot metabolize the sugar alcohol, causing a shift in the intraoral flora away from caries promotion. […] Current recommendations for individuals at high or extreme risk for caries suggest that patients rinse with 0.12% chlorhexidine once per day for a week each month to decrease the bacterial load. […] To counter these acidic insults and promote remineralization, patients should be advised to rinse with water after each meal to clear away and dilute the acidic material, and use sugar-free gum or sugar-free candy to increase salivary flow that can buffer and clear debris.

• #19 Treatment Approaches for Patients With Sjögren’s Syndrome – Decisions in Dentistry

  https://decisionsindentistry.com/article/treatment-approaches-patients-sjogrens-syndrome/

  Oral complications among this population can be managed to prevent caries, treat oral fungal infections, and increase comfort. […] Patients with dry mouth are at increased risk for dental caries. They should be educated about the role of sugar in the caries process, and have their toothbrushing technique periodically reviewed using a plaque-disclosing agent. […] The use of topical fluoride is critical to caries prevention efforts in this population. Recent guidelines sponsored by the Sjgrens Syndrome Foundation (Sjogrens.org) state that topical fluoride should be used in patients with SS and dry mouth. […] The use of xylitol, either ingested or applied topically, has been recommended to help prevent decay. […] Nonfluoride remineralizing agents such as amorphous calcium phosphate (ACP), casein phosphopeptide-ACP, calcium sodium phosphosilicate and tricalcium phosphate deliver calcium and phosphate to the tooth surface and enhance the function of fluoride. […] To counter these acidic insults and promote remineralization, patients should be advised to rinse with water after each meal to clear away and dilute the acidic material, and use sugar-free gum or sugar-free candy to increase salivary flow that can buffer and clear debris.

• #20 Sjogrens syndrome & Symptoms and causes | Apollo Hospitals

  https://www.apollohospitals.com/health-library/sjogrens-syndrome-symptoms-and-causes

  Keep yourself hydrated: Drink water frequently to keep your lips and mouth moist. Try sipping water now and then, to help avoid dry mouth. Avoid drinking caffeinated beverages and acidic drinks, like alcohol, colas etc, as they promote dryness in the mouth. […] Increase your saliva by stimulation: Production of saliva can be done by stimulating the glands with some citrus-flavored candies. However, avoid sweets as much as you can, as you will be at high risk of cavities with Sjogrens syndrome. […] Use artificial saliva: Replace water with artificial saliva. They are available in the form of sprays or lozenges. Artificial saliva contains lubricants which can keep your mouth moist for a longer time, than just plain water. […] Clear your nose to avoid mouth breathing: Clogged nose can give way to mouth breathing, consciously or unconsciously. Breathing through your mouth will increase dryness and worsen it. So keep your nose unclogged by using nasal saline sprays, which facilitate easy breathing.

• #21 Sjögren Syndrome

  https://healthlibrary.bvhealthsystem.org/Wellness/Cholesterol/134,120

  There are treatments to help with dry eyes, dry mouth, and pain. But changing your diet can also play a role in easing Sjgren syndrome symptoms. For example, it may be helpful to avoid alcohol, acidic drinks, carbonated drinks, and foods that are spicy, hard, crunchy, or acidic. All of these tend to make symptoms worse. Smooth, soft, and creamy foods like soups, casseroles, and pasta dishes are often good choices. Some people with Sjgren syndrome also have celiac disease and need to avoid gluten as well. […] Experts think that omega-3 fatty acids may help relieve dry eye symptoms. Clinical trials on using supplements are underway. […] The Sjgren’s Foundation also suggests that you: […] Don’t use medicines that might further dry your eyes, such as certain blood pressure medicines, antihistamines, and antidepressants. Talk with your healthcare provider about these choices.

• #22 Sjogren Syndrome – Life Extension

  https://www.lifeextension.com/protocols/immune-connective-joint/sjogren-syndrome?srsltid=AfmBOornzDCvONPskx4n5CqGBnl_8rQEnc8D6RIw8mBMpTlNDQub3Fg4

  Since inflammation is a major feature of Sjgren syndrome, patients are encouraged to consume an anti-inflammatory diet, including omega-3 fatty acid-rich cold-water fish such as salmon, tuna, and mackerel. […] Probiotic lozenges may improve oral health. […] Acupuncture may be a potential treatment option for dry eye management. […] Omega-3 fatty acids help reduce inflammation that contributes to dry eyes in Sjgren syndrome. […] Vitamin D modulates the immune system and suppresses autoimmunity. Vitamin D deficiency has been strongly associated with dry eye and impaired tear function. […] N-acetylcysteine (NAC) has been used to stimulate saliva flow and tear secretion in the management of dry eyes and mouth. […] Changes in composition and diversity of the human microbiome can affect autoimmune diseases. Ingestion of probiotics improves microbiome health and may modulate autoimmunity.

• #22 Sjogren Syndrome – Life Extension

  https://www.lifeextension.com/protocols/immune-connective-joint/sjogren-syndrome?srsltid=AfmBOornzDCvONPskx4n5CqGBnl_8rQEnc8D6RIw8mBMpTlNDQub3Fg4

  Awareness of potential triggers of Sjgren symptoms, such as food sensitivities and certain medications, along with eating a healthy, anti-inflammatory diet can help ease troublesome symptoms like dry eyes. […] Omega-3 fatty acids, such as those found in fish oil supplements, are recommended by the Sjgren Syndrome Foundation as an important part of treatment. […] Natural interventions such as omega-3 fatty acids and lactoferrin may help reduce inflammation and improve symptoms. […] A variety of interventions using natural products may provide therapeutic benefits in Sjgren syndrome. These integrative treatment options, such as omega-3 fatty acids, lactoferrin, maqui berry extract, and white peony extract, have been shown to improve symptoms and reduce inflammation and autoimmunity. […] Dietary considerations include consuming a well-balanced diet supplying adequate calories, moistening foods by adding broths, mayonnaise, yogurt, or sauces to make them easy to swallow, and consuming plenty of fluids, especially water, with meals.

• #23 Sjögren’s disease – Wikipedia

  https://en.wikipedia.org/wiki/Sj%C3%B6gren%27s_disease

  No prevention mechanism exists for Sjgren’s disease (SjD) because of its complexity as an autoimmune disorder. However, lifestyle changes can reduce the risk factors related to developing SS or reducing the severity of the condition for patients who have already been diagnosed. […] Diet is strongly associated with the inflammation seen in many autoimmune-related diseases, including SS. An experimental study concluded that SS patients often show high sensitivity to gluten that directly relates to inflammation. […] Moderate exercise is also helpful in SS patients, mainly reducing the effect of lung inflammation.

• #24 What Is Sjögren’s Syndrome? Symptoms, Causes, Diagnosis, Treatment, and Prevention

  https://www.everydayhealth.com/sjogrens-syndrome/guide/

  Keep your eyes moist and protected. Your doctor may recommend using lubricating eye drops or ointments to help keep your eyes moist. Its important to treat dry eyes if you have Sjgrens syndrome because ongoing irritation can, in rare cases, lead to infection and scarring and may affect your vision. […] Find an exercise plan that protects your joints. If you have joint pain or swelling, talk to your doctor or physical therapist to find exercises that can help you relieve joint stiffness and improve range of motion and flexibility. […] Take a look at your diet. Many people with Sjgrens syndrome may experience problems related to eating. Some people may have trouble eating certain foods due to dryness and swelling of the throat, while others may have digestive issues, such as heartburn and acid reflux, which are common in people with Sjgrens.

• #25 Sjogren’s Syndrome: Symptoms, Causes, Treatment, & More

  https://www.health.com/sjogrens-syndrome-8652496

  Scientists havent identified a way to prevent Sjogrens syndrome, but you can take steps to reduce symptoms and lower your risk of complications. These include: […] Its also important to reduce or eliminate medications that might worsen dry eyes or dry mouth. Anticholinergic drugs like Benadryl (diphenhydramine) are an important category. […] Some people with SS may also need periodic screening tests to diagnose potential lung disease before symptoms become severe.

• #26 Medications That Can Exacerbate Sjogren’s Syndrome: Prevention And Treatment

  https://medicopharmacyrx.com/medications-that-can-exacerbate-sjogrens-syndrome-prevention-and-treatment/

  Anticholinergic medications can exacerbate the dry eyes and dry mouth symptoms of Sjogrens Syndrome. Therefore, pharmacists should pay close attention to the medication list of patients with this diagnosis and avoid prescribing drugs with high anticholinergic activity. […] In addition to avoiding medications that can exacerbate Sjogrens Syndrome symptoms, pharmacists should be aware of medications used to manage the disease. […] In addition to paying close attention to medications that can exacerbate Sjogrens Syndrome, its also important for pharmacists to educate patients about the potential side effects of their medications. […] By taking a proactive approach to Sjogrens Syndrome prevention and treatment, pharmacists can play a vital role in improving the quality of life for patients with this chronic autoimmune disease.

• #27 Sjögren’s Syndrome | Cedars-Sinai

  https://www.cedars-sinai.org/health-library/diseases-and-conditions/s/sjogrens-syndrome.html

  Currently, treatment focuses on any related rheumatic disease that may be present and treating the symptoms of Sjgren’s syndrome. Treatment may include: […] Avoiding antihistamines or other drugs that cause mucous membranes to dry up. […] Being careful about regular mouth and tooth care and regular visits to the dentist. […] A drug, pilocarpine, may be used to make the gland produce more saliva if they haven’t been severely shrunken by the disease.

• #28

  https://www.prevention.com/health/a28446557/venus-williams-sjogren-syndrome/

  Along with treatment, Williams sought to improve her recovery by adopting a vegan diet, which she still follows today. Lifestyle changes like exercise, a healthy diet, and good sleeping habits can help someone with autoimmune disease feel better, Dr. Marchetta says. […] „Dont be discouraged, because what [you’re] going through is similar to other people,” she says. „Talk to those people who understand you or have a similar condition, reach out, and build a [support] team. Dont isolate yourself. Dont give up.” […] „It has a lot of info about rheumatic diseases like Sjgrens, as well as ways for patients with these illnesses to get involved with advocacy around disease,” Dr. Marchetta says. „You can also find support groups.”

• #29 New Standards to Improve Diagnosis of Sjogren’s Syndrome | UC San Francisco

  https://www.ucsf.edu/news/2012/08/104274/new-standards-improve-diagnosis-sjogrens-syndrome

  Tooth decay may be one of the signs which actually makes a dentist suspect that a patient has Sjgren’s syndrome, said co-lead author of the study Caroline Shiboski, DDS, PhD, professor of oral medicine at UCSF School of Dentistry. Such dramatic tooth destruction can be prevented with early diagnosis of salivary hypofunction and prescription of topical fluoride. […] The prevention of complications is a very important reason why Sjgren’s syndrome should be better understood by clinicians and the general public, Caroline Shiboski said.

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