Zespół charlesa bonneta
Objawy

Zespół Charlesa Bonneta (CBS) to złożone halucynacje wzrokowe występujące u pacjentów z istotnym upośledzeniem wzroku, przy zachowanym prawidłowym stanie psychicznym. CBS dotyka 10-40% osób z poważną utratą wzroku obuocznego, szczególnie u pacjentów w wieku powyżej 70-85 lat oraz u osób z ostrością wzroku w zakresie 20/120 do 20/400. Patofizjologia obejmuje nadpobudliwość asocjacyjnej kory wzrokowej w odpowiedzi na zmniejszony dopływ informacji z siatkówki, co prowadzi do powstawania halucynacji prostych (geometryczne wzory, błyski) lub złożonych (twarze, postacie, zwierzęta, krajobrazy). Halucynacje pojawiają się zwykle w ciągu tygodni do miesięcy po utracie wzroku, trwają od sekund do godzin, a ich częstość i intensywność zmniejsza się zazwyczaj po 12-18 miesiącach, choć mogą utrzymywać się nawet powyżej 5 lat. CBS nie jest związany z chorobą psychiczną, a pacjenci zazwyczaj zachowują wgląd w nierzeczywisty charakter objawów.

Zespół Charlesa Bonneta – podstawowa charakterystyka

Zespół Charlesa Bonneta (Charles Bonnet Syndrome, CBS) to stan charakteryzujący się występowaniem złożonych halucynacji wzrokowych u osób z poważnym upośledzeniem lub utratą wzroku przy zachowaniu prawidłowego stanu psychicznego. Nazwa pochodzi od szwajcarskiego naukowca i filozofa z XVIII wieku, który po raz pierwszy opisał ten stan u swojego dziadka cierpiącego na zaćmę dojrzałą. Zespół ten nie jest związany z chorobą psychiczną ani demencją, a osoby nim dotknięte zazwyczaj zdają sobie sprawę, że widziane obrazy nie są rzeczywiste.123

Szacuje się, że zespół Charlesa Bonneta dotyka około 10-40% osób z poważnym upośledzeniem wzroku obuocznego, choć dane te mogą być zaniżone z powodu niechęci pacjentów do zgłaszania objawów z obawy przed zdiagnozowaniem choroby psychicznej. Niektóre badania wskazują, że nawet połowa pacjentów z zwyrodnieniem plamki żółtej doświadcza w pewnym momencie halucynacji wzrokowych.456

CBS może wystąpić w każdym wieku, ale najczęściej dotyka osoby starsze (powyżej 70-85 roku życia), u których utrata wzroku jest najczęstsza. Jednak każda osoba w dowolnym wieku z nabytą utratą wzroku może rozwinąć zespół Charlesa Bonneta. Jest on częstszy u osób, których wzrok pogorszył się nagle lub które straciły wzrok w obu oczach.789

Patofizjologia

Zespół Charlesa Bonneta jest związany z utratą wzroku. Gdy wzrok się pogarsza, mózg otrzymuje mniej informacji z oczu niż zwykle. W odpowiedzi na to mózg czasami kompensuje ten brak, tworząc własne obrazy, co prowadzi do halucynacji.10

W CBS dochodzi do spontanicznej i/lub wywołanej bodźcami nadpobudliwości jednomodalnej asocjacyjnej kory wzrokowej, co leży u podstaw zjawisk halucynacyjnych. Uważa się, że gdy osoba traci wzrok, zmniejsza się ilość informacji przesyłanych z siatkówki do kory wzrokowej w mózgu, co powoduje, że mózg „wypełnia luki” poprzez tworzenie własnych obrazów.1112

Pacjenci z przewlekłą, wolno postępującą chorobą oczu zazwyczaj zgłaszają halucynacje co najmniej rok po ciężkim upośledzeniu wzroku lub całkowitej utracie wzroku. Natomiast pacjenci z ostrą utratą wzroku na skutek uszkodzenia nerwu wzrokowego lub mózgu zazwyczaj zgłaszają halucynacje w ciągu godzin lub dni od wystąpienia zdarzenia wywołującego, choć halucynacje mogą pojawić się również w ciągu miesięcy.13

Czynniki ryzyka

Głównym czynnikiem ryzyka rozwoju CBS jest znaczna utrata wzroku. Ryzyko wydaje się korelować bardziej ze stopniem utraty wzroku niż z podstawowym rozpoznaniem okulistycznym. Badania sugerują, że CBS jest bardziej prawdopodobny u osób z ostrością wzroku między 20/120 a 20/400.1415

Dodatkowe czynniki ryzyka obejmują:

  • Nagłe lub znaczne pogorszenie wzroku16
  • Utratę wzroku w obu oczach (choć może wystąpić również przy problemach w jednym oku)17
  • Podeszły wiek (najczęściej powyżej 70-85 lat)18
  • Choroby oczu, takie jak zwyrodnienie plamki żółtej związane z wiekiem, zaćma, jaskra, retinopatia cukrzycowa19
  • Izolację społeczną, stres i brak aktywności20

Objawy zespołu Charlesa Bonneta

Głównym objawem zespołu Charlesa Bonneta są halucynacje wzrokowe, które pojawiają się po znacznej utracie wzroku. Halucynacje te są wyłącznie wzrokowe – nie obejmują słyszenia, wąchania, smakowania ani dotykania rzeczy, których nie ma. Osoby z CBS zazwyczaj zdają sobie sprawę, że halucynacje nie są rzeczywiste.2122

Rodzaje halucynacji

Halucynacje w CBS można podzielić na dwa główne typy:2324

  1. Halucynacje proste: obejmują geometryczne wzory, linie, kształty, plamy kolorów, kratkę, błyski światła. Osoby doświadczające prostych halucynacji zazwyczaj są świadome ich halucynacyjnego charakteru.
  2. Halucynacje złożone: bardziej realistyczne obrazy, które mogą obejmować:
    • Twarze (czasem zniekształcone lub podobne do gargulców)25
    • Ludzi (często w strojach z wcześniejszych epok)26
    • Zwierzęta (często dzikie)27
    • Rośliny, drzewa, kwiaty28
    • Budynki, krajobrazy29
    • Fantastyczne stworzenia, jak smoki czy jednorożce30
    • Teksty lub litery (choć zazwyczaj pacjenci nie mogą ich przeczytać)31

Charakterystyka halucynacji

Halucynacje w zespole Charlesa Bonneta mają kilka charakterystycznych cech:323334

  • Mogą być kolorowe lub czarno-białe
  • Mogą być nieruchome lub ruchome
  • Pojawiają się nagle, bez ostrzeżenia
  • Mogą trwać od kilku sekund do kilku godzin
  • Są bardziej wyraźne i żywe niż rzeczywisty, resztkowy wzrok pacjenta
  • Pacjent nie ma kontroli nad halucynacjami
  • Halucynacje są często bardzo szczegółowe i dobrze zdefiniowane
  • Pojawiają się częściej przy otwartych oczach niż przy zamkniętych
  • Halucynacje mogą znikać, gdy pacjent zamknie oczy lub odwróci wzrok
  • Występują częściej w warunkach niskiej stymulacji sensorycznej (np. w słabym oświetleniu, podczas odpoczynku lub braku aktywności)

Częstotliwość halucynacji jest różna – mogą występować kilka razy dziennie, tygodniowo lub miesięcznie. U niektórych osób halucynacje mogą pojawić się wkrótce po przebudzeniu.3536

Wpływ na pacjenta

Reakcje pacjentów na halucynacje w CBS są zróżnicowane:3738

  • Początkowe halucynacje często budzą niepokój i mogą być przerażające, szczególnie gdy pacjent nie jest świadomy, że doświadcza CBS
  • Badania pokazują, że około 38% pacjentów uważa halucynacje za przerażające i niepokojące, gdy pojawiają się po raz pierwszy
  • Z czasem reakcja emocjonalna na halucynacje zazwyczaj słabnie (do około 8%)
  • Około 60% pacjentów zgłasza, że halucynacje nie wpływają na ich życie
  • 33% twierdzi, że mają one negatywny wpływ
  • 7% uważa, że poprawiają jakość ich życia

Istotnym aspektem CBS jest lęk psychiczny związany z halucynacjami. Pacjenci często obawiają się, że mogą być uznani za chorych psychicznie, co prowadzi do ukrywania objawów przed lekarzami i bliskimi. Wielu pacjentów obawia się, że halucynacje są wczesnym objawem demencji lub utraty zmysłów.3940

Przebieg i progresja zespołu Charlesa Bonneta

Przebieg zespołu Charlesa Bonneta jest zróżnicowany i może zależeć od wielu czynników, w tym od przyczyny utraty wzroku, wieku pacjenta i ogólnego stanu zdrowia.41

Początek i czas trwania

CBS zazwyczaj pojawia się w ciągu tygodni lub miesięcy po znacznym pogorszeniu wzroku. U pacjentów z przewlekłą, powoli postępującą chorobą oczu halucynacje zazwyczaj pojawiają się około roku po wystąpieniu ciężkiego upośledzenia wzroku, podczas gdy u pacjentów z nagłą utratą wzroku halucynacje mogą wystąpić w ciągu godzin lub dni.4243

Czas trwania CBS jest różny:444546

  • Początkowo halucynacje mogą występować często i trwać długo
  • U większości pacjentów halucynacje stają się mniej częste po około 12-18 miesiącach
  • U niektórych osób halucynacje mogą całkowicie ustąpić po tym czasie
  • Inne osoby mogą doświadczać sporadycznych halucynacji przez 5 lat lub dłużej
  • W niektórych przypadkach CBS może utrzymywać się przez wiele lat

Nowsze badania sugerują, że choć częstotliwość halucynacji zwykle się zmniejsza, to objawy mogą utrzymywać się przez dłuższy czas niż wcześniej sądzono – nawet 5 lat lub więcej od pierwszego wystąpienia.4748

Zmiany w czasie

Charakterystyka halucynacji może się zmieniać w miarę upływu czasu:4950

  • Typ i treść halucynacji mogą się zmieniać
  • Początkowo halucynacje mogą być bardziej intensywne i częstsze
  • Z czasem mózg adaptuje się do utraty wzroku, co prowadzi do zmniejszenia częstotliwości halucynacji
  • U niektórych pacjentów halucynacje pojawiają się głównie na początku utraty wzroku i ustępują, gdy utrata wzroku staje się całkowita

Badania wykazały różną dynamikę czasową CBS. W jednym przypadku ruchome halucynacje utrzymywały się przez 9 miesięcy po wystąpieniu objawów, podczas gdy w innym przypadku statyczne halucynacje całkowicie zniknęły 7 dni po pierwszej halucynacji. To sugeruje, że wielkość uszkodzenia i czas trwania halucynacji wzrokowych są niespójne.51

Czynniki wpływające na przebieg

Istnieje kilka czynników, które mogą wpływać na przebieg CBS:525354

  • Rodzaj i stopień utraty wzroku – CBS związany z przewlekłą chorobą oczu może trwać wiele lat
  • Jeśli utrata wzroku jest odwracalna (np. zaćma, którą można leczyć operacyjnie), halucynacje mogą ustąpić po poprawie wzroku
  • Dalsze pogorszenie wzroku może spowodować nawrót lub nasilenie halucynacji
  • Czynniki psychologiczne, takie jak lęk lub stres, mogą nasilać objawy
  • Izolacja społeczna, zmęczenie, gorączka i brak aktywności mogą nasilać CBS

W niektórych przypadkach CBS może być związany z rozwojem demencji, przy czym niektóre osoby rozwijają demencję w ciągu średnio około 33 miesięcy. CBS może być również markerem demencji u osób starszych.555657

Wpływ na codzienne funkcjonowanie

Zespół Charlesa Bonneta może mieć znaczący wpływ na codzienne funkcjonowanie osób dotkniętych tym schorzeniem, choć stopień tego wpływu jest zróżnicowany.5859

Główne problemy związane z CBS to:6061

  • Trudności w codziennych czynnościach – halucynacje nakładają się na obrazy rzeczywistego świata, co może utrudniać wykonywanie zadań takich jak poruszanie się w nieznanym otoczeniu
  • Lęk i stres – szczególnie gdy halucynacje są nieprzyjemne lub gdy pacjent początkowo nie wie, że doświadcza CBS
  • Dezorientacja – pacjent może początkowo nie wiedzieć, czy obraz jest rzeczywisty czy wyimaginowany, co może być przerażające, jeśli widzi np. nieznajomą osobę w domu
  • Obawa przed chorobą psychiczną – wielu pacjentów obawia się, że halucynacje są oznaką choroby psychicznej lub demencji
  • Izolacja społeczna – z obawy przed stygmatyzacją pacjenci mogą unikać kontaktów społecznych

Niektórzy pacjenci zgłaszają, że ich halucynacje są przyjemne lub neutralne, podczas gdy dla innych są one niepokojące. Około 33% pacjentów doświadcza negatywnych skutków, w tym stresu z powodu długotrwałych, przerażających halucynacji, stygmatyzacji z powodu błędnego przypisania CBS do zaburzenia psychicznego, oraz obniżonej jakości życia.6263

Wpływ CBS na codzienne funkcjonowanie może się zmieniać w czasie. Początkowe halucynacje często budzą największy niepokój, ale z czasem, gdy pacjent uczy się rozpoznawać je jako nierzeczywiste, ich wpływ na codzienne życie może się zmniejszyć.64

Radzenie sobie z zespołem Charlesa Bonneta

Obecnie nie ma lekarstwa na zespół Charlesa Bonneta ani specyficznego leku, który skutecznie zatrzymałby halucynacje. Jednak istnieje kilka strategii, które mogą pomóc pacjentom radzić sobie z objawami.6566

Strategie radzenia sobie

Następujące strategie mogą pomóc w zmniejszeniu częstotliwości i czasu trwania halucynacji:676869

  • Częste mruganie lub szybkie ruchy oczu
  • Przejście do jaśniejszego miejsca lub włączenie światła
  • Zwiększenie interakcji społecznych, co pomaga przeciwdziałać bezczynności
  • Sięganie w kierunku halucynacji
  • Klaskanie w dłonie, pstrykanie palcami
  • Wstawanie/siadanie, chodzenie
  • Śpiewanie, gwizdanie
  • Włączanie/wyłączanie muzyki, telewizji, radia
  • Utrzymywanie aktywności mózgu, co może pomóc w zmniejszeniu częstotliwości epizodów

Wsparcie medyczne

Chociaż nie ma specyficznego leczenia CBS, w niektórych przypadkach lekarze mogą spróbować zastosować leki, które okazały się pomocne u niektórych pacjentów:707172

  • Leki przeciwdepresyjne
  • Leki przeciwpsychotyczne
  • Leki przeciwpadaczkowe
  • Trazodon – wykazano, że może być skuteczny w leczeniu CBS

Leki te są zwykle przepisywane na inne schorzenia, ale wykazano, że działają na halucynacje w zespole Charlesa Bonneta. Zazwyczaj wymaga to konsultacji lekarza specjalisty i dalszych badań, aby upewnić się, że są bezpieczne w użyciu i wykluczyć inne przyczyny halucynacji.73

W jednym opisanym przypadku 86-letnia kobieta z CBS doświadczała halucynacji wzrokowych przez dwa lata. Halucynacje ustąpiły po tygodniu od rozpoczęcia leczenia trazodonem w dawce 50 mg raz dziennie. Pacjentka kontynuowała leczenie przez cztery lata, a przy próbie odstawienia leku halucynacje powróciły, ale zostały ponownie opanowane po wznowieniu leczenia.74

Strategie psychologiczne

Ważnym aspektem radzenia sobie z CBS jest wsparcie psychologiczne:7576

  • Edukacja – zrozumienie, że CBS nie jest chorobą psychiczną, może przynieść ulgę
  • Świadomość, że u większości osób halucynacje zmniejszają się z czasem
  • Rozmowa z bliskimi o doświadczeniach
  • Konsultacja z psychologiem lub psychoterapeutą, która może pomóc w radzeniu sobie z lękiem i stresem związanym z halucynacjami
  • Grupy wsparcia, gdzie pacjenci mogą dzielić się doświadczeniami z innymi osobami z CBS

Wielu pacjentów zgłasza, że samo uspokojenie i wyjaśnienie mechanizmu CBS jest wszystkim, czego potrzebują, szczególnie w przypadku rzadkich halucynacji lub tych, które nie wpływają negatywnie na jakość życia.77

Znaczenie świadomości i diagnozy

Zwiększenie świadomości na temat zespołu Charlesa Bonneta wśród pacjentów, rodzin i pracowników służby zdrowia ma kluczowe znaczenie.78

CBS jest często niedodiagnozowany z kilku powodów:7980

  • Pacjenci często nie zgłaszają halucynacji z obawy przed stygmatyzacją lub diagnozą choroby psychicznej
  • Wielu lekarzy nie jest świadomych istnienia CBS lub nie pyta rutynowo o halucynacje u pacjentów z utratą wzroku
  • Brak świadomości społecznej na temat tego schorzenia

Właściwa diagnoza i edukacja pacjenta mogą znacznie zmniejszyć stres związany z CBS. Wielu pacjentów i członków ich rodzin odczuwa ulgę, gdy dowiadują się, że halucynacje wzrokowe są znanym i oczekiwanym skutkiem ubocznym utraty centralnego widzenia, a nie oznaką zmniejszonych zdolności umysłowych czy choroby psychicznej.81

Pacjentom z CBS zaleca się:82

  • Informowanie swojego lekarza okulisty o doświadczanych halucynacjach
  • Edukację na temat CBS i jego związku z utratą wzroku
  • Poszukiwanie wsparcia od bliskich i specjalistów
  • Korzystanie z proaktywnych strategii radzenia sobie z halucynacjami

Potrzebne są dalsze badania nad zespołem Charlesa Bonneta, aby lepiej zrozumieć jego przyczyny i opracować skuteczniejsze metody leczenia. Nie wiadomo na przykład, dlaczego tylko niektóre osoby z utratą wzroku doświadczają halucynacji.8384

Podsumowanie

Zespół Charlesa Bonneta jest stosunkowo częstym schorzeniem występującym u osób z poważną utratą wzroku. Charakteryzuje się występowaniem złożonych halucynacji wzrokowych przy zachowaniu prawidłowego stanu psychicznego. Halucynacje te mogą być proste (wzory, kształty) lub złożone (twarze, ludzie, zwierzęta, krajobrazy).85

Chociaż nie ma lekarstwa na CBS, u większości pacjentów halucynacje stają się mniej częste z czasem, zwykle po 12-18 miesiącach, choć mogą utrzymywać się przez wiele lat. Ważne jest, aby zwiększać świadomość tego schorzenia wśród pacjentów i pracowników służby zdrowia, aby zapewnić odpowiednie wsparcie i zapobiec niepotrzebnym obawom.8687

Rozpoznanie zespołu Charlesa Bonneta, edukacja pacjenta oraz zastosowanie strategii radzenia sobie mogą znacznie poprawić jakość życia osób dotkniętych tym schorzeniem.88

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  1. 09.04.2026
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Materiały źródłowe

  • #1 Charles Bonnet syndrome – NHS
    https://www.nhs.uk/conditions/charles-bonnet-syndrome/
    Charles Bonnet syndrome is a condition where you see things that are not real (hallucinations). It can happen if you’ve lost a lot of your sight. It’s not caused by a mental health problem or dementia. […] The main symptom of Charles Bonnet syndrome is seeing things that are not real (hallucinations) after losing a lot of your sight. […] The hallucinations can: be patterns such as shapes or lines, be of people, animals, objects or places, be moving or still, be in black and white or colour, happen suddenly, last for a few minutes or several hours. […] Most people with Charles Bonnet syndrome know the hallucinations are not real. […] There’s currently no cure for Charles Bonnet syndrome, but over time the hallucinations usually happen less often. […] Charles Bonnet syndrome is linked to vision loss.
  • #2 Charles Bonnet Syndrome – StatPearls – NCBI BookshelfTwitterFacebookLinkedInGitHubNCBI Insights BlogTwitterFacebookYoutube
    https://www.ncbi.nlm.nih.gov/books/NBK585133/
    Charles Bonnet syndrome (CBS) is a phenomenon characterized by complex visual hallucinations in visually challenged patients but otherwise psychologically normal. […] In CBS, the patient is aware that the image is not real and may see these images as disturbing. However, hallucinations can also fit in the visual phenomenon and may be indiscernible from real objects. […] CBS can also be a marker of dementia in elderly patients. CBS can manifest when there is a lesion at any level of the visual system, and typically patients manifest with a loss of central visual acuity. […] The patient is usually unaware of the unreality of visual experiences, which are typically normal to the brain but sometimes may result in distress. The patient has minimal or no control over the hallucinations, which are clear, well-defined, organized images.
  • #3 UT Health Austin | Visual Release Hallucinations (Charles Bonnet…
    https://uthealthaustin.org/conditions/charles-bonnet-syndrome
    Charles Bonnet syndrome (CBS) refers to symptoms of visual hallucinations that occur in patients with visual acuity loss or visual field loss. […] Charles Bonnet syndrome refers to visual hallucinations produced as the brain adjusts to significant vision loss. […] CBS hallucinations do not involve sounds, smells, or any other sensations. It’s important to note that hallucinations associated with this condition are caused by failing eyesight, not by a mental health problem or dementia. […] Visual release hallucinations aren’t usually unpleasant or threatening but may be slightly frightening when first experienced. They can sometimes occur suddenly and can last for a few minutes or several hours. These hallucinations may be moving or static. […] Visual release hallucinations may have the following characteristics: A realization that the hallucinations are not real (known as insight), Complex images of people, objects, or landscapes, No control over hallucinations, Simple, repeated patterns.
  • #4 Charles Bonnet Syndrome – Patients – The American Society of Retina Specialists
    https://www.asrs.org/patients/retinal-diseases/38/charles-bonnet-syndrome
    Hallucinations occur when the affected person is awake, and are usually purely visual and not associated with auditory (sound) hallucinations. A person with CBS is generally aware that images are not real, though he or she may initially be confused by them. […] CBS hallucinations may be enjoyable or annoying, but are generally not frightening. They come and go, often over months or years, without obvious cause and occur without cognitive or psychiatric disease. About one in five people with retinal conditions such as macular degeneration experiences hallucinations, which can also occur in people with other macular diseases and ocular conditions such as glaucoma, as well as stroke. […] CBS is more common in people aged 80 years and above, but can occur at any age. Experiencing CBS does not mean the individual’s eye condition is worsening, and people can have visual hallucinations even if they have only mild visual loss or small blind spots in their vision. CBS is estimated to affect 10% to 30% of people with visual impairment involving both eyes, although the estimates may be lower than the true prevalence.
  • #5 Charles Bonnet syndrome (CBS) – Macular Society
    https://www.macularsociety.org/macular-disease/macular-conditions/charles-bonnet-syndrome/
    Visual hallucinations can occur as a result of sight loss. Up to half of all people with macular degeneration are thought to experience visual hallucinations at some time. When hallucinations happen as a result of sight loss, they are known as Charles Bonnet syndrome (CBS), after the 18th century Swiss scientist and philosopher who first described the condition. Charles Bonnet hallucinations are not a sign of mental illness. They are more likely to occur if both eyes are affected by sight loss but can occur with problems in one eye only. The hallucinations often start after a sudden worsening of vision. […] CBS itself can last from days to many years. For most people the hallucinations improve with time so that they only occur very occasionally. […] Some medications can help people with very distressing hallucinations. These medications are usually prescribed for other conditions but have been shown to work for Charles Bonnet hallucinations. It would usually require a specialist doctor to prescribe them and further tests to see if they are safe to use and to rule out other causes of hallucinations. […] More research into Charles Bonnet syndrome is needed. For example, we do not know why only some people with sight loss have hallucinations. Research funded by the Macular Society is helping answer this question but more is needed.
  • #6 Charles Bonnet Syndrome: Causes, Symptoms, and Treatment
    https://patient.info/eye-care/charles-bonnet-syndrome
    CBS is much more common in older patients because visual loss is more common in older people. However, anyone of any age may develop CBS, as any condition which causes sight loss can trigger it. It is therefore also seen in younger adults and children with visual loss. […] CBS is fairly common, although patients often don’t tell their doctor – or indeed anyone – about what they are experiencing. This may be due to the fear of being thought foolish or 'mad.’ Some patients fear that the symptoms are an early sign of dementia. CBS has nothing whatsoever to do with dementia and is entirely due to loss of sight. […] The condition is believed to occur in 10-15% of all people with moderate visual loss and up to 60% of people with severe visual loss. There are thought to be around 100,000 people in the UK with CBS today.
  • #7 Charles Bonnet syndrome – NHS
    https://www.nhs.uk/conditions/charles-bonnet-syndrome/
    When you lose your sight, your brain gets less information from your eyes than it’s used to. Your brain sometimes makes up for this by creating hallucinations. […] Not everyone who loses their sight will get Charles Bonnet syndrome. You’re more likely to get it if your sight suddenly gets worse or you lose sight in both eyes. […] It’s common in people who have eye conditions such as age-related macular degeneration or cataracts.
  • #8 UT Health Austin | Visual Release Hallucinations (Charles Bonnet…
    https://uthealthaustin.org/conditions/charles-bonnet-syndrome
    Visual release hallucinations occur most often among the elderly population as they are the most likely age group to have optical conditions such as macular degeneration that affect eyesight. […] Charles Bonnet syndrome is most common in individuals 70-85 years or older. […] Visual impairment or vision loss, involving either one or both eyes, can cause condition onset.
  • #9 Charles Bonnet Syndrome – Patients – The American Society of Retina Specialists
    https://www.asrs.org/patients/retinal-diseases/38/charles-bonnet-syndrome
    Hallucinations occur when the affected person is awake, and are usually purely visual and not associated with auditory (sound) hallucinations. A person with CBS is generally aware that images are not real, though he or she may initially be confused by them. […] CBS hallucinations may be enjoyable or annoying, but are generally not frightening. They come and go, often over months or years, without obvious cause and occur without cognitive or psychiatric disease. About one in five people with retinal conditions such as macular degeneration experiences hallucinations, which can also occur in people with other macular diseases and ocular conditions such as glaucoma, as well as stroke. […] CBS is more common in people aged 80 years and above, but can occur at any age. Experiencing CBS does not mean the individual’s eye condition is worsening, and people can have visual hallucinations even if they have only mild visual loss or small blind spots in their vision. CBS is estimated to affect 10% to 30% of people with visual impairment involving both eyes, although the estimates may be lower than the true prevalence.
  • #10 Charles Bonnet syndrome – NHS
    https://www.nhs.uk/conditions/charles-bonnet-syndrome/
    When you lose your sight, your brain gets less information from your eyes than it’s used to. Your brain sometimes makes up for this by creating hallucinations. […] Not everyone who loses their sight will get Charles Bonnet syndrome. You’re more likely to get it if your sight suddenly gets worse or you lose sight in both eyes. […] It’s common in people who have eye conditions such as age-related macular degeneration or cataracts.
  • #11 Charles Bonnet Syndrome: Complete Remission of Visual Hallucinations with Trazodone
    https://www.jneuropsychiatry.org/peer-review/charles-bonnet-syndrome-complete-remission-of-visual-hallucinations-with-trazodone-12999.html
    A week after trazodone was added-on her visual hallucinations faded away. Currently, the patient is 90-year-old and has been regularly taking trazodone at a dose of 50 mg, q.d., for four years. At an attempt to wean her off trazodone, visual hallucinations returned, but were controlled again after reinstitution of the drug. […] In CBS, spontaneous and/or stimulus-driven hyperexcitability of unimodal associative visual cortex underlies hallucinatory phenomena. […] The first step in the management of CBS is to treat the underlying ophthalmologic condition to enhance visual input thus inhibiting hallucinations. If this approach fails, pharmacological therapy may be considered. There is no specific drug treatment for CBS. […] A single study has reported three cases of CBS patients whose hallucinations improved with trazodone. Trazodone has dose-dependent hypnotic and antidepressant effects due to weak serotonin (5-HT) reuptake inhibition and through 5-HT2A, 5-HT2C, a1-adrenergic, and histamine H1 receptor antagonism. […] Our report adds to that of Hsu et al. and points trazodone to be considered as a first-line treatment for CBS, due to its good tolerability and few interactions with other drugs.
  • #12 Charles Bonnet Syndrome: what is it and what help is out there? | Glaucoma UK
    https://glaucoma.uk/blog-category-blog/charles-bonnet-syndrome-what-is-it-and-what-help-is-out-there/
    Esme had advanced glaucoma and, clearly, much more of her sight had been lost than I realised. When someone has full sight, there are messages which run all the time from the retina in the eye to the visual cortex in the brain. As sight diminishes, those messages slow down or stop entirely, leaving the brain inactive, with nothing to interpret. Consequently, it fires up and creates its own images. […] The visual hallucinations are entirely silent. No other sense is involved and there is no interaction with the images. The sight loss can be caused by any one of the myriad eye diseases, or from stroke, cancer, accident to the eye, diabetes, multiple sclerosis or another condition which damages the optic nerve. […] Isolation, stress, fever and inactivity exacerbate CBS. Keeping the brain active can help to reduce the frequency of the episodes. Benign images – like cavorting kittens or beautiful flowers – can make the condition easier to tolerate, but the unpredictability of hallucinations is extremely debilitating.
  • #13 Charles Bonnet Syndrome – StatPearls – NCBI BookshelfTwitterFacebookLinkedInGitHubNCBI Insights BlogTwitterFacebookYoutube
    https://www.ncbi.nlm.nih.gov/books/NBK585133/
    Patients who notice the unreal nature of their hallucinations may be depressed by the fear of imminent insanity. […] The visual hallucinations can vary from described events such as light flashes, shapes, or lines to complex events, including formed images and scenes. […] Patients with chronic slow-progressing ocular disease typically report hallucinations at least one year after severe visual impairment or complete vision loss. […] In comparison, patients with acute vision loss secondary to the optic nerve or brain damage will typically report hallucinations within hours or days of inciting events; however, hallucinations can still be reported within months as well. […] The patients manifest with some level of visual impairment; the visual hallucinations are better with more clarity than the residual vision. These visual hallucinations are vivid and are not under voluntary control.
  • #14 Charles Bonnet Syndrome | Low Vision of TennesseeOpen MenuClose Menu
    https://www.lowvisiontn.com/low-vision-eye-diseases/charles-bonnet-syndrome/
    Charles Bonnet Syndrome (CBS), also known as “visual hallucinations”, is a common condition among those with vision impairment due to eye diseases such as macular degeneration, or side vision loss resulting from a stroke. […] These images occur when a person is fully conscious and wide awake, often during broad daylight. The person is aware that the hallucinations are not real. The images come and go for no reason, they are exclusively visual and are never combined with sounds or sensations. […] Charles Bonnet Syndrome is caused by the way the brain reacts to vision loss. It begins in the weeks and months following a dramatic deterioration of sight. […] This condition affects up to about 40% percent of people with low vision. Research suggests that it is more likely to occur in those with visual acuity between 20/120 and 20/400.
  • #15 Charles Bonnet syndrome: a condition of the visually impaired – Dhooge – Annals of Eye Science
    https://aes.amegroups.org/article/view/6863/html
    The number of low vision patients that suffer from visual hallucinations is shockingly large. CBS is defined by the World Health Organization (WHO) as the experience of complex visual hallucinations in a person who has experienced partial or complete loss of vision. The hallucinations are exclusively visual, usually temporary, and not associated with mental and behavioral disorders. The hallucinations negatively affect daily activities and result in anxiety and stress in as many as one third of CBS patients. The risk of CBS seems to correlate with the extent of vision loss, rather than the underlying ophthalmic diagnosis. In addition, recent loss of visual acuity also seems to be a risk factor for the development of CBS. Subhi et al. report various diseases along the visual pathway that result in CBS including cataract, age related macular degeneration (AMD), and glaucoma. Another misconception is that CBS is age-related and primarily affects the elderly low vision patient. However, there is a growing body of more recent literature that shows that younger age groups are also affected and even paediatric cases have been reported. Our group recently reported a CBS prevalence of 8.4% in a cohort of 83 relatively young patients with Stargardt disease. The pooled prevalence of almost 20% that was reported by Subhi et al. calls for systematic inquiry for presence of CBS among the visually impaired.
  • #16 Charles Bonnet syndrome – NHS
    https://www.nhs.uk/conditions/charles-bonnet-syndrome/
    When you lose your sight, your brain gets less information from your eyes than it’s used to. Your brain sometimes makes up for this by creating hallucinations. […] Not everyone who loses their sight will get Charles Bonnet syndrome. You’re more likely to get it if your sight suddenly gets worse or you lose sight in both eyes. […] It’s common in people who have eye conditions such as age-related macular degeneration or cataracts.
  • #17 Charles Bonnet syndrome (CBS) – Macular Society
    https://www.macularsociety.org/macular-disease/macular-conditions/charles-bonnet-syndrome/
    Visual hallucinations can occur as a result of sight loss. Up to half of all people with macular degeneration are thought to experience visual hallucinations at some time. When hallucinations happen as a result of sight loss, they are known as Charles Bonnet syndrome (CBS), after the 18th century Swiss scientist and philosopher who first described the condition. Charles Bonnet hallucinations are not a sign of mental illness. They are more likely to occur if both eyes are affected by sight loss but can occur with problems in one eye only. The hallucinations often start after a sudden worsening of vision. […] CBS itself can last from days to many years. For most people the hallucinations improve with time so that they only occur very occasionally. […] Some medications can help people with very distressing hallucinations. These medications are usually prescribed for other conditions but have been shown to work for Charles Bonnet hallucinations. It would usually require a specialist doctor to prescribe them and further tests to see if they are safe to use and to rule out other causes of hallucinations. […] More research into Charles Bonnet syndrome is needed. For example, we do not know why only some people with sight loss have hallucinations. Research funded by the Macular Society is helping answer this question but more is needed.
  • #18 UT Health Austin | Visual Release Hallucinations (Charles Bonnet…
    https://uthealthaustin.org/conditions/charles-bonnet-syndrome
    Visual release hallucinations occur most often among the elderly population as they are the most likely age group to have optical conditions such as macular degeneration that affect eyesight. […] Charles Bonnet syndrome is most common in individuals 70-85 years or older. […] Visual impairment or vision loss, involving either one or both eyes, can cause condition onset.
  • #19 Charles Bonnet Syndrome: Causes, Symptoms, and Treatment
    https://patient.info/eye-care/charles-bonnet-syndrome
    Most commonly people see complicated coloured patterns, children, wild animals and faces. The faces may be of people they recognise. This may – and often does – include seeing people from the past, and people who have died. Plants, trees and beautiful countryside scenes are also common. […] The hallucinations are purely visual – they don’t have a sound or a smell. Sometimes written text is seen – but typically it isn’t possible to read it. The images can last anything from seconds to hours. […] People who experience CBS tend to have their visions when in a state of quiet restfulness, or in conditions of low light. The visions are not dreams and people don’t tend to experience them whilst falling asleep. […] CBS affects people who have experienced a sharp decline in their vision. It can occur in anyone who has experienced moderate to severe visual loss. This includes people experiencing conditions such as age-related macular degeneration, cataracts and diabetic retinopathy.
  • #20 Charles Bonnet Syndrome: what is it and what help is out there? | Glaucoma UK
    https://glaucoma.uk/blog-category-blog/charles-bonnet-syndrome-what-is-it-and-what-help-is-out-there/
    Esme had advanced glaucoma and, clearly, much more of her sight had been lost than I realised. When someone has full sight, there are messages which run all the time from the retina in the eye to the visual cortex in the brain. As sight diminishes, those messages slow down or stop entirely, leaving the brain inactive, with nothing to interpret. Consequently, it fires up and creates its own images. […] The visual hallucinations are entirely silent. No other sense is involved and there is no interaction with the images. The sight loss can be caused by any one of the myriad eye diseases, or from stroke, cancer, accident to the eye, diabetes, multiple sclerosis or another condition which damages the optic nerve. […] Isolation, stress, fever and inactivity exacerbate CBS. Keeping the brain active can help to reduce the frequency of the episodes. Benign images – like cavorting kittens or beautiful flowers – can make the condition easier to tolerate, but the unpredictability of hallucinations is extremely debilitating.
  • #21 Charles Bonnet syndrome | Your Eye HealthFacebookYouTubeInstagramLinkedInPinterest
    https://www.guidedogs.org.uk/getting-support/information-and-advice/eye-conditions/charles-bonnet-syndrome/
    Charles Bonnet syndrome causes you to see things that aren’t there, known as visual hallucinations. These aren’t accompanied by other sensations such as hearing noises or smelling or feeling things that aren’t real. Unlike delusions, people having these hallucinations are aware they’re not real. […] The frequency and length of hallucinations usually subside with time but can still happen up to five years after they start. […] Charles Bonnet hallucinations are associated with significant sight loss and often begin after a sudden or significant loss of vision.
  • #22 Charles Bonnet Syndrome | CNIB Submit Search Submit Search Submit Search Share this page on FacebookShare this page on TwitterShare this page on LinkedInSend this page by emailFollow us on facebookFollow us on XFollow us on
    https://www.cnib.ca/en/charles-bonnet-syndrome
    Charles Bonnet Syndrome (CBS) is a common condition among people with significant sight loss. It is characterized by visual hallucinations. Symptoms can however, cause confusion and concern among those who experience it. […] CBS can occur for days or years. […] People with CBS become aware that what they are seeing is not real, even though imagery can appear detailed and clear. […] Hallucinations can appear at any time; last for a few seconds or be of extended duration. […] Imagery can be pleasant, neutral or disturbing. […] People experiencing CBS may be hesitant to discuss it and may fear getting diagnosed with serious mental health conditions. […] An eye doctor will likely rule out other conditions that could cause visual hallucinations. In the absence of other conditions, they may diagnose CBS. It is important to consult with your doctor to confirm a diagnosis of CBS. […] CBS can typically take the form of one or all of the following: Simple, Complex, Panoramic.
  • #23 Azthena logo with the word Azthena
    https://www.news-medical.net/health/Charles-Bonnet-Syndrome-Signs-and-Symptoms.aspx
    Charles Bonnet Syndrome (CBS) is a medical condition experienced by people who have deteriorating eyesight wherein they see things or objects that are not real. […] CBS occurs in persons with vision loss who experience visual hallucinations. The experience of visual hallucinations differs from other forms or presentations of hallucinations in that they are experienced spontaneously, usually in quiet, familiar environments. […] Two types of hallucinations are caused by CBS, simple and complicated. Simple visual hallucinations include lines or patterns and are more abstract in nature. Patients who experience simple hallucinations are generally aware of their hallucination experience. […] Complicated visual hallucinations are characterized by more realistic visuals, including persons, familiar environments, and actual objects. This type of hallucination usually presents in individuals with severe vision loss.
  • #24 Charles Bonnet Syndrome | Vision Express
    https://www.visionexpress.com/eye-health/charles-bonnet-syndrome
    Charles Bonnet syndrome is thought to be much more common than experts previously realised. […] There are several symptoms of Charles Bonnet Syndrome. These include: Significant vision loss, Visual hallucinations, No control over the hallucinations, Awareness that the hallucinations arent real. […] Experiences vary from person to person, but common visual hallucinations are usually one of two types: Simple: repeating patterns of lines, dots, or other geometric shapes. Complex: landscapes, people, animals, insects, or even fantastical with imaginary creatures like dragons. These are more likely in people with severe loss of vision. […] When you have an episode, the hallucinations can last for anything from a few seconds to several hours. […] Charles Bonnet syndrome can be distressing, especially when the hallucinations first start.
  • #25 Charles Bonnet syndrome – Moorfields Private
    https://www.moorfields.nhs.uk/private/eye-conditions-and-treatments/charles-bonnet-syndrome
    Charles Bonnet syndrome is a condition which can occur in anyone whose sight is deteriorating, and it causes them to experience visual hallucinations (seeing things which aren’t really there). It can affect people of any age from children to the elderly. […] The visual hallucinations are different in each person and can range from simple shapes like lines and dots, coloured blobs and geometrical patterns, or more complex images involving faces (sometimes distorted or gargoyle-like), people (young or old), animals, objects or whole vivid scenes. […] The hallucinations can last anything from a few minutes to several hours and appear without warning. They can occur several times a day or a couple times a week/month and can last for a short period or many years. […] It is important to remember that Charles Bonnet syndrome hallucinations only involve sight. If other senses (hearing, smelling, tasting or touching) are involved as well then it is not considered to be Charles Bonner syndrome. Patients with Charles Bonnet syndrome are also aware that the visual hallucinations experienced are not real compared to hallucinations from other causes.
  • #26 Charles Bonnet Syndrome: Causes, Symptoms, and Treatment
    https://patient.info/eye-care/charles-bonnet-syndrome
    Most commonly people see complicated coloured patterns, children, wild animals and faces. The faces may be of people they recognise. This may – and often does – include seeing people from the past, and people who have died. Plants, trees and beautiful countryside scenes are also common. […] The hallucinations are purely visual – they don’t have a sound or a smell. Sometimes written text is seen – but typically it isn’t possible to read it. The images can last anything from seconds to hours. […] People who experience CBS tend to have their visions when in a state of quiet restfulness, or in conditions of low light. The visions are not dreams and people don’t tend to experience them whilst falling asleep. […] CBS affects people who have experienced a sharp decline in their vision. It can occur in anyone who has experienced moderate to severe visual loss. This includes people experiencing conditions such as age-related macular degeneration, cataracts and diabetic retinopathy.
  • #27 Charles Bonnet Syndrome: Symptoms and Treatment | Doctor
    https://patient.info/doctor/charles-bonnet-syndrome-pro
    Charles Bonnet syndrome (CBS) involves visual hallucinations due to eye disease, usually associated with a sharp decline in vision. Interesting features of the condition are the complexity of the hallucinations and the fact that there is some consistency between people in the types of images seen, most notably images of faces, children and wild animals. […] Patients rarely volunteer symptoms of this syndrome unless prompted, because they fear that they will be thought to have a psychiatric illness. […] Visual hallucination is defined as a perception of an external object when no such object is present. The nature of the hallucination depends on the part of the brain that is activated. The hallucinations may be black and white or in colour. They may involve grids/brickwork/lattice patterns but are typically much more complex:
  • #28 Charles Bonnet Syndrome: Causes, Symptoms, and Treatment
    https://patient.info/eye-care/charles-bonnet-syndrome
    Most commonly people see complicated coloured patterns, children, wild animals and faces. The faces may be of people they recognise. This may – and often does – include seeing people from the past, and people who have died. Plants, trees and beautiful countryside scenes are also common. […] The hallucinations are purely visual – they don’t have a sound or a smell. Sometimes written text is seen – but typically it isn’t possible to read it. The images can last anything from seconds to hours. […] People who experience CBS tend to have their visions when in a state of quiet restfulness, or in conditions of low light. The visions are not dreams and people don’t tend to experience them whilst falling asleep. […] CBS affects people who have experienced a sharp decline in their vision. It can occur in anyone who has experienced moderate to severe visual loss. This includes people experiencing conditions such as age-related macular degeneration, cataracts and diabetic retinopathy.
  • #29 Charles Bonnet Syndrome – IALVS
    https://ialvs.com/ways-we-can-help/what-is-a-low-vision-exam/low-vision-eye-diseases/charles-bonnet-syndrome/
    While the visual hallucinations vary between individuals, there are some common ones: Scenic landscapes, such as waterfalls and mountains; Animals or insects; People, often dressed in costume or with distorted features; Repeating patterns of geometric shapes, lines, and dots; Imaginary creatures, such as unicorns. […] These hallucinations may appear in vivid color or in black and white, and they can be stationary or in movement. The duration of Charles Bonnet hallucinations can be a few seconds, minutes, or hours. […] No, there is no cure or effective medication for Charles Bonnet syndrome. Some people find that stress and fatigue exacerbate the symptoms, so getting enough sleep and relaxation time is important. […] Studies have shown that low vision rehabilitation may reduce the frequency of Charles Bonnet hallucinations in patients with this condition. Effective rehabilitation strategies include using personalized low vision devices to enable improved visual function for the type of vision loss that each person has experienced.
  • #30 Charles Bonnet Syndrome – IALVS
    https://ialvs.com/ways-we-can-help/what-is-a-low-vision-exam/low-vision-eye-diseases/charles-bonnet-syndrome/
    While the visual hallucinations vary between individuals, there are some common ones: Scenic landscapes, such as waterfalls and mountains; Animals or insects; People, often dressed in costume or with distorted features; Repeating patterns of geometric shapes, lines, and dots; Imaginary creatures, such as unicorns. […] These hallucinations may appear in vivid color or in black and white, and they can be stationary or in movement. The duration of Charles Bonnet hallucinations can be a few seconds, minutes, or hours. […] No, there is no cure or effective medication for Charles Bonnet syndrome. Some people find that stress and fatigue exacerbate the symptoms, so getting enough sleep and relaxation time is important. […] Studies have shown that low vision rehabilitation may reduce the frequency of Charles Bonnet hallucinations in patients with this condition. Effective rehabilitation strategies include using personalized low vision devices to enable improved visual function for the type of vision loss that each person has experienced.
  • #31 Charles Bonnet Syndrome: Symptoms and Treatment | Doctor
    https://patient.info/doctor/charles-bonnet-syndrome-pro
    Figures (often children), faces, wild animals and moving vehicles have all been described. These may be recognisable individuals, including people long since deceased but known to the patient. […] Images of complex-coloured patterns and images of people are most common, followed by animals, plants or trees and inanimate objects. The hallucinations also often fit into the person’s surroundings. […] Patients may report seeing texts or letters but, typically, they can never quite read them when they try to. […] The hallucinations are always outside the body. […] The hallucinations are purely visual – other senses are not involved. […] The hallucinations have no personal meaning to the patient. […] Hallucinations may last seconds, minutes or hours. […] CBS tends to occur in a 'state of quiet restfulness’. This may be after a meal or when listening to the radio (but not when dozing off).
  • #32 Charles Bonnet syndrome – NHS
    https://www.nhs.uk/conditions/charles-bonnet-syndrome/
    Charles Bonnet syndrome is a condition where you see things that are not real (hallucinations). It can happen if you’ve lost a lot of your sight. It’s not caused by a mental health problem or dementia. […] The main symptom of Charles Bonnet syndrome is seeing things that are not real (hallucinations) after losing a lot of your sight. […] The hallucinations can: be patterns such as shapes or lines, be of people, animals, objects or places, be moving or still, be in black and white or colour, happen suddenly, last for a few minutes or several hours. […] Most people with Charles Bonnet syndrome know the hallucinations are not real. […] There’s currently no cure for Charles Bonnet syndrome, but over time the hallucinations usually happen less often. […] Charles Bonnet syndrome is linked to vision loss.
  • #33 Charles Bonnet syndrome | healthdirect
    https://www.healthdirect.gov.au/charles-bonnet-syndrome
    Charles Bonnet syndrome is a condition where people have repeated visions. […] Most people who have Charles Bonnet syndrome have very poor vision. […] For most people, the visions stop within 12 to 18 months. […] People with Charles Bonnet syndrome report seeing visions of patterns, people, plants and animals, buildings and other day-to-day objects, and entire landscapes. […] The visions can be colourful or just black and white, be moving or still, and appear real or unreal. […] The visions can come and go, lasting for just a few seconds or continuing for many hours. […] The time from when Charles Bonnet syndrome starts to when it stops varies a lot. It ranges from a few months to many years. […] Understanding that Charles Bonnet syndrome is not a mental health issue may help you live with it. It may also help to know that for most people, the visions stop within 12 to 18 months.
  • #34 UT Health Austin | Visual Release Hallucinations (Charles Bonnet…
    https://uthealthaustin.org/conditions/charles-bonnet-syndrome
    Charles Bonnet syndrome (CBS) refers to symptoms of visual hallucinations that occur in patients with visual acuity loss or visual field loss. […] Charles Bonnet syndrome refers to visual hallucinations produced as the brain adjusts to significant vision loss. […] CBS hallucinations do not involve sounds, smells, or any other sensations. It’s important to note that hallucinations associated with this condition are caused by failing eyesight, not by a mental health problem or dementia. […] Visual release hallucinations aren’t usually unpleasant or threatening but may be slightly frightening when first experienced. They can sometimes occur suddenly and can last for a few minutes or several hours. These hallucinations may be moving or static. […] Visual release hallucinations may have the following characteristics: A realization that the hallucinations are not real (known as insight), Complex images of people, objects, or landscapes, No control over hallucinations, Simple, repeated patterns.
  • #35 Charles Bonnet Syndrome: Symptoms, Causes, and TreatmentHealthline
    https://www.healthline.com/health/charles-bonnet-syndrome
    The main symptoms of CBS are visual hallucinations, often shortly after waking up. They might happen on a daily or weekly basis and can last for a few minutes or several hours. […] Some people with CBS report seeing the same people and animals over and over again in their hallucinations. This often adds to their concern about being misdiagnosed with mental illness. […] For many people with CBS, their hallucinations become less frequent about 12 to 18 months after losing some or all of their vision. For some, they may stop completely.
  • #36 Charles Bonnet syndrome: What it is, symptoms, and moreMedical News Today
    https://www.medicalnewstoday.com/articles/charles-bonnet-syndrome
    People with CBS see visual hallucinations, which means they see things that are not really there. It affects up to 30% of people with visual impairment in both eyes. […] People with CBS see phantom images. These images can be simple lines, shapes, or more complex things such as people, animals, or faces. […] These images are often clear, well-defined, and organized. A person with CBS has little or no control over their hallucinations. […] People with CBS tend to see more than one type of hallucination. Those that involve people and faces are particularly common. […] Most people with CBS see hallucinations when they wake up. However, they can happen anytime. […] People with CBS tend to find their hallucinations bizarre but not often disturbing. […] Untreated CBS may impact a person’s mental health and cause stress. […] CBS has no cure or specific treatment. […] In most cases, a person’s hallucinations can become less frequent. […] While there is no cure for CBS, many people’s symptoms reduce over time. […] CBS hallucinations can last seconds, minutes, or hours. With treatment, they may stop after 1–2 years.
  • #37 Charles Bonnet Syndrome | Canadian Association of Optometrists
    https://opto.ca/eye-health-library/charles-bonnet-syndrome
    Individuals with Charles Bonnet Syndrome (CBS) may experience psychovisual disturbances causing them to see things that are not there. […] People with CBS are generally aware that what they are seeing is not real. The psychovisual disturbances are only visual, so people with CBS do not hear, smell, or feel things that are not there. The psychovisual disturbances are often abstract in nature and may include colours, shapes, people, animals, cartoons, objects, and complex scenes. Images can appear at any time, lasting from a few seconds to several hours. Individuals with CBS report variable reactions to their psychovisual disturbances, ranging from pleasant and positive experiences to frightening and negative ones. […] CBS can begin weeks or months after significant vision loss, and it may spontaneously resolve after a period of time in some cases.
  • #38 Charles Bonnet Syndrome – MD Searchlight
    https://mdsearchlight.com/neurology/charles-bonnet-syndrome/
    A study showed that 38% of the participants found the hallucinations frightening and unsettling when they first started. However, over time, the emotional response to the hallucinations decreased to 8%. Most people, about 60%, reported that the hallucinations didn’t affect their lives, while 33% said it had a negative impact, and 7% said it improved their lives. […] The prognosis for Charles Bonnet Syndrome (CBS) varies depending on the underlying cause of vision impairment or loss. If the vision problem is associated with an ongoing eye disease, symptoms can persist for several years. However, if the vision impairment can be quickly fixed, such as with cataracts, the prognosis is typically better. The symptoms of CBS can also fluctuate, with hallucinations coming and going, especially in cases of slow or stable vision impairment. CBS has also been linked to dementia, with some individuals developing dementia within an average of around 33 months.
  • #39 Charles Bonnet Syndrome: Causes, Symptoms, and Treatment
    https://patient.info/eye-care/charles-bonnet-syndrome
    Charles Bonnet syndrome is a common condition experienced by people who are losing, or have lost, their sight. It involves seeing things which are not really there (having visual hallucinations). The hallucinations are most marked in low light or when relaxing and are often complicated scenes involving faces, children and wild animals. […] Charles Bonnet syndrome (CBS) involves visual hallucinations. Having a visual hallucination means experiencing something which is not really there. This can be frightening or distressing, particularly when it first occurs and you don’t know the cause. […] People who experience hallucinations of CBS sometimes fear 'they are going mad’, or believe there could be a supernatural cause. […] The visual hallucinations of CBS can be black and white, or in colour. They can involve patterns, walls or grids, but more often they are complicated moving images. A huge variety of visual images have been described, as the pictures are created by the subconscious mind and the memory, and the human imagination is so extraordinary.
  • #40 Charles Bonnet Syndrome – MD Searchlight
    https://mdsearchlight.com/neurology/charles-bonnet-syndrome/
    Charles Bonnet Syndrome (CBS) is a condition where people with vision loss experience visual hallucinations. These hallucinations can start from light flashes or simple shapes to complex scenes with detailed images. The hallucinations are usually colorful and can be stationary or moving. People with this syndrome often report these hallucinations as distressing even though they know they are not real. […] The hallucinations seen in CBS can be simple or complex. Simple hallucinations might include patterns, lines, or shapes. Complex hallucinations could contain clear and intricate images of people, faces, animals, and objects amongst others. Regardless of the type of hallucination, the images are usually clearer and more vivid than the person’s actual residual vision. […] These hallucinations can start at different times depending on the cause of the vision loss. For instance, people with a slowly progressing eye disease usually start to have hallucinations about a year after they experience severe visual impairment or complete vision loss. On the other hand, individuals with sudden vision loss due to damage in the optic nerve or brain report hallucinations within hours or days of the vision loss. However, they can also start seeing hallucinations months after the event that caused the vision loss.
  • #41 Charles Bonnet Syndrome: Symptoms, Causes, Treatment | Qwark
    https://qwarkhealth.com/conditions/charles-bonnet-syndrome
    It is generally believed that CBS symptoms do not worsen over time. However, in some cases, individuals may experience changes in the visual hallucinations, such as increased frequency or intensity. Psychological factors, such as anxiety or stress, may also exacerbate the symptoms. […] There are no specific factors that can reliably predict the long-term outlook for individuals with CBS. The underlying cause of CBS, age, and overall health may impact the severity and duration of symptoms. However, many individuals with CBS experience a gradual decrease in symptoms over time. […] Currently, there is no cure for CBS, and treatment options are limited. However, some individuals may benefit from low vision aids or cognitive-behavioral therapy. The effectiveness of these interventions may vary depending on the individual and the severity of symptoms.
  • #42 Charles Bonnet Syndrome – StatPearls – NCBI BookshelfTwitterFacebookLinkedInGitHubNCBI Insights BlogTwitterFacebookYoutube
    https://www.ncbi.nlm.nih.gov/books/NBK585133/
    Patients who notice the unreal nature of their hallucinations may be depressed by the fear of imminent insanity. […] The visual hallucinations can vary from described events such as light flashes, shapes, or lines to complex events, including formed images and scenes. […] Patients with chronic slow-progressing ocular disease typically report hallucinations at least one year after severe visual impairment or complete vision loss. […] In comparison, patients with acute vision loss secondary to the optic nerve or brain damage will typically report hallucinations within hours or days of inciting events; however, hallucinations can still be reported within months as well. […] The patients manifest with some level of visual impairment; the visual hallucinations are better with more clarity than the residual vision. These visual hallucinations are vivid and are not under voluntary control.
  • #43 Charles Bonnet Syndrome | Canadian Association of Optometrists
    https://opto.ca/eye-health-library/charles-bonnet-syndrome
    Individuals with Charles Bonnet Syndrome (CBS) may experience psychovisual disturbances causing them to see things that are not there. […] People with CBS are generally aware that what they are seeing is not real. The psychovisual disturbances are only visual, so people with CBS do not hear, smell, or feel things that are not there. The psychovisual disturbances are often abstract in nature and may include colours, shapes, people, animals, cartoons, objects, and complex scenes. Images can appear at any time, lasting from a few seconds to several hours. Individuals with CBS report variable reactions to their psychovisual disturbances, ranging from pleasant and positive experiences to frightening and negative ones. […] CBS can begin weeks or months after significant vision loss, and it may spontaneously resolve after a period of time in some cases.
  • #44 Charles Bonnet Syndrome: Causes, Symptoms, and Treatment
    https://patient.info/eye-care/charles-bonnet-syndrome
    CBS tends not to last for ever. Typically the visions last for about 18 months and then begin to lessen. It is believed that this happens because the brain becomes used to the low vision. A recent study has found that, although most people find that their symptoms become less frequent, they still have occasional hallucinations five years after they first started.
  • #45 Charles Bonnet syndrome | healthdirect
    https://www.healthdirect.gov.au/charles-bonnet-syndrome
    Charles Bonnet syndrome is a condition where people have repeated visions. […] Most people who have Charles Bonnet syndrome have very poor vision. […] For most people, the visions stop within 12 to 18 months. […] People with Charles Bonnet syndrome report seeing visions of patterns, people, plants and animals, buildings and other day-to-day objects, and entire landscapes. […] The visions can be colourful or just black and white, be moving or still, and appear real or unreal. […] The visions can come and go, lasting for just a few seconds or continuing for many hours. […] The time from when Charles Bonnet syndrome starts to when it stops varies a lot. It ranges from a few months to many years. […] Understanding that Charles Bonnet syndrome is not a mental health issue may help you live with it. It may also help to know that for most people, the visions stop within 12 to 18 months.
  • #46 Charles Bonnet Syndrome (CBS): Hallucinations After Sight Loss | Carents
    https://carents.co.uk/carenting-guides/healthcare/sight-hearing/understanding-charles-bonnet-syndrome-visual-hallucinations-after-sight-loss/
    Symptoms and Signs of CBS include: Simple Hallucinations: Coloured blobs, geometric patterns, or shapes. Detailed Hallucinations: People, animals, or entire landscapes. Silent and Vivid: Hallucinations are typically silent, sharp, and distinct from the individual’s general vision. Awareness: Most people recognise these images are not real because they are often too clear compared to their actual eyesight. […] Living with Charles Bonnet Syndrome can be emotionally challenging. Individuals might worry that the hallucinations suggest a mental illness or become reluctant to confide in anyone about their experiences. In many cases, stress and isolation can worsen these hallucinations. Over time, hallucinations may grow less frequent—though for some people they may continue intermittently. […] They may reduce in frequency over time, but for some individuals they can recur for many years.
  • #47 Charles Bonnet Syndrome | Glaucoma Australia
    https://glaucoma.org.au/i-have-glaucoma/living-with-glaucoma/charles-bonnet-syndrome
    Up to one third of people with low vision may experience visual hallucinations […] It is thought that nearly one third of people with low vision (of any cause) will develop Charles Bonnet Syndrome. In studies of glaucoma, it was found that nearly 1 in 4 (23%) glaucoma patients experienced this phenomenon. This could occur even if central vision was quite normal, but there was severe visual field loss. […] The syndrome was typically thought to dissipate within a year, however more recent research suggests that the illusions can last for 5 years or more.
  • #48 Living with Charles Bonnet syndrome | Help & Support
    https://www.guidedogs.org.uk/getting-support/information-and-advice/eye-conditions/charles-bonnet-syndrome/living-with-charles-bonnet-syndrome/
    People living with Charles Bonnet syndrome experience visual hallucinations, usually after a significant loss of vision. […] Although it can be unsettling to see things that aren’t really there, Charles Bonnet syndrome isn’t a sign of mental illness. The hallucinations tend to improve over time, and there are many practical ways you can limit the impact they have on day-to-day life. […] The first time you experience hallucinations can feel quite unsettling or scary, even though the hallucinations themselves aren’t usually sinister. They can begin unexpectedly and last for minutes or many hours at a time. […] Charles Bonnet syndrome first tends to occur after a significant deterioration in vision. In time, the hallucinations you experience can happen less often, and become shorter too. You might still get occasional hallucinations up to five years after first developing the condition. […] If the cause of your sight loss is a progressive eye condition, then any further deterioration in your vision can prompt more episodes of hallucinations.
  • #49 Charles Bonnet Syndrome – Rare Awareness Rare Education
    https://rareportal.org.au/rare-disease/charles-bonnet-syndrome/
    Charles Bonnet syndrome (CBS) is a vision-related condition, in which individuals see images that are not actually present (phantom images) due to decreasing or loss of vision. CBS can affect all ages (from 5 yrs upwards) but tends to be reported more in older people as most cases of vision loss occur in later life. For many individuals, the symptoms can persist for five or more years. […] Individuals with Charles Bonnet syndrome (CBS) see images that are not actually present (phantom images). These images may include shapes or patterns, or physical things such as faces, people, animals, buildings, plants, and even landscapes. They may be still or moving images, and may be in black and white, or in colour. […] In some individuals, these symptoms may stop after 12-18 months, but in many individuals, the symptoms often persist for up to 5 or more years. The type of images that appear may change over time. […] Individuals with CBS often experience anxiety due to these phantom images and are often concerned that it is a sign of mental illness, or that they may not be believed or taken seriously by others.
  • #50 Visual release hallucinations – Wikipedia
    https://en.wikipedia.org/wiki/Visual_release_hallucinations
    It is widely claimed that sensory deprivation is instrumental in the progression of CBS. During episodes of inactivity, hallucinations are more likely to occur. The majority of those with CBS describe the duration of hallucinations to continue for up to a few minutes, multiple times a day or week. […] A large proportion of those with CBS develop the visual hallucinations as vision begins to deteriorate and stop hallucinating once vision is entirely gone. Complex hallucinations may progress over time if the primary loss of vision is due to damage of the early cortical areas. If activation of the early cortical areas is suppressed when CBS symptoms have already been exhibited, hallucinations may temporarily terminate. Also, interrupting vision for a short time by closing the eyes or blinking may be helpful.
  • #51 Charles Bonnet Syndrome after Occipital Infarction
    https://www.j-nn.org/journal/view.php?number=85
    Visual hallucinations may occur in association with damage to any part of the visual pathway. Charles Bonnet syndrome (CBS) is characterized by vivid visual hallucinations caused by injury to the visual system, while other cognitive functions are preserved. […] In patient 1, moving hallucinations persisted for 9 months after symptom onset, while in patient 2, static hallucinations completely disappeared 7 days after the first hallucination. […] CBS is characterized by vivid visual hallucinations caused by injury to the visual system while other cognitive functions are preserved. […] CBS has a variable disease course. It can either spontaneously disappear after days or continue for months. Patient 1 experienced extremely colorful and vivid moving hallucinations that reappeared over a 9-month period whereas patient 2 experienced static hallucinations that completely disappeared seven days after the first hallucination. […] Our cases show that lesion size and duration of visual hallucinations are inconsistent. In conclusion, our cases suggest that the clinical course of Charles Bonnet syndrome is variable irrespective of cortical lesion size, although this must be confirmed with more patients in the future.
  • #52 Charles Bonnet Syndrome – StatPearls – NCBI BookshelfTwitterFacebookLinkedInGitHubNCBI Insights BlogTwitterFacebookYoutube
    https://www.ncbi.nlm.nih.gov/books/NBK585133/
    The prognosis of CBS largely depends on the underlying cause of vision impairment or loss, with multiple symptoms associated with chronic ocular disease lasting multiple years. […] The prognosis of CBS can also be variable, with remitting visual hallucinations in those with slow progressing or stable vision impairment. […] Lastly, outside of the visual hallucinations associated with CBS, the condition has also been associated with the development of dementia.
  • #53 Charles Bonnet Syndrome: Symptoms, Causes, Treatment | Qwark
    https://qwarkhealth.com/conditions/charles-bonnet-syndrome
    It is generally believed that CBS symptoms do not worsen over time. However, in some cases, individuals may experience changes in the visual hallucinations, such as increased frequency or intensity. Psychological factors, such as anxiety or stress, may also exacerbate the symptoms. […] There are no specific factors that can reliably predict the long-term outlook for individuals with CBS. The underlying cause of CBS, age, and overall health may impact the severity and duration of symptoms. However, many individuals with CBS experience a gradual decrease in symptoms over time. […] Currently, there is no cure for CBS, and treatment options are limited. However, some individuals may benefit from low vision aids or cognitive-behavioral therapy. The effectiveness of these interventions may vary depending on the individual and the severity of symptoms.
  • #54 Living with Charles Bonnet syndrome | Help & Support
    https://www.guidedogs.org.uk/getting-support/information-and-advice/eye-conditions/charles-bonnet-syndrome/living-with-charles-bonnet-syndrome/
    People living with Charles Bonnet syndrome experience visual hallucinations, usually after a significant loss of vision. […] Although it can be unsettling to see things that aren’t really there, Charles Bonnet syndrome isn’t a sign of mental illness. The hallucinations tend to improve over time, and there are many practical ways you can limit the impact they have on day-to-day life. […] The first time you experience hallucinations can feel quite unsettling or scary, even though the hallucinations themselves aren’t usually sinister. They can begin unexpectedly and last for minutes or many hours at a time. […] Charles Bonnet syndrome first tends to occur after a significant deterioration in vision. In time, the hallucinations you experience can happen less often, and become shorter too. You might still get occasional hallucinations up to five years after first developing the condition. […] If the cause of your sight loss is a progressive eye condition, then any further deterioration in your vision can prompt more episodes of hallucinations.
  • #55 Charles Bonnet Syndrome – StatPearls – NCBI BookshelfTwitterFacebookLinkedInGitHubNCBI Insights BlogTwitterFacebookYoutube
    https://www.ncbi.nlm.nih.gov/books/NBK585133/
    Charles Bonnet syndrome (CBS) is a phenomenon characterized by complex visual hallucinations in visually challenged patients but otherwise psychologically normal. […] In CBS, the patient is aware that the image is not real and may see these images as disturbing. However, hallucinations can also fit in the visual phenomenon and may be indiscernible from real objects. […] CBS can also be a marker of dementia in elderly patients. CBS can manifest when there is a lesion at any level of the visual system, and typically patients manifest with a loss of central visual acuity. […] The patient is usually unaware of the unreality of visual experiences, which are typically normal to the brain but sometimes may result in distress. The patient has minimal or no control over the hallucinations, which are clear, well-defined, organized images.
  • #56 Charles Bonnet Syndrome – StatPearls – NCBI BookshelfTwitterFacebookLinkedInGitHubNCBI Insights BlogTwitterFacebookYoutube
    https://www.ncbi.nlm.nih.gov/books/NBK585133/
    The prognosis of CBS largely depends on the underlying cause of vision impairment or loss, with multiple symptoms associated with chronic ocular disease lasting multiple years. […] The prognosis of CBS can also be variable, with remitting visual hallucinations in those with slow progressing or stable vision impairment. […] Lastly, outside of the visual hallucinations associated with CBS, the condition has also been associated with the development of dementia.
  • #57 Charles Bonnet Syndrome – MD Searchlight
    https://mdsearchlight.com/neurology/charles-bonnet-syndrome/
    A study showed that 38% of the participants found the hallucinations frightening and unsettling when they first started. However, over time, the emotional response to the hallucinations decreased to 8%. Most people, about 60%, reported that the hallucinations didn’t affect their lives, while 33% said it had a negative impact, and 7% said it improved their lives. […] The prognosis for Charles Bonnet Syndrome (CBS) varies depending on the underlying cause of vision impairment or loss. If the vision problem is associated with an ongoing eye disease, symptoms can persist for several years. However, if the vision impairment can be quickly fixed, such as with cataracts, the prognosis is typically better. The symptoms of CBS can also fluctuate, with hallucinations coming and going, especially in cases of slow or stable vision impairment. CBS has also been linked to dementia, with some individuals developing dementia within an average of around 33 months.
  • #58 Eyes – Charles Bonnet syndrome | Better Health ChannelExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal Link
    https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/eyes-charles-bonnet-syndrome
    Charles Bonnet syndrome refers to the visual hallucinations caused by the brain’s adjustment to significant vision loss. […] The signs and symptoms of Charles Bonnet syndrome include: Significant vision loss, Visual hallucinations, No control over the hallucinations, A realisation that the hallucinations aren’t real. […] In most cases, the hallucinations go away as the brain adapts. […] A person with Charles Bonnet syndrome has no control over their hallucinations. They may cause issues in their everyday life because: The hallucinations overlay images of the real world, so the person may have trouble negotiating everyday tasks, such as walking through an unfamiliar environment. […] In most cases, Charles Bonnet syndrome resolves itself after about 12 to 18 months without treatment.
  • #59 Charles Bonnet Syndrome | Psychology Today
    https://www.psychologytoday.com/us/basics/charles-bonnet-syndrome
    Charles Bonnet syndrome can be frustrating and isolating. It may also present practical challenges—for example, persistent visual hallucinations, combined with significant vision loss, may make it harder for someone to navigate their surroundings. […] Though there is no cure, fortunately, symptoms often fade with time; simple exercises could help someone reduce the frequency and intensity of their hallucinations.
  • #60 Eyes – Charles Bonnet syndrome | Better Health ChannelExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal Link
    https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/eyes-charles-bonnet-syndrome
    Charles Bonnet syndrome refers to the visual hallucinations caused by the brain’s adjustment to significant vision loss. […] The signs and symptoms of Charles Bonnet syndrome include: Significant vision loss, Visual hallucinations, No control over the hallucinations, A realisation that the hallucinations aren’t real. […] In most cases, the hallucinations go away as the brain adapts. […] A person with Charles Bonnet syndrome has no control over their hallucinations. They may cause issues in their everyday life because: The hallucinations overlay images of the real world, so the person may have trouble negotiating everyday tasks, such as walking through an unfamiliar environment. […] In most cases, Charles Bonnet syndrome resolves itself after about 12 to 18 months without treatment.
  • #61 Charles Bonnet Syndrome – Burman & Zuckerbrod Ophthalmology Associates
    https://www.2020detroit.com/charles-bonnet-syndrome/
    Charles Bonnet syndrome refers to the visual hallucinations caused by the brain’s adjustment to significant vision loss. It occurs most often among the elderly who are more likely than any other age group to have eye conditions that affect sight, such as age-related macular degeneration. Estimates vary, but it is thought that about one person in every two with vision loss may experience hallucinations, which means Charles Bonnet syndrome is very common. Despite this, most people are not aware of this condition. […] The signs and symptoms of Charles Bonnet syndrome include: Significant vision loss, Visual hallucinations, No control over the hallucinations, A realisation that the hallucinations aren’t real. […] A person with Charles Bonnet syndrome has no control over their hallucinations. They may cause issues in their everyday life because: The hallucinations overlay images of the real world, so the person may have trouble negotiating everyday tasks, such as walking through an unfamiliar environment. The person may not know at first whether the image is real or imagined, which can be frightening if they are seeing, for example, a stranger in the house. Seeing things that aren’t there is distressing, even if the images are pleasant. The person may fear they are going mad or exhibiting signs of dementia. […] In most cases, Charles Bonnet syndrome resolves itself after about 12 to 18 months without treatment.
  • #62 Charles Bonnet Syndrome – EyeWiki
    https://eyewiki.org/Charles_Bonnet_Syndrome
    There is limited data regarding the effect of CBS on mortality. […] While CBS may not negatively impact most patients, 33% of patients can experience negative outcomes including distress if they have experienced chronic, frightening hallucinations, stigma due to CBS being misattributed to a mental disorder, and diminished quality of life.
  • #63 Charles Bonnet Syndrome | Macular Disease Foundation Australia
    https://www.mdfoundation.com.au/about-macular-disease/other-conditions/charles-bonnet-syndrome/
    Seeing things that arent there can be worrying for some people, even though the images themselves usually arent threatening. […] Charles Bonnet syndrome is caused by failing eyesight. It is not a mental health problem. […] Generally, Charles Bonnet syndrome visions wont impact your everyday life and activities. Sometimes, however, they can make it more difficult to get around. […] The frequency of phantom images can vary greatly. You might experience visions anywhere from a few days, up to many years. […] Generally, these experiences will disappear after about a year, or 18 months, but this wont happen for everyone. […] If you are experiencing CBS, understanding the syndrome, knowing it is not a mental health issue, and coming to terms with your visions appears to be the best course of action. […] For most people, the best way to manage the condition is just knowing CBS is a result of their vision loss and not other health problems.
  • #64 Charles Bonnet Syndrome | Vision Express
    https://www.visionexpress.com/eye-health/charles-bonnet-syndrome
    Charles Bonnet syndrome is thought to be much more common than experts previously realised. […] There are several symptoms of Charles Bonnet Syndrome. These include: Significant vision loss, Visual hallucinations, No control over the hallucinations, Awareness that the hallucinations arent real. […] Experiences vary from person to person, but common visual hallucinations are usually one of two types: Simple: repeating patterns of lines, dots, or other geometric shapes. Complex: landscapes, people, animals, insects, or even fantastical with imaginary creatures like dragons. These are more likely in people with severe loss of vision. […] When you have an episode, the hallucinations can last for anything from a few seconds to several hours. […] Charles Bonnet syndrome can be distressing, especially when the hallucinations first start.
  • #65 Charles Bonnet syndrome – NHS
    https://www.nhs.uk/conditions/charles-bonnet-syndrome/
    Charles Bonnet syndrome is a condition where you see things that are not real (hallucinations). It can happen if you’ve lost a lot of your sight. It’s not caused by a mental health problem or dementia. […] The main symptom of Charles Bonnet syndrome is seeing things that are not real (hallucinations) after losing a lot of your sight. […] The hallucinations can: be patterns such as shapes or lines, be of people, animals, objects or places, be moving or still, be in black and white or colour, happen suddenly, last for a few minutes or several hours. […] Most people with Charles Bonnet syndrome know the hallucinations are not real. […] There’s currently no cure for Charles Bonnet syndrome, but over time the hallucinations usually happen less often. […] Charles Bonnet syndrome is linked to vision loss.
  • #66 Charles Bonnet Syndrome – lookafteryoureyes.orgLook After Your Eyes
    https://lookafteryoureyes.org/eye-conditions/charles-bonnet-syndrome/
    Currently, there is no cure for Charles Bonnet syndrome and no specific medication has been shown to stop the hallucinations. Some medications that are designed to treat epilepsy, Parkinson’s disease and dementia have proved effective for people who are severely affected. Usually, the hallucinations will become less frequent and vivid and may stop altogether. However, they may restart if there is another sudden, significant loss of vision.
  • #67 What is Charles Bonnet syndrome, the eye condition that causes hallucinations? – Faculty of Medicine – University of Queensland
    https://medicine.uq.edu.au/article/2020/02/what-charles-bonnet-syndrome-eye-condition-causes-hallucinations
    Treatment for Charles Bonnet syndrome is very limited, but many patients report reassurance is all they need, especially for infrequent hallucinations or those that don’t adversely affect quality of life. Strategies to minimise the frequency and duration of hallucinations include frequent blinking or rapid eye movement, going to a lighter place or switching a light on, and increasing social interaction, which helps to counter inactivity. […] Hallucinations may disappear if the cause of vision loss can be corrected (for example, if severe cataracts were causing blindness and the patient has a cataracts operation).
  • #68 What is Charles Bonnet syndrome, the eye condition that causes hallucinations?
    https://theconversation.com/what-is-charles-bonnet-syndrome-the-eye-condition-that-causes-hallucinations-122322
    Treatment for Charles Bonnet syndrome is very limited, but many patients report reassurance is all they need, especially for infrequent hallucinations or those that don’t adversely affect quality of life. […] Strategies to minimise the frequency and duration of hallucinations include frequent blinking or rapid eye movement, going to a lighter place or switching a light on, and increasing social interaction, which helps to counter inactivity. […] Hallucinations may disappear if the cause of vision loss can be corrected (for example, if severe cataracts were causing blindness and the patient has a cataracts operation).
  • #69 Charles Bonnet Syndrome: what is it and what help is out there? | Glaucoma UK
    https://glaucoma.uk/blog-category-blog/charles-bonnet-syndrome-what-is-it-and-what-help-is-out-there/
    Until our researchers discover a CBS-specific medication, distracting the brain may help to quell the hallucination temporarily. Every experience of CBS is unique, but there are coping strategies which work for some people. These include reaching out to the hallucination, clapping the hands, clicking the fingers, standing up/sitting down, walking about, singing, whistling, turning on/off music, television, radio or using Professor ffytche’s eye exercise, which can be found on the Esme’s Umbrella website.
  • #70 Charles Bonnet syndrome (CBS) – Macular Society
    https://www.macularsociety.org/macular-disease/macular-conditions/charles-bonnet-syndrome/
    Visual hallucinations can occur as a result of sight loss. Up to half of all people with macular degeneration are thought to experience visual hallucinations at some time. When hallucinations happen as a result of sight loss, they are known as Charles Bonnet syndrome (CBS), after the 18th century Swiss scientist and philosopher who first described the condition. Charles Bonnet hallucinations are not a sign of mental illness. They are more likely to occur if both eyes are affected by sight loss but can occur with problems in one eye only. The hallucinations often start after a sudden worsening of vision. […] CBS itself can last from days to many years. For most people the hallucinations improve with time so that they only occur very occasionally. […] Some medications can help people with very distressing hallucinations. These medications are usually prescribed for other conditions but have been shown to work for Charles Bonnet hallucinations. It would usually require a specialist doctor to prescribe them and further tests to see if they are safe to use and to rule out other causes of hallucinations. […] More research into Charles Bonnet syndrome is needed. For example, we do not know why only some people with sight loss have hallucinations. Research funded by the Macular Society is helping answer this question but more is needed.
  • #71 Charles Bonnet Syndrome – lookafteryoureyes.orgLook After Your Eyes
    https://lookafteryoureyes.org/eye-conditions/charles-bonnet-syndrome/
    Currently, there is no cure for Charles Bonnet syndrome and no specific medication has been shown to stop the hallucinations. Some medications that are designed to treat epilepsy, Parkinson’s disease and dementia have proved effective for people who are severely affected. Usually, the hallucinations will become less frequent and vivid and may stop altogether. However, they may restart if there is another sudden, significant loss of vision.
  • #72 What is Charles Bonnet syndrome? – Medical Republic
    https://www.medicalrepublic.com.au/what-is-charles-bonnet-syndrome/3190
    Strategies to minimise the frequency and duration of hallucinations include frequent blinking or rapid eye movement, going to a lighter place or switching a light on, and increasing social interaction, which helps to counter inactivity. […] For patients with debilitating symptoms, doctors may trial medications such as antidepressants, antipsychotics and antiepileptic drugs, though their efficacy is variable and may be outweighed by side effects.
  • #73 Charles Bonnet syndrome (CBS) – Macular Society
    https://www.macularsociety.org/macular-disease/macular-conditions/charles-bonnet-syndrome/
    Visual hallucinations can occur as a result of sight loss. Up to half of all people with macular degeneration are thought to experience visual hallucinations at some time. When hallucinations happen as a result of sight loss, they are known as Charles Bonnet syndrome (CBS), after the 18th century Swiss scientist and philosopher who first described the condition. Charles Bonnet hallucinations are not a sign of mental illness. They are more likely to occur if both eyes are affected by sight loss but can occur with problems in one eye only. The hallucinations often start after a sudden worsening of vision. […] CBS itself can last from days to many years. For most people the hallucinations improve with time so that they only occur very occasionally. […] Some medications can help people with very distressing hallucinations. These medications are usually prescribed for other conditions but have been shown to work for Charles Bonnet hallucinations. It would usually require a specialist doctor to prescribe them and further tests to see if they are safe to use and to rule out other causes of hallucinations. […] More research into Charles Bonnet syndrome is needed. For example, we do not know why only some people with sight loss have hallucinations. Research funded by the Macular Society is helping answer this question but more is needed.
  • #74 Charles Bonnet Syndrome: Complete Remission of Visual Hallucinations with Trazodone
    https://www.jneuropsychiatry.org/peer-review/charles-bonnet-syndrome-complete-remission-of-visual-hallucinations-with-trazodone-12999.html
    A week after trazodone was added-on her visual hallucinations faded away. Currently, the patient is 90-year-old and has been regularly taking trazodone at a dose of 50 mg, q.d., for four years. At an attempt to wean her off trazodone, visual hallucinations returned, but were controlled again after reinstitution of the drug. […] In CBS, spontaneous and/or stimulus-driven hyperexcitability of unimodal associative visual cortex underlies hallucinatory phenomena. […] The first step in the management of CBS is to treat the underlying ophthalmologic condition to enhance visual input thus inhibiting hallucinations. If this approach fails, pharmacological therapy may be considered. There is no specific drug treatment for CBS. […] A single study has reported three cases of CBS patients whose hallucinations improved with trazodone. Trazodone has dose-dependent hypnotic and antidepressant effects due to weak serotonin (5-HT) reuptake inhibition and through 5-HT2A, 5-HT2C, a1-adrenergic, and histamine H1 receptor antagonism. […] Our report adds to that of Hsu et al. and points trazodone to be considered as a first-line treatment for CBS, due to its good tolerability and few interactions with other drugs.
  • #75 Focus on Charles Bonnet Syndrome
    https://info.yourdolphin.com/charles-bonnet-syndrome
    It’s important to note that while the visual hallucinations in CBS can be quite vivid, they are not a sign of mental illness or dementia, and people with CBS are otherwise mentally healthy. […] Charles Bonnet Syndrome (CBS) can be challenging, but there are several strategies that can help people cope with the condition and maintain a good quality of life. […] In summary, living with Charles Bonnet Syndrome may require a multidisciplinary approach, including education, counselling, medication, and lifestyle modifications.
  • #76 Charles Bonnet Syndrome | Macular Disease Foundation Australia
    https://www.mdfoundation.com.au/about-macular-disease/other-conditions/charles-bonnet-syndrome/
    Seeing things that arent there can be worrying for some people, even though the images themselves usually arent threatening. […] Charles Bonnet syndrome is caused by failing eyesight. It is not a mental health problem. […] Generally, Charles Bonnet syndrome visions wont impact your everyday life and activities. Sometimes, however, they can make it more difficult to get around. […] The frequency of phantom images can vary greatly. You might experience visions anywhere from a few days, up to many years. […] Generally, these experiences will disappear after about a year, or 18 months, but this wont happen for everyone. […] If you are experiencing CBS, understanding the syndrome, knowing it is not a mental health issue, and coming to terms with your visions appears to be the best course of action. […] For most people, the best way to manage the condition is just knowing CBS is a result of their vision loss and not other health problems.
  • #77 What is Charles Bonnet syndrome, the eye condition that causes hallucinations? – Faculty of Medicine – University of Queensland
    https://medicine.uq.edu.au/article/2020/02/what-charles-bonnet-syndrome-eye-condition-causes-hallucinations
    Treatment for Charles Bonnet syndrome is very limited, but many patients report reassurance is all they need, especially for infrequent hallucinations or those that don’t adversely affect quality of life. Strategies to minimise the frequency and duration of hallucinations include frequent blinking or rapid eye movement, going to a lighter place or switching a light on, and increasing social interaction, which helps to counter inactivity. […] Hallucinations may disappear if the cause of vision loss can be corrected (for example, if severe cataracts were causing blindness and the patient has a cataracts operation).
  • #78 Charles Bonnet Syndrome (CBS) – Gene Vision
    https://gene.vision/knowledge-base/charles-bonnet-syndrome-cbs/
    Therefore, we believe it is important to raise the awareness of CBS among patients, relatives and healthcare professionals. By informing patients and following up with coping strategies can have a positive impact on patients quality of life. […] We know there is consistent under-reporting of CBS symptoms and difficulty with case ascertainment in the paediatric population, which is a shortcoming of current ophthalmology services. To address this, we are conducting a prospective study to try to ascertain the prevalence of CBS in children across the UK with the support of the British and Irish Orthoptic Society and the Thomas Pocklington Trust. Further research into CBS is required in order to gain a deeper understanding of the cause and how best to manage symptoms.
  • #79 Charles Bonnet Syndrome: Causes, Symptoms, and Treatment
    https://patient.info/eye-care/charles-bonnet-syndrome
    CBS is much more common in older patients because visual loss is more common in older people. However, anyone of any age may develop CBS, as any condition which causes sight loss can trigger it. It is therefore also seen in younger adults and children with visual loss. […] CBS is fairly common, although patients often don’t tell their doctor – or indeed anyone – about what they are experiencing. This may be due to the fear of being thought foolish or 'mad.’ Some patients fear that the symptoms are an early sign of dementia. CBS has nothing whatsoever to do with dementia and is entirely due to loss of sight. […] The condition is believed to occur in 10-15% of all people with moderate visual loss and up to 60% of people with severe visual loss. There are thought to be around 100,000 people in the UK with CBS today.
  • #80 What is Charles Bonnet syndrome? – Medical Republic
    https://www.medicalrepublic.com.au/what-is-charles-bonnet-syndrome/3190
    Other features of visual hallucinations unique to Charles Bonnet syndrome include: hallucinations only appear in the areas where vision is lost (for example, a person who is blind in their left eye will perceive hallucinations only in that eye), hallucinations are more frequently seen with the eyes open than closed, and may disappear when the person closes their eyes or looks away, hallucinations are more common in settings of sensory deprivation (for example, at night time or in dim lighting, or during periods of inactivity). […] Importantly, it may be more common than estimated because of lack of reporting. That is, people who are affected may not report their hallucinations due to fear of psychiatric disease or of being perceived to be “going mad”. […] Treatment for Charles Bonnet syndrome is very limited, but many patients report reassurance is all they need, especially for infrequent hallucinations or those that don’t adversely affect quality of life.
  • #81 Hallucinations & Macular Degeneration: What is Charles Bonnet Syndrome?
    https://www.brightfocus.org/resource/hallucinations-macular-degeneration-what-is-charles-bonnet-syndrome/
    Many patients and their family members have been greatly relieved just to know that these visual hallucinations are a common and expected side effect of losing central vision rather than an indication of diminished mental abilities or mental illness. […] The Charles Bonnet ones are quite different. So in the Charles Bonnet hallucinations, you have all sorts of levels, from the geometrical hallucinations the pink and blue squares the woman had up to quite elaborate hallucinations with figures and especially faces. Faces, and sometimes deformed faces, are the single commonest thing in these hallucinations. […] Something like 10 percent, as I said, of visually impaired people get these. But no more than one percent of the people acknowledge them, because they are afraid they will be seen as insane or something. […] The hallucinations may become less frequent.
  • #82 Hallucinations May Be Charles Bonnet Syndrome, Not Early Dementia – Ophthalmology Advisor
    https://www.ophthalmologyadvisor.com/news/visual-illusions-may-be-visual-pathway-damage-not-neurological-disease/
    At 10 years, 86% of those with symptoms had been diagnosed with late AMD and 64% had undergone cataract surgery, in either 1 or both eyes. […] Nearly 50% of these individuals saw more than 1 type of form, with faces or people most frequently visualized. […] Patients with CBS were not likely to have cognitive impairment (P =.772). […] When CBS is suspected, it is important to educate, provide reassurance that hallucinations alone do not indicate underlying neuropsychiatric disorders, and offer simple steps to attempt to decrease hallucination, according to the analysis.
  • #83 Charles Bonnet syndrome (CBS) – Macular Society
    https://www.macularsociety.org/macular-disease/macular-conditions/charles-bonnet-syndrome/
    Visual hallucinations can occur as a result of sight loss. Up to half of all people with macular degeneration are thought to experience visual hallucinations at some time. When hallucinations happen as a result of sight loss, they are known as Charles Bonnet syndrome (CBS), after the 18th century Swiss scientist and philosopher who first described the condition. Charles Bonnet hallucinations are not a sign of mental illness. They are more likely to occur if both eyes are affected by sight loss but can occur with problems in one eye only. The hallucinations often start after a sudden worsening of vision. […] CBS itself can last from days to many years. For most people the hallucinations improve with time so that they only occur very occasionally. […] Some medications can help people with very distressing hallucinations. These medications are usually prescribed for other conditions but have been shown to work for Charles Bonnet hallucinations. It would usually require a specialist doctor to prescribe them and further tests to see if they are safe to use and to rule out other causes of hallucinations. […] More research into Charles Bonnet syndrome is needed. For example, we do not know why only some people with sight loss have hallucinations. Research funded by the Macular Society is helping answer this question but more is needed.
  • #84 Charles Bonnet Syndrome (CBS) – Gene Vision
    https://gene.vision/knowledge-base/charles-bonnet-syndrome-cbs/
    Therefore, we believe it is important to raise the awareness of CBS among patients, relatives and healthcare professionals. By informing patients and following up with coping strategies can have a positive impact on patients quality of life. […] We know there is consistent under-reporting of CBS symptoms and difficulty with case ascertainment in the paediatric population, which is a shortcoming of current ophthalmology services. To address this, we are conducting a prospective study to try to ascertain the prevalence of CBS in children across the UK with the support of the British and Irish Orthoptic Society and the Thomas Pocklington Trust. Further research into CBS is required in order to gain a deeper understanding of the cause and how best to manage symptoms.
  • #85 SciELO Brazil – Charles Bonnet Syndrome: Case series Charles Bonnet Syndrome: Case series
    https://www.scielo.br/j/dn/a/g9PnnRLxVR4dFWCFq3mfPfh/?lang=en
    Since its first description in 1760, Charles Bonnet syndrome (CBS) has been reported in many studies. The main characteristics are visual hallucinations, preserved awareness of unreal visions, and absence of psychotic symptoms. CBS can occur with lesions located anywhere along the central visual pathway, from the eye to the calcarine fissure. […] Four patients were female, and the mean age was 74.516.9 years. Three patients had visual loss secondary to eye disease and three due to cerebral lesions. The visions consisted of animals, persons, moving objects, bizarre creatures or colored forms, and were considered disturbing by five patients. Five patients received treatment, and only three reported partial benefit from the therapy. Complete recovery was not seen in any of the subjects. […] CBS is relatively rare and its recognition is important to avoid misdiagnoses with psychiatric or dementing illnesses.
  • #86 Charles Bonnet syndrome | healthdirect
    https://www.healthdirect.gov.au/charles-bonnet-syndrome
    Charles Bonnet syndrome is a condition where people have repeated visions. […] Most people who have Charles Bonnet syndrome have very poor vision. […] For most people, the visions stop within 12 to 18 months. […] People with Charles Bonnet syndrome report seeing visions of patterns, people, plants and animals, buildings and other day-to-day objects, and entire landscapes. […] The visions can be colourful or just black and white, be moving or still, and appear real or unreal. […] The visions can come and go, lasting for just a few seconds or continuing for many hours. […] The time from when Charles Bonnet syndrome starts to when it stops varies a lot. It ranges from a few months to many years. […] Understanding that Charles Bonnet syndrome is not a mental health issue may help you live with it. It may also help to know that for most people, the visions stop within 12 to 18 months.
  • #87 Eyes – Charles Bonnet syndrome | Better Health ChannelExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal LinkExternal Link
    https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/eyes-charles-bonnet-syndrome
    Charles Bonnet syndrome refers to the visual hallucinations caused by the brain’s adjustment to significant vision loss. […] The signs and symptoms of Charles Bonnet syndrome include: Significant vision loss, Visual hallucinations, No control over the hallucinations, A realisation that the hallucinations aren’t real. […] In most cases, the hallucinations go away as the brain adapts. […] A person with Charles Bonnet syndrome has no control over their hallucinations. They may cause issues in their everyday life because: The hallucinations overlay images of the real world, so the person may have trouble negotiating everyday tasks, such as walking through an unfamiliar environment. […] In most cases, Charles Bonnet syndrome resolves itself after about 12 to 18 months without treatment.
  • #88 Charles Bonnet Syndrome (CBS): Hallucinations After Sight Loss | Carents
    https://carents.co.uk/carenting-guides/healthcare/sight-hearing/understanding-charles-bonnet-syndrome-visual-hallucinations-after-sight-loss/
    Charles Bonnet Syndrome, though frightening, is a relatively common response to sight loss rather than a mental health issue. By understanding its causes, sharing experiences openly, and using practical techniques to minimise distress, many people find they can continue living a fulfilling life despite occasional hallucinations.