Materiały źródłowe

• #1 Congenital Diaphragmatic Hernia (CDH) | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/congenital-diaphragmatic-hernia-cdh

  Congenital diaphragmatic hernia (CDH) is a rare condition that occurs when the diaphragm the muscle that separates the chest from the abdomen fails to close during prenatal development. This allows abdominal organs (stomach, intestines, and/or liver) to move into the chest. When the abdominal organs are in the chest, they can crowd the heart and lungs and keep the lungs from growing normally. […] Newborns affected with CDH will require immediate care at delivery, so early and accurate diagnosis is important. […] Many babies with CDH develop high blood pressure in the lungs called pulmonary hypertension. […] For babies with CDH, attention to the tiniest details matters, from the moment of prenatal diagnosis through delivery, surgery and follow-up care. […] Our large multidisciplinary team including maternal-fetal medicine specialists, neonatologists, advanced practice nurses, fetal therapy nurse coordinators, genetic counselors, fetal imaging specialists, labor and delivery nurses, anesthesiologists, fetal cardiologists, and more has a level of ongoing collaboration that is unmatched.

• #2 Congenital Diaphragmatic Hernia (CDH) | Fetal Diagnosis & Repair | Fetal Care Center

  https://www.cincinnatichildrens.org/service/f/fetal-care/conditions/congenital-diaphragmatic-hernia

  Congenital diaphragmatic hernia (CDH) is a defect in an unborn babys diaphragm, the muscle that divides the chest cavity and abdominal cavity. […] CDH occurs when the diaphragm does not close the right way during the babys development and abdominal organs push (herniate) through the defect into the chest cavity. […] Babies born with congenital diaphragmatic hernia are at high risk of having severe breathing problems since their lungs have not developed properly. Managing these problems is the first and most important step in caring for babies with CDH after birth. […] Some babies with congenital diaphragmatic hernia do not require surgery after birth to repair the defect. Many, however, do. The surgery takes place days or weeks after birth, once the babys condition has become more stable.

• #3 Congenital Diaphragmatic Hernia (CDH) | Boston Children’s Hospital

  https://www.childrenshospital.org/conditions/congenital-diaphragmatic-hernia

  The diaphragm is a thin layer of muscle and tissue that separates the chest and abdominal cavity. It is the major muscle that the body uses to breathe. When your child has a congenital diaphragmatic hernia (CDH), it means that there’s a hole in that layer — or, rarely, that the diaphragm is missing altogether. CDH affects about one in every 2,500 babies. […] When the organs from the abdomen prevent the lungs from growing, the poor lung growth is called pulmonary hypoplasia. Healthy lungs have millions of small air sacs (alveoli), each of which resembles a balloon filled with air. With pulmonary hypoplasia: There are fewer air sacs than normal. The air sacs that are present are only able to partially fill with air. The air sacs deflate easily because of problems with a lubricating fluid called surfactant. When this happens, your baby is unable to take in enough oxygen to stay healthy.

• #4 Congenital Diaphragmatic Hernia Program | Texas Children’s

  https://www.texaschildrens.org/departments/congenital-diaphragmatic-hernia-program

  CDH can also cause abnormal development of the blood vessels in the lungs, causing higher blood pressure in the lungs known as pulmonary hypertension. The high blood pressure can make it harder for blood to flow in the lungs and make it harder to get oxygen in and carbon dioxide out of the lungs. […] CDH is a rare birth defect occurring in about one in 2,500 to 5,000 babies. In most cases, the cause is unknown. […] Your care will be provided by a skilled, experienced team with proven CDH outcomes. Our dedicated team of maternal-fetal medicine specialists, surgeons, neonatologists, ECMO specialists, pulmonologists, cardiologists, gastroenterologists and other experts work in concert to care for you and your baby every step of the way, using protocols we’ve developed over the years that result in excellent, published outcomes.

• #5 Nursing Care Plan For Congenital Diaphragmatic Hernia – Chilowaji

  https://chilowaji.com/nursing-care-plan-for-congenital-diaphragmatic-hernia/

  CDH is a relatively rare but severe birth defect. It occurs in approximately 1 in 2500 to 5000 neonates. This occurs when the diaphragm fails to develop properly and allows organs to migrate into the chest cavity. This can hamper lung development. For these babies, the right nursing care is important. It assists them to exist and perform well in the long run. […] Nursing care is critical in the management of CDH patients and in enhancing their prognosis. […] Nurses are involved in the evaluation, planning, and implementation of care for CDH patients during the preoperative, intraoperative, and postoperative periods. […] The nursing care plans for CDH include preoperative preparation, intraoperative care, and postoperative care. […] Nurses, physicians, and the multidisciplinary team should work together to provide the best care to patients with CDH.

• #6 Congenital Diaphragmatic Hernia (CDH) | Lurie Children’s

  https://www.luriechildrens.org/en/specialties-conditions/congenital-diaphragmatic-hernia/

  The multidisciplinary CDH team uses care protocols based on the latest scientific evidence. These care protocols have been optimized through the clinical experience of caring for several hundred mothers and babies with a prenatal diagnosis of CDH and result in the best possible outcomes. […] Once diagnosis of a CDH is suspected, a comprehensive consultation with the multidisciplinary CDH team is recommended along with a specialized fetal CDH ultrasound, fetal echocardiogram and fetal MRI performed during this visit. […] The multidisciplinary CDH team will determine the best approach and attend the delivery for the CDH baby. […] The first phase of the babys NICU care is the resuscitation and stabilization phase which begins at delivery and continues for approximately 3 5 days. […] The second phase of NICU care is the surgical phase which begins no earlier than 3 days after birth but may be delayed for several days if the baby remains unstable. […] The final phase of the NICU care for CDH babies is the feeding and growing phase. […] Care by the multidisciplinary CDH team will continue after discharge from the NICU in partnership with the babys primary pediatrician to monitor and support the babys needs.

• #7 Congenital Diaphragmatic Hernia (CDH) | Texas Children’s

  https://www.texaschildrens.org/content/conditions/congenital-diaphragmatic-hernia-cdh

  Congenital diaphragmatic hernia (CDH) is a hole or opening in the baby’s diaphragm, the muscle that separates the abdomen from the chest. This defect allows the abdominal organs, such as the stomach, intestine, liver and spleen, to move up into the chest cavity. These other organs crowd the baby’s lungs and prevent them from growing and developing properly. […] Without adequate space to grow, the baby’s lungs are often small and underdeveloped, causing breathing problems at birth. […] CDH can also lead to abnormal development of the blood vessels in the lungs, making it difficult to get oxygen to the lungs. […] Babies born with CDH may have additional conditions caused when other organs fail to develop properly, including the heart, brain, kidneys and intestines. […] If CDH is diagnosed during pregnancy, you may be referred to a fetal center for a comprehensive evaluation and specialized care.

• #8 Management advances for congenital diaphragmatic hernia: integrating prenatal and postnatal perspectives – Baschat – Translational Pediatrics

  https://tp.amegroups.org/article/view/123659/html

  In congenital diaphragmatic hernia (CDH), abdominal organs are displaced into the chest, compress the lungs, and cause mediastinal shift. This contributes to development of pulmonary hypoplasia and hypertension, which is the primary determinant of morbidity and mortality for affected newborns. […] Comprehensive evaluation of fetal CDH includes imaging-based severity assessment, severity assessment, and evaluation for structural or genetic abnormalities to differentiate isolated from complex cases. […] Prenatal management involves multispecialty counseling, consideration for fetal therapy with fetoscopic endoluminal tracheal occlusion (FETO) for severe cases, monitoring and intervention for associated polyhydramnios or signs of preterm labor if indicated, administration of antenatal corticosteroids in the appropriate setting, and planned delivery to optimize the fetal condition at birth.

• #9 Congenital Diaphragmatic Hernia (CDH) | Memorial Hermann

  https://memorialhermann.org/services/conditions/congenital-diaphragmatic-hernia

  Congenital diaphragmatic hernia (CDH) is a complex condition that requires immediate care from a team of specialists upon diagnosis, which can be a vital component to successful outcomes for patients. […] CDH care must involve specialized expertise to optimize outcomes. […] Children’s Memorial Hermann Hospital and affiliated physicians provide families with a continuum of care and resources for their child’s health care needs from fetal diagnosis, through infancy, childhood and into adulthood. […] Home to one of the most comprehensive CDH programs in the United States, Children’s Memorial Hermann Hospital combines expertise to provide optimal care for families beginning at prenatal diagnosis through delivery, postnatal care and long-term follow-up. […] Nurses and affiliated physicians work in concert to provide the highest level of care across all specialty units.

• #10 Congenital Diaphragmatic Hernia (CDH) | Children’s Hospital Colorado

  https://www.childrenscolorado.org/conditions-and-advice/conditions-and-symptoms/conditions/congenital-diaphragmatic-hernia-cdh/

  A congenital diaphragmatic hernia (CDH) occurs when a baby’s diaphragm doesn’t form completely during fetal development. This leaves an opening between the chest and abdominal cavities, allowing abdominal organs to herniate (protrude or enter) into the chest cavity and prevent lung development. […] CDH is a life-threatening condition because it limits the lungs’ growth and can seriously affect a baby’s ability to breathe at birth. These babies will need breathing support as soon as they enter the world. […] It’s critical that moms deliver babies who are diagnosed with CDH before birth in a fetal care center that has experience in caring for the complex needs of these vulnerable newborns. Babies with CDH require an all-hands-on-deck approach during the first hours of life. […] At the Colorado Fetal Care Center at Children’s Colorado, we have a dedicated CDH team consisting of neonatal and surgical CDH experts. They specialize in complex delivery planning for babies with CDH, as well as their treatment, management and ongoing care.

• #11 Congenital Diaphragmatic Hernia (CDH) Program | Cincinnati Children’s

  https://www.cincinnatichildrens.org/service/c/cdh

  The Congenital Diaphragmatic Hernia Program at Cincinnati Childrens provides specialized long-term care after birth for your baby. We offer comprehensive, family-centered treatment from a wide range of experts to manage this complex condition. […] Our compassionate team gives you the education and support you and your baby need. […] You are an important part of your babys care team. You participate in discussions about your childs care every step of the way. […] At Cincinnati Childrens, we are a leader in providing the most advanced care for CDH from a comprehensive team of specialists designed to give your child the best possible care. Our CDH team has been treating CDH for more that 20 years. […] Our CDH team includes experts in maternal-fetal medicine, neonatology, fetal surgery, pediatric surgery, and cardiology. We manage your babys care after birth in the Newborn Intensive Care Unit (NICU), which has the most knowledgeable staff and advanced technology for CDH.

• #12 Congenital Diaphragmatic Hernia (CDH) | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/congenital-diaphragmatic-hernia-cdh

  After all testing is complete, our team, led by a maternal-fetal medicine specialist and a pediatric surgeon both with experience managing pregnancies affected by CDH, meets with you and your family. Together we review imaging and test results, discuss the diagnosis, explain treatment options and potential outcomes, and answer any questions you may have. […] The health of a baby born with CDH can change unexpectedly. This makes it critically important to deliver within the hospital where your baby will be cared for after birth, and have all specialized care immediately available in one location. […] For babies born with CDH, every little detail matters and can impact the outcome. It is important that your baby be treated by a team with experience caring for babies with CDH. […] Your baby will recover from surgery and begin the process of weaning from the ventilator.

• #13 Congenital diaphragmatic hernia | SJD Barcelona Children’s Hospital

  https://www.sjdhospitalbarcelona.org/en/diseases-treatments/congenital-diaphragmatic-hernia

  This fetal surgery treatment aims to try to stimulate the growth and development of the lungs before birth, to increase the chances of survival. Its purpose is not the repair of the defect of the diaphragm since this must be closed by surgery after birth. This prenatal therapy can substantially increase the chances of survival in cases with a worse prognosis. […] CDH is a serious disease that requires a lot of care in the first months of life. For this reason, fetuses with CDH should always be born in a third-level hospital as SJD Barcelona Children’s Hospital, with highly specialized staff and extensive experience in the management of such cases.

• #14 Congenital Diaphragmatic Hernia – StatPearls – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK556076/

  The delivery of infants with CDH is not recommended before the completion of 37 weeks gestation. […] Delivery at a tertiary center with expertise in the management of CDH and easy access to extracorporeal membrane oxygenation (ECMO) therapy is strongly recommended. […] In cases of prenatally diagnosed CDH, it is recommended to place a nasogastric tube soon after delivery for decompression of the stomach and intestines. […] Avoidance of ventilator-induced lung injury with gentle ventilation strategies is the cornerstone of respiratory management in infants with CDH. […] The management of infants with congenital diaphragmatic hernia requires the services of an interprofessional team.

• #15 Congenital Diaphragmatic Hernia (CDH) | Lurie Children’s

  https://www.luriechildrens.org/en/specialties-conditions/congenital-diaphragmatic-hernia/

  The multidisciplinary CDH team uses care protocols based on the latest scientific evidence. These care protocols have been optimized through the clinical experience of caring for several hundred mothers and babies with a prenatal diagnosis of CDH and result in the best possible outcomes. […] Once diagnosis of a CDH is suspected, a comprehensive consultation with the multidisciplinary CDH team is recommended along with a specialized fetal CDH ultrasound, fetal echocardiogram and fetal MRI performed during this visit. […] The multidisciplinary CDH team will determine the best approach and attend the delivery for the CDH baby. […] The first phase of the babys NICU care is the resuscitation and stabilization phase which begins at delivery and continues for approximately 3 5 days. […] The second phase of NICU care is the surgical phase which begins no earlier than 3 days after birth but may be delayed for several days if the baby remains unstable. […] The final phase of the NICU care for CDH babies is the feeding and growing phase. […] Care by the multidisciplinary CDH team will continue after discharge from the NICU in partnership with the babys primary pediatrician to monitor and support the babys needs.

• #16 Congenital diaphragmatic hernia (CDH) in neonates | Safer Care Victoria

  https://www.safercare.vic.gov.au/best-practice-improvement/clinical-guidance/neonatal/congenital-diaphragmatic-hernia-cdh-in-neonates

  Eighty per cent of babies with congenital diaphragmatic hernia (CDH) are diagnosed prenatally and are therefore born in a tertiary hospital. […] If the unexpected birth of an infant with CDH occurs outside a tertiary hospital, resuscitation should be undertaken and supervised by the most experienced clinician available. […] Ventilation using a bag and mask should be minimised in favour of endotracheal intubation if prolonged resuscitation is required. […] Lung-protective ventilation with permissive hypercarbia and hypoxia is an important strategy in the critically ill baby with CDH. […] The high mortality rate illustrates the importance of thorough evaluation, from the time of suspected fetal diagnosis, by a multidisciplinary team familiar with all aspects of the diagnosis and management of CDH.

• #16 Congenital diaphragmatic hernia (CDH) in neonates | Safer Care Victoria

  https://www.safercare.vic.gov.au/best-practice-improvement/clinical-guidance/neonatal/congenital-diaphragmatic-hernia-cdh-in-neonates

  A team of neonatologists, paediatric surgeons and paediatric intensivists is required. […] Maintain the lowest FiO2 that results in a preductal saturation > 85 per cent, especially in the initial hours of care. Permissive hypercarbia is strongly advocated. […] The principles of management and escalation of therapy include: use of muscle relaxants and sedatives, synchronised ventilation (SIMV or A/C) with tidal/minute volume monitoring. […] Surgery – after ventilatory and circulatory support weaned to satisfactory levels (for example, FiO2 < 0.4 and mean airway pressure < 14). [...] Long-term follow up is required.

• #17 Congenital Diaphragmatic Hernia (CDH) Postnatal Treatment | Memorial Hermann

  https://memorialhermann.org/services/treatments/congenital-diaphragmatic-hernia-postnatal-treatment

  Babies born with CDH are at high risk for respiratory distress. Immediately following delivery, doctors will carefully evaluate the baby. A neonatologist (a specialized doctor for high-risk babies) will begin providing breathing support and other necessary care. Depending on the severity of breathing difficulties, the baby may require a breathing tube. The newborn will be transferred to the neonatal intensive care unit for further evaluation and management. […] Most infants will be stable after birth and will be closely monitored. Although breathing difficulties may require mechanical ventilation, the newborn may not require additional support and can be stabilized until surgery. A small group of infants with CDH may continue to develop problems with breathing and problems maintaining heart function and blood pressure. Your baby’s doctors will provide many different methods to improve the condition of your baby. In the most severe cases, your newborn may need to be supported by using ECMO, a heart-lung bypass machine.

• #18 Congenital Diaphragmatic Hernia Center | Acute & Long-term Care | Boston Children’s Hospital

  https://www.childrenshospital.org/programs/congenital-diaphragmatic-hernia-program/acute-long-term-care

  When a baby is born with congenital diaphragmatic hernia (CDH), they are stabilized and then transferred from their birth hospital to Boston Children’s Medical-Surgical Intensive Care Unit (MSICU). […] All babies with CDH require a breathing tube and support of a breathing machine called a ventilator immediately after birth. Through research and experience managing patients with CDH over decades, we have observed the importance of use of “gentle ventilation” to protect the small lungs as they develop. Extracorporeal membrane oxygenation (ECMO), a machine that does the job of the heart and lungs, is used when the ventilator and medicines do not provide enough support to the babies while their lungs are developing. About half of the babies we treat with CDH need ECMO. […] Surgery is typically performed within the first week of life after the period of transition at birth. During this time we allow pulmonary hypertension (the high blood pressure in the lungs) to improve from the initial time of delivery and adjust the ventilator to optimize conditions for your baby to have surgery.

• #19 Recent advances in the treatment of complex congenital diaphragmatic hernia—a narrative review – Holden – Translational Pediatrics

  https://tp.amegroups.org/article/view/115367/html

  In high risk infants, it is recommended that these infants are intubated immediately after birth, however, exceptions may rarely be made for infants who have good predicted lung development and excellent postnatal respiratory effort. […] An arterial line should be placed for accurate blood pressure monitoring to ensure adequate perfusion of the peripheral tissues. […] In the NICU, CDH infants are allowed permissive hypercapnia (arterial CO2 levels between 50-70 mmHg) with preductal saturations between 80-95% and post ductal saturations above ~70%. […] The use of ECLS should be considered early (without isolated physiologic status limits) and conversations with families about realistic outcomes should be discussed so that palliative/comfort care are options for families and patients in the setting of severe, concomitant genetic abnormalities, profound prematurity, low birthweight, and/or complex cardiac disease unable to be stabilized.

• #20 Infant with Congenital Diaphragmatic Hernia Clinical Pathway, Pre and Post-operative Care — Inpatient and ICU | Children’s Hospital of Philadelphia

  https://www.chop.edu/clinical-pathway/infant-cdh-pre-post-operative-care-clinical-pathway

  Admit to Neonatal Surgical Service in N/IICU. […] Care for Newborn with Preductal Oxygen Saturation 85% or Hypotension or Acidosis on presentation or decompensation before repair. […] Notify surgical fellow and neonatology attending. […] Ensure airway patent, adequate sedation and bowel decompression. […] Managing CDH Infants on ECMO. […] Schedule repair when physiologic goals met or as clinically indicated. […] Ongoing Post-operative Management. […] Discharge Readiness and Preparation.

• #21 Congenital Diaphragmatic Hernia | Cardinal Glennon

  https://www.ssmhealth.com/cardinal-glennon/fetal-care-institute/fetal-conditions-we-treat/lungs/congenital-diaphragmatic-hernia/about

  When babies with CDH arrive in the NICU they begin the observation stage of their care until they are ready for hernia repair surgery. In many situations they are kept on a ventilator and given sedation to keep them calm and pain free. Intravenous fluids and nutritional support are also provided. Your baby will not be able to eat until after surgery. If they choose, mothers can pump and store their breast milk until the baby can eat. […] CDH babies typically undergo surgery to repair the hole in their diaphragm once pulmonary hypertension has subsided. The CDH team will work together with you to develop the optimal care plan for you and your baby. […] After surgery, your baby will return to the NICU to recover and heal. The stress of the surgery may cause your babys condition to initially get worse before it gets better, and treatment may require additional sedation, ventilation, blood pressure medications or ECMO.

• #22 Congenital Diaphragmatic Hernia (CDH) | Children’s Hospital Colorado

  https://www.childrenscolorado.org/conditions-and-advice/conditions-and-symptoms/conditions/congenital-diaphragmatic-hernia-cdh/

  For severe cases of CDH, after-birth care may include the use of extracorporeal membrane oxygenation (ECMO), a machine that performs the function of the heart and lungs while they grow. […] Our dedicated CDH team carefully plans the repair of your baby’s CDH. When the time is right, our team will perform surgery to repair your child’s diaphragm and allow their lungs to grow. Our experienced team of experts will make the right decision for your baby in coordination with you and your family. […] The fetal care team at our Colorado Fetal Care Center is at the forefront of treatment for this condition. We have a dedicated labor and delivery unit for you to deliver here, so we can monitor and treat your baby in our NICU just steps away.

• #23 Congenital Diaphragmatic Hernia (CDH): What Parents Need To Know

  https://my.clevelandclinic.org/health/diseases/24308-diaphragmatic-hernia

  A congenital diaphragmatic hernia (CDH) is a type of hernia that occurs during fetal development. Babies born with CDH tend to have small, underdeveloped lungs and low blood oxygen. Theyll need immediate oxygen support and surgery to repair the hernia. […] Babies born with CDH tend to have small, underdeveloped lungs (pulmonary hypoplasia). This can cause low blood oxygen levels and breathing difficulties at birth. Theyll also have high blood pressure in their lungs, which puts stress on their heart. These babies need critical care at birth to stabilize their condition. […] Congenital diaphragmatic hernia treatment begins as soon as your healthcare provider diagnoses it. These treatments may seem scary, but your healthcare provider is doing everything they can to keep your baby safe. […] Babies who are born with CDH usually require immediate intensive care by a specialized team. If your baby is born with pulmonary hypoplasia (underdeveloped lungs), theyll need oxygen support first. For some babies, this means a breathing tube attached to a mechanical ventilator.

• #23 Congenital Diaphragmatic Hernia (CDH): What Parents Need To Know

  https://my.clevelandclinic.org/health/diseases/24308-diaphragmatic-hernia

  Your baby will need surgery. Your baby will remain in the neonatal intensive care unit (NICU) until your healthcare team determines that its safe to consider surgery. This usually means that pulmonary hypertension has improved and your baby no longer needs ECMO. […] The reported survival rate for babies born with CDH has improved. Between 7 and 9 out of every 10 babies survive. These babies are born critically ill, but for those who make it through the tense early days of their condition, the outlook gets better. Some children may have long-term complications, but theyll still live long and full lives. Continuing advances in medicine improve the odds of both short-term survival and long-term health.

• #24 Recent advances in the treatment of complex congenital diaphragmatic hernia—a narrative review – Holden – Translational Pediatrics

  https://tp.amegroups.org/article/view/115367/html

  The first is the timing for umbilical cord clamping. The current practice of umbilical cord clamping before lung aeration and perinatal stabilization may contribute to worsening pulmonary hypertension. […] The use of PGE1 has also altered the management of pulmonary hypertension in CDH infants. […] The survival of these infants hinges on early detection and appropriate risk stratification for appropriate deployment of critical therapeutic interventions, family counseling, resource allocation, and establishment of care targets, including appropriate transitions in care. […] The patients who receive ECLS interventions are of the most high risk in the CDH population.

• #25 Congenital Diaphragmatic hernia – a review | Maternal Health, Neonatology and Perinatology | Full Text

  https://mhnpjournal.biomedcentral.com/articles/10.1186/s40748-017-0045-1

  Inhaled nitric oxide is often used for the management of PPHN. […] Extracorporeal membrane oxygenation (ECMO) is considered as the last lifesaving option for infants34 weeks gestation or with weight 2 kg with CDH and no associated major lethal anomalies after conventional medical management has failed. […] Infants with CDH face considerable long-term respiratory issues, nutritional problems, neurodevelopmental delays, hernia recurrence and orthopedic deformities. […] Despite the unclear etiology of CDH and management of PPHN, over the past few decades, reports have suggested increasing trends of survival in infants with CDH.

• #26 Congenital Diaphragmatic Hernia (CDH): Symptoms, Diagnosis & Treatment | Nationwide Children’s Hospital

  https://www.nationwidechildrens.org/conditions/congenital-diaphragmatic-hernia

  At the delivery hospital, a neonatologist (a doctor who specializes in treating newborns) will manage your babys care. The neonatologist will assess your babys breathing and heart rate, and examine the baby for other problems. […] All babies with CDH will need surgery after birth, but surgery may not be done right away. It is very important to make sure the babys breathing is stable and manage the high blood pressure in the lungs before going to surgery. Surgery may be done as early as 2 to 3 days after birth, or as late at 4 to 6 weeks after birth. It is typically done 1 to 2 weeks after birth. […] After surgery, your baby will keep getting care in the NICU. Your baby will need to be on a breathing machine until they are fully recovered from surgery and they can breathe on their own. […] Babies with CDH are at risk for ongoing problems with the lungs, including asthma and respiratory infections. They are also at risk for ongoing problems with feeding, gastrointestinal reflux, and developmental delays. These risks are higher in babies that need ECMO. Physical and occupation therapy and early intervention may be needed to help your child.

• #27 Nursing Care Plan For Congenital Diaphragmatic Hernia – Chilowaji

  https://chilowaji.com/nursing-care-plan-for-congenital-diaphragmatic-hernia/

  In preparation for congenital diaphragmatic hernia surgery, the nurses develop a comprehensive care plan for the patient. They are concerned with the evaluation, treatment, and teaching. This is important in order to achieve the best result for the patient. […] Based on the patients condition, the nurses develop an individual care plan for preoperative nursing care of congenital diaphragmatic hernia. […] Effective nursing interventions before congenital diaphragmatic hernia surgery also include teaching the patient and their family. […] The following is a nursing care plan for preoperative preparation of patients with congenital diaphragmatic hernia: This plan is important in the surgery and the post-surgery period. […] Nursing care during surgery for congenital diaphragmatic hernia is very important during the operation.

• #28 Nursing Care Plan For Congenital Diaphragmatic Hernia – Chilowaji

  https://chilowaji.com/nursing-care-plan-for-congenital-diaphragmatic-hernia/

  The care plan is important in the management of a child after surgery for congenital diaphragmatic hernia. It is mainly concerned with the management of pain and the support of breathing. […] Nurses monitor the patients pain and administer the prescribed medications. […] It is important to assist the patient in breathing properly after the surgery has been done. […] Taking care of patients with congenital diaphragmatic hernia (CDH) requires a comprehensive care map. This plan is for before, during and after surgery. It ensures that the patients physical, psychological, and emotional requirements are met. […] The nursing care plan for congenital diaphragmatic hernia is as follows: It addresses the unique issues that such patients encounter. […] Thus, with a comprehensive nursing care plan for congenital diaphragmatic hernia, nurses play a crucial role in the patients recovery.

• #29 Congenital Diaphragmatic Hernia (CDH)

  https://www.soonergas.com/home/pediatric-room-tips/pediatric-surgery/congenital-diaphragmatic-hernia-cdh

  Patients will likely return to the NICU intubated. […] Reduction of abdominal contents into the abdomen may acutely decrease venous return and impairing cardiac output. […] Hypoplasia of the affected lung impairs pulmonary vascular development leading to pulmonary hypertension. […] These patients are prone to pulmonary hypertensive crisis.

• #30 Congenital Diaphragmatic Hernia (CDH) | Boston Children’s Hospital

  https://www.childrenshospital.org/conditions/congenital-diaphragmatic-hernia

  Babies will need to remain in the MSICU for a while after surgery. […] Nutrition is important for your baby’s lung and overall growth. Your baby will initially receive nutrition from a special IV, and when your baby has recovered from surgery feeds will be given through a feeding tube placed in the nose that goes into the stomach or intestine. […] A diaphragmatic hernia is a complex health concern that requires long-term follow-up. Our outpatient multidisciplinary CDH clinic monitors and treats children born with CDH. […] Boston Children’s treats more than 20 newborns with CDH each year with a success rate among the best in the world. Our survival rate for the highest risk groups of babies with CDH is consistently 10 percent higher than that of other centers dedicated to treating this condition.

• #31 Congenital Diaphragmatic Hernia | UCSF Department of Surgery

  https://pedsurg.ucsf.edu/condition/congenital-diaphragmatic-hernia

  After repair, these babies will need intensive support for many weeks or even months. […] A discharge summary of your child’s hospital stay will be sent to your pediatrician. We recommend that you see your pediatrician within one week of leaving the hospital. We will make an appointment for your child to have their first visit in our long-term Multidisciplinary CDH Clinic soon after discharge. […] Your child may require additional calories because increased work of breathing requires effort and uses energy. Additional calories can be given by offering more feedings, more concentrated feedings, or adding calorie supplements to feedings. Your child’s growth will be monitored carefully in the intensive care nursery and after discharge. A pediatric nutritionist will create an individual feeding plan for your child based on his or her growth.

• #32 Congenital Diaphragmatic Hernia | Cardinal Glennon

  https://www.ssmhealth.com/cardinal-glennon/fetal-care-institute/fetal-conditions-we-treat/lungs/congenital-diaphragmatic-hernia/about

  The amount of time spent in the NICU after surgery varies from patient to patient depending on the severity of their case. The CDH team will work to wean your baby off the ventilator and pain medications as quickly as possible, and to get them eating and gaining weight. […] CDH is a complex condition that requires long-term follow-up care. Because CDH can cause underdeveloped lungs and problems with the heart and digestive system, its important to monitor your babys health throughout their development. […] Once you go home, a Collaborative CDH Care Program coordinator will assist with scheduling your babys follow-up clinic appointments and any future medical procedures or surgeries that may be needed. This continuum of care ensures that the specialists working with our CDH patients know the intricacies of your childs unique medical situation and can provide the best level of care.

• #33 Congenital Diaphragmatic Hernia (CDH) | Children’s Mercy Kansas City

  https://www.childrensmercy.org/departments-and-clinics/fetal-health-center/understanding-congenital-diaphragmatic-hernia/

  When your baby is stable, the opening in the diaphragm is closed by an operation, usually through an incision in the upper abdomen. This surgery usually takes place within two weeks after your baby is born, depending on how much support they need in the first few days after birth. […] After surgery, your baby will recover in the NICU. Our pediatric anesthesiologist will use precisely calibrated medications to keep your baby comfortable during and after the operation and while weaning off the breathing machine. […] Your baby will have a nasogastric (NG) tube to keep their stomach and intestines empty until the intestines begin to work. This tube will be placed shortly after birth and will stay in place until feedings are started. […] Once your baby is able to have the breathing tube removed and is breathing comfortably on low amounts of oxygen, they can begin taking feedings by mouth.

• #34 Congenital Diaphragmatic Hernia | UCSF Department of Surgery

  https://pedsurg.ucsf.edu/condition/congenital-diaphragmatic-hernia

  Infants with CDH can develop symptoms of oral aversion, the refusal or inability to take feedings by mouth. If your child develops oral aversion it is important that you know this is not a failure on your part. […] Children with significant oral aversion will require a nasogastric tube or gastrostomy tube to deliver supplemental feedings until they are able to take all feedings by mouth. […] Some children with respiratory problems may require supplemental oxygen at home. Arrangements for home oxygen will be made by the ICN discharge planner. A home care supply company will deliver oxygen tanks and supplies to your home. Instructions will be provided regarding the proper use of the equipment and supplies needed for oxygen therapy. Monitoring, changes or cessation of home oxygen will be ordered by a pulmonary specialist during outpatient appointments.

• #35 Nursing Care Plan For Congenital Diaphragmatic Hernia – Chilowaji

  https://chilowaji.com/nursing-care-plan-for-congenital-diaphragmatic-hernia/

  Nutrition is very important for patients with congenital diaphragmatic hernia. […] Appropriate nutrition support is vital in the restoration as well as the survivorship of patients afflicted with congenital diaphragmatic hernia. […] Nurses play a central role in providing care and information to help them. […] This support is very important for families that are faced with such challenges. […] Nurses can help families of CDH patients by providing education and support. […] Congenital diaphragmatic hernia is a condition that requires the attention of nurses in the management of affected babies. […] Nurses educate the patient and the family on care and feeding. […] Nurses foster a caring and team oriented atmosphere. […] In conclusion, nurses are committed to providing the best quality care to infants with congenital diaphragmatic hernia.

• #36

• #37 Congenital Diaphragmatic Hernia – Seattle Children’s

  https://www.seattlechildrens.org/conditions/congenital-diaphragmatic-hernia/

  At Seattle Childrens CDH Program, a coordinated team of surgeons, neonatologists, cardiologists, pulmonologists, pediatric intensivists and nutritionists will treat your child. […] Bonding with your baby is vital to their well-being. As soon as it is medically safe, you can touch, talk to and hold your baby. […] After surgery, your child will continue to receive the highest level of care in our Level IV NICU. […] We will help you connect with a primary care provider before your baby leaves the hospital. This helps ensure your baby gets the close follow-up they will need once they go home. […] Our CDH Program team has the specialists your child may need to manage and prevent all the known complications related to CDH. […] Overall outcomes for babies born with a congenital diaphragmatic hernia are excellent. Most children who receive follow-up CDH care at Seattle Childrens meet expected milestones for growth and development by the time they start school.

• #38 Partners in Care | Congenital diaphragm hernia (CDH) is treated in…

  https://partnersincare.health/conditions/congenital-diaphragm-hernia

  After birth, your baby will likely require a breathing tube be placed in their windpipe to provide oxygen (endotracheal intubation). This will be performed by a neonatologist in the delivery room. Your baby will then be transported to the neonatal intensive care unit (NICU). […] Once your baby is stable in the NICU, your pediatric surgeons will perform surgery to repair the CDH. In some cases, if the defect in the diaphragm is large in size, a patch may be used to repair the defect. The surgery for CDH typically takes place between 4 and 10 days after birth. […] The Comprehensive Fetal Care Center, a clinical partnership between Dell Children’s Medical Center and UT Health Austin, takes a multidisciplinary approach to your childs care. This means you and your child will benefit from the expertise of multiple specialists across a variety of disciplines.

• #39 Congenital Diaphragmatic Hernia | Children’s Wisconsin

  https://childrenswi.org/medical-care/fetal-concerns-center/conditions/infant-complications/congenital-diaphragmatic-hernia

  Yes. Please ask your baby’s nurse about ways to interact with and care for your baby. […] Your baby will go home when he or she can eat enough to gain weight and his or her lung function is adequate to oxygenate the body. […] Long-term issues include chronic lung disease and gastroesophageal reflux. […] For those who do not need ECMO, the survival rate is approximately 90 percent. […] If your baby requires ECMO, the survival rate decreases to about 50 percent.

• #40 Congenital Diaphragmatic Hernia (CDH) Program | UT Physicians

  https://www.utphysicians.com/cdh-program/

  With a collaborative and multidisciplinary team of both adult and pediatric experts, we ensure seamless care from prenatal and infant stages through adulthood. […] UTHealth Houston prioritizes family-centered care, engaging patients and their families in collaborative decision-making for optimal care plans. […] We recognize the distinct health concerns that women with CDH may encounter. […] We prioritize proactive care, understanding that every individual’s experience with CDH varies. […] As patients with CDH transition into adulthood, they may encounter specific health challenges that warrant specialized care. […] Adults with CDH face potential risks, including gastrointestinal (GI) issues, respiratory challenges, pregnancy planning, and orthopedic complexities. […] This engagement in investigation allows our team to provide advanced care based on the very latest discoveries. […] Our CDH team heads the Congenital Diaphragmatic Hernia Study Group (CDHSG), a worldwide alliance of centers dedicated to monitoring CDH patient outcomes using a specialized international database.

• #41 Congenital diaphragmatic hernia | University of Iowa Health Care Stead Family Children’s Hospital

  https://uihc.org/childrens/health-topics/congenital-diaphragmatic-hernia

  Your baby will be able to go home once he or she can eat enough to gain weight and the lung function is sufficient enough to supply the body with enough oxygen. After discharge, the neonatologists, cardiologists, and pediatric surgeons will see your baby in the pediatric specialty clinic to make sure your baby is healing and growing well. […] During this appointment, you will learn about treatment options, the possibility of surgery, pre-surgery care, and follow-up treatment.

• #42 Congenital Diaphragmatic Hernia (CDH) | Children’s Mercy Kansas City

  https://www.childrensmercy.org/departments-and-clinics/fetal-health-center/understanding-congenital-diaphragmatic-hernia/

  The length of stay in the NICU for an infant with this condition varies. Your baby will be able to go home when they can tolerate full feedings and are gaining weight. […] Babies with CDH require highly intensive care, both at birth and as they grow. At Children’s Mercy, we take a team-based approach. Our neonatologists work closely with our pediatric surgeons and other specialists to give your baby the very best care. […] All infants born with CDH need continued care after going home from the NICU. Some children experience breathing and feeding problems, such as the development of gastroesophageal reflux. In addition, they may have some signs of neurodevelopmental delay. The hernia can also come back, which requires additional surgery to correct it.

• #43 Congenital Diaphragmatic Hernia (CDH) Postnatal Treatment | Memorial Hermann

  https://memorialhermann.org/services/treatments/congenital-diaphragmatic-hernia-postnatal-treatment

  Surgical repair of the CDH is not an emergency. In most cases, the pediatric surgeon will wait until the infant is stable and able to handle the stresses of surgery. The pediatric surgeon will evaluate the baby for surgery, and once he or she has been stabilized for a period of time, surgery will be performed to repair the CDH. In some cases, the baby will stabilize quickly enough to undergo surgery in a few days after delivery. In more severe cases, it may be longer before it is safe to perform the surgical repair. The surgeon will determine the safest time for the surgical repair. Typical hospital stays for a newborn with CDH range from a few weeks to several months. […] About one-third of children born with CDH require ECMO. […] Those who have received fetal intervention, those who have received ECMO, and/or those with a patch repair are at highest risk and require specialized long-term follow-up by a multidisciplinary team of medical, surgical and developmental specialists to identify and treat problems before they result in disability. The more common complications include underdevelopment of the lung tissue, which can cause difficulty breathing; poor weight gain and growth; gastrointestinal challenges; pulmonary issues; recurrent diaphragmatic hernias; neurodevelopmental delays; hearing loss; and cardiac problems.

• #44 CDH (Congenital Diaphragmatic Hernia)

  https://www.massgeneral.org/children/congenital-diaphragmatic-hernia/cdh

  Babies with CDH will need a congenital diaphragmatic hernia repair surgery to move their abdominal organs back to the correct location and close the hole in their diaphragm. […] After surgery, the baby will be on a breathing machine and need to be monitored and cared for in the hospital for several weeks. […] The prognosis for babies with CDH depends on many factors, including the severity of their CDH before treatment and whether or not there are other birth defects present.

• #45 Center for Congenital Diaphragmatic Hernia | UPMC Children’s

  https://www.chp.edu/our-services/surgery-pediatric/pediatric-surgery-services-we-offer/congenital-diaphragmatic-hernia

  Every baby with CDH is different. But advancements in medical care are continually improving long-term outcomes for even the most severe cases. While CDH is life-threatening, most newborns go on to recover. The best outcomes happen when newborns and children receive comprehensive, standardized, multidisciplinary care. […] When your baby leaves UPMC Children’s, our Center provides coordinated, ongoing outpatient care to support continued recovery. We can also connect your family to services and resources to help manage the stress and challenges of CDH.

• #46 Congenital Diaphragmatic Hernia (CDH) | Children’s Hospital of Philadelphia

  https://www.chop.edu/conditions-diseases/congenital-diaphragmatic-hernia-cdh

  Long-term follow-up by a team of experts is important to provide the best clinical care to your child. Childrens Hospital of Philadelphias unique Pulmonary Hypoplasia Program (PHP) provides comprehensive, interdisciplinary follow-up care for children with CDH. […] Most babies with CDH cared for by CHOP meet expected growth and developmental milestones by kindergarten. Some children will need ongoing support through the PHP to optimize outcomes.

• #47 Congenital Diaphragmatic Hernia Center | Acute & Long-term Care | Boston Children’s Hospital

  https://www.childrenshospital.org/programs/congenital-diaphragmatic-hernia-program/acute-long-term-care

  Following surgery to repair CDH, your baby may need to stay in the hospital for several months to recover, depending on their individual situation. You will be part of your baby’s team and will be part of the discussion about their progress and plan of care each day. […] Boston Children’s Congenital Diaphragmatic Hernia Center offers a long-term clinic for children born with CDH. Established in 1991, our clinic is longest-running follow-up clinic of its kind in the world and monitors and treats the long-term health needs of CDH patients, from early childhood through young adulthood.

• #48 Long-term follow-up of patients with congenital diaphragmatic hernia | World Journal of Pediatric Surgery

  https://wjps.bmj.com/content/7/2/e000758

  Neonates with congenital diaphragmatic hernia encounter a number of surgical and medical morbidities that persist into adulthood. […] As mortality improves for this population, these survivors warrant specialized follow-up for their unique disease-specific morbidities. […] Multidisciplinary congenital diaphragmatic hernia clinics are best positioned to address these complex long-term morbidities, provide long-term research outcomes, and help inform standardization of best practices in this cohort of patients. […] This review outlines long-term morbidities experienced by congenital diaphragmatic hernia survivors that can be addressed in a comprehensive follow-up clinic. […] Dedicated pediatric practitioners have responded to this need with the formation of long-term multidisciplinary clinics along with research initiatives seeking to understand and manage long-term disease-specific morbidity in patients with CDH.

• #49 Long-term follow-up of patients with congenital diaphragmatic hernia | World Journal of Pediatric Surgery

  https://wjps.bmj.com/content/7/2/e000758

  These robust longitudinal clinic data will ultimately provide information to inform standardized follow-up protocols and guidance to the adult and pediatric community regarding optimal long-term management of these complex CDH survivors. […] Given the pulmonary morbidity in patients with CDH, ensuring appropriate prophylaxis against respiratory infections, particularly influenza, COVID-19, and respiratory syncytial virus (RSV), is crucial. […] In a study of 201 patients with CDH, CDH neonates had a fourfold increased risk of hospitalization secondary to RSV compared with normal-risk infants. […] The role of palivizumab in preventing RSV in CDH survivors has recently been evaluated showing that CDH neonates benefit from vaccination. […] Close follow-up in a multidisciplinary CDH clinic with a gastroenterologist and a nutritionist is necessary as GERD symptoms and growth failure often persist throughout childhood.

• #50 Long-term follow-up of patients with congenital diaphragmatic hernia | World Journal of Pediatric Surgery

  https://wjps.bmj.com/content/7/2/e000758

  This review will outline the importance of long-term CDH clinics and system-specific advances and recommendations for long-term follow-up care. […] Organizing a large number of specialty providers, diagnostic testing, and specialized resources is not always feasible. […] Families also expressed interest in a CDH multidisciplinary clinic. […] Forming family-centered multidisciplinary clinics offloads the medical burden for families and broadens the catchment area where CDH survivors can receive multidisciplinary care. […] Along with providing improved care for CDH survivors, multidisciplinary clinics can collect and interpret data from their centers over longer survival periods. […] While there are benefits to the granular research from single-center long-term clinics, collaborative long-term registries provide strength to evidence-based recommendations for follow-up.

• #51 Congenital Diaphragmatic Hernia Program – Seattle Children’s

  https://www.seattlechildrens.org/clinics/congenital-diaphragmatic-hernia/

  If your child has a congenital diaphragmatic hernia (CDH), Seattle Children’s team has the medical and surgical expertise to help your child not only survive, but thrive from diagnosis through treatment and long-term follow-up care. […] Our Congenital Diaphragmatic Hernia Program offers more specialized care than any other children’s hospital in the Pacific Northwest. […] Seattle Children’s is a high-volume center for CDH. We have cared for hundreds of children with a CDH, and our pediatric surgery team is one of the most experienced in the nation. […] Care for your baby starts during pregnancy at our Fetal Care and Treatment Program. […] Seattle Children’s multidisciplinary CDH follow-up clinic helps keep your child healthy with ongoing evaluation and care. […] Seattle Children’s is leading research to improve care, outcomes and quality of life for children born with a CDH. […] For follow-up care as your child grows, contact our CDH Program at 206-987-0780.

• #52 Congenital Diaphragmatic Hernia (CDH) | Texas Children’s

  https://www.texaschildrens.org/content/conditions/congenital-diaphragmatic-hernia-cdh

  At Texas Children’s Fetal Center, we arrange for you to visit as quickly as possible to meet with a team of specialists experienced in treating CDH, including maternal-fetal medicine physicians, surgeons, neonatologists, genetic counselors, and fetal imaging experts. […] After delivery, when the baby is stabilized, surgery can be performed to close the hole in the diaphragm. […] The timing of surgery to repair the hernia after birth, and the length of hospital stay, depends on the severity of your baby’s CDH and the amount of support needed. […] Following surgery to close the hole, your baby’s lungs will take time to recover. […] Long-term follow up is a critical component of care for babies with CDH, as many children often have long-term health issues. […] Our team works closely with your family to assess your baby’s changing needs and monitor the child for long-term health issues, including lung problems, feeding difficulties, heartburn, development, and scoliosis. […] Texas Children’s Hospital offers two postnatal follow-up clinics for patients with congenital diaphragmatic hernia, the CDH Outcomes Clinic and the Complex CDH clinic.

• #53 Congenital Diaphragmatic Hernia Program – NYC | ColumbiaDoctors Children’s Health

  https://www.columbiadoctors.org/childrens-health/pediatric-specialties/digestive-liver-disorders/our-services/congenital-diaphragmatic-hernia-program

  Columbias Congenital Diaphragmatic Hernia Program, located in NewYork-Presbyterian Morgan Stanley Children’s Hospital, offers long-term, multidisciplinary care for children born with congenital diaphragmatic hernia (CDH), a life-threatening condition. […] CDH requires multidisciplinary care. The Congenital Diaphragmatic Hernia Program brings together the vast expertise of Columbia’s pediatric specialists, including a pediatric surgeon, neonatologist, cardiologist with special expertise in pulmonary hypertension, pulmonologist, gastroenterologist, orthopedist, developmental pediatrician, and psychologist. […] Newborns with CDH have underdeveloped lungs and need immediate breathing support with a ventilator. […] All children with CDH require long-term monitoring throughout childhood and beyond to ensure proper development after the hernia has been closed.

• #54 Long-term follow-up of patients with congenital diaphragmatic hernia | World Journal of Pediatric Surgery

  https://wjps.bmj.com/content/7/2/e000758

  Ongoing failure to thrive has multiple adverse consequences including impact on cognition. […] It is important to identify these high-risk children who would benefit from nutrition-focused interventions such as home visits and family education. […] Patients with CDH require screening for scoliosis into adulthood and those with scoliosis benefit from early referral for specialized orthopedic interventions including bracing and potential surgery. […] Neurodevelopmental morbidity is a significant sequela affecting multiple neurological domains: fine and gross motor skills, auditory ability, visuospatial perception, cognition, and language. […] The AAP Section on Surgery recommends neurodevelopmental screening starting at 9-12 months and then annually until 5 years of age. […] Neurodevelopmental assessment tools are challenging to implement in a young population as the responses often rely on parent-reported outcomes and the training of the provider completing the assessment.

• #55 Long-term follow-up of patients with congenital diaphragmatic hernia | World Journal of Pediatric Surgery

  https://wjps.bmj.com/content/7/2/e000758

  Patients often undergo additional surgical interventions after CDH repair such as feeding tube insertion, fundoplication, pectus excavatum repair, recurrent CDH repair, or operations for bowel obstruction. […] Monitoring for CDH recurrence and obstruction is particularly important as they can have life-threatening consequences. […] Long-term follow-up for patients with CDH should extend into adulthood as many alterations in cardiopulmonary physiology, nutrition, neurodevelopment and musculoskeletal development persist beyond adolescence. […] Multidisciplinary clinics can provide this reliable follow-up with regular telemedicine and in-person clinic visits.

• #56 Congenital diaphragmatic hernia – Wikipedia

  https://en.wikipedia.org/wiki/Congenital_diaphragmatic_hernia

  Congenital diaphragmatic hernia (CDH) is a birth defect of the diaphragm. The most common type of CDH is a Bochdalek hernia; other types include Morgagni hernia, diaphragm eventration and central tendon defects of the diaphragm. Malformation of the diaphragm allows the abdominal organs to push into the chest cavity, hindering proper lung formation. […] CDH is a life-threatening pathology in infants and a major cause of death due to two complications: pulmonary hypoplasia and pulmonary hypertension. […] Newborns with CDH often have severe respiratory distress which can be life-threatening unless treated appropriately. […] The first step in management is orogastric tube placement and securing the airway (intubation). Ideally, the baby will never take a breath, to avoid air going into the intestines and compressing the lungs and heart. The baby will then be immediately placed on a ventilator. […] In the modern era, congenital diaphragmatic hernia has a survival rate of approximately 60-70%, with some tertiary care centers reporting a survival rate of up to 92%.

• #57 Congenital Diaphragmatic Hernia (CDH) | Fetal Diagnosis & Repair | Fetal Care Center

  https://www.cincinnatichildrens.org/service/f/fetal-care/conditions/congenital-diaphragmatic-hernia

  The long-term outcome of infants with CDH depends on how severe is the underlying underdevelopment of the lungs, the severity of blood vessel narrowing to the lungs (called pulmonary hypertension) and the degree of chronic lung disease from having long-term breathing support. […] The Fetal Care Center is one of the countrys only hospitals with a dedicated team of CDH specialists. […] The Fetal Care Center offers a highly detailed and thorough approach to caring for patients with congenital diaphragmatic hernia.

• #58 Congenital Diaphragmatic Hernia (CDH): Diagnosis and Treatment

  https://www.bannerhealth.com/services/maternity/programs-care/fetal-care-program/congenital-diaphragmatic-hernia

  The good news is that medical advancements have greatly improved CDH care. Overall, 65%-70% of babies with CDH will not only survive, but with proper care go on to meet normal growth and development milestones by kindergarten (age 5). […] Specialized medical care can help with these challenges and support the child’s overall development and quality of life. […] We are here to not only give your baby the best medical care, but also offer you emotional support and reliable information. Our goal is to ensure your family’s well-being and work together as a team to make smart decisions for your child’s care. […] Banner Healths Fetal Care Program is a leader in providing medical care for babies with CDH. Our team offers an unmatched level of care from diagnosis through delivery to the NICU and adulthood. We are here for you and your baby every step of the way.

• #59

  https://www.nursingcenter.com/journalarticle?Article_ID=787367&Journal_ID=675992&Issue_ID=787342

  Congenital diaphragmatic hernia (CDH) is a defect in the formation of the diaphragm of the fetus. The diaphragm is the muscle and tissue that separate the chest and the abdominal cavities. In CDH, abdominal organs push into the chest cavity through the defect or herniation, compressing the developing lungs. […] Despite advances in postnatal care, infants born with a CDH continue to suffer substantial morbidity and mortality. Healthcare providers continue to research therapeutic approaches that will improve the care and optimize survival in these infants. The purpose of this article is to offer an in-depth exploration of neonatal physiology and pathophysiology, providing advanced concepts that expand the scientific basis for neonatal care practices.

• #60 Congenital Diaphragmatic Hernia | OSF HealthCare

  https://www.osfhealthcare.org/hospitals/childrens/programs-services/surgery/congenital-diaphragmatic-hernia

  Relatively small populations of children are born each year with Congenital Diaphragmatic Hernias (CDH). At Childrens Hospital of Illinois, we have specially trained physicians and nurses who provide excellent care for these children. […] Through use of evidence based practices, our multidisciplinary team of specialists provides continuity of care throughout pregnancy and childhood. Comprehensive care is provided by specialties such as maternal-fetal medicine, neonatology, pediatric surgery, and pediatric pulmonology. All work together to help these children survive the neonatal period and thrive into childhood. […] In the CDH Clinic our team uses a family centered care approach helping the family understand their childs condition, and set goals and expectations for each milestone ahead. Additional specialists on our team include: physical therapists, speech therapists, audiologists, dieticians and a pediatric neurodevelopmental psychologist.

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