Atrezja trójdzielna
Charakterystyka, pielęgnacja i opieka

Atrezja trójdzielna to rzadka wrodzona wada serca, charakteryzująca się całkowitym brakiem zastawki trójdzielnej, co uniemożliwia przepływ krwi między prawym przedsionkiem a prawą komorą. Występuje u 2/10 000 żywych urodzeń i stanowi 1-2% wszystkich wrodzonych wad serca. Klinicznie manifestuje się sinicą wynikającą z niedostatecznego natlenienia krwi płucnej. Leczenie noworodków wymaga natychmiastowej hospitalizacji na oddziałach intensywnej terapii (OITN, CICU) oraz podania dożylnej prostaglandyny E1 w celu utrzymania drożności przewodu tętniczego (PDA), co umożliwia przepływ krwi do płuc. W terapii stosuje się także leki inotropowe, obniżające ciśnienie krwi, diuretyki oraz tlenoterapię. Należy monitorować ryzyko bezdechu indukowanego przez PGE1, który może wymagać wentylacji mechanicznej.

Atrezja trójdzielna (Tricuspid atresia) – definicja

Atrezja trójdzielna to wrodzona wada serca charakteryzująca się brakiem lub całkowitą agenezją zastawki trójdzielnej, co uniemożliwia przepływ krwi między prawym przedsionkiem a prawą komorą. Wada ta występuje u dwojga na 10 000 żywych urodzeń i stanowi 1-2% wszystkich wrodzonych wad serca, występując z równą częstością u chłopców i dziewcząt.12 Powoduje sinicę spowodowaną niewystarczającym przepływem krwi do płuc, co skutkuje zmniejszonym natlenieniem organizmu.3 Istnieje kilka podtypów tej wady, a ich objawy kliniczne zależą głównie od ilości krwi przepływającej przez płuca.4

Leczenie noworodków z atrezją trójdzielną

Większość noworodków z atrezją trójdzielną wymaga leczenia w pierwszych dniach lub tygodniach życia. Zazwyczaj są przyjmowane na oddział intensywnej terapii noworodkowej (OITN) lub oddział intensywnej terapii kardiologicznej (CICU).56 Wczesne postępowanie medyczne koncentruje się na stabilizacji stanu pacjenta i zapewnieniu odpowiedniego przepływu krwi.7

Leczenie farmakologiczne

Noworodki z atrezją trójdzielną często wymagają natychmiastowego podania leków w celu poprawy przepływu krwi i natlenienia organizmu:8

  • Prostaglandyna E1 (PGE1) – podawana dożylnie w celu utrzymania drożności przewodu tętniczego (PDA), co umożliwia przepływ krwi do płuc910
  • Leki wzmacniające mięsień sercowy1112
  • Leki obniżające ciśnienie krwi13
  • Diuretyki – stosowane do usuwania nadmiaru płynów z organizmu u pacjentów z niewydolnością serca1415
  • Tlenoterapia – podawana w celu poprawy natlenienia organizmu16

Warto zauważyć, że podczas podawania prostaglandyny E1 mogą wystąpić epizody bezdechu, które mogą wymagać zastosowania wentylacji mechanicznej.17

Leczenie chirurgiczne

Leczenie chirurgiczne atrezji trójdzielnej jest złożone i często wymaga serii zabiegów wykonywanych w różnym wieku pacjenta. Nie istnieje możliwość zastąpienia zastawki trójdzielnej, dlatego zabiegi koncentrują się na poprawie przepływu krwi przez serce i do płuc.18 Chirurgia ma na celu ominięcie niewydolnej prawej strony serca i zwiększenie przepływu krwi do płuc.19

Chirurgiczne leczenie atrezji trójdzielnej zwykle obejmuje trzystopniową rekonstrukcję:2021

  • Etap I (w okresie noworodkowym) – zazwyczaj obejmuje operację Blalock-Taussig lub inne rodzaje zespoleń w celu zapewnienia odpowiedniego przepływu krwi do płuc22
  • Etap II (około 4-6 miesiąca życia) – procedura Glenna lub hemi-Fontan, która łączy górną połowę żył przenoszących krew ubogą w tlen bezpośrednio z tętnicą płucną23
  • Etap III (pomiędzy 18 miesiącem a 3 rokiem życia) – procedura Fontana, w której pozostałe żyły przenoszące krew ubogą w tlen są podłączane bezpośrednio do tętnicy płucnej, co powoduje, że lewa komora pompuje krew tylko do organizmu, a nie do płuc24

Po etapie I i II dziecko może nadal wyglądać na sine (siniczna skóra), ale po zakończeniu etapu III sinica zwykle ustępuje.25 Wyniki trzystopniowej chirurgii korekty atrezji trójdzielnej są generalnie dobre, z oczekiwanymi wskaźnikami przeżycia 75-95%, w zależności od indywidualnych czynników właściwych dla każdego dziecka.26

Opieka pielęgnacyjna nad noworodkami z atrezją trójdzielną

Opieka pielęgnacyjna nad noworodkami z atrezją trójdzielną jest złożona i wymaga ścisłej współpracy różnych specjalistów. Zespół opieki powinien składać się z pediatrycznego chirurga kardiologicznego, kardiologa dziecięcego, neonatologa i pediatrycznego pulmonologa/intensywisty.27

Opieka szpitalna

Noworodki z atrezją trójdzielną wymagają intensywnej opieki specjalistycznej w warunkach szpitalnych:28

  • Pacjenci są hospitalizowani na oddziale intensywnej terapii (OIT) lub oddziale intensywnej terapii kardiologicznej (CICU)
  • Ścisłe monitorowanie parametrów życiowych, stanu nawodnienia i rytmu serca29
  • Monitorowanie oporu naczyń płucnych po operacji Fontana30
  • Regularna ocena natlenia krwi i ogólnego stanu dziecka
  • Po bardziej złożonych zabiegach dzieci zwykle pozostają w szpitalu przez tydzień lub dwa, początkowo na oddziale intensywnej terapii, a następnie na zwykłym oddziale szpitalnym31

Opieka pielęgniarska nad dziećmi poddawanymi zabiegom korekcyjnym z powodu atrezji trójdzielnej jest zróżnicowana. Pielęgniarki z oddziału kardiologicznego, bloku operacyjnego i oddziału intensywnej terapii pediatrycznej współpracują ze sobą, aby ułatwić dziecku i rodzinie przejście przez różne etapy hospitalizacji.32

Żywienie i wsparcie metaboliczne

Odpowiednie żywienie jest kluczowym elementem opieki nad dzieckiem z atrezją trójdzielną:33

  • Noworodki i niemowlęta z atrezją trójdzielną często męczą się podczas karmienia i mogą nie przyjmować wystarczającej ilości kalorii do prawidłowego przyrostu masy ciała34
  • Może być przepisane specjalne wysokoenergetyczne mleko modyfikowane35
  • Zalecane są częste, małe posiłki36
  • W niektórych przypadkach konieczne może być karmienie przez zgłębnik37
  • Ze względu na przeciążenie objętościowe u tych dzieci oraz stosowanie diuretyków, powinna być przepisana dieta niskosodowa38

Przygotowanie do wypisu ze szpitala

Przed wypisem dziecka do domu personel pielęgniarski przekazuje rodzicom szczegółowe instrukcje dotyczące:3940

  • Podawania leków i ich dawkowania
  • Obserwacji stanu dziecka i rozpoznawania niepokojących objawów
  • Technik karmienia i stosowania suplementów żywieniowych
  • Organizacji opieki domowej

Wiele ośrodków oferuje programy monitorowania domowego, które są niezwykle ważne dla wspierania rodzin między kolejnymi etapami operacji. Badania wykazują istotne znaczenie takich programów, obejmujących codzienną ocenę saturacji tlenu i masy ciała między etapem I (noworodkowym) a etapem II (operacja Glenn) leczenia chirurgicznego.41

Długoterminowa opieka nad pacjentami z atrezją trójdzielną

Pacjenci z atrezją trójdzielną wymagają stałej, dożywotniej opieki kardiologa specjalizującego się w wrodzonych wadach serca, takiego jak kardiolog dziecięcy lub specjalista ds. wrodzonych wad serca u dorosłych (ACHD).4243

Regularne wizyty kontrolne

Wszystkie dzieci po operacjach atrezji trójdzielnej wymagają regularnych wizyt kontrolnych:44

  • Wizyty u kardiologa dziecięcego powinny odbywać się co najmniej raz w roku45
  • Częstotliwość wizyt zależy od wieku i etapu leczenia46
  • Podczas wizyt przeprowadzany jest dokładny wywiad i badanie fizykalne47
  • Regularne badania obejmują EKG i echokardiografię48
  • Kontynuacja opieki w ośrodku oferującym pediatryczną lub dorosłą opiekę kardiologiczną nad wrodzonymi wadami serca powinna trwać przez całe życie49

Zapobieganie powikłaniom

Długoterminowa opieka nad pacjentami z atrezją trójdzielną obejmuje zapobieganie powikłaniom:50

  • Profilaktyka infekcyjnego zapalenia wsierdzia – kardiolog określi, czy pacjent wymaga antybiotyków profilaktycznych przed zabiegami stomatologicznymi i innymi procedurami5152
  • Zalecane są standardowe szczepienia dla dzieci z wrodzonymi wadami serca, a także szczepienia przeciwko grypie, zapaleniu płuc i infekcjom RSV53
  • Regularne monitorowanie rytmu serca – pacjenci po operacji Fontana mogą wymagać leków lub wszczepienia rozrusznika serca z powodu zaburzeń rytmu54
  • Monitorowanie funkcji płuc – mogą wystąpić problemy z płucami, w tym obniżenie poziomu tlenu we krwi55
  • Obserwacja układu pokarmowego – mogą wystąpić problemy trawienne związane z utratą białka w stolcu, co prowadzi do obrzęków i zatrzymania wody56

Zalecenia dotyczące stylu życia

Pacjentom z atrezją trójdzielną zaleca się pewne modyfikacje stylu życia, które pomogą utrzymać zdrowe serce i zapobiegać powikłaniom:57

  • Aktywność fizyczna – ważna dla zdrowia serca, choć może być konieczne dostosowanie jej do indywidualnych możliwości pacjenta58
  • Odpowiednie odżywianie – dieta niskosodowa jest szczególnie ważna dla pacjentów przyjmujących diuretyki59
  • Regularne przyjmowanie przepisanych leków60
  • Kobiety z atrezją trójdzielną planujące ciążę powinny skonsultować się ze specjalistą ds. wrodzonych wad serca u dorosłych oraz specjalistą medycyny matczyno-płodowej6162

Wsparcie psychologiczne

Życie z wrodzoną wadą serca może powodować stres i niepokój zarówno u dzieci, jak i u ich rodzin. Opieka psychologiczna jest istotnym elementem kompleksowej opieki nad pacjentami z atrezją trójdzielną:63

  • Konsultacje z terapeutą lub doradcą mogą pomóc dziecku i rodzinie w znalezieniu nowych sposobów radzenia sobie ze stresem i niepokojem
  • Współpraca z psychologiem lub psychiatrą może być pomocna w radzeniu sobie z emocjonalnymi aspektami choroby
  • Grupy wsparcia dla rodzin dzieci z wrodzonymi wadami serca mogą zapewnić cenne wsparcie emocjonalne i praktyczne porady
  • Utrzymanie normalności i bliskości w codziennym życiu jest ważną strategią wspierającą dla dziecka i rodziny64

Rola pielęgniarek w opiece nad pacjentami z atrezją trójdzielną

Pielęgniarki odgrywają kluczową rolę w opiece nad pacjentami z atrezją trójdzielną na wszystkich etapach leczenia:6566

  • Monitorowanie stanu pacjenta i dokumentowanie jego parametrów życiowych
  • Zapewnienie skutecznej komunikacji w zespole interdyscyplinarnym
  • Edukacja pacjentów i ich rodzin w zakresie choroby, leków i codziennej opieki
  • Koordynacja planów opieki i interwencji dla pacjentów, z naciskiem na podejście skoncentrowane na pacjencie i ciągłą obserwację67
  • Obserwacja pod kątem wczesnych objawów potencjalnych powikłań
  • Udzielanie wsparcia emocjonalnego pacjentom i ich rodzinom

Dzięki współpracy i kompleksowemu podejściu pielęgniarskiemu, dzieci z atrezją trójdzielną i ich rodziny mogą mieć bardziej pozytywne doświadczenia w trakcie leczenia.68

Kiedy skontaktować się z lekarzem

Rodzice dzieci z atrezją trójdzielną powinni natychmiast skontaktować się z lekarzem, jeśli zaobserwują:6970

  • Nasilenie typowych objawów lub pojawienie się nowych symptomów
  • Zmiany w rytmie oddychania lub trudności z oddychaniem
  • Problemy z jedzeniem lub karmieniem
  • Nasilenie sinicy (niebieskie zabarwienie skóry)
  • Nadmierną senność lub drażliwość
  • Gorączkę lub inne objawy infekcji

Perspektywy długoterminowe

Dzięki nowoczesnym technikom chirurgicznym i kompleksowej opiece medycznej, perspektywy dla dzieci z atrezją trójdzielną znacznie się poprawiły w ostatnich dekadach. Większość dzieci z atrezją trójdzielną, które przeszły leczenie chirurgiczne, może dożyć wieku dorosłego, choć często konieczne są dodatkowe operacje.71

Długoterminowa jakość życia po operacji Fontana jest zwykle dobra. Obecnie najstarsi pacjenci, którzy przeszli tę procedurę, mają 30 lat i więcej. 20-letnie przeżycie po procedurze Fontana waha się od 61% do 85%.7273

Niemniej jednak, mogą pojawić się powikłania, takie jak zaburzenia rytmu serca, problemy z płucami czy problemy z układem pokarmowym. Niektórzy pacjenci, mimo dobrego samopoczucia po operacjach, mogą w późniejszym życiu wymagać przeszczepu serca lub płuc.74

Ciągła, kompleksowa opieka medyczna i pielęgniarska, regularne wizyty kontrolne oraz przestrzeganie zaleceń dotyczących stylu życia są kluczowe dla osiągnięcia jak najlepszych wyników długoterminowych u pacjentów z atrezją trójdzielną.7576

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  1. 10.04.2026
  2. www.leksykon.com.pl

Materiały źródłowe

  • #1 Tricuspid atresia | Congenital Heart Defect (CHD) | Children’s Wisconsin
    https://childrenswi.org/medical-care/herma-heart/conditions/tricuspid-atresia
    Tricuspid atresia occurs in two out of every 10,000 live births. It makes up 1 to 2 percent of all cases of congenital heart disease. TA occurs equally in boys and girls. […] Treatment options for tricuspid valve atresia will be determined by your child’s physician based on: Your child’s age, overall health and medical history, Extent of the disease, Your child’s tolerance for specific medications, procedures or therapies,
  • #2 Tricuspid atresia. Surgical treatment, pediatric nursing care – PubMed
    https://pubmed.ncbi.nlm.nih.gov/2288582/
    Tricuspid atresia is one of the least common congenital heart defects representing less than 3% of all reported cases. […] Surgical repair for children with tricuspid atresia involves palliative surgery in infancy followed by corrective surgery when the child is three to four years of age. […] Children undergoing corrective surgery for tricuspid atresia require diversified nursing care. Nurses from the cardiovascular unit, the operating room, and the pediatric intensive care unit work interdependently to facilitate the transition of the child and family through the various stages of the hospitalization. […] As a result of a collaborative and comprehensive nursing approach, these children and families may have a more positive experience.
  • #3 Tricuspid Atresia – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK554495/
    Tricuspid atresia is a congenital heart defect that results in cyanosis due to the absence of communication between the right atrium and ventricle caused by the complete agenesis of the tricuspid valve. […] Given the potential for long-term complications, intensive care serves as the primary setting for managing tricuspid atresia, followed by ongoing monitoring to ensure a sustained high quality of life for affected individuals. […] The initial management of the condition focuses on stabilizing the patient. […] Patients presenting later in infancy with heart failure and pulmonary over-circulation may require diuretics as part of the indicated treatment. […] The selection of the surgical approach for the initial stage of palliation depends on factors such as the anatomy of the great vessels, the presence or absence of outflow tract obstruction, and the size of any existing VSD.
  • #4 CE Activity | Tricuspid Atresia | Nurses
    https://www.statpearls.com/nurse/ce/activity/104522/?specialtyUrlPath=Nurse%20-%20Inpatient%20Obstetric%20RNC-OB
    Tricuspid atresia is a congenital heart defect that results in cyanosis due to the absence of communication between the right atrium and ventricle caused by the complete agenesis of the tricuspid valve. This condition has several subtypes with varied clinical presentations determined by the extent of pulmonary blood flow. […] Given the potential for long-term complications, intensive care serves as the primary setting for managing tricuspid atresia, followed by ongoing monitoring to ensure a sustained high quality of life for affected individuals. This activity describes the etiology, pathophysiology, diagnosis, complications, and management of tricuspid atresia. This activity equips healthcare professionals with updated knowledge and skills for effective diagnosis, treatment, and overall management of this congenital heart condition, leading to improved patient care and outcomes. […] Coordinate care plans and interventions for patients with tricuspid atresia, emphasizing a patient-centered approach and continuous follow-up.
  • #5 Tricuspid Atresia – Seattle Children’s Hospital
    https://www.seattlechildrens.org/conditions/tricuspid-atresia/
    Most babies with tricuspid atresia need treatment in the first days or weeks of life. […] We provide complete care for children with tricuspid atresia through our Single Ventricle Program. We will coach you on how to check your baby’s condition at home, and we will give you 24-hour support in case problems arise. This helps us find small issues before they become serious problems. […] The doctor will likely suggest some procedures and treatments right away after your baby is born to improve your baby’s blood flow. Other procedures may be done later, such as open-heart surgery. Most babies can be helped with surgery. […] Children with tricuspid atresia need lifelong follow-up care for their heart. […] Your child’s treatment plan is custom-made. We plan and carry out their treatment based on the specific details of their heart condition. We closely check your child’s needs to make sure they get the care that is right for them at every age.
  • #6 Tricuspid Atresia – UF Health
    https://ufhealth.org/conditions-and-treatments/tricuspid-atresia
    Once the diagnosis is made, the baby will often be admitted to the neonatal intensive care unit (NICU). A medicine called prostaglandin E1 may be used to keep the ductus arteriosis open (patent) so that blood can circulate to the lungs. […] Generally, patients with this condition require surgery. If the heart is unable to pump enough blood out to the lungs and rest of the body, the first surgery most often takes place within the first few days of life. In this procedure, an artificial shunt is inserted to keep blood flowing to the lungs. In some cases, this first surgery is not needed. […] Afterward, the baby goes home in most cases. The child will need to take one or more daily medicines and be closely followed by a pediatric cardiologist. This doctor will decide when the second stage of surgery should be done. […] During stage I and II, the child may still look blue (cyanotic). […] In most cases, surgery will improve the condition. […] Contact your health care provider right away if your infant has: New changes in breathing patterns, Problems eating, Skin that is turning blue.
  • #7 Tricuspid Atresia – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK554495/
    Tricuspid atresia is a congenital heart defect that results in cyanosis due to the absence of communication between the right atrium and ventricle caused by the complete agenesis of the tricuspid valve. […] Given the potential for long-term complications, intensive care serves as the primary setting for managing tricuspid atresia, followed by ongoing monitoring to ensure a sustained high quality of life for affected individuals. […] The initial management of the condition focuses on stabilizing the patient. […] Patients presenting later in infancy with heart failure and pulmonary over-circulation may require diuretics as part of the indicated treatment. […] The selection of the surgical approach for the initial stage of palliation depends on factors such as the anatomy of the great vessels, the presence or absence of outflow tract obstruction, and the size of any existing VSD.
  • #8 Tricuspid atresia – Diagnosis & treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/tricuspid-atresia/diagnosis-treatment/drc-20368416
    There’s no way to replace a tricuspid valve in tricuspid atresia. If your child has tricuspid atresia, several surgeries are often done to improve blood flow through the heart and to the lungs. Medications are used to manage symptoms. […] If your baby has tricuspid atresia, consider getting care at a medical center with surgeons and other health care providers who have experience with complex congenital heart disease. […] Medications for tricuspid atresia may be given to: Strengthen the heart muscle, Lower blood pressure, Remove excess fluid from the body. […] Supplemental oxygen might be given to help the baby breathe better. […] A baby with tricuspid atresia often needs several heart surgeries or procedures. Some of them are temporary fixes to quickly improve blood flow before a more permanent procedure can be done.
  • #9 Tricuspid Atresia | Children’s Hospital of Philadelphia
    https://www.chop.edu/conditions-diseases/tricuspid-atresia
    If your baby is born with tricuspid atresia, they will be admitted to the Evelyn and Daniel M. Tabas Cardiac Intensive Care Unit (CICU), where they will receive round-the-clock attention from a team of dedicated cardiac critical care medicine specialists. Your baby may require oxygen and a medication called prostaglandin, to keep enough oxygen in their blood. […] Prostaglandin is an IV (intravenous) medication that keeps the connection between the pulmonary artery and the aorta open. This connection, called the patent ductus arteriosus (PDA), is open in the fetus, and closes soon after birth. When the PDA closes, some babies with tricuspid atresia turn blue. An infusion of prostaglandin is a lifesaving intervention that can re-open the PDA. Not all babies with tricuspid atresia require prostaglandin.
  • #10 Tricuspid Atresia > Fact Sheets > Yale Medicine
    https://www.yalemedicine.org/conditions/tricuspid-atresia
    A newborn may first be given prostaglandin E1, a medication that helps the ductus arteriosus remain open, to help the babys blood reach the lungs to pick up oxygen. […] If there is obstruction, then the baby will need intervention/surgery in the first few weeks to establish blood flow to the lungs. […] There are three stages of surgical/catheter based procedures needed for tricuspid atresia: […] If tricuspid atresia is left untreated, patients usually die within the first year of life. But patients with tricuspid atresia who undergo all three surgical procedures experience improvement in their symptoms. Their skin stops appearing bluish because oxygen-rich blood is able to circulate throughout the body, their appetite increases, and they regain energy. People who undergo a Fontan procedure, for example, are projected to have a 30-year survival rate of 85%. […] Patients with tricuspid atresia should be monitored by a cardiologist for the rest of their lives due to the risk of complications associated with their condition.
  • #11 About Tricuspid Atresia | Congenital Heart Defects (CHDs) | CDC
    https://www.cdc.gov/heart-defects/about/tricuspid-atresia.html
    Babies born with tricuspid atresia will show symptoms at birth or very soon afterwards. […] Some babies and children will need medicines to help: […] Some babies with tricuspid atresia become tired while feeding and do not eat enough to gain weight. To make sure babies have a healthy weight gain, a special high-calorie formula might be prescribed. […] Surgical treatment for tricuspid atresia depends on its severity and presence of other heart defects. Soon after birth, one or more surgeries may be needed. The surgeries will help increase blood flow to the lungs and bypass the poorly functioning right side of the heart. […] Babies born with tricuspid atresia will need regular follow-up visits with a cardiologist (a heart doctor). These visits can help monitor their progress and check for other health conditions that might develop as they get older.
  • #12 Tricuspid atresia – Diagnosis & treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/tricuspid-atresia/diagnosis-treatment/drc-20368416
    There’s no way to replace a tricuspid valve in tricuspid atresia. If your child has tricuspid atresia, several surgeries are often done to improve blood flow through the heart and to the lungs. Medications are used to manage symptoms. […] If your baby has tricuspid atresia, consider getting care at a medical center with surgeons and other health care providers who have experience with complex congenital heart disease. […] Medications for tricuspid atresia may be given to: Strengthen the heart muscle, Lower blood pressure, Remove excess fluid from the body. […] Supplemental oxygen might be given to help the baby breathe better. […] A baby with tricuspid atresia often needs several heart surgeries or procedures. Some of them are temporary fixes to quickly improve blood flow before a more permanent procedure can be done.
  • #13 About Tricuspid Atresia | Congenital Heart Defects (CHDs) | CDC
    https://www.cdc.gov/heart-defects/about/tricuspid-atresia.html
    Babies born with tricuspid atresia will show symptoms at birth or very soon afterwards. […] Some babies and children will need medicines to help: […] Some babies with tricuspid atresia become tired while feeding and do not eat enough to gain weight. To make sure babies have a healthy weight gain, a special high-calorie formula might be prescribed. […] Surgical treatment for tricuspid atresia depends on its severity and presence of other heart defects. Soon after birth, one or more surgeries may be needed. The surgeries will help increase blood flow to the lungs and bypass the poorly functioning right side of the heart. […] Babies born with tricuspid atresia will need regular follow-up visits with a cardiologist (a heart doctor). These visits can help monitor their progress and check for other health conditions that might develop as they get older.
  • #14 Tricuspid Atresia – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK554495/
    Tricuspid atresia is a congenital heart defect that results in cyanosis due to the absence of communication between the right atrium and ventricle caused by the complete agenesis of the tricuspid valve. […] Given the potential for long-term complications, intensive care serves as the primary setting for managing tricuspid atresia, followed by ongoing monitoring to ensure a sustained high quality of life for affected individuals. […] The initial management of the condition focuses on stabilizing the patient. […] Patients presenting later in infancy with heart failure and pulmonary over-circulation may require diuretics as part of the indicated treatment. […] The selection of the surgical approach for the initial stage of palliation depends on factors such as the anatomy of the great vessels, the presence or absence of outflow tract obstruction, and the size of any existing VSD.
  • #15 Tricuspid atresia – Diagnosis & treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/tricuspid-atresia/diagnosis-treatment/drc-20368416
    There’s no way to replace a tricuspid valve in tricuspid atresia. If your child has tricuspid atresia, several surgeries are often done to improve blood flow through the heart and to the lungs. Medications are used to manage symptoms. […] If your baby has tricuspid atresia, consider getting care at a medical center with surgeons and other health care providers who have experience with complex congenital heart disease. […] Medications for tricuspid atresia may be given to: Strengthen the heart muscle, Lower blood pressure, Remove excess fluid from the body. […] Supplemental oxygen might be given to help the baby breathe better. […] A baby with tricuspid atresia often needs several heart surgeries or procedures. Some of them are temporary fixes to quickly improve blood flow before a more permanent procedure can be done.
  • #16 Tricuspid atresia – Diagnosis & treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/tricuspid-atresia/diagnosis-treatment/drc-20368416
    There’s no way to replace a tricuspid valve in tricuspid atresia. If your child has tricuspid atresia, several surgeries are often done to improve blood flow through the heart and to the lungs. Medications are used to manage symptoms. […] If your baby has tricuspid atresia, consider getting care at a medical center with surgeons and other health care providers who have experience with complex congenital heart disease. […] Medications for tricuspid atresia may be given to: Strengthen the heart muscle, Lower blood pressure, Remove excess fluid from the body. […] Supplemental oxygen might be given to help the baby breathe better. […] A baby with tricuspid atresia often needs several heart surgeries or procedures. Some of them are temporary fixes to quickly improve blood flow before a more permanent procedure can be done.
  • #17 Tricuspid Atresia | Children’s Hospital of Philadelphia
    https://www.chop.edu/conditions-diseases/tricuspid-atresia
    It is not unusual for babies to have trouble breathing or stop breathing for short periods (apnea) while on prostaglandin infusion. If your baby struggles to breathe, they may need to be placed on a breathing machine or ventilator. […] To repair many types of single ventricle defects, including tricuspid atresia, surgeons perform a series of open-heart procedures over a period of years. This is called staged reconstruction. […] Children with tricuspid atresia require life-long care by a cardiologist. Many remain on medications for life. Additional surgeries may be required. […] As patients with Fontan circulation get older, doctors are recognizing that, while some do fine, many experience complications. These complications can include lung, liver and gastrointestinal diseases. Our Single Ventricle Survivorship Clinic, part of the Fontan Rehabilitation, Wellness, Activity and Resilience Development (FORWARD) Program specializes in the care of these patients and is researching improved treatments for them.
  • #18 Tricuspid atresia – Diagnosis & treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/tricuspid-atresia/diagnosis-treatment/drc-20368416
    There’s no way to replace a tricuspid valve in tricuspid atresia. If your child has tricuspid atresia, several surgeries are often done to improve blood flow through the heart and to the lungs. Medications are used to manage symptoms. […] If your baby has tricuspid atresia, consider getting care at a medical center with surgeons and other health care providers who have experience with complex congenital heart disease. […] Medications for tricuspid atresia may be given to: Strengthen the heart muscle, Lower blood pressure, Remove excess fluid from the body. […] Supplemental oxygen might be given to help the baby breathe better. […] A baby with tricuspid atresia often needs several heart surgeries or procedures. Some of them are temporary fixes to quickly improve blood flow before a more permanent procedure can be done.
  • #19 Tricuspid Atresia – UF Health
    https://ufhealth.org/conditions-and-treatments/tricuspid-atresia
    Once the diagnosis is made, the baby will often be admitted to the neonatal intensive care unit (NICU). A medicine called prostaglandin E1 may be used to keep the ductus arteriosis open (patent) so that blood can circulate to the lungs. […] Generally, patients with this condition require surgery. If the heart is unable to pump enough blood out to the lungs and rest of the body, the first surgery most often takes place within the first few days of life. In this procedure, an artificial shunt is inserted to keep blood flowing to the lungs. In some cases, this first surgery is not needed. […] Afterward, the baby goes home in most cases. The child will need to take one or more daily medicines and be closely followed by a pediatric cardiologist. This doctor will decide when the second stage of surgery should be done. […] During stage I and II, the child may still look blue (cyanotic). […] In most cases, surgery will improve the condition. […] Contact your health care provider right away if your infant has: New changes in breathing patterns, Problems eating, Skin that is turning blue.
  • #20 Tricuspid Atresia | Children’s Hospital of Philadelphia
    https://www.chop.edu/conditions-diseases/tricuspid-atresia
    It is not unusual for babies to have trouble breathing or stop breathing for short periods (apnea) while on prostaglandin infusion. If your baby struggles to breathe, they may need to be placed on a breathing machine or ventilator. […] To repair many types of single ventricle defects, including tricuspid atresia, surgeons perform a series of open-heart procedures over a period of years. This is called staged reconstruction. […] Children with tricuspid atresia require life-long care by a cardiologist. Many remain on medications for life. Additional surgeries may be required. […] As patients with Fontan circulation get older, doctors are recognizing that, while some do fine, many experience complications. These complications can include lung, liver and gastrointestinal diseases. Our Single Ventricle Survivorship Clinic, part of the Fontan Rehabilitation, Wellness, Activity and Resilience Development (FORWARD) Program specializes in the care of these patients and is researching improved treatments for them.
  • #21 Tricuspid Atresia | Connecticut Children’s
    https://www.connecticutchildrens.org/specialties-conditions/cardiology/conditions/tricuspid-atresia
    Babies born with tricuspid atresia usually need staged reconstruction, a series of up to three surgeries to redirect how blood flows through the heart and lungs. […] Patients born with tricuspid atresia need lifelong care from congenital heart experts who understand their hearts unique anatomy. Connecticut Childrens Heart Center is there every step of the way, with care that transitions into adulthood with our nationally accredited Adult Congenital Heart Disease program.
  • #22 Tricuspid atresia Information | Mount Sinai – New York
    https://www.mountsinai.org/health-library/diseases-conditions/tricuspid-atresia
    Once the diagnosis is made, the baby will often be admitted to the neonatal intensive care unit (NICU). A medicine called prostaglandin E1 may be used to keep the ductus arteriosis open (patent) so that blood can circulate to the lungs. […] Generally, patients with this condition require surgery. If the heart is unable to pump enough blood out to the lungs and rest of the body, the first surgery most often takes place within the first few days of life. In this procedure, an artificial shunt is inserted to keep blood flowing to the lungs. In some cases, this first surgery is not needed. […] Afterward, the baby goes home in most cases. The child will need to take one or more daily medicines and be closely followed by a pediatric cardiologist. This doctor will decide when the second stage of surgery should be done.
  • #23 Tricuspid atresia Information | Mount Sinai – New York
    https://www.mountsinai.org/health-library/diseases-conditions/tricuspid-atresia
    The next stage of surgery is called the Glenn shunt or hemi-Fontan procedure. This procedure connects half of the veins carrying oxygen-poor blood from the upper half of the body directly to the pulmonary artery. The surgery is most often done when the child is between 4 to 6 months old. […] During stage I and II, the child may still look blue (cyanotic). […] Stage III, the final step, is called the Fontan procedure. The rest of the veins carrying oxygen-poor blood from the body are connected directly to the pulmonary artery leading to the lungs. The left ventricle now only has to pump to the body, not the lungs. This surgery is usually performed when the child is 18 months to 3 years old. After this final step, the baby’s skin is no longer blue.
  • #24 Tricuspid atresia Information | Mount Sinai – New York
    https://www.mountsinai.org/health-library/diseases-conditions/tricuspid-atresia
    The next stage of surgery is called the Glenn shunt or hemi-Fontan procedure. This procedure connects half of the veins carrying oxygen-poor blood from the upper half of the body directly to the pulmonary artery. The surgery is most often done when the child is between 4 to 6 months old. […] During stage I and II, the child may still look blue (cyanotic). […] Stage III, the final step, is called the Fontan procedure. The rest of the veins carrying oxygen-poor blood from the body are connected directly to the pulmonary artery leading to the lungs. The left ventricle now only has to pump to the body, not the lungs. This surgery is usually performed when the child is 18 months to 3 years old. After this final step, the baby’s skin is no longer blue.
  • #25 Tricuspid atresia Information | Mount Sinai – New York
    https://www.mountsinai.org/health-library/diseases-conditions/tricuspid-atresia
    The next stage of surgery is called the Glenn shunt or hemi-Fontan procedure. This procedure connects half of the veins carrying oxygen-poor blood from the upper half of the body directly to the pulmonary artery. The surgery is most often done when the child is between 4 to 6 months old. […] During stage I and II, the child may still look blue (cyanotic). […] Stage III, the final step, is called the Fontan procedure. The rest of the veins carrying oxygen-poor blood from the body are connected directly to the pulmonary artery leading to the lungs. The left ventricle now only has to pump to the body, not the lungs. This surgery is usually performed when the child is 18 months to 3 years old. After this final step, the baby’s skin is no longer blue.
  • #26 Tricuspid Atresia Repair | Norton Children’s
    https://nortonchildrens.com/services/cardiology/conditions/treatments/surgical/tricuspid-atresia-repair/
    The results for the three-stage tricuspid atresia repair surgeries are generally good. Expected survival rates for children who complete all three stages of surgery are 75% to 95%, depending on the factors unique to each child and the care they receive. […] Long-term quality of life following the Fontan operation is usually good. Currently, the oldest patients who have had this procedure are age 30 and older. However, complications can occur, including heart rhythm issues that require medication or pacemaker placement. Lung issues also can occur, including a decrease in blood oxygen levels. Digestive issues can occur due to protein loss in the stool, which results in swelling and water retention. Some patients, despite doing well after surgeries, may need a heart or lung transplant later in life.
  • #27 Tricuspid Atresia Treatment & Management: Medical Care, Surgical Care, Diet and Activity
    https://emedicine.medscape.com/article/158359-treatment
    The following three considerations guide the treatment of infants with tricuspid atresia: […] The treatment of these children must be coordinated with a pediatric cardiac surgeon, pediatric cardiologist, neonatologist, and pediatric pulmonologist/intensivist. […] Routinely initiate prophylaxis against bacterial endocarditis when any invasive or dental procedure is contemplated. […] Promptly treat infants with severe hypoxemia with prostaglandin E infusions in order to maintain patency of the ductus arteriosus and improve pulmonary blood flow. […] The intelligent application of palliative procedures to control the amount of pulmonary blood flow in this lesion improves the survival of infants with tricuspid atresia. […] Most patients with tricuspid atresia require some form of surgical treatment during the first year of life.
  • #28 Tricuspid Atresia (TA) | Valley Children’s Healthcare
    https://www.valleychildrens.org/heart/conditions/tricuspid-atresia
    Your child will most likely be in the intensive care unit (ICU). Early medical treatment may include: […] Before your child comes home, the nursing staff will explain medicines and treatments. For instance, your child may need special formula and supplemental feedings to help them grow. The staff will also help to arrange home healthcare, if needed. You may get other instructions from your child’s heart care team and the hospital staff. […] Your child will need to be seen often by a pediatric cardiologist. The cardiologist may advise: […] Regular follow-up care at a center offering pediatric or adult congenital cardiac care should continue throughout life. […] Call your child’s healthcare provider if your child’s normal symptoms become worse or if new symptoms appear.
  • #29 Tricuspid Atresia Treatment & Management: Medical Care, Surgical Care, Diet and Activity
    https://emedicine.medscape.com/article/158359-treatment
    Inpatient care after the Fontan procedure requires careful monitoring of pulmonary vascular resistance, heart rhythm, and fluid status. […] Because of the volume overload present in these children and the use of diuretics, a low-sodium diet should be prescribed. […] For patients who have undergone a palliative procedure, arrange careful follow-up to monitor pulmonary blood flow. […] For patients who have had the Fontan procedure, maintain follow-up care to ensure a stable cardiac rhythm.
  • #30 Tricuspid Atresia Treatment & Management: Medical Care, Surgical Care, Diet and Activity
    https://emedicine.medscape.com/article/158359-treatment
    Inpatient care after the Fontan procedure requires careful monitoring of pulmonary vascular resistance, heart rhythm, and fluid status. […] Because of the volume overload present in these children and the use of diuretics, a low-sodium diet should be prescribed. […] For patients who have undergone a palliative procedure, arrange careful follow-up to monitor pulmonary blood flow. […] For patients who have had the Fontan procedure, maintain follow-up care to ensure a stable cardiac rhythm.
  • #31 Tricuspid Atresia: Symptoms, Treatment & Prognosis
    https://my.clevelandclinic.org/health/diseases/14789-tricuspid-atresia
    Treatment for tricuspid atresia includes medicine and surgery, but they aren’t cures. Healthcare providers give your baby medicine first. They usually perform surgery shortly after a baby’s birth. Your baby will then have more procedures later. […] Recovery time after surgery for tricuspid valve atresia varies by procedure. Your child will likely be in the hospital for a week or two after a complex procedure. They’ll start out in an intensive care unit and then be in a regular hospital room for the rest of their stay. […] With tricuspid atresia, your child will need regular visits with a heart expert (cardiologist) throughout their life. How often they have office visits depends on their age and treatment stage. Regular checkups help your child’s provider catch any complications that may be developing. After your child has a Fontan procedure, they’ll see their cardiologist at least once a year. […] If your child is having trouble breathing or eating, contact their provider. […] A healthcare provider may recommend home monitoring to improve outcomes for your child. They’ll instruct you on checking your baby’s weight and oxygen level, tracking their feedings and giving them medicine.
  • #32 Tricuspid atresia. Surgical treatment, pediatric nursing care – PubMed
    https://pubmed.ncbi.nlm.nih.gov/2288582/
    Tricuspid atresia is one of the least common congenital heart defects representing less than 3% of all reported cases. […] Surgical repair for children with tricuspid atresia involves palliative surgery in infancy followed by corrective surgery when the child is three to four years of age. […] Children undergoing corrective surgery for tricuspid atresia require diversified nursing care. Nurses from the cardiovascular unit, the operating room, and the pediatric intensive care unit work interdependently to facilitate the transition of the child and family through the various stages of the hospitalization. […] As a result of a collaborative and comprehensive nursing approach, these children and families may have a more positive experience.
  • #33 Tricuspid Atresia
    https://scts.org/patients/congenital/procedures/37/tricuspid_atresia/
    Tricuspid atresia is treated with multiple surgeries. […] Treatment involves surgery to ensure adequate blood flow through the heart and into the lungs. […] Often, this requires more than one surgery. Medications to strengthen the heart muscle, lower blood pressure and rid the baby’s body of excess fluid and supplemental oxygen to help the baby breathe also might be given before surgery. […] To monitor heart health, you or your child will need lifelong follow-up care with a cardiologist who specializes in congenital heart disease. […] Your or your child’s cardiologist will tell you whether you or your child needs to take preventive antibiotics before dental and other procedures. […] Here are some tips for caring for your child with tricuspid atresia: Strive for good nutrition. Your baby might not be getting enough calories because of tiring during feeding and an increased need for calories. It’s often helpful to give your baby frequent, small feedings.
  • #34 About Tricuspid Atresia | Congenital Heart Defects (CHDs) | CDC
    https://www.cdc.gov/heart-defects/about/tricuspid-atresia.html
    Babies born with tricuspid atresia will show symptoms at birth or very soon afterwards. […] Some babies and children will need medicines to help: […] Some babies with tricuspid atresia become tired while feeding and do not eat enough to gain weight. To make sure babies have a healthy weight gain, a special high-calorie formula might be prescribed. […] Surgical treatment for tricuspid atresia depends on its severity and presence of other heart defects. Soon after birth, one or more surgeries may be needed. The surgeries will help increase blood flow to the lungs and bypass the poorly functioning right side of the heart. […] Babies born with tricuspid atresia will need regular follow-up visits with a cardiologist (a heart doctor). These visits can help monitor their progress and check for other health conditions that might develop as they get older.
  • #35 About Tricuspid Atresia | Congenital Heart Defects (CHDs) | CDC
    https://www.cdc.gov/heart-defects/about/tricuspid-atresia.html
    Babies born with tricuspid atresia will show symptoms at birth or very soon afterwards. […] Some babies and children will need medicines to help: […] Some babies with tricuspid atresia become tired while feeding and do not eat enough to gain weight. To make sure babies have a healthy weight gain, a special high-calorie formula might be prescribed. […] Surgical treatment for tricuspid atresia depends on its severity and presence of other heart defects. Soon after birth, one or more surgeries may be needed. The surgeries will help increase blood flow to the lungs and bypass the poorly functioning right side of the heart. […] Babies born with tricuspid atresia will need regular follow-up visits with a cardiologist (a heart doctor). These visits can help monitor their progress and check for other health conditions that might develop as they get older.
  • #36 Tricuspid Atresia
    https://scts.org/patients/congenital/procedures/37/tricuspid_atresia/
    Tricuspid atresia is treated with multiple surgeries. […] Treatment involves surgery to ensure adequate blood flow through the heart and into the lungs. […] Often, this requires more than one surgery. Medications to strengthen the heart muscle, lower blood pressure and rid the baby’s body of excess fluid and supplemental oxygen to help the baby breathe also might be given before surgery. […] To monitor heart health, you or your child will need lifelong follow-up care with a cardiologist who specializes in congenital heart disease. […] Your or your child’s cardiologist will tell you whether you or your child needs to take preventive antibiotics before dental and other procedures. […] Here are some tips for caring for your child with tricuspid atresia: Strive for good nutrition. Your baby might not be getting enough calories because of tiring during feeding and an increased need for calories. It’s often helpful to give your baby frequent, small feedings.
  • #37 Tricuspid Atresia | Heart Defects | NCBDDD | CDC
    http://med.iiab.me/modules/en-cdc/www.cdc.gov/ncbddd/heartdefects/tricuspid-atresia.html
    Some babies and children will need medicines to help strengthen the heart muscle, lower their blood pressure, and help the body get rid of extra fluid. […] Some babies with tricuspid atresia become tired while feeding and do not eat enough to gain weight. To make sure babies have a healthy weight gain, a special high-calorie formula might be prescribed. Some babies become extremely tired while feeding and might need to be fed through a feeding tube. […] Surgical treatment for tricuspid atresia depends on its severity and presence of other heart defects. Soon after a baby with tricuspid atresia is born, one or more surgeries may be needed to increase blood flow to the lungs and bypass the poorly functioning right side of the heart. Other surgeries or procedures may be needed later. These surgeries, described below, do not cure tricuspid atresia, but they help restore heart function. Sometimes medicines are given to help treat symptoms of the defect before or after surgery. […] Babies born with tricuspid atresia will need regular follow-up visits with a cardiologist (a heart doctor) to monitor their progress and check for other health conditions that might develop as they get older. As adults, they may need more surgery or medical care for other possible problems.
  • #38 Tricuspid Atresia Treatment & Management: Medical Care, Surgical Care, Diet and Activity
    https://emedicine.medscape.com/article/158359-treatment
    Inpatient care after the Fontan procedure requires careful monitoring of pulmonary vascular resistance, heart rhythm, and fluid status. […] Because of the volume overload present in these children and the use of diuretics, a low-sodium diet should be prescribed. […] For patients who have undergone a palliative procedure, arrange careful follow-up to monitor pulmonary blood flow. […] For patients who have had the Fontan procedure, maintain follow-up care to ensure a stable cardiac rhythm.
  • #39 Tricuspid Atresia
    https://healthlibrary.somc.org/Library/News/90,P01819
    Your child may need a series of repair procedures. […] Before your child comes home, the nursing staff will explain medicines and treatments. For instance, your child may need special formula and supplemental feedings to help them grow. The staff will also help to arrange home healthcare, if needed. You may get other instructions from your child’s heart care team and the hospital staff. […] Your child will need to be seen often by a pediatric cardiologist. The cardiologist may advise: […] Regular follow-up care at a center offering pediatric or adult congenital cardiac care should continue throughout life. […] Call your child’s healthcare provider if your child’s normal symptoms become worse or if new symptoms appear. […] Your child will stay in the intensive care unit (ICU). […] Your child will need medicines and a series of surgeries to allow oxygen-rich (red) blood to be pumped to the body. […] Your child will need to be followed by a specialist in congenital heart conditions throughout their life.
  • #40 Tricuspid Atresia – Stanford Medicine Children’s Health
    https://www.stanfordchildrens.org/en/topic/default?id=tricuspid-atresia-90-P01819
    Your child will most likely be in the intensive care unit (ICU). Early medical treatment may include: […] Before your child comes home, the nursing staff will explain medicines and treatments. For example, your child may need special formula and supplemental feedings to help him or her grow. The staff will also help to arrange home healthcare, if needed. You may get other instructions from your child’s heart care team and the hospital staff. […] Regular follow-up care at a center offering pediatric or adult congenital cardiac care should continue throughout life.
  • #41 Tricuspid Atresia | Boston Children’s Hospital
    https://www.childrenshospital.org/conditions/tricuspid-atresia
    The Boston Children’s Hospital Department of Cardiac Surgery treats some of the most complex pediatric heart conditions in the world, such as tricuspid atresia, with survival rates exceeding 98 percent. […] We provide families with a wealth of information, resources, programs and support — before, during and after your child’s treatment. With our compassionate, family-centered approach to expert treatment and care, your family and your child are in the best possible hands. […] An infant with a single ventricle needs somewhat closer monitoring and support than one with two ventricles. Research shows the vital importance of a Home Monitoring Program, including daily at-home assessments of oxygen saturations and weight between the stage I (neonatal) and stage II (bi-directional Glenn) surgeries. We have a very experienced Home Monitoring Program to provide these special babies and their families the support that they need.
  • #42 Tricuspid Atresia – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK554495/
    Patients with tricuspid atresia necessitate consistent and lifelong monitoring by a cardiologist specialized in congenital heart disease, such as a pediatric cardiologist or adult congenital heart disease (ACHD) specialist. […] A comprehensive history and physical examination during follow-up visits are essential for monitoring these patients effectively. […] Upon discharge, patients with tricuspid atresia require a medical home and comprehensive care due to the complexity of their condition. […] Critical care and neonatal nurses, in particular, are instrumental in monitoring patients, documenting their status, and ensuring effective communication across the entire team.
  • #43 Tricuspid Atresia – Adult Congenital Heart Disease | UCLA Health
    https://www.uclahealth.org/medical-services/heart/achd/conditions-treatments/tricuspid-atresia
    Not every patient with tricuspid atresia is a candidate for further surgical intervention, and some children with this heart defect may grow up with continued cyanosis, requiring specialized long-term cardiology care for their cyanotic congenital heart disease. […] Patients with tricuspid atresia require lifelong follow up of their heart condition at a facility specializing in adult congenital heart disease (ACHD). In general, ongoing care consists of annual to semiannual examinations, testing such as EKG and echocardiograms and management of medications.
  • #44 Tricuspid atresia – Diagnosis & treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/tricuspid-atresia/diagnosis-treatment/drc-20368416
    After treatment, babies with tricuspid atresia need regular health checkups, ideally with a children’s doctor trained in congenital heart conditions. This care provider is called a pediatric congenital cardiologist. […] If your child has tricuspid atresia, lifestyle changes may be recommended to keep the heart healthy and prevent complications. […] Try these tips to help a baby or child with tricuspid atresia: Adjust feedings. A baby with tricuspid atresia might not be getting enough calories because of tiring during feeding and other factors. […] Ask about preventive antibiotics. Sometimes, a congenital heart defect can increase the risk of infection in the lining of the heart or heart valves. […] Stay active. Physical activity is important for heart health. […] Keep follow-up appointments with the care provider. Your child will need at least yearly appointments with a pediatric congenital cardiologist.
  • #45 Tricuspid Atresia: Symptoms, Treatment & Prognosis
    https://my.clevelandclinic.org/health/diseases/14789-tricuspid-atresia
    Treatment for tricuspid atresia includes medicine and surgery, but they aren’t cures. Healthcare providers give your baby medicine first. They usually perform surgery shortly after a baby’s birth. Your baby will then have more procedures later. […] Recovery time after surgery for tricuspid valve atresia varies by procedure. Your child will likely be in the hospital for a week or two after a complex procedure. They’ll start out in an intensive care unit and then be in a regular hospital room for the rest of their stay. […] With tricuspid atresia, your child will need regular visits with a heart expert (cardiologist) throughout their life. How often they have office visits depends on their age and treatment stage. Regular checkups help your child’s provider catch any complications that may be developing. After your child has a Fontan procedure, they’ll see their cardiologist at least once a year. […] If your child is having trouble breathing or eating, contact their provider. […] A healthcare provider may recommend home monitoring to improve outcomes for your child. They’ll instruct you on checking your baby’s weight and oxygen level, tracking their feedings and giving them medicine.
  • #46 Tricuspid Atresia: Symptoms, Treatment & Prognosis
    https://my.clevelandclinic.org/health/diseases/14789-tricuspid-atresia
    Treatment for tricuspid atresia includes medicine and surgery, but they aren’t cures. Healthcare providers give your baby medicine first. They usually perform surgery shortly after a baby’s birth. Your baby will then have more procedures later. […] Recovery time after surgery for tricuspid valve atresia varies by procedure. Your child will likely be in the hospital for a week or two after a complex procedure. They’ll start out in an intensive care unit and then be in a regular hospital room for the rest of their stay. […] With tricuspid atresia, your child will need regular visits with a heart expert (cardiologist) throughout their life. How often they have office visits depends on their age and treatment stage. Regular checkups help your child’s provider catch any complications that may be developing. After your child has a Fontan procedure, they’ll see their cardiologist at least once a year. […] If your child is having trouble breathing or eating, contact their provider. […] A healthcare provider may recommend home monitoring to improve outcomes for your child. They’ll instruct you on checking your baby’s weight and oxygen level, tracking their feedings and giving them medicine.
  • #47 Tricuspid Atresia – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK554495/
    Patients with tricuspid atresia necessitate consistent and lifelong monitoring by a cardiologist specialized in congenital heart disease, such as a pediatric cardiologist or adult congenital heart disease (ACHD) specialist. […] A comprehensive history and physical examination during follow-up visits are essential for monitoring these patients effectively. […] Upon discharge, patients with tricuspid atresia require a medical home and comprehensive care due to the complexity of their condition. […] Critical care and neonatal nurses, in particular, are instrumental in monitoring patients, documenting their status, and ensuring effective communication across the entire team.
  • #48 Tricuspid Atresia – Adult Congenital Heart Disease | UCLA Health
    https://www.uclahealth.org/medical-services/heart/achd/conditions-treatments/tricuspid-atresia
    Not every patient with tricuspid atresia is a candidate for further surgical intervention, and some children with this heart defect may grow up with continued cyanosis, requiring specialized long-term cardiology care for their cyanotic congenital heart disease. […] Patients with tricuspid atresia require lifelong follow up of their heart condition at a facility specializing in adult congenital heart disease (ACHD). In general, ongoing care consists of annual to semiannual examinations, testing such as EKG and echocardiograms and management of medications.
  • #49 Tricuspid Atresia
    http://library.oumedicine.com/MentalHealth/90,P01819
    Your child will most likely be in the intensive care unit (ICU). Early medical treatment may include: […] Before your child comes home, the nursing staff will explain medicines and treatments. For instance, your child may need special formula and supplemental feedings to help them grow. The staff will also help to arrange home healthcare, if needed. […] Your child will need to be seen often by a pediatric cardiologist. The cardiologist may advise: […] Regular follow-up care at a center offering pediatric or adult congenital cardiac care should continue throughout life. […] Call your child’s healthcare provider if your child’s normal symptoms become worse or if new symptoms appear.
  • #50 Tricuspid Atresia | Boston Children’s Hospital
    https://www.childrenshospital.org/conditions/tricuspid-atresia
    Surgical techniques for tricuspid atresia and its associated defects are continually being refined with long-term outcomes continually improving. Nevertheless, children with tricuspid atresia will need lifelong monitoring and medication, since they will always be at some risk for arrhythmias, infections, heart failure, or stroke. […] Your cardiologist will help you create a long-term care program as your baby grows into childhood, the teen years and even adulthood. Most people who’ve had congenital heart disease repair will have an ongoing relationship with their cardiologist. We’ll help prevent and treat complications and will advise on daily-life issues, such as activity levels, nutrition, and precautions related to pregnancy.
  • #51 Tricuspid Atresia
    https://scts.org/patients/congenital/procedures/37/tricuspid_atresia/
    Preventive antibiotics. Your or your child’s cardiologist will likely recommend preventive antibiotics be taken before certain dental and other procedures to prevent bacteria from infecting the inner lining of the heart (infective endocarditis). […] Keep up with routine medical and child care. Standard immunizations are encouraged for children with congenital heart defects, as well as vaccines against the flu, pneumonia and respiratory syncytial virus infections. Your child should take all medications as prescribed. […] If you’re an adult with tricuspid atresia, you need to be seen regularly throughout your life by a doctor trained in adult congenital heart conditions. […] Women with tricuspid atresia who are considering pregnancy should talk to a doctor who specializes in adult congenital heart diseases as well as a maternal-fetal medicine specialist. […] Caring for a baby with a serious heart problem such as tricuspid atresia can be challenging. Here are some strategies that might help: Try to maintain normalcy and closeness. Maintaining a regular daily routine will help both you and your child.
  • #52 Tricuspid Atresia Treatment & Management: Medical Care, Surgical Care, Diet and Activity
    https://emedicine.medscape.com/article/158359-treatment
    The following three considerations guide the treatment of infants with tricuspid atresia: […] The treatment of these children must be coordinated with a pediatric cardiac surgeon, pediatric cardiologist, neonatologist, and pediatric pulmonologist/intensivist. […] Routinely initiate prophylaxis against bacterial endocarditis when any invasive or dental procedure is contemplated. […] Promptly treat infants with severe hypoxemia with prostaglandin E infusions in order to maintain patency of the ductus arteriosus and improve pulmonary blood flow. […] The intelligent application of palliative procedures to control the amount of pulmonary blood flow in this lesion improves the survival of infants with tricuspid atresia. […] Most patients with tricuspid atresia require some form of surgical treatment during the first year of life.
  • #53 Tricuspid Atresia
    https://scts.org/patients/congenital/procedures/37/tricuspid_atresia/
    Preventive antibiotics. Your or your child’s cardiologist will likely recommend preventive antibiotics be taken before certain dental and other procedures to prevent bacteria from infecting the inner lining of the heart (infective endocarditis). […] Keep up with routine medical and child care. Standard immunizations are encouraged for children with congenital heart defects, as well as vaccines against the flu, pneumonia and respiratory syncytial virus infections. Your child should take all medications as prescribed. […] If you’re an adult with tricuspid atresia, you need to be seen regularly throughout your life by a doctor trained in adult congenital heart conditions. […] Women with tricuspid atresia who are considering pregnancy should talk to a doctor who specializes in adult congenital heart diseases as well as a maternal-fetal medicine specialist. […] Caring for a baby with a serious heart problem such as tricuspid atresia can be challenging. Here are some strategies that might help: Try to maintain normalcy and closeness. Maintaining a regular daily routine will help both you and your child.
  • #54 Tricuspid Atresia Repair | Norton Children’s
    https://nortonchildrens.com/services/cardiology/conditions/treatments/surgical/tricuspid-atresia-repair/
    The results for the three-stage tricuspid atresia repair surgeries are generally good. Expected survival rates for children who complete all three stages of surgery are 75% to 95%, depending on the factors unique to each child and the care they receive. […] Long-term quality of life following the Fontan operation is usually good. Currently, the oldest patients who have had this procedure are age 30 and older. However, complications can occur, including heart rhythm issues that require medication or pacemaker placement. Lung issues also can occur, including a decrease in blood oxygen levels. Digestive issues can occur due to protein loss in the stool, which results in swelling and water retention. Some patients, despite doing well after surgeries, may need a heart or lung transplant later in life.
  • #55 Tricuspid Atresia Repair | Norton Children’s
    https://nortonchildrens.com/services/cardiology/conditions/treatments/surgical/tricuspid-atresia-repair/
    The results for the three-stage tricuspid atresia repair surgeries are generally good. Expected survival rates for children who complete all three stages of surgery are 75% to 95%, depending on the factors unique to each child and the care they receive. […] Long-term quality of life following the Fontan operation is usually good. Currently, the oldest patients who have had this procedure are age 30 and older. However, complications can occur, including heart rhythm issues that require medication or pacemaker placement. Lung issues also can occur, including a decrease in blood oxygen levels. Digestive issues can occur due to protein loss in the stool, which results in swelling and water retention. Some patients, despite doing well after surgeries, may need a heart or lung transplant later in life.
  • #56 Tricuspid Atresia Repair | Norton Children’s
    https://nortonchildrens.com/services/cardiology/conditions/treatments/surgical/tricuspid-atresia-repair/
    The results for the three-stage tricuspid atresia repair surgeries are generally good. Expected survival rates for children who complete all three stages of surgery are 75% to 95%, depending on the factors unique to each child and the care they receive. […] Long-term quality of life following the Fontan operation is usually good. Currently, the oldest patients who have had this procedure are age 30 and older. However, complications can occur, including heart rhythm issues that require medication or pacemaker placement. Lung issues also can occur, including a decrease in blood oxygen levels. Digestive issues can occur due to protein loss in the stool, which results in swelling and water retention. Some patients, despite doing well after surgeries, may need a heart or lung transplant later in life.
  • #57 Tricuspid atresia | Beacon Health System
    https://www.beaconhealthsystem.org/library/diseases-and-conditions/tricuspid-atresia?content_id=CON-20316967
    Tricuspid atresia is treated with multiple surgeries. Most babies with tricuspid atresia who have surgery live well into adulthood, though follow-up surgeries are often needed. […] If your child has tricuspid atresia, several surgeries are often done to improve blood flow through the heart and to the lungs. Medications are used to manage symptoms. […] A baby with tricuspid atresia often needs several heart surgeries or procedures. Some of them are temporary fixes to quickly improve blood flow before a more permanent procedure can be done. […] After treatment, babies with tricuspid atresia need regular health checkups, ideally with a children’s doctor trained in congenital heart conditions. This care provider is called a pediatric congenital cardiologist. […] If your child has tricuspid atresia, lifestyle changes may be recommended to keep the heart healthy and prevent complications.
  • #58 Tricuspid atresia | Beacon Health System
    https://www.beaconhealthsystem.org/library/diseases-and-conditions/tricuspid-atresia?content_id=CON-20316967
    Try these tips to help a baby or child with tricuspid atresia: Adjust feedings. A baby with tricuspid atresia might not be getting enough calories because of tiring during feeding and other factors. […] Ask about preventive antibiotics. Sometimes, a congenital heart defect can increase the risk of infection in the lining of the heart or heart valves. […] Stay active. Physical activity is important for heart health. […] Keep follow-up appointments with the care provider. Your child will need at least yearly appointments with a pediatric congenital cardiologist.
  • #59 Tricuspid Atresia Treatment & Management: Medical Care, Surgical Care, Diet and Activity
    https://emedicine.medscape.com/article/158359-treatment
    Inpatient care after the Fontan procedure requires careful monitoring of pulmonary vascular resistance, heart rhythm, and fluid status. […] Because of the volume overload present in these children and the use of diuretics, a low-sodium diet should be prescribed. […] For patients who have undergone a palliative procedure, arrange careful follow-up to monitor pulmonary blood flow. […] For patients who have had the Fontan procedure, maintain follow-up care to ensure a stable cardiac rhythm.
  • #60 Tricuspid Atresia
    https://scts.org/patients/congenital/procedures/37/tricuspid_atresia/
    Preventive antibiotics. Your or your child’s cardiologist will likely recommend preventive antibiotics be taken before certain dental and other procedures to prevent bacteria from infecting the inner lining of the heart (infective endocarditis). […] Keep up with routine medical and child care. Standard immunizations are encouraged for children with congenital heart defects, as well as vaccines against the flu, pneumonia and respiratory syncytial virus infections. Your child should take all medications as prescribed. […] If you’re an adult with tricuspid atresia, you need to be seen regularly throughout your life by a doctor trained in adult congenital heart conditions. […] Women with tricuspid atresia who are considering pregnancy should talk to a doctor who specializes in adult congenital heart diseases as well as a maternal-fetal medicine specialist. […] Caring for a baby with a serious heart problem such as tricuspid atresia can be challenging. Here are some strategies that might help: Try to maintain normalcy and closeness. Maintaining a regular daily routine will help both you and your child.
  • #61 Tricuspid Atresia
    https://scts.org/patients/congenital/procedures/37/tricuspid_atresia/
    Preventive antibiotics. Your or your child’s cardiologist will likely recommend preventive antibiotics be taken before certain dental and other procedures to prevent bacteria from infecting the inner lining of the heart (infective endocarditis). […] Keep up with routine medical and child care. Standard immunizations are encouraged for children with congenital heart defects, as well as vaccines against the flu, pneumonia and respiratory syncytial virus infections. Your child should take all medications as prescribed. […] If you’re an adult with tricuspid atresia, you need to be seen regularly throughout your life by a doctor trained in adult congenital heart conditions. […] Women with tricuspid atresia who are considering pregnancy should talk to a doctor who specializes in adult congenital heart diseases as well as a maternal-fetal medicine specialist. […] Caring for a baby with a serious heart problem such as tricuspid atresia can be challenging. Here are some strategies that might help: Try to maintain normalcy and closeness. Maintaining a regular daily routine will help both you and your child.
  • #62 Tricuspid atresia – Diagnosis & treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/tricuspid-atresia/diagnosis-treatment/drc-20368416
    If you have tricuspid atresia and are pregnant or hoping to be, consider talking to an adult congenital heart disease specialist and a maternal-fetal medicine specialist. […] Living with a congenital heart defect can make some children feel stressed or anxious. Talking to a therapist or counselor may help you and your child learn new ways to manage stress and anxiety.
  • #63 Tricuspid atresia – Diagnosis & treatment – Mayo Clinic
    https://www.mayoclinic.org/diseases-conditions/tricuspid-atresia/diagnosis-treatment/drc-20368416
    If you have tricuspid atresia and are pregnant or hoping to be, consider talking to an adult congenital heart disease specialist and a maternal-fetal medicine specialist. […] Living with a congenital heart defect can make some children feel stressed or anxious. Talking to a therapist or counselor may help you and your child learn new ways to manage stress and anxiety.
  • #64 Tricuspid Atresia
    https://scts.org/patients/congenital/procedures/37/tricuspid_atresia/
    Preventive antibiotics. Your or your child’s cardiologist will likely recommend preventive antibiotics be taken before certain dental and other procedures to prevent bacteria from infecting the inner lining of the heart (infective endocarditis). […] Keep up with routine medical and child care. Standard immunizations are encouraged for children with congenital heart defects, as well as vaccines against the flu, pneumonia and respiratory syncytial virus infections. Your child should take all medications as prescribed. […] If you’re an adult with tricuspid atresia, you need to be seen regularly throughout your life by a doctor trained in adult congenital heart conditions. […] Women with tricuspid atresia who are considering pregnancy should talk to a doctor who specializes in adult congenital heart diseases as well as a maternal-fetal medicine specialist. […] Caring for a baby with a serious heart problem such as tricuspid atresia can be challenging. Here are some strategies that might help: Try to maintain normalcy and closeness. Maintaining a regular daily routine will help both you and your child.
  • #65 Tricuspid Atresia – StatPearls – NCBI Bookshelf
    https://www.ncbi.nlm.nih.gov/books/NBK554495/
    Patients with tricuspid atresia necessitate consistent and lifelong monitoring by a cardiologist specialized in congenital heart disease, such as a pediatric cardiologist or adult congenital heart disease (ACHD) specialist. […] A comprehensive history and physical examination during follow-up visits are essential for monitoring these patients effectively. […] Upon discharge, patients with tricuspid atresia require a medical home and comprehensive care due to the complexity of their condition. […] Critical care and neonatal nurses, in particular, are instrumental in monitoring patients, documenting their status, and ensuring effective communication across the entire team.
  • #66 Tricuspid atresia. Surgical treatment, pediatric nursing care – PubMed
    https://pubmed.ncbi.nlm.nih.gov/2288582/
    Tricuspid atresia is one of the least common congenital heart defects representing less than 3% of all reported cases. […] Surgical repair for children with tricuspid atresia involves palliative surgery in infancy followed by corrective surgery when the child is three to four years of age. […] Children undergoing corrective surgery for tricuspid atresia require diversified nursing care. Nurses from the cardiovascular unit, the operating room, and the pediatric intensive care unit work interdependently to facilitate the transition of the child and family through the various stages of the hospitalization. […] As a result of a collaborative and comprehensive nursing approach, these children and families may have a more positive experience.
  • #67 CE Activity | Tricuspid Atresia | Nurses
    https://www.statpearls.com/nurse/ce/activity/104522/?specialtyUrlPath=Nurse%20-%20Inpatient%20Obstetric%20RNC-OB
    Tricuspid atresia is a congenital heart defect that results in cyanosis due to the absence of communication between the right atrium and ventricle caused by the complete agenesis of the tricuspid valve. This condition has several subtypes with varied clinical presentations determined by the extent of pulmonary blood flow. […] Given the potential for long-term complications, intensive care serves as the primary setting for managing tricuspid atresia, followed by ongoing monitoring to ensure a sustained high quality of life for affected individuals. This activity describes the etiology, pathophysiology, diagnosis, complications, and management of tricuspid atresia. This activity equips healthcare professionals with updated knowledge and skills for effective diagnosis, treatment, and overall management of this congenital heart condition, leading to improved patient care and outcomes. […] Coordinate care plans and interventions for patients with tricuspid atresia, emphasizing a patient-centered approach and continuous follow-up.
  • #68 Tricuspid atresia. Surgical treatment, pediatric nursing care – PubMed
    https://pubmed.ncbi.nlm.nih.gov/2288582/
    Tricuspid atresia is one of the least common congenital heart defects representing less than 3% of all reported cases. […] Surgical repair for children with tricuspid atresia involves palliative surgery in infancy followed by corrective surgery when the child is three to four years of age. […] Children undergoing corrective surgery for tricuspid atresia require diversified nursing care. Nurses from the cardiovascular unit, the operating room, and the pediatric intensive care unit work interdependently to facilitate the transition of the child and family through the various stages of the hospitalization. […] As a result of a collaborative and comprehensive nursing approach, these children and families may have a more positive experience.
  • #69 Tricuspid Atresia
    http://library.oumedicine.com/MentalHealth/90,P01819
    Your child will most likely be in the intensive care unit (ICU). Early medical treatment may include: […] Before your child comes home, the nursing staff will explain medicines and treatments. For instance, your child may need special formula and supplemental feedings to help them grow. The staff will also help to arrange home healthcare, if needed. […] Your child will need to be seen often by a pediatric cardiologist. The cardiologist may advise: […] Regular follow-up care at a center offering pediatric or adult congenital cardiac care should continue throughout life. […] Call your child’s healthcare provider if your child’s normal symptoms become worse or if new symptoms appear.
  • #70 Tricuspid Atresia – UF Health
    https://ufhealth.org/conditions-and-treatments/tricuspid-atresia
    Once the diagnosis is made, the baby will often be admitted to the neonatal intensive care unit (NICU). A medicine called prostaglandin E1 may be used to keep the ductus arteriosis open (patent) so that blood can circulate to the lungs. […] Generally, patients with this condition require surgery. If the heart is unable to pump enough blood out to the lungs and rest of the body, the first surgery most often takes place within the first few days of life. In this procedure, an artificial shunt is inserted to keep blood flowing to the lungs. In some cases, this first surgery is not needed. […] Afterward, the baby goes home in most cases. The child will need to take one or more daily medicines and be closely followed by a pediatric cardiologist. This doctor will decide when the second stage of surgery should be done. […] During stage I and II, the child may still look blue (cyanotic). […] In most cases, surgery will improve the condition. […] Contact your health care provider right away if your infant has: New changes in breathing patterns, Problems eating, Skin that is turning blue.
  • #71 Tricuspid atresia | Altru Health System
    https://www.altru.org/health-library/conditions/tricuspid-atresia
    Tricuspid atresia is treated with multiple surgeries. Most babies with tricuspid atresia who have surgery live well into adulthood, though follow-up surgeries are often needed. […] If your child has tricuspid atresia, several surgeries are often done to improve blood flow through the heart and to the lungs. Medications are used to manage symptoms. […] A baby with tricuspid atresia often needs several heart surgeries or procedures. Some of them are temporary fixes to quickly improve blood flow before a more permanent procedure can be done. […] After treatment, babies with tricuspid atresia need regular health checkups, ideally with a children’s doctor trained in congenital heart conditions. This care provider is called a pediatric congenital cardiologist. […] If your child has tricuspid atresia, lifestyle changes may be recommended to keep the heart healthy and prevent complications.
  • #72 Tricuspid Atresia Repair | Norton Children’s
    https://nortonchildrens.com/services/cardiology/conditions/treatments/surgical/tricuspid-atresia-repair/
    The results for the three-stage tricuspid atresia repair surgeries are generally good. Expected survival rates for children who complete all three stages of surgery are 75% to 95%, depending on the factors unique to each child and the care they receive. […] Long-term quality of life following the Fontan operation is usually good. Currently, the oldest patients who have had this procedure are age 30 and older. However, complications can occur, including heart rhythm issues that require medication or pacemaker placement. Lung issues also can occur, including a decrease in blood oxygen levels. Digestive issues can occur due to protein loss in the stool, which results in swelling and water retention. Some patients, despite doing well after surgeries, may need a heart or lung transplant later in life.
  • #73 Tricuspid Atresia > Fact Sheets > Yale Medicine
    https://www.yalemedicine.org/conditions/tricuspid-atresia
    A newborn may first be given prostaglandin E1, a medication that helps the ductus arteriosus remain open, to help the babys blood reach the lungs to pick up oxygen. […] If there is obstruction, then the baby will need intervention/surgery in the first few weeks to establish blood flow to the lungs. […] There are three stages of surgical/catheter based procedures needed for tricuspid atresia: […] If tricuspid atresia is left untreated, patients usually die within the first year of life. But patients with tricuspid atresia who undergo all three surgical procedures experience improvement in their symptoms. Their skin stops appearing bluish because oxygen-rich blood is able to circulate throughout the body, their appetite increases, and they regain energy. People who undergo a Fontan procedure, for example, are projected to have a 30-year survival rate of 85%. […] Patients with tricuspid atresia should be monitored by a cardiologist for the rest of their lives due to the risk of complications associated with their condition.
  • #74 Tricuspid Atresia Repair | Norton Children’s
    https://nortonchildrens.com/services/cardiology/conditions/treatments/surgical/tricuspid-atresia-repair/
    The results for the three-stage tricuspid atresia repair surgeries are generally good. Expected survival rates for children who complete all three stages of surgery are 75% to 95%, depending on the factors unique to each child and the care they receive. […] Long-term quality of life following the Fontan operation is usually good. Currently, the oldest patients who have had this procedure are age 30 and older. However, complications can occur, including heart rhythm issues that require medication or pacemaker placement. Lung issues also can occur, including a decrease in blood oxygen levels. Digestive issues can occur due to protein loss in the stool, which results in swelling and water retention. Some patients, despite doing well after surgeries, may need a heart or lung transplant later in life.
  • #75 Tricuspid Atresia Treatment & Management: Medical Care, Surgical Care, Diet and Activity
    https://emedicine.medscape.com/article/158359-treatment
    Inpatient care after the Fontan procedure requires careful monitoring of pulmonary vascular resistance, heart rhythm, and fluid status. […] Because of the volume overload present in these children and the use of diuretics, a low-sodium diet should be prescribed. […] For patients who have undergone a palliative procedure, arrange careful follow-up to monitor pulmonary blood flow. […] For patients who have had the Fontan procedure, maintain follow-up care to ensure a stable cardiac rhythm.
  • #76 Tricuspid Atresia
    http://library.oumedicine.com/MentalHealth/90,P01819
    Your child will most likely be in the intensive care unit (ICU). Early medical treatment may include: […] Before your child comes home, the nursing staff will explain medicines and treatments. For instance, your child may need special formula and supplemental feedings to help them grow. The staff will also help to arrange home healthcare, if needed. […] Your child will need to be seen often by a pediatric cardiologist. The cardiologist may advise: […] Regular follow-up care at a center offering pediatric or adult congenital cardiac care should continue throughout life. […] Call your child’s healthcare provider if your child’s normal symptoms become worse or if new symptoms appear.