Materiały źródłowe

• #1 How to communicate with people who are deafblind – Community Care

  https://www.communitycare.co.uk/?p=204105

  This article presents practice tips from Community Care Inform Adults’ guide on working with adults who are deafblind. The full guide gives an awareness and understanding of the complexities of deafblindness, and the social care law and policy that relates to deafblind people. It also provides guidance on the areas to pay particular attention to during an assessment. […] Deafblindness is not simply hearing impairment and visual impairment added together. It is synergistic, in that one impairment multiplies the effect of the other, giving rise to a unique disability. It is this compounding effect that causes difficulties for people even though, taken separately, visual and hearing impairments may be relatively mild. […] Deafblindness affects people of all ages but is most prevalent in older adults because of the impact of ageing on sight and hearing.

• #2

  https://nordicwelfare.org/en/nyheter/new-update-of-landmark-definition-on-deafblindness/

  Deafblindness is a combined vision and hearing impairment of such severity that it is hard for the impaired senses to compensate for each other. Thus, deafblindness is a distinct disability. […] This perspective is gradually gaining traction internationally, and were seeing increasing recognition of deafblindness as a unique disability requiring specialised approaches in support. […] Experience shows that if adequate support is not given to people with deafblindness, there is a high risk that the individual will develop both physical and mental health problems. […] By providing this definition in all Nordic languages, we ensure that professionals, families, and individuals across our region have equal access to this crucial framework. […] The importance of specialized support services.

• #3 Deafblindness – Sense

  https://www.sense.org.uk/information-and-advice/conditions/deafblindness/

  Deafblindness is a disability in its own right. […] It means you have sight and hearing loss that affects your everyday life. Access to information, communicating with people and getting about on your own can be much more difficult. […] Being deafblind doesnt necessarily mean you are totally deaf and/or totally blind. Most people who are deafblind have some sight and some hearing. […] Even with mild sight and hearing loss, youll still experience challenges because of how having both sight loss and hearing loss affects you. […] Deafblindness affects people of all ages, including children and young people. […] It is more common in older people, because our sight and hearing naturally worsen as we get older. […] There are more than 450,000 people who are deafblind in the UK. Its thought there will be more than 610,000 by 2035 due to our ageing population.

• #4 Deafblindness – Sense

  https://www.sense.org.uk/information-and-advice/conditions/deafblindness/

  Deafblindness is a disability in its own right. […] It means you have sight and hearing loss that affects your everyday life. Access to information, communicating with people and getting about on your own can be much more difficult. […] Being deafblind doesnt necessarily mean you are totally deaf and/or totally blind. Most people who are deafblind have some sight and some hearing. […] Even with mild sight and hearing loss, youll still experience challenges because of how having both sight loss and hearing loss affects you. […] Deafblindness affects people of all ages, including children and young people. […] It is more common in older people, because our sight and hearing naturally worsen as we get older. […] There are more than 450,000 people who are deafblind in the UK. Its thought there will be more than 610,000 by 2035 due to our ageing population.

• #5 Deafblindness – Sense

  https://www.sense.org.uk/information-and-advice/conditions/deafblindness/

  Deafblindness is a disability in its own right. […] It means you have sight and hearing loss that affects your everyday life. Access to information, communicating with people and getting about on your own can be much more difficult. […] Being deafblind doesnt necessarily mean you are totally deaf and/or totally blind. Most people who are deafblind have some sight and some hearing. […] Even with mild sight and hearing loss, youll still experience challenges because of how having both sight loss and hearing loss affects you. […] Deafblindness affects people of all ages, including children and young people. […] It is more common in older people, because our sight and hearing naturally worsen as we get older. […] There are more than 450,000 people who are deafblind in the UK. Its thought there will be more than 610,000 by 2035 due to our ageing population.

• #6 Deafblindness and health advocacy

  https://www.myamericannurse.com/deafblindness-and-health-advocacy/

  Patients with deafblindness have needs beyond the basic knowledge provided in most nursing schools regarding hearing and visual impairment. […] These patients require specialized and personalized services that are more complex than those designed solely for deaf or blind people. […] Patients with moderate-to-severe visual and hearing impairments (deafblindness) need their nurses to understand their needs and provide safe care. […] Skilton and colleagues describe those with deafblindness as a hard-to-reach audience faced with communication barriers, limited budgets, lack of training in healthcare accessibility, and sensory impairment self-awareness. […] Medical appointments and healthcare encounters can be confusing for many people with deafblindness. […] They require specialized and personalized services that are more complex than those designed solely for deaf or blind people.

• #7 4 Ways Healthcare Providers Can Effectively Treat Deafblind Patients

  https://www.hhmglobal.com/knowledge-bank/news/4-ways-healthcare-providers-can-effectively-treat-deafblind-patients

  Deafblindness poses a big challenge not just to patients, but also to the people around them. Because of hearing and vision loss or restrictions, deafblind patients tend to be less mobile and more dependent on others. These situations may even lead to sufferers lacking of confidence and having low self-esteem. When these happen, deafblind individuals are likely to be left alone and be less independent. […] Fortunately, there are healthcare services that could help patients and their families overcome the difficulties they meet. With the advancements in studies on deafblindness, appropriate techniques have been designed. If you have a deafblind family member who may need professional help, here’s an article about the different ways healthcare providers can best take care of them: […] Deafblind healthcare providers offer activities that could improve the patients sensory functions for them to be more independent. For this purpose, they design deafblind-friendly facilities for in-house activities. These activities are based on the patients initial and mid-assessments. In some cases, the provider suggests using a guide dog or a long cane to help in the training.

• #8 Deafblindness and health advocacy

  https://www.myamericannurse.com/deafblindness-and-health-advocacy/

  Many people with deafblindness have behavioral challenges, such as difficulty with impulse control, anxiety, attention to a task, and risk for elopement. […] Communication methods may differ depending on whether the patient acquired deafblindness congenitally or later in life. […] Older patients may have assistive devices for communication or established techniques. […] Use checkpoints throughout the healthcare encounter to assess the patients comfort level and understanding. […] Research state and national deafblind outreach projects, including the Helen Keller National Center for Deaf-Blind Youth and Adults, the American Association of the Deaf-Blind, and the National Family Association for Deaf-Blind. […] Without appropriate communication, environmental safety, and behavioral de-escalation assistance, healthcare encounters can cause traumatic experiences for this patient population.

• #9 4 Ways Healthcare Providers Can Effectively Treat Deafblind Patients

  https://www.hhmglobal.com/knowledge-bank/news/4-ways-healthcare-providers-can-effectively-treat-deafblind-patients

  Deafblindness poses a big challenge not just to patients, but also to the people around them. Because of hearing and vision loss or restrictions, deafblind patients tend to be less mobile and more dependent on others. These situations may even lead to sufferers lacking of confidence and having low self-esteem. When these happen, deafblind individuals are likely to be left alone and be less independent. […] Fortunately, there are healthcare services that could help patients and their families overcome the difficulties they meet. With the advancements in studies on deafblindness, appropriate techniques have been designed. If you have a deafblind family member who may need professional help, here’s an article about the different ways healthcare providers can best take care of them: […] Deafblind healthcare providers offer activities that could improve the patients sensory functions for them to be more independent. For this purpose, they design deafblind-friendly facilities for in-house activities. These activities are based on the patients initial and mid-assessments. In some cases, the provider suggests using a guide dog or a long cane to help in the training.

• #10 Deafblindness | Worcestershire County Council

  https://www.worcestershire.gov.uk/council-services/adult-social-care/support-stay-independent-and-living-home/sensory-impairment/deafblindness

  Deafblindness is the combined loss of vision and hearing impacting on communication, accessing information and mobility. […] Deafblindness affects individuals in very different ways and certainly impacts upon every aspect of the person’s daily life and their ability to function independently without specialist input support and advice. […] The combination of both a hearing and sight loss (at any level) for most people can be life changing and may lead to increased frustration, isolation and depression. […] These can enable a Deafblind person to obtain the specialist support they require e.g. through a Communicator Guide or Support Worker. […] Their role is to support the individual to do the things they want to do – not to do things for them. […] Due to the uniqueness of deafblindness, each individual may benefit from a very different combination of equipment to support their dual sensory loss.

• #11 Deafblindness and health advocacy

  https://www.myamericannurse.com/deafblindness-and-health-advocacy/

  Patients with deafblindness have needs beyond the basic knowledge provided in most nursing schools regarding hearing and visual impairment. […] These patients require specialized and personalized services that are more complex than those designed solely for deaf or blind people. […] Patients with moderate-to-severe visual and hearing impairments (deafblindness) need their nurses to understand their needs and provide safe care. […] Skilton and colleagues describe those with deafblindness as a hard-to-reach audience faced with communication barriers, limited budgets, lack of training in healthcare accessibility, and sensory impairment self-awareness. […] Medical appointments and healthcare encounters can be confusing for many people with deafblindness. […] They require specialized and personalized services that are more complex than those designed solely for deaf or blind people.

• #12 Deafblindness and health advocacy

  https://www.myamericannurse.com/deafblindness-and-health-advocacy/

  Many people with deafblindness have behavioral challenges, such as difficulty with impulse control, anxiety, attention to a task, and risk for elopement. […] Communication methods may differ depending on whether the patient acquired deafblindness congenitally or later in life. […] Older patients may have assistive devices for communication or established techniques. […] Use checkpoints throughout the healthcare encounter to assess the patients comfort level and understanding. […] Research state and national deafblind outreach projects, including the Helen Keller National Center for Deaf-Blind Youth and Adults, the American Association of the Deaf-Blind, and the National Family Association for Deaf-Blind. […] Without appropriate communication, environmental safety, and behavioral de-escalation assistance, healthcare encounters can cause traumatic experiences for this patient population.

• #13 Deafblindness and health advocacy

  https://www.myamericannurse.com/deafblindness-and-health-advocacy/

  Many people with deafblindness have behavioral challenges, such as difficulty with impulse control, anxiety, attention to a task, and risk for elopement. […] Communication methods may differ depending on whether the patient acquired deafblindness congenitally or later in life. […] Older patients may have assistive devices for communication or established techniques. […] Use checkpoints throughout the healthcare encounter to assess the patients comfort level and understanding. […] Research state and national deafblind outreach projects, including the Helen Keller National Center for Deaf-Blind Youth and Adults, the American Association of the Deaf-Blind, and the National Family Association for Deaf-Blind. […] Without appropriate communication, environmental safety, and behavioral de-escalation assistance, healthcare encounters can cause traumatic experiences for this patient population.

• #14 Deafblindness and health advocacy

  https://www.myamericannurse.com/deafblindness-and-health-advocacy/

  Many people with deafblindness have behavioral challenges, such as difficulty with impulse control, anxiety, attention to a task, and risk for elopement. […] Communication methods may differ depending on whether the patient acquired deafblindness congenitally or later in life. […] Older patients may have assistive devices for communication or established techniques. […] Use checkpoints throughout the healthcare encounter to assess the patients comfort level and understanding. […] Research state and national deafblind outreach projects, including the Helen Keller National Center for Deaf-Blind Youth and Adults, the American Association of the Deaf-Blind, and the National Family Association for Deaf-Blind. […] Without appropriate communication, environmental safety, and behavioral de-escalation assistance, healthcare encounters can cause traumatic experiences for this patient population.

• #15

  https://www.nhs.uk/conditions/deafblindness/treatment/

  It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] The care plan will aim to: preserve and maximise any remaining sensory functions the person has, teach alternative communication methods such as the Deafblind Manual, help the person retain as much independence as possible for example, by recommending they receive training to use a long cane or guide dog or through the provision of a communicator guide, for young children, ensure their educational needs are met. […] As deafblindness can make communicating by speech and writing difficult, alternative forms of communication may be necessary.

• #16 How to communicate with people who are deafblind – Community Care

  https://www.communitycare.co.uk/?p=204105

  Deafblind people should be encouraged to diversify the ways they communicate because this increases the likelihood that they will be able to effectively communicate in any given interaction. And as people often experience deterioration in their senses, proactively using and practising a new method can prepare them for this adjustment. […] There are several different professionals who can support deafblind people with communication depending on their individual language and communication requirements. […] Remember that the time required to communicate with a deafblind person means that it is likely to take significantly longer to carry out an assessment. It is also likely to take more than one session.

• #17

  https://111.wales.nhs.uk/encyclopaedia/d/article/deafblindness/

  Deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate, access information and get around. […] A range of care and support services is available to help deafblind people. […] The general aims of care for a deafblind person are to: preserve and maximise any remaining sight or hearing the person has; teach alternative methods of communication; help retain or develop as much independence as possible. […] Your local authority should arrange an assessment to determine exactly what care and support is needed. […] It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it.

• #18

  https://www.nhs.uk/conditions/deafblindness/treatment/

  It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] The care plan will aim to: preserve and maximise any remaining sensory functions the person has, teach alternative communication methods such as the Deafblind Manual, help the person retain as much independence as possible for example, by recommending they receive training to use a long cane or guide dog or through the provision of a communicator guide, for young children, ensure their educational needs are met. […] As deafblindness can make communicating by speech and writing difficult, alternative forms of communication may be necessary.

• #19

  https://www.nhs.uk/conditions/deafblindness/treatment/

  It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] The care plan will aim to: preserve and maximise any remaining sensory functions the person has, teach alternative communication methods such as the Deafblind Manual, help the person retain as much independence as possible for example, by recommending they receive training to use a long cane or guide dog or through the provision of a communicator guide, for young children, ensure their educational needs are met. […] As deafblindness can make communicating by speech and writing difficult, alternative forms of communication may be necessary.

• #20

  https://111.wales.nhs.uk/encyclopaedia/d/article/deafblindness/

  Deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate, access information and get around. […] A range of care and support services is available to help deafblind people. […] The general aims of care for a deafblind person are to: preserve and maximise any remaining sight or hearing the person has; teach alternative methods of communication; help retain or develop as much independence as possible. […] Your local authority should arrange an assessment to determine exactly what care and support is needed. […] It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it.

• #21

  https://www.nhs.uk/conditions/deafblindness/treatment/

  For some deafblind people, it may be possible to improve vision using low vision aids, such as glasses, magnifying lenses and task lights. […] Some deafblind people may benefit from wearing a hearing aid. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it. […] Some conditions that affect hearing and vision can be treated using medication or surgery. […] If you’re deafblind, or a friend or family member of someone who’s deafblind, you may find it useful to contact a support group for information and advice.

• #22

  https://111.wales.nhs.uk/encyclopaedia/d/article/deafblindness/

  Deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate, access information and get around. […] A range of care and support services is available to help deafblind people. […] The general aims of care for a deafblind person are to: preserve and maximise any remaining sight or hearing the person has; teach alternative methods of communication; help retain or develop as much independence as possible. […] Your local authority should arrange an assessment to determine exactly what care and support is needed. […] It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it.

• #23 Tips for Home or School | Strategies for Successful Medical Appointments | Nevada Dual Sensory Impairment Project | University of Nevada, Reno

  https://www.unr.edu/ndsip/services/resources/tips/strategies-for-successful-medical-appointments

  Many individuals who are deaf-blind have medical needs that may require frequent medical appointments. These individuals also require regular dental care that may also be complicated by physical/health issues. Medical/dental visits can be very frightening for the person receiving treatment if the procedures are not expected or understood. As the individual who is deaf-blind becomes frightened, he/she may express fear through behaviors (e.g., tantrums, aggressive behavior, rigid body postures, etc.) that will make the examination and/or procedure difficult. The visits can also be very frustrating for the families and care providers assisting these individuals during the examinations as they try to explain and manage the behavior expressed. […] It is suggested that family members and care providers review these guidelines with the health care professionals when the appointment is made or upon arrival at the office. A copy of this fact sheet can be left with the medical/dental staff to inform them of the needs of their patients who are deaf-blind.

• #24 Tips for Home or School | Strategies for Successful Medical Appointments | Nevada Dual Sensory Impairment Project | University of Nevada, Reno

  https://www.unr.edu/ndsip/services/resources/tips/strategies-for-successful-medical-appointments

  Try to locate a medical/dental professional who has experience with individuals who are deaf-blind. […] Call the medical/dental office staff in advance of your visit to let them know what to expect (e.g., difficulty waiting, unusual and/or loud vocalizations, challenging behaviors, etc.). […] If the family and medical/dental staff can manage this, give the individual who is deaf-blind an opportunity to visit the medical/dental office in advance of the appointment so that he/she can become familiar with the provider, office staff, equipment, smells, and sounds, etc. […] Provide opportunities for role-play activities prior to the medical/dental visit. […] Whenever possible, introduce each of the medical/dental professionals to the person who is deaf-blind before the professional touches the person.

• #25 Tips for Home or School | Strategies for Successful Medical Appointments | Nevada Dual Sensory Impairment Project | University of Nevada, Reno

  https://www.unr.edu/ndsip/services/resources/tips/strategies-for-successful-medical-appointments

  Try to locate a medical/dental professional who has experience with individuals who are deaf-blind. […] Call the medical/dental office staff in advance of your visit to let them know what to expect (e.g., difficulty waiting, unusual and/or loud vocalizations, challenging behaviors, etc.). […] If the family and medical/dental staff can manage this, give the individual who is deaf-blind an opportunity to visit the medical/dental office in advance of the appointment so that he/she can become familiar with the provider, office staff, equipment, smells, and sounds, etc. […] Provide opportunities for role-play activities prior to the medical/dental visit. […] Whenever possible, introduce each of the medical/dental professionals to the person who is deaf-blind before the professional touches the person.

• #26 Tips for Home or School | Strategies for Successful Medical Appointments | Nevada Dual Sensory Impairment Project | University of Nevada, Reno

  https://www.unr.edu/ndsip/services/resources/tips/strategies-for-successful-medical-appointments

  Try to locate a medical/dental professional who has experience with individuals who are deaf-blind. […] Call the medical/dental office staff in advance of your visit to let them know what to expect (e.g., difficulty waiting, unusual and/or loud vocalizations, challenging behaviors, etc.). […] If the family and medical/dental staff can manage this, give the individual who is deaf-blind an opportunity to visit the medical/dental office in advance of the appointment so that he/she can become familiar with the provider, office staff, equipment, smells, and sounds, etc. […] Provide opportunities for role-play activities prior to the medical/dental visit. […] Whenever possible, introduce each of the medical/dental professionals to the person who is deaf-blind before the professional touches the person.

• #27 Tips for Home or School | Strategies for Successful Medical Appointments | Nevada Dual Sensory Impairment Project | University of Nevada, Reno

  https://www.unr.edu/ndsip/services/resources/tips/strategies-for-successful-medical-appointments

  Try to locate a medical/dental professional who has experience with individuals who are deaf-blind. […] Call the medical/dental office staff in advance of your visit to let them know what to expect (e.g., difficulty waiting, unusual and/or loud vocalizations, challenging behaviors, etc.). […] If the family and medical/dental staff can manage this, give the individual who is deaf-blind an opportunity to visit the medical/dental office in advance of the appointment so that he/she can become familiar with the provider, office staff, equipment, smells, and sounds, etc. […] Provide opportunities for role-play activities prior to the medical/dental visit. […] Whenever possible, introduce each of the medical/dental professionals to the person who is deaf-blind before the professional touches the person.

• #28 Tips for Home or School | Strategies for Successful Medical Appointments | Nevada Dual Sensory Impairment Project | University of Nevada, Reno

  https://www.unr.edu/ndsip/services/resources/tips/strategies-for-successful-medical-appointments

  Try to locate a medical/dental professional who has experience with individuals who are deaf-blind. […] Call the medical/dental office staff in advance of your visit to let them know what to expect (e.g., difficulty waiting, unusual and/or loud vocalizations, challenging behaviors, etc.). […] If the family and medical/dental staff can manage this, give the individual who is deaf-blind an opportunity to visit the medical/dental office in advance of the appointment so that he/she can become familiar with the provider, office staff, equipment, smells, and sounds, etc. […] Provide opportunities for role-play activities prior to the medical/dental visit. […] Whenever possible, introduce each of the medical/dental professionals to the person who is deaf-blind before the professional touches the person.

• #29 Tips for Home or School | Strategies for Successful Medical Appointments | Nevada Dual Sensory Impairment Project | University of Nevada, Reno

  https://www.unr.edu/ndsip/services/resources/tips/strategies-for-successful-medical-appointments

  Let the person know how the exam is proceeding. Tell the person what will happen next and what the reasons are for the particular examinations. […] Model and reward cooperative behavior, appropriate waiting, confidence, acceptance, and relaxed body posture. […] If medical/dental professionals request it, give them feedback and/or acknowledgement regarding their interactions with the patient and the patient’s family member/care provider. […] Collect items to use as a record of the visit so that the experience can be discussed in the future, such as when preparing for additional appointments. […] Warm hands or instruments before touching the person who is deaf-blind. […] Tell the person what each procedure will entail prior to beginning the procedure. […] Allow sufficient time for the patient to process information. Many individuals who are deaf-blind require extra time to process information, and processing time may be increased if the individual experiences stress or anxiety.

• #30 Tips for Home or School | Strategies for Successful Medical Appointments | Nevada Dual Sensory Impairment Project | University of Nevada, Reno

  https://www.unr.edu/ndsip/services/resources/tips/strategies-for-successful-medical-appointments

  Let the person know how the exam is proceeding. Tell the person what will happen next and what the reasons are for the particular examinations. […] Model and reward cooperative behavior, appropriate waiting, confidence, acceptance, and relaxed body posture. […] If medical/dental professionals request it, give them feedback and/or acknowledgement regarding their interactions with the patient and the patient’s family member/care provider. […] Collect items to use as a record of the visit so that the experience can be discussed in the future, such as when preparing for additional appointments. […] Warm hands or instruments before touching the person who is deaf-blind. […] Tell the person what each procedure will entail prior to beginning the procedure. […] Allow sufficient time for the patient to process information. Many individuals who are deaf-blind require extra time to process information, and processing time may be increased if the individual experiences stress or anxiety.

• #31 Interventions for adults with deafblindness – an integrative review

  https://pmc.ncbi.nlm.nih.gov/articles/PMC9801155/

  To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65years) with deafblindness. […] There is a limited number of evaluated interventions for people with deafblindness. […] The implications of this disability require communities to facilitate the provision of services and adjustments to the environment and/or technology to meet the needs of people with DB to afford them full inclusion in the activities of everyday life. […] There is a need for a focus on interventions that enhance participation in daily activities for people with DB. […] Interventions can be seen as a process with the purpose to enable people with DB to establish and maintain control over the environment at a level appropriate to their functioning, and the interventions shall be defined by the needs of the people with DB themselves.

• #32 Interventions for adults with deafblindness – an integrative review

  https://pmc.ncbi.nlm.nih.gov/articles/PMC9801155/

  To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65years) with deafblindness. […] There is a limited number of evaluated interventions for people with deafblindness. […] The implications of this disability require communities to facilitate the provision of services and adjustments to the environment and/or technology to meet the needs of people with DB to afford them full inclusion in the activities of everyday life. […] There is a need for a focus on interventions that enhance participation in daily activities for people with DB. […] Interventions can be seen as a process with the purpose to enable people with DB to establish and maintain control over the environment at a level appropriate to their functioning, and the interventions shall be defined by the needs of the people with DB themselves.

• #33 Interventions for adults with deafblindness – an integrative review | BMC Health Services Research | Full Text

  https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08958-4

  To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65years) with deafblindness. […] There is a limited number of evaluated interventions for people with deafblindness. […] The implications of this disability require communities to facilitate the provision of services and adjustments to the environment and/or technology to meet the needs of people with DB to afford them full inclusion in the activities of everyday life. […] There is a need for a focus on interventions that enhance participation in daily activities for people with DB. […] Several articles have addressed the need for tailored interventions for individuals with DB as well as for their family members. […] The aim of this review was to compile the current research on interventions for rehabilitation aimed at adults (aged 18-65years old) with DB.

• #34 Interventions for adults with deafblindness – an integrative review

  https://pmc.ncbi.nlm.nih.gov/articles/PMC9801155/

  To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65years) with deafblindness. […] There is a limited number of evaluated interventions for people with deafblindness. […] The implications of this disability require communities to facilitate the provision of services and adjustments to the environment and/or technology to meet the needs of people with DB to afford them full inclusion in the activities of everyday life. […] There is a need for a focus on interventions that enhance participation in daily activities for people with DB. […] Interventions can be seen as a process with the purpose to enable people with DB to establish and maintain control over the environment at a level appropriate to their functioning, and the interventions shall be defined by the needs of the people with DB themselves.

• #35 Interventions for adults with deafblindness – an integrative review | BMC Health Services Research | Full Text

  https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08958-4

  To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65years) with deafblindness. […] There is a limited number of evaluated interventions for people with deafblindness. […] The implications of this disability require communities to facilitate the provision of services and adjustments to the environment and/or technology to meet the needs of people with DB to afford them full inclusion in the activities of everyday life. […] There is a need for a focus on interventions that enhance participation in daily activities for people with DB. […] Several articles have addressed the need for tailored interventions for individuals with DB as well as for their family members. […] The aim of this review was to compile the current research on interventions for rehabilitation aimed at adults (aged 18-65years old) with DB.

• #36

  https://www.nhs.uk/conditions/deafblindness/treatment/

  For some deafblind people, it may be possible to improve vision using low vision aids, such as glasses, magnifying lenses and task lights. […] Some deafblind people may benefit from wearing a hearing aid. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it. […] Some conditions that affect hearing and vision can be treated using medication or surgery. […] If you’re deafblind, or a friend or family member of someone who’s deafblind, you may find it useful to contact a support group for information and advice.

• #37 Deafblind Awareness Week: What to Know for Eye Care Practice | Weave

  https://www.getweave.com/deafblind-awareness-week/

  Recent advancements in assistive technologies have significantly improved the quality of life for deafblind individuals. Devices such as electronic Braille readers, hearing aids with advanced features, and specialized communication apps are invaluable tools that eye care practitioners should be aware of and recommend. […] By enhancing communication, creating accessible environments, and leveraging technological advancements, practitioners can significantly improve the quality of care provided.

• #38

  https://www.skills4bradford.co.uk/Page/23758

  Dependent on the severity of an individuals dual-sensory impairment, they may find a range of specialist equipment helpful, including; Hearing aids or radio aids, Low vision aids (magnifiers, CCTVs), Speech software, Braille resources, Individual lighting, Habilitation aids (vibrating alarms, tactile watches, vibrating water-level indicators etc).

• #39 Deafblindness and health advocacy

  https://www.myamericannurse.com/deafblindness-and-health-advocacy/

  Patients with deafblindness have needs beyond the basic knowledge provided in most nursing schools regarding hearing and visual impairment. […] These patients require specialized and personalized services that are more complex than those designed solely for deaf or blind people. […] Patients with moderate-to-severe visual and hearing impairments (deafblindness) need their nurses to understand their needs and provide safe care. […] Skilton and colleagues describe those with deafblindness as a hard-to-reach audience faced with communication barriers, limited budgets, lack of training in healthcare accessibility, and sensory impairment self-awareness. […] Medical appointments and healthcare encounters can be confusing for many people with deafblindness. […] They require specialized and personalized services that are more complex than those designed solely for deaf or blind people.

• #40 Deaf Blindness – Understanding and Supporting Learners with Disabilities

  https://dev.pressbooks.usnh.edu/understandingandsupportinglearnerswithdisabilities/chapter/deaf-blindness/

  Deafblindness is the condition of little or no useful hearing and little or no useful sight. Different degrees of vision loss and auditory loss occur within each individual, thus making the deafblind community unique with many types of deafblindness involved. Because of this inherent diversity, each deafblind individuals needs regarding lifestyle, communication, education, and work need to be addressed based on their degree of dual-modality deprivation, to improve their ability to live independently. […] The complex and heterogeneous needs of children who are deafblind call for highly specialized and individualized services provided by collaborative teams that recognize the critical role of the family in creating optimal outcomes for the children. […] Early intervention is critical to reducing the profound developmental disadvantages faced by children who are deafblind.

• #41 How to communicate with people who are deafblind – Community Care

  https://www.communitycare.co.uk/?p=204105

  Deafblind people should be encouraged to diversify the ways they communicate because this increases the likelihood that they will be able to effectively communicate in any given interaction. And as people often experience deterioration in their senses, proactively using and practising a new method can prepare them for this adjustment. […] There are several different professionals who can support deafblind people with communication depending on their individual language and communication requirements. […] Remember that the time required to communicate with a deafblind person means that it is likely to take significantly longer to carry out an assessment. It is also likely to take more than one session.

• #42 Region 18 Education Service Center – Deafblind

  https://www.esc18.net/641684_3

  According to the National Center on Deaf-Blindness (2024), there are approximately 10,000 children and youth in the United States who have been identified as Deafblind. […] Deafblindness is a low-incidence disability and within this population there is great variability in terms of age, race/ethnicity, cause of deafblindness, and severity and type of hearing and vision loss. […] Ninety percent have additional physical, medical, or cognitive disabilities. […] Interveners are professionals who have received specialized training to work with people who are deafblind. An intervener helps the person with deafblindness gain access to environmental information, facilitates communication, as well as promoting social and emotional development. An intervener may be part of your sons or daughters education team.

• #43 DeafBlind Services | Colorado Commission for the Deaf, Hard of Hearing, and DeafBlind

  https://ccdhhdb.colorado.gov/deafblind-services

  Deafblind Services are intended for deafblind individuals who seek equal access to sight and environmental information while navigating the world. These resources include Support Services Provider (SSP) and Orientation and Mobility (O&M) programs. […] An SSP is a trained professional who empowers a deafblind person by allowing them to perform their essential daily activities, such as opening mail, processing bank transactions, shopping for groceries, etc. […] An O&M professional provides individualized training on skills that promote independence in travel, navigation, and daily activities. […] Many deafblind individuals use support service providers (SSPs) to assist them in accessing the world around them. SSPs are the eyes and ears for deafblind people. They act as sighted guides, relay visual and environmental information, and facilitate communication using the deafblind person’s preferred language and/or communication mode. SSPs enable deafblind people to access their communities and connect with other people and reduce the visual, environmental and communication barriers that otherwise would result in social isolation, difficulty in living independently, and an inability to participate as citizens within mainstream society.

• #44 Deafblindness | Worcestershire County Council

  https://www.worcestershire.gov.uk/council-services/adult-social-care/support-stay-independent-and-living-home/sensory-impairment/deafblindness

  Deafblindness is the combined loss of vision and hearing impacting on communication, accessing information and mobility. […] Deafblindness affects individuals in very different ways and certainly impacts upon every aspect of the person’s daily life and their ability to function independently without specialist input support and advice. […] The combination of both a hearing and sight loss (at any level) for most people can be life changing and may lead to increased frustration, isolation and depression. […] These can enable a Deafblind person to obtain the specialist support they require e.g. through a Communicator Guide or Support Worker. […] Their role is to support the individual to do the things they want to do – not to do things for them. […] Due to the uniqueness of deafblindness, each individual may benefit from a very different combination of equipment to support their dual sensory loss.

• #45 Deaf & Blind Children | Deafblind Information

  https://www.deafblindinformation.org.au/about-deafblindness/congenital-deafblindness/for-families-carers/early-intervention/

  Early Intervention services for children who are deafblind maximises the potential for growth and development, and support families and carers. To do this, a partnership is developed between the child, the family and other support networks and professionals. […] Early intervention services delivered to families and/or carers of children who are deafblind can: […] Nursing services assessment of health status of the child for the purpose of providing nursing care, provision of nursing care to prevent health problems, restore and improve functioning, and promote optimal health and development. This may include administering medications, treatments, and other procedures prescribed by licensed physician. […] Best results from Early Intervention Services can be achieved through: […] Focus on social inclusion and participation, which may assist in changing attitudes towards children who are deafblind.

• #46 Deaf-Blind

  https://education.mn.gov/MDE/dse/sped/cat/db/

  Most students with deafblindness need support to access people, the environment and the curriculum due to the impact of combined hearing and vision loss. Support might include the services of a trained intervener. […] Since many students who have combined hearing and vision loss also have complex health needs, they might also have services from a contracted nurse or district health staff. […] The document Clarification of Roles of Contracted Nurses, District Health Staff and Interveners in Educational Settings was developed in collaboration with the BrightWorks Health Support Services, Minnesota DeafBlind Project, and the Minnesota Department of Health School Health Services to help teams understand staff roles when supporting DeafBlind students who need both intervener and health support services.

• #47 Deafblindness in children: a guide | Raising Children Network

  https://raisingchildren.net.au/disability/guide-to-disabilities/assessment-diagnosis/deafblindness

  Deafblindness is difficulties with both seeing and hearing. Its sometimes called dual sensory loss. […] Children who are deafblind will need help to communicate and make friends with other people. Otherwise, theres a risk they might grow up feeling isolated. […] If your child is hard of hearing or has vision loss, theyll also have difficulties or delays in understanding whats going on around them. This means that deafblindness can affect other areas of your childs development. […] Early intervention is the best way to support your childs development. Early intervention includes therapies, education and other supports that will help your child reach their full potential. […] Early intervention can also help your child learn how to make sense of sounds and touch, be around other people, make friends and feel confident to explore their surroundings.

• #48 Deafblindness in children: a guide | Raising Children Network

  https://raisingchildren.net.au/disability/guide-to-disabilities/assessment-diagnosis/deafblindness

  Deafblindness is difficulties with both seeing and hearing. Its sometimes called dual sensory loss. […] Children who are deafblind will need help to communicate and make friends with other people. Otherwise, theres a risk they might grow up feeling isolated. […] If your child is hard of hearing or has vision loss, theyll also have difficulties or delays in understanding whats going on around them. This means that deafblindness can affect other areas of your childs development. […] Early intervention is the best way to support your childs development. Early intervention includes therapies, education and other supports that will help your child reach their full potential. […] Early intervention can also help your child learn how to make sense of sounds and touch, be around other people, make friends and feel confident to explore their surroundings.

• #49 Preventive audiology in the context of deafblindness – Preventive Audiology – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK601308/

  The aforementioned discussion suggests that South Africa still has a long way to go in addressing the health and educational needs of deaf-blind children. […] Early detection and intervention of deafblindness during the first year of life are recommended as the gold standard for these children flourish with positive communication, educational and employment outcomes. […] Preventive audiology has a significant role to play in potentially preventing deafblindness across all levels of prevention.

• #50 Deaf-Blind

  https://education.mn.gov/MDE/dse/sped/cat/db/

  Early identification is critical for providing interventions and support to children and families with combined hearing and vision loss. […] For early identification of infants and children with combined hearing and vision loss, DeafBlind Quick Cards summarize the most important information about risk factors, concerns, and next steps for referrals.

• #51 Preventive audiology in the context of deafblindness – Preventive Audiology – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK601308/

  The importance of early detection and intervention cannot be overemphasised. […] If EI is not affected, communication may potentially be compromised. […] The third goal of early detection is to mitigate the multiplicative effects of deafblindness. […] Locally, evidence suggests that there are no active early identification and intervention programmes specifically for deaf-blind children. […] The success of tertiary prevention for deaf-blind children is dependent on their access and inclusion to both health care services and education. […] Access should fulfil the dimensions of availability, acceptability, geographical accessibility, financial accessibility and quality. […] The ongoing marginalisation and deprivation of basic education and health care needs for persons with disabilities is a systemic ramification of apartheid, a system that for decades segregated people across racial lines in South Africa.

• #52 Deafblindness: Planning for Long-term Support | Ability Central

  https://abilitycentral.org/article/deafblindness-planning-long-term-support

  People who are deafblind need a long-term plan for financial and mental health support. […] A long-term plan is an essential part of dealing with a deafblind diagnosis. […] Why are mental health professionals and support groups important for people who are deafblind? […] Deafblindness can also create significant barriers to access to information and communication, isolating a person from their community and support systems. This can often lead to marginalization and discrimination, both in personal and professional life. The impact of this separation can have a profound effect on the mental health and well-being of someone who is deafblind. […] It can be beneficial for many people who are deafblind to seek mental health evaluation and support. […] There are many great resources online to connect people who are deafblind and their families with support services. […] Ability Central has a suite of four articles to help you learn about deafblindness.

• #53 Deafblindness: Planning for Long-term Support | Ability Central

  https://abilitycentral.org/article/deafblindness-planning-long-term-support

  People who are deafblind need a long-term plan for financial and mental health support. […] A long-term plan is an essential part of dealing with a deafblind diagnosis. […] Why are mental health professionals and support groups important for people who are deafblind? […] Deafblindness can also create significant barriers to access to information and communication, isolating a person from their community and support systems. This can often lead to marginalization and discrimination, both in personal and professional life. The impact of this separation can have a profound effect on the mental health and well-being of someone who is deafblind. […] It can be beneficial for many people who are deafblind to seek mental health evaluation and support. […] There are many great resources online to connect people who are deafblind and their families with support services. […] Ability Central has a suite of four articles to help you learn about deafblindness.

• #54 Deafblindness: Planning for Long-term Support | Ability Central

  https://abilitycentral.org/article/deafblindness-planning-long-term-support

  People who are deafblind need a long-term plan for financial and mental health support. […] A long-term plan is an essential part of dealing with a deafblind diagnosis. […] Why are mental health professionals and support groups important for people who are deafblind? […] Deafblindness can also create significant barriers to access to information and communication, isolating a person from their community and support systems. This can often lead to marginalization and discrimination, both in personal and professional life. The impact of this separation can have a profound effect on the mental health and well-being of someone who is deafblind. […] It can be beneficial for many people who are deafblind to seek mental health evaluation and support. […] There are many great resources online to connect people who are deafblind and their families with support services. […] Ability Central has a suite of four articles to help you learn about deafblindness.

• #55 4 Ways Healthcare Providers Can Effectively Treat Deafblind Patients

  https://www.hhmglobal.com/knowledge-bank/news/4-ways-healthcare-providers-can-effectively-treat-deafblind-patients

  Healthcare providers underscore the need to assist deafblind people holistically. Apart from the physical and mental development, healthcare workers also work on patients emotional wellbeing. For this purpose, they provide sessions that serve as avenues for patients to talk about themselves—their experiences, struggles, and aspirations. The insights and information gained in these sessions become bases for future assessments and activities for the welfare of the patients. […] Some healthcare providers also offer hearing and vision treatments using surgery and medication, such as surgeries for cataract and macular surgeries for cataract and macular degeneration. Through such things, patients are still able to maximize any remaining hearing or vision they have. Coupled with other forms of treatment, deafblind patients could live like most people usually do, or, at least, close to it.

• #56 4 Ways Healthcare Providers Can Effectively Treat Deafblind Patients

  https://www.hhmglobal.com/knowledge-bank/news/4-ways-healthcare-providers-can-effectively-treat-deafblind-patients

  Healthcare providers underscore the need to assist deafblind people holistically. Apart from the physical and mental development, healthcare workers also work on patients emotional wellbeing. For this purpose, they provide sessions that serve as avenues for patients to talk about themselves—their experiences, struggles, and aspirations. The insights and information gained in these sessions become bases for future assessments and activities for the welfare of the patients. […] Some healthcare providers also offer hearing and vision treatments using surgery and medication, such as surgeries for cataract and macular surgeries for cataract and macular degeneration. Through such things, patients are still able to maximize any remaining hearing or vision they have. Coupled with other forms of treatment, deafblind patients could live like most people usually do, or, at least, close to it.

• #57 4 Ways Healthcare Providers Can Effectively Treat Deafblind Patients

  https://www.hhmglobal.com/knowledge-bank/news/4-ways-healthcare-providers-can-effectively-treat-deafblind-patients

  To help deafblind patients around the globe, many healthcare providers have started designing custom-fit treatments. This way, deafblind individuals will have a high chance of improving their efficiency and productivity. With the advancements in the field of healthcare, the use of specially designed instruments, surgeries, and sessions can contribute to achieving the goal of every deafblind patient, which is to live confidently and independently.

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