Materiały źródłowe

• #1

  https://www.nhs.uk/conditions/deafblindness/

  Deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate, access information and get around. […] It’s best to seek advice as soon as possible, as treatment for some underlying causes of deafblindness can be more effective if started early. Early diagnosis will also ensure the person is able to access local support services sooner. […] A range of care and support services is available to help deafblind people. […] The general aims of care for a deafblind person are to: preserve and maximise any remaining sight or hearing the person has; teach alternative methods of communication such as hands-on signing or braille; help retain or develop as much independence as possible.

• #2

  https://www.nhs.uk/conditions/deafblindness/treatment/

  It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] Some of the main services, techniques and treatments that may be recommended as part of a care plan are outlined below. […] For some deafblind people, it may be possible to improve vision using low vision aids, such as glasses, magnifying lenses and task lights. […] Some deafblind people may benefit from wearing a hearing aid. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it. […] Some conditions that affect hearing and vision can be treated using medication or surgery.

• #3 Deafblindness and Interveners | Wisconsin Department of Public Instruction

  https://dpi.wi.gov/sped/deafblindness-and-interveners

  As of August 1, 2021, Wisconsin officially recognizes deafblindness as an unique disability category. Deafblindness is defined as a disability of access. A student does not need to be completely deaf or blind to be considered deafblind. […] Deafblindness significantly impacts communication, social interactions, learning, and mobility, making it essential to understand its implications for appropriate accommodations and specially designed instruction. Accurate identification of a student’s needs is crucial for accessing support, such as assistance from the Wisconsin Deafblind Technical Assistance Project (WDBTAP), the Helen Keller National Center, or technology through the iCanConnect program. Students may also benefit from an intervener. An intervener is a designated related service provider who works one-on-one with students who are deafblind, focusing on communication, language development, and building conceptual understanding. Interveners help facilitate access to information and promote social-emotional well-being. […] If your district has a student who is deafblind or suspected to be, please contact WDBTAP. WDBTAP offers family engagement activities, mentor programs, workshops, and professional development—all at no cost to districts or families.

• #4 Early Signs and Symptoms That Someone May Be Deafblind | Ability Central

  https://abilitycentral.org/article/early-signs-and-symptoms-someone-may-be-deafblind

  Deafblindness occurs in three out of 100,000 births. […] The New England Consortium on Deafblindness (NEC) defines deafblindness as combined vision and hearing loss, which may challenge a persons ability to communicate, interact with others, access information, and move about safely. […] Congenital deafblindness is generally discovered during prenatal testing. Most cases of deafblindness present at birth cannot be treated. […] Acquired deafblindness can only be diagnosed through qualified doctors. Visit your doctor to understand treatment options if you notice worsening vision and hearing impairment.

• #5

  https://my.vanderbilt.edu/speds2430/2020-topics/deaf-blindness/

  Deaf-blindness refers to instances in which an individual has concomitant hearing and visual impairments. Roughly 45,000 50,000 American individuals are said to experience the effects of deaf-blindness today. […] Because of the fact that individuals with deaf-blindness experience at least some degree of hearing and vision impairments, opportunities for learning and communicating are often much more limited. […] Since the early years of life constitute a critical period for neurological development, early identification of deaf-blindness is vital in ensuring that these individuals attain access to the necessary interventions that will give them a better chance at developing communication skills during this time frame. Without the opportunity to receive these interventions early on, children with deaf-blindness will likely fall behind in their development of language.

• #6 Deafblindness – Treating or managing deafblindness | Clear Chemist

  https://www.clearchemist.co.uk/az-health/deafblindness/treating-or-managing-deafblindness

  Most cases of deafblindness present at birth (congenital) can’t be treated. In certain cases, it may be possible to treat acquired deafblindness. […] Identifying a deafblind child’s level of hearing and sight at an early age is vital to ensure their health, social and educational needs are met. […] In some cases of deafblindess, it may be possible to improve a person’s vision using low vision aids, such as glasses, magnifying lenses and task lights. […] A person’s hearing can often be improved by using a hearing aid. […] Some conditions that affect hearing and vision can be treated using medication or surgery.

• #7

  https://www.nhs.uk/conditions/deafblindness/

  Deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate, access information and get around. […] It’s best to seek advice as soon as possible, as treatment for some underlying causes of deafblindness can be more effective if started early. Early diagnosis will also ensure the person is able to access local support services sooner. […] A range of care and support services is available to help deafblind people. […] The general aims of care for a deafblind person are to: preserve and maximise any remaining sight or hearing the person has; teach alternative methods of communication such as hands-on signing or braille; help retain or develop as much independence as possible.

• #8 Preventive audiology in the context of deafblindness – Preventive Audiology – NCBI Bookshelf

  https://www.ncbi.nlm.nih.gov/books/NBK601308/

  Early detection and intervention of deafblindness during the first year of life are recommended as the gold standard for these children flourish with positive communication, educational and employment outcomes. […] While deafblindness, as a disability, cannot be completely eradicated, its incidence and negative impact can be significantly reduced through primary and secondary prevention. […] Preventive audiology has a significant role to play in potentially preventing deafblindness across all levels of prevention.

• #9 Deafblindness in children: a guide | Raising Children Network

  https://raisingchildren.net.au/disability/guide-to-disabilities/assessment-diagnosis/deafblindness

  Early intervention is the best way to support your childs development. Early intervention includes therapies, education and other supports that will help your child reach their full potential. […] Early intervention can also help your child learn how to make sense of sounds and touch, be around other people, make friends and feel confident to explore their surroundings.

• #10 Deaf & Blind Children | Deafblind Information

  https://www.deafblindinformation.org.au/about-deafblindness/congenital-deafblindness/for-families-carers/early-intervention/

  Early Intervention services for children who are deafblind maximises the potential for growth and development, and support families and carers. To do this, a partnership is developed between the child, the family and other support networks and professionals. […] Early intervention services delivered to families and/or carers of children who are deafblind can: Improve both developmental, social, and educational gains […] Help alleviate and reduce behaviours of concern by using positive behaviour strategies and interventions […] Help children with deafblindness disabilities grow up to become productive, independent individuals. […] Early intervention for a congenitally Deafblind child may include: Assistive technology devices and services equipment and services that are used to improve or maintain the abilities of children living with deafblindness to enable them to participate in such activities as playing, communication, eating or moving.

• #11 Deaf & Blind Children | Deafblind Information

  https://www.deafblindinformation.org.au/about-deafblindness/congenital-deafblindness/for-families-carers/early-intervention/

  Early Intervention services for children who are deafblind maximises the potential for growth and development, and support families and carers. To do this, a partnership is developed between the child, the family and other support networks and professionals. […] Early intervention services delivered to families and/or carers of children who are deafblind can: Improve both developmental, social, and educational gains […] Help alleviate and reduce behaviours of concern by using positive behaviour strategies and interventions […] Help children with deafblindness disabilities grow up to become productive, independent individuals. […] Early intervention for a congenitally Deafblind child may include: Assistive technology devices and services equipment and services that are used to improve or maintain the abilities of children living with deafblindness to enable them to participate in such activities as playing, communication, eating or moving.

• #12 Deaf & Blind Children | Deafblind Information

  https://www.deafblindinformation.org.au/about-deafblindness/congenital-deafblindness/for-families-carers/early-intervention/

  Psychological services administering and interpreting psychological tests and information about a childs behaviour and child and family conditions related to learning, mental health and development as well as planning services including counselling, consultation, parent training, and education programs. […] Speech pathology services that focus on verbal and non-verbal communication skill development and the oral motor skills required for drinking and eating. […] Vision services identification of children with visual disorders or delays, and providing services and training to those children. […] Best results from Early Intervention Services can be achieved through: Understanding the families who are deafblind […] Providing services in environments where the child spends his/her time.

• #13 Deafblindness and health advocacy

  https://www.myamericannurse.com/deafblindness-and-health-advocacy/

  Patients with deafblindness have needs beyond the basic knowledge provided in most nursing schools regarding hearing and visual impairment. […] These patients require specialized and personalized services that are more complex than those designed solely for deaf or blind people. […] Patients with moderate-to-severe visual and hearing impairments (deafblindness) need their nurses to understand their needs and provide safe care. […] Skilton and colleagues describe those with deafblindness as a hard-to-reach audience faced with communication barriers, limited budgets, lack of training in healthcare accessibility, and sensory impairment self-awareness. However, with the right preparation, nurses can appropriately assess pain, implement de-escalation techniques, and advocate for their patients.

• #14 Deafblindness (Multi-sensory impairment) Clinical information | RCSLT

  https://www.rcslt.org/speech-and-language-therapy/clinical-information/deafblindness/

  Speech and language therapists have a central role in providing individualised assessment, diagnosis and intervention to the child in partnership with their family or individual with deafblindness. This should reflect the individual choices made, regarding communication mode and (re)habilitation approach. […] SLTs can work across a number of different settings such as: People’s homes, Community health centres, School and educational environments (nurseries, mainstream and special schools, colleges etc), Supported living, residential and care homes, Hospital and specialist services (hearing implant centres, specialist clinics). […] SLTs are essential members of the multidisciplinary team (MDT) working with people who are deafblind. They can be responsible for: Carrying out specialist assessments and supporting diagnosis, Delivering appropriate intervention, therapy and training, Informing and supporting choices, for example, about technology or communication, Identifying the need for support from one to one services (like intervenors or communication support workers), Ensuring individuals are connected to services supporting their current needs.

• #15 Deafblindness (Multi-sensory impairment) Clinical information | RCSLT

  https://www.rcslt.org/speech-and-language-therapy/clinical-information/deafblindness/

  Speech and language therapists have a central role in providing individualised assessment, diagnosis and intervention to the child in partnership with their family or individual with deafblindness. This should reflect the individual choices made, regarding communication mode and (re)habilitation approach. […] SLTs can work across a number of different settings such as: People’s homes, Community health centres, School and educational environments (nurseries, mainstream and special schools, colleges etc), Supported living, residential and care homes, Hospital and specialist services (hearing implant centres, specialist clinics). […] SLTs are essential members of the multidisciplinary team (MDT) working with people who are deafblind. They can be responsible for: Carrying out specialist assessments and supporting diagnosis, Delivering appropriate intervention, therapy and training, Informing and supporting choices, for example, about technology or communication, Identifying the need for support from one to one services (like intervenors or communication support workers), Ensuring individuals are connected to services supporting their current needs.

• #16 Deaf & Blind Children | Deafblind Information

  https://www.deafblindinformation.org.au/about-deafblindness/congenital-deafblindness/for-families-carers/early-intervention/

  Occupational therapy services help caregivers to develop the childs highest attainable level of participation in all daily activities. OTs provide support to children who are deafblind and their families in the following areas: fine motor skills (hand function), activities of daily living (e.g. dressing, feeding), perceptual/cognitive skills (e.g. design copying and sequencing), sensory-motor skills (e.g. motor planning and tactile sensitivity), functional play skills, specialised equipment and environmental modifications (e.g. splinting, assistive devices, technology and home modifications), and posture control to support function. […] Physiotherapy services that focus on the identification and promotion of optimal movement development. PTs provide support in the areas of neuromuscular, musculoskeletal, cardiovascular, respiratory functioning, and posture control.

• #17 Deaf & Blind Children | Deafblind Information

  https://www.deafblindinformation.org.au/about-deafblindness/congenital-deafblindness/for-families-carers/early-intervention/

  Psychological services administering and interpreting psychological tests and information about a childs behaviour and child and family conditions related to learning, mental health and development as well as planning services including counselling, consultation, parent training, and education programs. […] Speech pathology services that focus on verbal and non-verbal communication skill development and the oral motor skills required for drinking and eating. […] Vision services identification of children with visual disorders or delays, and providing services and training to those children. […] Best results from Early Intervention Services can be achieved through: Understanding the families who are deafblind […] Providing services in environments where the child spends his/her time.

• #18 Deafblindness and Interveners | Wisconsin Department of Public Instruction

  https://dpi.wi.gov/sped/deafblindness-and-interveners

  As of August 1, 2021, Wisconsin officially recognizes deafblindness as an unique disability category. Deafblindness is defined as a disability of access. A student does not need to be completely deaf or blind to be considered deafblind. […] Deafblindness significantly impacts communication, social interactions, learning, and mobility, making it essential to understand its implications for appropriate accommodations and specially designed instruction. Accurate identification of a student’s needs is crucial for accessing support, such as assistance from the Wisconsin Deafblind Technical Assistance Project (WDBTAP), the Helen Keller National Center, or technology through the iCanConnect program. Students may also benefit from an intervener. An intervener is a designated related service provider who works one-on-one with students who are deafblind, focusing on communication, language development, and building conceptual understanding. Interveners help facilitate access to information and promote social-emotional well-being. […] If your district has a student who is deafblind or suspected to be, please contact WDBTAP. WDBTAP offers family engagement activities, mentor programs, workshops, and professional development—all at no cost to districts or families.

• #19 Family Support Makes a Difference with a Deafblind Child: Orion’s Journey | Texas School for the Blind and Visually Impaired

  https://www.tsbvi.edu/tx-senseabilities/issues/tx-senseabilities-spring-2025-issue/orions-journey

  Orion received home visits every other week from a teacher of the deaf and a teacher of the visually impaired. He also received occupational and physical therapy, and we were able to borrow equipment from the county, including a mobile stander and a gait trainer—devices that would support his being upright and eventually perhaps learning to walk. […] These programs—and the support of the state’s Deaf-Blind Project—enabled Orion to begin his development in communication and physical development early, and the curve of his development was exponential. […] Every state has a federally funded Deaf-Blind Project that families and schools can contact for technical assistance and resources. […] Interveners are individuals who have taken intensive training on deafblindness and work to actively assist the deafblind children in their daily lives and learning.

• #20

  https://www.nhs.uk/conditions/deafblindness/treatment/

  It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] Some of the main services, techniques and treatments that may be recommended as part of a care plan are outlined below. […] For some deafblind people, it may be possible to improve vision using low vision aids, such as glasses, magnifying lenses and task lights. […] Some deafblind people may benefit from wearing a hearing aid. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it. […] Some conditions that affect hearing and vision can be treated using medication or surgery.

• #21

  https://www.nhs.uk/conditions/deafblindness/treatment/

  It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] Some of the main services, techniques and treatments that may be recommended as part of a care plan are outlined below. […] For some deafblind people, it may be possible to improve vision using low vision aids, such as glasses, magnifying lenses and task lights. […] Some deafblind people may benefit from wearing a hearing aid. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it. […] Some conditions that affect hearing and vision can be treated using medication or surgery.

• #22

  https://www.nhs.uk/conditions/deafblindness/treatment/

  It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] Some of the main services, techniques and treatments that may be recommended as part of a care plan are outlined below. […] For some deafblind people, it may be possible to improve vision using low vision aids, such as glasses, magnifying lenses and task lights. […] Some deafblind people may benefit from wearing a hearing aid. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it. […] Some conditions that affect hearing and vision can be treated using medication or surgery.

• #23 Deafblindness – Treating or managing deafblindness | Clear Chemist

  https://www.clearchemist.co.uk/az-health/deafblindness/treating-or-managing-deafblindness

  Most cases of deafblindness present at birth (congenital) can’t be treated. In certain cases, it may be possible to treat acquired deafblindness. […] Identifying a deafblind child’s level of hearing and sight at an early age is vital to ensure their health, social and educational needs are met. […] In some cases of deafblindess, it may be possible to improve a person’s vision using low vision aids, such as glasses, magnifying lenses and task lights. […] A person’s hearing can often be improved by using a hearing aid. […] Some conditions that affect hearing and vision can be treated using medication or surgery.

• #24 Deafblindness | NHS inform

  https://www.nhsinform.scot/illnesses-and-conditions/eyes/deafblindness/

  The individual abilities and needs of a deafblind person should be assessed soon after theyre diagnosed. This will allow a tailored care plan to be drawn up. […] Some conditions that affect hearing and vision can be treated using medication or surgery. For example: cataracts can often be treated by surgically implanting an artificial lens in the eye.

• #25 Deafblindness: Causes, Symptoms, Diagnosis, And How To Manage The Disease

  https://www.netmeds.com/health-library/post/deafblindness-causes-symptoms-diagnosis-and-how-to-manage-the-disease?srsltid=AfmBOortbLTXTqDUe6K2VaRxbCkOg3VeiIcYoHRPmQCXvbOt8-86-VkU

  Deafblindness is a complex hearing and vision disorder, which can be caused by trauma, diseases, inherited syndromes, or age factors. A common disease mostly occurring in elderly people, deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate and hear. […] Since it is not possible to cure the illness completely, the primary aim of the treatment is to reduce the isolation of the patients and help them live a stress-free life. While visual implants have not yet been developed, some research in the implantation of cameras and electrodes in the retina has shown positive results. There are methods of improving beneficial speech understanding. To improve hearing, cochlear implantation is a useful technology. A cochlear implant is a small, advanced electronic device that helps in providing a sense of sound to a deaf person and for people who have severe hearing loss from the inner ear. While a hearing aid is also a popular option, it is used to amplify sounds that are detected by damaged ears; Cochlear implants bypass damaged portions of the ear and directly stimulate the auditory nerve. Using a hearing aid and cochlear implant together can be of tremendous help to an individual.

• #26

  https://www.nhs.uk/conditions/deafblindness/treatment/

  It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] Some of the main services, techniques and treatments that may be recommended as part of a care plan are outlined below. […] For some deafblind people, it may be possible to improve vision using low vision aids, such as glasses, magnifying lenses and task lights. […] Some deafblind people may benefit from wearing a hearing aid. […] Every deafblind person is entitled to help from a specially trained one-to-one support worker if they need it. […] Some conditions that affect hearing and vision can be treated using medication or surgery.

• #27 Deafblindness: Causes, Symptoms, Diagnosis, And How To Manage The Disease

  https://www.netmeds.com/health-library/post/deafblindness-causes-symptoms-diagnosis-and-how-to-manage-the-disease?srsltid=AfmBOortbLTXTqDUe6K2VaRxbCkOg3VeiIcYoHRPmQCXvbOt8-86-VkU

  Deafblindness is a complex hearing and vision disorder, which can be caused by trauma, diseases, inherited syndromes, or age factors. A common disease mostly occurring in elderly people, deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate and hear. […] Since it is not possible to cure the illness completely, the primary aim of the treatment is to reduce the isolation of the patients and help them live a stress-free life. While visual implants have not yet been developed, some research in the implantation of cameras and electrodes in the retina has shown positive results. There are methods of improving beneficial speech understanding. To improve hearing, cochlear implantation is a useful technology. A cochlear implant is a small, advanced electronic device that helps in providing a sense of sound to a deaf person and for people who have severe hearing loss from the inner ear. While a hearing aid is also a popular option, it is used to amplify sounds that are detected by damaged ears; Cochlear implants bypass damaged portions of the ear and directly stimulate the auditory nerve. Using a hearing aid and cochlear implant together can be of tremendous help to an individual.

• #28 Deafblindness: Causes, Symptoms, Diagnosis, And How To Manage The Disease

  https://www.netmeds.com/health-library/post/deafblindness-causes-symptoms-diagnosis-and-how-to-manage-the-disease?srsltid=AfmBOortbLTXTqDUe6K2VaRxbCkOg3VeiIcYoHRPmQCXvbOt8-86-VkU

  Deafblindness is a complex hearing and vision disorder, which can be caused by trauma, diseases, inherited syndromes, or age factors. A common disease mostly occurring in elderly people, deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate and hear. […] Since it is not possible to cure the illness completely, the primary aim of the treatment is to reduce the isolation of the patients and help them live a stress-free life. While visual implants have not yet been developed, some research in the implantation of cameras and electrodes in the retina has shown positive results. There are methods of improving beneficial speech understanding. To improve hearing, cochlear implantation is a useful technology. A cochlear implant is a small, advanced electronic device that helps in providing a sense of sound to a deaf person and for people who have severe hearing loss from the inner ear. While a hearing aid is also a popular option, it is used to amplify sounds that are detected by damaged ears; Cochlear implants bypass damaged portions of the ear and directly stimulate the auditory nerve. Using a hearing aid and cochlear implant together can be of tremendous help to an individual.

• #29

  https://my.vanderbilt.edu/speds2430/2020-topics/deaf-blindness/

  One of the most common interventions for individuals with deaf-blindness is the use of a cochlear implant, which is a small electrical device that stimulates the cochlear nerve to improve or restore ones ability to hear and interpret speech. Since the cochlear implant gives individuals with deaf-blindness the opportunity to take in auditory input that would not have been possible without the device, implantation of the cochlear implant earlier in life proves to be especially important in maximizing individuals abilities to develop communication skills appropriately. […] Regardless of which approach an individual with deaf-blindness chooses to take, the greatest communication benefits have been proven to correlate with an earlier age of actually having the cochlear implant implanted. […] Of the various intervention services offered for individuals with deaf-blindness, two of the most commonly-known literacy interventions are the teaching of Braille and the utilization of Augmentative and Alternative Communication.

• #30 Deafblindness: Causes, Symptoms, Diagnosis, And How To Manage The Disease

  https://www.netmeds.com/health-library/post/deafblindness-causes-symptoms-diagnosis-and-how-to-manage-the-disease?srsltid=AfmBOortbLTXTqDUe6K2VaRxbCkOg3VeiIcYoHRPmQCXvbOt8-86-VkU

  In addition, progressive hearing and vision loss is being tried and tested for prevention with drugs or growth hormones besides the possibility of stem-cell treatment. Research in the regeneration of nerve cells within the retina is rigorously being done across the globe. In the near future, identification of the precise mutation of genetic disorders might lead to medical and genetic treatment.

• #31 Innovative therapy developed for the future treatment of hereditary (deaf)blindness – Radboudumc

  https://www.radboudumc.nl/en/news/2021/innovative-therapy-developed-for-the-future-treatment-of-hereditary-deafblindness

  Mutations in the USH2A gene are the most common cause of Usher syndrome and retinitis pigmentosa, both severely debilitating hereditary conditions resulting in hearing loss and/or progressive loss of vision, affecting approximately 350,000 individuals worldwide. […] Researchers from the Department of Otorhinolaryngology headed by dr. Erwin van Wijk developed a novel therapeutic strategy to halt the progression or to prevent vision loss in patients as a consequence of USH2A exon 13 mutations. […] The researchers came up with an alternative therapeutic approach named exon-skipping. This method was previously successfully applied as a treatment option for Duchenne Muscular Dystrophy. […] Using this model, the researchers were able to show that skipping of USH2A exon 13 indeed resulted in the production of a slightly shortened, but fully functional USH2A protein.

• #32 Innovative therapy developed for the future treatment of hereditary (deaf)blindness – Radboudumc

  https://www.radboudumc.nl/en/news/2021/innovative-therapy-developed-for-the-future-treatment-of-hereditary-deafblindness

  Based on these results, ProQR Therapeutics has launched a phase 1/2 clinical trial (Stellar) for the evaluation of QR-421a. Very recently the highly promising intermediate results were released. As a next step two multi-center phase 2/3 trials (Sirius and Celeste) will be initiated before the end of this year.

• #33 Deafblindness | Supporting Learning For Children With Needs

  https://slcn.com.au/deafblindness/

  There is no cure for deafblindness, but there are a number of therapies and interventions that can help children with the condition to develop the skills they need to lead happy and fulfilling lives. […] Some common therapies for deafblindness include: Visual Impairment Therapy: This therapy helps children to develop their visual skills, such as scanning, tracking, and eye-hand coordination. […] Hearing Therapy: This therapy helps children to develop their listening skills and learn how to lip-read. […] Speech Therapy: This therapy helps children to develop their speech and communication skills. […] Occupational Therapy: This therapy helps children to develop the fine motor skills they need for everyday activities such as eating, dressing, and grooming. […] The main aim of therapy for deafblindness is to improve communication and social skills. This can be done through a variety of methods, including sign language, Braille, and tactile signing. […] Therapy can also help children with deafblindness to develop independent living skills, such as cooking, dressing, and using public transport.

• #34 Your Deafblind Child: Understanding and Support – ConnectCenter

  https://aphconnectcenter.org/familyconnect/complex-needs/deafblind/

  Schools for the deafblind may provide specialized instruction to help children develop communication, cognitive, and life skills. They may also offer specialized services such as speech and language, occupational, and physical therapy. Explore school options and understand what your child has a right to under IDEA to determine the best learning environment for your child. […] Various devices and equipment can be used to help children who are deafblind, including hearing aids, cochlear implants, tactile communication devices, screen readers, and communication apps. […] This therapy is designed to help children integrate information from their senses to develop a more thorough understanding of their environment. Therapy may include playing with different textures, working with tactile puzzles, and engaging in sensory-motor activities. You can also seek sensory-integration support through a developmental disability specialist, OT, PT, and TVI.

• #35 Creative arts therapy and congenital deafblindness – Deafblind Information

  https://www.deafblindinformation.org.au/news/creative-arts-therapy-and-congenital-deafblindness/

  Find out about the role of a Creative Arts Therapist and what the creative arts can offer people with congenital deafblindness; across the areas of wellbeing, communication, and the development of new interests and skills. […] Claire has a special interest in working creatively with people with congenital deafblindness and their support networks.

• #36

  https://nordicwelfare.org/en/nyheter/remote-therapy-a-solution-during-covid-19-for-people-with-deafblindness/

  Even in normal situations, people with deafblindness constitute a vulnerable group that experience a lot of isolation and the pandemic hit this group hard. […] The municipal deafblind team in Stockholm gives advice and support and works with habilitation for persons with combined hearing and seeing impairment. […] We need to learn what the consequences of this are, and to change the care provided for this target group, says researcher Mattias Ehn, psychologist at Stockholms deafblind team. […] Mattias Ehn works directly with persons with deafblindness in his clinical work. […] Teaching someone to walk with a white cane, you dont do that on Teams, you just have to practise it hands-on. […] The vision specialist at the team in Stockholm teaches Braille. […] As a psychologist, Ehn also noticed a big difference in his clinical activities. […] Even now that the situation has normalised, he still sees 30-40 per cent of his patients remotely. […] Digital tools such as online video meetings served as a bridge builder between parties and involuntarily isolated adults.

• #37 Deaf Blindness – Adwait

  https://developmentaltherapyadwait.com/deaf-blindness-adwait/

  Deafblindness, a unique sensory disability, poses significant challenges to individuals who experience its profound impact on their lives. Combining the loss of both sight and hearing, deafblindness presents formidable hurdles to communication, independence, and social interaction. […] Deafblindness refers to the condition in which an individual experiences varying degrees of both hearing and visual impairment. It is a spectrum disorder that manifests in different ways for each person affected. […] The most significant challenge faced by deafblind individuals is communication. Without access to spoken language and visual cues, conveying and receiving information becomes extremely difficult. […] Deafblindness can greatly impact an individuals mobility and independence. Without visual input, navigating the environment becomes challenging, and the absence of auditory cues hinders the ability to detect potential hazards or obstacles.

• #38

  https://111.wales.nhs.uk/encyclopaedia/d/article/deafblindness/

  Deafblindness is a combination of sight and hearing loss that affects a person’s ability to communicate, access information and get around. […] It’s not always possible to treat the underlying causes of deafblindness, but a range of care and support services is available to help people with the condition. […] The individual abilities and needs of a deafblind person should be assessed soon after they’re diagnosed. This will allow a tailored care plan to be drawn up. […] The care plan will aim to preserve and maximise any remaining sensory functions the person has, teach alternative communication methods such as the Deafblind Manual, help the person retain as much independence as possible, and ensure their educational needs are met. […] Some conditions that affect hearing and vision can be treated using medication or surgery. For example, cataracts can often be treated by surgically implanting an artificial lens in the eye. […] If you’re deafblind, or a friend or family member of someone who’s deafblind, you may find it useful to contact a support group for information and advice.

• #39 Your Deafblind Child: Understanding and Support – ConnectCenter

  https://aphconnectcenter.org/familyconnect/complex-needs/deafblind/

  For children who are deafblind, tactile communication can be very effective. This can involve using tactile signs, tactile symbols, or other forms of touch-based communication. […] Many instructional supports and programs are available to support children who are deafblind. Work with your childs medical team and educators to identify the resources and services best suited to your childs needs. Instructional supports and programs may include: […] Services may involve physical therapy, occupational therapy, speech therapy, a developmental therapist, a Teacher of Students with Visual Impairments, sensory integration therapy, orientation and mobility, communication strategies, assistive technology, and other services provided in the home or community settings. […] The childs vision and hearing levels dictate the need for braille and sign language for effective communication. Tactile signing is another option, where the child feels the signers hand movements to understand messages. Its vital to understand your childs need for multi-modal communication. This helps them guide you and professionals in expressing their preferences and needs. Such understanding promotes growth in various communication methods.

• #40

  https://my.vanderbilt.edu/speds2430/2020-topics/deaf-blindness/

  Braille allows individuals with deaf-blindness to feel for specific arrangements of raised dots that represent different letters and numbers. Although it makes literacy development much more accessible for this population, it still requires more dedication and mental energy during the learning process than traditional print alphabets. […] Additionally, Augmentative and Alternative Communication (AAC) is defined as any device, system, or method that improves the abilities of a person with a particular communication or literacy impairment. AAC allows instructors and caregivers to adapt resources to the individuals specific needs, making a variety of resources much more personalized and, as a result, more relatable and beneficial for individuals with deaf-blindness.

• #41 Your Deafblind Child: Understanding and Support – ConnectCenter

  https://aphconnectcenter.org/familyconnect/complex-needs/deafblind/

  Schools for the deafblind may provide specialized instruction to help children develop communication, cognitive, and life skills. They may also offer specialized services such as speech and language, occupational, and physical therapy. Explore school options and understand what your child has a right to under IDEA to determine the best learning environment for your child. […] Various devices and equipment can be used to help children who are deafblind, including hearing aids, cochlear implants, tactile communication devices, screen readers, and communication apps. […] This therapy is designed to help children integrate information from their senses to develop a more thorough understanding of their environment. Therapy may include playing with different textures, working with tactile puzzles, and engaging in sensory-motor activities. You can also seek sensory-integration support through a developmental disability specialist, OT, PT, and TVI.

• #42 Deaf Blindness – Adwait

  https://developmentaltherapyadwait.com/deaf-blindness-adwait/

  Communication barriers and limited mobility often result in social isolation for individuals with deafblindness. […] Technological advancements have paved the way for innovative solutions to enhance the lives of individuals with deafblindness. Sensory substitution devices, such as haptic feedback systems and vibrotactile aids, can convert auditory and visual information into tactile sensations, allowing individuals to perceive and interpret their surroundings through touch. […] Various assistive communication technologies have been developed to bridge the communication gap for individuals with deafblindness. These include tactile sign language interpreters, Braille devices, and communication apps that facilitate text-based or touch-based communication. […] Comprehensive support services, including training programs and support staff, play a crucial role in empowering individuals with deafblindness. Rehabilitation services can provide training in orientation and mobility, adaptive skills, and assistive technology, enabling individuals to develop greater independence and autonomy.

• #43 Deafblindness and Mental Health | The Signs of Life

  https://thesignsoflife.com.au/deafblindness-mental-health/

  People who are Deafblind face a unique set of challenges when it comes to their mental health and well-being. […] The emotional impact of deafblindness can vary greatly from person to person, however, it is generally true that many Deafblind people have challenges accessing information, communicating and socialising, which can have an impact on their emotional and mental well-being. […] There is a lack of education about mental health in this area. Deafblind services are geared more towards disability than mental health, and there are few targeted programs and services. Additionally, mainstream mental health services are not equipped to deal with the unique set of challenges and issues surrounding mental illness amongst the Deafblind. […] There is very little research available on deafblindness and mental health, and no best practice clinical guidelines or training programs.

• #44 Deafblindness and Mental Health | The Signs of Life

  https://thesignsoflife.com.au/deafblindness-mental-health/

  People who are Deafblind face a unique set of challenges when it comes to their mental health and well-being. […] The emotional impact of deafblindness can vary greatly from person to person, however, it is generally true that many Deafblind people have challenges accessing information, communicating and socialising, which can have an impact on their emotional and mental well-being. […] There is a lack of education about mental health in this area. Deafblind services are geared more towards disability than mental health, and there are few targeted programs and services. Additionally, mainstream mental health services are not equipped to deal with the unique set of challenges and issues surrounding mental illness amongst the Deafblind. […] There is very little research available on deafblindness and mental health, and no best practice clinical guidelines or training programs.

• #45 Deaf, Blind and Deafblind Counselling – The Signs of Life Psychology

  https://thesignsoflife.com.au/deaf-blind-and-deafblind-counselling/

  When working with Deaf, Blind and Deafblind people it is my belief that unique language, communication and cultural needs must be considered and celebrated. […] I have the qualifications and experience to assist Deaf, Blind and Deafblind clients and am passionate about doing so. […] Some common referral issues are: Anxiety, grief, trauma, identity confusion, education and employment issues, additional disabilities, service access issues, self-esteem and assertive skills, self-care and relaxation skills, dual disabilities and dual mental health diagnosis. […] Services may include: Mental health assessments, behaviour assessment and support plans, cognitive assessments, therapy, mindfulness and relaxation skills, collaboration with Deaf, Blind and Deafblind services and mental health consultations with professionals in the community. […] Deaf and Deafblind specific mindfulness and meditation: A Tactile Therapy that mixes haptics, sign language and touch so that people with hearing and visual impairments can have access to the benefits of meditation, mindfulness and sensory relaxation.

• #46 Deaf, Blind and Deafblind Counselling – The Signs of Life Psychology

  https://thesignsoflife.com.au/deaf-blind-and-deafblind-counselling/

  When working with Deaf, Blind and Deafblind people it is my belief that unique language, communication and cultural needs must be considered and celebrated. […] I have the qualifications and experience to assist Deaf, Blind and Deafblind clients and am passionate about doing so. […] Some common referral issues are: Anxiety, grief, trauma, identity confusion, education and employment issues, additional disabilities, service access issues, self-esteem and assertive skills, self-care and relaxation skills, dual disabilities and dual mental health diagnosis. […] Services may include: Mental health assessments, behaviour assessment and support plans, cognitive assessments, therapy, mindfulness and relaxation skills, collaboration with Deaf, Blind and Deafblind services and mental health consultations with professionals in the community. […] Deaf and Deafblind specific mindfulness and meditation: A Tactile Therapy that mixes haptics, sign language and touch so that people with hearing and visual impairments can have access to the benefits of meditation, mindfulness and sensory relaxation.

• #47 $1M grant helps U prepare teachers and therapists in deafblindness education – @theU

  https://attheu.utah.edu/facultystaff/1m-grant-helps-u-prepare-teachers-and-therapists-in-deafblindness-education/

  Special education teachers and occupational therapists will learn together how to meet deafblind students needs. A new $1 million grant to the University of Utahs College of Education aims to help fill that gap. The U is already one of only a handful of universities offering certification in deafblindness education, and the grant from the U.S. Department of Educations Office of Special Education Programs will fund over the next five years the graduate training of 16 special education teachers with an endorsement in deafblindness (TSDBs) and 12 occupational therapists (OTs) who will participate in interdisciplinary coursework and fieldwork. Children with deafblindness stand to gain from the preparation of TSDBs and OTs who are knowledgeable in both fields and who are able to deliver effective services to children as a strong collaborative team, says Sarah Ivy, assistant professor of special education and Lorie Richards, associate professor of occupational and recreational therapies, co-leaders of the combined TSDBOT project. The Us deafblind graduate program began in 2012, and the 23 graduates thus far are all employed in serving the educational needs of children with hearing and/or visual impairments. OTs that are trained as generalists need in-depth training for working with this specialized population. The new Project TSDBOT, according to Ivy and Richards, will address the national shortage of TSDBs and OTs, as well as address the critical need for knowledge and skill in collaborative teaming among these professionals, necessary to serve children with deafblindness given the intensity of need and increasing complexity of the population. This grant will allow the U program to build on its outstanding reputation, she adds, extending our reach to meet the national needs of children with deafblindness while improving the existing TSDB and OT programs to prepare scholars with special skill sets in collaboration, teaming, and working with learners with deafblindness. Teachers for students with deafblindness are committed to ensuring that no child is left behind, Ivy says.

• #48 Project TSDBOT – Teachers with Endorsement in Deafblindness and Occupational Therapists – Department of Special Education – The University of Utah

  https://special-ed.utah.edu/grants/tsdbot.php

  The purpose of this 5-year project is to improve the quality and increase the number of highly qualified personnel prepared to serve school-age learners with deafblindness through interdisciplinary teams. […] Emphasis will be placed on preparing these professionals to provide specialized services to the diverse population of students with deafblindness and their families. […] This project is for Special Education teachers who are interested in obtaining a master’s degree and endorsement in deafblindness.

• #49 Certificate in Deafblindness Education | Shawnee State

  https://www.shawnee.edu/graduate-school/education/certificate-deafblindness-education

  The 15 credit hour graduate level program in Deafblindness provides in-depth knowledge of the needs and supports for children with combined hearing-vision loss (also known as Deafblindness) and is aligned with CEC standards for Deafblindness. It emphasizes current issues and trends, communication, evaluation, teaching strategies, and future planning for these students. […] The program is designed to be completed in one year (Fall-Spring-Summer) and will be delivered online through Blackboard. […] EDDB 6501 Characteristics, Issues and Trends in Education of Learners with Deafblindness […] EDDB 6502 Communication and Sensory Needs for Learners with Deafblindness […] EDDB 6503 Assessment and Educational Planning for Learners with Deafblindness […] EDDB 6504 Academic, Social-emotional and Behavioral Needs of Learners with Deafblindness […] EDDB 6505 Collaboration, Transition and Futures Planning for Learners with Deafblindness.

• #50 4 Ways Healthcare Providers Can Effectively Treat Deafblind Patients

  https://www.hhmglobal.com/knowledge-bank/news/4-ways-healthcare-providers-can-effectively-treat-deafblind-patients

  Deafblindness poses a big challenge not just to patients, but also to the people around them. Because of hearing and vision loss or restrictions, deafblind patients tend to be less mobile and more dependent on others. These situations may even lead to sufferers lacking of confidence and having low self-esteem. When these happen, deafblind individuals are likely to be left alone and be less independent. […] Fortunately, there are healthcare services that could help patients and their families overcome the difficulties they meet. With the advancements in studies on deafblindness, appropriate techniques have been designed. […] Healthcare providers underscore the need to assist deafblind people holistically. Apart from the physical and mental development, healthcare workers also work on patients emotional wellbeing. For this purpose, they provide sessions that serve as avenues for patients to talk about themselvestheir experiences, struggles, and aspirations. The insights and information gained in these sessions become bases for future assessments and activities for the welfare of the patients.

• #51 Supporting Individuals With Deafblindness: Expert Tips – MED-EL Professionals Blog

  https://blog.medel.pro/rehabilitation/deafblindness/

  Deafblindness is a dual sensory loss involving both hearing and vision loss. […] The effects of deafblindness vary depending on the degree of vision or hearing loss but can impact communication, mobility, and access to information. It is therefore imperative that teachers and healthcare professionals adopt a collaborative approach to ensure the best outcomes while addressing the diverse needs of individuals within this population. […] When mapping and providing rehabilitation to cochlear implant recipients within the deafblind community, it is essential to consider the adoption of strategies that will best promote and stimulate the abilities and the autonomy of people who are deafblind, in their individuality. […] Consider a multi-sensorial holistic communication approach: Engage in active observation and exploration of different modes of communication with your client within their preferred environments to support the establishment of meaningful and successful interactions.

• #52 Supporting Individuals With Deafblindness: Expert Tips – MED-EL Professionals Blog

  https://blog.medel.pro/rehabilitation/deafblindness/

  Promote independence: Consider steady exposure in a repetitive manner to daily routines and activities. Ensure that introductions to new experiences and stimuli are presented gradually. […] These are a few factors to consider when working with clients with deafblindness. Most significantly, assist clients in establishing a strong circle of support.

• #53 Deaf Blindness – Adwait

  https://developmentaltherapyadwait.com/deaf-blindness-adwait/

  Communication barriers and limited mobility often result in social isolation for individuals with deafblindness. […] Technological advancements have paved the way for innovative solutions to enhance the lives of individuals with deafblindness. Sensory substitution devices, such as haptic feedback systems and vibrotactile aids, can convert auditory and visual information into tactile sensations, allowing individuals to perceive and interpret their surroundings through touch. […] Various assistive communication technologies have been developed to bridge the communication gap for individuals with deafblindness. These include tactile sign language interpreters, Braille devices, and communication apps that facilitate text-based or touch-based communication. […] Comprehensive support services, including training programs and support staff, play a crucial role in empowering individuals with deafblindness. Rehabilitation services can provide training in orientation and mobility, adaptive skills, and assistive technology, enabling individuals to develop greater independence and autonomy.

• #54 New research will improve the understanding and treatment of deafblindness – SensesWA

  https://www.senseswa.com.au/icf-core-sets-deafblindness/

  New research will improve the understanding and treatment of deafblindness […] The ICF Core Sets for Deafblindness provide a comprehensive framework for enhancing communication and the quality of care for individuals with deafblindness who often struggle to access appropriate support. […] The development of the ICF Core Sets for deafblindness is an important milestone in improving advocacy, clinical practice, service delivery, and research globally, advancing the understanding and treatment of deafblindness.

• #55 Deafblind UK and Birmingham City University announce education and research centre

  https://europe.ophthalmologytimes.com/view/deafblind-uk-and-birmingham-city-university-announce-education-and-research-centre

  The centre will help people with deafblindness to access resources and research programmes. […] This Centre will be a game changer in how we understand more about deafblindness and what we can do to make the lives of all those affected better. […] This Centre will make an important contribution both to greater understanding and public awareness to the ways in which social and technological innovation can assist in the future. […] Addressing unique challenges of living with deafblindness is a step forward in inclusivity.

• #56 Interventions for adults with deafblindness – an integrative review | BMC Health Services Research | Full Text

  https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08958-4

  To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65 years) with deafblindness. […] There is a limited number of evaluated interventions for people with deafblindness. Most of the existing studies involved one to five participants with deafblindness, and only few studies involved a larger number of participants. More research with a larger number of participants are needed, which could be facilitated by international cooperation between practitioners and researchers. […] Interventions can be seen as a process with the purpose to enable people with DB to establish and maintain control over the environment at a level appropriate to their functioning, and the interventions shall be defined by the needs of the people with DB themselves. […] Several articles have addressed the need for tailored interventions for individuals with DB as well as for their family members.

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