Materiały źródłowe

• #1 Primary Progressive Aphasia (PPA): Symptoms & Treatment

  https://my.clevelandclinic.org/health/diseases/17387-primary-progressive-aphasia-ppa

  Primary progressive aphasia (PPA) is a neurological condition that causes you to lose language skills. […] Primary progressive aphasia (PPA) is a neurological disorder that affects a persons ability to speak and communicate. […] The condition worsens over time, as people lose their ability to write, speak or understand language. […] Primary progressive aphasia symptoms may include: Difficulty finding the correct word for an object consistently. […] There isnt a cure for primary progressive aphasia and no way to stop its progression. But some treatments may slow the diseases progression or increase your quality of life. […] People may benefit from: Participating in speech therapy and cognitive therapy can help to maintain language and thinking skills for as long as possible. […] There isnt a way to reverse primary progressive aphasia, but treatment may help you maintain communication skills for as long as possible.

• #2 Primary Progressive Aphasia (PPA) | Conditions & Treatments | UR Medicine

  https://www.urmc.rochester.edu/conditions-and-treatments/primary-progressive-aphasia

  PPA is diagnosed through a comprehensive evaluation that includes: […] Treatment focuses on maximizing communication abilities and improving quality of life. UR Medicine offers a multidisciplinary approach, combining neurology, speech-language pathology, and supportive care to help individuals and families navigate this condition. […] Families and caregivers receive training and resources to help manage communication challenges and support their loved ones effectively. […] Integrated neuropsychology services to address changes in memory, behavior, and emotional well-being. […] Education, counseling, and support groups to help families and caregivers navigate the challenges of PPA.

• #3 Care Partner Training: Resources and Guidance for Managing Primary Progressive Aphasia

  https://states.aarp.org/virginia/care-partner-training-resources-and-guidance-for-managing-primary-progressive-aphasia

  Dementia is not only a disease that affects older people. […] Primary Progressive Aphasia (PPA) is part of the spectrum associated with Frontal Temporal Degeneration. […] A diagnosis of PPA helps create a plan of care, said Reiter. […] Reiter strongly recommends the use of a speech language pathologist (SLP) to develop a personalized plan of care and address issues between the patient and others. […] In the early stages of PPA, the focus is on creating an environment where there is better communication and understanding. […] Care partners can help by reducing background noise and distractions, using face-to-face communication as much as possible, speaking slowly and allowing time for a response, and asking for clarification. […] During the middle stage of PPA, a speech language pathologist can help develop scripts to help conversations on items of interest or favorite activities.

• #4 Aphasia or Primary Progressive Aphasia?

  https://blog.chsc.org/blog/aphasia-or-primary-progressive-aphasia

  Primary Progressive Aphasia (PPA) is a neurological syndrome impacting language. PPA differs from aphasia resulting from a stroke or brain injury as it is caused by neurodegenerative diseases (Alzheimers Disease, Frontotemporal Dementia, Amyotrophic Lateral Sclerosis). PPA is caused by deterioration of the brain tissue used for speech production and language. The symptoms of PPA differ from person to person as the symptoms are dependent on which parts of the left hemisphere of the brain are damaged. […] Individuals with PPA may benefit from using new communication skills provided by a speech-language pathologist, or by augmenting their communication with a speech-generating device. […] We offer individual therapy services to address a variety of difficulties experienced after a stroke or diagnosis of PPA. We focus on building a treatment plan together with the client, their family, and caregivers to enhance their quality of life.

• #5 Primary Progressive Aphasia – Northwestern University Center for Audiology, Speech, Language, and Learning

  https://nucasll.northwestern.edu/speech-language-pathology/aphasia/primary-progressive-aphasia/

  Primary Progressive Aphasia (PPA) is a condition that involves a progressive deterioration of language functioning. […] PPA results from degeneration in areas of the brain responsible for speech and language. […] According to Mesulam and colleagues, PPA is defined as a progressive disorder of language, with cognitive functions and activities of daily living remaining relatively preserved for at least two years. […] Most people with primary progressive aphasia maintain ability to take care of themselves, pursue hobbies, and, in some instances, remain employed. […] Speech-language therapy can help improve communication and assist individuals to compensate for the loss of language, resulting in improved quality of life. […] The Northwestern University Center for Audiology, Speech, Language, and Learning provides comprehensive evaluation and therapy services on the Evanston campus. […] Diagnostic evaluations determine the course of treatment, including frequency and appropriateness of individual and/or group therapy.

• #6 Primary progressive aphasia – Symptoms and causes – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/symptoms-causes/syc-20350499

  Primary progressive aphasia care at Mayo Clinic […] People with primary progressive aphasia eventually lose the ability to speak and write. This may take anywhere from 3 to 15 years. People with the condition also have trouble understanding written and spoken language. […] As the disease progresses, other mental skills such as memory, planning and organizing can be affected. Some people develop other symptoms such as problems with movement, balance and swallowing. With these complications, people with the disease eventually need help with day-to-day care. […] People with primary progressive aphasia also can develop depression as the disease progresses. Other complications might include blunted emotions such as not showing concern, poor judgment or social behavior that’s not appropriate.

• #7 Primary progressive aphasia

  https://johnsonmemorial.org/jmh-health/disease-conditions/con-20155110

  Primary progressive aphasia is a rare nervous system syndrome that affects the ability to communicate. […] People with primary progressive aphasia may continue caring for themselves and participating in daily activities for several years. […] People with primary progressive aphasia eventually lose the ability to speak and write. […] With these complications, people with the disease eventually will need help with day-to-day care. […] If you’re a caregiver of someone with primary progressive aphasia, taking these steps can help everyone cope: Learn all you can about the condition. […] Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. […] Support groups may be offered for caregivers and people with primary progressive aphasia or related conditions.

• #8

  https://www.brain.northwestern.edu/dementia/primary-progressive-aphasia/treatment.html

  Many clinicians are involved in the diagnosis and care of individuals living with primary progressive aphasia (PPA) and their families. […] The members of one’s care team will vary by individual and over time. […] Examples of individuals who may be a part of the care team include: Neurologist (specialists in brain disorders who make the diagnosis and monitors its symptoms), Neuropsychologist (evaluate cognitive abilities through specialized paper and pencil tests), Psychiatrist (assist with behavioral and mood symptoms), Social worker (help families navigate the difficult decisions related to their diagnosis), Speech and language pathologist (provide strategies to maximize communication abilities), Physical and occupational therapists (help optimize movement and activities of daily living).

• #9 Primary Progressive Aphasia – The National Aphasia Association

  https://aphasia.org/aphasia-resources/primary-progressive-aphasia/

  There is no cure for PPA, but some services and medications can help manage some of the symptoms of PPA. […] It is important that a team of professionals with a lot of PPA knowledge work together to help the person with PPA and their family members. […] Speech-language pathologists (aka speech therapists) work with people with PPA and PPAOS and their families to understand the disease, how it impacts communication, and develop strategies to maximize communication in daily life. […] Speech therapy is for the person with PPA or PPAOS and their families. It is important to include family in speech therapy sessions so that they can learn how to support communication over time. […] Speech therapy should always be personalized to target words and sentences used in the persons daily life. Generic exercises do not have a place in speech therapy for PPA.

• #10

  https://www.brain.northwestern.edu/dementia/primary-progressive-aphasia/treatment.html

  Many clinicians are involved in the diagnosis and care of individuals living with primary progressive aphasia (PPA) and their families. […] The members of one’s care team will vary by individual and over time. […] Examples of individuals who may be a part of the care team include: Neurologist (specialists in brain disorders who make the diagnosis and monitors its symptoms), Neuropsychologist (evaluate cognitive abilities through specialized paper and pencil tests), Psychiatrist (assist with behavioral and mood symptoms), Social worker (help families navigate the difficult decisions related to their diagnosis), Speech and language pathologist (provide strategies to maximize communication abilities), Physical and occupational therapists (help optimize movement and activities of daily living).

• #11 Living with PPA – Rare Dementia Support

  https://www.raredementiasupport.org/primary-progressive-aphasia/living-with-ppa/

  This page is designed to provide guidance to help manage some of the day-to-day experiences and symptoms of primary progressive aphasia (PPA) […] It is important to note that, as PPA is rare, many healthcare services do not have much experience supporting people with PPA. However, you may still find it helpful to seek support from a variety of health and social care professionals such as GPs and nurses, community mental health teams and social workers. […] Speech and language therapy can help people living with PPA and their families to better manage their communication difficulties. Speech and language therapy can help people use electronic devices and other strategies to help bypass their speech difficulty. […] Assessment of swallowing and diet is another important role for speech and language therapists swallowing can become affected in the later stages of PPA.

• #12

  https://www.brain.northwestern.edu/dementia/primary-progressive-aphasia/treatment.html

  Many clinicians are involved in the diagnosis and care of individuals living with primary progressive aphasia (PPA) and their families. […] The members of one’s care team will vary by individual and over time. […] Examples of individuals who may be a part of the care team include: Neurologist (specialists in brain disorders who make the diagnosis and monitors its symptoms), Neuropsychologist (evaluate cognitive abilities through specialized paper and pencil tests), Psychiatrist (assist with behavioral and mood symptoms), Social worker (help families navigate the difficult decisions related to their diagnosis), Speech and language pathologist (provide strategies to maximize communication abilities), Physical and occupational therapists (help optimize movement and activities of daily living).

• #13

  https://www.brain.northwestern.edu/dementia/primary-progressive-aphasia/treatment.html

  Other professionals may include creative arts therapists, individual/family therapists, elder law and estate planning attorneys, palliative care/hospice, mediation services, companion care, adult day services and nursing services. […] Our center offers quality-of-life programs that may be helpful for individuals with PPA and their families. […] Speech and language therapy is an important intervention for all individuals with PPA. […] Speech-language therapists can help identify strategies to maximize communication abilities and quality of life throughout the course of the illness. […] Because every individual living with PPA is different, strategies may vary from individual to individual. […] Social workers are available in the Neurobehavior and Memory Clinic to meet with patients and families to develop a personal and customized approach to care.

• #14 Primary Progressive Aphasia (PPA) | Conditions & Treatments | UR Medicine

  https://www.urmc.rochester.edu/conditions-and-treatments/primary-progressive-aphasia

  PPA is diagnosed through a comprehensive evaluation that includes: […] Treatment focuses on maximizing communication abilities and improving quality of life. UR Medicine offers a multidisciplinary approach, combining neurology, speech-language pathology, and supportive care to help individuals and families navigate this condition. […] Families and caregivers receive training and resources to help manage communication challenges and support their loved ones effectively. […] Integrated neuropsychology services to address changes in memory, behavior, and emotional well-being. […] Education, counseling, and support groups to help families and caregivers navigate the challenges of PPA.

• #15 UT Health Austin | Primary Progressive Aphasia

  https://uthealthaustin.org/conditions/primary-progressive-aphasia

  Primary progressive aphasia (PPA) is a neurodegenerative disorder that predominantly affects speech and language abilities during the initial stages. […] Currently, there are no medications to cure PPA and its underlying disease. However, behavioral treatment with a speech-language pathologist can often help individuals maintain current communication abilities as well as explore alternative forms of communication (e.g., nonverbal communication using gestures, pointing, low-tech or high-tech devices, etc.) to help meet communication needs as the disorder progresses. […] At UT Health Austin, we take a multidisciplinary approach to your care. This means you will benefit from the expertise of multiple specialists across a variety of disciplines caring for you in one place to avoid having to schedule multiple appointments with providers at locations all over the city. The Comprehensive Memory Center care team includes neurologists, a geriatric psychiatrist, neuropsychologists, nurses, a speech-language pathologist, social workers, and more who work together to help you get back to the things in your life that matter most to you. […] We are committed to communicating and coordinating your care with referring physicians and other partners in the community to ensure that we are providing you with comprehensive, whole-person care.

• #16 Support in later stages – Rare Dementia Support

  https://www.raredementiasupport.org/primary-progressive-aphasia/support-in-later-stages-ppa/

  This page aims to guide all those affected by a diagnosis of primary progressive aphasia (PPA) through the later stages of the condition. This includes carers, family and friends. […] It is important that care home staff are aware of the specific needs of someone living with PPA. However, because it is so rare it is difficult to find a care home or care staff who are familiar with PPA. […] Care home staff may also find our short film useful, which features people living with different forms of PPA discussing their everyday experiences and challenges, as well as clinical explanations and insights. […] When a person with dementia is approaching the advanced stages of their condition, it can be a very difficult time for them and their loved ones. […] The duration of PPA differs from person to person. Although PPA itself is a life-shortening condition, people with PPA will often be affected by another illness, such as pneumonia.

• #17 Living with PPA – Rare Dementia Support

  https://www.raredementiasupport.org/primary-progressive-aphasia/living-with-ppa/

  This page is designed to provide guidance to help manage some of the day-to-day experiences and symptoms of primary progressive aphasia (PPA) […] It is important to note that, as PPA is rare, many healthcare services do not have much experience supporting people with PPA. However, you may still find it helpful to seek support from a variety of health and social care professionals such as GPs and nurses, community mental health teams and social workers. […] Speech and language therapy can help people living with PPA and their families to better manage their communication difficulties. Speech and language therapy can help people use electronic devices and other strategies to help bypass their speech difficulty. […] Assessment of swallowing and diet is another important role for speech and language therapists swallowing can become affected in the later stages of PPA.

• #18 Group interventions for people with primary progressive aphasia and their care partners: Considerations for clinical practice – PubMed

  https://pubmed.ncbi.nlm.nih.gov/39213021/

  Primary progressive aphasia (PPA) describes a group of language-led dementias. […] Speech and language therapy is the main available intervention for people with PPA. […] The aim of this study was to gather the collective intelligence of expert speech and language therapists/pathologists delivering group therapy for people with PPA to synthesize guidance for clinicians. […] This initial synthesis of the current state of the art in PPA therapy groups highlights several important considerations around candidacy, content and ecological validity of delivering group intervention for people with PPA.

• #19 4 Approaches to Primary Progressive Aphasia Treatment

  https://www.healthline.com/health/primary-progressive-aphasia-treatment

  Treatments for primary progressive aphasia are aimed at managing symptoms, enhancing communication, and improving quality of life. […] While no cure exists, treatments are available to effectively manage symptoms and enhance communication strategies. […] While research has increased our understanding of primary progressive aphasia (PPA)s underlying mechanisms, the primary treatment emphasis remains on alleviating symptoms, enhancing communication strategies, and enhancing the overall quality of life for affected individuals. […] Speech and language therapy: Studies show that training programs that emphasize language skills (e.g., sentence production, naming tests, verbal fluency) can be helpful for people with PPA. […] Communication strategies: Learning alternative methods of communication, such as using gestures, writing, or trying augmentative and alternative communication (AAC) devices, can help improve communication as language abilities begin to decline.

• #20 Primary progressive aphasia – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/diagnosis-treatment/drc-20350504

  Our caring team of Mayo Clinic experts can help you with your primary progressive aphasia-related health concerns […] Primary progressive aphasia can’t be cured, and there are no medicines to treat it. However, some therapies might help improve or maintain your ability to communicate and manage your condition. […] Working with a speech-language pathologist, focusing primarily on ways to make up for lost language skills, can be helpful. Although speech and language therapy can’t stop the progression of the condition, it can help you manage your condition. The therapy also may slow the progression of some symptoms. Your therapist may recommend that your caregivers also attend the appointments. […] If your symptoms affect movement and balance, working with a physical therapist and an occupational therapist can help manage the symptoms.

• #21 Primary progressive aphasia (PPA): Symptoms, treatment, more

  https://www.medicalnewstoday.com/articles/primary-progressive-aphasia

  Primary progressive aphasia (PPA) is a neurological condition that affects a persons ability to communicate. […] There is currently no cure for PPA, but speech therapy and other communication strategies can help manage the symptoms and improve a persons quality of life. […] Speech and language therapy is the primary form of treatment for PPA. This therapy aims to: improve communication skills such as speaking, writing, and understanding language; teach alternative communication methods such as using gestures and writing notes; teach exercises to strengthen the muscles necessary for speech and writing; help improve memory and attention. […] Currently, there is no cure for PPA, but treatments are available to help manage symptoms. For example, speech and language therapy can help a person communicate, and medications can manage mental health symptoms. […] Individuals with PPA and their caregivers should seek support from healthcare professionals, support groups, and other resources. With proper care and management, people with PPA can maintain their connections with others.

• #22 Primary Progressive Aphasia – Symptoms and Therapies

  https://speechpathologysolutions.com/primary-progressive-aphasia-symptoms-and-therapies/

  Primary Progressive Aphasia (PPA) is a neurological condition that increasingly impairs language abilities, affecting many aspects of communication. […] Effective management of Primary Progressive Aphasia requires a multidisciplinary approach that addresses both communication and cognitive aspects of the condition. […] Speech and Language Therapy: This therapy is crucial in PPA management. It includes tailored exercises focused on maintaining existing language abilities. […] Cognitive Rehabilitation: PPA can indirectly affect cognitive functions like memory, problem-solving, and attention. […] Family Education and Support: Involving family members in the therapy process is essential. Educating them about PPA helps them understand the condition and how to communicate effectively. […] The integration of technology into the therapy for Primary Progressive Aphasia has significantly enhanced treatment approaches and outcomes. […] Communication Strategies: Individuals with PPA often learn new ways to communicate as their condition progresses. […] Support Systems: Having support from healthcare professionals, such as speech-language pathologists, guides in managing the condition.

• #23 Primary Progressive Aphasia – Northwestern University Center for Audiology, Speech, Language, and Learning

  https://nucasll.northwestern.edu/speech-language-pathology/aphasia/primary-progressive-aphasia/

  Primary Progressive Aphasia (PPA) is a condition that involves a progressive deterioration of language functioning. […] PPA results from degeneration in areas of the brain responsible for speech and language. […] According to Mesulam and colleagues, PPA is defined as a progressive disorder of language, with cognitive functions and activities of daily living remaining relatively preserved for at least two years. […] Most people with primary progressive aphasia maintain ability to take care of themselves, pursue hobbies, and, in some instances, remain employed. […] Speech-language therapy can help improve communication and assist individuals to compensate for the loss of language, resulting in improved quality of life. […] The Northwestern University Center for Audiology, Speech, Language, and Learning provides comprehensive evaluation and therapy services on the Evanston campus. […] Diagnostic evaluations determine the course of treatment, including frequency and appropriateness of individual and/or group therapy.

• #24 Primary Progressive Aphasia: Therapy Tips for the Speech-Language Pathologist

  https://tactustherapy.com/ppa-treatment-slp-primary-progressive-aphasia/

  With PPA, dont expect the same carryover of skills as you would when treating a stroke survivor with aphasia. […] Create opportunities for your client to practice important words and phrases. […] If its early in the progression of primary progressive aphasia, have the family and the client pay attention to routines and phrases used in everyday life. […] As you do with aphasia or dementia, identifying and using communication strengths can help you determine effective compensatory strategies, as well as build confidence. […] Clients who are still independent in the community may benefit from carrying an individualized information card. […] As PPA progresses and communication skills (especially verbal skills) decline, nonverbal skills become that much more important. […] Many people choose to preserve their loved ones voice by voice banking.

• #25 Primary Progressive Aphasia – The National Aphasia Association

  https://aphasia.org/aphasia-resources/primary-progressive-aphasia/

  There is no cure for PPA, but some services and medications can help manage some of the symptoms of PPA. […] It is important that a team of professionals with a lot of PPA knowledge work together to help the person with PPA and their family members. […] Speech-language pathologists (aka speech therapists) work with people with PPA and PPAOS and their families to understand the disease, how it impacts communication, and develop strategies to maximize communication in daily life. […] Speech therapy is for the person with PPA or PPAOS and their families. It is important to include family in speech therapy sessions so that they can learn how to support communication over time. […] Speech therapy should always be personalized to target words and sentences used in the persons daily life. Generic exercises do not have a place in speech therapy for PPA.

• #26 Primary Progressive Aphasia – The National Aphasia Association

  https://aphasia.org/aphasia-resources/primary-progressive-aphasia/

  There is no cure for PPA, but some services and medications can help manage some of the symptoms of PPA. […] It is important that a team of professionals with a lot of PPA knowledge work together to help the person with PPA and their family members. […] Speech-language pathologists (aka speech therapists) work with people with PPA and PPAOS and their families to understand the disease, how it impacts communication, and develop strategies to maximize communication in daily life. […] Speech therapy is for the person with PPA or PPAOS and their families. It is important to include family in speech therapy sessions so that they can learn how to support communication over time. […] Speech therapy should always be personalized to target words and sentences used in the persons daily life. Generic exercises do not have a place in speech therapy for PPA.

• #27 Primary Progressive Aphasia – The National Aphasia Association

  https://aphasia.org/aphasia-resources/primary-progressive-aphasia/

  There is no cure for PPA, but some services and medications can help manage some of the symptoms of PPA. […] It is important that a team of professionals with a lot of PPA knowledge work together to help the person with PPA and their family members. […] Speech-language pathologists (aka speech therapists) work with people with PPA and PPAOS and their families to understand the disease, how it impacts communication, and develop strategies to maximize communication in daily life. […] Speech therapy is for the person with PPA or PPAOS and their families. It is important to include family in speech therapy sessions so that they can learn how to support communication over time. […] Speech therapy should always be personalized to target words and sentences used in the persons daily life. Generic exercises do not have a place in speech therapy for PPA.

• #28 Primary Progressive Aphasia – The National Aphasia Association

  https://aphasia.org/aphasia-resources/primary-progressive-aphasia/

  After your first round of speech therapy, it is important for you and your family to visit your speech therapist every six months or so. Another round of therapy may be recommended as PPA progresses so that you and your family can learn new strategies to help communication. […] Occupational therapists and physical therapists may help with home safety, mobility, and activities of daily living.

• #29 Group interventions for people with primary progressive aphasia and their care partners: Considerations for clinical practice – PubMed

  https://pubmed.ncbi.nlm.nih.gov/39213021/

  Primary progressive aphasia (PPA) describes a group of language-led dementias. […] Speech and language therapy is the main available intervention for people with PPA. […] The aim of this study was to gather the collective intelligence of expert speech and language therapists/pathologists delivering group therapy for people with PPA to synthesize guidance for clinicians. […] This initial synthesis of the current state of the art in PPA therapy groups highlights several important considerations around candidacy, content and ecological validity of delivering group intervention for people with PPA.

• #30 Primary Progressive Aphasia (PPA) Programs – Minnesota Connect Aphasia Now

  https://mncan.org/primary-progressive-aphasia-ppa-program/

  Primary Progressive Aphasia (PPA) is language disorder that gradually impairs a persons ability to speak or comprehend language over time. […] Staying Connected is an introductory 8-week session for persons with PPA and their care partners offered by MnCAN two times per year. […] MnCAN strongly encourages a care partner (friend or family member) to also participate in the full class. […] The Staying Connected program is designed for people diagnosed with PPA in the first 1-2 years. Following completion of the Staying Connected program, a monthly PPA support group is offered. […] The overall program goals are to offer support to both the care partner AND person with PPA. […] Over the course of 8 weekly 2-hour sessions, a speech-language pathologist with the support of graduate student(s), provides education about Primary Progressive Aphasia.

• #31 Primary Progressive Aphasia (PPA) Programs – Minnesota Connect Aphasia Now

  https://mncan.org/primary-progressive-aphasia-ppa-program/

  This small group of 6-7 people with PPA meets weekly to engage in conversation on topics of interest. […] This group is for people who have completed the MnCAN Staying Connected Education Class. […] The PPA Support Group is an ongoing support group for persons with PPA and their care partners who have completed the Staying Connected Class. […] The purpose of this group is to provide ongoing support during the journey with PPA. Both care partners and persons with PPA are invited to attend. […] The support group has an in-person option OR virtual option. The group is facilitated by a speech-language pathologist. No tuition or registration is required.

• #32 Primary Progressive Aphasia (PPA) Programs – Minnesota Connect Aphasia Now

  https://mncan.org/primary-progressive-aphasia-ppa-program/

  Primary Progressive Aphasia (PPA) is language disorder that gradually impairs a persons ability to speak or comprehend language over time. […] Staying Connected is an introductory 8-week session for persons with PPA and their care partners offered by MnCAN two times per year. […] MnCAN strongly encourages a care partner (friend or family member) to also participate in the full class. […] The Staying Connected program is designed for people diagnosed with PPA in the first 1-2 years. Following completion of the Staying Connected program, a monthly PPA support group is offered. […] The overall program goals are to offer support to both the care partner AND person with PPA. […] Over the course of 8 weekly 2-hour sessions, a speech-language pathologist with the support of graduate student(s), provides education about Primary Progressive Aphasia.

• #33 4 Approaches to Primary Progressive Aphasia Treatment

  https://www.healthline.com/health/primary-progressive-aphasia-treatment

  Treatments for primary progressive aphasia are aimed at managing symptoms, enhancing communication, and improving quality of life. […] While no cure exists, treatments are available to effectively manage symptoms and enhance communication strategies. […] While research has increased our understanding of primary progressive aphasia (PPA)s underlying mechanisms, the primary treatment emphasis remains on alleviating symptoms, enhancing communication strategies, and enhancing the overall quality of life for affected individuals. […] Speech and language therapy: Studies show that training programs that emphasize language skills (e.g., sentence production, naming tests, verbal fluency) can be helpful for people with PPA. […] Communication strategies: Learning alternative methods of communication, such as using gestures, writing, or trying augmentative and alternative communication (AAC) devices, can help improve communication as language abilities begin to decline.

• #34 Primary Progressive Aphasia | Memory and Aging Center

  https://memory.ucsf.edu/dementia/primary-progressive-aphasia

  Primary progressive aphasia (PPA) is a condition that slowly damages the parts of the brain that control speech and language. People with PPA usually have difficulty speaking, naming objects, or understanding conversations. […] People with language difficulties may benefit from speech therapy to help them learn alternative ways to supplement and compensate for their lost skills. Maintaining adequate communication and social connections are critical. […] Unlike many people who develop aphasia from head injury or stroke, people with PPA do not typically improve with time, but a therapist may be helpful in maximizing abilities and exploring other ways to communicate. Non-verbal techniques for communicating, such as gesturing or pointing to pictures may help people express themselves. […] Aphasia identification cards explaining that the person has a language problem may be helpful. Many speech pathologists and occupational therapists have their own practices, while others are available through local hospitals and medical centers.

• #35 Help & Support: Communicating with Persons Living with PPA – Tips and Strategies | AFTD

  https://www.theaftd.org/posts/help-and-hope/communicating-with-persons-living-with-ppa-tips-and-strategies/

  Primary progressive aphasia (PPA) is characterized by a gradual loss of one’s ability to speak, read, write, and understand speech. The inability to communicate is troublesome for the person living with FTD, as well for those caring for and supporting them. […] Adapting how one communicates with persons living with FTD can increase their understanding. Below are some tips and tools that may help you do just that. […] Simplify your speech without dumbing it down. […] Use communication aids that the person living with PPA is enthusiastic about using, such as: […] Ask a speech language therapist for help identifying other tools that will meet your specific needs and abilities. […] When using written language (for example, emails) to communicate to someone living with PPA, consider the following: […] When in a conversation with a person living with PPA: […] Other tips: […] Some reminders: […] All communication strategies and aids should build on the strengths of the person with living PPA. If they weren’t technologically savvy before their diagnosis, that probably won’t change.

• #36 Primary progressive aphasia support – Alzheimer’s Research UK

  https://www.alzheimersresearchuk.org/dementia-information/types-of-dementia/primary-progressive-aphasia/support/

  A diagnosis of PPA will affect people in different ways and can come as a shock. People and their families may need time to come to terms with a diagnosis. With the right information and support, people can carry on with their day to day lives for some time. Some people find that talking to others in the same situation can help. […] You can also talk to your doctor or nurse for advice on caring for someone with PPA. […] For people with any type of PPA, their speech and language is affected first. […] When talking to someone with PPA, there are things you can do to help them: Be patient, warm and understanding. Find a quiet place to talk. Don’t ask more than one question at a time. Acknowledge their frustration when they show it, don’t dismiss it. Ask the person how you can help them communicate. Speak clearly and so that the person can see you speaking. Check that you have understood what they mean. One-to-one conversations can work better than talking in groups.

• #37 Primary progressive aphasia support – Alzheimer’s Research UK

  https://www.alzheimersresearchuk.org/dementia-information/types-of-dementia/primary-progressive-aphasia/support/

  A diagnosis of PPA will affect people in different ways and can come as a shock. People and their families may need time to come to terms with a diagnosis. With the right information and support, people can carry on with their day to day lives for some time. Some people find that talking to others in the same situation can help. […] You can also talk to your doctor or nurse for advice on caring for someone with PPA. […] For people with any type of PPA, their speech and language is affected first. […] When talking to someone with PPA, there are things you can do to help them: Be patient, warm and understanding. Find a quiet place to talk. Don’t ask more than one question at a time. Acknowledge their frustration when they show it, don’t dismiss it. Ask the person how you can help them communicate. Speak clearly and so that the person can see you speaking. Check that you have understood what they mean. One-to-one conversations can work better than talking in groups.

• #38 Primary Progressive Aphasia: Therapy Tips for the Speech-Language Pathologist

  https://tactustherapy.com/ppa-treatment-slp-primary-progressive-aphasia/

  With PPA, dont expect the same carryover of skills as you would when treating a stroke survivor with aphasia. […] Create opportunities for your client to practice important words and phrases. […] If its early in the progression of primary progressive aphasia, have the family and the client pay attention to routines and phrases used in everyday life. […] As you do with aphasia or dementia, identifying and using communication strengths can help you determine effective compensatory strategies, as well as build confidence. […] Clients who are still independent in the community may benefit from carrying an individualized information card. […] As PPA progresses and communication skills (especially verbal skills) decline, nonverbal skills become that much more important. […] Many people choose to preserve their loved ones voice by voice banking.

• #39 Primary Progressive Aphasia: Symptoms, Diagnosis, Treatment, and More

  https://www.healthline.com/health/primary-progressive-aphasia

  Primary progressive aphasia is a rare type of aphasia that is caused by brain atrophy. Its associated with dementia. While theres no cure, treatment can help with its progression. […] Most types of aphasia can be treated, and recovery is often possible. However, there is currently no cure for a rare type of aphasia called primary progressive aphasia. […] Treatments such as speech therapy can help maintain communication skills and slow down the progression of symptoms, but they cannot cure this type of aphasia entirely. […] Therapy can help you manage primary progressive aphasia and slow the progression of your symptoms. Speech and language therapy is the primary form of treatment. […] During speech and language therapy, a speech therapist will guide you through communication exercises and will give you the tools you need for daily life with primary progressive aphasia. […] Sometimes, communication devices and other aids are helpful for people with primary progressive aphasia. Your speech therapist will help you find what works best for you. […] There is no cure for primary progressive aphasia, but speech therapy can help slow down the progression of symptoms.

• #40 Nonfluent Variant Primary Progressive Aphasia | Memory and Aging Center

  https://memory.ucsf.edu/dementia/primary-progressive-aphasia/nonfluent-variant-primary-progressive-aphasia

  People with nfvPPA gradually have more trouble expressing themselves, even though they still understand the meaning of words. […] Speech therapy may help improve communication between people with nfvPPA and others. Communication devices, like tablets and type-to-talk instruments, or picture books, can help the person with nfvPPA express what they want to say with less anxiety. […] If symptoms of weakness or difficulty using the arm or leg develop, physical and occupational therapy may help manage them and provide coping skills and strategies. A swallowing evaluation and a modification of diet and consistency of liquids may be necessary for people with nfvPPA who develop swallowing difficulties. […] Research has shown that physical exercise helps to enhance brain health and improves mood and general fitness. A balanced diet, enough sleep, and limited alcohol intake are other important ways to promote good health. Other illnesses that affect the brain, such as diabetes, high blood pressure, and high cholesterol, should also be treated if present.

• #41 Primary Progressive Aphasia – Symptoms and Therapies

  https://speechpathologysolutions.com/primary-progressive-aphasia-symptoms-and-therapies/

  Primary Progressive Aphasia (PPA) is a neurological condition that increasingly impairs language abilities, affecting many aspects of communication. […] Effective management of Primary Progressive Aphasia requires a multidisciplinary approach that addresses both communication and cognitive aspects of the condition. […] Speech and Language Therapy: This therapy is crucial in PPA management. It includes tailored exercises focused on maintaining existing language abilities. […] Cognitive Rehabilitation: PPA can indirectly affect cognitive functions like memory, problem-solving, and attention. […] Family Education and Support: Involving family members in the therapy process is essential. Educating them about PPA helps them understand the condition and how to communicate effectively. […] The integration of technology into the therapy for Primary Progressive Aphasia has significantly enhanced treatment approaches and outcomes. […] Communication Strategies: Individuals with PPA often learn new ways to communicate as their condition progresses. […] Support Systems: Having support from healthcare professionals, such as speech-language pathologists, guides in managing the condition.

• #42 [Primary Progressive Aphasia] | OHSU

  https://www.ohsu.edu/reknew/primary-progressive-aphasia

  The goal of our research was to determine whether using Augmentative and Alternative Communication technology improves conversation in everyday settings for individuals with primary progressive aphasia. We have developed several applications that are accessed through personal tablets at home. […] For more information about primary progressive aphasia, please contact Aimee Mooney, M.S., CCC-SLP/L. […] Here you will find short descriptions of the grants that we have completed on primary progressive aphasia. […] Writing papers about our work is an important part of the research process. […] Every year our diverse team attends conferences around the country and presents the important work we are doing: […] We hope you will find these handouts helpful for those with primary progressive aphasia: […] We encourage research participants and their families to take a look:

• #43 Help & Support: Communicating with Persons Living with PPA – Tips and Strategies | AFTD

  https://www.theaftd.org/posts/help-and-hope/communicating-with-persons-living-with-ppa-tips-and-strategies/

  Primary progressive aphasia (PPA) is characterized by a gradual loss of one’s ability to speak, read, write, and understand speech. The inability to communicate is troublesome for the person living with FTD, as well for those caring for and supporting them. […] Adapting how one communicates with persons living with FTD can increase their understanding. Below are some tips and tools that may help you do just that. […] Simplify your speech without dumbing it down. […] Use communication aids that the person living with PPA is enthusiastic about using, such as: […] Ask a speech language therapist for help identifying other tools that will meet your specific needs and abilities. […] When using written language (for example, emails) to communicate to someone living with PPA, consider the following: […] When in a conversation with a person living with PPA: […] Other tips: […] Some reminders: […] All communication strategies and aids should build on the strengths of the person with living PPA. If they weren’t technologically savvy before their diagnosis, that probably won’t change.

• #44 Primary progressive aphasia – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/diagnosis-treatment/drc-20350504

  Losing the ability to communicate can be stressful and frustrating. This is true for both the person with primary progressive aphasia and for friends and family. If you’re a caregiver of someone with primary progressive aphasia, taking these steps can help everyone cope: Learn all you can about the condition. Have the person with the condition carry an identification card and other materials that can help explain the condition to others. Give the person time to talk. Speak slowly in simple, adult sentences and listen carefully. Talk with the person with the condition about how you can help. Take care of your personal needs. Get enough rest and make time for social activities. […] Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. They also may need to plan the person’s finances and help make legal decisions to prepare for more-serious stages of the condition. Start this process early so the person with primary progressive aphasia can be involved.

• #45

• #46 Primary Progressive Aphasia (PPA) | Conditions & Treatments | UR Medicine

  https://www.urmc.rochester.edu/conditions-and-treatments/primary-progressive-aphasia

  PPA is diagnosed through a comprehensive evaluation that includes: […] Treatment focuses on maximizing communication abilities and improving quality of life. UR Medicine offers a multidisciplinary approach, combining neurology, speech-language pathology, and supportive care to help individuals and families navigate this condition. […] Families and caregivers receive training and resources to help manage communication challenges and support their loved ones effectively. […] Integrated neuropsychology services to address changes in memory, behavior, and emotional well-being. […] Education, counseling, and support groups to help families and caregivers navigate the challenges of PPA.

• #47 Primary progressive aphasia – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/diagnosis-treatment/drc-20350504

  Losing the ability to communicate can be stressful and frustrating. This is true for both the person with primary progressive aphasia and for friends and family. If you’re a caregiver of someone with primary progressive aphasia, taking these steps can help everyone cope: Learn all you can about the condition. Have the person with the condition carry an identification card and other materials that can help explain the condition to others. Give the person time to talk. Speak slowly in simple, adult sentences and listen carefully. Talk with the person with the condition about how you can help. Take care of your personal needs. Get enough rest and make time for social activities. […] Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. They also may need to plan the person’s finances and help make legal decisions to prepare for more-serious stages of the condition. Start this process early so the person with primary progressive aphasia can be involved.

• #48 Primary Progressive Aphasia – Symptoms and Therapies

  https://speechpathologysolutions.com/primary-progressive-aphasia-symptoms-and-therapies/

  Primary Progressive Aphasia (PPA) is a neurological condition that increasingly impairs language abilities, affecting many aspects of communication. […] Effective management of Primary Progressive Aphasia requires a multidisciplinary approach that addresses both communication and cognitive aspects of the condition. […] Speech and Language Therapy: This therapy is crucial in PPA management. It includes tailored exercises focused on maintaining existing language abilities. […] Cognitive Rehabilitation: PPA can indirectly affect cognitive functions like memory, problem-solving, and attention. […] Family Education and Support: Involving family members in the therapy process is essential. Educating them about PPA helps them understand the condition and how to communicate effectively. […] The integration of technology into the therapy for Primary Progressive Aphasia has significantly enhanced treatment approaches and outcomes. […] Communication Strategies: Individuals with PPA often learn new ways to communicate as their condition progresses. […] Support Systems: Having support from healthcare professionals, such as speech-language pathologists, guides in managing the condition.

• #49

  https://www.brain.northwestern.edu/dementia/primary-progressive-aphasia/treatment.html

  Social workers will: Review the diagnosis and provide the opportunity to ask questions and obtain up to date disease information, Discuss changing language, behaviors and other diagnosis-related symptoms and offer helpful communication strategies, Provide counseling regarding changing roles as the disease progresses, Help you to assure your own self-care and to strengthen your support network, Provide referrals for individual, couples and/or family counseling, Connect you to elder law attorneys for estate planning to and to establish powers of attorney for healthcare and finances, Provide counseling regarding advance directives, Guide you to specialized support and education groups for newly diagnosed individuals and families, quality-of-life programs for meaningful and purposeful activity and other community programs.

• #50 Primary progressive aphasia – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/diagnosis-treatment/drc-20350504

  Support groups may be offered for caregivers and people with primary progressive aphasia or related conditions. Ask your social worker or other members of your healthcare team about community resources or support groups. Other sources of information include the National Aphasia Association and the Association for Frontotemporal Degeneration.

• #51 Primary progressive aphasia | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/primary-progressive-aphasia

  Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. They also may need to plan the person’s finances and help make legal decisions to prepare for more-serious stages of the condition. Start this process early so the person with primary progressive aphasia can be involved. […] Support groups may be offered for caregivers and people with primary progressive aphasia or related conditions. Ask your social worker or other members of your healthcare team about community resources or support groups. Other sources of information include the National Aphasia Association and the Association for Frontotemporal Degeneration.

• #52 Primary progressive aphasia – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/diagnosis-treatment/drc-20350504

  Support groups may be offered for caregivers and people with primary progressive aphasia or related conditions. Ask your social worker or other members of your healthcare team about community resources or support groups. Other sources of information include the National Aphasia Association and the Association for Frontotemporal Degeneration.

• #53

  https://www.brain.northwestern.edu/dementia/primary-progressive-aphasia/treatment.html

  Other professionals may include creative arts therapists, individual/family therapists, elder law and estate planning attorneys, palliative care/hospice, mediation services, companion care, adult day services and nursing services. […] Our center offers quality-of-life programs that may be helpful for individuals with PPA and their families. […] Speech and language therapy is an important intervention for all individuals with PPA. […] Speech-language therapists can help identify strategies to maximize communication abilities and quality of life throughout the course of the illness. […] Because every individual living with PPA is different, strategies may vary from individual to individual. […] Social workers are available in the Neurobehavior and Memory Clinic to meet with patients and families to develop a personal and customized approach to care.

• #54 Primary Progressive Aphasia | Norton Healthcare Louisville, Ky.

  https://nortonhealthcare.com/services-and-conditions/neurosciences/services/primary-progressive-aphasia/

  It’s part of Norton Neuroscience Institute’s goal to care for the whole person, not just the condition. […] Dedicated patient navigators can help schedule follow-up appointments, coordinate prescription assistance, create customized diet plans and provide guidance on disability benefits, housing, financial and employment concerns, and more. […] Patients can access support groups, exercise classes and other educational events to connect with others and learn how to make the most of life while managing a neurologic condition. […] Norton Neuroscience Institute Resource Center navigators help educate patients and their families about new diagnoses, available treatments and ways to manage their disease.

• #55 Primary progressive aphasia – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/diagnosis-treatment/drc-20350504

  Losing the ability to communicate can be stressful and frustrating. This is true for both the person with primary progressive aphasia and for friends and family. If you’re a caregiver of someone with primary progressive aphasia, taking these steps can help everyone cope: Learn all you can about the condition. Have the person with the condition carry an identification card and other materials that can help explain the condition to others. Give the person time to talk. Speak slowly in simple, adult sentences and listen carefully. Talk with the person with the condition about how you can help. Take care of your personal needs. Get enough rest and make time for social activities. […] Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. They also may need to plan the person’s finances and help make legal decisions to prepare for more-serious stages of the condition. Start this process early so the person with primary progressive aphasia can be involved.

• #56 Primary progressive aphasia | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/primary-progressive-aphasia

  Primary progressive aphasia can’t be cured, and there are no medicines to treat it. However, some therapies might help improve or maintain your ability to communicate and manage your condition. […] Working with a speech-language pathologist, focusing primarily on ways to make up for lost language skills, can be helpful. Although speech and language therapy can’t stop the progression of the condition, it can help you manage your condition. The therapy also may slow the progression of some symptoms. Your therapist may recommend that your caregivers also attend the appointments. […] If your symptoms affect movement and balance, working with a physical therapist and an occupational therapist can help manage the symptoms. […] Losing the ability to communicate can be stressful and frustrating. This is true for both the person with primary progressive aphasia and for friends and family. If you’re a caregiver of someone with primary progressive aphasia, taking these steps can help everyone cope: Learn all you can about the condition. Have the person with the condition carry an identification card and other materials that can help explain the condition to others. Give the person time to talk. Speak slowly in simple, adult sentences and listen carefully. Talk with the person with the condition about how you can help. Take care of your personal needs. Get enough rest and make time for social activities.

• #57 Primary progressive aphasia – Symptoms and causes – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/symptoms-causes/syc-20350499

  Primary progressive aphasia care at Mayo Clinic […] People with primary progressive aphasia eventually lose the ability to speak and write. This may take anywhere from 3 to 15 years. People with the condition also have trouble understanding written and spoken language. […] As the disease progresses, other mental skills such as memory, planning and organizing can be affected. Some people develop other symptoms such as problems with movement, balance and swallowing. With these complications, people with the disease eventually need help with day-to-day care. […] People with primary progressive aphasia also can develop depression as the disease progresses. Other complications might include blunted emotions such as not showing concern, poor judgment or social behavior that’s not appropriate.

• #58 Primary progressive aphasia – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/diagnosis-treatment/drc-20350504

  Losing the ability to communicate can be stressful and frustrating. This is true for both the person with primary progressive aphasia and for friends and family. If you’re a caregiver of someone with primary progressive aphasia, taking these steps can help everyone cope: Learn all you can about the condition. Have the person with the condition carry an identification card and other materials that can help explain the condition to others. Give the person time to talk. Speak slowly in simple, adult sentences and listen carefully. Talk with the person with the condition about how you can help. Take care of your personal needs. Get enough rest and make time for social activities. […] Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. They also may need to plan the person’s finances and help make legal decisions to prepare for more-serious stages of the condition. Start this process early so the person with primary progressive aphasia can be involved.

• #59 Primary progressive aphasia | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/primary-progressive-aphasia

  Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. They also may need to plan the person’s finances and help make legal decisions to prepare for more-serious stages of the condition. Start this process early so the person with primary progressive aphasia can be involved. […] Support groups may be offered for caregivers and people with primary progressive aphasia or related conditions. Ask your social worker or other members of your healthcare team about community resources or support groups. Other sources of information include the National Aphasia Association and the Association for Frontotemporal Degeneration.

• #60 Primary progressive aphasia – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/primary-progressive-aphasia/diagnosis-treatment/drc-20350504

  Losing the ability to communicate can be stressful and frustrating. This is true for both the person with primary progressive aphasia and for friends and family. If you’re a caregiver of someone with primary progressive aphasia, taking these steps can help everyone cope: Learn all you can about the condition. Have the person with the condition carry an identification card and other materials that can help explain the condition to others. Give the person time to talk. Speak slowly in simple, adult sentences and listen carefully. Talk with the person with the condition about how you can help. Take care of your personal needs. Get enough rest and make time for social activities. […] Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. They also may need to plan the person’s finances and help make legal decisions to prepare for more-serious stages of the condition. Start this process early so the person with primary progressive aphasia can be involved.

• #61 Primary progressive aphasia | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/primary-progressive-aphasia

  Family members eventually may need to make long-term care choices for the person with primary progressive aphasia. They also may need to plan the person’s finances and help make legal decisions to prepare for more-serious stages of the condition. Start this process early so the person with primary progressive aphasia can be involved. […] Support groups may be offered for caregivers and people with primary progressive aphasia or related conditions. Ask your social worker or other members of your healthcare team about community resources or support groups. Other sources of information include the National Aphasia Association and the Association for Frontotemporal Degeneration.

• #62 Primary Progressive Aphasia: A Rare Dementia Story | Alzheimers.net

  https://www.alzheimers.net/10-19-15-primary-progressive-aphasia-rare-dementia-story

  Actress Kimberly Williams-Paisley shares her familys journey through her mothers primary progressive aphasia and gives advice to younger generations who may be facing the future with uncertainty. […] Learn more about this rare form of dementia and get her thoughts and advice for future dementia caregivers. […] Like all forms of dementia, there is no real treatment or cure for primary progressive aphasia. […] She admits that she wishes they would have asked her mother her wishes for long-term care before the disease took over, stating: It would have been helpful to know what my mother wanted in terms of long-term care. What do you want to do when you are no longer able to care for yourself? This is the kind of question I wished wed asked before it was too late. By the time we thought of it, her mind wasnt there.

• #63 Support in later stages – Rare Dementia Support

  https://www.raredementiasupport.org/primary-progressive-aphasia/support-in-later-stages-ppa/

  This page aims to guide all those affected by a diagnosis of primary progressive aphasia (PPA) through the later stages of the condition. This includes carers, family and friends. […] It is important that care home staff are aware of the specific needs of someone living with PPA. However, because it is so rare it is difficult to find a care home or care staff who are familiar with PPA. […] Care home staff may also find our short film useful, which features people living with different forms of PPA discussing their everyday experiences and challenges, as well as clinical explanations and insights. […] When a person with dementia is approaching the advanced stages of their condition, it can be a very difficult time for them and their loved ones. […] The duration of PPA differs from person to person. Although PPA itself is a life-shortening condition, people with PPA will often be affected by another illness, such as pneumonia.

• #64 Support in later stages – Rare Dementia Support

  https://www.raredementiasupport.org/primary-progressive-aphasia/support-in-later-stages-ppa/

  This page aims to guide all those affected by a diagnosis of primary progressive aphasia (PPA) through the later stages of the condition. This includes carers, family and friends. […] It is important that care home staff are aware of the specific needs of someone living with PPA. However, because it is so rare it is difficult to find a care home or care staff who are familiar with PPA. […] Care home staff may also find our short film useful, which features people living with different forms of PPA discussing their everyday experiences and challenges, as well as clinical explanations and insights. […] When a person with dementia is approaching the advanced stages of their condition, it can be a very difficult time for them and their loved ones. […] The duration of PPA differs from person to person. Although PPA itself is a life-shortening condition, people with PPA will often be affected by another illness, such as pneumonia.

• #65 Support in later stages – Rare Dementia Support

  https://www.raredementiasupport.org/primary-progressive-aphasia/support-in-later-stages-ppa/

  This page aims to guide all those affected by a diagnosis of primary progressive aphasia (PPA) through the later stages of the condition. This includes carers, family and friends. […] It is important that care home staff are aware of the specific needs of someone living with PPA. However, because it is so rare it is difficult to find a care home or care staff who are familiar with PPA. […] Care home staff may also find our short film useful, which features people living with different forms of PPA discussing their everyday experiences and challenges, as well as clinical explanations and insights. […] When a person with dementia is approaching the advanced stages of their condition, it can be a very difficult time for them and their loved ones. […] The duration of PPA differs from person to person. Although PPA itself is a life-shortening condition, people with PPA will often be affected by another illness, such as pneumonia.

• #66 Aphasia Patients Near Mission Hills Benefit From Home Care

  https://pegasushomecare.com/services/pegasus-skilled-care/aphasia-patients-near-mission-hills-benefit-home-care/

  Home care professionals near Mission Hills have the training, skills, and experience to provide physical and mental benefits for aphasia patients and their families. […] Therapy combined with home care near Mission Hills helps aphasia patients recover some of their losses. […] Home care near Mission Hills helps aphasia patients learn and practice the best technique for them. […] Home care professionals recognize that each aphasia patient is unique. They customize their care to fit the individual. Their goal is to help each patient achieve as much independence as possible. […] Skilled home care offers many benefits to aphasia patients. Being able to live at home rather than going to a facility increases a patients degree of recovery. Patients and their families can learn new ways of effectively communicating with one another.

• #67 4 Approaches to Primary Progressive Aphasia Treatment

  https://www.healthline.com/health/primary-progressive-aphasia-treatment

  Medications: Current research indicates that medications that have been examined as possible treatments for PPA have limited effectiveness in improving cognitive deficits. However, certain medications, such as antidepressants, anti-anxiety medications, sleep aids, antipsychotics, cholinesterase inhibitors (ChEIs), and N-Methyl-D-aspartate receptor antagonists (NMDA antagonists), may be used for various symptoms related to PPA. […] While theres no cure, treatment focuses on managing symptoms and improving communication skills through interventions like speech therapy, cognitive training, and supportive strategies. […] These treatments can help you maintain your ability to communicate, engage in daily activities, and enhance your overall quality of life.

• #68 Primary Progressive Aphasia – MD Searchlight

  https://mdsearchlight.com/neurology/primary-progressive-aphasia/

  Currently, no medicines have been found to be effective for Primary Progressive Aphasia (PPA), a neurological syndrome that affects language capabilities. The best way to manage this condition is by first meticulously examining the patients language and speech history. […] Hence, a referral to a speech and language specialist is crucial for correctly identifying language issues and working out the best treatment plan. Its proven that speech and language therapy is the most successful way to manage PPA, particularly for motor speech issues. […] In addition to this, transcranial direct current stimulation, a treatment that uses a simple electric current to stimulate specific areas of the brain, is viewed as a hopeful strategy to improve the results of language therapy in PPA patients. Its affordability, safety, and non-invasive nature make it worth researching its potential to boost behavioral solutions and slow down language deterioration in PPA. […] To manage these complications, we need a team of specialists. This team should include speech and language therapists, cognitive rehabilitation specialists, psychosocial support staff, and caregiver educators. These professionals will help improve the quality of life and care for the patient.

• #69 Therapeutic Potential of Transcranial Direct Current Stimulation in Primary Progressive Aphasia: Leigh Charvet, PhD

  https://www.neurologylive.com/view/therapeutic-potential-transcranial-direct-current-stimulation-primary-progressive-aphasia-leigh-charvet

  Primary progressive aphasia (PPA), a type of dementia, is a neurological condition that affects a persons ability to speak and communicate. Aphasia is a language disorder that results from damage to key parts of the brain that are responsible for understanding or producing speech and/or writing. While there are no cures for PPA, patients have benefited from participating in speech and cognitive therapy, as well as taking certain medications, such as selective serotonin reuptake inhibitors or therapies that are approved for Alzheimer disease. […] Led by Leigh Charvet, PhD, the trial enrolled 10 patients with PPA notable word-finding difficulties who underwent 20 daily (5/week) sessions of 45-minutes of personalized word retrieval training with concurrent tDCS stimulation over the left inferior frontal gyrus for the first 30 minutes. Following treatment, patients showed improvement in naming for trained vs untrained items (25.1 [4.3] vs 20.2 [7.5]; P = .003). From baseline to intervention end, the group significantly improved in confrontation naming (6.2 [5.6] vs 7.8 [5.2]; P = .016). Charvet, a professor of neurology at the NYU Grossman School of Medicine, sat down with NeurologyLive during the meeting to discuss the study in detail, and some of the major clinical takeaways. She provided context on the feasibility of combining tDCS with individualized word retrieval and why this may be an effective approach for language issues in patients with PPA.

• #70 Therapeutic Potential of Transcranial Direct Current Stimulation in Primary Progressive Aphasia: Leigh Charvet, PhD

  https://www.neurologylive.com/view/therapeutic-potential-transcranial-direct-current-stimulation-primary-progressive-aphasia-leigh-charvet

  Primary progressive aphasia (PPA), a type of dementia, is a neurological condition that affects a persons ability to speak and communicate. Aphasia is a language disorder that results from damage to key parts of the brain that are responsible for understanding or producing speech and/or writing. While there are no cures for PPA, patients have benefited from participating in speech and cognitive therapy, as well as taking certain medications, such as selective serotonin reuptake inhibitors or therapies that are approved for Alzheimer disease. […] Led by Leigh Charvet, PhD, the trial enrolled 10 patients with PPA notable word-finding difficulties who underwent 20 daily (5/week) sessions of 45-minutes of personalized word retrieval training with concurrent tDCS stimulation over the left inferior frontal gyrus for the first 30 minutes. Following treatment, patients showed improvement in naming for trained vs untrained items (25.1 [4.3] vs 20.2 [7.5]; P = .003). From baseline to intervention end, the group significantly improved in confrontation naming (6.2 [5.6] vs 7.8 [5.2]; P = .016). Charvet, a professor of neurology at the NYU Grossman School of Medicine, sat down with NeurologyLive during the meeting to discuss the study in detail, and some of the major clinical takeaways. She provided context on the feasibility of combining tDCS with individualized word retrieval and why this may be an effective approach for language issues in patients with PPA.

• #71 Primary progressive aphasia research updates – UChicago Medicine

  https://www.uchicagomedicine.org/forefront/neurosciences-articles/2024/november/primary-progressive-aphasia-papers-november-2024

  We found a way to deliver care that creates a little bit more of an equal playing field, Rogalski explained. Persons with PPA don’t have to be living next to a major academic medical center or specialty center to get in touch with an expert and receive treatment. […] Providing hope and practical support for these families is really important, Rogalski said. Too many people have lived experiences in which, even when they find a specialist, that specialist may say, There’s nothing we can do. It’s a terminal diagnosis. But finding a cure isn’t the only way we can help people. Maximizing independence, emotional well-being, confidence all of those things can have a lot of practical aspects on one’s daily life. If we can ramp those up as much as possible while we’re simultaneously looking for pharmacological solutions, that’s a winning combination.

• #72 Primary progressive aphasia research updates – UChicago Medicine

  https://www.uchicagomedicine.org/forefront/neurosciences-articles/2024/november/primary-progressive-aphasia-papers-november-2024

  We found a way to deliver care that creates a little bit more of an equal playing field, Rogalski explained. Persons with PPA don’t have to be living next to a major academic medical center or specialty center to get in touch with an expert and receive treatment. […] Providing hope and practical support for these families is really important, Rogalski said. Too many people have lived experiences in which, even when they find a specialist, that specialist may say, There’s nothing we can do. It’s a terminal diagnosis. But finding a cure isn’t the only way we can help people. Maximizing independence, emotional well-being, confidence all of those things can have a lot of practical aspects on one’s daily life. If we can ramp those up as much as possible while we’re simultaneously looking for pharmacological solutions, that’s a winning combination.

• #73 Primary progressive aphasia research updates – UChicago Medicine

  https://www.uchicagomedicine.org/forefront/neurosciences-articles/2024/november/primary-progressive-aphasia-papers-november-2024

  We found a way to deliver care that creates a little bit more of an equal playing field, Rogalski explained. Persons with PPA don’t have to be living next to a major academic medical center or specialty center to get in touch with an expert and receive treatment. […] Providing hope and practical support for these families is really important, Rogalski said. Too many people have lived experiences in which, even when they find a specialist, that specialist may say, There’s nothing we can do. It’s a terminal diagnosis. But finding a cure isn’t the only way we can help people. Maximizing independence, emotional well-being, confidence all of those things can have a lot of practical aspects on one’s daily life. If we can ramp those up as much as possible while we’re simultaneously looking for pharmacological solutions, that’s a winning combination.

• #74 Primary progressive aphasia research updates – UChicago Medicine

  https://www.uchicagomedicine.org/forefront/neurosciences-articles/2024/november/primary-progressive-aphasia-papers-november-2024

  We found a way to deliver care that creates a little bit more of an equal playing field, Rogalski explained. Persons with PPA don’t have to be living next to a major academic medical center or specialty center to get in touch with an expert and receive treatment. […] Providing hope and practical support for these families is really important, Rogalski said. Too many people have lived experiences in which, even when they find a specialist, that specialist may say, There’s nothing we can do. It’s a terminal diagnosis. But finding a cure isn’t the only way we can help people. Maximizing independence, emotional well-being, confidence all of those things can have a lot of practical aspects on one’s daily life. If we can ramp those up as much as possible while we’re simultaneously looking for pharmacological solutions, that’s a winning combination.

• #75 Nonfluent Variant Primary Progressive Aphasia | Memory and Aging Center

  https://memory.ucsf.edu/dementia/primary-progressive-aphasia/nonfluent-variant-primary-progressive-aphasia

  People with nfvPPA gradually have more trouble expressing themselves, even though they still understand the meaning of words. […] Speech therapy may help improve communication between people with nfvPPA and others. Communication devices, like tablets and type-to-talk instruments, or picture books, can help the person with nfvPPA express what they want to say with less anxiety. […] If symptoms of weakness or difficulty using the arm or leg develop, physical and occupational therapy may help manage them and provide coping skills and strategies. A swallowing evaluation and a modification of diet and consistency of liquids may be necessary for people with nfvPPA who develop swallowing difficulties. […] Research has shown that physical exercise helps to enhance brain health and improves mood and general fitness. A balanced diet, enough sleep, and limited alcohol intake are other important ways to promote good health. Other illnesses that affect the brain, such as diabetes, high blood pressure, and high cholesterol, should also be treated if present.

• #76 Nonfluent Variant Primary Progressive Aphasia | Memory and Aging Center

  https://memory.ucsf.edu/dementia/primary-progressive-aphasia/nonfluent-variant-primary-progressive-aphasia

  People with nfvPPA gradually have more trouble expressing themselves, even though they still understand the meaning of words. […] Speech therapy may help improve communication between people with nfvPPA and others. Communication devices, like tablets and type-to-talk instruments, or picture books, can help the person with nfvPPA express what they want to say with less anxiety. […] If symptoms of weakness or difficulty using the arm or leg develop, physical and occupational therapy may help manage them and provide coping skills and strategies. A swallowing evaluation and a modification of diet and consistency of liquids may be necessary for people with nfvPPA who develop swallowing difficulties. […] Research has shown that physical exercise helps to enhance brain health and improves mood and general fitness. A balanced diet, enough sleep, and limited alcohol intake are other important ways to promote good health. Other illnesses that affect the brain, such as diabetes, high blood pressure, and high cholesterol, should also be treated if present.

• #77 Primary Progressive Aphasia | Norton Healthcare Louisville, Ky.

  https://nortonhealthcare.com/services-and-conditions/neurosciences/services/primary-progressive-aphasia/

  It’s part of Norton Neuroscience Institute’s goal to care for the whole person, not just the condition. […] Dedicated patient navigators can help schedule follow-up appointments, coordinate prescription assistance, create customized diet plans and provide guidance on disability benefits, housing, financial and employment concerns, and more. […] Patients can access support groups, exercise classes and other educational events to connect with others and learn how to make the most of life while managing a neurologic condition. […] Norton Neuroscience Institute Resource Center navigators help educate patients and their families about new diagnoses, available treatments and ways to manage their disease.

• #78 search-icon

  https://news.christianacare.org/2023/07/frontotemporal-dementia-and-aphasia-what-to-know/

  As much as possible, continue with activities your loved one enjoys. Spend time together having simple conversations, reading magazines, newspapers or tablets, looking at photo albums, listening and singing along to music, playing board games or word games. […] Follow-up care is a key part of your loved ones treatment and safety. Keep all appointments, and call your loved ones health care provider if they are having problems. Its also a good idea to know test results and keep a list of the medicines they take.

• #79 Living with PPA – Rare Dementia Support

  https://www.raredementiasupport.org/primary-progressive-aphasia/living-with-ppa/

  Treatment therefore focuses on helping people to manage their symptoms and on supporting them and those around them. […] Understandably, people living with any form of PPA can become depressed or anxious due to the problems with speech and language. These are treatable problems, so it is important that they are detected and managed effectively, including referral to a mental health professional where needed.

• #80 Living with PPA – Rare Dementia Support

  https://www.raredementiasupport.org/primary-progressive-aphasia/living-with-ppa/

  Treatment therefore focuses on helping people to manage their symptoms and on supporting them and those around them. […] Understandably, people living with any form of PPA can become depressed or anxious due to the problems with speech and language. These are treatable problems, so it is important that they are detected and managed effectively, including referral to a mental health professional where needed.

• #81 4 Approaches to Primary Progressive Aphasia Treatment

  https://www.healthline.com/health/primary-progressive-aphasia-treatment

  Medications: Current research indicates that medications that have been examined as possible treatments for PPA have limited effectiveness in improving cognitive deficits. However, certain medications, such as antidepressants, anti-anxiety medications, sleep aids, antipsychotics, cholinesterase inhibitors (ChEIs), and N-Methyl-D-aspartate receptor antagonists (NMDA antagonists), may be used for various symptoms related to PPA. […] While theres no cure, treatment focuses on managing symptoms and improving communication skills through interventions like speech therapy, cognitive training, and supportive strategies. […] These treatments can help you maintain your ability to communicate, engage in daily activities, and enhance your overall quality of life.

• #82 Therapeutic Potential of Transcranial Direct Current Stimulation in Primary Progressive Aphasia: Leigh Charvet, PhD

  https://www.neurologylive.com/view/therapeutic-potential-transcranial-direct-current-stimulation-primary-progressive-aphasia-leigh-charvet

  Primary progressive aphasia (PPA), a type of dementia, is a neurological condition that affects a persons ability to speak and communicate. Aphasia is a language disorder that results from damage to key parts of the brain that are responsible for understanding or producing speech and/or writing. While there are no cures for PPA, patients have benefited from participating in speech and cognitive therapy, as well as taking certain medications, such as selective serotonin reuptake inhibitors or therapies that are approved for Alzheimer disease. […] Led by Leigh Charvet, PhD, the trial enrolled 10 patients with PPA notable word-finding difficulties who underwent 20 daily (5/week) sessions of 45-minutes of personalized word retrieval training with concurrent tDCS stimulation over the left inferior frontal gyrus for the first 30 minutes. Following treatment, patients showed improvement in naming for trained vs untrained items (25.1 [4.3] vs 20.2 [7.5]; P = .003). From baseline to intervention end, the group significantly improved in confrontation naming (6.2 [5.6] vs 7.8 [5.2]; P = .016). Charvet, a professor of neurology at the NYU Grossman School of Medicine, sat down with NeurologyLive during the meeting to discuss the study in detail, and some of the major clinical takeaways. She provided context on the feasibility of combining tDCS with individualized word retrieval and why this may be an effective approach for language issues in patients with PPA.

• #83 Global perspectives on the management of primary progressive aphasia | Scientific Reports

  https://www.nature.com/articles/s41598-024-70156-5

  Speech-language therapists/pathologists (SLT/Ps) are key professionals in the management and treatment of primary progressive aphasia (PPA), however, there are gaps in education and training within the discipline, with implications for skills, confidence, and clinical decision-making. […] Best practice principles for SLT/Ps working with PwPPA were used to frame the latter two sections of this survey. […] Respondents identified instructional online courses (92.5%), sample tools and activities for interventions (64.8%), and concrete training on providing care for advanced stages and end of life (58.3%) as central areas of need in their current work. […] Based on survey outcomes, there is a pressing need to enhance current educational and ongoing training opportunities to better promote the well-being of PwPPA and their families, and to ensure appropriate preparation of the current and future SLT/P workforce.

• #84 Campaign to improve care for people living with Primary Progressive Aphasia (PPA) launched | RCSLT

  https://www.rcslt.org/news/campaign-to-improve-care-for-people-living-with-primary-progressive-aphasia-ppa-launched/

  A national campaign has been launched to address the urgent need for specialised services for individuals living with Primary Progressive Aphasia. […] The campaign, led by the Royal College of Speech and Language Therapists (RCSLT) and the specialist charity Dyscover, calls on the Government to include Primary Progressive Aphasia (PPA) in its list of conditions requiring nationally commissioned services through NHS England. […] PPA is recognised as a rare form of dementia by NHS England, but services for individuals living with this condition are not commissioned at a national level. This has created significant barriers for those affected, limiting access to the specialised speech and language therapy that is crucial for diagnosis and ongoing support. […] Without nationally commissioned services, the consequences for those with PPA are serious: Misdiagnosis: A lack of specialist support means many people are misdiagnosed or diagnosed too late, leading to delays in accessing the limited treatment options available.

• #85 Global perspectives on the management of primary progressive aphasia | Scientific Reports

  https://www.nature.com/articles/s41598-024-70156-5

  Evidence demonstrates that PwPPA must begin speech and language intervention as early as possible to avoid the risk of not benefitting from impairment-based or functional interventions. […] Furthermore, as highlighted by Swaffer (2019), people living with early-onset dementias, such as PPA, and their families seek support to optimize participation and quality of life outcomes, which is bolstered by appropriate and timely access to SLT/P intervention. […] In response to these concerns, a group of international expert clinician-academic SLT/Ps worked collaboratively to establish best-practice principles to guide SLT/P services for PwPPA and their families. […] The principles provide a framework for the essential components of SLT/P intervention and can be used to guide clinical decision-making, care coordination and service development in the SLT/P field.

• #86 Campaign to improve care for people living with Primary Progressive Aphasia (PPA) launched | RCSLT

  https://www.rcslt.org/news/campaign-to-improve-care-for-people-living-with-primary-progressive-aphasia-ppa-launched/

  A national campaign has been launched to address the urgent need for specialised services for individuals living with Primary Progressive Aphasia. […] The campaign, led by the Royal College of Speech and Language Therapists (RCSLT) and the specialist charity Dyscover, calls on the Government to include Primary Progressive Aphasia (PPA) in its list of conditions requiring nationally commissioned services through NHS England. […] PPA is recognised as a rare form of dementia by NHS England, but services for individuals living with this condition are not commissioned at a national level. This has created significant barriers for those affected, limiting access to the specialised speech and language therapy that is crucial for diagnosis and ongoing support. […] Without nationally commissioned services, the consequences for those with PPA are serious: Misdiagnosis: A lack of specialist support means many people are misdiagnosed or diagnosed too late, leading to delays in accessing the limited treatment options available.

• #87 Campaign to improve care for people living with Primary Progressive Aphasia (PPA) launched | RCSLT

  https://www.rcslt.org/news/campaign-to-improve-care-for-people-living-with-primary-progressive-aphasia-ppa-launched/

  The benefits of having nationally commissioned speech and language therapy services are also clear, leading to: more timely and accurate diagnosis. […] better and more equitable support for people with PPA and their families to enable them to maintain their quality of life and live better for longer. […] community services having access to the specialist speech and language therapy experience and expertise they require. […] “Speech and language therapy has been a lifeline for us as we live with my wife’s Primary Progressive Aphasia. It helps us preserve the ability to communicate, keeping our connection strong and maximising quality of life. It helps us stay close and continue to share meaningful moments together.”

• #88 Global perspectives on the management of primary progressive aphasia | Scientific Reports

  https://www.nature.com/articles/s41598-024-70156-5

  Furthermore, the best practice principles can guide the development of educational modules and training tools for future and current SLT/Ps seeking to provide consistent and evidence-based care for PwPPA. […] To develop a relevant and viable resource, gaps in current educational opportunities and exposure to aspects of the PwPPA care continuum must be addressed. […] The majority of speech-language intervention research for PPA has been undertaken in English-speaking populations. […] Our findings demonstrate a shortfall in the preparedness and professional support capacity that SLT/Ps receive internationally, characterized by insufficient time spent on PPA in university courses, infrequent or rare exposure to PPA during clinical placements, limited access to mentors that are experts in the condition, and an expressed need for more functional and specialized resources for the condition. […] The findings support use of the best practice principles to guide the systematic development of education, training and professional support opportunities for the SLT/P profession.

• #89 Global perspectives on the management of primary progressive aphasia | Scientific Reports

  https://www.nature.com/articles/s41598-024-70156-5

  Speech-language therapists/pathologists (SLT/Ps) are key professionals in the management and treatment of primary progressive aphasia (PPA), however, there are gaps in education and training within the discipline, with implications for skills, confidence, and clinical decision-making. […] Best practice principles for SLT/Ps working with PwPPA were used to frame the latter two sections of this survey. […] Respondents identified instructional online courses (92.5%), sample tools and activities for interventions (64.8%), and concrete training on providing care for advanced stages and end of life (58.3%) as central areas of need in their current work. […] Based on survey outcomes, there is a pressing need to enhance current educational and ongoing training opportunities to better promote the well-being of PwPPA and their families, and to ensure appropriate preparation of the current and future SLT/P workforce.

• #90 Global perspectives on the management of primary progressive aphasia | Scientific Reports

  https://www.nature.com/articles/s41598-024-70156-5

  Speech-language therapists/pathologists (SLT/Ps) are key professionals in the management and treatment of primary progressive aphasia (PPA), however, there are gaps in education and training within the discipline, with implications for skills, confidence, and clinical decision-making. […] Best practice principles for SLT/Ps working with PwPPA were used to frame the latter two sections of this survey. […] Respondents identified instructional online courses (92.5%), sample tools and activities for interventions (64.8%), and concrete training on providing care for advanced stages and end of life (58.3%) as central areas of need in their current work. […] Based on survey outcomes, there is a pressing need to enhance current educational and ongoing training opportunities to better promote the well-being of PwPPA and their families, and to ensure appropriate preparation of the current and future SLT/P workforce.

• #91 Primary Progressive Aphasia – Symptoms and Therapies

  https://speechpathologysolutions.com/primary-progressive-aphasia-symptoms-and-therapies/

  Primary Progressive Aphasia (PPA) is a neurological condition that increasingly impairs language abilities, affecting many aspects of communication. […] Effective management of Primary Progressive Aphasia requires a multidisciplinary approach that addresses both communication and cognitive aspects of the condition. […] Speech and Language Therapy: This therapy is crucial in PPA management. It includes tailored exercises focused on maintaining existing language abilities. […] Cognitive Rehabilitation: PPA can indirectly affect cognitive functions like memory, problem-solving, and attention. […] Family Education and Support: Involving family members in the therapy process is essential. Educating them about PPA helps them understand the condition and how to communicate effectively. […] The integration of technology into the therapy for Primary Progressive Aphasia has significantly enhanced treatment approaches and outcomes. […] Communication Strategies: Individuals with PPA often learn new ways to communicate as their condition progresses. […] Support Systems: Having support from healthcare professionals, such as speech-language pathologists, guides in managing the condition.

• #92 Primary Progressive Aphasia – Rare Dementias – Topic guides at Dementia Australia Library Service

  https://dementia-org.libguides.com/Rare-dementia-support/primary-progressive-aphasia

  My experience of person-centered and personalized care in early-stage primary progressive aphasia (2025)I received an early and accurate clinical diagnosis of the nonfluent/agrammatic variant of PPA, supported by imaging. I am fortunate to have benefited from exemplary individualized care from a multidisciplinary medical team from the onset of my difficulties with language. In this paper, I discuss my lived experience of all aspects of this personalized and person-centered care, describing how it was founded on shared decision-making and a holistic, dementia-inclusive approach encompassing the physical, mental, emotional, psychosocial and spiritual dimensions of living with an incurable neurodegenerative disease. Douglas JT. My experience of person-centered and personalized care in early-stage primary progressive aphasia. Dementia. 2025;24(3):353-367.

• #93 Primary Progressive Aphasia – Rare Dementias – Topic guides at Dementia Australia Library Service

  https://dementia-org.libguides.com/Rare-dementia-support/primary-progressive-aphasia

  Speech and language therapy approaches to managing primary progressive aphasia (2019)Speech and language therapists have developed several impairment-based interventions and compensatory strategies for use in the clinic. This review highlights the reasons why neurologists should refer people with PPA to speech and language therapists. Volkmer, A., Rogalski, E., Henry, M., Taylor-Rubin, C., Ruggero, L., Khayum, R., Kindell, J., Gorno-Tempini, M. L., Warren, J. D., Rohrer, J. D. (2020). Speech and language therapy approaches to managing primary progressive aphasia. Practical neurology, 2019,19. doi:10.1136/practneurol-2018-001921

• #94

• #95 Primary progressive aphasia research updates – UChicago Medicine

  https://www.uchicagomedicine.org/forefront/neurosciences-articles/2024/november/primary-progressive-aphasia-papers-november-2024

  We found a way to deliver care that creates a little bit more of an equal playing field, Rogalski explained. Persons with PPA don’t have to be living next to a major academic medical center or specialty center to get in touch with an expert and receive treatment. […] Providing hope and practical support for these families is really important, Rogalski said. Too many people have lived experiences in which, even when they find a specialist, that specialist may say, There’s nothing we can do. It’s a terminal diagnosis. But finding a cure isn’t the only way we can help people. Maximizing independence, emotional well-being, confidence all of those things can have a lot of practical aspects on one’s daily life. If we can ramp those up as much as possible while we’re simultaneously looking for pharmacological solutions, that’s a winning combination.

• #96 Primary progressive aphasia research updates – UChicago Medicine

  https://www.uchicagomedicine.org/forefront/neurosciences-articles/2024/november/primary-progressive-aphasia-papers-november-2024

  We found a way to deliver care that creates a little bit more of an equal playing field, Rogalski explained. Persons with PPA don’t have to be living next to a major academic medical center or specialty center to get in touch with an expert and receive treatment. […] Providing hope and practical support for these families is really important, Rogalski said. Too many people have lived experiences in which, even when they find a specialist, that specialist may say, There’s nothing we can do. It’s a terminal diagnosis. But finding a cure isn’t the only way we can help people. Maximizing independence, emotional well-being, confidence all of those things can have a lot of practical aspects on one’s daily life. If we can ramp those up as much as possible while we’re simultaneously looking for pharmacological solutions, that’s a winning combination.

• #97

• #98 Campaign to improve care for people living with Primary Progressive Aphasia (PPA) launched | RCSLT

  https://www.rcslt.org/news/campaign-to-improve-care-for-people-living-with-primary-progressive-aphasia-ppa-launched/

  The benefits of having nationally commissioned speech and language therapy services are also clear, leading to: more timely and accurate diagnosis. […] better and more equitable support for people with PPA and their families to enable them to maintain their quality of life and live better for longer. […] community services having access to the specialist speech and language therapy experience and expertise they require. […] “Speech and language therapy has been a lifeline for us as we live with my wife’s Primary Progressive Aphasia. It helps us preserve the ability to communicate, keeping our connection strong and maximising quality of life. It helps us stay close and continue to share meaningful moments together.”

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