Materiały źródłowe

• #1 Post-Polio Syndrome: What It Is, Symptoms & Treatment

  https://my.clevelandclinic.org/health/diseases/24584-post-polio-syndrome

  Post-polio syndrome (PPS) is a condition that can affect people several years after an initial polio infection. It causes gradual muscle weakness and atrophy. Theres no cure, so treatment focuses on managing symptoms. […] Theres currently no specific treatment for post-polio syndrome (PPS). Instead, healthcare providers focus on managing symptoms and improving quality of life. […] Specific strategies that can help manage PPS symptoms include: Non-fatiguing exercises: Exercises that dont cause pain or fatigue may improve muscle strength and reduce overall fatigue. Cardiorespiratory endurance training: Cardiorespiratory endurance is the level at which your heart, lungs and muscles work together when exercising for a prolonged time. You should talk to your provider before trying this type of training. Mobility aids: Devices such as canes, walkers and scooters can help with mobility and help avoid rapid muscle tiring and exhaustion. Occupational therapy: An occupational therapist can help you make adjustments in your home so you can perform daily tasks more easily. Speech therapy: If PPS has made swallowing difficult, a speech therapist can help. Lifestyle changes: Your provider will likely recommend eating a healthy diet, managing your weight, getting quality sleep and not smoking to help manage your symptoms and stay healthy. […] At this time, theres no cure for post-polio syndrome.

• #2 Update on current and emerging treatment options for post-polio syndrome

  https://pmc.ncbi.nlm.nih.gov/articles/PMC2909497/

  Post-polio syndrome (PPS) refers to the clinical deterioration experienced by many polio survivors several decades after their acute illness. […] The basic principle of management of PPS lies in physical activity, individually tailored training programs, and lifestyle modification. Muscle weakness and muscle pain may be helped with specific training programs, in which training in warm water seems to be particularly helpful. Properly fitted orthoses can improve the biomechanical movement pattern and be energy-saving. Fatigue can be relieved with lifestyle changes, assistive devices, and training programs. […] The management of PPS is still based on rehabilitation schemes including lifestyle changes, physiotherapy, training programs, and avoidance of secondary complications. An important advance occurred when it was documented that nonfatiguing exercises improved muscle strength and prohibited further decline of PPS without any obvious harmful effects.

• #3

  https://www.nhs.uk/conditions/post-polio-syndrome/treatment/

  There’s currently no cure for post-polio syndrome (PPS), so treatment focuses on helping you manage your symptoms and improving your quality of life. […] People with the condition are often treated by a team of different healthcare professionals working together. This is known as a multidisciplinary team (MDT). […] Being active is thought to be beneficial for most people with post-polio syndrome, as it may slow down the progressive muscle weakness. […] To overcome this problem, „pacing” techniques may be recommended. This involves planning and prioritising tasks, finding alternative ways of doing exhausting tasks and getting help from others when you need it, taking regular breaks and having rest periods during the day, and doing regular gentle exercise this should be built up gradually and stopped before you become exhausted or experience pain.

• #4 Post-polio syndrome | NHS inform

  https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/post-polio-syndrome/

  As theres no cure for post-polio syndrome, treatment will help you manage your symptoms and quality of life. […] Its likely youll have a multidisciplinary team of healthcare professionals working together to care for you including: neurologists, respiratory specialists, physiotherapists, orthotists, psychologists, pain management specialists, occupational therapists. […] Theyll discuss the most suitable plan for your care which might include a mixture of the following: Exercise and rest. […] Exercise can help slow down the progressive muscle weakness that post-polio syndrome causes. […] Your healthcare team might suggest you try using pacing techniques. […] Painkillers. […] Medication to relieve pain might be used in addition to pacing techniques. […] Mobility aids. […] You might benefit from a mobility aid like: braces to support weakened muscles and joints, prevent falls and improve posture, walking sticks to help you balance and prevent falls, an electric scooter, a wheelchair.

• #5 Post-Polio Syndrome – Harvard Health

  https://www.health.harvard.edu/a_to_z/post-polio-syndrome-a-to-z

  Specific treatment for post-polio syndrome includes a multi-disciplinary rehabilitation approach. Physical therapy may be used to increase muscle strength and endurance and to help with improving balance and preventing falls. Occupational therapists can address upper extremity problems, especially overuse injuries, as well as recommend adaptive equipment for your home and/or office. Speech and language pathologists evaluate and treat swallowing and speech problems. Orthotists can fit you for an up-to-date brace. […] Neurologists and physiatrists are usually the physician specialists who care for people with post-polio syndrome. Physiatrists are doctors who specialize in Physical Medicine and Rehabilitation (PMR) and can help to both establish the diagnosis and treat any symptoms. Both physiatrists and neurologists are often trained in performing EMG testing.

• #6 Post-polio syndrome Guide: Causes, Symptoms and Treatment Options

  https://www.drugs.com/health-guide/post-polio-syndrome.html

  Specific treatment for post-polio syndrome includes a multi-disciplinary rehabilitation approach. Physical therapy may be used to increase muscle strength and endurance and to help with improving balance and preventing falls. Occupational therapists can address upper extremity problems, especially overuse injuries, as well as recommend adaptive equipment for your home and/or office. Speech and language pathologists evaluate and treat swallowing and speech problems. Orthotists can fit you for an up-to-date brace. […] Neurologists and physiatrists are usually the physician specialists who care for people with post-polio syndrome. Physiatrists are doctors who specialize in Physical Medicine and Rehabilitation (PM&R) and can help to both establish the diagnosis and treat any symptoms. Both physiatrists and neurologists are often trained in performing EMG testing.

• #7 Management of post-polio syndrome – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24525980/

  Many patients with post-poliomyelitis syndrome can benefit from a management program. […] New weakness can be managed with exercise (stretching, strengthening, and aerobic), avoidance of muscular overuse, weight loss, orthoses, and assistive devices. […] Fatigue can be managed with energy conservation techniques, lifestyle changes, pacing, regular rest periods or naps during the day, amitriptyline to improve sleep, and possibly pyridostigmine (trial in progress). […] The management of pain is dependent upon its cause. The treatment of post-polio muscular pain can include activity reduction, pacing (rest periods during activity), moist heat, ice, and stretching, use of assistive devices, and life style modifications. […] Joint and soft tissue abnormalities can be managed with modification of extremity use, physiotherapy, orthoses, assistive devices, non-steroidal anti-inflammatory medications, and rarely steroid injections and surgery.

• #8 Post-polio syndrome | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/post-polio-syndrome

  There’s no one treatment for the various signs and symptoms of post-polio syndrome. The goal of treatment is to manage your symptoms and help make you as comfortable and independent as possible. Here are some treatment options that may help manage your post-polio syndrome symptoms: […] Energy conservation. This involves pacing your physical activity and resting frequently to reduce fatigue. Assistive devices such as a cane, walker, wheelchair or motor scooter can help you conserve energy. Having a shower grab bar or raised toilet seat installed also might help. A therapist can show you ways to breathe that help conserve energy. […] Physical therapy. Your doctor or therapist may prescribe exercises for you that strengthen your muscles without fatiguing them. These usually include less strenuous activities, such as swimming or water aerobics, that you perform every other day at a relaxed pace. Exercising to maintain fitness is important, but avoid overusing your muscles and joints and exercising to the point of pain or fatigue.

• #9

  https://www.nhs.uk/conditions/post-polio-syndrome/treatment/

  There’s currently no cure for post-polio syndrome (PPS), so treatment focuses on helping you manage your symptoms and improving your quality of life. […] People with the condition are often treated by a team of different healthcare professionals working together. This is known as a multidisciplinary team (MDT). […] Being active is thought to be beneficial for most people with post-polio syndrome, as it may slow down the progressive muscle weakness. […] To overcome this problem, „pacing” techniques may be recommended. This involves planning and prioritising tasks, finding alternative ways of doing exhausting tasks and getting help from others when you need it, taking regular breaks and having rest periods during the day, and doing regular gentle exercise this should be built up gradually and stopped before you become exhausted or experience pain.

• #10 Post-Polio Syndrome Treatment And Prevention – Klarity Health Library

  https://my.klarity.health/post-polio-syndrome-treatment-and-prevention/

  Occupational therapists can provide strategies to conserve energy, adapt to daily activities, and use assistive devices to maximise independence and minimise fatigue. Occupational therapy focuses on improving functional skills and enhancing the quality of life for patients with PPS. […] Pain management strategies may include over-the-counter or prescription medications. Nonsteroidal anti-inflammatory drugs (NSAIDs) such as ibuprofen and naproxen may be prescribed to alleviate pain and reduce inflammation associated with PPS. […] Patients with PPS may experience respiratory complications such as sleep apnoea (when you stop breathing temporarily during sleep) or respiratory muscle weakness. Continuous positive airway pressure (CPAP) devices or nighttime ventilators can help improve breathing during sleep, while pulmonary rehabilitation programs may enhance lung function and respiratory muscle strength.

• #11

  https://www.nhs.uk/conditions/post-polio-syndrome/treatment/

  There’s currently no cure for post-polio syndrome (PPS), so treatment focuses on helping you manage your symptoms and improving your quality of life. […] People with the condition are often treated by a team of different healthcare professionals working together. This is known as a multidisciplinary team (MDT). […] Being active is thought to be beneficial for most people with post-polio syndrome, as it may slow down the progressive muscle weakness. […] To overcome this problem, „pacing” techniques may be recommended. This involves planning and prioritising tasks, finding alternative ways of doing exhausting tasks and getting help from others when you need it, taking regular breaks and having rest periods during the day, and doing regular gentle exercise this should be built up gradually and stopped before you become exhausted or experience pain.

• #12 Post-polio syndrome | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/post-polio-syndrome

  There’s no one treatment for the various signs and symptoms of post-polio syndrome. The goal of treatment is to manage your symptoms and help make you as comfortable and independent as possible. Here are some treatment options that may help manage your post-polio syndrome symptoms: […] Energy conservation. This involves pacing your physical activity and resting frequently to reduce fatigue. Assistive devices such as a cane, walker, wheelchair or motor scooter can help you conserve energy. Having a shower grab bar or raised toilet seat installed also might help. A therapist can show you ways to breathe that help conserve energy. […] Physical therapy. Your doctor or therapist may prescribe exercises for you that strengthen your muscles without fatiguing them. These usually include less strenuous activities, such as swimming or water aerobics, that you perform every other day at a relaxed pace. Exercising to maintain fitness is important, but avoid overusing your muscles and joints and exercising to the point of pain or fatigue.

• #13 Post-Polio Syndrome: What It Is, Symptoms & Treatment

  https://my.clevelandclinic.org/health/diseases/24584-post-polio-syndrome

  Post-polio syndrome (PPS) is a condition that can affect people several years after an initial polio infection. It causes gradual muscle weakness and atrophy. Theres no cure, so treatment focuses on managing symptoms. […] Theres currently no specific treatment for post-polio syndrome (PPS). Instead, healthcare providers focus on managing symptoms and improving quality of life. […] Specific strategies that can help manage PPS symptoms include: Non-fatiguing exercises: Exercises that dont cause pain or fatigue may improve muscle strength and reduce overall fatigue. Cardiorespiratory endurance training: Cardiorespiratory endurance is the level at which your heart, lungs and muscles work together when exercising for a prolonged time. You should talk to your provider before trying this type of training. Mobility aids: Devices such as canes, walkers and scooters can help with mobility and help avoid rapid muscle tiring and exhaustion. Occupational therapy: An occupational therapist can help you make adjustments in your home so you can perform daily tasks more easily. Speech therapy: If PPS has made swallowing difficult, a speech therapist can help. Lifestyle changes: Your provider will likely recommend eating a healthy diet, managing your weight, getting quality sleep and not smoking to help manage your symptoms and stay healthy. […] At this time, theres no cure for post-polio syndrome.

• #14 Polio | Post-Polio Syndrome | PPS | MedlinePlus

  https://medlineplus.gov/polioandpostpoliosyndrome.html

  There is no cure or specific treatment for polio. For a mild case, getting rest and drinking plenty of liquids may help with some of the symptoms. […] If the polio is more serious, you or your child may need: Physical or occupational therapy to help with arm or leg weakness. The earlier therapy is started, the better. […] There is no cure for PPS. Treatments may help you manage your symptoms. They include: Non-fatiguing exercises (exercises that do not cause pain or fatigue that lasts more than 10 minutes). These exercises may improve muscle strength and reduce tiredness. Your provider can help you figure out which exercises are best for you. […] Mobility aids. […] Ventilation equipment. […] Lifestyle changes, such as eating a healthy diet, getting enough sleep, and not smoking.

• #15 Post-polio syndrome | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/post-polio-syndrome

  There’s no one treatment for the various signs and symptoms of post-polio syndrome. The goal of treatment is to manage your symptoms and help make you as comfortable and independent as possible. Here are some treatment options that may help manage your post-polio syndrome symptoms: […] Energy conservation. This involves pacing your physical activity and resting frequently to reduce fatigue. Assistive devices such as a cane, walker, wheelchair or motor scooter can help you conserve energy. Having a shower grab bar or raised toilet seat installed also might help. A therapist can show you ways to breathe that help conserve energy. […] Physical therapy. Your doctor or therapist may prescribe exercises for you that strengthen your muscles without fatiguing them. These usually include less strenuous activities, such as swimming or water aerobics, that you perform every other day at a relaxed pace. Exercising to maintain fitness is important, but avoid overusing your muscles and joints and exercising to the point of pain or fatigue.

• #16 Update on current and emerging treatment options for post-polio syndrome

  https://pmc.ncbi.nlm.nih.gov/articles/PMC2909497/

  Training in warm water reduces the stress on joints and muscles, and warm water may have an analgesic effect. Dynamic water exercises, not involving swimming, are a good alternative for patients with PPS, with positive effects on pain relief, improved cardiovascular conditioning, and increased subjective well-being. […] The risk of respiratory insufficiency should be considered, because it could lead to serious complications, including increased frequency of respiratory infections, hypercapnia, pulmonary arterial hypertension, and ultimately, cor pulmonale. […] A shift from metal braces to lightweight carbon orthoses can increase walking ability in polio patients with new weakness, and biomechanical analysis of the walking pattern can lead to optimal design of orthoses and improved function in the lower limbs.

• #17 Management of post-polio syndrome – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24525980/

  Many patients with post-poliomyelitis syndrome can benefit from a management program. […] New weakness can be managed with exercise (stretching, strengthening, and aerobic), avoidance of muscular overuse, weight loss, orthoses, and assistive devices. […] Fatigue can be managed with energy conservation techniques, lifestyle changes, pacing, regular rest periods or naps during the day, amitriptyline to improve sleep, and possibly pyridostigmine (trial in progress). […] The management of pain is dependent upon its cause. The treatment of post-polio muscular pain can include activity reduction, pacing (rest periods during activity), moist heat, ice, and stretching, use of assistive devices, and life style modifications. […] Joint and soft tissue abnormalities can be managed with modification of extremity use, physiotherapy, orthoses, assistive devices, non-steroidal anti-inflammatory medications, and rarely steroid injections and surgery.

• #18 Post-polio syndrome | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/post-polio-syndrome

  Speech therapy. A speech therapist can show you ways to compensate for swallowing difficulties. Voice strengthening exercises also might be helpful. […] Sleep disorder treatment. You might need to change your sleeping patterns, such as avoiding sleeping on your back, or use a device that helps open your airway when you sleep. If you have restless legs syndrome, treatment for that disorder may help improve sleep quality and reduce fatigue. […] Medications. Pain relievers such as aspirin, acetaminophen (Tylenol, others) and ibuprofen (Advil, Motrin IB, others) might ease muscle and joint pain. […] Other possible treatment options may include the anticonvulsant drug gabapentin (Neurontin, Gralise), which is often used to treat nerve pain. Chronic opioid pain medications generally shouldn’t be used due to their long-term risks. You and your doctor should discuss the right treatment plan for you to manage your pain and symptoms.

• #19 Management of post-polio syndrome – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24525980/

  Many patients with post-poliomyelitis syndrome can benefit from a management program. […] New weakness can be managed with exercise (stretching, strengthening, and aerobic), avoidance of muscular overuse, weight loss, orthoses, and assistive devices. […] Fatigue can be managed with energy conservation techniques, lifestyle changes, pacing, regular rest periods or naps during the day, amitriptyline to improve sleep, and possibly pyridostigmine (trial in progress). […] The management of pain is dependent upon its cause. The treatment of post-polio muscular pain can include activity reduction, pacing (rest periods during activity), moist heat, ice, and stretching, use of assistive devices, and life style modifications. […] Joint and soft tissue abnormalities can be managed with modification of extremity use, physiotherapy, orthoses, assistive devices, non-steroidal anti-inflammatory medications, and rarely steroid injections and surgery.

• #20 Post-Polio Syndrome Treatment And Prevention – Klarity Health Library

  https://my.klarity.health/post-polio-syndrome-treatment-and-prevention/

  Occupational therapists can provide strategies to conserve energy, adapt to daily activities, and use assistive devices to maximise independence and minimise fatigue. Occupational therapy focuses on improving functional skills and enhancing the quality of life for patients with PPS. […] Pain management strategies may include over-the-counter or prescription medications. Nonsteroidal anti-inflammatory drugs (NSAIDs) such as ibuprofen and naproxen may be prescribed to alleviate pain and reduce inflammation associated with PPS. […] Patients with PPS may experience respiratory complications such as sleep apnoea (when you stop breathing temporarily during sleep) or respiratory muscle weakness. Continuous positive airway pressure (CPAP) devices or nighttime ventilators can help improve breathing during sleep, while pulmonary rehabilitation programs may enhance lung function and respiratory muscle strength.

• #21 Post-polio syndrome | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/post-polio-syndrome

  Speech therapy. A speech therapist can show you ways to compensate for swallowing difficulties. Voice strengthening exercises also might be helpful. […] Sleep disorder treatment. You might need to change your sleeping patterns, such as avoiding sleeping on your back, or use a device that helps open your airway when you sleep. If you have restless legs syndrome, treatment for that disorder may help improve sleep quality and reduce fatigue. […] Medications. Pain relievers such as aspirin, acetaminophen (Tylenol, others) and ibuprofen (Advil, Motrin IB, others) might ease muscle and joint pain. […] Other possible treatment options may include the anticonvulsant drug gabapentin (Neurontin, Gralise), which is often used to treat nerve pain. Chronic opioid pain medications generally shouldn’t be used due to their long-term risks. You and your doctor should discuss the right treatment plan for you to manage your pain and symptoms.

• #22 Post-Polio Syndrome: What It Is, Symptoms & Treatment

  https://my.clevelandclinic.org/health/diseases/24584-post-polio-syndrome

  Post-polio syndrome (PPS) is a condition that can affect people several years after an initial polio infection. It causes gradual muscle weakness and atrophy. Theres no cure, so treatment focuses on managing symptoms. […] Theres currently no specific treatment for post-polio syndrome (PPS). Instead, healthcare providers focus on managing symptoms and improving quality of life. […] Specific strategies that can help manage PPS symptoms include: Non-fatiguing exercises: Exercises that dont cause pain or fatigue may improve muscle strength and reduce overall fatigue. Cardiorespiratory endurance training: Cardiorespiratory endurance is the level at which your heart, lungs and muscles work together when exercising for a prolonged time. You should talk to your provider before trying this type of training. Mobility aids: Devices such as canes, walkers and scooters can help with mobility and help avoid rapid muscle tiring and exhaustion. Occupational therapy: An occupational therapist can help you make adjustments in your home so you can perform daily tasks more easily. Speech therapy: If PPS has made swallowing difficult, a speech therapist can help. Lifestyle changes: Your provider will likely recommend eating a healthy diet, managing your weight, getting quality sleep and not smoking to help manage your symptoms and stay healthy. […] At this time, theres no cure for post-polio syndrome.

• #23 Post-polio syndrome | NHS inform

  https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/post-polio-syndrome/

  As theres no cure for post-polio syndrome, treatment will help you manage your symptoms and quality of life. […] Its likely youll have a multidisciplinary team of healthcare professionals working together to care for you including: neurologists, respiratory specialists, physiotherapists, orthotists, psychologists, pain management specialists, occupational therapists. […] Theyll discuss the most suitable plan for your care which might include a mixture of the following: Exercise and rest. […] Exercise can help slow down the progressive muscle weakness that post-polio syndrome causes. […] Your healthcare team might suggest you try using pacing techniques. […] Painkillers. […] Medication to relieve pain might be used in addition to pacing techniques. […] Mobility aids. […] You might benefit from a mobility aid like: braces to support weakened muscles and joints, prevent falls and improve posture, walking sticks to help you balance and prevent falls, an electric scooter, a wheelchair.

• #24 Post-Polio Syndrome | University of Michigan Health

  https://www.uofmhealth.org/conditions-treatments/rehabilitation/post-polio-syndrome

  The goal of treatment is to help our patients maintain their lifestyle as much as possible by helping them control their biomechanical issues, such as increasing balance by introducing an orthotic intervention, or using physical therapy to increase strength and stability. […] A wide variety of orthotics equipment used to support or correct moving parts of the body is available, depending on each patients needs, from crutches and walkers to braces and scooters. […] Our polio research history is rich and we are continuing that tradition today, working on a number of orthotics improvements, such as working with carbon fiber to make braces stronger and lighter.

• #25 Update on current and emerging treatment options for post-polio syndrome

  https://pmc.ncbi.nlm.nih.gov/articles/PMC2909497/

  Training in warm water reduces the stress on joints and muscles, and warm water may have an analgesic effect. Dynamic water exercises, not involving swimming, are a good alternative for patients with PPS, with positive effects on pain relief, improved cardiovascular conditioning, and increased subjective well-being. […] The risk of respiratory insufficiency should be considered, because it could lead to serious complications, including increased frequency of respiratory infections, hypercapnia, pulmonary arterial hypertension, and ultimately, cor pulmonale. […] A shift from metal braces to lightweight carbon orthoses can increase walking ability in polio patients with new weakness, and biomechanical analysis of the walking pattern can lead to optimal design of orthoses and improved function in the lower limbs.

• #26 Post-polio syndrome treatment – London Orthotic Consultancy

  https://www.londonorthotics.co.uk/treatment/post-polio-syndrome-treatment/

  Improve your mobility, reduce fatigue and manage symptoms of post-polio syndrome with bespoke orthotics. […] Bespoke orthotics can: improve your walking pattern, improve your mobility, reduce muscle strain, reduce energy expenditure and fatigue while walking, increase your confidence and independence. […] We’ve successfully treated many post-polio syndrome patients (PPS) over the years with bespoke orthotics, insoles and footwear. […] The best way to find out which orthosis is right for you is to book an appointment with one of our experienced clinicians. […] Many patients find that their previous orthotic solutions no longer meet their needs as PPS progresses, requiring a review of their treatment options. […] Bespoke carbon fibre orthotics represent a groundbreaking advancement in mobility solutions and offer several advantages over traditional plastic orthotics, making them a superior choice for many patients, particularly adults. […] By reducing bulk and energy expenditure, users can walk further, faster, and with greater comfort. […] They provide a non-invasive solution for a range of foot and posture-related issues, offering comfort, support, and improved mobility.

• #27 Post-polio syndrome | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/post-polio-syndrome

  Speech therapy. A speech therapist can show you ways to compensate for swallowing difficulties. Voice strengthening exercises also might be helpful. […] Sleep disorder treatment. You might need to change your sleeping patterns, such as avoiding sleeping on your back, or use a device that helps open your airway when you sleep. If you have restless legs syndrome, treatment for that disorder may help improve sleep quality and reduce fatigue. […] Medications. Pain relievers such as aspirin, acetaminophen (Tylenol, others) and ibuprofen (Advil, Motrin IB, others) might ease muscle and joint pain. […] Other possible treatment options may include the anticonvulsant drug gabapentin (Neurontin, Gralise), which is often used to treat nerve pain. Chronic opioid pain medications generally shouldn’t be used due to their long-term risks. You and your doctor should discuss the right treatment plan for you to manage your pain and symptoms.

• #28 Management of post-polio syndrome – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24525980/

  Dysphagia can be managed with diet changes, use of special breathing and swallowing techniques, monitoring fatigue and taking larger meals earlier and smaller meals later, and avoiding eating when fatigued. […] The management of psychosocial difficulties usually requires an interdisciplinary approach, and may include a post-polio support group, social worker, psychologist, and psychiatrist.

• #29 Update on current and emerging treatment options for post-polio syndrome

  https://pmc.ncbi.nlm.nih.gov/articles/PMC2909497/

  Training in warm water reduces the stress on joints and muscles, and warm water may have an analgesic effect. Dynamic water exercises, not involving swimming, are a good alternative for patients with PPS, with positive effects on pain relief, improved cardiovascular conditioning, and increased subjective well-being. […] The risk of respiratory insufficiency should be considered, because it could lead to serious complications, including increased frequency of respiratory infections, hypercapnia, pulmonary arterial hypertension, and ultimately, cor pulmonale. […] A shift from metal braces to lightweight carbon orthoses can increase walking ability in polio patients with new weakness, and biomechanical analysis of the walking pattern can lead to optimal design of orthoses and improved function in the lower limbs.

• #30 Post-polio syndrome | UM Health-Sparrow

  https://www.uofmhealthsparrow.org/departments-conditions/conditions/post-polio-syndrome

  Speech therapy. A speech therapist can show you ways to compensate for swallowing difficulties. Voice strengthening exercises also might be helpful. […] Sleep disorder treatment. You might need to change your sleeping patterns, such as avoiding sleeping on your back, or use a device that helps open your airway when you sleep. If you have restless legs syndrome, treatment for that disorder may help improve sleep quality and reduce fatigue. […] Medications. Pain relievers such as aspirin, acetaminophen (Tylenol, others) and ibuprofen (Advil, Motrin IB, others) might ease muscle and joint pain. […] Other possible treatment options may include the anticonvulsant drug gabapentin (Neurontin, Gralise), which is often used to treat nerve pain. Chronic opioid pain medications generally shouldn’t be used due to their long-term risks. You and your doctor should discuss the right treatment plan for you to manage your pain and symptoms.

• #31 Post-polio syndrome | NHS inform

  https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/post-polio-syndrome/

  Treatment of breathing problems. […] If you have breathing problems, you might benefit from treatment or lifestyle changes. […] Healthy eating and weight control. […] If youre overweight, you might be putting your weakened muscles under further pressure. […] Coping with psychological factors. […] The symptoms of post-polio syndrome can be distressing.

• #32 Post-polio Syndrome: Symptoms and Treatment | Doctor

  https://patient.info/doctor/post-polio-syndrome

  Specific treatment of other problems – eg, dysphagia and respiratory and sleep problems. […] Night-time mechanical ventilation is often used. This helps by resting the respiratory muscles at night and preventing deterioration of respiratory function during sleep. It also treats the secondary sleep disorder. […] There are various options – choice will depend on the patient’s individual situation and preferences.

• #33

  https://www.nhs.uk/conditions/post-polio-syndrome/treatment/

  While pain and fatigue can often be reduced using pacing, various medications to help relieve pain are available if you need them. […] If these medications don’t work, your GP may consider prescribing gabapentin for your pain. […] Mobility aids may make it possible for you to do many of the activities that were becoming difficult or impossible. […] If you have breathing difficulties as a result of post-polio syndrome, a number of treatments and lifestyle measures may be useful. […] Losing weight (if you need to) may improve your symptoms. […] Following a sensible healthy eating plan will help you reduce and control your weight, as well as improve your overall health. […] It’s important not to neglect your mental wellbeing if you have post-polio syndrome. As well as the impact on your quality of life, feelings of depression and anxiety can also interfere with your treatment.

• #34 Post-polio syndrome | NHS inform

  https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/post-polio-syndrome/

  Treatment of breathing problems. […] If you have breathing problems, you might benefit from treatment or lifestyle changes. […] Healthy eating and weight control. […] If youre overweight, you might be putting your weakened muscles under further pressure. […] Coping with psychological factors. […] The symptoms of post-polio syndrome can be distressing.

• #35 Post-Polio Syndrome Treatment And Prevention – Klarity Health Library

  https://my.klarity.health/post-polio-syndrome-treatment-and-prevention/

  Complementary therapies such as acupuncture, massage therapy, or transcutaneous electrical nerve stimulation (TENS) may provide relief from muscle pain and discomfort associated with PPS. […] Psychological support from therapists, counsellors, or support groups can provide emotional validation, coping strategies, and a sense of community for individuals living with PPS. […] Maintaining a balanced diet rich in nutrients is essential for optimising muscle function, promoting tissue repair, and preventing complications such as osteoporosis or malnutrition.

• #36 Post-polio syndrome | NHS inform

  https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/post-polio-syndrome/

  Treatment of breathing problems. […] If you have breathing problems, you might benefit from treatment or lifestyle changes. […] Healthy eating and weight control. […] If youre overweight, you might be putting your weakened muscles under further pressure. […] Coping with psychological factors. […] The symptoms of post-polio syndrome can be distressing.

• #37 Management of post-polio syndrome – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24525980/

  Dysphagia can be managed with diet changes, use of special breathing and swallowing techniques, monitoring fatigue and taking larger meals earlier and smaller meals later, and avoiding eating when fatigued. […] The management of psychosocial difficulties usually requires an interdisciplinary approach, and may include a post-polio support group, social worker, psychologist, and psychiatrist.

• #38 Post-Polio Syndrome – Harvard Health

  https://www.health.harvard.edu/a_to_z/post-polio-syndrome-a-to-z

  For treatment, these doctors may prescribe medications to help with pain and/or fatigue or perform injections. They may recommend sleep studies and prescribe treatments that help with breathing at night. They can write specific therapy orders, brace prescriptions and help coordinate the multi-disciplinary interventions. Complications that involve swallowing or breathing disturbances (such as sleep apnea) require specific treatments. Examples might include using different positions during meals, or an air-pressure mask and machine that can be used during sleep to support breathing. Counseling with a psychologist or vocational counselor can help with psychological or occupational adjustments. Support groups offer education, support and social opportunities. […] Post-polio syndrome usually worsens slowly. With a combination of multi-disciplinary rehabilitation approaches and lifestyle modifications, people often can return to or approach their previous level of functioning. Post-polio syndrome does not usually cause symptoms that are as severe as the original polio illness.

• #39

  https://myhealth.alberta.ca/Health/pages/conditions.aspx?hwid=hw184074

  Try to stay at a healthy weight. This can help reduce stress on your joints. Eat healthy foods, and stay as active as you can. […] Use assistive devices. The devices can make activities easier. An occupational therapist can help you find what devices might be most helpful, such as a cane, different types of braces or splints, or a powered chair. […] If your condition gets worse, your treatment needs may increase. Be sure to see your doctor whenever new symptoms occur or your symptoms get worse. […] Depression is common in people who have post-polio syndrome, as with many long-term illnesses. But it may be hard to recognize, because symptoms of fatigue, low energy, and sleep problems can occur with both conditions. If you think you may be depressed, talk to your doctor. Treatment can often greatly improve symptoms of depression.

• #40 Poliomyelitis/Post-Polio Syndrome | PM&R KnowledgeNow

  https://now.aapmr.org/poliomyelitis-post-polio-syndrome/

  There are no recommended pharmaceutical treatments for post-polio syndrome. Studies have looked at medications including pyridostigmine, modafinil, amantadine, human growth hormone and prednisone. None have shown evidence of significant benefit. There is some evidence that intravenous immunoglobulin may reduce pain and increase quality of life. Evidence is inconsistent for effectiveness on muscle strength and no evidence has demonstrated beneficial effect on functional activity. A large multi-center international study has been underway for years, but to date there are no published randomized control trials and no treatment has been FDA approved. […] An interdisciplinary team may include medical consultation from an internist, pulmonologist, otolaryngologist, or orthopedic surgeon. The rehabilitation needs over the course of life will likely include physical therapists, occupational therapists, orthotists, speech therapists and psychologists. It is often the physiatrist who must educate the other medical professionals regarding the unique aspects and concerns involved in the care of a polio survivor.

• #41 Poliomyelitis/Post-Polio Syndrome | PM&R KnowledgeNow

  https://now.aapmr.org/poliomyelitis-post-polio-syndrome/

  There are no recommended pharmaceutical treatments for post-polio syndrome. Studies have looked at medications including pyridostigmine, modafinil, amantadine, human growth hormone and prednisone. None have shown evidence of significant benefit. There is some evidence that intravenous immunoglobulin may reduce pain and increase quality of life. Evidence is inconsistent for effectiveness on muscle strength and no evidence has demonstrated beneficial effect on functional activity. A large multi-center international study has been underway for years, but to date there are no published randomized control trials and no treatment has been FDA approved. […] An interdisciplinary team may include medical consultation from an internist, pulmonologist, otolaryngologist, or orthopedic surgeon. The rehabilitation needs over the course of life will likely include physical therapists, occupational therapists, orthotists, speech therapists and psychologists. It is often the physiatrist who must educate the other medical professionals regarding the unique aspects and concerns involved in the care of a polio survivor.

• #42 Treatment with L-citrulline in patients with post-polio syndrome: study protocol for a single-center, randomised, placebo-controlled, double-blind trial | Trials | Full Text

  https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-017-1829-3

  Post-polio syndrome (PPS) is a condition that affects polio survivors years after recovery from an initial acute infection by the Poliomyelitis virus. […] This investigator-initiated, randomised, placebo-controlled, double-blind, trial aims to demonstrate that L-citrulline positively influences muscle function and increases muscular energy production in patients with PPS. […] The aim of this phase IIa trial is to determine if treatment with L-citrulline shows a positive effect on clinical function and paraclinical biomarkers in PPS. If treatment with L-citrulline shows positive effects, this might represent a cost-efficient symptomatic therapy for PPS patients. […] Unpublished results showed beneficial effects of CIT on muscle function and fatigue in muscular dystrophies. In both pathways, the stimulation of skeletal muscle protein syntheses via ATP production and mitochondrial biosynthesis stimulation could be potentially useful in other chronic neuromuscular disorders of neurogenic origin such as PPS.

• #43 Post-polio immune therapy does well in human trials

  https://newatlas.com/disease/clinical-trials-post-polio-syndrome/

  The investigators recruited 191 participants for the clinical trial, the goal of which was to see if the treatment helped people with PPS improve their physical ability and if it was safe. […] People who received Flebogamma 5% DIF injections once a month for 12 months walked an average of 12.75 m (41.8 ft) farther compared to how far they could walk before treatment. […] The treatment was found to be safe and well-tolerated. […] These results show a meaningful physical accomplishment, providing patients with more freedom of movement and the ability to be more self-reliant.

• #44 Post-Polio Syndrome: Causes, symptoms and promising treatment options | Health – Hindustan Times

  https://www.hindustantimes.com/lifestyle/health/postpolio-syndrome-causes-symptoms-and-promising-treatment-options-101702644253064.html

  Post-polio syndrome (PPS), a condition that can emerge decades after the initial infection, continues to affect millions of people worldwide. […] While there is no cure for Post-Polio Syndrome, Dr Pradeep Mahajan said, Researchers are increasingly turning to regenerative medicine as a potential source of hope for patients suffering from this debilitating condition. […] One promising avenue in regenerative medicine for PPS involves mesenchymal cell therapy. […] Advances in regenerative medicine have led to the development of innovative therapies like tissue engineering and gene therapy, which hold immense potential in treating PPS. […] Cell therapy, tissue engineering, and gene therapy are among the exciting avenues that researchers are exploring, with the potential to alleviate the symptoms and improve the lives of those suffering from PPS.

• #45 Improving Strength and Fatigue Resistance in Post-Polio Syndrome Individuals with REAC Neurobiological Treatments

  https://www.mdpi.com/2075-4426/13/11/1536

  This underscores the potential of addressing the dysfunctional aspect of the condition using this therapeutic approach and shows that REAC technology may be a potential treatment to reduce falls in this population. […] An important finding was that the application of the REAC protocols that were part of the present study resulted in an increase in handgrip strength when comparing T0 with T4. […] These results demonstrate the effectiveness of REAC neurobiological modulation in people with PPS, even though fatigue is a complex and debilitating symptom of this neurodegenerative disease. […] All this, when applied to the reality of patients with PPS, helps us better understand how neurobiological modulation treatments, such as REAC NPO, NPPOs, and NMO, can represent a new therapeutic strategy to assist PPS patients in both physical and psychological aspects.

• #46 Post-Polio Syndrome – Florida Oxygen

  http://florida-oxygen.com/post-polio-syndrome/

  Researchers believe that the future of PPS treatment may center on nerve growth factors. Since post-polio syndrome can result from degenerating nerve sprouts, growth factors can target these and help to regenerate new nerves. […] Ongoing research indicates that intravenous immunoglobulin may also improve muscle strength, in addition to reducing pain, and increasing quality of life. […] Hyperbaric oxygen therapy boosts white blood cells to enhance the immune system. […] After a course of 20-40 hyperbaric oxygen treatments, periodic HBOT sessions may be required to maintain initial progress. And many post-polio syndrome patients find they are able to resume a nearly normal activity level.

• #47 Post-Polio Syndrome – Florida Oxygen

  http://florida-oxygen.com/post-polio-syndrome/

  Researchers believe that the future of PPS treatment may center on nerve growth factors. Since post-polio syndrome can result from degenerating nerve sprouts, growth factors can target these and help to regenerate new nerves. […] Ongoing research indicates that intravenous immunoglobulin may also improve muscle strength, in addition to reducing pain, and increasing quality of life. […] Hyperbaric oxygen therapy boosts white blood cells to enhance the immune system. […] After a course of 20-40 hyperbaric oxygen treatments, periodic HBOT sessions may be required to maintain initial progress. And many post-polio syndrome patients find they are able to resume a nearly normal activity level.

• #48 Post-Polio Syndrome Treatment and Care – Quipt Home Medical

  https://medsupplyplus.net/medical_health_issue/post-polio-syndrome-treatment-and-care/

  People with PPS are encouraged to use mobility aids (walkers, canes and wheelchairs) and ventilation equipment (portable oxygen and CPAP machines) to increase comfort and reduce fatigue […] Experts recommend changing daily activities to prevent or avoid rapid muscle tiring and total body exhaustion. This may be drastic to people who are used to being very physically active. […] Education and support are also important in the fight against PPS. Managing PPS can involve lifestyle changes that can reduce symptoms, fatigue and exhaustion. Support groups, post-polio group participation groups and counseling may help both the individuals and families adjust to this disease.

• #49 Post-Polio Syndrome | Kaiser Permanente

  https://healthy.kaiserpermanente.org/health-wellness/health-encyclopedia/he.post-polio-syndrome.hw184074

  Post-polio syndrome is an illness of the nervous system that can appear 15 to 50 years after you had polio. […] Although post-polio syndrome can make some day-to-day activities more difficult, treatment can help control symptoms and help you stay active. […] The goal of treatment is to help you control symptoms and learn ways to stay active in spite of your muscle weakness. Here are some things you can do to stay active and feel better: Get enough exercise, and get enough rest. Finding this balance is the most important part of your treatment. Work with your doctor or a physical therapist to plan an exercise program that will help strengthen your muscles without making your pain and fatigue worse. […] Use ice, heat, and physical therapies like massage. These can help relieve pain. […] Try medicines for pain, fatigue, and sleep problems. Talk with your doctor about what medicines can help.

• #50 Post-Polio Syndrome Treatment and Care – Quipt Home Medical

  https://medsupplyplus.net/medical_health_issue/post-polio-syndrome-treatment-and-care/

  People with PPS are encouraged to use mobility aids (walkers, canes and wheelchairs) and ventilation equipment (portable oxygen and CPAP machines) to increase comfort and reduce fatigue […] Experts recommend changing daily activities to prevent or avoid rapid muscle tiring and total body exhaustion. This may be drastic to people who are used to being very physically active. […] Education and support are also important in the fight against PPS. Managing PPS can involve lifestyle changes that can reduce symptoms, fatigue and exhaustion. Support groups, post-polio group participation groups and counseling may help both the individuals and families adjust to this disease.

• #51 Post-Polio Syndrome | University of Michigan Health

  https://www.uofmhealth.org/conditions-treatments/rehabilitation/post-polio-syndrome

  Post-polio syndrome affects about 50 percent of people who have had polio. Our Post-Polio Clinic – part of the Department of Physical Medicine and Rehabilitation at University of Michigan Health – utilizes the skills of a multidisciplinary group of experts to comprehensively treat people struggling with post-polio syndrome, from physical issues to emotional challenges. […] During your first visit to the Post-Polio Clinic we gather as much information as possible to get a clear picture of your health history and current conditions. […] Once the entire history is collected and all the test results are in, our team creates a complete plan that may include orthotics, physical rehabilitation and referrals to other clinics – from Nutrition to the Sleep Center, Pulmonary medicine, Orthopaedic surgery and Neurosurgery.

• #52 Post-Polio Clinic | Patient Services | UC Davis Physical Medicine and Rehabilitation

  https://health.ucdavis.edu/pmr/patient-services/clinic/polio.html

  The clinic provides evaluation and treatment of problems secondary to paralytic polio, diagnosis of post-polio syndrome, assessment of musculoskeletal problems and functional status and recommendations for prevention of post-polio syndrome. […] The clinic provides evaluation and treatment plans for all these conditions. […] Based on the presenting diagnoses, recommendations and management are discussed with the polio survivor and a treatment plan is outlined.

• #53 Post-Polio Clinic at Eisenhower Corporate Park | University of Michigan Health

  https://www.uofmhealth.org/our-locations/siop-polio

  Post-polio syndrome affects about 50 percent of people who have had polio. […] Our Post-Polio Clinic, part of the Department of Physical Medicine and Rehabilitation at the University of Michigan, utilizes the skills of a multidisciplinary group of experts to comprehensively treat people struggling with post-polio syndrome, from physical issues to emotional challenges. […] The goal of treatment is to help our patients maintain their lifestyle as much as possible by helping them control their biomechanical issues, such as increasing balance by introducing an orthotic intervention, or using physical therapy to increase strength and stability. […] However, whats most important is having the experience with studying and treating this syndrome so the prescribed interventions help the patients, not make their situation worse.

• #54 Post-polio syndrome: It takes a team approach | Lower Extremity Review Magazine

  https://lermagazine.com/article/post-polio-syndrome-it-takes-a-team-approach

  There are two things practitioners can agree on regarding patients with post-polio syndrome (PPS): It takes a team approach to manage these patients effectively, and each patient is truly an individual case, unlike the last and unlike the next. […] Manage is the key word here, because no effective pharmaceutical treatment or preventive measure exists for PPS, which, according to the National Institute of Neurological Disorders and Stroke, affects 25% to 40% of polio survivors. […] A key factor in managing these patients, practitioners say, is balancing any exercise or device intervention aimed at maintaining muscle strength against the risk of possibly further weakening the same muscles. […] Individual variability and lack of predictive factors underscore the need for tailored care based on actual functional decline in patients with post-polio syndrome.

• #55 Post-Polio Syndrome – Harvard Health

  https://www.health.harvard.edu/a_to_z/post-polio-syndrome-a-to-z

  For treatment, these doctors may prescribe medications to help with pain and/or fatigue or perform injections. They may recommend sleep studies and prescribe treatments that help with breathing at night. They can write specific therapy orders, brace prescriptions and help coordinate the multi-disciplinary interventions. Complications that involve swallowing or breathing disturbances (such as sleep apnea) require specific treatments. Examples might include using different positions during meals, or an air-pressure mask and machine that can be used during sleep to support breathing. Counseling with a psychologist or vocational counselor can help with psychological or occupational adjustments. Support groups offer education, support and social opportunities. […] Post-polio syndrome usually worsens slowly. With a combination of multi-disciplinary rehabilitation approaches and lifestyle modifications, people often can return to or approach their previous level of functioning. Post-polio syndrome does not usually cause symptoms that are as severe as the original polio illness.

• #56 Treatment with L-citrulline in patients with post-polio syndrome: study protocol for a single-center, randomised, placebo-controlled, double-blind trial | Trials | Full Text

  https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-017-1829-3

  The aim of this investigator-initiated, randomised, placebo-controlled, double-blind, phase IIa trial is to examine whether treatment with CIT has a beneficial effect on clinical muscle function and fatigue and on the surrogate biomarkers that assess muscle ATP production and mitochondrial function in PPS. If this turns out to be the case, a cost-effective, symptomatic therapy with CIT could be available for these patients.

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