Materiały źródłowe

• #1 Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/catalog/19012/beyond-myalgic-encephalomyelitischronic-fatigue-syndrome-redefining-an-illness

  Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. […] One of the report’s most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. […] Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.

• #2

  https://www.legislature.mi.gov/documents/2017-2018/resolutionintroduced/house/archive/2018-HIR-0388.HTM

  A resolution to recognize myalgic encephalomyelitis as a serious, debilitating disease and urge key entities to improve patient care, prioritize new research, educate health professionals, and raise awareness about the severity of the disease. […] Recognize that myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a tragic, disabling disease that destroys the lives of many patients and takes a severe toll on their families, friends, and caretakers; […] Recommend that the National Institutes of Health fund ME/CFS research at a level commensurate with similarly burdensome diseases; […] Encourage universities in Michigan to focus research attention on this underserved disease; […] Recommend that the Centers for Disease Control and Prevention disseminate new ME/CFS medical education that is updated in accordance with recommendations from the National Academy of Medicine, the Chronic Fatigue Syndrome Advisory Committee of the United States Department of Health and Human Services, and disease experts; and […] Encourage media organizations to inform the public about the seriousness of the disease.

• #3 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

  https://my.clevelandclinic.org/health/diseases/17720-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs

  Currently, there is no known way to prevent chronic fatigue syndrome. […] The goal of treatment is to make symptoms as manageable as possible to increase your quality of life.

• #4 Chronic Fatigue Syndrome – Harvard Health

  https://www.health.harvard.edu/a_to_z/chronic-fatigue-syndrome-a-to-z

  There are no specific actions a person can take to prevent ME/CFS. […] Although most cases of chronic fatigue syndrome do not occur during epidemics, at least 30 outbreaks of chronic fatigue syndrome have been reported, during which many people in the same area suddenly developed the illness at the same time. However, health experts have failed to identify a cause for their chronic fatigue syndrome symptoms.

• #5 Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) – symptoms and treatment | healthdirect

  https://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs-me

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex illness where extreme tiredness and other symptoms reduce your ability to function. […] Can myalgic encephalomyelitis/chronic fatigue syndrome be prevented? […] It is hard to prevent ME/CFS as the cause is unclear.

• #6 The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC8073750/

  This report addresses the extent to which there may be scope for preventive programmes for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and, if so, what economic benefits may accrue from the implementation of such programmes. […] We conclude that there is little scope for primary prevention programmes, given that ME/CFS is attributable to a combination of host and environmental risk factors, with host factors appearing to be most prominent, and that there are few identified modifiable risk factors that could be the focus of such programmes. […] The exception is in the use of agricultural chemicals, particularly organophosphates, where there is scope for intervention, and where Europe-wide programmes of health education to encourage safe use would be beneficial. […] There is a need for more research on risk factors for ME/CFS to establish a basis for the development of primary prevention programmes, particularly in respect of occupational risk factors.

• #7 The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC8073750/

  This report addresses the extent to which there may be scope for preventive programmes for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and, if so, what economic benefits may accrue from the implementation of such programmes. […] We conclude that there is little scope for primary prevention programmes, given that ME/CFS is attributable to a combination of host and environmental risk factors, with host factors appearing to be most prominent, and that there are few identified modifiable risk factors that could be the focus of such programmes. […] The exception is in the use of agricultural chemicals, particularly organophosphates, where there is scope for intervention, and where Europe-wide programmes of health education to encourage safe use would be beneficial. […] There is a need for more research on risk factors for ME/CFS to establish a basis for the development of primary prevention programmes, particularly in respect of occupational risk factors.

• #8 Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) – symptoms and treatment | healthdirect

  https://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs-me

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex illness where extreme tiredness and other symptoms reduce your ability to function. […] Can myalgic encephalomyelitis/chronic fatigue syndrome be prevented? […] It is hard to prevent ME/CFS as the cause is unclear.

• #9 Chronic Fatigue Syndrome – Harvard Health

  https://www.health.harvard.edu/a_to_z/chronic-fatigue-syndrome-a-to-z

  There are no specific actions a person can take to prevent ME/CFS. […] Although most cases of chronic fatigue syndrome do not occur during epidemics, at least 30 outbreaks of chronic fatigue syndrome have been reported, during which many people in the same area suddenly developed the illness at the same time. However, health experts have failed to identify a cause for their chronic fatigue syndrome symptoms.

• #10 Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses > News > Yale Medicine

  https://www.yalemedicine.org/news/long-covid-mecfs-and-the-importance-of-studying-infection-associated-illnesses

  Research on Long COVID may also shine light on the underlying causes of myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS. […] Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a neuroinflammatory, neuroimmune illness most commonly triggered by infection, such as Epstein-Barr virus, though patients have reported other triggers as well, such as physical accidents and environmental exposures. […] Studies over the last few years have found that about half of people with Long COVID meet diagnostic criteria for ME/CFS, and the prevalence of ME/CFS has been growing as a result of the pandemic and Long COVID. […] More research is critical to better understand the underlying mechanisms of both Long COVID and ME/CFS and to inform future clinical trials. […] Pollack recommends that both researchers and clinicians screen for co-occurring diseases in those diagnosed with ME/CFS or Long COVID.

• #11 6 Pediatric ME/CFS | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/read/19012/chapter/8

  The committee adopted a 6-month duration of symptoms for the diagnosis of ME/CFS in children based on the literature described earlier in the chapter. Nonetheless, the committee emphasizes that this time criterion should not interfere with initiating appropriate symptom-based management long before 6 months has elapsed in children presenting with prolonged fatigue. Symptomatic treatment can begin at any point after the onset of fatigue as the diagnostic process continues to evaluate and exclude other potential causes for the patients symptoms. […] There is sufficient evidence that orthostatic intolerance and autonomic dysfunction are common in pediatric ME/CFS; that neurocognitive abnormalities emerge when pediatric ME/CFS patients are tested under conditions of orthostatic stress or distraction; and that there is a high prevalence of profound fatigue, unrefreshing sleep, and post-exertional exacerbation of symptoms in these patients. […] There also is sufficient evidence that pediatric ME/CFS can follow acute infectious mononucleosis and EBV.

• #12 Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey | PLOS One

  https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0309810

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be triggered by infectious agents including severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). However, the impact of the coronavirus disease 2019 (COVID-19) pandemic on ME/CFS prevalence is not well characterized. […] In a large, integrated health system, 1.67% of adults had ME/CFS-like illness and 14.12% of all persons with ME/CFS-like illness developed it after COVID-19. […] Additional attention is needed to improve awareness, diagnosis, and treatment of ME/CFS. […] Strategies to prevent ME/CFS-like illness and the infections that trigger it, whether COVID-19 or another infection, must be implemented to reduce future cases of ME/CFS. […] Longitudinal studies and high quality clinical trials are needed to understand the natural history of ME/CFS-like illness both without COVID-19 and after COVID-19, and tools for care and treatment are needed to reduce the morbidity associated with ME/CFS-like illness.

• #13 Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses > News > Yale Medicine

  https://www.yalemedicine.org/news/long-covid-mecfs-and-the-importance-of-studying-infection-associated-illnesses

  Research on Long COVID may also shine light on the underlying causes of myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS. […] Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a neuroinflammatory, neuroimmune illness most commonly triggered by infection, such as Epstein-Barr virus, though patients have reported other triggers as well, such as physical accidents and environmental exposures. […] Studies over the last few years have found that about half of people with Long COVID meet diagnostic criteria for ME/CFS, and the prevalence of ME/CFS has been growing as a result of the pandemic and Long COVID. […] More research is critical to better understand the underlying mechanisms of both Long COVID and ME/CFS and to inform future clinical trials. […] Pollack recommends that both researchers and clinicians screen for co-occurring diseases in those diagnosed with ME/CFS or Long COVID.

• #14 The influence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) family history on patients with ME/CFS

  https://www.explorationpub.com/Journals/em/Article/1001215

  Our study has comparable outcomes to other studies in which patients with ME/CFS were more likely than controls to have family members with ME/CFS. […] The higher rates of gastrointestinal problems among those patients with family backgrounds of ME/CFS suggest a mechanism by which there is a family correlation with ME/CFS. Perhaps it involves an actual pathogen the different family members contract or family members have an inherited condition affecting the gastrointestinal tract. Either way, it is possible this represents a possible predisposing factor for the development of ME/CFS. […] Family history can also be utilized to understand possible predisposing factors for those with ME/CFS. Youth and adolescent populations can also benefit from the use of family history by having symptoms screened early on which may even prevent the development of ME/CFS in adulthood. Family history can be used to better understand ME/CFS etiology, development, and treatment.

• #15 The influence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) family history on patients with ME/CFS

  https://www.explorationpub.com/Journals/em/Article/1001215

  Our study has comparable outcomes to other studies in which patients with ME/CFS were more likely than controls to have family members with ME/CFS. […] The higher rates of gastrointestinal problems among those patients with family backgrounds of ME/CFS suggest a mechanism by which there is a family correlation with ME/CFS. Perhaps it involves an actual pathogen the different family members contract or family members have an inherited condition affecting the gastrointestinal tract. Either way, it is possible this represents a possible predisposing factor for the development of ME/CFS. […] Family history can also be utilized to understand possible predisposing factors for those with ME/CFS. Youth and adolescent populations can also benefit from the use of family history by having symptoms screened early on which may even prevent the development of ME/CFS in adulthood. Family history can be used to better understand ME/CFS etiology, development, and treatment.

• #16 The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC8073750/

  Secondary prevention offers the greatest scope for intervention, to minimise diagnostic delays associated with prolonged illness, increased severity, and increased costs. […] This review has demonstrated that there is little consensus about the nature and impact of risk factors for ME/CFS and, as regards those risk factors about which there is general agreement, few are modifiable. Therefore, there is little scope for programmes of primary prevention, with the exception of organophosphate exposure. […] However, by contrast, there is considerable scope for secondary prevention, as improving the management of ME/CFS in the early stages of illness could have an impact in reducing the incidence and prevalence of severe prolonged disease, and thereby also its economic impact.

• #17 The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC8073750/

  Secondary prevention offers the greatest scope for intervention, to minimise diagnostic delays associated with prolonged illness, increased severity, and increased costs. […] This review has demonstrated that there is little consensus about the nature and impact of risk factors for ME/CFS and, as regards those risk factors about which there is general agreement, few are modifiable. Therefore, there is little scope for programmes of primary prevention, with the exception of organophosphate exposure. […] However, by contrast, there is considerable scope for secondary prevention, as improving the management of ME/CFS in the early stages of illness could have an impact in reducing the incidence and prevalence of severe prolonged disease, and thereby also its economic impact.

• #18

  https://smw.ch/index.php/smw/announcement/view/48

  Myalgic encephalomyelitis / chronic fatigue syndrome is not a rare disease. The global prevalence ranges from 0.2% to 2.8%, and it affects people from all races, all socioeconomic groups and all age groups. […] Myalgic encephalomyelitis / chronic fatigue syndrome poses a challenge for diagnostics and disease management. Awareness and knowledge of the disease are of paramount importance, considering there is currently no available treatment. Early diagnosis of patients and initiating adequate management and support may reduce the healthcare costs while improving the patients physical and mental well-being and functionality, thus avoiding increased severity of the disease and risk of long-term complications. […] There is an urgent need in Switzerland to include myalgic encephalomyelitis / chronic fatigue syndrome in the national health agenda in order to provide an adequate framework for appropriate care of patients.

• #19 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Find a doctor who understands ME/CFS. […] Managing symptoms with your trusted healthcare professional can help to stabilise your ME/CFS and improve your quality of life. […] Pacing and rest are two self-management strategies commonly used with ME/CFS. The main goal of pacing is to reduce the intensity and frequency of PEM by limiting activity to the energy available. A key component of pacing is rest. […] While diagnosis requires that a person has had symptoms continually for six months, early intervention with pacing and rest can help reduce symptoms, improve quality of life and reduce the risk of exacerbating the disease. Research suggests that patients who are able to pace their activity and not push themselves tend to do better in the long term. Pacing and rest can start even prior to an official diagnosis.

• #20 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Find a doctor who understands ME/CFS. […] Managing symptoms with your trusted healthcare professional can help to stabilise your ME/CFS and improve your quality of life. […] Pacing and rest are two self-management strategies commonly used with ME/CFS. The main goal of pacing is to reduce the intensity and frequency of PEM by limiting activity to the energy available. A key component of pacing is rest. […] While diagnosis requires that a person has had symptoms continually for six months, early intervention with pacing and rest can help reduce symptoms, improve quality of life and reduce the risk of exacerbating the disease. Research suggests that patients who are able to pace their activity and not push themselves tend to do better in the long term. Pacing and rest can start even prior to an official diagnosis.

• #21 6 Pediatric ME/CFS | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/read/19012/chapter/8

  The committee adopted a 6-month duration of symptoms for the diagnosis of ME/CFS in children based on the literature described earlier in the chapter. Nonetheless, the committee emphasizes that this time criterion should not interfere with initiating appropriate symptom-based management long before 6 months has elapsed in children presenting with prolonged fatigue. Symptomatic treatment can begin at any point after the onset of fatigue as the diagnostic process continues to evaluate and exclude other potential causes for the patients symptoms. […] There is sufficient evidence that orthostatic intolerance and autonomic dysfunction are common in pediatric ME/CFS; that neurocognitive abnormalities emerge when pediatric ME/CFS patients are tested under conditions of orthostatic stress or distraction; and that there is a high prevalence of profound fatigue, unrefreshing sleep, and post-exertional exacerbation of symptoms in these patients. […] There also is sufficient evidence that pediatric ME/CFS can follow acute infectious mononucleosis and EBV.

• #22 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Find a doctor who understands ME/CFS. […] Managing symptoms with your trusted healthcare professional can help to stabilise your ME/CFS and improve your quality of life. […] Pacing and rest are two self-management strategies commonly used with ME/CFS. The main goal of pacing is to reduce the intensity and frequency of PEM by limiting activity to the energy available. A key component of pacing is rest. […] While diagnosis requires that a person has had symptoms continually for six months, early intervention with pacing and rest can help reduce symptoms, improve quality of life and reduce the risk of exacerbating the disease. Research suggests that patients who are able to pace their activity and not push themselves tend to do better in the long term. Pacing and rest can start even prior to an official diagnosis.

• #23 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Pacing, or keeping within your available energy, is a self-management strategy to help people with ME/CFS make sure that they dont overdo activity or exercise. It reduces the likelihood of triggering PEM and can help reduce symptoms. Pacing is not a cure for ME/CFS and does not treat the underlying, physical cause of the disease. […] The goal of pacing is for activity to be sustainable, so that the person can have some stability in their symptoms and what they can do each day. Pacing should be used in conjunction with rest. […] Exercise is not a cure or treatment for ME/CFS. It does not repair the underlying problem, but can help improve functional strength or fitness if done safely. […] If you feel you can tolerate some exercise, be guided by your doctor or specialist, but general suggestions include: Experiment to find the type of exercise that works best for you.

• #24 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Pacing, or keeping within your available energy, is a self-management strategy to help people with ME/CFS make sure that they dont overdo activity or exercise. It reduces the likelihood of triggering PEM and can help reduce symptoms. Pacing is not a cure for ME/CFS and does not treat the underlying, physical cause of the disease. […] The goal of pacing is for activity to be sustainable, so that the person can have some stability in their symptoms and what they can do each day. Pacing should be used in conjunction with rest. […] Exercise is not a cure or treatment for ME/CFS. It does not repair the underlying problem, but can help improve functional strength or fitness if done safely. […] If you feel you can tolerate some exercise, be guided by your doctor or specialist, but general suggestions include: Experiment to find the type of exercise that works best for you.

• #25 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Pacing, or keeping within your available energy, is a self-management strategy to help people with ME/CFS make sure that they dont overdo activity or exercise. It reduces the likelihood of triggering PEM and can help reduce symptoms. Pacing is not a cure for ME/CFS and does not treat the underlying, physical cause of the disease. […] The goal of pacing is for activity to be sustainable, so that the person can have some stability in their symptoms and what they can do each day. Pacing should be used in conjunction with rest. […] Exercise is not a cure or treatment for ME/CFS. It does not repair the underlying problem, but can help improve functional strength or fitness if done safely. […] If you feel you can tolerate some exercise, be guided by your doctor or specialist, but general suggestions include: Experiment to find the type of exercise that works best for you.

• #26 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: How to Help Yourself | AAFP

  https://www.aafp.org/pubs/afp/issues/2023/0700/patient-information-myalgic-encephalomyelitis-chronic-fatigue-sy.html

  Myalgic encephalomyelitis (my-AL-gic en-SEH-fuhlow-MY-uh-LIE-tus)/chronic fatigue syndrome (ME/CFS) is a chronic, severe, possibly disabling disorder. It can cause inflammatory, neurologic, immune, and metabolic problems that are not well understood. […] Knowing your activity limits and pacing yourself are the best ways to feel better. Some of your tasks may use lots of energy and make you feel more fatigued, so choose each day’s activities carefully and do your important work earlier in the day. […] Although there is no cure for ME/CFS, you should do your best to improve your health. […] Modest exercise may worsen fatigue in many people with ME/CFS. You should work on pacing to balance physical efforts with rest. […] It’s important to exercise within your limits. Always stop exercising before you feel tired. […] Set reasonable limits for yourself. Trying to do too much makes things worse. Instead, plan your day’s activities for when you usually feel better. […] Relaxation techniques, such as deep breathing, meditation, and massage therapy, can help you manage stress and chronic pain.

• #27 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: How to Help Yourself | AAFP

  https://www.aafp.org/pubs/afp/issues/2023/0700/patient-information-myalgic-encephalomyelitis-chronic-fatigue-sy.html

  Myalgic encephalomyelitis (my-AL-gic en-SEH-fuhlow-MY-uh-LIE-tus)/chronic fatigue syndrome (ME/CFS) is a chronic, severe, possibly disabling disorder. It can cause inflammatory, neurologic, immune, and metabolic problems that are not well understood. […] Knowing your activity limits and pacing yourself are the best ways to feel better. Some of your tasks may use lots of energy and make you feel more fatigued, so choose each day’s activities carefully and do your important work earlier in the day. […] Although there is no cure for ME/CFS, you should do your best to improve your health. […] Modest exercise may worsen fatigue in many people with ME/CFS. You should work on pacing to balance physical efforts with rest. […] It’s important to exercise within your limits. Always stop exercising before you feel tired. […] Set reasonable limits for yourself. Trying to do too much makes things worse. Instead, plan your day’s activities for when you usually feel better. […] Relaxation techniques, such as deep breathing, meditation, and massage therapy, can help you manage stress and chronic pain.

• #28 Chronic fatigue syndrome: Symptoms, treatment, and causes

  https://www.medicalnewstoday.com/articles/184802

  Chronic fatigue syndrome also known as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) OR systemic exertional intolerance disease (SEID) is a serious, chronic illness that can cause pain and extreme fatigue. […] Lifestyle strategies and medical treatment may help people manage some of the symptoms. […] There is currently no cure or treatment specific to ME/CFS, but a doctor may work with individuals to help them manage the symptoms. The treatment plan will vary among individuals, as ME/CFS affects people differently. […] Various strategies can help people manage ME/CFS. […] The CDC notes that exercise plans that benefit many people with chronic diseases are not usually suitable for people with ME/CFS, and they may be dangerous. […] People with symptoms or a diagnosis of ME/CFS should not follow any type of activity plan without discussing it with their doctor first. […] Until scientists find a specific treatment, coping strategies will play a key role in managing ME/CFS.

• #29 Chronic fatigue syndrome: Symptoms, treatment, and causes

  https://www.medicalnewstoday.com/articles/184802

  Chronic fatigue syndrome also known as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) OR systemic exertional intolerance disease (SEID) is a serious, chronic illness that can cause pain and extreme fatigue. […] Lifestyle strategies and medical treatment may help people manage some of the symptoms. […] There is currently no cure or treatment specific to ME/CFS, but a doctor may work with individuals to help them manage the symptoms. The treatment plan will vary among individuals, as ME/CFS affects people differently. […] Various strategies can help people manage ME/CFS. […] The CDC notes that exercise plans that benefit many people with chronic diseases are not usually suitable for people with ME/CFS, and they may be dangerous. […] People with symptoms or a diagnosis of ME/CFS should not follow any type of activity plan without discussing it with their doctor first. […] Until scientists find a specific treatment, coping strategies will play a key role in managing ME/CFS.

• #30 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Pacing, or keeping within your available energy, is a self-management strategy to help people with ME/CFS make sure that they dont overdo activity or exercise. It reduces the likelihood of triggering PEM and can help reduce symptoms. Pacing is not a cure for ME/CFS and does not treat the underlying, physical cause of the disease. […] The goal of pacing is for activity to be sustainable, so that the person can have some stability in their symptoms and what they can do each day. Pacing should be used in conjunction with rest. […] Exercise is not a cure or treatment for ME/CFS. It does not repair the underlying problem, but can help improve functional strength or fitness if done safely. […] If you feel you can tolerate some exercise, be guided by your doctor or specialist, but general suggestions include: Experiment to find the type of exercise that works best for you.

• #31

  https://www.painscale.com/article/at-home-treatments-for-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a medical condition defined by persistent, severe fatigue that lasts for months or years. […] In addition to conventional medical treatments for ME/CFS, several at-home treatments may also help reduce symptoms, such as fatigue and pain. […] Good sleep hygiene, such as going to bed and waking up at the same time each day, keeping the bedroom cool and dark, and avoiding the use of cell phones or other devices before bedtime, can help manage symptoms of ME/CFS. […] These at-home treatments can be used alone or along with conventional or alternative/complementary treatments for ME/CFS.

• #32 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: How to Help Yourself | AAFP

  https://www.aafp.org/pubs/afp/issues/2023/0700/patient-information-myalgic-encephalomyelitis-chronic-fatigue-sy.html

  Myalgic encephalomyelitis (my-AL-gic en-SEH-fuhlow-MY-uh-LIE-tus)/chronic fatigue syndrome (ME/CFS) is a chronic, severe, possibly disabling disorder. It can cause inflammatory, neurologic, immune, and metabolic problems that are not well understood. […] Knowing your activity limits and pacing yourself are the best ways to feel better. Some of your tasks may use lots of energy and make you feel more fatigued, so choose each day’s activities carefully and do your important work earlier in the day. […] Although there is no cure for ME/CFS, you should do your best to improve your health. […] Modest exercise may worsen fatigue in many people with ME/CFS. You should work on pacing to balance physical efforts with rest. […] It’s important to exercise within your limits. Always stop exercising before you feel tired. […] Set reasonable limits for yourself. Trying to do too much makes things worse. Instead, plan your day’s activities for when you usually feel better. […] Relaxation techniques, such as deep breathing, meditation, and massage therapy, can help you manage stress and chronic pain.

• #33 JMIR Research Protocols – Development and Implementation of an Online Patient Education Program for Children and Adolescents With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Their Parents, Siblings, and School Personnel: Protocol for the Prospecti

  https://www.researchprotocols.org/2024/1/e54679

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) presents significant challenges for affected children and adolescents, their social environment, and treating physicians, due to its profound impact on quality of life and the lack of causal therapeutic approaches. One crucial aspect of care that has been missing for these patients is comprehensive education for both them and their social circles. […] The focus is on developing online education programs for children and adolescents with ME/CFS, as well as for their parents, siblings, and school staff. These programs are designed to improve independent disease management, increase knowledge, and promote interaction with other affected individuals. […] To address knowledge deficits and empower individuals with ME/CFS to engage in self-management and disease control, experts from the European Network on ME/CFS (EUROMENE), which defines diagnostic standards for adults, recommend patient education as part of the therapeutic measures. Patient education programs have become an integral part of therapy options for children and adolescents with various chronic diseases. The objective of these programs is to promote self-management among individuals and within their social environment.

• #34 JMIR Research Protocols – Development and Implementation of an Online Patient Education Program for Children and Adolescents With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Their Parents, Siblings, and School Personnel: Protocol for the Prospecti

  https://www.researchprotocols.org/2024/1/e54679

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) presents significant challenges for affected children and adolescents, their social environment, and treating physicians, due to its profound impact on quality of life and the lack of causal therapeutic approaches. One crucial aspect of care that has been missing for these patients is comprehensive education for both them and their social circles. […] The focus is on developing online education programs for children and adolescents with ME/CFS, as well as for their parents, siblings, and school staff. These programs are designed to improve independent disease management, increase knowledge, and promote interaction with other affected individuals. […] To address knowledge deficits and empower individuals with ME/CFS to engage in self-management and disease control, experts from the European Network on ME/CFS (EUROMENE), which defines diagnostic standards for adults, recommend patient education as part of the therapeutic measures. Patient education programs have become an integral part of therapy options for children and adolescents with various chronic diseases. The objective of these programs is to promote self-management among individuals and within their social environment.

• #35 JMIR Research Protocols – Development and Implementation of an Online Patient Education Program for Children and Adolescents With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Their Parents, Siblings, and School Personnel: Protocol for the Prospecti

  https://www.researchprotocols.org/2024/1/e54679

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) presents significant challenges for affected children and adolescents, their social environment, and treating physicians, due to its profound impact on quality of life and the lack of causal therapeutic approaches. One crucial aspect of care that has been missing for these patients is comprehensive education for both them and their social circles. […] The focus is on developing online education programs for children and adolescents with ME/CFS, as well as for their parents, siblings, and school staff. These programs are designed to improve independent disease management, increase knowledge, and promote interaction with other affected individuals. […] To address knowledge deficits and empower individuals with ME/CFS to engage in self-management and disease control, experts from the European Network on ME/CFS (EUROMENE), which defines diagnostic standards for adults, recommend patient education as part of the therapeutic measures. Patient education programs have become an integral part of therapy options for children and adolescents with various chronic diseases. The objective of these programs is to promote self-management among individuals and within their social environment.

• #36 JMIR Research Protocols – Development and Implementation of an Online Patient Education Program for Children and Adolescents With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Their Parents, Siblings, and School Personnel: Protocol for the Prospecti

  https://www.researchprotocols.org/2024/1/e54679

  The goal of these strategies is to avoid PEM and enhance HRQoL. Additionally, understanding the disease is crucial for the comprehensive care of the immediate environment, including family members and school personnel. Therefore, the objective of this project was to develop, implement, and evaluate modular group education programs for children and adolescents with ME/CFS, as well as for their parents, siblings, and teachers. […] Consequently, this project developed training sessions based on the ModuS concept for digital implementation. […] The study design presented describes the development, implementation, and planned evaluation of an online training model for individuals with ME/CFS up to the age of 20 years, as well as their parents, siblings, and school staff. This model is part of a new interprofessional care approach.

• #37

  https://www.legislature.mi.gov/documents/2017-2018/resolutionintroduced/house/archive/2018-HIR-0388.HTM

  A resolution to recognize myalgic encephalomyelitis as a serious, debilitating disease and urge key entities to improve patient care, prioritize new research, educate health professionals, and raise awareness about the severity of the disease. […] Recognize that myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a tragic, disabling disease that destroys the lives of many patients and takes a severe toll on their families, friends, and caretakers; […] Recommend that the National Institutes of Health fund ME/CFS research at a level commensurate with similarly burdensome diseases; […] Encourage universities in Michigan to focus research attention on this underserved disease; […] Recommend that the Centers for Disease Control and Prevention disseminate new ME/CFS medical education that is updated in accordance with recommendations from the National Academy of Medicine, the Chronic Fatigue Syndrome Advisory Committee of the United States Department of Health and Human Services, and disease experts; and […] Encourage media organizations to inform the public about the seriousness of the disease.

• #38 Understanding Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in the School-aged child – Considerations for School Nurses

  https://massmecfs.org/nurse-patti-s-blog/765-patti-s-blog-1

  Recently I viewed the continuing education offering Why Cant This Child Get to Class? with a presentation from Peter C. Rowe, MD, a Professor of Pediatrics at Johns Hopkins University School of Medicine, who is a specialist in treating children and adolescents with Chronic Fatigue and Related Disorders. Dr. Rowe brings to light the complex, serious and chronic multisystem disease Myalgic encephalomyelitis/Chronic fatigue syndrome (ME/CFS) that can profoundly limit the health and activities of affected patients. […] Because of the chronicity to ME/CFS, regular monitoring is important to support the young patient to be aware of any changes in symptoms or any emergence of a new illness. Appropriate referral to health practitioners familiar with ME/CFS is often needed. School personnel need to be educated about the effect of the illness on academic performance and health providers need to provide appropriate documentation to support any accommodations that may be necessary for the student.

• #39 Myalgic Encephalomyelitis („Chronic Fatigue Syndrome”)

  https://www.schoolhealthny.com/site/default.aspx?PageType=3&ModuleInstanceID=190&ViewID=7b97f7ed-8e5e-4120-848f-a8b4987d588f&RenderLoc=0&FlexDataID=3838&PageID=126

  On the recommendation of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) of the U.S. Department of Health and Human Services, the Centers for Disease Control and Prevention (CDC) and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs). […] Understanding the problems facing students with ME/CFS helps staff and students succeed in school. […] the CDC provides information for teachers, guidance counselors, and other school staff to help support students. […] the CDC and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs) with links to content in the pediatric section of the CDCs ME/CFS website with resources that might be helpful to patients with ME/CFS and their families.

• #40 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – Center for Parent Information and Resources

  https://www.parentcenterhub.org/me-cfs/

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness. […] On the recommendation of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) of the U.S. Department of Health and Human Services, the Centers for Disease Control and Prevention (CDC) and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs). […] However, when teaching or supporting adolescents or younger children with ME/CFS, it can be helpful to understand more about the problems faced by these students.

• #41 Myalgic Encephalomyelitis („Chronic Fatigue Syndrome”)

  https://www.schoolhealthny.com/site/default.aspx?PageType=3&ModuleInstanceID=190&ViewID=7b97f7ed-8e5e-4120-848f-a8b4987d588f&RenderLoc=0&FlexDataID=3838&PageID=126

  On the recommendation of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) of the U.S. Department of Health and Human Services, the Centers for Disease Control and Prevention (CDC) and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs). […] Understanding the problems facing students with ME/CFS helps staff and students succeed in school. […] the CDC provides information for teachers, guidance counselors, and other school staff to help support students. […] the CDC and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs) with links to content in the pediatric section of the CDCs ME/CFS website with resources that might be helpful to patients with ME/CFS and their families.

• #42 Myalgic Encephalomyelitis („Chronic Fatigue Syndrome”)

  https://www.schoolhealthny.com/site/default.aspx?PageType=3&ModuleInstanceID=190&ViewID=7b97f7ed-8e5e-4120-848f-a8b4987d588f&RenderLoc=0&FlexDataID=3838&PageID=126

  On the recommendation of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) of the U.S. Department of Health and Human Services, the Centers for Disease Control and Prevention (CDC) and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs). […] Understanding the problems facing students with ME/CFS helps staff and students succeed in school. […] the CDC provides information for teachers, guidance counselors, and other school staff to help support students. […] the CDC and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs) with links to content in the pediatric section of the CDCs ME/CFS website with resources that might be helpful to patients with ME/CFS and their families.

• #43 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Having a supportive community of family, friends, school, work, employers and health workers, who understand the potential seriousness of ME/CFS, can also help improve the quality of life of people living with ME/CFS. […] Everyone involved in supporting someone with ME/CFS needs to understand Post Exertional Malaise, which is an abnormal, biological response to exercise or activity. This means the patient will not be able to do all of the activities they used to be able to do, and will benefit from practical and emotional support. […] Speaking with a qualified mental health professional who understands the challenges of living with ME/CFS can be very helpful.

• #44 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Having a supportive community of family, friends, school, work, employers and health workers, who understand the potential seriousness of ME/CFS, can also help improve the quality of life of people living with ME/CFS. […] Everyone involved in supporting someone with ME/CFS needs to understand Post Exertional Malaise, which is an abnormal, biological response to exercise or activity. This means the patient will not be able to do all of the activities they used to be able to do, and will benefit from practical and emotional support. […] Speaking with a qualified mental health professional who understands the challenges of living with ME/CFS can be very helpful.

• #45 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Having a supportive community of family, friends, school, work, employers and health workers, who understand the potential seriousness of ME/CFS, can also help improve the quality of life of people living with ME/CFS. […] Everyone involved in supporting someone with ME/CFS needs to understand Post Exertional Malaise, which is an abnormal, biological response to exercise or activity. This means the patient will not be able to do all of the activities they used to be able to do, and will benefit from practical and emotional support. […] Speaking with a qualified mental health professional who understands the challenges of living with ME/CFS can be very helpful.

• #46 The search for a blood-based biomarker for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS): from biochemistry to electrophysiology | Journal of Translational Medicine | Full Text

  https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06146-6

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease of unknown aetiology characterised by symptoms of post-exertional malaise (PEM) and fatigue leading to substantial impairment in functioning. […] To date there is no complete understanding of the triggering pathomechanisms of disease, and no quantitative biomarker available with sufficient sensitivity, specificity, and adoptability to provide conclusive diagnosis. […] Without a quantitative biomarker, trivialisation, scepticism, marginalisation, and misunderstanding of ME/CFS continues despite the significant disability for many. […] Recent studies have reported promising quantifiable differences in the biochemical and electrophysiological properties of blood cells, which separate ME/CFS and non-ME/CFS participants with high sensitivities and specificitiesdemonstrating potential development of an accessible and relatively non-invasive diagnostic biomarker.

• #47 The search for a blood-based biomarker for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS): from biochemistry to electrophysiology | Journal of Translational Medicine | Full Text

  https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06146-6

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease of unknown aetiology characterised by symptoms of post-exertional malaise (PEM) and fatigue leading to substantial impairment in functioning. […] To date there is no complete understanding of the triggering pathomechanisms of disease, and no quantitative biomarker available with sufficient sensitivity, specificity, and adoptability to provide conclusive diagnosis. […] Without a quantitative biomarker, trivialisation, scepticism, marginalisation, and misunderstanding of ME/CFS continues despite the significant disability for many. […] Recent studies have reported promising quantifiable differences in the biochemical and electrophysiological properties of blood cells, which separate ME/CFS and non-ME/CFS participants with high sensitivities and specificitiesdemonstrating potential development of an accessible and relatively non-invasive diagnostic biomarker.

• #48 The search for a blood-based biomarker for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS): from biochemistry to electrophysiology | Journal of Translational Medicine | Full Text

  https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06146-6

  Different biochemical and electrophysiological properties which differentiate ME/CFS have been identified across studies, holding promise as potential blood-based quantitative diagnostic biomarkers for ME/CFS. However, further research is required to determine their specificity to ME/CFS and adoptability for clinical use. […] A quantifiable biomarker is urgently required to assist in and accelerate a correct ME/CFS diagnosis. […] In the absence of a diagnostic biomarker for ME/CFS, differential diagnosis is performed using clinical guidelines, physical examinations, medical histories, and blood tests to eliminate other conditions which share similar symptom presentation. […] The specificity of a diagnostic biomarker is the percentage defining the number of individuals who have a correct negative test result out of the total subjects who do not have the disease.

• #49 The search for a blood-based biomarker for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS): from biochemistry to electrophysiology | Journal of Translational Medicine | Full Text

  https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06146-6

  Different biochemical and electrophysiological properties which differentiate ME/CFS have been identified across studies, holding promise as potential blood-based quantitative diagnostic biomarkers for ME/CFS. However, further research is required to determine their specificity to ME/CFS and adoptability for clinical use. […] A quantifiable biomarker is urgently required to assist in and accelerate a correct ME/CFS diagnosis. […] In the absence of a diagnostic biomarker for ME/CFS, differential diagnosis is performed using clinical guidelines, physical examinations, medical histories, and blood tests to eliminate other conditions which share similar symptom presentation. […] The specificity of a diagnostic biomarker is the percentage defining the number of individuals who have a correct negative test result out of the total subjects who do not have the disease.

• #50 The search for a blood-based biomarker for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS): from biochemistry to electrophysiology | Journal of Translational Medicine | Full Text

  https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06146-6

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease of unknown aetiology characterised by symptoms of post-exertional malaise (PEM) and fatigue leading to substantial impairment in functioning. […] To date there is no complete understanding of the triggering pathomechanisms of disease, and no quantitative biomarker available with sufficient sensitivity, specificity, and adoptability to provide conclusive diagnosis. […] Without a quantitative biomarker, trivialisation, scepticism, marginalisation, and misunderstanding of ME/CFS continues despite the significant disability for many. […] Recent studies have reported promising quantifiable differences in the biochemical and electrophysiological properties of blood cells, which separate ME/CFS and non-ME/CFS participants with high sensitivities and specificitiesdemonstrating potential development of an accessible and relatively non-invasive diagnostic biomarker.

• #51 The search for a blood-based biomarker for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS): from biochemistry to electrophysiology | Journal of Translational Medicine | Full Text

  https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06146-6

  Different biochemical and electrophysiological properties which differentiate ME/CFS have been identified across studies, holding promise as potential blood-based quantitative diagnostic biomarkers for ME/CFS. However, further research is required to determine their specificity to ME/CFS and adoptability for clinical use. […] A quantifiable biomarker is urgently required to assist in and accelerate a correct ME/CFS diagnosis. […] In the absence of a diagnostic biomarker for ME/CFS, differential diagnosis is performed using clinical guidelines, physical examinations, medical histories, and blood tests to eliminate other conditions which share similar symptom presentation. […] The specificity of a diagnostic biomarker is the percentage defining the number of individuals who have a correct negative test result out of the total subjects who do not have the disease.

• #52 The search for a blood-based biomarker for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS): from biochemistry to electrophysiology | Journal of Translational Medicine | Full Text

  https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06146-6

  To determine the specificity of a diagnostic biomarker for ME/CFS, it is important to assess their performance in disease controls. […] When investigating potential diagnostic techniques, the specificity of biomarkers to ME/CFS needs to be explored with disease controls, and with more large-scale studies. […] The continued absence of a robust, specific physical or biochemical biomarker means that those living with ME/CFS have no certainty over their diagnosis.

• #53 Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey | PLOS One

  https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0309810

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be triggered by infectious agents including severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). However, the impact of the coronavirus disease 2019 (COVID-19) pandemic on ME/CFS prevalence is not well characterized. […] In a large, integrated health system, 1.67% of adults had ME/CFS-like illness and 14.12% of all persons with ME/CFS-like illness developed it after COVID-19. […] Additional attention is needed to improve awareness, diagnosis, and treatment of ME/CFS. […] Strategies to prevent ME/CFS-like illness and the infections that trigger it, whether COVID-19 or another infection, must be implemented to reduce future cases of ME/CFS. […] Longitudinal studies and high quality clinical trials are needed to understand the natural history of ME/CFS-like illness both without COVID-19 and after COVID-19, and tools for care and treatment are needed to reduce the morbidity associated with ME/CFS-like illness.

• #54 Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey | PLOS One

  https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0309810

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be triggered by infectious agents including severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). However, the impact of the coronavirus disease 2019 (COVID-19) pandemic on ME/CFS prevalence is not well characterized. […] In a large, integrated health system, 1.67% of adults had ME/CFS-like illness and 14.12% of all persons with ME/CFS-like illness developed it after COVID-19. […] Additional attention is needed to improve awareness, diagnosis, and treatment of ME/CFS. […] Strategies to prevent ME/CFS-like illness and the infections that trigger it, whether COVID-19 or another infection, must be implemented to reduce future cases of ME/CFS. […] Longitudinal studies and high quality clinical trials are needed to understand the natural history of ME/CFS-like illness both without COVID-19 and after COVID-19, and tools for care and treatment are needed to reduce the morbidity associated with ME/CFS-like illness.

• #55 Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey | PLOS One

  https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0309810

  Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be triggered by infectious agents including severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). However, the impact of the coronavirus disease 2019 (COVID-19) pandemic on ME/CFS prevalence is not well characterized. […] In a large, integrated health system, 1.67% of adults had ME/CFS-like illness and 14.12% of all persons with ME/CFS-like illness developed it after COVID-19. […] Additional attention is needed to improve awareness, diagnosis, and treatment of ME/CFS. […] Strategies to prevent ME/CFS-like illness and the infections that trigger it, whether COVID-19 or another infection, must be implemented to reduce future cases of ME/CFS. […] Longitudinal studies and high quality clinical trials are needed to understand the natural history of ME/CFS-like illness both without COVID-19 and after COVID-19, and tools for care and treatment are needed to reduce the morbidity associated with ME/CFS-like illness.

• #56 The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC8073750/

  This report addresses the extent to which there may be scope for preventive programmes for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and, if so, what economic benefits may accrue from the implementation of such programmes. […] We conclude that there is little scope for primary prevention programmes, given that ME/CFS is attributable to a combination of host and environmental risk factors, with host factors appearing to be most prominent, and that there are few identified modifiable risk factors that could be the focus of such programmes. […] The exception is in the use of agricultural chemicals, particularly organophosphates, where there is scope for intervention, and where Europe-wide programmes of health education to encourage safe use would be beneficial. […] There is a need for more research on risk factors for ME/CFS to establish a basis for the development of primary prevention programmes, particularly in respect of occupational risk factors.

• #57 Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses > News > Yale Medicine

  https://www.yalemedicine.org/news/long-covid-mecfs-and-the-importance-of-studying-infection-associated-illnesses

  We need to include severe patient cohorts in research, even if it means visiting them at home while they are in bed. […] These illnesses urgently need effective treatments. We also need deep phenotyping and mechanistic research that helps us identify subsets most likely to benefit from certain treatments. […] Fatigue is common after an illness. Recovery does take time. But ME/CFS is a whole different level of fatigue.

• #58 Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses > News > Yale Medicine

  https://www.yalemedicine.org/news/long-covid-mecfs-and-the-importance-of-studying-infection-associated-illnesses

  We need to include severe patient cohorts in research, even if it means visiting them at home while they are in bed. […] These illnesses urgently need effective treatments. We also need deep phenotyping and mechanistic research that helps us identify subsets most likely to benefit from certain treatments. […] Fatigue is common after an illness. Recovery does take time. But ME/CFS is a whole different level of fatigue.

• #59 Chronic Fatigue Syndrome: Diagnostic Tests, Treatment, and Prevention Urgently Needed – Society for Women’s Health Research

  https://swhr.org/chronic-fatigue-syndrome-diagnostic-tests-treatment-and-prevention-urgently-needed/

  Of the many mysterious human illnesses that science has yet to unravel, ME/CFS has proven to be one of the most challenging. I am hopeful that renewed focus will lead us toward the cause of this perplexing and debilitating disease so that new prevention and treatment strategies can be developed, said Francis S. Collins. MD, PhD, Director of the NIH. […] It is encouraging that NIH began an investigational clinical study of ME/CFS in October 2016, to determine new treatments and diagnostic tests in an effort to see if new technologies might aid in the understanding of the condition. […] The Foundation has begun its Big Data Study of Severe Cases of ME/CFS that will look into finding biomarkers and releasing that information to the scientific community. Any one of us, regardless of age, can be fine one day and then struck with ME/CFS, and it can last a lifetime, said Tannenbaum.

• #60 Chronic Fatigue Syndrome: Diagnostic Tests, Treatment, and Prevention Urgently Needed – Society for Women’s Health Research

  https://swhr.org/chronic-fatigue-syndrome-diagnostic-tests-treatment-and-prevention-urgently-needed/

  Of the many mysterious human illnesses that science has yet to unravel, ME/CFS has proven to be one of the most challenging. I am hopeful that renewed focus will lead us toward the cause of this perplexing and debilitating disease so that new prevention and treatment strategies can be developed, said Francis S. Collins. MD, PhD, Director of the NIH. […] It is encouraging that NIH began an investigational clinical study of ME/CFS in October 2016, to determine new treatments and diagnostic tests in an effort to see if new technologies might aid in the understanding of the condition. […] The Foundation has begun its Big Data Study of Severe Cases of ME/CFS that will look into finding biomarkers and releasing that information to the scientific community. Any one of us, regardless of age, can be fine one day and then struck with ME/CFS, and it can last a lifetime, said Tannenbaum.

• #61

  https://www.federalregister.gov/documents/2021/05/17/2021-10271/the-systematic-review-report-for-diagnosis-and-treatment-of-myalgic-encephalomyelitischronic-fatigue

  The Centers for Disease Control and Prevention (CDC) in the Department of Health and Human Services (HHS) announces the opening of a docket to obtain comment on the systematic review draft report for Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The report, once finalized, is intended to support the anticipated development of future clinical practice guidelines, which would guide physicians in managing and providing care for patients with ME/CFS. […] The anticipated CDC guideline would assist clinicians by outlining management practices for patients with ME/CFS. […] Public comment may inform the final systematic review report and may be used to inform development of a clinical guideline and related materials, which would help clinicians diagnose and treat patients with ME/CFS.

• #62

  https://www.federalregister.gov/documents/2021/05/17/2021-10271/the-systematic-review-report-for-diagnosis-and-treatment-of-myalgic-encephalomyelitischronic-fatigue

  The Centers for Disease Control and Prevention (CDC) in the Department of Health and Human Services (HHS) announces the opening of a docket to obtain comment on the systematic review draft report for Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The report, once finalized, is intended to support the anticipated development of future clinical practice guidelines, which would guide physicians in managing and providing care for patients with ME/CFS. […] The anticipated CDC guideline would assist clinicians by outlining management practices for patients with ME/CFS. […] Public comment may inform the final systematic review report and may be used to inform development of a clinical guideline and related materials, which would help clinicians diagnose and treat patients with ME/CFS.

• #63

  https://www.federalregister.gov/documents/2021/05/17/2021-10271/the-systematic-review-report-for-diagnosis-and-treatment-of-myalgic-encephalomyelitischronic-fatigue

  The Centers for Disease Control and Prevention (CDC) in the Department of Health and Human Services (HHS) announces the opening of a docket to obtain comment on the systematic review draft report for Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The report, once finalized, is intended to support the anticipated development of future clinical practice guidelines, which would guide physicians in managing and providing care for patients with ME/CFS. […] The anticipated CDC guideline would assist clinicians by outlining management practices for patients with ME/CFS. […] Public comment may inform the final systematic review report and may be used to inform development of a clinical guideline and related materials, which would help clinicians diagnose and treat patients with ME/CFS.

• #64 Overview | Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management | Guidance | NICE

  https://www.nice.org.uk/guidance/ng206

  This guideline covers diagnosing and managing myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) in children, young people and adults. It aims to improve awareness and understanding about ME/CFS and when to suspect it, so that people are diagnosed earlier. It includes recommendations on diagnosis, assessment and care planning, safeguarding, access to care and managing ME/CFS and its symptoms. […] This guideline includes recommendations on: […] managing ME/CFS […] symptom management […] care for people with severe or very severe ME/CFS.

• #65 Overview | Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management | Guidance | NICE

  https://www.nice.org.uk/guidance/ng206

  This guideline covers diagnosing and managing myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) in children, young people and adults. It aims to improve awareness and understanding about ME/CFS and when to suspect it, so that people are diagnosed earlier. It includes recommendations on diagnosis, assessment and care planning, safeguarding, access to care and managing ME/CFS and its symptoms. […] This guideline includes recommendations on: […] managing ME/CFS […] symptom management […] care for people with severe or very severe ME/CFS.

• #66

  https://smw.ch/index.php/smw/announcement/view/48

  Myalgic encephalomyelitis / chronic fatigue syndrome is not a rare disease. The global prevalence ranges from 0.2% to 2.8%, and it affects people from all races, all socioeconomic groups and all age groups. […] Myalgic encephalomyelitis / chronic fatigue syndrome poses a challenge for diagnostics and disease management. Awareness and knowledge of the disease are of paramount importance, considering there is currently no available treatment. Early diagnosis of patients and initiating adequate management and support may reduce the healthcare costs while improving the patients physical and mental well-being and functionality, thus avoiding increased severity of the disease and risk of long-term complications. […] There is an urgent need in Switzerland to include myalgic encephalomyelitis / chronic fatigue syndrome in the national health agenda in order to provide an adequate framework for appropriate care of patients.

• #67

  https://smw.ch/index.php/smw/announcement/view/48

  Myalgic encephalomyelitis / chronic fatigue syndrome is not a rare disease. The global prevalence ranges from 0.2% to 2.8%, and it affects people from all races, all socioeconomic groups and all age groups. […] Myalgic encephalomyelitis / chronic fatigue syndrome poses a challenge for diagnostics and disease management. Awareness and knowledge of the disease are of paramount importance, considering there is currently no available treatment. Early diagnosis of patients and initiating adequate management and support may reduce the healthcare costs while improving the patients physical and mental well-being and functionality, thus avoiding increased severity of the disease and risk of long-term complications. […] There is an urgent need in Switzerland to include myalgic encephalomyelitis / chronic fatigue syndrome in the national health agenda in order to provide an adequate framework for appropriate care of patients.

• #68

  https://www.legislature.mi.gov/documents/2017-2018/resolutionintroduced/house/archive/2018-HIR-0388.HTM

  A resolution to recognize myalgic encephalomyelitis as a serious, debilitating disease and urge key entities to improve patient care, prioritize new research, educate health professionals, and raise awareness about the severity of the disease. […] Recognize that myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a tragic, disabling disease that destroys the lives of many patients and takes a severe toll on their families, friends, and caretakers; […] Recommend that the National Institutes of Health fund ME/CFS research at a level commensurate with similarly burdensome diseases; […] Encourage universities in Michigan to focus research attention on this underserved disease; […] Recommend that the Centers for Disease Control and Prevention disseminate new ME/CFS medical education that is updated in accordance with recommendations from the National Academy of Medicine, the Chronic Fatigue Syndrome Advisory Committee of the United States Department of Health and Human Services, and disease experts; and […] Encourage media organizations to inform the public about the seriousness of the disease.

• #69 6 Pediatric ME/CFS | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/read/19012/chapter/8

  Pediatric ME/CFS has been defined as a complex, multisystemic, and debilitating illness that is characterized by severe and medically unexplained fatigue and is usually accompanied by post-exertional malaise (PEM), orthostatic intolerance and other signs of autonomic dysfunction, and cognitive problems, as well as by unrefreshing sleep, headache, and other pain symptoms (Carruthers et al., 2003, 2011; Jason et al., 2006, 2010). […] The Royal College of Paediatrics and Child Health proposed pediatric criteria for ME/CFS in 2004 (Royal College, 2004). […] In the absence of compelling epidemiological data, the authors concluded that the diagnosis of ME/CFS requires 6 months. […] The British National Institute for Health and Clinical Excellence (NICE) guidelines, published in 2007, recommend a duration of symptoms of 3 months for children and young people (NICE, 2007).

• #70 6 Pediatric ME/CFS | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/read/19012/chapter/8

  Pediatric ME/CFS has been defined as a complex, multisystemic, and debilitating illness that is characterized by severe and medically unexplained fatigue and is usually accompanied by post-exertional malaise (PEM), orthostatic intolerance and other signs of autonomic dysfunction, and cognitive problems, as well as by unrefreshing sleep, headache, and other pain symptoms (Carruthers et al., 2003, 2011; Jason et al., 2006, 2010). […] The Royal College of Paediatrics and Child Health proposed pediatric criteria for ME/CFS in 2004 (Royal College, 2004). […] In the absence of compelling epidemiological data, the authors concluded that the diagnosis of ME/CFS requires 6 months. […] The British National Institute for Health and Clinical Excellence (NICE) guidelines, published in 2007, recommend a duration of symptoms of 3 months for children and young people (NICE, 2007).

• #71 6 Pediatric ME/CFS | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/read/19012/chapter/8

  Pediatric ME/CFS has been defined as a complex, multisystemic, and debilitating illness that is characterized by severe and medically unexplained fatigue and is usually accompanied by post-exertional malaise (PEM), orthostatic intolerance and other signs of autonomic dysfunction, and cognitive problems, as well as by unrefreshing sleep, headache, and other pain symptoms (Carruthers et al., 2003, 2011; Jason et al., 2006, 2010). […] The Royal College of Paediatrics and Child Health proposed pediatric criteria for ME/CFS in 2004 (Royal College, 2004). […] In the absence of compelling epidemiological data, the authors concluded that the diagnosis of ME/CFS requires 6 months. […] The British National Institute for Health and Clinical Excellence (NICE) guidelines, published in 2007, recommend a duration of symptoms of 3 months for children and young people (NICE, 2007).

• #72 6 Pediatric ME/CFS | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/read/19012/chapter/8

  Pediatric ME/CFS has been defined as a complex, multisystemic, and debilitating illness that is characterized by severe and medically unexplained fatigue and is usually accompanied by post-exertional malaise (PEM), orthostatic intolerance and other signs of autonomic dysfunction, and cognitive problems, as well as by unrefreshing sleep, headache, and other pain symptoms (Carruthers et al., 2003, 2011; Jason et al., 2006, 2010). […] The Royal College of Paediatrics and Child Health proposed pediatric criteria for ME/CFS in 2004 (Royal College, 2004). […] In the absence of compelling epidemiological data, the authors concluded that the diagnosis of ME/CFS requires 6 months. […] The British National Institute for Health and Clinical Excellence (NICE) guidelines, published in 2007, recommend a duration of symptoms of 3 months for children and young people (NICE, 2007).

• #73 6 Pediatric ME/CFS | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/read/19012/chapter/8

  The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) developed a case definition for diagnosis of ME/CFS in children and adolescents using the DePaul Pediatric Health Questionnaire (DPHQ), a self-report measure for assessing ME/CFS symptoms in this population. […] An important difference from the other case definitions is that the duration of symptoms required to make a diagnosis is 3 months rather than 6 months. […] The prevalence of pediatric ME/CFS has been estimated in British, Dutch, and U.S. populations with numbers that vary widely, from 0.03 to 1.29 percent (Chalder et al., 2003; Crawley et al., 2011; Farmer et al., 2004; Jordan et al., 2006; Nijhof et al., 2011; Rimes et al., 2007). […] The challenges of diagnosis are described in Chapter 2.

• #74 6 Pediatric ME/CFS | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | The National Academies Press

  https://nap.nationalacademies.org/read/19012/chapter/8

  The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) developed a case definition for diagnosis of ME/CFS in children and adolescents using the DePaul Pediatric Health Questionnaire (DPHQ), a self-report measure for assessing ME/CFS symptoms in this population. […] An important difference from the other case definitions is that the duration of symptoms required to make a diagnosis is 3 months rather than 6 months. […] The prevalence of pediatric ME/CFS has been estimated in British, Dutch, and U.S. populations with numbers that vary widely, from 0.03 to 1.29 percent (Chalder et al., 2003; Crawley et al., 2011; Farmer et al., 2004; Jordan et al., 2006; Nijhof et al., 2011; Rimes et al., 2007). […] The challenges of diagnosis are described in Chapter 2.

• #75 Understanding Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in the School-aged child – Considerations for School Nurses

  https://massmecfs.org/nurse-patti-s-blog/765-patti-s-blog-1

  In summary, Pediatric ME/CFS is a disease associated with substantial impairment of normal activities that impact a young persons entire life. Coping with debilitating medical symptoms, changed relationships within the family, absence from school and loss of socializing with peers can all result from the illness causing extreme confusion and crisis. Many of the symptoms of ME/CFS are amenable to specific therapies and accommodations. Successful management is based on determining the optimum balance of rest and activity to help prevent post-exertional symptom worsening. Medications are helpful to treat pain, insomnia OI and other symptoms (Rowe, et al, 2017). School nurses can help improve recognition, identify comorbid conditions, provide emotional support and encouragement, and suggest reasonable accommodations.

• #76 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Gulf War Veterans – Public Health

  https://www.publichealth.va.gov/exposures/gulfwar/chronic-fatigue-syndrome.asp

  Gulf War Veterans who develop Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) do not have to prove a connection between their illnesses and service to be eligible to receive VA disability compensation. ME/CFS must have emerged during active duty in the Southwest Asia theater of military operations or by December 31, 2026, and be at least 10% disabling. […] For more information about ME/CFS and its treatment see the Centers for Disease Control and Prevention. […] If you are concerned about chronic fatigue, talk to your health care provider or contact your local VA Environmental Health Coordinator to help you get more information from a health care provider. […] Gulf War Veterans may be eligible for a variety of VA benefits, including a Gulf War Registry health exam, inclusion in the redesigned Airborne Hazards and Open Burn Pit Registry (AHOBPR 2.0), health care, and disability compensation for diseases related to military service. Their dependents and survivors also may be eligible for benefits. […] A study on Gulf War Veterans’ health by VA found that 1990-1991 Gulf War deployment is associated with an increased risk for ME/CFS, fibromyalgia, skin conditions, and dyspepsia.

• #77 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Gulf War Veterans – Public Health

  https://www.publichealth.va.gov/exposures/gulfwar/chronic-fatigue-syndrome.asp

  Gulf War Veterans who develop Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) do not have to prove a connection between their illnesses and service to be eligible to receive VA disability compensation. ME/CFS must have emerged during active duty in the Southwest Asia theater of military operations or by December 31, 2026, and be at least 10% disabling. […] For more information about ME/CFS and its treatment see the Centers for Disease Control and Prevention. […] If you are concerned about chronic fatigue, talk to your health care provider or contact your local VA Environmental Health Coordinator to help you get more information from a health care provider. […] Gulf War Veterans may be eligible for a variety of VA benefits, including a Gulf War Registry health exam, inclusion in the redesigned Airborne Hazards and Open Burn Pit Registry (AHOBPR 2.0), health care, and disability compensation for diseases related to military service. Their dependents and survivors also may be eligible for benefits. […] A study on Gulf War Veterans’ health by VA found that 1990-1991 Gulf War deployment is associated with an increased risk for ME/CFS, fibromyalgia, skin conditions, and dyspepsia.

• #78 The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE)

  https://pmc.ncbi.nlm.nih.gov/articles/PMC8073750/

  Secondary prevention offers the greatest scope for intervention, to minimise diagnostic delays associated with prolonged illness, increased severity, and increased costs. […] This review has demonstrated that there is little consensus about the nature and impact of risk factors for ME/CFS and, as regards those risk factors about which there is general agreement, few are modifiable. Therefore, there is little scope for programmes of primary prevention, with the exception of organophosphate exposure. […] However, by contrast, there is considerable scope for secondary prevention, as improving the management of ME/CFS in the early stages of illness could have an impact in reducing the incidence and prevalence of severe prolonged disease, and thereby also its economic impact.

• #79 Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses > News > Yale Medicine

  https://www.yalemedicine.org/news/long-covid-mecfs-and-the-importance-of-studying-infection-associated-illnesses

  Research on Long COVID may also shine light on the underlying causes of myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS. […] Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a neuroinflammatory, neuroimmune illness most commonly triggered by infection, such as Epstein-Barr virus, though patients have reported other triggers as well, such as physical accidents and environmental exposures. […] Studies over the last few years have found that about half of people with Long COVID meet diagnostic criteria for ME/CFS, and the prevalence of ME/CFS has been growing as a result of the pandemic and Long COVID. […] More research is critical to better understand the underlying mechanisms of both Long COVID and ME/CFS and to inform future clinical trials. […] Pollack recommends that both researchers and clinicians screen for co-occurring diseases in those diagnosed with ME/CFS or Long COVID.

• #80 Chronic fatigue syndrome (CFS) | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs

  Find a doctor who understands ME/CFS. […] Managing symptoms with your trusted healthcare professional can help to stabilise your ME/CFS and improve your quality of life. […] Pacing and rest are two self-management strategies commonly used with ME/CFS. The main goal of pacing is to reduce the intensity and frequency of PEM by limiting activity to the energy available. A key component of pacing is rest. […] While diagnosis requires that a person has had symptoms continually for six months, early intervention with pacing and rest can help reduce symptoms, improve quality of life and reduce the risk of exacerbating the disease. Research suggests that patients who are able to pace their activity and not push themselves tend to do better in the long term. Pacing and rest can start even prior to an official diagnosis.

• #81 Chronic fatigue syndrome: Symptoms, treatment, and causes

  https://www.medicalnewstoday.com/articles/184802

  Chronic fatigue syndrome also known as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) OR systemic exertional intolerance disease (SEID) is a serious, chronic illness that can cause pain and extreme fatigue. […] Lifestyle strategies and medical treatment may help people manage some of the symptoms. […] There is currently no cure or treatment specific to ME/CFS, but a doctor may work with individuals to help them manage the symptoms. The treatment plan will vary among individuals, as ME/CFS affects people differently. […] Various strategies can help people manage ME/CFS. […] The CDC notes that exercise plans that benefit many people with chronic diseases are not usually suitable for people with ME/CFS, and they may be dangerous. […] People with symptoms or a diagnosis of ME/CFS should not follow any type of activity plan without discussing it with their doctor first. […] Until scientists find a specific treatment, coping strategies will play a key role in managing ME/CFS.

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