Materiały źródłowe

• #1 Supportive care for eye cancer | Canadian Cancer Society

  https://cancer.ca/en/cancer-information/cancer-types/eye/supportive-care

  Supportive care helps people meet the physical, practical, emotional and spiritual challenges of eye cancer. It is an important part of cancer care. […] Recovering from eye cancer and adjusting to life after treatment is different for each person, depending on the type and stage of the cancer, the type of treatment and many other factors. […] A person who has been treated for eye cancer may have the following concerns. […] Eye cancer and its treatments can affect a persons self-esteem and body image. […] It takes time to adjust to a change in how you look and to learn how to cope with these changes. […] Some treatments for eye cancer can help save vision. […] It takes time to adjust when cancer or its treatments affect your eyes and vision. […] Talk to your healthcare team about the support groups available to help you cope with your emotions and daily life with an artificial eye.

• #1 Eye cancer | Canadian Cancer Society

  https://cancer.ca/en/cancer-information/cancer-types/eye

  Supportive care helps people meet the physical, practical, emotional and spiritual challenges of eye cancer. It is an important part of cancer care. […] There are many programs and services available to help meet the needs and improve the quality of life of people living with cancer and their loved ones, especially after treatment has ended.

• #1 Treatment Options For Eye Cancer | Cancer Research UK

  https://www.cancerresearchuk.org/about-cancer/eye-cancer/treatment/decisions

  An ophthalmology clinical nurse specialist is a qualified nurse who has specialist knowledge of cancers of the eye. They organise your care between the eye specialists and other health professionals. A specialist nurse will also help to support you through your treatment. They will make sure you have the information you need. […] Your treatment for eye cancer depends on: […] Your local hospital may refer you to a dedicated eye cancer unit. This is also called an ocular oncology unit. The units have a specialist multidisciplinary team for eye cancers. […] If you are concerned that your treatment is not under a multidisciplinary team, do ask about it. It may be that you have only seen one specialist, but the team has still got together. They may have already discussed your test results and case notes to decide the best treatment options for you.

• #1 Coping with Eye Cancer | CancerCare

  https://www.cancercare.org/publications/233-coping_with_eye_cancer

  A diagnosis of eye cancer can be overwhelming. This fact sheet gives advice on how to: […] There are a wide range of treatments for eye cancer, including surgery, chemotherapy, radiation therapy, laser therapy and targeted therapy. […] You do not need to cope with cancer on your own. There are local and national support services available to assist you. […] Cancer may not just affect yourself, but everyone around you. It is important to take care of your feelings. […] CancerCare provides one-on-one counseling and support groups to connect you with others in a safe and supportive environment. […] View all of CancerCares resources to help you better cope with eye cancers.

• #1 After Surgery For Eye Cancer | Cancer Research UK

  https://www.cancerresearchuk.org/about-cancer/eye-cancer/treatment/surgery/after

  It takes a few weeks for you to recover after your operation. You will spend between 1 to 7 days in the hospital and then give yourself time to recover once you are home. […] Once you are more awake, your nurse will take you back to the ward. They will measure your blood pressure and check your dressings regularly. […] The dressing over your eye or eye socket usually stays in place for about 12 to 48 hours. […] The dressing over your eye or eye socket helps to stop bleeding and reduce swelling. It might feel quite tight and you may find it difficult to open your eye until the dressing is removed. The nurse will check the dressing and wound regularly during the first few hours after your surgery. […] Your nurse will show you how to clean and care for your eye. If you have had your whole eye removed, they will explain how to care for the eye socket.

• #1 After Surgery For Eye Cancer | Cancer Research UK

  https://www.cancerresearchuk.org/about-cancer/eye-cancer/treatment/surgery/after

  Once you are at home you may need eye drops for the next few days. These help to reduce the redness and swelling. Your nurse will show you how to put them in. Try not to scratch or rub your eye. This could delay healing. […] It is good to keep active. But your doctor or nurse may suggest that you only do gentle exercise, especially for the first few weeks. Check with your doctor if you want to exercise more. […] You usually get a phone number to ring in case you have any questions or concerns once at home. Contact this number if you have: bleeding around the eye or eye socket, swelling around the eye or eye socket that becomes worse, pain around the eye that becomes worse, or a stabbing pain sensation around the eye. […] You have follow up appointments to check your recovery and sort out any problems. They are also an opportunity for you to talk about any worries you have about your progress.

• #1 logo–sylvester

  https://umiamihealth.org/en/sylvester-comprehensive-cancer-center/cancer-survivorship-and-supportive-care/your-survivorship-information/eye-cancer-survivorship

  Eye cancer can come back years after your diagnosis, so you can expect to see your care team regularly for checkups to keep you healthy. You’ll see your team every three to six months for the first five years, and then every six to 12 months after that. […] These follow-up visits are essential even if you had surgery to remove an eye because cancer can still come back around the eye or in other areas of your body. […] If you notice changes in your vision or how your eye looks, talk to your team right away don’t wait for your next appointment. […] You may experience side effects after treatment right away, or they can develop years later, called late effects. We’re here to help you manage them. It’s comforting to know you’re working with an experienced team. […] If you had surgery to remove your eye, there’s still a risk that an eye tumor could come back in the surrounding area. Follow-up visits let us find problems early, when they can be treated most successfully.

• #1 Supportive care for eye cancer | Canadian Cancer Society

  https://cancer.ca/en/cancer-information/cancer-types/eye/supportive-care

  Your healthcare team may recommend that you wear protective eyewear to help protect your functional eye. […] People who are treated for eye cancer may worry that the cancer will come back. It is important to learn how to deal with these fears to maintain a good quality of life. […] In addition to the support offered by the treatment team, a mental health professional, such as a social worker or counsellor, can help you learn how to cope and live with a diagnosis of eye cancer.

• #1 Vision Loss and Cancer Care: Important Facts and Resources              | Dana-Farber Cancer Institute

  https://blog.dana-farber.org/insight/2023/07/vision-loss-and-cancer-care-important-facts-and-resources/

  Eye cancer (eye lymphoma, ocular melanoma, retinoblastoma): Tumors can develop in the eye and alter vision. […] Vision changes related to these medicines is typically temporary and can be managed with the help of your care team. […] Radiation therapy that is delivered close to the eyes, such as for certain Head and Neck cancers, can affect vision. […] If you begin to experience vision changes during treatment, alert your cancer care team immediately. […] People who experience changes due to radiation might be referred to visual rehabilitation or occupational therapy to learn how to cope with and adapt to vision changes. […] Your care team, social services team, and ophthalmologist can help you determine if a guide dog could help you.

• #1 Retinoblastoma: A case study – IJPNS

  https://www.jpns.in/html-article/11941

  Retinoblastoma is also a rare malignancy of the eye affecting children, most typically four years recent and younger. […] It is vital part of the nurse to offer psychological support to the kid and members of the family. […] The priority of metastatic tumour treatment is to preserve the lifetime of the child, to preserve vision, then to attenuate complications or facet effects of treatment. […] Nursing care is discussed elaborately using nursing process approach. […] The child will be able to express decreased pain, sleep and demonstrate decreased irritability. […] The child will maintain visual acuity without further loss. […] The mother child will express decreased anxiety. […] The mother will be able to understand the treatment procedure. […] The child remains free of infection.

• #1 Eye and Orbital Cancer Program

  https://www.froedtert.com/eye-cancer-orbital-cancer

  Cancers of the eye or eye socket threaten not only a persons vision, but his or her life as well. The specialists in the Froedtert MCW Eye/Orbital Cancer Program provide comprehensive care for patients with these diseases. Tumors developing in or around the eyes require specialized medical care. The ophthalmic specialists in the Eye/Orbital Cancer Program have advanced fellowship training in therapeutic and reconstructive surgical procedures for ocular and periocular tumors. Care and treatment can also require input from specialist physicians from throughout the Cancer Network, including dermatologic surgeons, radiation oncologists, medical oncologists, head and neck surgeons and neurosurgeons. Symptoms of eye cancer include blurry vision, distorted vision, blind spots, decreased side vision, white pupils, strabismus, red eye, eye pain and complete vision loss. Sometimes, ocular tumors present no symptoms at all. The physicians in the Eye/Orbital Cancer Program use several specialized techniques to treat ocular tumors, including research and the use of clinical trials. Individual care plans can include one or more treatment methods, including laser surgery, external beam radiation, cryotherapy and chemotherapy. Certain tumor types are so malignant that the focus of treatment must shift from saving the patients eyesight to simply saving the patients life. In these instances, the only treatment choice is enucleation, the removal of the affected eye. We also offer second opinions for those diagnosed with an eye or orbital cancer. Second opinions provide patients with the reassurance that a diagnosis is accurate and that they know all of the treatment options available to them.

• #1 Treating Eye Cancer | American Cancer Society

  https://www.cancer.org/cancer/types/eye-cancer/treating.html

  Most eye cancers are melanomas (also known as ocular melanomas or intraocular melanomas). If you have been diagnosed with an eye cancer, your cancer care team will discuss your treatment options with you. Its important to think carefully about your choices. You will want to weigh the benefits of each treatment option against the possible risks and side effects. […] The main goals for treating eye melanoma are to reduce the risk of the cancer spreading and to maintain the health and vision of the eye whenever possible. […] People with cancer need support and information, no matter what stage of illness they may be in. Knowing all of your options and finding the resources you need will help you make informed decisions about your care. […] Whether you are thinking about treatment, getting treatment, or not being treated at all, you can still get supportive care to help with pain or other symptoms. Communicating with your cancer care team is important so you understand your diagnosis, what treatment is recommended, and ways to maintain or improve your quality of life.

• #1 FAQ » New York Eye Cancer Center

  https://eyecancer.com/eye-cancer/faq/faq/

  Standard treatments for choroidal melanoma are enucleation and radiation. […] Enucleation is removal of the eye. It is the form of treatment that allows your eye cancer specialist to remove the tumor from your body. Unfortunately, patients also lose all the vision and the cosmetic use of the eye. […] After enucleation (removal of the eye) there is no vision from that eye. The patient is considered monocular and sees from the remaining eye. […] Patients can usually have a temporary prosthesis (that looks like an eye) within 10 days of enucleation surgery. […] Patients should have blood tests, radiographic imaging studies, and physical examinations. […] You will be advised to take topical antibiotic and steroid medications for one month. These medicines will help you heal more safely and quickly.

• #1 Cancer Care | New York Ophthalmology

  https://www.nyoph.com/services/cancer-care/

  When our ophthalmologists in Manhattan, Brooklyn, the Bronx, and Queens, NY, diagnose cancers affecting the eye, they work closely with radiation oncology, medical oncology, pathology, and plastic surgery specialists to produce the optimal outcomes. […] If one of our ophthalmologists diagnoses you with eye cancer, your doctor will discuss the best treatment options. This depends on several factors, including: […] Your treatment team can include several different specialists besides your ophthalmologist, including a doctor who treats cancer with radiation therapy and a physician who specializes in chemotherapy. […] Eye melanomas and lymphomas are rare, so treating these conditions should be done by experienced doctors. We work with specialists to ensure you get the best treatment possible. Eye cancer treatments can affect your vision, but doctors try to preserve vision whenever possible. […] Diagnosing eye cancer at its earliest stages is a key factor in successfully treating the disease. Annual eye exams are the best way to ensure we can detect signs of any eye disease.

• #1 Surgery for Intraocular Melanoma | NYU Langone Health

  https://nyulangone.org/conditions/intraocular-melanoma-in-adults/treatments/surgery-for-intraocular-melanoma

  Eye cancer specialists at NYU Langone use the least invasive treatment possible, in an effort to save vision for people with intraocular melanoma. Enucleation surgery, or removal of the eye, is reserved for people with tumors so large they cannot be treated effectively with radiation therapy. […] Due to advances in the treatment of intraocular melanoma, most people with the condition do not require enucleation. […] Enucleation, or removal of the eye, is only recommended if a tumor is too large for vision-sparing treatments, such as radiation therapy. It may also be appropriate if you already have significant vision loss or your doctor is concerned that the tumor may spread. […] Most people return home after enucleation surgery with a patch over the affected eye, which is worn for up to five days. About a week after the surgery, the eye cancer specialist removes the bandage and places a temporary, plastic prosthetic eye in the socket. […] About six weeks after surgery, an ocularist, who makes and custom-fits prosthetic eyes, fits you for a permanent prosthetic eye that better matches the size and color of the other eye.

• #1 FAQ » New York Eye Cancer Center

  https://eyecancer.com/eye-cancer/faq/faq/

  About Enucleation Surgery Frequently Asked Questions after Enucleation Surgery How do I choose an eye cancer specialist? Enucleation: About Ocular Prosthesis Care Ophthalmic Radiation Therapy Should I get a second opinion? […] Enucleation means removal of the eye. In most cases, it is the only form of treatment that allows your doctor to completely remove the tumor from your body. Unfortunately, patients also lose their vision and the cosmetic use of the eye. […] For the rest of your life. You must be followed by an eye-care specialist and may need a medical oncologist. You may want to consider this when choosing your doctors and their location. […] Patients who receive plaque radiotherapy are typically seen by their eye care specialist every 3 to 4 months. Patients may undergo twice-yearly blood tests, radiographic imaging studies and physical examinations.

• #1 Eye cancer (ocular melanoma) – symptoms, staging, treatment | Macmillan Cancer Support

  https://www.macmillan.org.uk/cancer-information-and-support/melanoma/eye-cancer

  At the end of treatment, your doctors and nurses will talk to you about what to expect. They will also tell you about follow-up care you may need. You may still have side effects from treatment and other emotions to cope with. It takes time to recover. […] After treatment for eye melanoma, you will have regular appointments with your specialist eye doctor and nurse. They will explain how often you will have appointments.

• #1 Eye Cancer | Wills Eye Hospital

  https://www.willseye.org/landing-page-usnews-eye-cancer/

  Types of Eye Cancer There are a variety of tumors that can exist in the eyes tissues. […] The Wills Eye Ocular Oncology Service is the largest eye cancer center in the United States and provides care for patients with common and rare cancers, many of which are serious life-threatening conditions. […] Early treatment of this eye cancer is important to protect from metastasis. […] Retinoblastoma is the leading eye cancer in infants and children. Early diagnosis and treatment is important for preventing metastasis and death of the child and additionally preserving the eye and vision.

• #1 World Eye Cancer Hope – life and sight for every child

  https://wechope.org/

  Retinoblastoma is an aggressive eye cancer affecting babies and young children. It kills 7,000 youngsters each year, and blinds many more. […] The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye. The cancer is easy to diagnose and when treated early, is very curable. […] Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited. In developed countries, cure is above 96%, but most children experience moderate, severe or complete vision loss. […] Caring for a child with retinoblastoma is so much more than treating the cancer. Child life focuses on the whole child supporting their emotional, social, and developmental needs during stressful medical experiences, empowering families, and transforming care through education and play.

• #1 World Eye Cancer Hope – life and sight for every child

  https://wechope.org/

  The #RbChildLife Alphabet of Hope highlights simple approaches and vital supports that help children with eye cancer and their families thrive during treatment and beyond. […] Prompt investigation of all signs and symptoms is vital to diagnose childhood eye cancer early. Timely diagnosis provides the best opportunity to save a child’s life and sight. […] Child life helps families cope with retinoblastoma care, reducing trauma, and building hope. Yet access remains limited worldwide.

• #1 Impact of COVID-19 pandemic on eye cancer care in United Kingdom | British Journal of Cancer

  https://www.nature.com/articles/s41416-021-01274-4

  The COVID-19 pandemic has had an unprecedented impact on the National Health Service in United Kingdom. […] The UK Ocular Oncology Services evaluated the impact on the adult eye cancer care in the UK. […] During the national lockdown, referral numbers and confirmed uveal melanoma cases reduced considerably, equalling to ~120 fewer diagnosed uveal melanoma cases compared to previous 2 years. […] As the COVID-19 pandemic continues to mount pressure and reveal its hidden impact on the eye cancer care, it is imperative for the Ocular Oncology Services to plan recovery strategies and innovative ways of working. […] The four Ocular Oncology Services have continued to provide uninterrupted clinical care throughout the pandemic, but a number of the referring ophthalmology and optometry services had ceased routine clinical care.

• #1 Impact of COVID-19 pandemic on eye cancer care in United Kingdom | British Journal of Cancer

  https://www.nature.com/articles/s41416-021-01274-4

  Aware of these changes the UK Ocular Oncology Services conducted a study to evaluate the impact of the COVID-19 pandemic on eye cancer care with respect to uveal melanoma referral patterns and treatments throughout the pandemic in 2020. […] This study confirmed a considerable reduction in both the referral numbers and the newly diagnosed cases of uveal melanoma in the 4-month period of national lockdown compared to the previous 2 years. […] We could speculate this variation was due to a number of potential factors: patient choice, nature of aerosol-generating procedures in general anaesthesia (GA) and a balance of increased transmission risk of COVID-19 virus during prolonged patient care in hospital settings. […] The COVID-19 pandemic has posed challenges for clinicians when it comes to decision-making on the management of intraocular cancer. […] The surge in workload to the Ocular Oncology Services is likely to continue with an increasing presentation of more advanced diseases as a consequence of hidden impact from the COVID-19 pandemic.

• #1 Impact of COVID-19 pandemic on eye cancer care in United Kingdom | British Journal of Cancer

  https://www.nature.com/articles/s41416-021-01274-4

• #1 logo–sylvester

  https://umiamihealth.org/en/sylvester-comprehensive-cancer-center/treatments-and-services/eye-and-ocular-cancer

  We are the only center in South Florida offering localized internal plaque radiation therapy. This treatment allows us to treat cancer without removing the eye preserving vision, independence, and quality of life. […] Your child has twice the chance his or her eye will be spared. Using intra-arterial chemotherapy, we target chemotherapy directly to the eye tumor. This curative treatment has decreased the number of eye removals (for retinoblastoma) by half. […] If your eyeball must be removed to cure your cancer, a prosthetic eye improves your appearance and protects the space and cells behind your eye. We custom design your prosthesis to match the iris and pupil of your other eye. […] We were the first center in the country to use topical interferon drops to treat eye cancer without biopsy or surgery. This and many other research advances ensure you the best possible cancer and eye care. […] Sylvester and Bascom Palmer offer ultra-high frequency OCT (optical coherence tomography). This optical ultrasound diagnoses melanomas and inner eyelid (conjunctival) tumors without biopsy or radiation.

• #1 Eye Cancer | UC Davis Comprehensive Cancer Center

  https://health.ucdavis.edu/cancer/cancer-types/eye.html

  Cancers of the eye can be divided into those covering the surface of the eye and those occurring internally. Most external tumors are relatively benign and slow growing and can be treated by superficial excision. Internal eye tumors, usually involving the retina and choroid, are more serious and often call for radiation and other therapy in addition to surgery. The most common internal eye cancers include intraocular melanoma in adults and retinoblastoma in children. Both of cancers can spread to other organs and can be fatal. […] Eye cancer treatment frequently requires the collaboration among specialists from multiple different medical disciplines. The ophthalmologist plays a central role in the diagnosis and management of eye tumors but may work with medical and radiation oncologists to provide the appropriate evaluation and treatment, as needed.

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