Materiały źródłowe

• #1 Craniosynostosis: Causes, Symptoms, Treatment & Types

  https://my.clevelandclinic.org/health/diseases/6000-craniosynostosis

  Theres no known way to prevent craniosynostosis. Prenatal genetic testing may show gene changes that could lead to this condition. A genetic counselor can help you understand your genetic risks before pregnancy and possible treatment options if your baby is born with this condition. […] Your babys care team will diagnose and create a treatment plan to prevent complications that can affect your childs brain growth. With timely treatment, most children with craniosynostosis grow and develop in a healthy way.

• #2 Craniosynostosis – Dr Prem Pillay

  https://singaporebrain.org/en/brain/craniosynostosis/

  Craniosynostosis treatment varies depending on the severity and the baby’s symptoms. Treatment may include: […] There is no guaranteed way to prevent craniosynostosis. Prenatal genetic testing may show gene mutations that could lead to craniosynostosis. A genetic counselor can help you understand genetic risks and possible treatment options if your baby is born with craniosynostosis. […] You can increase your chances of having a healthy baby by: Scheduling regular prenatal visits. Speaking with your doctor about potential risk factors, including risks associated with fertility medications or thyroid disease. Taking prenatal supplements or other supplements as directed.

• #3 Craniosynostosis at North Austin Campus | Texas Children’s

  https://www.texaschildrens.org/content/conditions/craniosynostosis-craniofacial

  Craniosynostosis is a rare condition that only occurs once in every 1,000 to 2,000 births. Researchers are continuing to try to find out exactly what causes craniosynostosis. One thing known is that it is not caused by what a mother takes or does during pregnancy. Research is ongoing to develop medicines that could prevent craniosynostosis from happening during the pregnancy, but at this time surgery is the only accepted treatment. […] Our genetics team can help describe the chances of craniosynostosis in future pregnancies with you. […] In many cases of multiple suture craniosynostosis, we can identify a mutation or change in the infant’s DNA that can help us better diagnose syndromes that caused the craniosynostosis. Examples of syndromic craniosynostoses are Crouzon,   Apert,   Pfeiffer, Saethre-Chotzen, and Muenke syndromes. Children with these syndromes have other medical conditions besides craniosynostosis and we will involve whichever sub-specialist on our team can best treat these conditions.

• #4 Craniosynostosis – Symptoms and Treatment | Conditions, Treatments & Specialty | Geisinger

  https://www.geisinger.org/patient-care/conditions-treatments-specialty/craniosynostosis

  Some studies show that certain medications taken during pregnancy may increase an unborn baby’s risk of developing craniosynostosis. If you’re pregnant, discuss your medications with your doctor to determine if any medications you’re taking may increase your child’s risks. […] Although not all forms of craniosynostosis require surgery, procedures can help correct the premature fusing of the skull plates in many forms. If craniosynostosis surgery is recommended, Geisinger’s pediatric neurosurgery team is trained in the latest techniques and equipment that will help your child’s head develop properly.

• #5 Skull Anomaly (Craniosynostosis) | OHSU

  https://www.ohsu.edu/doernbecher/skull-anomaly-craniosynostosis

  Our providers are national leaders in diagnosing and treating craniosynostosis. This condition causes an infants skull to grow in an unusual shape. […] We make sure your child receives steady care over the years it takes to treat their condition. This includes regular follow-up visits for monitoring and treatment. […] If your child’s provider suspects craniosynostosis, they may suggest imaging tests such as X-rays or a CT scan to get a detailed look at your childs skull. They may also refer your child to the specialists at OHSU for evaluation. Our team is skilled at identifying possible craniosynostosis based on your childs facial features. […] In most cases, syndromic craniosynostosis is linked to a genetic condition. It can cause mild or severe developmental problems.

• #6 Pediatric Craniosynostosis: UF Pediatric Neurosurgery » Pediatric Craniosynostosis » Lillian S. Wells Department of Neurosurgery at the University of Florida » College of Medicine » University of Florida

  https://neurosurgery.ufl.edu/patient-care/pediatric-neurosurgery/pediatric-diseases-conditions-services/pediatric-craniosynostosis/

  Craniosynostosis must be ruled out because it has significant medical implications. Early diagnosis and treatment of craniosynostosis improves outcomes and reduces possible adverse effects on brain development. […] Connecting patients with a pediatric craniofacial center as early as possible is essential as it allows all options to be offered. […] Positional plagiocephaly may be prevented by regularly checking head shape and educating parents during well visits. Strategies to prevent positional plagiocephaly include encouraging parents to do the following: Increase the amount of supervised tummy time for their infant while he/she is awake. Place colorful items on the outside of the crib to encourage baby to look in the direction opposite the flattened side. Vary the position of the head when the child is being held.

• #7 Craniosynostosis Care | San Antonio | University Health

  https://www.universityhealth.com/pediatrics/services/cleft-and-craniofacial-center/craniosynostosis

  Early diagnosis and treatment for craniosynostosis are important. […] If your baby has craniosynostosis and goes untreated, the condition can prevent proper bone growth and limit or slow brain growth and development. […] Depend on our experts to help minimize the effects of craniosynostosis on your infants appearance and development. […] Our craniofacial program attracts patients from around the country because we offer: […] Minimally invasive procedures for craniosynostosis that reduce scarring and the need for blood transfusions. […] Count on us to develop a safe, coordinated treatment plan for your child.

• #8 Craniosynostosis | Types & Treatment Options | Riley Children’s Health

  https://www.rileychildrens.org/health-info/craniosynostosis

  “We want to see your newborn before they go home from the hospital,” said Dr. Laurie Ackerman, a pediatric neurosurgeon at Riley Children’s Health. “The younger we can intervene in your child’s care for craniosynostosis, the better.” […] Surgery is the typical treatment to separate the baby’s skull bones. Craniosynostosis surgery relieves pressure in your child’s skull, allowing it to expand and grow normally. Doctors typically perform reconstructive surgery before a baby turns one. Your child’s care will involve a team of physicians, including neurosurgeons, plastic surgeons, geneticists, ophthalmologists and pulmonologists. […] After surgery, your child will continue checkups to monitor the growth of their skull and provide additional treatments as necessary. Sometimes, your child’s care team will follow your child’s care into their teen years to monitor for any cognitive or speech delays and help your child navigate any difficulties in school.

• #9 Craniosynostosis. What is it?

  https://www.plagiocefalia.com/en/craniosynostosis/

  Cranial deformities should be treated as soon as possible (before 6 months of age). If they are not treated properly in time, they can trigger irreparable damage to the physical and mental development of the baby. […] The solution, if it does not occur spontaneously, requires surgery to avoid the problems that the brain malformation can cause in the normal development of the baby’s brain, with its possible physical and mental consequences.

• #10 Craniosynostosis: Causes, Symptoms, Diagnosis and Treatment | Nationwide Children’s Hospital

  https://www.nationwidechildrens.org/conditions/craniosynostosis

  Early treatment is important to prevent any issues with brain development. […] Treating craniosynostosis usually involves surgery to unlock and bones and reshape the skull. […] Minimally invasive surgery produces the most successful outcomes when performed on children before the age of six months. […] The helmet requires no additional surgery, however frequent visits to an orthotist are required. […] Our goal is to correct the shape of a child’s head and allow normal brain growth, all to deliver the best outcome for every child.

• #11 Treatments For Craniosynostosis – NJ Craniofacial CenterVisit our FacebookVisit our InstagramVisit our TwitterVisit our LinkedInVisit our YouTube channelVisit our FacebookVisit our TwitterVisit our YouTube channelth-listclosechevron-downphonelinkedinfaceb

  https://njcraniofacialcenter.com/treatments/treatments-for-craniosynostosis/

  Although this method is still needed in certain cases, advancements in technology have enabled us at NJ Craniofacial Center to provide a more minimally invasive approaches when treating patients with craniosynostosis. […] Endoscopic surgical repair for craniosynostosis offered surgeons a way to “open” the fused or locked sutures of the skull, without the need to make a large incision on the infant’s head. […] Endoscopic surgery for craniosynostosis shortens the length of the operation, and minimizes the risks of blood loss and transfusion. […] Treatment typically involves surgery to open up the fused bones and allow the skull to grow normally.

• #12 Treatments For Craniosynostosis – NJ Craniofacial CenterVisit our FacebookVisit our InstagramVisit our TwitterVisit our LinkedInVisit our YouTube channelVisit our FacebookVisit our TwitterVisit our YouTube channelth-listclosechevron-downphonelinkedinfaceb

  https://njcraniofacialcenter.com/treatments/treatments-for-craniosynostosis/

  Craniosynostosis is a condition where the “spaces” or sutures between the bones of the skull, fuse and close abnormally. This premature closure of the sutures or “synostosis” causes an abnormal head shape to develop. The treatment of craniosynostosis necessarily involves surgery, and now, thanks to innovative surgical approach done by Drs. David Jimenez and Constance Barone, specially trained pediatric neurosurgeons and plastic-reconstructive surgeons are able to offer patients minimally invasive correction of craniosynostosis. […] We strongly advocate for a team-oriented approach where surgeries and procedures can be combined, to eliminate unnecessary trips to the operating room. […] If there is a safe and effective way to have your child’s surgery done…you can find it right here! […] Traditionally, treatment for craniosynostosis has been through surgery to unlock and reshape the bones of the skull.

• #13 Craniosynostosis Program | Children’s Hospital Los Angeles

  https://www.chla.org/neurological-institute/programs-and-services/craniosynostosis-program

  Craniosynostosis occurs when an infants skull bones close prematurely. This condition can cause an irregular head shape, distort facial features and put pressure on delicate tissue. […] At Childrens Hospital, your child has access to: […] Advanced craniosynostosis surgery: When appropriate, our surgeons use endoscopic synostosis correction. This approach involves tiny incisions and sophisticated instruments, so its gentler on growing bodies. We use this approach on children as young as three months old. Operating at a younger age may lower the risk of potential complications. […] Craniosynostosis surgery also helps your baby by: Decreasing the risk of high intracranial pressure, Enhancing head shape and appearance, Lowering the risk of developmental delays due to problems with brain growth. […] For the best results, we recommend helmet therapy during periods of brain growth and development. These growth periods typically occur during infancy and end before a child is two years old. We perform a detailed assessment to determine whether helmet therapy is right for your child.

• #14

  https://link.springer.com/article/10.1007/BF00302032

  The interposition of various materials to complete suturectomy for the treatment of craniosynostosis has been used by many surgeons to prevent early postoperative reunion. […] The interposing of a silicon membrane was found to prevent formation of skull deformity during growth.

• #15 Craniosynostosis Diagnosis and Treatment | OHSU

  https://www.ohsu.edu/doernbecher/craniosynostosis-diagnosis-and-treatment

  Early diagnosis and treatment of craniosynostosis is vital to help your child meet developmental milestones. The most common treatment is surgery to modify the shape of the head and allow for brain growth. […] If your child’s head shape seems unusual, it could be a sign that the soft spaces between sections of the skull are not developing properly. This condition is called craniosynostosis. It happens when the elastic areas of the skull that give the brain room to grow close too early. […] If your child is diagnosed with craniosynostosis in the first few weeks of life, OHSU offers several surgery options to reshape the skull. We will work with you to create the right plan for your baby, based on the type and severity of their condition. […] In most cases, children with craniosynostosis do not need follow-up surgery. After your child’s surgery you will meet with your child’s brain surgeon, plastic surgeon, and pediatric nurse practitioner for follow-up care. Our team will also conduct tests to check how your child’s brain functions. […] OHSU’s complete care for craniofacial disorders includes emotional support for your family. Our team has a pediatric psychologist from OHSU’s Child Development Rehabilitation Center who will work with your family and connect you to community resources.

• #16 The awareness of treatment plans of craniosynostosis: guideline for patient and family version | Egyptian Pediatric Association Gazette | Full Text

  https://epag.springeropen.com/articles/10.1186/s43054-024-00273-3

  It is better to use appropriate educational aids such as educational podcasts based on the latest guidelines for craniosynostosis to educate parents. […] Overall, it can be concluded that caregivers of children with craniosynostosis had above-average awareness of all the questions related to each chapter. In this regard, further explanations in simple language should be provided to the parents or caregivers by the treating physician and nurse. Additionally, appropriate educational aids such as educational podcasts based on the latest guidelines should be utilized. Furthermore, considering that caregiving approaches may vary depending on the type of craniosynostosis and accompanying syndromes, parents/caregivers should be well-informed about the type, cause, and treatment of the patient.

• #17 Sagittal Craniosynostosis: Types, Treatment, and More

  https://www.verywellhealth.com/sagittal-craniosynostosis-5190936

  Sagittal craniosynostosis is most often treated with surgery and close follow-up care. Early diagnosis and treatment can help prevent long-lasting complications. […] Most babies who are treated for sagittal craniosynostosis have successful outcomes without complications. Early diagnosis and treatment are important for treatment success. […] Treatment for sagittal craniosynostosis involves surgery to correct the skull’s shape and give the brain room to grow. It is often helpful for parents to seek out sources of support such as a parent group or online community.

• #18 Pediatric Craniosynostosis: UF Pediatric Neurosurgery » Pediatric Craniosynostosis » Lillian S. Wells Department of Neurosurgery at the University of Florida » College of Medicine » University of Florida

  https://neurosurgery.ufl.edu/patient-care/pediatric-neurosurgery/pediatric-diseases-conditions-services/pediatric-craniosynostosis/

  Parents should be advised to continue placing their baby on his or her back to sleep, even if the child has positional plagiocephaly. The flattening is likely to diminish as the child obtains gross motor milestones and lies on the area less. It should also be noted that after the age of 1, it becomes increasingly difficult to modify a child’s head shape non-invasively.

• #19 Craniosynostosis

  https://healthlibrary.vidanthealth.com/Search/90,P02595

  Craniosynostosis is a condition where one or more of the sutures of the skull close too early. It causes problems with normal brain and skull growth. […] The key to treating craniosynostosis is early detection and treatment. Treatment will depend on your child’s symptoms, age, and general health. It will also depend on how severe the condition is. […] When the diagnosis is made before a child is age 1, surgery is usually the recommended treatment. The goal of surgery is to fix the deformities of the face and skull bones. It can also ease pressure in the skull, if it is present. […] Most children who have surgery early live healthy lives.

• #20 Metopic Craniosynostosis: What It Is, Symptoms & Treatment

  https://my.clevelandclinic.org/health/diseases/metopic-craniosynostosis-trigonocephaly

  There isnt a way to prevent metopic craniosynostosis. You can reduce your risk by talking to a healthcare provider about ways you can prevent birth defects and stay healthy before and during pregnancy. […] Treatment with surgery is successful and side effects are usually minor. After endoscopic surgery, your child will stay overnight for close observation. They can often go home within one to two days of the procedure. For the open surgery, your child will spend 24 hours in intensive care so their healthcare providers can observe their progress around the clock. Then, a provider will move your child to another area of the hospital for a few days to a week to monitor their healing.

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