Materiały źródłowe

• #1 Narcolepsy Information | Mount Sinai – New York

  https://www.mountsinai.org/health-library/diseases-conditions/narcolepsy

  You can’t prevent narcolepsy. Treatment may reduce the number of attacks. Avoid situations that trigger the condition if you are prone to attacks of narcolepsy.

• #1 What Is Narcolepsy? Symptoms, Causes, Diagnosis, Treatment, and Prevention

  https://www.everydayhealth.com/narcolepsy/guide/

  While theres no way to prevent narcolepsy, promising research may lead to methods that allow scientists to replace the missing brain chemical hypocretin, according to Mignot. Researchers are looking for ways to stop the destruction of hypocretin before it happens, in order to prevent narcolepsy in people who are at risk for developing the disease.

• #2 What Is Narcolepsy? Symptoms, Causes, Diagnosis, Treatment, and Prevention

  https://www.everydayhealth.com/narcolepsy/guide/

  While theres no way to prevent narcolepsy, promising research may lead to methods that allow scientists to replace the missing brain chemical hypocretin, according to Mignot. Researchers are looking for ways to stop the destruction of hypocretin before it happens, in order to prevent narcolepsy in people who are at risk for developing the disease.

• #2 Orexin, narcolepsy and future treatment – VJNeurology

  https://www.vjneurology.com/video/o1kh9-ph3-s-orexin-narcolepsy-and-future-treatment/

  Emmanuel Mignot states that it is an exciting time for narcolepsy research; there have been drugs that target the orexin system and thus, prevent the loss of orexin neurons in narcolepsy type 1. […] Some preliminary results have been released from one drug developed called TAK-925 results have been positive, eliminating the onset of narcolepsy. […] This demonstrated the effectiveness of TAK-925 in treating narcolepsy.

• #3 Narcolepsy and genetics | EBSCO Research Starters

  https://www.ebsco.com/research-starters/health-and-medicine/narcolepsy-and-genetics

  there are currently no established guidelines for preventing narcolepsy itself. […] There are no guidelines for preventing narcolepsy itself. However, patients can try to prevent symptoms by avoiding activities that carry a risk of injury from a sudden sleep attack, such as driving, climbing ladders, and using dangerous machinery. Other preventive measures include exercising on a regular basis, avoiding nicotine and alcohol, and maintaining a consistent sleep schedule.

• #4 Narcolepsy – Prevention

  https://www.medindia.net/health/conditions/narcolepsy-prevention.htm

  Safety first should be followed by narcoleptics to avoid accidents during episodes of excessive daytime sleepiness. […] Patients suffering from untreated narcolepsy carry a 10-fold risk of suffering accidents involving vehicles as compared to the rest of the population. However, accident rates are in the normal range among patients who have received treatment for the condition. […] Life style modifications help to reduce the severity of the symptoms. […] Though narcolepsy by itself is not a life threatening condition, victims expose themselves to serious injury or death due to injury in the absence of proper treatment.

• #5 Narcolepsy: Natural treatments and more

  https://www.medicalnewstoday.com/articles/narcolepsy-natural-treatment

  The NINDS also recommends regular exercise, which may improve sleep quality and reduce daytime sleepiness. […] According to a 2017 review, skin temperature may have associations with wakefulness in people with narcolepsy. […] It can be helpful to talk with friends and family about the condition and educate them about the possibility of daytime sleepiness or cataplexy. […] People need to inform their employers about narcolepsy. […] Some research has linked low levels of certain vitamins to narcolepsy. […] However, this research either has small sample sizes or has not tested the direct effects of vitamin supplementation on narcolepsy symptoms. […] Healthcare professionals often prescribe medications for narcolepsy. […] People can take sodium oxybate to manage muscle limpness, although healthcare professionals recommend taking this in bed as its effects set in rapidly.

• #6 Narcolepsy – Diagnosis & Treatment | Conditions, Treatments & Specialty | Geisinger

  https://www.geisinger.org/patient-care/conditions-treatments-specialty/narcolepsy

  Staying active and maintaining good sleep habits can help you manage your narcolepsy. For example, sitting for long periods can cause sleepiness, but taking walks and adding in periodic movement can help keep you awake. […] Also, practicing good sleep habits — including keeping a regular bedtime, removing electronic devices from your room and keeping your room cool and dark — can help you sleep at night. Sleeping better at night will help keep narcolepsy under control during the day. […] In addition to practicing lifestyle changes, your doctor may prescribe medications to treat your sleep disorder. Medications for narcolepsy can help you stay alert during the day, while others can help you sleep better at night.

• #7 Narcolepsy: 7 Treatment Options

  https://www.health.com/condition/narcolepsy/narcolepsy-treatments

  Narcolepsy treatment mainly consists of medications, such as stimulants or sodium oxybate, and lifestyle changes, like avoiding caffeine in the afternoon or taking short naps. […] Some lifestyle changes can be helpful for people with narcolepsy. Those changes can include taking naps and exercising regularly to reduce symptoms. […] Frequent naps are an excellent technique for managing symptoms of narcolepsy. Short, scheduled naps around 15 to 20 minutes are most helpful when a person feels sleepy. […] People with narcolepsy may turn to caffeine in an attempt to stay awake during the day. However, having caffeine in the afternoon or evening may lead to greater sleep difficulty. […] Being physically active can help people with narcolepsy. […] Going to bed at night and waking up at the same time each morning can improve sleep. […] The other major treatment includes behavioral changes, such as having a consistent sleep schedule or avoiding caffeine and smoking.

• #8

  https://www.nhs.uk/conditions/narcolepsy/treatment/

  There’s no specific cure for narcolepsy, but you can manage the symptoms and minimise their impact on your daily life. […] Making some simple changes to your sleeping habits can sometimes help. […] Things you can do to reduce excessive daytime sleepiness and make it easier to sleep at night include: taking frequent, brief naps space them evenly throughout the day; a GP or sleep specialist can help you plan a schedule that fits in with your other activities. […] Sticking to a strict bedtime routine aim to go to bed and wake up at the same time every day whenever possible. […] Relaxing before going to bed have a warm bath, for example. […] Ensuring you have a good sleeping environment for example, keeping your bedroom at a comfortable temperature, quiet and free from distractions. […] Avoiding caffeine (found in coffee, tea and some fizzy drinks), alcohol and smoking before going to bed.

• #9 What is the treatment for narcolepsy?

  https://www.drugs.com/medical-answers/treatment-narcolepsy-3564316/

  There is no cure for narcolepsy, but medications and lifestyle modifications can help manage symptoms such as excessive daytime sleepiness (EDS). […] Lifestyle modifications can help manage symptoms of narcolepsy, and can include: […] Improving your sleep habits and sticking to a bedtime schedule. Go to sleep and wake up at the same time every day, including weekends. […] Take regular, short, naps of 20 minutes throughout the day […] Avoid nicotine and alcohol, especially at night […] Get regular exercise but do it at least four to five hours before bedtime.

• #10 Narcolepsy | Conditions | UCSF Health

  https://www.ucsfhealth.org/conditions/narcolepsy

  Treatment for narcolepsy typically involves medications to increase daytime alertness and reduce cataplexy and other symptoms. Stimulants are usually prescribed to improve alertness. Antidepressants as well as a new drug called gammahydroxybutyrate, or Xyrem, may be used to control cataplexy, hypnagogic hallucinations and sleep paralysis. […] Medication is just one aspect of treatment for narcolepsy. There are other simple things you can do to improve your sleep habits, including: Taking several short naps, or one long nap, each day to control sleepiness and sleep attacks. Adopt a sleep routine in which you go to bed and wake up at the same time. Use your bed for sleep and sex only. Do not have caffeine, nicotine or alcohol in the late afternoon or evening. Exercise regularly, but at least three hours before bedtime. Try to avoid exciting or stressful situations that may trigger a cataplexy attack.

• #11

  https://www.nhs.uk/conditions/narcolepsy/treatment/

  Not exercising too close to bedtime leave at least 2 hours between finishing exercise and going to bed. […] Not eating large, heavy meals before going to bed. […] Speak to a GP or pharmacist if you’re unsure about which medicines cause drowsiness. They may be able to recommend non-drowsy alternatives. […] Sodium oxybate is a medicine that can improve sudden loss of muscle control and help you sleep at night, which can also reduce daytime sleepiness. […] You may need to use an alarm clock to ensure you take the medicine at the right times. […] Do not drink alcohol while taking sodium oxybate. You should also avoid activities that require mental alertness, such as driving or operating heavy machinery, until at least 6 hours after taking it. […] Although there’s some uncertainty about how effective antidepressants are at treating narcolepsy, they’re sometimes used to treat symptoms like sudden loss of muscle control, hallucinations and sleep paralysis.

• #12

  https://myhealth.alberta.ca/Health/aftercareinformation/pages/conditions.aspx?hwid=uh4706

  Medicines may help prevent sleep attacks and episodes of muscle weakness. […] Try to take 2 or 3 short naps at regular times during the day. […] Take your medicines exactly as prescribed. […] Avoid alcohol, caffeine, nicotine, and illegal drugs. They can increase your anxiety level and cause sleep problems. […] Ask your doctor if any medicines you take could cause sleepiness.

• #13 Narcolepsy: Natural treatments and more

  https://www.medicalnewstoday.com/articles/narcolepsy-natural-treatment

  There is currently no cure for narcolepsy. However, some natural treatments and lifestyle adjustments may help people manage symptoms. […] Some natural approaches that individuals with narcolepsy may consider include vitamin and mineral supplements, homeopathy, and meditation, with over half using a supplement. […] Despite this, there are lifestyle modifications and supportive therapies that might provide extra relief from narcolepsy’s more disruptive symptoms. […] Small changes to a person’s sleep schedule can help to reduce daytime sleepiness for a person with narcolepsy. […] The National Institute of Neurological Disorders and Stroke (NINDS) recommends making the following adjustments if they are not already part of someone’s sleep schedule: […] These steps do not address the underlying cause but may improve the quality of life for people with narcolepsy.

• #14 Narcolepsy – Causes, Symptoms, Treatment, Diagnosis – MedBroadcast.com

  https://medbroadcast.com/condition/getcondition/narcolepsy

  There’s no cure for narcolepsy, but symptoms can be brought under control with medications. […] It’s unlikely that medication treatment will completely eliminate all desire to sleep during the day. […] Good sleep habits can also help with narcolepsy.

• #15 Narcolepsy | Norton Healthcare

  https://nortonhealthcare.com/services-and-conditions/sleep-medicine/services/narcolepsy/

  Narcolepsy is manageable with medications and lifestyle changes. Proper treatment can lead to better sleep and reduce daytime sleepiness. […] The right treatment can manage narcolepsy symptoms. Narcolepsy is a chronic disorder in which the brain can’t control when you sleep and when you are awake.

• #16

  https://www.healthshare.com.au/questions/2367-what-is-the-best-treatment-for-narcolepsy/

  There is no single best treatment for narcolepsy, as treatment is usually tailored to an individual’s symptoms and made up of a combination of non-drug strategies and medications. The main types of treatment used in narcolepsy are treatments to help stay awake during the day, treatments to help stay asleep at night, and treatments to reduce cataplexy (sudden muscle weakness). […] To help stay awake during the day, napping is an important strategy to help get through the day, as is allowing enough time for sleep and not scheduling too much in to each day. If these measures aren’t enough medications, such as dexamphetamine, Ritalin or modafinil can be used in addition. However if medications are used without paying attention to napping and allowing enough time for sleep they are often not as effective as we wish them to be.

• #17

  https://www.healthshare.com.au/questions/2367-what-is-the-best-treatment-for-narcolepsy/

  To help with staying asleep, learning good sleep habits and managing worries are very important. In addition to this sleep promoting medications such as sleeping tablets can be used if needed. […] To reduce cataplexy avoiding becoming over-tired is the first step. If this is not enough, REM suppressing medication such as anti-depressant medications can be added.

• #18 Stanford researcher shows once-nightly narcolepsy drug is safe, effective | News Center

  https://med.stanford.edu/news/all-news/2021/09/narcolepsy-drug.html

  A phase 3 study has found that an extended-release version of sodium oxybate reduces daytime sleepiness and attacks of muscle weakness in narcolepsy patients. […] Sodium oxybate is effective at treating multiple narcolepsy symptoms, including disrupted nighttime sleep. […] A study in Europe showed that 27% of patients with narcolepsy did not take sodium oxybate on the recommended time schedule. […] „A medication that is taken twice daily – in the morning and evening – is more challenging than a once-daily medication, but it’s even more problematic for a chronic medication requiring middle-of-the-night awakening,” Kushida said. […] ON-SXB is under review at the FDA for the treatment of excessive daytime sleepiness and cataplexy in adults with narcolepsy. […] „If approved, ON-SXB may be a major advance for patients experiencing the burdensome symptoms of narcolepsy and for physicians who manage their patients with this chronic, incapacitating sleep disorder,” Kushida said.

• #19 Treatment of narcolepsy and idiopathic hypersomnia | NSS

  https://www.dovepress.com/long-term-treatment-of-narcolepsy-and-idiopathic-hypersomnia-with-low–peer-reviewed-fulltext-article-NSS

  Narcolepsy and idiopathic hypersomnia are chronic conditions that negatively affect alertness, mental and physical energy, functioning, and quality of life (QoL). […] LXB is a promising long-term treatment for narcolepsy and idiopathic hypersomnia. […] The modest sodium load associated with LXB, compared with SXB, is likely to be beneficial for the health of people with narcolepsy or idiopathic hypersomnia, including young people. […] Limiting medication-related sodium intake with LXB may have significant health benefits, especially in relation to decreased risk of cardiovascular morbidity.

• #20 Narcolepsy – USZ

  https://www.usz.ch/en/disease/narcolepsy/

  There are no known measures to prevent narcolepsy. There is also no screening program for this rare disease. However, it is important that both the population and, above all, physicians are aware of this disease and recognize it in time. […] The therapy of narcolepsy includes non-drug and drug measures. In doing so, we choose a treatment that suits the individual person concerned. The aim is to enable them to cope with their chronic illness as well as possible in the long term.

• #21 Narcolepsy

  https://library.valleymed.org/library/PreventionGuidelines/85,P01317

  The goal of treatment of narcolepsy is to help you remain as alert as possible during the day. Its also important to reduce times when you lose muscle control. Ideally, this can be done using a minimal amount of medicine. […] A number of lifestyle changes may help manage narcolepsy. Some of these include: Sticking to the same sleep schedule 7 days a week. This can help you sleep better. […] Treatment of narcolepsy may include medicines, nap therapy, and lifestyle changes.

• #22 Narcolepsy: Natural treatments and more

  https://www.medicalnewstoday.com/articles/narcolepsy-natural-treatment

  People who believe they may be experiencing symptoms of narcolepsy can consider speaking with a healthcare professional. […] People with a diagnosis of narcolepsy also need to speak with a healthcare professional if symptoms are interfering with daily life or contributing to mental health problems, such as depression. […] People with narcolepsy can take steps in daily life to reduce its effects. […] Exercise and emotional support are also important for reducing daytime sleepiness and limiting the mental health effects of narcolepsy.

• #23 Narcolepsy definition, symptoms and treatment | Biron

  https://www.biron.com/en/education-center/specialist-advice/narcolepsy/

  Although narcolepsy cannot be cured, some symptoms can be relieved with lifestyle changes and medication. For example, strategically planned preventive naps help prevent sleep attacks. […] Other avenues are also being explored to optimize the treatment of narcolepsy.

Zobacz więcej