Materiały źródłowe

• #1 Juvenile Idiopathic Arthritis (JIA) | Nurse – PMM

  https://www.pmmonline.org/nurse/arthritis-conditions/juvenile-idiopathic-arthritis-jia/

  Nurses, Health Visitors, School Health Advisors and Practice Nurses are often the first contact a child has with health services and are therefore in a prime position to identify early signs and symptoms suggesting arthritis. Early identification of arthritis and access to treatment is key to preventing joint damage and other complications that can occur. […] Juvenile Idiopathic Arthritis (JIA) is the umbrella term to describe various subtypes of arthritis. Each subtype differs in terms of clinical features. JIA is defined as arthritis in one or more joints lasting for more than 6 weeks and starts under the age of 16 years. […] Untreated, inflammatory arthritis in growing children can interfere with bone growth around the affected joint. For example a child with knee arthritis may have leg length inequality – this occurs due to increased blood flow causing stimulation of bone growth and increase in length. This may result initially in accelerated growth (causing a longer limb) and then early fusion of the growing parts of the bone (causing ultimately a shortened limb). Similarly abnormal growth of fingers, toes, and the jaw can occur with impact on joint movement and function; use of fingers, problems with walking or getting shoes to fit comfortably or problems with eating and chewing.

• #2 Juvenile Idiopathic Arthritis | Cedars-Sinai

  https://www.cedars-sinai.org/health-library/diseases-and-conditions—pediatrics/j/juvenile-rheumatoid-arthritis.html

  Juvenile idiopathic arthritis (JIA) is a form of arthritis in children. […] The goal of treatment is to reduce pain and stiffness and to help your child keep as normal a lifestyle as possible. […] Treatment may include medicines, such as: Nonsteroidal anti-inflammatory medicines (NSAIDs) to reduce pain and inflammation, Disease-modifying antirheumatic medicines (DMARDs), such as methotrexate, to ease inflammation and control JIA, Corticosteroid medicines to reduce inflammation and severe symptoms, Medicines called biologics that interfere with the body’s inflammatory response. […] Other treatments and lifestyle changes may include: Physical therapy to improve and maintain muscle and joint function, Occupational therapy to improve ability to do activities of daily living, Nutrition counseling, Regular eye exams to find early eye changes from inflammation, Regular exercise and weight control, Getting enough rest, Learning to use large joints instead of small joints to move or carry things. […] Help your child manage their symptoms by sticking to the treatment plan and keeping follow-up appointments.

• #3 Juvenile Idiopathic Arthritis (JIA) | Arthritis Foundation

  https://www.arthritis.org/diseases/juvenile-idiopathic-arthritis

  Juvenile idiopathic arthritis (JIA) is the most common type of arthritis in kids and teens. […] JIA types are autoimmune or autoinflammatory diseases. […] Controlling inflammation and managing disease can prevent damage and complications from these health effects. […] A pediatrician may be the first doctor to start figuring out whats causing symptoms. […] The goals of JIA treatment are to: Slow down or stop inflammation. […] Relieve symptoms, control pain and improve quality of life. […] Prevent joint and organ damage. […] Preserve joint function and mobility. […] Reduce long-term health effects. […] Achieve remission (little or no disease activity or symptoms). […] Disease-modifying antirheumatic drugs (DMARDs). These drugs work to modify the course of the disease. […] Nonsteroidal anti-inflammatory drugs (NSAIDs) and analgesics (pain relievers). These drugs relieve pain but cannot reduce joint damage or change the course of JIA.

• #4 Juvenile Idiopathic Arthritis (JIA) | Nurse – PMM

  https://www.pmmonline.org/nurse/arthritis-conditions/juvenile-idiopathic-arthritis-jia/

  Nurses, Health Visitors, School Health Advisors and Practice Nurses are often the first contact a child has with health services and are therefore in a prime position to identify early signs and symptoms suggesting arthritis. Early identification of arthritis and access to treatment is key to preventing joint damage and other complications that can occur. […] Juvenile Idiopathic Arthritis (JIA) is the umbrella term to describe various subtypes of arthritis. Each subtype differs in terms of clinical features. JIA is defined as arthritis in one or more joints lasting for more than 6 weeks and starts under the age of 16 years. […] Untreated, inflammatory arthritis in growing children can interfere with bone growth around the affected joint. For example a child with knee arthritis may have leg length inequality – this occurs due to increased blood flow causing stimulation of bone growth and increase in length. This may result initially in accelerated growth (causing a longer limb) and then early fusion of the growing parts of the bone (causing ultimately a shortened limb). Similarly abnormal growth of fingers, toes, and the jaw can occur with impact on joint movement and function; use of fingers, problems with walking or getting shoes to fit comfortably or problems with eating and chewing.

• #5 Nursing Care Plan For Juvenile Idiopathic Arthritis – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-juvenile-idiopathic-arthritis/

  Juvenile Idiopathic Arthritis (JIA) is a chronic autoimmune disorder characterized by inflammation of the joints in children under the age of 16, lasting for a minimum of six weeks. […] As frontline healthcare providers, nurses play a pivotal role in the holistic care of children with JIA, focusing not only on the management of symptoms but also on promoting optimal growth, development, and psychosocial adaptation. […] This nursing care plan is designed to address the multifaceted needs of children diagnosed with Juvenile Idiopathic Arthritis, considering the diverse manifestations and potential complications associated with the condition. […] By understanding the unique challenges posed by JIA, nurses can contribute significantly to the alleviation of pain, prevention of joint damage, and improvement of the child’s overall functional ability.

• #6 4 Juvenile Rheumatoid Arthritis Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/juvenile-rheumatoid-arthritis-nursing-care-plans/

  – Pain management and symptom control […] – Medication administration and monitoring […] – Monitor disease activity and joint function […] – Education and support for self-care techniques and joint protection […] – Facilitating physical therapy and exercise programs […] – Collaboration with the healthcare team for comprehensive care […] – Enhance adherence to the treatment plan […] Following a thorough assessment, it is essential to formulate a nursing diagnosis that specifically addresses the problems associated with juvenile rheumatoid arthritis. This diagnosis reflects your clinical judgment regarding the patients health conditions and needs. […] Nursing care planning goals for a child with juvenile rheumatoid arthritis aim to provide relief of pain, improve coping ability, preserve muscle and joint function, prevent joint deformity, promote positive body image, and increase confidence in the performance of self-care activities. Goals and expected outcomes may include:

• #7 Juvenile idiopathic arthritis – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/juvenile-idiopathic-arthritis/diagnosis-treatment/drc-20374088

  Treatment for juvenile idiopathic arthritis focuses on helping your child maintain a normal level of physical and social activity. To accomplish this, doctors may use a combination of strategies to relieve pain and swelling, maintain full movement and strength, and prevent complications. […] The medications used to help children with juvenile idiopathic arthritis are chosen to decrease pain, improve function and minimize potential joint damage. […] Your doctor may recommend that your child work with a physical therapist to help keep joints flexible and maintain range of motion and muscle tone. […] In very severe cases, surgery may be needed to improve joint function. […] Caregivers can help children learn self-care techniques that help limit the effects of juvenile idiopathic arthritis. Techniques include: Getting regular exercise. Exercise is important because it promotes both muscle strength and joint flexibility.

• #8 4 Juvenile Rheumatoid Arthritis Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/juvenile-rheumatoid-arthritis-nursing-care-plans/

  – Pain management and symptom control […] – Medication administration and monitoring […] – Monitor disease activity and joint function […] – Education and support for self-care techniques and joint protection […] – Facilitating physical therapy and exercise programs […] – Collaboration with the healthcare team for comprehensive care […] – Enhance adherence to the treatment plan […] Following a thorough assessment, it is essential to formulate a nursing diagnosis that specifically addresses the problems associated with juvenile rheumatoid arthritis. This diagnosis reflects your clinical judgment regarding the patients health conditions and needs. […] Nursing care planning goals for a child with juvenile rheumatoid arthritis aim to provide relief of pain, improve coping ability, preserve muscle and joint function, prevent joint deformity, promote positive body image, and increase confidence in the performance of self-care activities. Goals and expected outcomes may include:

• #9 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Juvenile Idiopathic Arthritis (JIA) […] An admission to hospital may be required at diagnosis as part of initial assessment and treatment or if there is disease flare or suspected infection or as a complication of immunosuppression. […] Stiff swollen joints due to inflammation of the joint and potentially other surrounding structures. Establish which joints may be affected and whether any joints appear swollen. Enquiry about impact on daily life may indicate which joints are affected. […] Assess pattern of symptoms inflamed joints are often stiff in the mornings (early morning stiffness) or after periods of inactivity (called gelling). […] Warm bath in the morning can assist with improving joint movement. […] Assess activities of daily living to determine which aspects they may need assistance with.

• #10

  https://www.termedia.pl/Selected-health-problems-of-a-child-with-juvenile-r-nidiopathic-arthritis-nursing-care-based-on-scientific-r-nevidence,134,55153,1,1.html

  Juvenile idiopathic arthritis (JIA) is one of the most common arthropathies. […] The aim of the report is to present the leading health problems of a child suffering from juvenile idiopathic arthritis, including possible nursing solutions specific to the child’s developmental stage, formulated based on scientific evidence. […] Universal and specific actions of nursing staff being members of the interdisciplinary team: Quantitative and qualitative pain assessment using pain assessment scales optimally adapted to the child’s age and intellectual capacity. […] The aim of JIA treatment is to minimise or eliminate the active inflammatory and immunological processes of the disease, to slow down or completely stop the progression of joint pathologies, to eliminate pain, to stop developmental disorders and prevent short stature, to prevent the development of osteoporosis or limit its consequences, to prevent dysfunction of internal organs and eyesight, to limit disability and complications, and to allow the child to return to life activities.

• #11 Nursing Care Plan For Juvenile Idiopathic Arthritis – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-juvenile-idiopathic-arthritis/

  Key components of the care plan include medication management, pain control, physical and occupational therapy, educational support for the child and family, and regular monitoring of disease progression. […] The collaboration with a multidisciplinary healthcare team ensures that the child’s care is well-coordinated and individualized to address specific needs and variations in disease presentation. […] This nursing assessment serves as the foundation for developing an individualized care plan that addresses the specific needs of the child with Juvenile Idiopathic Arthritis. […] Regularly reassess the child’s joint status, pain levels, and overall well-being to detect changes or worsening of symptoms. […] The goals set within the care plan, including pain management, joint protection, and support for physical and psychosocial development, underscore the commitment to providing holistic and individualized care.

• #12

  https://www.termedia.pl/Selected-health-problems-of-a-child-with-juvenile-r-nidiopathic-arthritis-nursing-care-based-on-scientific-r-nevidence,134,55153,1,1.html

  The nursing staff have a greater opportunity to observe the child during natural daily activities. […] The care of JIA patients should take into account the risk of developing anxiety and depressive disorders in this group, determined not only by the consequences of the disease and treatment, but also generated by the difficulties of adolescence. […] Educational activities aimed both at the child as a subject of care, with adaptation to their age and perceptual capabilities, and at their family. […] The nursing teams activities also include ensuring continuity in the deformity treatment through the use of bedside rehabilitation under the guidance of a physiotherapist and encouraging/reminding the patient to perform daily exercise prescribed by the physiotherapist, assessment of pain prior to planned physiotherapy including appropriate pharmacotherapy, and checking rehabilitation equipment for safety.

• #13 A New Approach to Clinical Care of Juvenile Idiopathic Arthritis: The Juvenile Arthritis Multidimensional Assessment Report | The Journal of Rheumatology

  https://www.jrheum.org/content/38/5/938

  Regular use of the JAMAR enables keeping a flow sheet of patients course over time. […] Development of the JAMAR provides a promising approach to quantitative measurement in standard pediatric rheumatology care. Availability of this new instrument may foster regular use of parent/patient questionnaires in routine practice and contribute to improved quality of care of children with JIA.

• #14 Assessment and management of pain in juvenile idiopathic arthritis

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3659013/

  Juvenile idiopathic arthritis (JIA) is a common chronic childhood illness. Pain is the most common and distressing symptom of JIA. Pain has been found to negatively impact all aspects of functioning, including physical, social, emotional and role functions. Children with arthritis continue to experience clinically significant pain despite adequate doses of disease-modifying antirheumatic drugs and anti-inflammatory agents. […] Pain is the most common and distressing symptom of JIA and appears to be more frequent and intense in JIA compared with other rheumatic diseases. […] Studies of health-related quality of life (HRQL) in children with JIA show that higher levels of pain are associated with poor physical, emotional and social functioning. Increased pain is also correlated with poor sleep and fatigue in patients with JIA.

• #15 Assessment and management of pain in juvenile idiopathic arthritis

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3659013/

  To provide the best possible care for children and adolescents with JIA, timely and thorough pain assessment is crucial. Proper pain assessment in children and adolescents with arthritis has historically been hindered by a lack of valid and reliable tools, which is suspected to have led to a general underestimation and resultant undertreatment of pain in these individuals. […] Management includes early and aggressive treatment of the underlying joint inflammation, combined with pharmacological and nonpharmacological approaches to target pain and enhance pain coping and physical function. […] There are currently no established guidelines for the management of acute and persistent pain in JIA; however, pain control has recently been identified as a quality measure in the care of children with JIA.

• #16 Assessment and management of pain in juvenile idiopathic arthritis

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3659013/

  To provide the best possible care for children and adolescents with JIA, timely and thorough pain assessment is crucial. Proper pain assessment in children and adolescents with arthritis has historically been hindered by a lack of valid and reliable tools, which is suspected to have led to a general underestimation and resultant undertreatment of pain in these individuals. […] Management includes early and aggressive treatment of the underlying joint inflammation, combined with pharmacological and nonpharmacological approaches to target pain and enhance pain coping and physical function. […] There are currently no established guidelines for the management of acute and persistent pain in JIA; however, pain control has recently been identified as a quality measure in the care of children with JIA.

• #17

  https://myhealth.alberta.ca/Health/aftercareinformation/pages/conditions.aspx?hwid=uf8805

  Juvenile idiopathic arthritis is a disease that happens to children. It causes swollen and stiff joints. […] Your child can take pills or get a shot in a joint to reduce pain and swelling. Physiotherapy can help keep your child’s joints flexible. […] Follow-up care is a key part of your child’s treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse advice line if your child is having problems. […] Help your child get the right mix of exercise and rest. Exercise helps keep joints strong and flexible. […] See a physiotherapist. He or she can help your child move stiff joints. […] Encourage your child to do his or her usual activities as much as possible. Your child may be able to do low-impact sports. […] Give your child anti-inflammatory medicines to reduce pain and swelling, if your doctor recommends them.

• #18 Juvenile Idiopathic Arthritis (JIA) | Arthritis Foundation

  https://www.arthritis.org/diseases/juvenile-idiopathic-arthritis

  Regular exercise helps ease joint stiffness and pain. […] Physical and occupational therapy can improve a childs quality of life by teaching them ways to stay active and how to perform daily tasks with ease. […] While there is no special JIA diet, studies show that some foods help to curb inflammation. […] When JIA is active, and joints feel painful, swollen or stiff, its important to balance light activity with rest. […] Heat treatments, such as heat pads or warm baths, work best for soothing stiff joints and tired muscles. […] These creams, gels or stick-on patches can ease the pain in a joint or muscle. […] There are different ways to relax and stop focusing on pain. […] Children and teens with JIA are more likely to get depressed because they are living with a chronic disease. […] Having a strong support system of friends and family can provide emotional support during tough times.

• #19 Treatment for Juvenile Idiopathic Arthritis | Stanford Health Care

  https://stanfordhealthcare.org/medical-conditions/bones-joints-and-muscles/juvenile-idiopathic-arthritis/treatments.html

  A pain management plan. This can help you and your child control pain caused by JIA. The plan may include heat, cold, or water therapy. Some people try complementary medicine, such as massage, guided imagery, and acupuncture. […] You and your child will be able to use many of the above treatment options at home. Home treatment can also include healthy eating, dealing with stiffness, and using assistive devices. […] Even when JIA is uncomplicated, an affected child may need years of medical treatment or checkups. To make sure that your child’s care is right for the stage of disease, work closely with the medical team. Learn as much as you can about your child’s disease and treatments. And stay on schedule with medicine and exercise. […] So part of your child’s treatment plan should be regular checkups with an ophthalmologist.

• #20 Assessment and management of pain in juvenile idiopathic arthritis

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3659013/

  Psychological strategies focus on the regulation of pain perceptions by self-regulation strategies that facilitate pain coping, modify the patients subjective experience of pain and/or modulate pain behaviours (ie, maximizing adaptive and minimizing pain-related behaviours) as well as addressing contextual factors. […] Pain in JIA needs to be considered within a developmental biopsychosocial context. International efforts are underway to generate valid, useful, clinically friendly tools for routine assessment of pain in pediatric rheumatology practice. To prevent morbidity associated with acute and ongoing pain in children with JIA, pain should be treated aggressively using a multidisciplinary approach that encompasses pharmacological, physical and psychological strategies.

• #21 Juvenile Rheumatoid Arthritis: Symptoms, Treatment, Diagnosis & Causes

  https://www.emedicinehealth.com/juvenile_rheumatoid_arthritis/article_em.htm

  Self-treatment is not encouraged in JIA. Without appropriate inflammation-stopping medical treatment, the inflammation in JIA progresses and becomes worse, increasing the risk of permanent damage to joints, eyes, and other body systems. […] Encourage your child to be as active as possible. Bed rest is not part of the treatment of JIA except for children with severe systemic disease. […] The aim of treatment is to stop or slow down the progress of inflammation, thus relieving symptoms, improving function, and preventing joint damage and other complications. […] Medication is the foundation of treatment in JIA. The medications that work best in JIA reduce inflammation, which in turn reduces symptoms. […] Nonsteroidal anti-inflammatory drugs (NSAIDs) reduce inflammation, swelling, and pain.

• #22 Juvenile Idiopathic Arthritis | Joint Inflammation in Children

  https://patient.info/bones-joints-muscles/rheumatoid-arthritis-leaflet/juvenile-idiopathic-arthritis

  Physiotherapy and occupational therapy are used to help keep the affected joints working as normally as possible. They also reduce the risk of any permanent damage to the joints. Hydrotherapy (which involves different methods of treatment using water) can also be very helpful. Children should be encouraged to participate in as much physical activity as possible, including most sports and dancing. Moist heat can help to relieve pain, and in some cases shoe inserts (orthotics) can be useful. […] Non-steroidal anti-inflammatory drugs (NSAIDs) can be used to help reduce pain and stiffness in the joints. Commonly used NSAIDs include ibuprofen, naproxen, indometacin and diclofenac. NSAIDs help to relieve symptoms but do not affect the progression of the disease. […] Steroids help to settle inflammation and may be used in different ways: Steroids may be injected into the affected joints. Steroid tablets may be needed to improve the symptom relief and when the disease affects other parts of the body, such as the lining of the heart (pericarditis), lungs (pleuritis) and abdomen (peritonitis). Steroid eye drops or creams may be needed for eye inflammation.

• #23 Juvenile Idiopathic Arthritis (JIA) Symptoms, Causes & Treatment

  https://my.clevelandclinic.org/health/diseases/10370-juvenile-idiopathic-arthritis

  Juvenile idiopathic arthritis (JIA) is the most common type of arthritis affecting children. Treatments include medications and physical therapy. Early intervention can help manage JIA and prevent joint damage. […] Treatment for JIA usually includes medications and exercise. The goals of treatment are to: Increase joint mobility and strength, Prevent joint damage and complications, Relieve pain, Reduce swelling. […] If your child receives a JIA diagnosis, your healthcare provider might recommend: Nonsteroidal anti-inflammatory drugs (NSAIDs). These medicines provide pain relief and reduce swelling, but they dont affect the course or outcome of JIA. […] Exercise (including physical and occupational therapy) can help reduce pain, maintain muscle tone, improve mobility (ability to move) and prevent permanent complications.

• #24 Treatment of juvenile idiopathic arthritis: a revolution in care | Pediatric Rheumatology | Full Text

  https://ped-rheum.biomedcentral.com/articles/10.1186/1546-0096-12-13

  A generation ago, children with arthritis faced a lifetime of pain and disability. Today, there are a multitude of treatment options, including a variety of biologics targeting key cytokines and other inflammatory mediators. […] Among the conventional disease-modifying anti-rheumatic drugs, methotrexate remains first-line therapy for most children with juvenile idiopathic arthritis (JIA) due to its long track record of safety and effectiveness in the management of peripheral arthritis. […] Overall, the biologics have demonstrated an impressive safety record in children with JIA, although children do need to be monitored for rare but potentially dangerous adverse events, such as tuberculosis and other infections; paradoxical development of additional autoimmune diseases; and possibly an increased risk of malignancy. […] It is also clear that methotrexate and the biologic medicines are typically well-tolerated by children, and that early and aggressive therapy yields optimal outcomes.

• #25 Juvenile Idiopathic Arthritis | Joint Inflammation in Children

  https://patient.info/bones-joints-muscles/rheumatoid-arthritis-leaflet/juvenile-idiopathic-arthritis

  Disease-modifying antirheumatic drugs (DMARDs) may be used to help reduce the effects of the disease. These medicines can be very effective but also need very close supervision by your specialist doctor. […] Biological medicines are another group of medicines used by specialists to help symptoms and reduce joint damage. These newer treatment options have improved outlook for people who don’t respond to the other treatments. […] Without treatment, juvenile idiopathic arthritis (JIA) can lead to problems with growth, weakness of bones (osteoporosis) and a delay of puberty. […] Because they are unable to participate in all the usual physical activities with friends and at school, children with JIA may have emotional and behavioural difficulties and problems at school. This can be made worse because of having to deal with pain and the amount of time taken away from school in order to attend hospital appointments and admissions. Therefore, children with JIA and their families often need a lot of support.

• #26 Juvenile Idiopathic Arthritis | Joint Inflammation in Children

  https://patient.info/bones-joints-muscles/rheumatoid-arthritis-leaflet/juvenile-idiopathic-arthritis

  Physiotherapy and occupational therapy are used to help keep the affected joints working as normally as possible. They also reduce the risk of any permanent damage to the joints. Hydrotherapy (which involves different methods of treatment using water) can also be very helpful. Children should be encouraged to participate in as much physical activity as possible, including most sports and dancing. Moist heat can help to relieve pain, and in some cases shoe inserts (orthotics) can be useful. […] Non-steroidal anti-inflammatory drugs (NSAIDs) can be used to help reduce pain and stiffness in the joints. Commonly used NSAIDs include ibuprofen, naproxen, indometacin and diclofenac. NSAIDs help to relieve symptoms but do not affect the progression of the disease. […] Steroids help to settle inflammation and may be used in different ways: Steroids may be injected into the affected joints. Steroid tablets may be needed to improve the symptom relief and when the disease affects other parts of the body, such as the lining of the heart (pericarditis), lungs (pleuritis) and abdomen (peritonitis). Steroid eye drops or creams may be needed for eye inflammation.

• #27 Juvenile Idiopathic Arthritis | Joint Inflammation in Children

  https://patient.info/bones-joints-muscles/rheumatoid-arthritis-leaflet/juvenile-idiopathic-arthritis

  Disease-modifying antirheumatic drugs (DMARDs) may be used to help reduce the effects of the disease. These medicines can be very effective but also need very close supervision by your specialist doctor. […] Biological medicines are another group of medicines used by specialists to help symptoms and reduce joint damage. These newer treatment options have improved outlook for people who don’t respond to the other treatments. […] Without treatment, juvenile idiopathic arthritis (JIA) can lead to problems with growth, weakness of bones (osteoporosis) and a delay of puberty. […] Because they are unable to participate in all the usual physical activities with friends and at school, children with JIA may have emotional and behavioural difficulties and problems at school. This can be made worse because of having to deal with pain and the amount of time taken away from school in order to attend hospital appointments and admissions. Therefore, children with JIA and their families often need a lot of support.

• #28 Real-World Health Care Outcomes and Costs Among Patients With Juvenile Idiopathic Arthritis in Spain | Published in Journal of Health Economics and Outcomes Research

  https://jheor.org/article/85088-real-world-health-care-outcomes-and-costs-among-patients-with-juvenile-idiopathic-arthritis-in-spain

  Juvenile idiopathic arthritis (JIA) is the most frequent chronic rheumatic disease in children. If inflammation is not adequately treated, joint damage, long-term disability, and active disease during adulthood can occur. Identifying and implementing early and adequate therapy are critical for improving clinical outcomes. The burden of JIA on affected children, their families, and the healthcare system in Spain has not been adequately assessed. The greatest contribution to direct costs is medication, but other expenses contribute to the consumption of resources, negatively impacting healthcare cost and the economic conditions of affected families. […] Early appropriate identification and application of therapy are critical for improving clinical outcomes. Treatments available for JIA include nonsteroidal anti-inflammatory agents, intra-articular corticosteroid injections, conventional synthetic disease-modifying anti-rheumatic drugs (csDMARDs) and biologic disease-modifying anti-rheumatic drugs (bDMARDs), including tumor necrosis factor inhibitors (anti-TNF), and other mechanisms of action.

• #29 Juvenile Idiopathic Arthritis Treatment & Management: Approach Considerations, History of Arthritis in 4 or Fewer Joints, History of Arthritis in 5 or More Joints

  https://emedicine.medscape.com/article/1007276-treatment

  Referral to a pediatric rheumatologist may be indicated when the diagnosis is unclear, when information on diagnostic evaluation and long-term management is needed, or because the family requires information from a subspecialist to cope with the patient’s disease process, to accept the treatment plan, to allay anxiety, and/or to receive education. In addition to a pediatric rheumatologist (when available), the subspecialty team may include a nurse, physical and occupational therapists, social worker, ophthalmologist, and orthopedic surgeon. A nurse may provide patient education through nursing care. […] A complete blood cell count and measurement of liver enzymes and serum creatinine should be part of routine follow-up in JIA patients. For JIA patients receiving NSAIDs on a long-term daily basis, these tests, plus urinalysis, should be done twice yearly; in patients taking these agents 3-4 days per week, testing should be repeated annually.

• #30

  https://myhealth.alberta.ca/Health/aftercareinformation/pages/conditions.aspx?hwid=uf8805

  If your doctor prescribes medicine, have your child take it exactly as prescribed. […] Try non-medicine ways to relieve pain. Examples include breathing and relaxation exercises. […] Make sure your child has regular eye exams. […] Call your doctor or nurse advice line now or seek immediate medical care if your child has new symptoms. […] Watch closely for changes in your child’s health, and be sure to contact your doctor or nurse advice line if your child has more trouble walking than usual.

• #31 Nursing Care Plan For Juvenile Idiopathic Arthritis – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-juvenile-idiopathic-arthritis/

  Key components of the care plan include medication management, pain control, physical and occupational therapy, educational support for the child and family, and regular monitoring of disease progression. […] The collaboration with a multidisciplinary healthcare team ensures that the child’s care is well-coordinated and individualized to address specific needs and variations in disease presentation. […] This nursing assessment serves as the foundation for developing an individualized care plan that addresses the specific needs of the child with Juvenile Idiopathic Arthritis. […] Regularly reassess the child’s joint status, pain levels, and overall well-being to detect changes or worsening of symptoms. […] The goals set within the care plan, including pain management, joint protection, and support for physical and psychosocial development, underscore the commitment to providing holistic and individualized care.

• #32 Juvenile Idiopathic Arthritis (JIA) | Arthritis Foundation

  https://www.arthritis.org/diseases/juvenile-idiopathic-arthritis

  Regular exercise helps ease joint stiffness and pain. […] Physical and occupational therapy can improve a childs quality of life by teaching them ways to stay active and how to perform daily tasks with ease. […] While there is no special JIA diet, studies show that some foods help to curb inflammation. […] When JIA is active, and joints feel painful, swollen or stiff, its important to balance light activity with rest. […] Heat treatments, such as heat pads or warm baths, work best for soothing stiff joints and tired muscles. […] These creams, gels or stick-on patches can ease the pain in a joint or muscle. […] There are different ways to relax and stop focusing on pain. […] Children and teens with JIA are more likely to get depressed because they are living with a chronic disease. […] Having a strong support system of friends and family can provide emotional support during tough times.

• #33 Guide | Physical Therapy Guide to Juvenile Idiopathic Arthritis | Choose PT

  https://www.choosept.com/guide/physical-therapy-guide-juvenile-idiopathic-arthritis

  Juvenile idiopathic arthritis, or JIA, is the most common type of arthritis in children and teenagers. It is an autoimmune disease that encompasses many different chronic conditions involving joint inflammation. JIA can cause joint pain, swelling, warmth, stiffness, and loss of motion. Physical therapy can be effective to help people with JIA manage their activity and exercise, which is key to reducing the symptoms of JIA, including pain and stiffness. Physical therapists also help people restore function and optimize joint health. […] A physical therapist is a crucial part of the health care team working to improve and manage JIA and allow the child to keep a healthy lifestyle. A physical therapist can provide guidance on activity to help relieve pain. They also will help your child safely return to age-appropriate play or sports participation. Your child’s physical therapist can provide pain-reducing activities and education on stretching. In addition, they will help your child strengthen muscles to protect joints, and work with them on how they walk, for improved control and endurance.

• #34 Guide | Physical Therapy Guide to Juvenile Idiopathic Arthritis | Choose PT

  https://www.choosept.com/guide/physical-therapy-guide-juvenile-idiopathic-arthritis

  Your physical therapist will perform a complete evaluation to assess your child’s condition. They also can assess any injuries or secondary complications and determine any factors that may contribute to the symptoms. […] Your physical therapy program may include: Patient and family education. Your physical therapist will provide education on JIA and recommendations for activity modification and progression. […] Strengthening is an important part of managing JIA and for recovery from any injuries. Your physical therapist may work with your child on activities such as using stairs, or getting on and off the floor. […] Your physical therapist may have access to a pool to provide aquatic therapy. The buoyancy of water can allow for pain-free movement to mobilize joints and help keep them from becoming stiff. […] Your physical therapist may use taping techniques to help reduce pain and promote balance.

• #35

  https://myhealth.alberta.ca/Health/aftercareinformation/pages/conditions.aspx?hwid=uf8805

  Juvenile idiopathic arthritis is a disease that happens to children. It causes swollen and stiff joints. […] Your child can take pills or get a shot in a joint to reduce pain and swelling. Physiotherapy can help keep your child’s joints flexible. […] Follow-up care is a key part of your child’s treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse advice line if your child is having problems. […] Help your child get the right mix of exercise and rest. Exercise helps keep joints strong and flexible. […] See a physiotherapist. He or she can help your child move stiff joints. […] Encourage your child to do his or her usual activities as much as possible. Your child may be able to do low-impact sports. […] Give your child anti-inflammatory medicines to reduce pain and swelling, if your doctor recommends them.

• #36 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Promote independence as much as possible. […] Lower limb feet, ankles, knees, hips affected by arthritis causing loss of function. […] Careful nursing assessment about impact of swollen/stiff painful joints school, home, play. […] Questioning to include; Is mobility affected? Are they more clumsy, prone to falling? Do they tire more easily? Need to be carried? Can the family cope with this adjustment? […] What are the home circumstances? Is the toilet upstairs? […] Can they wear comfortable footwear? Often a trainer style is more supportive and comfortable than a fashion shoe. […] Does their gait appear affected, do they normally walk to school, has there been a reduction in their normal activities? […] Swimming may help improve function and improve muscle strength.

• #37 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Promote independence as much as possible. […] Lower limb feet, ankles, knees, hips affected by arthritis causing loss of function. […] Careful nursing assessment about impact of swollen/stiff painful joints school, home, play. […] Questioning to include; Is mobility affected? Are they more clumsy, prone to falling? Do they tire more easily? Need to be carried? Can the family cope with this adjustment? […] What are the home circumstances? Is the toilet upstairs? […] Can they wear comfortable footwear? Often a trainer style is more supportive and comfortable than a fashion shoe. […] Does their gait appear affected, do they normally walk to school, has there been a reduction in their normal activities? […] Swimming may help improve function and improve muscle strength.

• #38 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Juvenile Idiopathic Arthritis (JIA) […] An admission to hospital may be required at diagnosis as part of initial assessment and treatment or if there is disease flare or suspected infection or as a complication of immunosuppression. […] Stiff swollen joints due to inflammation of the joint and potentially other surrounding structures. Establish which joints may be affected and whether any joints appear swollen. Enquiry about impact on daily life may indicate which joints are affected. […] Assess pattern of symptoms inflamed joints are often stiff in the mornings (early morning stiffness) or after periods of inactivity (called gelling). […] Warm bath in the morning can assist with improving joint movement. […] Assess activities of daily living to determine which aspects they may need assistance with.

• #39 4 Juvenile Rheumatoid Arthritis Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/juvenile-rheumatoid-arthritis-nursing-care-plans/

  Patients with Juvenile rheumatoid arthritis experience a self-care deficit due to their limited mobility and joint pain. The patients may have difficulty performing activities of daily living, such as hygiene, toileting, feeding, dressing, and grooming, and may require assistance from caregivers. Additionally, fatigue and pain can make it challenging for patients to maintain a regular exercise and self-care routine. […] Disturbed body image for patients with Juvenile rheumatoid arthritis is related to both biophysical and psychosocial factors. Biophysical factors include physical changes such as joint deformities and limitations in mobility, which can affect a patient’s self-image. Psychosocial factors include the impact of the condition on social interactions, relationships, and self-esteem, which can also contribute to a negative body image.

• #40 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Juvenile Idiopathic Arthritis (JIA) […] An admission to hospital may be required at diagnosis as part of initial assessment and treatment or if there is disease flare or suspected infection or as a complication of immunosuppression. […] Stiff swollen joints due to inflammation of the joint and potentially other surrounding structures. Establish which joints may be affected and whether any joints appear swollen. Enquiry about impact on daily life may indicate which joints are affected. […] Assess pattern of symptoms inflamed joints are often stiff in the mornings (early morning stiffness) or after periods of inactivity (called gelling). […] Warm bath in the morning can assist with improving joint movement. […] Assess activities of daily living to determine which aspects they may need assistance with.

• #41 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Physiotherapy programme or exercise, movement and or stretching may be required. […] Regular pain relief and anti-inflammatory medication (non-steroid anti-inflammatory drugs NSAIDS) may help relieve symptoms. […] Liaise with medical team to plan treatment. […] Upper limb hands, wrists, elbows, shoulders affected by arthritis causing loss of function. […] Enquiry about impact of swollen/stiff painful joints (school, home, play). […] May need assistance (dressing, cutting food, brushing teeth, fastening shoes). […] An electric or powered toothbrush may be helpful. […] Consider writing skills and impact upon education. […] Specialist team will advise regarding support required at school. […] Occupational therapist may be able to offer specific support and expertise.

• #42 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Physiotherapy programme or exercise, movement and or stretching may be required. […] Regular pain relief and anti-inflammatory medication (non-steroid anti-inflammatory drugs NSAIDS) may help relieve symptoms. […] Liaise with medical team to plan treatment. […] Upper limb hands, wrists, elbows, shoulders affected by arthritis causing loss of function. […] Enquiry about impact of swollen/stiff painful joints (school, home, play). […] May need assistance (dressing, cutting food, brushing teeth, fastening shoes). […] An electric or powered toothbrush may be helpful. […] Consider writing skills and impact upon education. […] Specialist team will advise regarding support required at school. […] Occupational therapist may be able to offer specific support and expertise.

• #43 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Promote independence as much as possible. […] Lower limb feet, ankles, knees, hips affected by arthritis causing loss of function. […] Careful nursing assessment about impact of swollen/stiff painful joints school, home, play. […] Questioning to include; Is mobility affected? Are they more clumsy, prone to falling? Do they tire more easily? Need to be carried? Can the family cope with this adjustment? […] What are the home circumstances? Is the toilet upstairs? […] Can they wear comfortable footwear? Often a trainer style is more supportive and comfortable than a fashion shoe. […] Does their gait appear affected, do they normally walk to school, has there been a reduction in their normal activities? […] Swimming may help improve function and improve muscle strength.

• #44 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Promote independence as much as possible. […] Lower limb feet, ankles, knees, hips affected by arthritis causing loss of function. […] Careful nursing assessment about impact of swollen/stiff painful joints school, home, play. […] Questioning to include; Is mobility affected? Are they more clumsy, prone to falling? Do they tire more easily? Need to be carried? Can the family cope with this adjustment? […] What are the home circumstances? Is the toilet upstairs? […] Can they wear comfortable footwear? Often a trainer style is more supportive and comfortable than a fashion shoe. […] Does their gait appear affected, do they normally walk to school, has there been a reduction in their normal activities? […] Swimming may help improve function and improve muscle strength.

• #45 Juvenile idiopathic arthritis – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/juvenile-idiopathic-arthritis/diagnosis-treatment/drc-20374088

  Family members can play critical roles in helping children cope with their condition. As a parent, you may want to try the following: Treat your child like other children in your family as much as possible. […] If your pediatrician or family doctor suspects that your child has juvenile idiopathic arthritis, he or she may refer you to a doctor who specializes in arthritis (rheumatologist) to confirm the diagnosis and explore treatment.

• #46 Juvenile Idiopathic Arthritis | Cedars-Sinai

  https://www.cedars-sinai.org/health-library/diseases-and-conditions—pediatrics/j/juvenile-rheumatoid-arthritis.html

  Juvenile idiopathic arthritis (JIA) is a form of arthritis in children. […] The goal of treatment is to reduce pain and stiffness and to help your child keep as normal a lifestyle as possible. […] Treatment may include medicines, such as: Nonsteroidal anti-inflammatory medicines (NSAIDs) to reduce pain and inflammation, Disease-modifying antirheumatic medicines (DMARDs), such as methotrexate, to ease inflammation and control JIA, Corticosteroid medicines to reduce inflammation and severe symptoms, Medicines called biologics that interfere with the body’s inflammatory response. […] Other treatments and lifestyle changes may include: Physical therapy to improve and maintain muscle and joint function, Occupational therapy to improve ability to do activities of daily living, Nutrition counseling, Regular eye exams to find early eye changes from inflammation, Regular exercise and weight control, Getting enough rest, Learning to use large joints instead of small joints to move or carry things. […] Help your child manage their symptoms by sticking to the treatment plan and keeping follow-up appointments.

• #47 Juvenile idiopathic arthritis – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/juvenile-idiopathic-arthritis/diagnosis-treatment/drc-20374088

  Treatment for juvenile idiopathic arthritis focuses on helping your child maintain a normal level of physical and social activity. To accomplish this, doctors may use a combination of strategies to relieve pain and swelling, maintain full movement and strength, and prevent complications. […] The medications used to help children with juvenile idiopathic arthritis are chosen to decrease pain, improve function and minimize potential joint damage. […] Your doctor may recommend that your child work with a physical therapist to help keep joints flexible and maintain range of motion and muscle tone. […] In very severe cases, surgery may be needed to improve joint function. […] Caregivers can help children learn self-care techniques that help limit the effects of juvenile idiopathic arthritis. Techniques include: Getting regular exercise. Exercise is important because it promotes both muscle strength and joint flexibility.

• #48 Juvenile Idiopathic Arthritis | Joint Inflammation in Children

  https://patient.info/bones-joints-muscles/rheumatoid-arthritis-leaflet/juvenile-idiopathic-arthritis

  Disease-modifying antirheumatic drugs (DMARDs) may be used to help reduce the effects of the disease. These medicines can be very effective but also need very close supervision by your specialist doctor. […] Biological medicines are another group of medicines used by specialists to help symptoms and reduce joint damage. These newer treatment options have improved outlook for people who don’t respond to the other treatments. […] Without treatment, juvenile idiopathic arthritis (JIA) can lead to problems with growth, weakness of bones (osteoporosis) and a delay of puberty. […] Because they are unable to participate in all the usual physical activities with friends and at school, children with JIA may have emotional and behavioural difficulties and problems at school. This can be made worse because of having to deal with pain and the amount of time taken away from school in order to attend hospital appointments and admissions. Therefore, children with JIA and their families often need a lot of support.

• #49 4 Juvenile Rheumatoid Arthritis Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/juvenile-rheumatoid-arthritis-nursing-care-plans/

  Patients with Juvenile rheumatoid arthritis experience a self-care deficit due to their limited mobility and joint pain. The patients may have difficulty performing activities of daily living, such as hygiene, toileting, feeding, dressing, and grooming, and may require assistance from caregivers. Additionally, fatigue and pain can make it challenging for patients to maintain a regular exercise and self-care routine. […] Disturbed body image for patients with Juvenile rheumatoid arthritis is related to both biophysical and psychosocial factors. Biophysical factors include physical changes such as joint deformities and limitations in mobility, which can affect a patient’s self-image. Psychosocial factors include the impact of the condition on social interactions, relationships, and self-esteem, which can also contribute to a negative body image.

• #50 4 Juvenile Rheumatoid Arthritis Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/juvenile-rheumatoid-arthritis-nursing-care-plans/

  – The child will achieve a manageable level of pain. […] – The child will demonstrate improved joint mobility, reduced stiffness, and increased ability to perform self-care tasks, such as dressing, and grooming. […] – The child and the family will actively participate in the pain management plan. […] – The child will perform self-care within the limits of illness. […] – The child will express feelings about illness. […] – The child will identify at least 1 positive thing about his or her body. […] – The family will express feelings about the child’s chronic illness. […] – The family will identify 3 positive coping mechanisms to implement. […] Patients with Juvenile rheumatoid arthritis experience chronic pain due to joint inflammation causing joint damage and stiffness. The body’s immune system attacks healthy joint tissues, which can result in pain and swelling, and often leads to long-term joint damage and disability.

• #51

  https://www.termedia.pl/Selected-health-problems-of-a-child-with-juvenile-r-nidiopathic-arthritis-nursing-care-based-on-scientific-r-nevidence,134,55153,1,1.html

  Making children aware of the nature of individual symptoms and the risk of undesirable behaviours, especially in adolescents with JIA, provides an opportunity for early detection of abnormalities and immediate implementation of corrective measures, whether in terms of pharmacotherapy, diet, rehabilitation and surgery, or psychological support. […] Chronic disease is a stressful factor for both the child suffering from it and his or her loved ones. […] Addressing the complexity of health problems and developing models of care for patients with JIA will improve the effectiveness of therapy and the quality of nursing care, reducing the risk of complications and disability for patients, thereby reducing the social costs of treatment.

• #52 4 Juvenile Rheumatoid Arthritis Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/juvenile-rheumatoid-arthritis-nursing-care-plans/

  Patients with Juvenile rheumatoid arthritis may experience compromised family coping due to the impact of the condition on family dynamics and relationships. The need for increased care and support for the patient can create additional stress on family members, and the unpredictability of the condition can cause anxiety and uncertainty. Additionally, the financial burden of medical treatments and medications can add to the family’s stress and may impact the patient’s family’s ability to cope.

• #53 Juvenile Rheumatoid Arthritis: Symptoms, Treatment, Diagnosis & Causes

  https://www.emedicinehealth.com/juvenile_rheumatoid_arthritis/article_em.htm

  Living with the effects of JIA can be difficult. Both you and your child will sometimes feel frustrated, perhaps even angry or resentful. Sometimes it helps to have someone to talk to. A counselor or psychologist can help the child and family members deal with these negative feelings and develop positive, helpful attitudes.

• #54 How to support kids with juvenile arthritis | NIH MedlinePlus Magazine

  https://magazine.medlineplus.gov/article/how-to-support-kids-with-juvenile-arthritis

  Find a good balance with rest and exercise for your child. Sometimes they may need more rest or more activity. Generally, short rest breaks are better than long periods in bed. […] It’s important that your child has a balanced diet full of whole grains, lean protein, fruits, and vegetables. Children also need a good night’s sleep, which can range from nine to 13 hours depending on their age. […] Keep a positive mindset and help your child understand that they are supported. Help answer any questions they have about JIA, and if you can’t answer them, check with a health care provider. […] The symptoms of juvenile arthritis may last a few months or years, or throughout a child’s life.

• #55

  https://www.termedia.pl/Selected-health-problems-of-a-child-with-juvenile-r-nidiopathic-arthritis-nursing-care-based-on-scientific-r-nevidence,134,55153,1,1.html

  The nursing staff have a greater opportunity to observe the child during natural daily activities. […] The care of JIA patients should take into account the risk of developing anxiety and depressive disorders in this group, determined not only by the consequences of the disease and treatment, but also generated by the difficulties of adolescence. […] Educational activities aimed both at the child as a subject of care, with adaptation to their age and perceptual capabilities, and at their family. […] The nursing teams activities also include ensuring continuity in the deformity treatment through the use of bedside rehabilitation under the guidance of a physiotherapist and encouraging/reminding the patient to perform daily exercise prescribed by the physiotherapist, assessment of pain prior to planned physiotherapy including appropriate pharmacotherapy, and checking rehabilitation equipment for safety.

• #56 Nursing Care Plan For Juvenile Idiopathic Arthritis – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-juvenile-idiopathic-arthritis/

  Key components of the care plan include medication management, pain control, physical and occupational therapy, educational support for the child and family, and regular monitoring of disease progression. […] The collaboration with a multidisciplinary healthcare team ensures that the child’s care is well-coordinated and individualized to address specific needs and variations in disease presentation. […] This nursing assessment serves as the foundation for developing an individualized care plan that addresses the specific needs of the child with Juvenile Idiopathic Arthritis. […] Regularly reassess the child’s joint status, pain levels, and overall well-being to detect changes or worsening of symptoms. […] The goals set within the care plan, including pain management, joint protection, and support for physical and psychosocial development, underscore the commitment to providing holistic and individualized care.

• #57 JIA self-care plan – Musculoskeletal Health Australia (MHA)

  https://muscha.org/jia-self-care-plan

  When your child is diagnosed with juvenile idiopathic arthritis (JIA) it can be a frightening time. Our JIA Self-care Plan is an essential tool that is designed to support you and your child as you navigate your childs musculoskeletal health journey. […] Self-care plans are about supporting you to be an active participant and driver of your childs musculoskeletal health. Understanding their condition, making sure you are aware of treatment options and being a central part of their health care team means you can make choices and decisions that will help benefit your child. […] Our JIA self-care plan is designed to be used by YOU and YOUR CHILD for your unique circumstances. […] This self-care plan helps you to work through all that information in a way that suits you. It is easy to understand, practical and most importantly puts YOU both in control as you navigate your childs journey with JIA. […] Knowledge is POWER! Improving your health literacy, understanding JIA, and being aware of treatment and management options is essential. […] Musculoskeletal Health Australias JIA self-care plan is an essential tool to support you both to navigate that journey.

• #58 JIA self-care plan – Musculoskeletal Health Australia (MHA)

  https://muscha.org/jia-self-care-plan

  When your child is diagnosed with juvenile idiopathic arthritis (JIA) it can be a frightening time. Our JIA Self-care Plan is an essential tool that is designed to support you and your child as you navigate your childs musculoskeletal health journey. […] Self-care plans are about supporting you to be an active participant and driver of your childs musculoskeletal health. Understanding their condition, making sure you are aware of treatment options and being a central part of their health care team means you can make choices and decisions that will help benefit your child. […] Our JIA self-care plan is designed to be used by YOU and YOUR CHILD for your unique circumstances. […] This self-care plan helps you to work through all that information in a way that suits you. It is easy to understand, practical and most importantly puts YOU both in control as you navigate your childs journey with JIA. […] Knowledge is POWER! Improving your health literacy, understanding JIA, and being aware of treatment and management options is essential. […] Musculoskeletal Health Australias JIA self-care plan is an essential tool to support you both to navigate that journey.

• #59 How to support kids with juvenile arthritis | NIH MedlinePlus Magazine

  https://magazine.medlineplus.gov/article/how-to-support-kids-with-juvenile-arthritis

  Juvenile idiopathic arthritis (JIA) can be difficult for children to live with. That’s why it is important for parents and guardians to learn about JIA and how to help. […] Learn about the condition and treatment, and find a health care provider who specializes in treating JIA. Usually, that is a pediatric rheumatologist. Physical therapists can help with pain management. […] Have cold packs and heat treatments, like a heating pad, at the ready for joint pain and stiff muscles. Sometimes your child may need a splint (a piece of hard material, usually wrapped in fabric) to help reduce pain and swelling. Make sure to talk to your child’s health care provider before using a splint. […] Work with your child’s school and school health care provider to educate them on your child’s needs and how to best support them if they are experiencing pain.

• #60 School Nurse Education for Juvenile Idiopathic Arthritis – ACR Meeting Abstracts

  https://acrabstracts.org/abstract/school-nurse-education-for-juvenile-idiopathic-arthritis/

  School Nurse Education for Juvenile Idiopathic Arthritis […] There is a paucity of literature on the challenges children with JIA face at school. […] Training of school nurses on other chronic diseases has led to increased knowledge and management skills as well as improvement in childrens QoL and school experience. […] Due to the lack of data on school nurses awareness about the care of children with JIA, we aimed to improve their knowledge. […] After the presentation, nurses felt significantly more prepared to care for a child with JIA at a level that was comparable to DM knowledge. […] This study highlights school nurses knowledge gap regarding JIA in school-age children. […] We demonstrated the effectiveness of a single educational session to increase knowledge of JIA and influence future care of children with JIA in school. […] Efforts to improve the QoL of patients with JIA should involve interdisciplinary front-line team members (e.g., medical, mental health, and school personnel).

• #61 JIA Nursing Care Notes | Nurse – PMM

  https://www.pmmonline.org/nurse/management/nursing-care-general-notes/jia-nursing-care-notes/

  Physiotherapy programme or exercise, movement and or stretching may be required. […] Regular pain relief and anti-inflammatory medication (non-steroid anti-inflammatory drugs NSAIDS) may help relieve symptoms. […] Liaise with medical team to plan treatment. […] Upper limb hands, wrists, elbows, shoulders affected by arthritis causing loss of function. […] Enquiry about impact of swollen/stiff painful joints (school, home, play). […] May need assistance (dressing, cutting food, brushing teeth, fastening shoes). […] An electric or powered toothbrush may be helpful. […] Consider writing skills and impact upon education. […] Specialist team will advise regarding support required at school. […] Occupational therapist may be able to offer specific support and expertise.

• #62 Juvenile idiopathic arthritis – Symptoms and causes – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/juvenile-idiopathic-arthritis/symptoms-causes/syc-20374082

  Juvenile idiopathic arthritis can cause persistent joint pain, swelling and stiffness. […] Treatment focuses on controlling pain and inflammation, improving function, and preventing damage. […] Take your child to the doctor if he or she has joint pain, swelling or stiffness for more than a week especially if he or she also has a fever. […] Several serious complications can result from juvenile idiopathic arthritis. But keeping a careful watch on your child’s condition and seeking appropriate medical attention can greatly reduce the risk of these complications: […] Eye inflammation frequently occurs without symptoms, so it’s important for children with this condition to be examined regularly by an ophthalmologist. […] Juvenile idiopathic arthritis can interfere with your child’s growth and bone development. Some medications used for treatment, mainly corticosteroids, also can inhibit growth.

• #63

  https://myhealth.alberta.ca/Health/aftercareinformation/pages/conditions.aspx?hwid=uf8805

  Juvenile idiopathic arthritis is a disease that happens to children. It causes swollen and stiff joints. […] Your child can take pills or get a shot in a joint to reduce pain and swelling. Physiotherapy can help keep your child’s joints flexible. […] Follow-up care is a key part of your child’s treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse advice line if your child is having problems. […] Help your child get the right mix of exercise and rest. Exercise helps keep joints strong and flexible. […] See a physiotherapist. He or she can help your child move stiff joints. […] Encourage your child to do his or her usual activities as much as possible. Your child may be able to do low-impact sports. […] Give your child anti-inflammatory medicines to reduce pain and swelling, if your doctor recommends them.

• #64 Treatment for Juvenile Idiopathic Arthritis | Stanford Health Care

  https://stanfordhealthcare.org/medical-conditions/bones-joints-and-muscles/juvenile-idiopathic-arthritis/treatments.html

  A pain management plan. This can help you and your child control pain caused by JIA. The plan may include heat, cold, or water therapy. Some people try complementary medicine, such as massage, guided imagery, and acupuncture. […] You and your child will be able to use many of the above treatment options at home. Home treatment can also include healthy eating, dealing with stiffness, and using assistive devices. […] Even when JIA is uncomplicated, an affected child may need years of medical treatment or checkups. To make sure that your child’s care is right for the stage of disease, work closely with the medical team. Learn as much as you can about your child’s disease and treatments. And stay on schedule with medicine and exercise. […] So part of your child’s treatment plan should be regular checkups with an ophthalmologist.

• #65 Juvenile Rheumatoid Arthritis Nursing Care Planning and Management

  https://nurseslabs.com/juvenile-rheumatoid-arthritis/

  Juvenile Rheumatoid Arthritis (JRA), also known as Juvenile Idiopathic Arthritis (JIA), is a chronic autoimmune disorder that affects children and adolescents, making it a significant concern for nurses. This condition involves inflammation of the joints, leading to pain, swelling, and stiffness, which can impair a child’s mobility and overall quality of life. […] The treatment and nursing management goal for juvenile rheumatoid arthritis is to maintain mobility and preserve joint function. […] The nurse should focus on the following nursing care planning goals for the child with juvenile rheumatoid arthritis: Report pain is relieved/controlled. […] The nursing intervention appropriate for a child with JRA are: Physical therapy. […] Goals are met as evidenced by: Reported pain is relieved/controlled. […] Documentation in a child with JRA include: Temperature and other assessment findings, including vital signs.

• #66

  https://myhealth.alberta.ca/Health/aftercareinformation/pages/conditions.aspx?hwid=uf8805

  If your doctor prescribes medicine, have your child take it exactly as prescribed. […] Try non-medicine ways to relieve pain. Examples include breathing and relaxation exercises. […] Make sure your child has regular eye exams. […] Call your doctor or nurse advice line now or seek immediate medical care if your child has new symptoms. […] Watch closely for changes in your child’s health, and be sure to contact your doctor or nurse advice line if your child has more trouble walking than usual.

• #67 Juvenile idiopathic arthritis – Symptoms and causes – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/juvenile-idiopathic-arthritis/symptoms-causes/syc-20374082

  Juvenile idiopathic arthritis can cause persistent joint pain, swelling and stiffness. […] Treatment focuses on controlling pain and inflammation, improving function, and preventing damage. […] Take your child to the doctor if he or she has joint pain, swelling or stiffness for more than a week especially if he or she also has a fever. […] Several serious complications can result from juvenile idiopathic arthritis. But keeping a careful watch on your child’s condition and seeking appropriate medical attention can greatly reduce the risk of these complications: […] Eye inflammation frequently occurs without symptoms, so it’s important for children with this condition to be examined regularly by an ophthalmologist. […] Juvenile idiopathic arthritis can interfere with your child’s growth and bone development. Some medications used for treatment, mainly corticosteroids, also can inhibit growth.

• #68 Juvenile Idiopathic Arthritis | Joint Inflammation in Children

  https://patient.info/bones-joints-muscles/rheumatoid-arthritis-leaflet/juvenile-idiopathic-arthritis

  Disease-modifying antirheumatic drugs (DMARDs) may be used to help reduce the effects of the disease. These medicines can be very effective but also need very close supervision by your specialist doctor. […] Biological medicines are another group of medicines used by specialists to help symptoms and reduce joint damage. These newer treatment options have improved outlook for people who don’t respond to the other treatments. […] Without treatment, juvenile idiopathic arthritis (JIA) can lead to problems with growth, weakness of bones (osteoporosis) and a delay of puberty. […] Because they are unable to participate in all the usual physical activities with friends and at school, children with JIA may have emotional and behavioural difficulties and problems at school. This can be made worse because of having to deal with pain and the amount of time taken away from school in order to attend hospital appointments and admissions. Therefore, children with JIA and their families often need a lot of support.

• #69 Assessment and management of pain in juvenile idiopathic arthritis

  https://pmc.ncbi.nlm.nih.gov/articles/PMC3659013/

  To provide the best possible care for children and adolescents with JIA, timely and thorough pain assessment is crucial. Proper pain assessment in children and adolescents with arthritis has historically been hindered by a lack of valid and reliable tools, which is suspected to have led to a general underestimation and resultant undertreatment of pain in these individuals. […] Management includes early and aggressive treatment of the underlying joint inflammation, combined with pharmacological and nonpharmacological approaches to target pain and enhance pain coping and physical function. […] There are currently no established guidelines for the management of acute and persistent pain in JIA; however, pain control has recently been identified as a quality measure in the care of children with JIA.

• #70 Juvenile Rheumatoid Arthritis: Symptoms, Treatment, Diagnosis & Causes

  https://www.emedicinehealth.com/juvenile_rheumatoid_arthritis/article_em.htm

  Juvenile idiopathic arthritis (JIA) is a group of chronic inflammatory joint diseases that initially affect children before age 16. […] The main goal of treatment in children with juvenile idiopathic arthritis is to help them live as normal a life as possible. To be successful, this treatment must address all aspects of the disease, including medical problems and complications, physical functioning, school performance, and social and emotional adjustment. […] Care requires the coordinated efforts of a team of professionals. […] Medical treatment is only one aspect of management. The team also may include physical and occupational therapists and a psychologist or counselor. A social worker can help the family cope with the social, financial, and emotional aspects of the disease. […] Although medication is the cornerstone of treatment of JIA, medication alone is unlikely to be optimally successful if the child is not also receiving appropriate physical therapy, emotional counseling, and school assistance.

• #71

  https://link.springer.com/article/10.1007/s40744-016-0040-4

  Juvenile idiopathic arthritis (JIA) is a heterogeneous group of conditions which encompasses all forms of arthritis of unknown etiology lasting for at least 6 weeks and with onset before the age of 16 years. […] The optimal approach to the management of a child with JIA is based on a multidisciplinary team comprising a pediatric rheumatologist, ophthalmologist, orthopedic surgeon, specialist nurse, physical therapist, occupational therapist, and psychologist. […] Non-pharmacological and pharmacological interventions may aid in the management of JIA patients. […] Physiotherapy and occupational therapy, with the aim to keep or restore joint function and alignment as much as possible and to achieve a normal pattern of mobility, are important components of the therapeutic approach to any patients with JIA.

• #72 Arthritis – juvenile | Better Health Channel

  https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/arthritis-juvenile

  Juvenile idiopathic arthritis (JIA) is a group of inflammatory joint conditions that affect children and teens under the age of 16. […] Working closely with your healthcare team will lead to the best outcomes for your child. […] There’s no cure for JIA, but treatment can help manage symptoms. Working closely with your healthcare team will lead to the best outcomes for your child. Doctors, nurses, physiotherapists, occupational therapists, dietitians, podiatrists, psychologists and social workers may all be a part of your child’s healthcare team. […] As there are different types of JIA, and the effects of each are different, treatment needs to be tailored to each child. […] Most children with JIA regardless of the type will have to take some form of medication at some time. It depends on the symptoms theyre experiencing. There are many different types of medication that work in different ways.

• #73 Juvenile Idiopathic Arthritis Treatment & Management: Approach Considerations, History of Arthritis in 4 or Fewer Joints, History of Arthritis in 5 or More Joints

  https://emedicine.medscape.com/article/1007276-treatment

  Referral to a pediatric rheumatologist may be indicated when the diagnosis is unclear, when information on diagnostic evaluation and long-term management is needed, or because the family requires information from a subspecialist to cope with the patient’s disease process, to accept the treatment plan, to allay anxiety, and/or to receive education. In addition to a pediatric rheumatologist (when available), the subspecialty team may include a nurse, physical and occupational therapists, social worker, ophthalmologist, and orthopedic surgeon. A nurse may provide patient education through nursing care. […] A complete blood cell count and measurement of liver enzymes and serum creatinine should be part of routine follow-up in JIA patients. For JIA patients receiving NSAIDs on a long-term daily basis, these tests, plus urinalysis, should be done twice yearly; in patients taking these agents 3-4 days per week, testing should be repeated annually.

• #74 Nursing Care Plan For Juvenile Idiopathic Arthritis – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-juvenile-idiopathic-arthritis/

  The collaboration with physical therapists, occupational therapists, and other specialists ensures that the child receives a well-coordinated and comprehensive approach to care. […] In implementing this care plan, nurses play a central role as advocates, educators, and compassionate caregivers. […] By addressing not only the physical symptoms but also the emotional and psychosocial aspects of JIA, nurses contribute significantly to enhancing the overall quality of life for children facing this chronic condition.

• #75

  https://www.termedia.pl/Selected-health-problems-of-a-child-with-juvenile-r-nidiopathic-arthritis-nursing-care-based-on-scientific-r-nevidence,134,55153,1,1.html

  The nursing staff have a greater opportunity to observe the child during natural daily activities. […] The care of JIA patients should take into account the risk of developing anxiety and depressive disorders in this group, determined not only by the consequences of the disease and treatment, but also generated by the difficulties of adolescence. […] Educational activities aimed both at the child as a subject of care, with adaptation to their age and perceptual capabilities, and at their family. […] The nursing teams activities also include ensuring continuity in the deformity treatment through the use of bedside rehabilitation under the guidance of a physiotherapist and encouraging/reminding the patient to perform daily exercise prescribed by the physiotherapist, assessment of pain prior to planned physiotherapy including appropriate pharmacotherapy, and checking rehabilitation equipment for safety.

• #76 Juvenile Idiopathic Arthritis (JIA) | Nurse – PMM

  https://www.pmmonline.org/nurse/arthritis-conditions/juvenile-idiopathic-arthritis-jia/

  Nurses, Health Visitors, School Health Advisors and Practice Nurses are often the first contact a child has with health services and are therefore in a prime position to identify early signs and symptoms suggesting arthritis. Early identification of arthritis and access to treatment is key to preventing joint damage and other complications that can occur. […] Juvenile Idiopathic Arthritis (JIA) is the umbrella term to describe various subtypes of arthritis. Each subtype differs in terms of clinical features. JIA is defined as arthritis in one or more joints lasting for more than 6 weeks and starts under the age of 16 years. […] Untreated, inflammatory arthritis in growing children can interfere with bone growth around the affected joint. For example a child with knee arthritis may have leg length inequality – this occurs due to increased blood flow causing stimulation of bone growth and increase in length. This may result initially in accelerated growth (causing a longer limb) and then early fusion of the growing parts of the bone (causing ultimately a shortened limb). Similarly abnormal growth of fingers, toes, and the jaw can occur with impact on joint movement and function; use of fingers, problems with walking or getting shoes to fit comfortably or problems with eating and chewing.

• #77

  https://www.nhs.uk/conditions/arthritis/

  Most types of childhood arthritis are known as juvenile idiopathic arthritis (JIA). […] JIA causes pain and inflammation in 1 or more joints for at least 6 weeks. […] Oligo-articular JIA is the most common type of JIA. […] Oligo-articular JIA often goes away without causing long-term joint damage. […] Polyarticular JIA, or polyarthritis, is the second most common type of JIA and affects 5 or more joints. […] The symptoms of polyarticular JIA are similar to the symptoms of adult rheumatoid arthritis. […] Systemic onset JIA begins with symptoms such as a fever, rash, a lack of energy and enlarged glands. […] Enthesitis-related arthritis is a type of juvenile arthritis that often affects the joints of the leg and spine, causing inflammation where the tendons attach to the bone.

• #78

  https://link.springer.com/article/10.1007/s40744-016-0040-4

  Intra-articular corticosteroid (IAC) injections are widely used in the management of children with JIA, particularly in those with oligoarthritis, to induce rapid relief of inflammatory symptoms and for functional improvement as well as to obviate the need for regular systemic therapy. […] The administration of systemic corticosteroids is mainly restricted to the management of the extra-articular manifestations of systemic arthritis. […] Methotrexate (MTX) remains the most widely used conventional DMARD in the management of JIA because of its effectiveness at achieving disease control and acceptable toxic effects. […] The care of JIA patients cannot be possible without appropriate and validated outcome measures, for which further work is required.

• #79

  https://www.nhs.uk/conditions/arthritis/

  Most types of childhood arthritis are known as juvenile idiopathic arthritis (JIA). […] JIA causes pain and inflammation in 1 or more joints for at least 6 weeks. […] Oligo-articular JIA is the most common type of JIA. […] Oligo-articular JIA often goes away without causing long-term joint damage. […] Polyarticular JIA, or polyarthritis, is the second most common type of JIA and affects 5 or more joints. […] The symptoms of polyarticular JIA are similar to the symptoms of adult rheumatoid arthritis. […] Systemic onset JIA begins with symptoms such as a fever, rash, a lack of energy and enlarged glands. […] Enthesitis-related arthritis is a type of juvenile arthritis that often affects the joints of the leg and spine, causing inflammation where the tendons attach to the bone.

• #80

  https://www.nhs.uk/conditions/arthritis/

  Most types of childhood arthritis are known as juvenile idiopathic arthritis (JIA). […] JIA causes pain and inflammation in 1 or more joints for at least 6 weeks. […] Oligo-articular JIA is the most common type of JIA. […] Oligo-articular JIA often goes away without causing long-term joint damage. […] Polyarticular JIA, or polyarthritis, is the second most common type of JIA and affects 5 or more joints. […] The symptoms of polyarticular JIA are similar to the symptoms of adult rheumatoid arthritis. […] Systemic onset JIA begins with symptoms such as a fever, rash, a lack of energy and enlarged glands. […] Enthesitis-related arthritis is a type of juvenile arthritis that often affects the joints of the leg and spine, causing inflammation where the tendons attach to the bone.

• #81 Juvenile Idiopathic Arthritis | Rady Children’s Hospital

  https://www.rchsd.org/health-article/juvenile-idiopathic-arthritis/

  Juvenile idiopathic arthritis (JIA) is a group of disorders that cause arthritis (stiff, swollen, painful joints) in children. Some types are also called juvenile rheumatoid arthritis (JRA). […] Treatments can help with symptoms so children with JIA can live a full and active life. The symptoms can go away for a time (called remission). In some kids, the condition goes away permanently. […] Systemic JIA is treated by a care team that includes: a rheumatologist (for problems with joints and connective tissue), a primary care doctor (such as a pediatrician or family medicine doctor), a physical therapist. […] Treatment goals are to ease pain and inflammation, improve strength and flexibility, and prevent joint damage. Treatment usually includes medicines to ease inflammation and physical therapy.

• #82

  https://link.springer.com/article/10.1007/s40744-016-0040-4

  Intra-articular corticosteroid (IAC) injections are widely used in the management of children with JIA, particularly in those with oligoarthritis, to induce rapid relief of inflammatory symptoms and for functional improvement as well as to obviate the need for regular systemic therapy. […] The administration of systemic corticosteroids is mainly restricted to the management of the extra-articular manifestations of systemic arthritis. […] Methotrexate (MTX) remains the most widely used conventional DMARD in the management of JIA because of its effectiveness at achieving disease control and acceptable toxic effects. […] The care of JIA patients cannot be possible without appropriate and validated outcome measures, for which further work is required.

• #83 Juvenile Idiopathic Arthritis | Rady Children’s Hospital

  https://www.rchsd.org/health-article/juvenile-idiopathic-arthritis/

  Juvenile idiopathic arthritis (JIA) is a group of disorders that cause arthritis (stiff, swollen, painful joints) in children. Some types are also called juvenile rheumatoid arthritis (JRA). […] Treatments can help with symptoms so children with JIA can live a full and active life. The symptoms can go away for a time (called remission). In some kids, the condition goes away permanently. […] Systemic JIA is treated by a care team that includes: a rheumatologist (for problems with joints and connective tissue), a primary care doctor (such as a pediatrician or family medicine doctor), a physical therapist. […] Treatment goals are to ease pain and inflammation, improve strength and flexibility, and prevent joint damage. Treatment usually includes medicines to ease inflammation and physical therapy.

• #84 School Nurse Education for Juvenile Idiopathic Arthritis – ACR Meeting Abstracts

  https://acrabstracts.org/abstract/school-nurse-education-for-juvenile-idiopathic-arthritis/

  School Nurse Education for Juvenile Idiopathic Arthritis […] There is a paucity of literature on the challenges children with JIA face at school. […] Training of school nurses on other chronic diseases has led to increased knowledge and management skills as well as improvement in childrens QoL and school experience. […] Due to the lack of data on school nurses awareness about the care of children with JIA, we aimed to improve their knowledge. […] After the presentation, nurses felt significantly more prepared to care for a child with JIA at a level that was comparable to DM knowledge. […] This study highlights school nurses knowledge gap regarding JIA in school-age children. […] We demonstrated the effectiveness of a single educational session to increase knowledge of JIA and influence future care of children with JIA in school. […] Efforts to improve the QoL of patients with JIA should involve interdisciplinary front-line team members (e.g., medical, mental health, and school personnel).

• #85 School Nurse Education for Juvenile Idiopathic Arthritis – ACR Meeting Abstracts

  https://acrabstracts.org/abstract/school-nurse-education-for-juvenile-idiopathic-arthritis/

  School Nurse Education for Juvenile Idiopathic Arthritis […] There is a paucity of literature on the challenges children with JIA face at school. […] Training of school nurses on other chronic diseases has led to increased knowledge and management skills as well as improvement in childrens QoL and school experience. […] Due to the lack of data on school nurses awareness about the care of children with JIA, we aimed to improve their knowledge. […] After the presentation, nurses felt significantly more prepared to care for a child with JIA at a level that was comparable to DM knowledge. […] This study highlights school nurses knowledge gap regarding JIA in school-age children. […] We demonstrated the effectiveness of a single educational session to increase knowledge of JIA and influence future care of children with JIA in school. […] Efforts to improve the QoL of patients with JIA should involve interdisciplinary front-line team members (e.g., medical, mental health, and school personnel).

• #86 How to support kids with juvenile arthritis | NIH MedlinePlus Magazine

  https://magazine.medlineplus.gov/article/how-to-support-kids-with-juvenile-arthritis

  Juvenile idiopathic arthritis (JIA) can be difficult for children to live with. That’s why it is important for parents and guardians to learn about JIA and how to help. […] Learn about the condition and treatment, and find a health care provider who specializes in treating JIA. Usually, that is a pediatric rheumatologist. Physical therapists can help with pain management. […] Have cold packs and heat treatments, like a heating pad, at the ready for joint pain and stiff muscles. Sometimes your child may need a splint (a piece of hard material, usually wrapped in fabric) to help reduce pain and swelling. Make sure to talk to your child’s health care provider before using a splint. […] Work with your child’s school and school health care provider to educate them on your child’s needs and how to best support them if they are experiencing pain.

• #87 Juvenile Idiopathic Arthritis

  https://phoenixchildrens.staywellsolutionsonline.com/Search/90,P01722

  Juvenile idiopathic arthritis (JIA) is a form of arthritis in children. […] The goal of treatment is to reduce pain and stiffness and to help your child keep as normal a lifestyle as possible. […] Treatment may include medicines, such as: Nonsteroidal anti-inflammatory medicines (NSAIDs) to reduce pain and inflammation. […] Other treatments and lifestyle changes may include: Physical therapy to improve and maintain muscle and joint function. […] Help your child manage their symptoms by sticking to the treatment plan and keeping follow-up appointments. […] Encourage exercise and physical therapy and find ways to make it fun. […] Work with your child’s school to make sure your child has help as needed.

• #88 Treatment for Juvenile Idiopathic Arthritis | Stanford Health Care

  https://stanfordhealthcare.org/medical-conditions/bones-joints-and-muscles/juvenile-idiopathic-arthritis/treatments.html

  A pain management plan. This can help you and your child control pain caused by JIA. The plan may include heat, cold, or water therapy. Some people try complementary medicine, such as massage, guided imagery, and acupuncture. […] You and your child will be able to use many of the above treatment options at home. Home treatment can also include healthy eating, dealing with stiffness, and using assistive devices. […] Even when JIA is uncomplicated, an affected child may need years of medical treatment or checkups. To make sure that your child’s care is right for the stage of disease, work closely with the medical team. Learn as much as you can about your child’s disease and treatments. And stay on schedule with medicine and exercise. […] So part of your child’s treatment plan should be regular checkups with an ophthalmologist.

• #89 Real-World Health Care Outcomes and Costs Among Patients With Juvenile Idiopathic Arthritis in Spain | Published in Journal of Health Economics and Outcomes Research

  https://jheor.org/article/85088-real-world-health-care-outcomes-and-costs-among-patients-with-juvenile-idiopathic-arthritis-in-spain

  As a chronic condition, JIA places a significant burden on affected children and their families and on the healthcare system. The largest contribution to direct costs is medication, mainly biologic therapies, which may cost 10 times more than conventional therapies. […] A child’s chronic illness is not limited to the child alone, as it affects all members of the family. Families with children affected by JIA can experience many difficulties, mainly related to the emotional and economic impact of the disease. […] General health care of children in Spain is most frequently provided by pediatricians, although from 14 to 18 years, follow-up is done by either family physicians or pediatricians, depending on organizational assistance, presence of chronic disease, or patient or parental preference.

• #90 Real-World Health Care Outcomes and Costs Among Patients With Juvenile Idiopathic Arthritis in Spain | Published in Journal of Health Economics and Outcomes Research

  https://jheor.org/article/85088-real-world-health-care-outcomes-and-costs-among-patients-with-juvenile-idiopathic-arthritis-in-spain

  As a chronic condition, JIA places a significant burden on affected children and their families and on the healthcare system. The largest contribution to direct costs is medication, mainly biologic therapies, which may cost 10 times more than conventional therapies. […] A child’s chronic illness is not limited to the child alone, as it affects all members of the family. Families with children affected by JIA can experience many difficulties, mainly related to the emotional and economic impact of the disease. […] General health care of children in Spain is most frequently provided by pediatricians, although from 14 to 18 years, follow-up is done by either family physicians or pediatricians, depending on organizational assistance, presence of chronic disease, or patient or parental preference.

• #91 Real-World Health Care Outcomes and Costs Among Patients With Juvenile Idiopathic Arthritis in Spain | Published in Journal of Health Economics and Outcomes Research

  https://jheor.org/article/85088-real-world-health-care-outcomes-and-costs-among-patients-with-juvenile-idiopathic-arthritis-in-spain

  Although cost studies have been carried out in other European countries, information on health costs related to JIA is scarce in Spain. Medication and healthcare costs in childhood are covered by Spain’s national health system, but other burdens associated with the disease directly impact the family of the child with JIA, such as loss of productivity, family care, or trips to the hospital. […] The present study is the first to provide descriptive data on the cost and pattern of use of healthcare and non-healthcare resources in a cohort of children with moderate to severe JIA in Spain in daily clinical practice. Overall, children had been receiving long-term biologic treatment and presented sustained inactive/low disease activity and very low functional disability. […] JIA generates important charges to the Spanish healthcare system and patients’ families. Compared with previous studies, our results show lower annual healthcare costs. Several reasons could explain this finding: centers are reference centers with high expertise in patient management, early diagnosis and treatment, close patient follow-up, and the usage of long-term biologic treatments. All these factors make it possible to achieve and maintain inactive/low disease activity and a very low functional disability and, as consequence, a reduced healthcare cost. Public costs are partially due to the high cost of biologic drugs, which have also proved to be an effective long-term treatment to maintain inactive or low disease activity, a very low functional disability, and a good quality of life.

• #92 Juvenile Rheumatoid Arthritis: Symptoms, Treatment, Diagnosis & Causes

  https://www.emedicinehealth.com/juvenile_rheumatoid_arthritis/article_em.htm

  Juvenile idiopathic arthritis (JIA) is a group of chronic inflammatory joint diseases that initially affect children before age 16. […] The main goal of treatment in children with juvenile idiopathic arthritis is to help them live as normal a life as possible. To be successful, this treatment must address all aspects of the disease, including medical problems and complications, physical functioning, school performance, and social and emotional adjustment. […] Care requires the coordinated efforts of a team of professionals. […] Medical treatment is only one aspect of management. The team also may include physical and occupational therapists and a psychologist or counselor. A social worker can help the family cope with the social, financial, and emotional aspects of the disease. […] Although medication is the cornerstone of treatment of JIA, medication alone is unlikely to be optimally successful if the child is not also receiving appropriate physical therapy, emotional counseling, and school assistance.

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