Materiały źródłowe

• #1

  https://www.nhs.uk/conditions/corticobasal-degeneration/

  Corticobasal degeneration (CBD) is a rare condition that can cause gradually worsening problems with movement, speech, memory and swallowing. […] It’s often also called corticobasal syndrome (CBS). […] As someone with CBD can be affected in many different ways, treatment and care is best provided by a team of health and social care professionals working together. Treatments may include: medication to improve stiffness and muscle spasms, sleep and mood, pain or memory; physiotherapy to help with movement and balance difficulties; speech and language therapy to help with communication and swallowing problems; occupational therapy to improve the skills and abilities needed for daily activities at home; palliative care and advanced care planning. […] Good care and assistance can help someone with CBD be more independent and enjoy a better quality of life, but the condition will eventually put them at risk of serious complications.

• #2 Corticobasal Degeneration (Corticobasal Syndrome): What It Is

  https://my.clevelandclinic.org/health/diseases/22522-corticobasal-degeneration

  Corticobasal degeneration (corticobasal syndrome) is a rare brain condition that causes you to lose your ability to speak, move and remember. Symptoms are progressive, so they slowly get worse over time. While there aren’t any treatments to slow or stop changes to your brain, therapies are available to help manage the condition. […] Your healthcare provider may recommend different medications for different corticobasal degeneration symptoms. […] There are also side effects associated with each type of medication. Your provider will discuss these with you and schedule regular follow-up visits to make sure the medications are working as expected and not causing any problems. Let your provider know if you notice any side effects. […] The following therapies may help you manage symptoms of corticobasal syndrome: Occupational therapy can help you learn new ways to complete daily tasks and maintain independence. You may learn how to use assistive mobility devices if necessary.

• #3 Corticobasal Degeneration | UK Healthcare

  https://ukhealthcare.uky.edu/kentucky-neuroscience-institute/conditions/memory-cognitive-disorders/corticobasal-degeneration

  Corticobasal degeneration is a rare progressive neurologic disorder that causes atrophy (deterioration or shrinkage) of specific areas of the brain, often the cerebral cortex and basal ganglia, due to an abnormal buildup of tau protein. […] Corticobasal degeneration can cause involuntary movements, problems with walking, impaired cognition (trouble with memory and thinking) and behavioral changes. […] There is no known treatment to stop or slow the progression of corticobasal degeneration. However, the symptoms may be treated with medications and other therapies to help maintain function. […] Physical or occupational therapy may be ordered to help improve mobility and function in daily activities when necessary. […] Speech therapy may be ordered to improve speech or swallowing.

• #4 Corticobasal Degeneration | PPT

  https://www.slideshare.net/slideshow/corticobasal-degeneration/149228953

  Corticobasal degeneration is a rare progressive neurodegenerative disease typically presenting in patients’ 60s with asymmetric parkinsonism and cognitive dysfunction. […] Currently there is no cure, and treatment focuses on managing symptoms through a multimodality approach, though available therapies have limited effectiveness. […] No cure; treat to manage symptoms Multimodality treatment. […] Available treatments are moderately or poorly effective.

• #5 Corticobasal Syndrome – Frontotemporal Degeneration | AFTD

  https://www.theaftd.org/what-is-ftd/corticobasal-syndrome/

  Corticobasal syndrome (CBS) belongs to the category of FTD disorders that primarily affect movement. […] There is no approved treatment available to slow the course of corticobasal degeneration, and the symptoms of the disease are generally resistant to therapy. […] Although there is no current treatment for CBS, therapy does help manage the symptoms. Occupational and physical therapies provide passive range of motion in affected muscles, and help prevent contractures (paralysis of a muscle in the tense state) in rigid limbs. […] It is important for caregivers and families to think about long-term management issues and identify a team of experts who can help with difficult medical, financial, and emotional challenges. It is imperative to have a physician who is knowledgeable about frontotemporal degeneration and CBS. Other medical specialists who may be helpful include: speech therapists, occupational and physical therapists, neuropsychologists, nurses (especially home-care nursing), and genetic counselors. […] Corticobasal Syndrome usually progresses slowly over the course of 6 to 8 years. During this time, the diagnosed person’s ability to live and function independently is diminished, leaving them dependent on others for activities of daily living.

• #6 Corticobasal degeneration | Radiology Reference Article | Radiopaedia.org

  https://radiopaedia.org/articles/corticobasal-degeneration?lang=us

  Corticobasal syndrome (CBS) represents the clinical syndrome that is diagnosed clinically, while corticobasal degeneration is only reserved for the subset of cases that are pathologically confirmed as the tauopathy. […] Treatment is often focused on symptomatic relief. Supportive services such as speech and occupational therapy should not be overlooked. […] Unfortunately, the overall prognosis is poor, with patients demonstrating gradual neurological decline. Death occurs typically 5 to 10 years after the diagnosis is first made.

• #7 Corticobasal Degeneration – Neurology MIND Care – Long Island NY

  https://neurologymindcare.com/services/corticobasal-degeneration/

  Corticobasal degeneration is a type of dementia caused by frontotemporal degeneration. […] Corticobasal degeneration is sometimes used interchangeably with the term corticobasal syndrome, but it is more accurately reserved for a particular pathologic diagnosis from an autopsy, whereas corticobasal syndrome is the term used to describe the clinical symptoms (which can sometimes be caused pathologically by Alzheimer’s disease instead of corticobasal degeneration). […] Corticobasal degeneration affects motor function early-on, not just cognitive function like in Alzheimer’s disease. […] A comprehensive evaluation can clarify if a person’s motor and cognitive decline are caused by one unifying diagnosis like corticobasal syndrome/degeneration. […] Anticipatory guidance in corticobasal degeneration is important because the early motor symptoms can result in safety issues even in a mild stage of disease. […] Recommended therapies may include physical therapy, occupational therapy, speech-language therapy, and/or swallow therapy.

• #8 Diagnosis and treatment of corticobasal degeneration – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24469408/

  Corticobasal degeneration is a pathologic entity. Presenting clinical phenotypes include corticobasal syndrome (CBS), frontal behavioral spatial syndrome, aphasia, progressive supranuclear palsy-like syndrome (PSPS), and a predominantly cognitive phenotype often mistaken for Alzheimer’s disease (AD). Treatment of CBD is symptomatic, particularly given recently negative neuroprotective studies. […] In patients with CBS and PSPS, parkinsonism is treated with levodopa/carbidopa. This generally has modest and transient benefits at best and often results in no improvement. Botulinum toxin injections are the treatment of choice for limb dystonia. Clonazepam and levetiracetam are commonly used for myoclonus. Physical therapy is an important part of motor treatment, particularly for fall prevention strategies and assist device assessment.

• #9

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  There’s currently no cure for corticobasal degeneration (CBD) and no treatment to slow it down, but there are lots of things that can be done to help manage the symptoms. […] Care will be provided by a team of health and social care professionals working together. This is known as a multidisciplinary team. […] A care plan will be drawn up in discussion with your team. This will outline the treatments you need to help with the symptoms of CBD, as well as the support and advice you require to make your life easier. […] A physiotherapist can give advice about how to remain safely mobile. Regular exercise can help strengthen your muscles, improve your posture and prevent stiffening of your joints. […] An occupational therapist can give you advice about the best ways to increase your safety and prevent trips and falls during your day-to-day activities.

• #10

  https://www.nhs.uk/conditions/corticobasal-degeneration/

  Corticobasal degeneration (CBD) is a rare condition that can cause gradually worsening problems with movement, speech, memory and swallowing. […] It’s often also called corticobasal syndrome (CBS). […] As someone with CBD can be affected in many different ways, treatment and care is best provided by a team of health and social care professionals working together. Treatments may include: medication to improve stiffness and muscle spasms, sleep and mood, pain or memory; physiotherapy to help with movement and balance difficulties; speech and language therapy to help with communication and swallowing problems; occupational therapy to improve the skills and abilities needed for daily activities at home; palliative care and advanced care planning. […] Good care and assistance can help someone with CBD be more independent and enjoy a better quality of life, but the condition will eventually put them at risk of serious complications.

• #11 Corticobasal Syndrome – Frontotemporal Degeneration | AFTD

  https://www.theaftd.org/what-is-ftd/corticobasal-syndrome/

  Corticobasal syndrome (CBS) belongs to the category of FTD disorders that primarily affect movement. […] There is no approved treatment available to slow the course of corticobasal degeneration, and the symptoms of the disease are generally resistant to therapy. […] Although there is no current treatment for CBS, therapy does help manage the symptoms. Occupational and physical therapies provide passive range of motion in affected muscles, and help prevent contractures (paralysis of a muscle in the tense state) in rigid limbs. […] It is important for caregivers and families to think about long-term management issues and identify a team of experts who can help with difficult medical, financial, and emotional challenges. It is imperative to have a physician who is knowledgeable about frontotemporal degeneration and CBS. Other medical specialists who may be helpful include: speech therapists, occupational and physical therapists, neuropsychologists, nurses (especially home-care nursing), and genetic counselors. […] Corticobasal Syndrome usually progresses slowly over the course of 6 to 8 years. During this time, the diagnosed person’s ability to live and function independently is diminished, leaving them dependent on others for activities of daily living.

• #12 Corticobasal Degeneration | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/157387

  The treatment framework below is largely derived from the CurePSP Centers of Care consensus on best practices in PSP and CBS clinical management. However, given the large clinical heterogeneity in the disease presentation and individual disease manifestations, a tailored care plan must be synthesized for individuals with CBD with the help of an interprofessional team including neurologists, psychotherapists, speech therapists, psychiatrists, ophthalmologists, sleep specialists, occupational therapists, physical therapists, and palliative care physicians. […] Caregiver support is crucial, and families should be educated on available resources, including support groups, palliative care, and respite services. Discussions about advance care planning, including legal and financial considerations, should be introduced early to ensure the patient’s wishes are respected as the disease progresses.

• #13

  https://www.psp.org/iwanttolearn/corticobasal-degeneration

  Corticobasal degeneration (CBD) is a rare neurodegenerative disorder that has no known cause or cure. […] Building a support team is foundational to the quality of life for the person diagnosed and their loved ones. […] Professionals that can help with symptom management, care planning and education may include: a general neurologist, or ideally a movement disorder specialist, primary care provider (PCP), nurse (NP, RN, CRN), physical therapist (PT), occupational therapist (OT), speech-language pathologist (SLP), clinical social worker (SW), nutritionist/dietician, pharmacist, psychiatrist, psychologist or neuropsychologist, ophthalmologist. […] People with CBD and related diagnoses can greatly benefit from rehabilitation therapies. Rehabilitation therapies are individualized interventions to improve or maintain quality of life.

• #14 Corticobasal degeneration | Monash Health

  https://monashhealth.org/services/movement-disorders-program/understanding-movement-disorders/corticobasal-degeneration/

  Corticobasal Degeneration (CBD) is a rare and progressive neurodegenerative disorder. […] Although theres currently no cure for CBD, a range of drugs, treatments and therapies are available to manage the symptoms. […] A multidisciplinary team that includes a neurologist and therapists who specialise in movement disorders is recommended for the management of the complex CBD symptoms. The appropriate multidisciplinary team members should be seen from the time the diagnosis of CBD is received. […] A nurse with specialist training in CDB can provide education and support to the person with CBD and their caregiver. This may include: monitoring the effects of changes to medications as recommended by the neurologist and liaising with the neurologist, providing education and support around the recommended medications and the assist with the minimisation of side effects, providing individualised education for the person with CBD and their caregivers to ensure optimal understanding and management of the various CBD symptoms as the condition progresses, arranging referrals to other relevant health professionals within the specialist team.

• #15 Corticobasal degeneration | Monash Health

  https://monashhealth.org/services/movement-disorders-program/understanding-movement-disorders/corticobasal-degeneration/

  A physiotherapist specialised in movement disorders such as CBD can assess walking and balance problems and recommend ways to improve mobility and safety. […] A speech pathologist specialised in movement disorders such as CBD can assess the persons speech and teach strategies to improve them. […] A dietitian specialised in movement disorders such as CBD can assess the persons diet and provide them with suggested menus to improve any dietary problems they may have. […] A social worker specialised in movement disorders such as CBD can assist the person with CBD, their caregiver and family negotiate the challenges faced across the life time of the persons condition. […] It is important that the person with CBD, their caregiver and family speak to the neurologist about any changes in cognition, behaviour or mood. […] A neuropsychologist specialised in movement disorders such as CBD can assess a persons cognition and provide strategies to optimise independence.

• #16

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  There’s currently no cure for corticobasal degeneration (CBD) and no treatment to slow it down, but there are lots of things that can be done to help manage the symptoms. […] Care will be provided by a team of health and social care professionals working together. This is known as a multidisciplinary team. […] A care plan will be drawn up in discussion with your team. This will outline the treatments you need to help with the symptoms of CBD, as well as the support and advice you require to make your life easier. […] A physiotherapist can give advice about how to remain safely mobile. Regular exercise can help strengthen your muscles, improve your posture and prevent stiffening of your joints. […] An occupational therapist can give you advice about the best ways to increase your safety and prevent trips and falls during your day-to-day activities.

• #17

  https://111.wales.nhs.uk/encyclopaedia/c/article/corticobasaldegeneration/

  Corticobasal degeneration (CBD) is a rare condition that can cause gradually worsening problems with movement, speech, memory and swallowing. […] As someone with CBD can be affected in many different ways, treatment and care is best provided by a team of health and social care professionals working together. Treatments may include: medication – to improve stiffness and muscle spasms, sleep and mood, pain or memory; physiotherapy – to help with movement and balance difficulties; speech and language therapy – to help with communication and swallowing problems; occupational therapy – to improve the skills and abilities needed for daily activities at home; palliative care and advanced care planning. […] Care will be provided by a team of health and social care professionals working together. This is known as a multidisciplinary team.

• #18

  https://111.wales.nhs.uk/encyclopaedia/c/article/corticobasaldegeneration/

  A care plan will be drawn up in discussion with your team. This will outline the treatments you need to help the symptoms of CBD, as well as support and advice you require to make your life easier. […] Palliative care aims to relieve pain and other distressing symptoms while providing psychological, social and spiritual support. It can be offered at any stage of CBD, alongside other treatments. […] If someone you know develops CBD, you may need information and advice about caring for them.

• #19 Corticobasal degeneration | Monash Health

  https://monashhealth.org/services/movement-disorders-program/understanding-movement-disorders/corticobasal-degeneration/

  Corticobasal Degeneration (CBD) is a rare and progressive neurodegenerative disorder. […] Although theres currently no cure for CBD, a range of drugs, treatments and therapies are available to manage the symptoms. […] A multidisciplinary team that includes a neurologist and therapists who specialise in movement disorders is recommended for the management of the complex CBD symptoms. The appropriate multidisciplinary team members should be seen from the time the diagnosis of CBD is received. […] A nurse with specialist training in CDB can provide education and support to the person with CBD and their caregiver. This may include: monitoring the effects of changes to medications as recommended by the neurologist and liaising with the neurologist, providing education and support around the recommended medications and the assist with the minimisation of side effects, providing individualised education for the person with CBD and their caregivers to ensure optimal understanding and management of the various CBD symptoms as the condition progresses, arranging referrals to other relevant health professionals within the specialist team.

• #20 CBD Resources | PSP & CBD Foundation

  https://pspcbdfoundation.org/cbd/

  Individualized Care Is Required! […] Individualized care improves quality of life!! Multidisciplinary care team of support and professionals is extremely important. Individuals should have a multidisciplinary team of professionals to include, but not limited to: […] Nurse […] Individualized care team will provide compensatory techniques, assistive equipment, and exercises to manage symptoms of CBS/CBD. These professionals will also ensure you are receiving any and all support and assistance available!

• #21 Corticobasal Degeneration (Corticobasal Syndrome): What It Is

  https://my.clevelandclinic.org/health/diseases/22522-corticobasal-degeneration

  Your provider will work with you to find management techniques that fit best with the symptoms that affect you. These may look different from person to person and can change over the course of the condition. […] There currently isn’t a cure for the disease. However, therapies are available to help you manage symptoms and maintain independence for as long as possible. Your providers may also help you sort out your end-stage care needs, so it’s one fewer thing you have to worry about down the road.

• #22 Corticobasal Syndrome | Baylor Medicine

  https://www.bcm.edu/healthcare/specialties/neurology/parkinsons-disease-and-movement-disorders/corticobasal-syndrome

  Other treatments for CBS include physical therapy and stretching exercises designed to maintain range of motion, relieve rigidity and to prevent contractures and deformities as well as to maintain good strength and condition of muscles. […] Because of swallowing problems, some patients require placement of a feeding tube (PEG) directly into the stomach to maintain adequate nutrition and prevent aspiration pneumonia. […] At present, there are no therapies that can reverse or even slow the progression of CBS.

• #23 Diagnosis and treatment of corticobasal degeneration – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24469408/

  Corticobasal degeneration is a pathologic entity. Presenting clinical phenotypes include corticobasal syndrome (CBS), frontal behavioral spatial syndrome, aphasia, progressive supranuclear palsy-like syndrome (PSPS), and a predominantly cognitive phenotype often mistaken for Alzheimer’s disease (AD). Treatment of CBD is symptomatic, particularly given recently negative neuroprotective studies. […] In patients with CBS and PSPS, parkinsonism is treated with levodopa/carbidopa. This generally has modest and transient benefits at best and often results in no improvement. Botulinum toxin injections are the treatment of choice for limb dystonia. Clonazepam and levetiracetam are commonly used for myoclonus. Physical therapy is an important part of motor treatment, particularly for fall prevention strategies and assist device assessment.

• #24

  https://www.brain.northwestern.edu/dementia/cbs/treatment.html

  There are a number of non-pharmacologic ways to support those with Corticobasal Syndrome (CBS). […] Speech therapy can improve language and communication. […] Occupational therapy can help provide strategies and techniques to compensate for the cognitive and motor changes associated with CBS. […] Physical therapy can also improve aspects of motor function. […] There are presently no cures for Corticobasal Syndrome, but medications can be prescribed with to treat some of the symptoms. […] Though levodopa, a dopamine replacement, (Sinemet) can be given to address the motor symptoms of CBS, symptom response is uncommon and limited. […] When CBS symptoms are determined to stem from Alzheimers disease, a class of medications known as cholinesterase inhibitors might be available. […] Additionally, medications can be prescribed to address mood and anxiety symptoms associated with CBS.

• #25 The significant characteristics of corticobasal syndrome – Parthimos – Annals of Research Hospitals

  https://arh.amegroups.org/article/view/4676/html

  Corticobasal syndrome (CBS) is a rare neurodegenerative disorder. […] Patients with CBS commonly present Parkinsonism like syndrome/ Parkinson disease findings such as akinesia, rigidity and dystonia. […] Levodopa, benzodiazepines and anticholinergic agents are commonly used for the therapeutic process of the syndrome. […] The response of the therapeutic treatment is very disappointing. […] CBS treatment includes pharmacologic treatment for motor, cognitive and behavior symptoms of CBS and is symptomatic. […] The therapeutic process is related to many schemas such as levodopa, benzodiazepines, anticholinergics, muscle relaxants, Acetylcholinesterase inhibitors, selective serotonin reuptake inhibitors, atypical neuroleptics and mood-stabilizing agents. […] Cognitive behavior therapies, occupational therapy and kinesiotherapy are addressed in CBS patients in order to improve speech, language and motor symptoms.

• #26

  https://www.brain.northwestern.edu/dementia/cbs/treatment.html

  There are a number of non-pharmacologic ways to support those with Corticobasal Syndrome (CBS). […] Speech therapy can improve language and communication. […] Occupational therapy can help provide strategies and techniques to compensate for the cognitive and motor changes associated with CBS. […] Physical therapy can also improve aspects of motor function. […] There are presently no cures for Corticobasal Syndrome, but medications can be prescribed with to treat some of the symptoms. […] Though levodopa, a dopamine replacement, (Sinemet) can be given to address the motor symptoms of CBS, symptom response is uncommon and limited. […] When CBS symptoms are determined to stem from Alzheimers disease, a class of medications known as cholinesterase inhibitors might be available. […] Additionally, medications can be prescribed to address mood and anxiety symptoms associated with CBS.

• #27 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  The approach is centered on maximizing the patient’s quality of life through rehabilitative interventions (physical, occupational, and speech/swallow therapy) and judicious use of symptomatic therapies. […] Discontinue anticholinergics or other medications that impair attention and memory. […] Consider cholinesterase inhibitors such as rivastigmine or donepezil if memory loss is present. […] Refer early and continuously to occupational therapy (for upper extremity functional evaluation and management), physical therapy (gait and safety evaluation and training), and speech-language pathology (speech evaluation/cognitive training, swallow evaluation using modified barium with video), consider assistive devices for ambulation, ADLs and communication, and an exercise program to maintain endurance and strength.

• #28 Corticobasal syndrome (CBS) | Alzheimer’s Society

  https://www.alzheimers.org.uk/about-dementia/types-dementia/corticobasal-degeneration

  Corticobasal syndrome (CBS) is a rare condition in which parts of the brain become damaged and begin to shrink. […] The symptoms of corticobasal syndrome (CBS) include problems with movement, language, memory and visual perception (how the brain interprets information that comes from the eyes). […] CBS is sometimes referred to as corticobasal degeneration or CBD. The terms CBS and CBD describe the same condition. […] There is currently no cure for CBS or a way to slow down the disease that causes it. However, drugs may help to reduce some of the symptoms, for example donepezil or memantine to help with symptoms related to memory and thinking. Other drugs can reduce the physical symptoms, such as muscle stiffness, jerky movements and bladder problems. A person with CBS might also benefit from speech and language therapy, physiotherapy and occupational therapy. […] PSP Association has a website and a helpline that give people affected by CBS information and support.

• #29 Corticobasal syndrome: a practical guide | Practical Neurology

  https://pn.bmj.com/content/21/4/276

  Although there are no proven treatments for cognitive deficits such as memory and attentional impairment in corticobasal syndrome, many clinicians consider trialling cholinesterase inhibitors if there is a strong suggestion from the history (memory impairment), examination (predominate cortical signs) and cognitive assessment (visuospatial or memory deficits) to suggest an underlying Alzheimer’s disease pathology. […] Specific options to consider for the alien limb syndrome are summarised above. […] We advocate for screening all patients presenting with corticobasal syndrome for neuropsychiatric symptoms, particularly as these features have a major impact on quality of life for patients and their families. […] In summary, a corticobasal syndrome diagnosis can be supported—but not refuted—by imaging features, while emerging techniques may direct the neurologist to the underlying pathological cause of a patient’s syndrome—information that over time will have practical relevance.

• #30

  https://www.brain.northwestern.edu/dementia/cbs/treatment.html

  There are a number of non-pharmacologic ways to support those with Corticobasal Syndrome (CBS). […] Speech therapy can improve language and communication. […] Occupational therapy can help provide strategies and techniques to compensate for the cognitive and motor changes associated with CBS. […] Physical therapy can also improve aspects of motor function. […] There are presently no cures for Corticobasal Syndrome, but medications can be prescribed with to treat some of the symptoms. […] Though levodopa, a dopamine replacement, (Sinemet) can be given to address the motor symptoms of CBS, symptom response is uncommon and limited. […] When CBS symptoms are determined to stem from Alzheimers disease, a class of medications known as cholinesterase inhibitors might be available. […] Additionally, medications can be prescribed to address mood and anxiety symptoms associated with CBS.

• #31

  https://www.brain.northwestern.edu/dementia/cbs/treatment.html

  These medications can provide relief for affected individuals and their caregivers. […] Antidepressants can be given to treat depression, anxiety, or irritability. […] Low doses of antipsychotics may also be considered to help address delusional thinking (believing things that have no real foundation) or aggression. […] This organization, outside of the center, offers support groups, and additional resources for living with CBS.

• #32

  https://www.psp.org/iwanttolearn/corticobasal-degeneration

  A physical therapist (PT) helps people with movement symptoms they are experiencing. […] An occupational therapist (OT) helps people continue doing tasks and activities that prolong independence and help maintain a sense of joy and meaning in their lives. […] A speech-language pathologist (SLP) works with people who are having issues with speech, swallowing and language. […] A feeding tube can be a safe and helpful option for people with CBD who are experiencing difficulties with swallowing. […] When living with a serious and progressive disease, its normal to experience sadness, uncertainty and fear about what the future may hold. […] The most common mood symptom for people with CBD is depression, and some people may experience anxiety or apathy. […] Possible medications for depression and anxiety for people with CBD include selective serotonin reuptake inhibitors (SSRIs), serotonin and norepinephrine reuptake inhibitors (SNRIs), and gabapentin.

• #33 Corticobasal Degeneration (Corticobasal Syndrome): What It Is

  https://my.clevelandclinic.org/health/diseases/22522-corticobasal-degeneration

  Corticobasal degeneration (corticobasal syndrome) is a rare brain condition that causes you to lose your ability to speak, move and remember. Symptoms are progressive, so they slowly get worse over time. While there aren’t any treatments to slow or stop changes to your brain, therapies are available to help manage the condition. […] Your healthcare provider may recommend different medications for different corticobasal degeneration symptoms. […] There are also side effects associated with each type of medication. Your provider will discuss these with you and schedule regular follow-up visits to make sure the medications are working as expected and not causing any problems. Let your provider know if you notice any side effects. […] The following therapies may help you manage symptoms of corticobasal syndrome: Occupational therapy can help you learn new ways to complete daily tasks and maintain independence. You may learn how to use assistive mobility devices if necessary.

• #34

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  There’s currently no cure for corticobasal degeneration (CBD) and no treatment to slow it down, but there are lots of things that can be done to help manage the symptoms. […] Care will be provided by a team of health and social care professionals working together. This is known as a multidisciplinary team. […] A care plan will be drawn up in discussion with your team. This will outline the treatments you need to help with the symptoms of CBD, as well as the support and advice you require to make your life easier. […] A physiotherapist can give advice about how to remain safely mobile. Regular exercise can help strengthen your muscles, improve your posture and prevent stiffening of your joints. […] An occupational therapist can give you advice about the best ways to increase your safety and prevent trips and falls during your day-to-day activities.

• #35 Corticobasal Syndrome | Baylor Medicine

  https://www.bcm.edu/healthcare/specialties/neurology/parkinsons-disease-and-movement-disorders/corticobasal-syndrome

  Other treatments for CBS include physical therapy and stretching exercises designed to maintain range of motion, relieve rigidity and to prevent contractures and deformities as well as to maintain good strength and condition of muscles. […] Because of swallowing problems, some patients require placement of a feeding tube (PEG) directly into the stomach to maintain adequate nutrition and prevent aspiration pneumonia. […] At present, there are no therapies that can reverse or even slow the progression of CBS.

• #36

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  There’s currently no cure for corticobasal degeneration (CBD) and no treatment to slow it down, but there are lots of things that can be done to help manage the symptoms. […] Care will be provided by a team of health and social care professionals working together. This is known as a multidisciplinary team. […] A care plan will be drawn up in discussion with your team. This will outline the treatments you need to help with the symptoms of CBD, as well as the support and advice you require to make your life easier. […] A physiotherapist can give advice about how to remain safely mobile. Regular exercise can help strengthen your muscles, improve your posture and prevent stiffening of your joints. […] An occupational therapist can give you advice about the best ways to increase your safety and prevent trips and falls during your day-to-day activities.

• #37 Corticobasal Syndrome | University of Michigan Health

  https://www.uofmhealth.org/conditions-treatments/corticobasal-syndrome

  Corticobasal Syndrome, or CBS, (also referred to as Corticobasal Degeneration) is a progressive, atypical parkinsonian disorder caused by the accumulation of the abnormally folded protein tau in the nervous system. […] Many patients living with CBS will need frequent evaluations and support services from physical, occupational, and speech-swallow therapists, whether at an outpatient rehab center or in the home. In general, physical therapy is crucial to help with gait, balance, fall prevention, and mobility while occupational therapy helps with activities of daily living like getting dressed, going to the bathroom, and eating. […] As speech and swallowing are often affected in CBS, speech-swallow therapy is frequently prescribed and can be very helpful to improve speech and prevent aspirating foods-liquids.

• #38 Corticobasal Degeneration CBD | Definitions, Symptoms & Advice

  https://www.pspassociation.org.uk/what-is-cbd/

  While there is currently no cure for CBD, there are ways to help alleviate symptoms and improve the quality of life for people affected. You may be offered support from multidisciplinary care teams and support networks like PSPA. […] Physiotherapists can design specific exercises that help maintain muscle strength and flexibility, which can prolong independence in daily activities and prevent falls. […] Occupational therapists work with people living with CBD to help them maintain their skills for daily activities. They also suggest home modifications and adaptive tools that make daily tasks easier and safer, such as modified utensils for eating, grab bars in bathrooms and customised seating. […] As CBD progresses, palliative care becomes essential for relieving symptoms and improving quality of life. This care includes pain management, nutritional support, and addressing psychological and spiritual needs. […] PSPA plays a pivotal role in supporting individuals and families living with CBD by providing information and support services and advocating for better care and research into the disease.

• #39

  https://www.psp.org/iwanttolearn/corticobasal-degeneration

  Corticobasal degeneration (CBD) is a rare neurodegenerative disorder that has no known cause or cure. […] Building a support team is foundational to the quality of life for the person diagnosed and their loved ones. […] Professionals that can help with symptom management, care planning and education may include: a general neurologist, or ideally a movement disorder specialist, primary care provider (PCP), nurse (NP, RN, CRN), physical therapist (PT), occupational therapist (OT), speech-language pathologist (SLP), clinical social worker (SW), nutritionist/dietician, pharmacist, psychiatrist, psychologist or neuropsychologist, ophthalmologist. […] People with CBD and related diagnoses can greatly benefit from rehabilitation therapies. Rehabilitation therapies are individualized interventions to improve or maintain quality of life.

• #40 Corticobasal Syndrome | Memory and Aging Center

  https://memory.ucsf.edu/dementia/corticobasal-syndrome

  Corticobasal syndrome (CBS) is a condition that causes changes in movement, language skills, or both. […] There are various ways to help a person with CBS. Speech therapy may help improve communication between people with CBS and others. Physical therapy and stretching exercises may improve some movement difficulties. […] Research has shown that physical exercise helps to enhance brain health and improves mood and general fitness. A balanced diet, enough sleep, and limited alcohol intake are other important ways to promote good health. Other illnesses that affect the brain, such as diabetes, high blood pressure, and high cholesterol, should also be treated if present.

• #41 Corticobasal degeneration (corticobasal syndrome) – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/corticobasal-degeneration/diagnosis-treatment/drc-20475446

  A diagnosis of corticobasal degeneration (corticobasal syndrome) is made based on your symptoms, exam and testing. […] Our caring team of Mayo Clinic experts can help you with your corticobasal degeneration (corticobasal syndrome)-related health concerns. […] There are no treatments that help slow the progression of corticobasal degeneration (corticobasal syndrome). But if your symptoms are due to Alzheimer’s disease, new medicines may be available. Your healthcare professional may recommend medicines to try to manage your symptoms. […] Occupational and physical therapy may help you manage the disabilities caused by corticobasal degeneration. Walking devices may help with mobility and prevent falls. Speech therapy can help with communication and swallowing. A dietitian may help you ensure you get proper nutrition and lower the risk of inhaling food into the lungs, known as aspiration. […] For corticobasal degeneration, some basic questions to ask include: What’s likely causing my symptoms? […] Your healthcare professional is likely to ask you several questions, such as: When did your symptoms begin?

• #42 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #43 Understanding Corticobasal Degeneration (CBD) | Saint Luke’s Health System

  https://www.saintlukeskc.org/health-library/understanding-corticobasal-degeneration-cbd

  Occupational therapy (OT). This can help you keep up with daily activities such as bathing, grooming, eating, and other self-care. […] Physical therapy (PT). This can help improve mobility and range of motion. It may help prevent pain and help muscle tone. […] Speech therapy. This can help you speak more clearly. […] Medicines. Some medicines may help treat stiff muscles, pain, behavioral symptoms, and movement. […] Adaptive medical tools. Tools such as a walker can help with balance and movement. Reachers, grabbers, and other tools can help with daily actions. […] CBD is a stressful condition to manage, and for families to cope with. Talk with your healthcare team about ways to get help. They can refer you to counseling.

• #44 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #45 Corticobasal Degeneration (Corticobasal Syndrome): What It Is

  https://my.clevelandclinic.org/health/diseases/22522-corticobasal-degeneration

  Corticobasal degeneration (corticobasal syndrome) is a rare brain condition that causes you to lose your ability to speak, move and remember. Symptoms are progressive, so they slowly get worse over time. While there aren’t any treatments to slow or stop changes to your brain, therapies are available to help manage the condition. […] Your healthcare provider may recommend different medications for different corticobasal degeneration symptoms. […] There are also side effects associated with each type of medication. Your provider will discuss these with you and schedule regular follow-up visits to make sure the medications are working as expected and not causing any problems. Let your provider know if you notice any side effects. […] The following therapies may help you manage symptoms of corticobasal syndrome: Occupational therapy can help you learn new ways to complete daily tasks and maintain independence. You may learn how to use assistive mobility devices if necessary.

• #46 Corticobasal Degeneration | Conditions | UCSF Health

  https://www.ucsfhealth.org/conditions/corticobasal-degeneration

  Corticobasal degeneration (CBD) is a rare neurological disease associated with progressive brain degeneration. […] Currently, there are no treatments to slow the progress of corticobasal degeneration (CBD). Instead, individual symptoms are targeted with specific medications or therapy. […] Occupational therapy may be used to design equipment that supports the activities of daily living and maintains functional independence. […] Physical therapy is important for maintaining a patient’s range of motion. This may prevent pain and contraction or the shortening of muscles as well as help maintain mobility. […] Speech therapy may be recommended to improve articulation and volume of the voice. […] The UCSF Memory and Aging Center is involved in research to better understand the cause and course of the disease, which has led to counseling, support and medications to treat symptoms.

• #47

  https://www.brain.northwestern.edu/dementia/cbs/treatment.html

  There are a number of non-pharmacologic ways to support those with Corticobasal Syndrome (CBS). […] Speech therapy can improve language and communication. […] Occupational therapy can help provide strategies and techniques to compensate for the cognitive and motor changes associated with CBS. […] Physical therapy can also improve aspects of motor function. […] There are presently no cures for Corticobasal Syndrome, but medications can be prescribed with to treat some of the symptoms. […] Though levodopa, a dopamine replacement, (Sinemet) can be given to address the motor symptoms of CBS, symptom response is uncommon and limited. […] When CBS symptoms are determined to stem from Alzheimers disease, a class of medications known as cholinesterase inhibitors might be available. […] Additionally, medications can be prescribed to address mood and anxiety symptoms associated with CBS.

• #48 Corticobasal syndrome: a practical guide | Practical Neurology

  https://pn.bmj.com/content/21/4/276

  Corticobasal syndrome is a disorder of movement, cognition and behaviour with several possible underlying pathologies, including corticobasal degeneration. […] Its treatment is largely symptomatic and is best undertaken within a multidisciplinary setting, including a neurologist, physiotherapist, occupational therapist, speech language therapist, psychiatrist and, ultimately, a palliative care clinician. […] We diagnosed corticobasal syndrome referred her to physiotherapy and occupational therapy. […] We gave an unsuccessful trial of levodopa and sought speech and language involvement; botulinum injections into the neck extensors gave some benefit. […] Management to mitigate the effects of apraxia is best coordinated by an occupational therapist with knowledge of the condition. […] Speech therapists can teach patients techniques to overcome some of their language deficits and it is worth seeking their input when speech difficulties are a prominent feature—they can also provide patients with practical advice if swallowing difficulties develop.

• #49 Corticobasal Degeneration CBD | Definitions, Symptoms & Advice

  https://www.pspassociation.org.uk/what-is-cbd/

  While there is currently no cure for CBD, there are ways to help alleviate symptoms and improve the quality of life for people affected. You may be offered support from multidisciplinary care teams and support networks like PSPA. […] Physiotherapists can design specific exercises that help maintain muscle strength and flexibility, which can prolong independence in daily activities and prevent falls. […] Occupational therapists work with people living with CBD to help them maintain their skills for daily activities. They also suggest home modifications and adaptive tools that make daily tasks easier and safer, such as modified utensils for eating, grab bars in bathrooms and customised seating. […] As CBD progresses, palliative care becomes essential for relieving symptoms and improving quality of life. This care includes pain management, nutritional support, and addressing psychological and spiritual needs. […] PSPA plays a pivotal role in supporting individuals and families living with CBD by providing information and support services and advocating for better care and research into the disease.

• #50 Understanding Corticobasal Degeneration (CBD) | Saint Luke’s Health System

  https://www.saintlukeskc.org/health-library/understanding-corticobasal-degeneration-cbd

  Occupational therapy (OT). This can help you keep up with daily activities such as bathing, grooming, eating, and other self-care. […] Physical therapy (PT). This can help improve mobility and range of motion. It may help prevent pain and help muscle tone. […] Speech therapy. This can help you speak more clearly. […] Medicines. Some medicines may help treat stiff muscles, pain, behavioral symptoms, and movement. […] Adaptive medical tools. Tools such as a walker can help with balance and movement. Reachers, grabbers, and other tools can help with daily actions. […] CBD is a stressful condition to manage, and for families to cope with. Talk with your healthcare team about ways to get help. They can refer you to counseling.

• #51 Corticobasal Degeneration CBD | Definitions, Symptoms & Advice

  https://www.pspassociation.org.uk/what-is-cbd/

  While there is currently no cure for CBD, there are ways to help alleviate symptoms and improve the quality of life for people affected. You may be offered support from multidisciplinary care teams and support networks like PSPA. […] Physiotherapists can design specific exercises that help maintain muscle strength and flexibility, which can prolong independence in daily activities and prevent falls. […] Occupational therapists work with people living with CBD to help them maintain their skills for daily activities. They also suggest home modifications and adaptive tools that make daily tasks easier and safer, such as modified utensils for eating, grab bars in bathrooms and customised seating. […] As CBD progresses, palliative care becomes essential for relieving symptoms and improving quality of life. This care includes pain management, nutritional support, and addressing psychological and spiritual needs. […] PSPA plays a pivotal role in supporting individuals and families living with CBD by providing information and support services and advocating for better care and research into the disease.

• #52 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #53 Corticobasal Degeneration (Corticobasal Syndrome): What It Is

  https://my.clevelandclinic.org/health/diseases/22522-corticobasal-degeneration

  Corticobasal degeneration (corticobasal syndrome) is a rare brain condition that causes you to lose your ability to speak, move and remember. Symptoms are progressive, so they slowly get worse over time. While there aren’t any treatments to slow or stop changes to your brain, therapies are available to help manage the condition. […] Your healthcare provider may recommend different medications for different corticobasal degeneration symptoms. […] There are also side effects associated with each type of medication. Your provider will discuss these with you and schedule regular follow-up visits to make sure the medications are working as expected and not causing any problems. Let your provider know if you notice any side effects. […] The following therapies may help you manage symptoms of corticobasal syndrome: Occupational therapy can help you learn new ways to complete daily tasks and maintain independence. You may learn how to use assistive mobility devices if necessary.

• #54 Corticobasal Syndrome | University of Michigan Health

  https://www.uofmhealth.org/conditions-treatments/corticobasal-syndrome

  Corticobasal Syndrome, or CBS, (also referred to as Corticobasal Degeneration) is a progressive, atypical parkinsonian disorder caused by the accumulation of the abnormally folded protein tau in the nervous system. […] Many patients living with CBS will need frequent evaluations and support services from physical, occupational, and speech-swallow therapists, whether at an outpatient rehab center or in the home. In general, physical therapy is crucial to help with gait, balance, fall prevention, and mobility while occupational therapy helps with activities of daily living like getting dressed, going to the bathroom, and eating. […] As speech and swallowing are often affected in CBS, speech-swallow therapy is frequently prescribed and can be very helpful to improve speech and prevent aspirating foods-liquids.

• #55

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  There’s currently no cure for corticobasal degeneration (CBD) and no treatment to slow it down, but there are lots of things that can be done to help manage the symptoms. […] Care will be provided by a team of health and social care professionals working together. This is known as a multidisciplinary team. […] A care plan will be drawn up in discussion with your team. This will outline the treatments you need to help with the symptoms of CBD, as well as the support and advice you require to make your life easier. […] A physiotherapist can give advice about how to remain safely mobile. Regular exercise can help strengthen your muscles, improve your posture and prevent stiffening of your joints. […] An occupational therapist can give you advice about the best ways to increase your safety and prevent trips and falls during your day-to-day activities.

• #56

  https://www.psp.org/iwanttolearn/corticobasal-degeneration

  A physical therapist (PT) helps people with movement symptoms they are experiencing. […] An occupational therapist (OT) helps people continue doing tasks and activities that prolong independence and help maintain a sense of joy and meaning in their lives. […] A speech-language pathologist (SLP) works with people who are having issues with speech, swallowing and language. […] A feeding tube can be a safe and helpful option for people with CBD who are experiencing difficulties with swallowing. […] When living with a serious and progressive disease, its normal to experience sadness, uncertainty and fear about what the future may hold. […] The most common mood symptom for people with CBD is depression, and some people may experience anxiety or apathy. […] Possible medications for depression and anxiety for people with CBD include selective serotonin reuptake inhibitors (SSRIs), serotonin and norepinephrine reuptake inhibitors (SNRIs), and gabapentin.

• #57 Corticobasal Degeneration | Conditions | UCSF Health

  https://www.ucsfhealth.org/conditions/corticobasal-degeneration

  Corticobasal degeneration (CBD) is a rare neurological disease associated with progressive brain degeneration. […] Currently, there are no treatments to slow the progress of corticobasal degeneration (CBD). Instead, individual symptoms are targeted with specific medications or therapy. […] Occupational therapy may be used to design equipment that supports the activities of daily living and maintains functional independence. […] Physical therapy is important for maintaining a patient’s range of motion. This may prevent pain and contraction or the shortening of muscles as well as help maintain mobility. […] Speech therapy may be recommended to improve articulation and volume of the voice. […] The UCSF Memory and Aging Center is involved in research to better understand the cause and course of the disease, which has led to counseling, support and medications to treat symptoms.

• #58 Corticobasal syndrome: a practical guide | Practical Neurology

  https://pn.bmj.com/content/21/4/276

  Corticobasal syndrome is a disorder of movement, cognition and behaviour with several possible underlying pathologies, including corticobasal degeneration. […] Its treatment is largely symptomatic and is best undertaken within a multidisciplinary setting, including a neurologist, physiotherapist, occupational therapist, speech language therapist, psychiatrist and, ultimately, a palliative care clinician. […] We diagnosed corticobasal syndrome referred her to physiotherapy and occupational therapy. […] We gave an unsuccessful trial of levodopa and sought speech and language involvement; botulinum injections into the neck extensors gave some benefit. […] Management to mitigate the effects of apraxia is best coordinated by an occupational therapist with knowledge of the condition. […] Speech therapists can teach patients techniques to overcome some of their language deficits and it is worth seeking their input when speech difficulties are a prominent feature—they can also provide patients with practical advice if swallowing difficulties develop.

• #59 Corticobasal degeneration (corticobasal syndrome) – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/corticobasal-degeneration/diagnosis-treatment/drc-20475446

  A diagnosis of corticobasal degeneration (corticobasal syndrome) is made based on your symptoms, exam and testing. […] Our caring team of Mayo Clinic experts can help you with your corticobasal degeneration (corticobasal syndrome)-related health concerns. […] There are no treatments that help slow the progression of corticobasal degeneration (corticobasal syndrome). But if your symptoms are due to Alzheimer’s disease, new medicines may be available. Your healthcare professional may recommend medicines to try to manage your symptoms. […] Occupational and physical therapy may help you manage the disabilities caused by corticobasal degeneration. Walking devices may help with mobility and prevent falls. Speech therapy can help with communication and swallowing. A dietitian may help you ensure you get proper nutrition and lower the risk of inhaling food into the lungs, known as aspiration. […] For corticobasal degeneration, some basic questions to ask include: What’s likely causing my symptoms? […] Your healthcare professional is likely to ask you several questions, such as: When did your symptoms begin?

• #60

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  A speech and language therapist can help assess and treat speech and swallowing problems. […] You may be referred to a dietitian, who will advise you about making changes to your diet, such as including food and liquids that are easier to swallow, while ensuring that you eat a balanced diet. […] Palliative care aims to relieve pain and other distressing symptoms while providing psychological, social and spiritual support. It can be offered at any stage of CBD, alongside other treatments. […] Many people with CBD make plans for the future that outline their wishes about medical care and other decisions. They share these plans with both their family and the health professionals involved in their care. […] If someone you know develops CBD, you may need information and advice about caring for them.

• #61 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  The approach is centered on maximizing the patient’s quality of life through rehabilitative interventions (physical, occupational, and speech/swallow therapy) and judicious use of symptomatic therapies. […] Discontinue anticholinergics or other medications that impair attention and memory. […] Consider cholinesterase inhibitors such as rivastigmine or donepezil if memory loss is present. […] Refer early and continuously to occupational therapy (for upper extremity functional evaluation and management), physical therapy (gait and safety evaluation and training), and speech-language pathology (speech evaluation/cognitive training, swallow evaluation using modified barium with video), consider assistive devices for ambulation, ADLs and communication, and an exercise program to maintain endurance and strength.

• #62 Corticobasal Syndrome | Baylor Medicine

  https://www.bcm.edu/healthcare/specialties/neurology/parkinsons-disease-and-movement-disorders/corticobasal-syndrome

  Other treatments for CBS include physical therapy and stretching exercises designed to maintain range of motion, relieve rigidity and to prevent contractures and deformities as well as to maintain good strength and condition of muscles. […] Because of swallowing problems, some patients require placement of a feeding tube (PEG) directly into the stomach to maintain adequate nutrition and prevent aspiration pneumonia. […] At present, there are no therapies that can reverse or even slow the progression of CBS.

• #63

  https://www.psp.org/iwanttolearn/corticobasal-degeneration

  A physical therapist (PT) helps people with movement symptoms they are experiencing. […] An occupational therapist (OT) helps people continue doing tasks and activities that prolong independence and help maintain a sense of joy and meaning in their lives. […] A speech-language pathologist (SLP) works with people who are having issues with speech, swallowing and language. […] A feeding tube can be a safe and helpful option for people with CBD who are experiencing difficulties with swallowing. […] When living with a serious and progressive disease, its normal to experience sadness, uncertainty and fear about what the future may hold. […] The most common mood symptom for people with CBD is depression, and some people may experience anxiety or apathy. […] Possible medications for depression and anxiety for people with CBD include selective serotonin reuptake inhibitors (SSRIs), serotonin and norepinephrine reuptake inhibitors (SNRIs), and gabapentin.

• #64 Corticobasal Syndrome | Baylor Medicine

  https://www.bcm.edu/healthcare/specialties/neurology/parkinsons-disease-and-movement-disorders/corticobasal-syndrome

  Other treatments for CBS include physical therapy and stretching exercises designed to maintain range of motion, relieve rigidity and to prevent contractures and deformities as well as to maintain good strength and condition of muscles. […] Because of swallowing problems, some patients require placement of a feeding tube (PEG) directly into the stomach to maintain adequate nutrition and prevent aspiration pneumonia. […] At present, there are no therapies that can reverse or even slow the progression of CBS.

• #65

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  A speech and language therapist can help assess and treat speech and swallowing problems. […] You may be referred to a dietitian, who will advise you about making changes to your diet, such as including food and liquids that are easier to swallow, while ensuring that you eat a balanced diet. […] Palliative care aims to relieve pain and other distressing symptoms while providing psychological, social and spiritual support. It can be offered at any stage of CBD, alongside other treatments. […] Many people with CBD make plans for the future that outline their wishes about medical care and other decisions. They share these plans with both their family and the health professionals involved in their care. […] If someone you know develops CBD, you may need information and advice about caring for them.

• #66 Corticobasal degeneration | Monash Health

  https://monashhealth.org/services/movement-disorders-program/understanding-movement-disorders/corticobasal-degeneration/

  A physiotherapist specialised in movement disorders such as CBD can assess walking and balance problems and recommend ways to improve mobility and safety. […] A speech pathologist specialised in movement disorders such as CBD can assess the persons speech and teach strategies to improve them. […] A dietitian specialised in movement disorders such as CBD can assess the persons diet and provide them with suggested menus to improve any dietary problems they may have. […] A social worker specialised in movement disorders such as CBD can assist the person with CBD, their caregiver and family negotiate the challenges faced across the life time of the persons condition. […] It is important that the person with CBD, their caregiver and family speak to the neurologist about any changes in cognition, behaviour or mood. […] A neuropsychologist specialised in movement disorders such as CBD can assess a persons cognition and provide strategies to optimise independence.

• #67 Corticobasal degeneration (corticobasal syndrome) – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/corticobasal-degeneration/diagnosis-treatment/drc-20475446

  A diagnosis of corticobasal degeneration (corticobasal syndrome) is made based on your symptoms, exam and testing. […] Our caring team of Mayo Clinic experts can help you with your corticobasal degeneration (corticobasal syndrome)-related health concerns. […] There are no treatments that help slow the progression of corticobasal degeneration (corticobasal syndrome). But if your symptoms are due to Alzheimer’s disease, new medicines may be available. Your healthcare professional may recommend medicines to try to manage your symptoms. […] Occupational and physical therapy may help you manage the disabilities caused by corticobasal degeneration. Walking devices may help with mobility and prevent falls. Speech therapy can help with communication and swallowing. A dietitian may help you ensure you get proper nutrition and lower the risk of inhaling food into the lungs, known as aspiration. […] For corticobasal degeneration, some basic questions to ask include: What’s likely causing my symptoms? […] Your healthcare professional is likely to ask you several questions, such as: When did your symptoms begin?

• #68 Corticobasal degeneration – Parkinson’s Australia

  https://www.parkinsons.org.au/information-hub/corticobasal-degeneration/

  Corticobasal degeneration (CBD), also known as corticobasal syndrome (CBS), is a rare neurological disorder considered an Atypical Parkinson’s condition. […] By building a strong support system and implementing adaptive treatment strategies, individuals with Parkinson’s corticobasal degeneration (CBD) can enhance their resilience and overall wellbeing. […] There are currently no treatments that are shown to help slow the progression of CBD. Your GP or neurologist may recommend medications to manage your symptoms. […] Getting occupational and physical therapy (OT and PT respectively) can also help manage symptoms. An OT can recommend walking devices that may help with mobility and prevent falls. PTs can help with symptom management. A Speech Pathologist can help with communication and swallowing problems. A dietitian may be helpful in ensuring proper nutrition and reducing the risk of inhaling food into the lungs (aspiration). Support and allied health input is recommended. […] Swallowing assessment and dietary modifications may help, and modifying the environment will help with safety. Parkinson’s nurse specialists are familiar with this condition and can be a valuable resource and support for the person and family.

• #69 Corticobasal degeneration (corticobasal syndrome) | Beacon Health System

  https://www.beaconhealthsystem.org/library/diseases-and-conditions/corticobasal-degeneration-corticobasal-syndrome?content_id=CON-20209448

  Corticobasal degeneration (corticobasal syndrome) can have several causes. […] There are no treatments that help slow the progression of corticobasal degeneration (corticobasal syndrome). But if your symptoms are due to Alzheimer’s disease, new medicines may be available. Your healthcare professional may recommend medicines to try to manage your symptoms. […] Occupational and physical therapy may help you manage the disabilities caused by corticobasal degeneration. Walking devices may help with mobility and prevent falls. Speech therapy can help with communication and swallowing. A dietitian may help you ensure you get proper nutrition and lower the risk of inhaling food into the lungs, known as aspiration.

• #70

  https://www.amerikanhastanesi.org/mayo-clinic-care-network/mayo-clinic-health-information-library/diseases-conditions/corticobasal-degeneration-corticobasal-syndrome

  People with corticobasal degeneration (corticobasal syndrome) may develop serious complications. People with the disease may develop pneumonia, blood clots in the lungs or a dangerous response to an infection, known as sepsis. Complications often lead to death. […] There are no treatments that help slow the progression of corticobasal degeneration (corticobasal syndrome). But if your symptoms are due to Alzheimer’s disease, new medicines may be available. Your healthcare professional may recommend medicines to try to manage your symptoms. […] Occupational and physical therapy may help you manage the disabilities caused by corticobasal degeneration. Walking devices may help with mobility and prevent falls. Speech therapy can help with communication and swallowing. A dietitian may help you ensure you get proper nutrition and lower the risk of inhaling food into the lungs, known as aspiration.

• #71 Corticobasal degeneration (corticobasal syndrome) | Beacon Health System

  https://www.beaconhealthsystem.org/library/diseases-and-conditions/corticobasal-degeneration-corticobasal-syndrome?content_id=CON-20209448

  Corticobasal degeneration (corticobasal syndrome) can have several causes. […] There are no treatments that help slow the progression of corticobasal degeneration (corticobasal syndrome). But if your symptoms are due to Alzheimer’s disease, new medicines may be available. Your healthcare professional may recommend medicines to try to manage your symptoms. […] Occupational and physical therapy may help you manage the disabilities caused by corticobasal degeneration. Walking devices may help with mobility and prevent falls. Speech therapy can help with communication and swallowing. A dietitian may help you ensure you get proper nutrition and lower the risk of inhaling food into the lungs, known as aspiration.

• #72 Corticobasal Syndrome | Baylor Medicine

  https://www.bcm.edu/healthcare/specialties/neurology/parkinsons-disease-and-movement-disorders/corticobasal-syndrome

  Other treatments for CBS include physical therapy and stretching exercises designed to maintain range of motion, relieve rigidity and to prevent contractures and deformities as well as to maintain good strength and condition of muscles. […] Because of swallowing problems, some patients require placement of a feeding tube (PEG) directly into the stomach to maintain adequate nutrition and prevent aspiration pneumonia. […] At present, there are no therapies that can reverse or even slow the progression of CBS.

• #73 Corticobasal Syndrome – Frontotemporal Degeneration | AFTD

  https://www.theaftd.org/what-is-ftd/corticobasal-syndrome/

  Corticobasal syndrome (CBS) belongs to the category of FTD disorders that primarily affect movement. […] There is no approved treatment available to slow the course of corticobasal degeneration, and the symptoms of the disease are generally resistant to therapy. […] Although there is no current treatment for CBS, therapy does help manage the symptoms. Occupational and physical therapies provide passive range of motion in affected muscles, and help prevent contractures (paralysis of a muscle in the tense state) in rigid limbs. […] It is important for caregivers and families to think about long-term management issues and identify a team of experts who can help with difficult medical, financial, and emotional challenges. It is imperative to have a physician who is knowledgeable about frontotemporal degeneration and CBS. Other medical specialists who may be helpful include: speech therapists, occupational and physical therapists, neuropsychologists, nurses (especially home-care nursing), and genetic counselors. […] Corticobasal Syndrome usually progresses slowly over the course of 6 to 8 years. During this time, the diagnosed person’s ability to live and function independently is diminished, leaving them dependent on others for activities of daily living.

• #74

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  A speech and language therapist can help assess and treat speech and swallowing problems. […] You may be referred to a dietitian, who will advise you about making changes to your diet, such as including food and liquids that are easier to swallow, while ensuring that you eat a balanced diet. […] Palliative care aims to relieve pain and other distressing symptoms while providing psychological, social and spiritual support. It can be offered at any stage of CBD, alongside other treatments. […] Many people with CBD make plans for the future that outline their wishes about medical care and other decisions. They share these plans with both their family and the health professionals involved in their care. […] If someone you know develops CBD, you may need information and advice about caring for them.

• #75

  https://111.wales.nhs.uk/encyclopaedia/c/article/corticobasaldegeneration/

  Corticobasal degeneration (CBD) is a rare condition that can cause gradually worsening problems with movement, speech, memory and swallowing. […] As someone with CBD can be affected in many different ways, treatment and care is best provided by a team of health and social care professionals working together. Treatments may include: medication – to improve stiffness and muscle spasms, sleep and mood, pain or memory; physiotherapy – to help with movement and balance difficulties; speech and language therapy – to help with communication and swallowing problems; occupational therapy – to improve the skills and abilities needed for daily activities at home; palliative care and advanced care planning. […] Care will be provided by a team of health and social care professionals working together. This is known as a multidisciplinary team.

• #76

  https://www.aurorahealthcare.org/services/neuroscience/neurology/neurological-conditions/corticobasal-degeneration

  Corticobasal degeneration (CBD), sometimes referred to as corticobasal syndrome (CBS) is a serious brain condition where over time, you start having trouble walking and talking. […] Right now, there aren’t any treatments that can stop it, but therapies such as speech therapy, physical therapy and occupational therapy can help you manage the symptoms better. […] The focus of treatment is managing the difficulties with speech and motor skills thats caused by corticobasal degeneration. […] Physical therapy, occupational therapy and speech therapy are often utilized to help improve daily life and help maintain independence. These therapies help with mobility, muscle weakness, communication and swallowing. […] Palliative care may be utilized to help manage symptoms and provide relief. Palliative care can be administered in hospitals, clinics, nursing facilities or at home after diagnosis and at the same time as treatment.

• #77 Corticobasal Degeneration CBD | Definitions, Symptoms & Advice

  https://www.pspassociation.org.uk/what-is-cbd/

  While there is currently no cure for CBD, there are ways to help alleviate symptoms and improve the quality of life for people affected. You may be offered support from multidisciplinary care teams and support networks like PSPA. […] Physiotherapists can design specific exercises that help maintain muscle strength and flexibility, which can prolong independence in daily activities and prevent falls. […] Occupational therapists work with people living with CBD to help them maintain their skills for daily activities. They also suggest home modifications and adaptive tools that make daily tasks easier and safer, such as modified utensils for eating, grab bars in bathrooms and customised seating. […] As CBD progresses, palliative care becomes essential for relieving symptoms and improving quality of life. This care includes pain management, nutritional support, and addressing psychological and spiritual needs. […] PSPA plays a pivotal role in supporting individuals and families living with CBD by providing information and support services and advocating for better care and research into the disease.

• #78 Diagnosis and treatment of corticobasal degeneration – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24469408/

  Treating the behavioral symptoms associated with CBD is critical in an attempt to treat symptoms for which we have good pharmacologic interventions and to hopefully improve quality of life. General supportive care is important, including assessing for sores related to dystonia or immobility, monitoring dysphagia, and identifying needs for support services. Finally, as with other relentlessly progressive neurodegenerative diseases, it is critical to provide family and caregiver support and to assess for when palliative care services will serve the patient best.

• #79 What to Do About… Corticobasal Syndrome | AFTD

  https://www.theaftd.org/posts/uncategorized/what-to-do-about-corticobasal-syndrome/

  Guidance for Medical Health Care Teams […] Encourage referrals to physical, speech, and occupational therapy to design care strategies to maintain independence in activities of daily living, assess the need for assistive devices for gait and balance, and monitor for problems with swallowing. […] Consider referring the person diagnosed for a palliative care consultation. Initiating hospice services early can ease the transition and provide support in the home.

• #80

  https://www.nhs.uk/conditions/corticobasal-degeneration/treatment/

  A speech and language therapist can help assess and treat speech and swallowing problems. […] You may be referred to a dietitian, who will advise you about making changes to your diet, such as including food and liquids that are easier to swallow, while ensuring that you eat a balanced diet. […] Palliative care aims to relieve pain and other distressing symptoms while providing psychological, social and spiritual support. It can be offered at any stage of CBD, alongside other treatments. […] Many people with CBD make plans for the future that outline their wishes about medical care and other decisions. They share these plans with both their family and the health professionals involved in their care. […] If someone you know develops CBD, you may need information and advice about caring for them.

• #81 Corticobasal ganglionic degeneration (CBGD)

  https://dizziness-and-balance.com/disorders/central/movement/corticobasal.html

  Corticobasal ganglionic degeneration, also known as Corticobasal degeneration or corticobasal syndrome (CBS). We will call it CBGD. CBGD is a rare progressive neurological disorder characterized by a combination of Parkinsonism and cortical dysfunction. […] Management is based on appropriate use of appliances, prevention of medical complications, and appropriate use of nursing. Patients with CBGD and caregivers should establish early on the plan regarding invasive care — intubation, feeding tubes, as these issues are almost certain to come up in the course of the disease. Not every patient wants to die on a ventilator. It is best to make it clear early on what the wishes are of the person with CBGD with respect to various types of invasive treatment, and make sure that they are carried out, in spite of the usual mission of our medical system to sustain life at any cost.

• #82 Corticobasal Degeneration | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/157387

  The treatment framework below is largely derived from the CurePSP Centers of Care consensus on best practices in PSP and CBS clinical management. However, given the large clinical heterogeneity in the disease presentation and individual disease manifestations, a tailored care plan must be synthesized for individuals with CBD with the help of an interprofessional team including neurologists, psychotherapists, speech therapists, psychiatrists, ophthalmologists, sleep specialists, occupational therapists, physical therapists, and palliative care physicians. […] Caregiver support is crucial, and families should be educated on available resources, including support groups, palliative care, and respite services. Discussions about advance care planning, including legal and financial considerations, should be introduced early to ensure the patient’s wishes are respected as the disease progresses.

• #83 Progressive supranuclear palsy & Parkinson’s disease | APDA

  https://www.apdaparkinson.org/progressive-supranuclear-palsy-corticobasal-degeneration/

  Corticobasal degeneration (CBD) is less common than progressive supranuclear palsy (PSP), and both are significantly less common than Parkinson’s disease (PD). […] The symptoms of CBD tend to be very asymmetrical, with one side of the body being predominantly affected. […] The term corticobasal syndrome (CBS) is used to describe the most common signs and symptoms of the disorder which include: […] Treatment is focused on ensuring the motor and nonmotor symptoms of the disease are treated in a multidisciplinary manner with continuous rehabilitation, patient comfort, and care partner concerns addressed as frequently as possible. […] There is a special need for advanced care planning and timely initiation of palliative care and hospice in CBD, especially when self-care, swallowing, or independent mobility are affected.

• #84 Progressive supranuclear palsy & Parkinson’s disease | APDA

  https://www.apdaparkinson.org/progressive-supranuclear-palsy-corticobasal-degeneration/

  The progression of PSP is typically more rapid than PD, leading to dysphagia (difficulty in swallowing), falls causing injury, and immobility much earlier in the course than in PD. Therefore, advanced care planning and palliative care should be initiated as soon as possible to mitigate discomfort and maintain patient and care partner quality of life.

• #85 Progressive supranuclear palsy & Parkinson’s disease | APDA

  https://www.apdaparkinson.org/article/progressive-supranuclear-palsy-corticobasal-degeneration/

  Corticobasal degeneration (CBD) is less common than progressive supranuclear palsy (PSP), and both are significantly less common than Parkinson’s disease (PD). […] The symptoms of CBD tend to be very asymmetrical, with one side of the body being predominantly affected. […] While the definite diagnosis of CBD can only be made at autopsy, the term corticobasal syndrome (CBS) is used to describe the most common signs and symptoms of the disorder which include: […] As in PSP, there is no specific medication for CBD and symptoms are typically not responsive to Levodopa. Treatment is focused on ensuring the motor and nonmotor symptoms of the disease are treated in a multidisciplinary manner with continuous rehabilitation, patient comfort, and care partner concerns addressed as frequently as possible. […] There is a special need for advanced care planning and timely initiation of palliative care and hospice in CBD, especially when self-care, swallowing, or independent mobility are affected.

• #86 What to Do About… Corticobasal Syndrome | AFTD

  https://www.theaftd.org/posts/uncategorized/what-to-do-about-corticobasal-syndrome/

  Guidance for Medical Health Care Teams […] Encourage referrals to physical, speech, and occupational therapy to design care strategies to maintain independence in activities of daily living, assess the need for assistive devices for gait and balance, and monitor for problems with swallowing. […] Consider referring the person diagnosed for a palliative care consultation. Initiating hospice services early can ease the transition and provide support in the home.

• #87 Corticobasal Degeneration

  https://neurosciences.ucsd.edu/centers-programs/movement-disorders/community/disease-overview/cbd.html

  Corticobasal degeneration (CBD) is a rare and gradually progressive neurodegenerative disorder that is difficult to diagnose and treat because its symptoms vary and are similar to those of other neurological disorders. […] The care for CBD patients is difficult and demanding. Attention should be given to cues that the family is in distress, and referrals for respite care, in-home health assistance, hospice, and counseling should be made to support the families and caregivers and relieve caregiver burden and distress. Treatment of CBD is aimed at safety, symptom management, and patient and family supportive measures.

• #88 Corticobasal Degeneration

  https://neurosciences.ucsd.edu/centers-programs/movement-disorders/community/disease-overview/cbd.html

  Corticobasal degeneration (CBD) is a rare and gradually progressive neurodegenerative disorder that is difficult to diagnose and treat because its symptoms vary and are similar to those of other neurological disorders. […] The care for CBD patients is difficult and demanding. Attention should be given to cues that the family is in distress, and referrals for respite care, in-home health assistance, hospice, and counseling should be made to support the families and caregivers and relieve caregiver burden and distress. Treatment of CBD is aimed at safety, symptom management, and patient and family supportive measures.

• #89 Living with CBS :: Fight Parkinson’s – Together we can

  https://www.fightparkinsons.org.au/living-with-cbs/

  Corticobasal Syndrome (CBS) is a rare progressive neurological disorder resulting from degeneration in a specific part of the brain. […] Fight Parkinsons is Australias leading support organisation with a dedicated commitment to research, education, and support for people with CBS to live full and active lives for as long as possible. […] Treatments and therapies are available to help manage symptoms of CBS, however there is no cure and we do not know of any way to prevent it from occurring or slow its progression. […] It is important that people with CBS see a neurologist, preferably one with expertise in movement disorders. […] Depending on symptoms, it is also important to seek the advice of other health professionals with expertise in the condition, such as a physiotherapist, occupational therapist, speech pathologist (speech therapist) or counsellor.

• #90 Living with CBS :: Fight Parkinson’s – Together we can

  https://www.fightparkinsons.org.au/living-with-cbs/

  Fight Parkinsons can provide information about neurologists and other health professionals in your area. […] People with CBS should visit their neurologist regularly for ongoing treatment and advice. […] The best place to start is by contacting Fight Parkinsons. […] Fight Parkinsons provides information and support for people with CBS and their families and carers. […] There are a range of services available to assist people with daily living and to help members of the community to make the most of living with an illness or disability, including: information and emotional support either over the phone or in person, therapies and resources to maintain independence, financial support and assistance, support groups where you can share your experiences and learn from others, help with personal care, such as bathing, dressing, and eating, home delivered meals and other food services, home help for assistance with housework, laundry, and shopping, help for carers, including information, counselling, advice and respite to help them take a break from caring.

• #91 Corticobasal Syndrome (CBS): Causes, Symptoms, Treatment

  https://www.healthline.com/health/parkinsons/corticobasal-syndrome

  Corticobasal syndrome (CBS) is a rare condition that primarily affects your movement. It can also gradually worsen your speech, memory, and swallowing. […] Corticobasal degeneration (CBD) causes CBS. CBD is the gradual damage and death of brain cells (neurons) caused by the buildup of a toxic protein called tau. […] No treatment can slow down or reverse the progression of CBS. However, certain drugs can help manage the symptoms. […] The following therapies may also help manage CBS symptoms: physical therapy, occupational therapy, speech therapy. […] Navigating neurodegenerative diseases such as CBS is a very challenging task. It can take years to arrive at a correct diagnosis. […] Here’s what you can do to help a loved one with CBS: Allow them a safe space to help process their emotions. Learn as much as you can about CBS and CBD and how to provide care.

• #92 Corticobasal Syndrome (CBS): Causes, Symptoms, Treatment

  https://www.healthline.com/health/parkinsons/corticobasal-syndrome

  Caring for someone with a neurodegenerative disease can be very rewarding. But it also can be very exhausting physically, emotionally, and mentally. […] Because there’s no treatment for CBS, it will eventually lead to serious complications. […] CBS is a rare neurodegenerative disorder that gradually worsens your physical and cognitive functions. The buildup of a toxic protein in your brain cells called tau causes CBS. […] No treatment exists for this condition, but some drugs and other therapies can help you manage its symptoms.

• #93 Living with CBS :: Fight Parkinson’s – Together we can

  https://www.fightparkinsons.org.au/living-with-cbs/

  Fight Parkinsons can provide information about neurologists and other health professionals in your area. […] People with CBS should visit their neurologist regularly for ongoing treatment and advice. […] The best place to start is by contacting Fight Parkinsons. […] Fight Parkinsons provides information and support for people with CBS and their families and carers. […] There are a range of services available to assist people with daily living and to help members of the community to make the most of living with an illness or disability, including: information and emotional support either over the phone or in person, therapies and resources to maintain independence, financial support and assistance, support groups where you can share your experiences and learn from others, help with personal care, such as bathing, dressing, and eating, home delivered meals and other food services, home help for assistance with housework, laundry, and shopping, help for carers, including information, counselling, advice and respite to help them take a break from caring.

• #94 Living with CBS :: Fight Parkinson’s – Together we can

  https://www.fightparkinsons.org.au/living-with-cbs/

  Our Health Team offers a national specialist support for individuals and families and can help with information on symptom management, services, health-related benefits and entitlements and everyday living. […] We can also provide specific information for, and advocate on your behalf, to medical and healthcare professionals. […] Fight Parkinsons provides a range of resources and publications that can assist people living with CBS, their families and carers to feel more informed about the condition. […] It is important to get help and to communicate your needs.

• #95 Corticobasal Degeneration | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/157387

  The treatment framework below is largely derived from the CurePSP Centers of Care consensus on best practices in PSP and CBS clinical management. However, given the large clinical heterogeneity in the disease presentation and individual disease manifestations, a tailored care plan must be synthesized for individuals with CBD with the help of an interprofessional team including neurologists, psychotherapists, speech therapists, psychiatrists, ophthalmologists, sleep specialists, occupational therapists, physical therapists, and palliative care physicians. […] Caregiver support is crucial, and families should be educated on available resources, including support groups, palliative care, and respite services. Discussions about advance care planning, including legal and financial considerations, should be introduced early to ensure the patient’s wishes are respected as the disease progresses.

• #96 Corticobasal Degeneration CBD | Definitions, Symptoms & Advice

  https://www.pspassociation.org.uk/what-is-cbd/

  While there is currently no cure for CBD, there are ways to help alleviate symptoms and improve the quality of life for people affected. You may be offered support from multidisciplinary care teams and support networks like PSPA. […] Physiotherapists can design specific exercises that help maintain muscle strength and flexibility, which can prolong independence in daily activities and prevent falls. […] Occupational therapists work with people living with CBD to help them maintain their skills for daily activities. They also suggest home modifications and adaptive tools that make daily tasks easier and safer, such as modified utensils for eating, grab bars in bathrooms and customised seating. […] As CBD progresses, palliative care becomes essential for relieving symptoms and improving quality of life. This care includes pain management, nutritional support, and addressing psychological and spiritual needs. […] PSPA plays a pivotal role in supporting individuals and families living with CBD by providing information and support services and advocating for better care and research into the disease.

• #97 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #98 Living with CBS :: Fight Parkinson’s – Together we can

  https://www.fightparkinsons.org.au/living-with-cbs/

  Corticobasal Syndrome (CBS) is a rare progressive neurological disorder resulting from degeneration in a specific part of the brain. […] Fight Parkinsons is Australias leading support organisation with a dedicated commitment to research, education, and support for people with CBS to live full and active lives for as long as possible. […] Treatments and therapies are available to help manage symptoms of CBS, however there is no cure and we do not know of any way to prevent it from occurring or slow its progression. […] It is important that people with CBS see a neurologist, preferably one with expertise in movement disorders. […] Depending on symptoms, it is also important to seek the advice of other health professionals with expertise in the condition, such as a physiotherapist, occupational therapist, speech pathologist (speech therapist) or counsellor.

• #99 Living with CBS :: Fight Parkinson’s – Together we can

  https://www.fightparkinsons.org.au/living-with-cbs/

  Fight Parkinsons can provide information about neurologists and other health professionals in your area. […] People with CBS should visit their neurologist regularly for ongoing treatment and advice. […] The best place to start is by contacting Fight Parkinsons. […] Fight Parkinsons provides information and support for people with CBS and their families and carers. […] There are a range of services available to assist people with daily living and to help members of the community to make the most of living with an illness or disability, including: information and emotional support either over the phone or in person, therapies and resources to maintain independence, financial support and assistance, support groups where you can share your experiences and learn from others, help with personal care, such as bathing, dressing, and eating, home delivered meals and other food services, home help for assistance with housework, laundry, and shopping, help for carers, including information, counselling, advice and respite to help them take a break from caring.

• #100 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #101 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #102 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #103 Corticobasal Syndrome and Corticobasal Degeneration: Background, Pathophysiology, Epidemiology

  https://emedicine.medscape.com/article/1150039-overview

  Corticobasal degeneration (CBD), a sporadic neurodegenerative 4-repeat tauopathy, is a pathologically defined entity associated with several clinical phenotypes. The most common phenotype corticobasal syndrome (CBS) is defined by progressive dementia and typically asymmetric parkinsonism unresponsive to dopaminergic therapy, dystonia, limb apraxia, and myoclonus, but these may occur as a result of a number of other pathologic entities. […] There is no disease-modifying therapy for CBD to date, but a number of symptomatic treatments can be useful, particularly botulinum toxin injections for dystonia and several other indications. Lifelong rehabilitation of these patients with physical, occupational, speech, and swallow therapy focused on maximizing daily function is crucial to limit deconditioning and potentially slow decline.

• #104 Corticobasal Syndrome | University of Michigan Health

  https://www.uofmhealth.org/conditions-treatments/corticobasal-syndrome

  Corticobasal Syndrome, or CBS, (also referred to as Corticobasal Degeneration) is a progressive, atypical parkinsonian disorder caused by the accumulation of the abnormally folded protein tau in the nervous system. […] Many patients living with CBS will need frequent evaluations and support services from physical, occupational, and speech-swallow therapists, whether at an outpatient rehab center or in the home. In general, physical therapy is crucial to help with gait, balance, fall prevention, and mobility while occupational therapy helps with activities of daily living like getting dressed, going to the bathroom, and eating. […] As speech and swallowing are often affected in CBS, speech-swallow therapy is frequently prescribed and can be very helpful to improve speech and prevent aspirating foods-liquids.

• #105 Diagnosis and treatment of corticobasal degeneration – PubMed

  https://pubmed.ncbi.nlm.nih.gov/24469408/

  Treating the behavioral symptoms associated with CBD is critical in an attempt to treat symptoms for which we have good pharmacologic interventions and to hopefully improve quality of life. General supportive care is important, including assessing for sores related to dystonia or immobility, monitoring dysphagia, and identifying needs for support services. Finally, as with other relentlessly progressive neurodegenerative diseases, it is critical to provide family and caregiver support and to assess for when palliative care services will serve the patient best.

• #106 Corticobasal Degeneration CBD | Definitions, Symptoms & Advice

  https://www.pspassociation.org.uk/what-is-cbd/

  Corticobasal Degeneration (CBD) is a progressive neurological condition. It presents complex challenges, not only to people diagnosed but also to their families, caregivers, and the healthcare professionals who support them. […] The purpose of this page is to educate anyone looking for information about CBD, to help improve understanding of the condition and the care and support available. […] Living with CBD presents a range of challenges that can profoundly affect daily activities and independence. This progressive neurological disorder impacts various aspects of physical and cognitive functioning, leading to significant lifestyle changes and dependence on others. […] The progressive nature of CBD often leads to severe disability, requiring multidisciplinary care and support to improve the quality of life for those affected.

• #107 A Wolf in Sheep’s Clothing: An ‘‘Alien Leg’’ in Corticobasal Syndrome | Tremor and Other Hyperkinetic Movements

  https://tremorjournal.org/articles/10.5334/tohm.358

  Alien limb phenomenon occurs in 5060% of patients with corticobasal syndrome (CBS) and usually presents with an alien hand phenomenon. The alien foot presentation is rarer and may be misdiagnosed, as foot involvement can lead to erroneous localization of the clinical problem to the knee, hip, or back. […] Alien hand syndrome has been reported in up to 60% of patients with corticobasal syndrome (CBS). The hand moves on its own and frequently does not obey the patients commands. […] An alien hand is commonly recognized as part of CBS, but clinicians may not consider the possibility of an alien foot leading to delayed diagnosis and inappropriate investigations and treatment. […] Alien limb phenomenon is rare at presentation of CBS, but may develop in 5060% of patients. […] It is important that clinicians are aware of the alien leg phenomenon given that this is now included in the diagnostic criteria for CBS.

• #108 A Wolf in Sheep’s Clothing: An ‘‘Alien Leg’’ in Corticobasal Syndrome | Tremor and Other Hyperkinetic Movements

  https://tremorjournal.org/articles/10.5334/tohm.358

  Alien limb phenomenon occurs in 5060% of patients with corticobasal syndrome (CBS) and usually presents with an alien hand phenomenon. The alien foot presentation is rarer and may be misdiagnosed, as foot involvement can lead to erroneous localization of the clinical problem to the knee, hip, or back. […] Alien hand syndrome has been reported in up to 60% of patients with corticobasal syndrome (CBS). The hand moves on its own and frequently does not obey the patients commands. […] An alien hand is commonly recognized as part of CBS, but clinicians may not consider the possibility of an alien foot leading to delayed diagnosis and inappropriate investigations and treatment. […] Alien limb phenomenon is rare at presentation of CBS, but may develop in 5060% of patients. […] It is important that clinicians are aware of the alien leg phenomenon given that this is now included in the diagnostic criteria for CBS.

• #109 Corticobasal syndrome: a practical guide | Practical Neurology

  https://pn.bmj.com/content/21/4/276

  Although there are no proven treatments for cognitive deficits such as memory and attentional impairment in corticobasal syndrome, many clinicians consider trialling cholinesterase inhibitors if there is a strong suggestion from the history (memory impairment), examination (predominate cortical signs) and cognitive assessment (visuospatial or memory deficits) to suggest an underlying Alzheimer’s disease pathology. […] Specific options to consider for the alien limb syndrome are summarised above. […] We advocate for screening all patients presenting with corticobasal syndrome for neuropsychiatric symptoms, particularly as these features have a major impact on quality of life for patients and their families. […] In summary, a corticobasal syndrome diagnosis can be supported—but not refuted—by imaging features, while emerging techniques may direct the neurologist to the underlying pathological cause of a patient’s syndrome—information that over time will have practical relevance.

• #110 A Wolf in Sheep’s Clothing: An ‘‘Alien Leg’’ in Corticobasal Syndrome | Tremor and Other Hyperkinetic Movements

  https://tremorjournal.org/articles/10.5334/tohm.358

  Alien limb phenomenon occurs in 5060% of patients with corticobasal syndrome (CBS) and usually presents with an alien hand phenomenon. The alien foot presentation is rarer and may be misdiagnosed, as foot involvement can lead to erroneous localization of the clinical problem to the knee, hip, or back. […] Alien hand syndrome has been reported in up to 60% of patients with corticobasal syndrome (CBS). The hand moves on its own and frequently does not obey the patients commands. […] An alien hand is commonly recognized as part of CBS, but clinicians may not consider the possibility of an alien foot leading to delayed diagnosis and inappropriate investigations and treatment. […] Alien limb phenomenon is rare at presentation of CBS, but may develop in 5060% of patients. […] It is important that clinicians are aware of the alien leg phenomenon given that this is now included in the diagnostic criteria for CBS.

• #111 Corticobasal Syndrome | Baylor Medicine

  https://www.bcm.edu/healthcare/specialties/neurology/parkinsons-disease-and-movement-disorders/corticobasal-syndrome

  Corticobasal syndrome (CBS) is a form of atypical parkinsonism (a parkinsonism-plus syndrome), which means that it shares some features with Parkinson’s disease such as slowness of movement (bradykinesia), stiffness (rigidity), tremor, and postural instability (balance difficulties). […] CBS results in gradual loss of nerve cells (neurodegeneration) in the surface of the brain (the cerebral cortical areas) as well as deep structures (the basal ganglia). […] The most characteristic presenting feature of CBS is the gradual loss of use of one hand or leg (called „apraxia”). […] The symptoms of CBS usually worsen over three to eight years and often result in great disability, including the inability to communicate or ambulate. […] In contrast to other parkinsonian syndromes, levodopa almost never provides any meaningful improvement in the symptoms.

• #112 Corticobasal Syndrome | Baylor Medicine

  https://www.bcm.edu/healthcare/specialties/neurology/parkinsons-disease-and-movement-disorders/corticobasal-syndrome

  Corticobasal syndrome (CBS) is a form of atypical parkinsonism (a parkinsonism-plus syndrome), which means that it shares some features with Parkinson’s disease such as slowness of movement (bradykinesia), stiffness (rigidity), tremor, and postural instability (balance difficulties). […] CBS results in gradual loss of nerve cells (neurodegeneration) in the surface of the brain (the cerebral cortical areas) as well as deep structures (the basal ganglia). […] The most characteristic presenting feature of CBS is the gradual loss of use of one hand or leg (called „apraxia”). […] The symptoms of CBS usually worsen over three to eight years and often result in great disability, including the inability to communicate or ambulate. […] In contrast to other parkinsonian syndromes, levodopa almost never provides any meaningful improvement in the symptoms.

• #113 Corticobasal syndrome: a practical guide | Practical Neurology

  https://pn.bmj.com/content/21/4/276

  Corticobasal syndrome is a disorder of movement, cognition and behaviour with several possible underlying pathologies, including corticobasal degeneration. […] Its treatment is largely symptomatic and is best undertaken within a multidisciplinary setting, including a neurologist, physiotherapist, occupational therapist, speech language therapist, psychiatrist and, ultimately, a palliative care clinician. […] We diagnosed corticobasal syndrome referred her to physiotherapy and occupational therapy. […] We gave an unsuccessful trial of levodopa and sought speech and language involvement; botulinum injections into the neck extensors gave some benefit. […] Management to mitigate the effects of apraxia is best coordinated by an occupational therapist with knowledge of the condition. […] Speech therapists can teach patients techniques to overcome some of their language deficits and it is worth seeking their input when speech difficulties are a prominent feature—they can also provide patients with practical advice if swallowing difficulties develop.

• #114 Corticobasal Degeneration – Neurology MIND Care – Long Island NY

  https://neurologymindcare.com/services/corticobasal-degeneration/

  Corticobasal degeneration is a type of dementia caused by frontotemporal degeneration. […] Corticobasal degeneration is sometimes used interchangeably with the term corticobasal syndrome, but it is more accurately reserved for a particular pathologic diagnosis from an autopsy, whereas corticobasal syndrome is the term used to describe the clinical symptoms (which can sometimes be caused pathologically by Alzheimer’s disease instead of corticobasal degeneration). […] Corticobasal degeneration affects motor function early-on, not just cognitive function like in Alzheimer’s disease. […] A comprehensive evaluation can clarify if a person’s motor and cognitive decline are caused by one unifying diagnosis like corticobasal syndrome/degeneration. […] Anticipatory guidance in corticobasal degeneration is important because the early motor symptoms can result in safety issues even in a mild stage of disease. […] Recommended therapies may include physical therapy, occupational therapy, speech-language therapy, and/or swallow therapy.

• #115 Corticobasal Syndrome | Baylor Medicine

  https://www.bcm.edu/healthcare/specialties/neurology/parkinsons-disease-and-movement-disorders/corticobasal-syndrome

  Corticobasal syndrome (CBS) is a form of atypical parkinsonism (a parkinsonism-plus syndrome), which means that it shares some features with Parkinson’s disease such as slowness of movement (bradykinesia), stiffness (rigidity), tremor, and postural instability (balance difficulties). […] CBS results in gradual loss of nerve cells (neurodegeneration) in the surface of the brain (the cerebral cortical areas) as well as deep structures (the basal ganglia). […] The most characteristic presenting feature of CBS is the gradual loss of use of one hand or leg (called „apraxia”). […] The symptoms of CBS usually worsen over three to eight years and often result in great disability, including the inability to communicate or ambulate. […] In contrast to other parkinsonian syndromes, levodopa almost never provides any meaningful improvement in the symptoms.

• #116 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #117 Corticobasal Syndrome | University of Michigan Health

  https://www.uofmhealth.org/conditions-treatments/corticobasal-syndrome

  Corticobasal Syndrome, or CBS, (also referred to as Corticobasal Degeneration) is a progressive, atypical parkinsonian disorder caused by the accumulation of the abnormally folded protein tau in the nervous system. […] Many patients living with CBS will need frequent evaluations and support services from physical, occupational, and speech-swallow therapists, whether at an outpatient rehab center or in the home. In general, physical therapy is crucial to help with gait, balance, fall prevention, and mobility while occupational therapy helps with activities of daily living like getting dressed, going to the bathroom, and eating. […] As speech and swallowing are often affected in CBS, speech-swallow therapy is frequently prescribed and can be very helpful to improve speech and prevent aspirating foods-liquids.

• #118 Corticobasal degeneration (corticobasal syndrome) – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/corticobasal-degeneration/diagnosis-treatment/drc-20475446

  A diagnosis of corticobasal degeneration (corticobasal syndrome) is made based on your symptoms, exam and testing. […] Our caring team of Mayo Clinic experts can help you with your corticobasal degeneration (corticobasal syndrome)-related health concerns. […] There are no treatments that help slow the progression of corticobasal degeneration (corticobasal syndrome). But if your symptoms are due to Alzheimer’s disease, new medicines may be available. Your healthcare professional may recommend medicines to try to manage your symptoms. […] Occupational and physical therapy may help you manage the disabilities caused by corticobasal degeneration. Walking devices may help with mobility and prevent falls. Speech therapy can help with communication and swallowing. A dietitian may help you ensure you get proper nutrition and lower the risk of inhaling food into the lungs, known as aspiration. […] For corticobasal degeneration, some basic questions to ask include: What’s likely causing my symptoms? […] Your healthcare professional is likely to ask you several questions, such as: When did your symptoms begin?

• #119 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #120 Corticobasal Syndrome and Corticobasal Degeneration Treatment & Management: Approach Considerations, Medical Care, Consultations

  https://emedicine.medscape.com/article/1150039-treatment

  Activity is not restricted and is in fact encouraged using a positive risk-taking approach, but increasing motor assistance is required as the disease progresses. Many corticobasal syndrome (CBS) patients lose ambulation in advanced disease stages and may require wheelchair, electric stair glide, and/or patient lift devices. […] Regular follow-up with a movement and/or cognitive neurologist is indicated to monitor for symptom changes and emergent complications. For patients receiving botulinum toxin injections, follow up at 2-3 month intervals is necessary to parallel the timing of the toxin wearing off. Patients require long-term physical, occupational, and speech/swallow therapy, even if only on a weekly basis, in order to maintain residual function and quality of life.

• #121 Corticobasal Degeneration | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/157387

  Corticobasal degeneration (CBD) is a rare and progressive neurodegenerative disorder with diverse clinical and pathological features. The most common clinical presentation, corticobasal syndrome, includes asymmetric limb rigidity, Parkinsonism, dystonia, and cortical dysfunction, such as apraxia or sensory deficits. […] Accurate early diagnosis is essential, as it can guide patient care and facilitate the development of targeted therapies and disease-specific biomarkers. […] Interprofessional care plays a critical role in managing CBD, particularly given its progressive nature and the lack of curative treatments. Collaborative care teams—neurologists, physical therapists, occupational therapists, and palliative care specialists—can optimize symptom management and address functional impairments. Early discussions of end-of-life care and support for patients and families are essential in improving the quality of life for those with this debilitating condition.

• #122 Corticobasal Degeneration | Treatment & Management | Point of Care

  https://www.statpearls.com/point-of-care/157387

  The treatment framework below is largely derived from the CurePSP Centers of Care consensus on best practices in PSP and CBS clinical management. However, given the large clinical heterogeneity in the disease presentation and individual disease manifestations, a tailored care plan must be synthesized for individuals with CBD with the help of an interprofessional team including neurologists, psychotherapists, speech therapists, psychiatrists, ophthalmologists, sleep specialists, occupational therapists, physical therapists, and palliative care physicians. […] Caregiver support is crucial, and families should be educated on available resources, including support groups, palliative care, and respite services. Discussions about advance care planning, including legal and financial considerations, should be introduced early to ensure the patient’s wishes are respected as the disease progresses.

• #123 Corticobasal Degeneration CBD | Definitions, Symptoms & Advice

  https://www.pspassociation.org.uk/what-is-cbd/

  Corticobasal Degeneration (CBD) is a progressive neurological condition. It presents complex challenges, not only to people diagnosed but also to their families, caregivers, and the healthcare professionals who support them. […] The purpose of this page is to educate anyone looking for information about CBD, to help improve understanding of the condition and the care and support available. […] Living with CBD presents a range of challenges that can profoundly affect daily activities and independence. This progressive neurological disorder impacts various aspects of physical and cognitive functioning, leading to significant lifestyle changes and dependence on others. […] The progressive nature of CBD often leads to severe disability, requiring multidisciplinary care and support to improve the quality of life for those affected.

• #124 Corticobasal Degeneration CBD | Definitions, Symptoms & Advice

  https://www.pspassociation.org.uk/what-is-cbd/

  While there is currently no cure for CBD, there are ways to help alleviate symptoms and improve the quality of life for people affected. You may be offered support from multidisciplinary care teams and support networks like PSPA. […] Physiotherapists can design specific exercises that help maintain muscle strength and flexibility, which can prolong independence in daily activities and prevent falls. […] Occupational therapists work with people living with CBD to help them maintain their skills for daily activities. They also suggest home modifications and adaptive tools that make daily tasks easier and safer, such as modified utensils for eating, grab bars in bathrooms and customised seating. […] As CBD progresses, palliative care becomes essential for relieving symptoms and improving quality of life. This care includes pain management, nutritional support, and addressing psychological and spiritual needs. […] PSPA plays a pivotal role in supporting individuals and families living with CBD by providing information and support services and advocating for better care and research into the disease.

• #125 Progressive supranuclear palsy & Parkinson’s disease | APDA

  https://www.apdaparkinson.org/article/progressive-supranuclear-palsy-corticobasal-degeneration/

  Corticobasal degeneration (CBD) is less common than progressive supranuclear palsy (PSP), and both are significantly less common than Parkinson’s disease (PD). […] The symptoms of CBD tend to be very asymmetrical, with one side of the body being predominantly affected. […] While the definite diagnosis of CBD can only be made at autopsy, the term corticobasal syndrome (CBS) is used to describe the most common signs and symptoms of the disorder which include: […] As in PSP, there is no specific medication for CBD and symptoms are typically not responsive to Levodopa. Treatment is focused on ensuring the motor and nonmotor symptoms of the disease are treated in a multidisciplinary manner with continuous rehabilitation, patient comfort, and care partner concerns addressed as frequently as possible. […] There is a special need for advanced care planning and timely initiation of palliative care and hospice in CBD, especially when self-care, swallowing, or independent mobility are affected.

• #126 Corticobasal Degeneration (Corticobasal Syndrome): What It Is

  https://my.clevelandclinic.org/health/diseases/22522-corticobasal-degeneration

  Your provider will work with you to find management techniques that fit best with the symptoms that affect you. These may look different from person to person and can change over the course of the condition. […] There currently isn’t a cure for the disease. However, therapies are available to help you manage symptoms and maintain independence for as long as possible. Your providers may also help you sort out your end-stage care needs, so it’s one fewer thing you have to worry about down the road.

• #127 Living with CBS :: Fight Parkinson’s – Together we can

  https://www.fightparkinsons.org.au/living-with-cbs/

  Corticobasal Syndrome (CBS) is a rare progressive neurological disorder resulting from degeneration in a specific part of the brain. […] Fight Parkinsons is Australias leading support organisation with a dedicated commitment to research, education, and support for people with CBS to live full and active lives for as long as possible. […] Treatments and therapies are available to help manage symptoms of CBS, however there is no cure and we do not know of any way to prevent it from occurring or slow its progression. […] It is important that people with CBS see a neurologist, preferably one with expertise in movement disorders. […] Depending on symptoms, it is also important to seek the advice of other health professionals with expertise in the condition, such as a physiotherapist, occupational therapist, speech pathologist (speech therapist) or counsellor.

• #128 Living with CBS :: Fight Parkinson’s – Together we can

  https://www.fightparkinsons.org.au/living-with-cbs/

  Our Health Team offers a national specialist support for individuals and families and can help with information on symptom management, services, health-related benefits and entitlements and everyday living. […] We can also provide specific information for, and advocate on your behalf, to medical and healthcare professionals. […] Fight Parkinsons provides a range of resources and publications that can assist people living with CBS, their families and carers to feel more informed about the condition. […] It is important to get help and to communicate your needs.

• #129

  https://www.psp.org/iwanttolearn/corticobasal-degeneration

  Corticobasal degeneration (CBD) is a rare neurodegenerative disorder that has no known cause or cure. […] Building a support team is foundational to the quality of life for the person diagnosed and their loved ones. […] Professionals that can help with symptom management, care planning and education may include: a general neurologist, or ideally a movement disorder specialist, primary care provider (PCP), nurse (NP, RN, CRN), physical therapist (PT), occupational therapist (OT), speech-language pathologist (SLP), clinical social worker (SW), nutritionist/dietician, pharmacist, psychiatrist, psychologist or neuropsychologist, ophthalmologist. […] People with CBD and related diagnoses can greatly benefit from rehabilitation therapies. Rehabilitation therapies are individualized interventions to improve or maintain quality of life.

• #130 Corticobasal Degeneration (CBD) – Brain Support Network

  https://www.brainsupportnetwork.org/education/corticobasal-degeneration/

  Corticobasal Degeneration (CBD) is the rarest of the four atypical parkinsonism disorders. […] The medical community now uses the term CBS or corticobasal syndrome to refer to a clinical diagnosis. CBD or corticobasal degeneration is now used for an autopsy-confirmed diagnosis. […] There is remarkably limited treatment for CBD/CBS. The most effective treatments are the therapies: physical therapy, occupational therapy, and speech therapy. […] Exercise is key for fall prevention and maintaining mobility. […] The medication that can be prescribed and any other treatments are focused on a few symptoms that may respond to medication or treatments such as depression, urinary incontinence, and dry eyes. […] This 55-minute AFTD webinar from November 2022 is aimed at healthcare professionals. It provides an overview of CBS and PSP symptoms and treatments, explains how both disorders differ from Parkinsons, and highlights approaches to support patients and family caregivers. […] This is a terrific 14-page guide for healthcare and social care professionals about CBD. The guide sets out the standards of care people with CBD, their carers and family members should expect.

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