Materiały źródłowe

• #1

  https://journals.lww.com/ajnonline/abstract/1964/03000/nursing_care_of_patients_with_brain_tumors.17.aspx

  Nursing care of patients with brain tumors differs from that of general surgical patients in the kinds of observations needed both pre- and post-operatively. […] Nurses taking care of these patients need an understanding of the neurophysiologic basis for the symptoms and an awareness of the need for rapid institution of nursing or medical measures to preserve life.

• #1

  https://www.lettersinhighenergyphysics.com/index.php/LHEP/article/view/1072

  Nursing care for patients with brain tumors encompasses a multifaceted approach, addressing not only the physical needs of the patient but also the emotional, psychological, and social aspects of care. […] Nurses play a crucial role in administering medications, monitoring neurological status, and managing symptoms to enhance the patient’s quality of life. […] Education is another key component, as nurses provide patients and families with essential information about the diagnosis, treatment options, potential side effects, and coping strategies. […] In addition to clinical assessment and education, nurses must foster a supportive environment that addresses the emotional and psychological impacts of a brain tumor diagnosis. […] It is vital for nursing staff to demonstrate empathy and understanding, as patients often experience anxiety, depression, and fear regarding their prognosis and treatment.

• #1 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Use this nursing care plan and management guide to provide care for patients with brain tumor. Enhance your understanding of nursing assessment, interventions, goals, and nursing diagnosis, all specifically tailored to address the unique needs of individuals with brain tumor. […] Nursing care planning goals for a patient with a brain tumor center on relieving pain, reducing anxiety, and promoting an understanding of the signs and symptoms of increased ICP and expected changes in body appearance related to the planned cranial surgery. […] The following are the nursing priorities for patients with brain tumors: Assess neurological status, Manage symptoms and provide comfort, Monitor for complications and changes in condition, Provide education and support to patients and their families, Promote self-care and independence, Provide palliative care, if needed.

• #1 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Following a thorough assessment, a nursing diagnosis is formulated to specifically address the challenges associated with brain tumors based on the nurses clinical judgement and understanding of the patients unique health condition. […] Goals and expected outcomes may include: The child will rate pain as less than (specify pain rating and scale used), The parent will verbalize reduced anxiety, The child will appear relaxed, with an absence of crying or irritability, The child will not exhibit signs of increased intracranial pressure and will participate in teaching about treatment options. […] Therapeutic interventions and nursing actions for patients with brain tumors may include: Managing Pain, Reducing Anxiety and Fear, Promoting Safety and Preventing Injury Risk. […] Patients with brain tumors may experience pain due to the compression of sensitive structures, increased pressure within the skull, and the invasion of nerve pathways.

• #1 Nursing Care Plan (NCP) for Brain Tumors | Free NURSING.com Courses

  https://nursing.com/lesson/nursing-care-plan-for-brain-tumors?quiz-view=open

  Assess the patients ability to perform ADLs independently. Identify any challenges related to self-care, mobility, and other daily activities. […] Evaluate the patients ability to communicate effectively. Assess speech, language comprehension, and any difficulties in expressing needs or thoughts. […] Monitor and document any seizure activity, including frequency, duration, and associated symptoms. Implement seizure precautions as needed. […] Assess the patients support system, including family and friends. Evaluate their understanding of the diagnosis, their ability to provide care, and the need for additional resources or support services. […] Administer prescribed medications promptly, including analgesics for pain management, anti-seizure medications, and corticosteroids to reduce inflammation.

• #1 Nursing Care Plan (NCP) for Brain Tumors | Free NURSING.com Courses

  https://nursing.com/lesson/nursing-care-plan-for-brain-tumors?quiz-view=open

  Implement continuous neurological monitoring, observing for changes in motor function, sensory perception, and signs of increased intracranial pressure. Report any deviations promptly. […] If indicated, measures to decrease intracranial pressure include keeping the head of the bed at 30 degrees or less elevation and decreasing environmental stimuli. […] Place patient on fall and seizure precautions, if indicated. […] Employ a multimodal approach to pain management, combining pharmacological interventions with non-pharmacological techniques such as positioning, relaxation, and distraction methods. […] Facilitate interdisciplinary collaboration with physicians, neurosurgeons, oncologists, and other healthcare professionals to ensure coordinated care and timely adjustments to the treatment plan.

• #1 Nursing Care Plan For Glioma – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-glioma/

  The nursing assessment for glioma is essential for understanding the patients overall health status, neurological deficits, psychosocial needs, and functional abilities. Regular and comprehensive assessments help nurses tailor individualized care plans, facilitate appropriate interventions, and address the specific challenges faced by patients with glioma. Through ongoing assessment and communication with the healthcare team, nurses play a critical role in monitoring changes in the patients condition, optimizing symptom management, and providing compassionate care throughout the course of glioma treatment and recovery. […] These nursing diagnosis address the specific healthcare needs and challenges faced by individuals with glioma. By identifying and addressing these nursing diagnoses, nurses can tailor interventions and support strategies to promote pain relief, mobility, communication, and emotional well-being. Regular monitoring, education, and collaboration with the healthcare team are essential to ensure comprehensive care for patients with glioma, fostering positive outcomes in their management of this complex condition.

• #1 Nursing Care Plan (NCP) for Brain Tumors | Free NURSING.com Courses

  https://nursing.com/lesson/nursing-care-plan-for-brain-tumors?quiz-view=open

  Monitoring and Follow-up: Establish a plan for regular monitoring and follow-up appointments to track treatment response, assess potential side effects, and adjust the care plan as needed, ensuring ongoing management and optimization of the patients quality of life. […] Nursing Assessment for Brain Tumors: Conduct a comprehensive neurological examination to assess motor function, sensory perception, reflexes, coordination, and any signs of neurological deficits. […] Evaluate cognitive abilities, including memory, attention, language skills, and executive function, to identify any changes or impairments. […] Assess the intensity, location, and characteristics of pain associated with the brain tumor. Utilize a pain scale to quantify and monitor pain levels. […] Evaluate the patients emotional well-being, coping mechanisms, and psychological status. Identify any signs of anxiety, depression, or distress.

• #1 Coping with a brain tumor | MD Anderson Cancer Center

  https://www.mdanderson.org/cancerwise/coping-with-a-brain-.h00-159066345.html

  Coping with a brain tumor can be difficult. Brain tumor symptoms and side effects from treatment can include headaches, seizures, and changes in mental function, mood, strength, speech and more. At MD Andersons Anne C. Brooks Brain and Spine Center, we have an entire multidisciplinary team dedicated specifically to treating these rare tumors. […] Side effects depend on the type of chemotherapy drug used. One of the most common drugs used for brain tumors is temozolomide, also known as Temodar. This oral chemotherapy is most commonly associated with nausea, constipation and fatigue. Temozolomide also may deplete important blood cells. This is why your doctor will check your blood regularly during treatment. […] Its important to avoid extreme diets that may deprive you of important nutrients.

• #1

  https://myhealth.alberta.ca/Health/aftercareinformation/pages/conditions.aspx?hwid=zc1421

  Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse advice line (811 in most provinces and territories) if you are having problems. […] Take your medicines exactly as prescribed. Call your doctor or nurse advice line if you think you are having a problem with your medicine. […] Follow your doctor’s instructions to relieve pain. Pain from cancer and surgery can almost always be controlled. Use pain medicine when you first notice pain, before it becomes severe. […] If you have not already done so, prepare an advance care plan. An advance care plan provides instructions to your doctor and family members about what kind of care you want if you become unable to speak or express yourself. […] Call your doctor or nurse advice line now or seek immediate medical care if you have new or worse nausea or vomiting. […] Watch closely for changes in your health, and be sure to contact your doctor or nurse advice line if you do not get better as expected.

• #1 Nursing Care Plan (NCP) for Brain Tumors | Free NURSING.com Courses

  https://nursing.com/lesson/nursing-care-plan-for-brain-tumors?quiz-view=open

  Provide comprehensive education to the patient and their family about the nature of the brain tumor, treatment modalities, potential side effects, and signs of complications. Empower them to make informed decisions and actively participate in care. […] Evaluate the effectiveness of interventions in managing symptoms such as pain, seizures, and neurological deficits. Assess whether there is a reduction in symptom severity or improved symptom control. […] Evaluate the patients adherence to the prescribed treatment plan, including medication regimens, follow-up appointments, and recommended lifestyle modifications. Identify and address any barriers to adherence. […] Assess changes in the patients functional status and quality of life by considering their ability to perform daily activities, engage in social interactions, and maintain overall well-being. Monitor for any improvements or deterioration.

• #1 Brain Tumor Handbook | Barrow Neurological Institute

  https://www.barrowneuro.org/resource/brain-tumor-handbook/

  Step-by-step, our brain tumor team we will help take you through the diagnostic and treatment process, all the way from preoperative testing to neurosurgery and beyond. […] The NPs at Barrow have special training in the neuroscience field. Their role is to work with doctors and serve as the main contact person on your care team while you are in the hospital. […] You may have one or more incisions on your head closed with staples or sutures (stitches). […] It is important to get out of bed and move about as soon as possible after surgery to avoid the risk of problems such as blood clots or pneumonia. […] You may go home from the hospital on a steroid, usually dexamethasone, to decrease brain swelling. […] You may receive prescription (Rx) pills to control seizures. […] Patients with certain types of brain tumors are at risk for seizures.

• #1 Coping with a brain tumor | MD Anderson Cancer Center

  https://www.mdanderson.org/cancerwise/coping-with-a-brain-.h00-159066345.html

  Many brain tumor patients learn about their diagnosis after experiencing a seizure. You may continue to have seizures after your diagnosis, and these can typically be treated with medication. […] Clear the area of potentially harmful objects and stay with your loved one throughout the seizure. […] When a patient loses consciousness, its important to help her gently to the floor, on her side. Place something soft beneath her head to protect her. Do not stick anything in her mouth. Afterwards, take notes about the seizure and notify your loved ones care team. […] Symptoms of both metastatic and primary brain tumors will depend on the location of the tumor in the brain and may include headaches, confusion, weakness, speech difficulties or seizures. […] Some of the more common symptoms associated with tumors in this region are short-term memory dysfunction and difficulty understanding or expressing language, which is known as aphasia. Patients also may experience seizures or headaches.

• #1 Brain Tumor Patient and Caregiver Guide

  https://www.ivybraintumorcenter.org/blog/brain-tumor-patient-caregiver-guide/

  The most common symptoms of a brain tumor are headache, double vision, lethargy, confusion and seizures. […] Radiation therapy, like most other brain tumor treatments, is not one-size-fits-all. […] Dr. Kennedy describes how radiation works to treat tumors and he walks through each step of the radiation therapy process. […] Ashley explained what having grit and grace means in the brain tumor journey and why its important to have both. […] Ashley, who is well-versed in the rehabilitation programs at Barrow, explained the many different options for rehab and therapy and what patients should look for when returning to everyday life after brain surgery. […] Brain tumor patients often find themselves out of options. […] The Ivy Centers Phase 0 clinical trial program is the largest in the world and the first of its kind in neuro-oncology.

• #1 Brain Tumor: Symptoms, Signs & Causes

  https://my.clevelandclinic.org/health/diseases/6149-brain-cancer-brain-tumor

  Other treatments that help with symptoms caused by brain tumors include: Shunts: If the tumor causes pressure within your skull to increase, you may need to have a shunt (a thin piece of tubing) surgically placed in your brain to drain excess cerebrospinal fluid. […] Palliative care: This is a specialized form of care that provides symptom relief, comfort and support to people living with serious illnesses. It also provides support to caregivers and those impacted by a loved ones condition.

• #1 Coping with a brain tumor | MD Anderson Cancer Center

  https://www.mdanderson.org/cancerwise/coping-with-a-brain-.h00-159066345.html

  Word-finding difficulty, cognitive impairment and changes in mood are common symptoms in patients with glioblastoma. Speech-language therapy can be helpful in managing impaired communication skills and regaining confidence. Your doctor may prescribe medication to help reduce anxiety and depression. […] We have an education series and support group for brain tumor patients and caregivers called MD Anderson BEST that meets during odd-numbered months. We also have social worker counselors in the clinic and a supportive care team that helps manage symptoms.

• #1 Coping with a Brain Tumor | Cancer Support Community

  https://www.cancersupportcommunity.org/coping-brain-tumor

  With a little help, most people can learn to manage their feelings and the changes brought on by a brain tumor and its treatment. […] This is true for both patients and the people who care for them. […] Patients will want to consider: support groups, coping strategies, side effect management, quality of life improvements, practical matters. […] Speak with your doctor if you notice these types of changes. Many emotional shifts can be treated with medication, and you can find support to help you through these difficult times. […] Cognitive rehabilitation helps you regain as much of your mental, physical and emotional abilities as possible. […] Caregivers also benefit from compensation techniques or anger management tools to maintain the high level of patience that’s needed. […] Treatments include relaxation techniques, antianxiety and/or antidepressant medications and counseling.

• #1 Nursing Care Plan (NCP) for Brain Tumors | Free NURSING.com Courses

  https://nursing.com/lesson/nursing-care-plan-for-brain-tumors?quiz-view=open

  Understanding the Diagnosis: Educate the patient and their family about the specific type of brain tumor, its location, and the implications for overall health, fostering a comprehensive understanding of the condition. […] Treatment Options Awareness: Provide information on available treatment modalities, including surgery, radiation therapy, and chemotherapy, ensuring the patient is well-informed about potential interventions and their associated risks and benefits. […] Symptom Management: Equip the patient with knowledge and strategies to manage common symptoms associated with brain tumors, such as headaches, seizures, and cognitive changes, empowering them to actively participate in their care. […] Psychosocial Support: Address the emotional and psychological impact of a brain tumor diagnosis, offering support services, counseling resources, and facilitating connections with support groups to enhance the patients mental well-being.

• #1 3 Brain Tumor Nursing Care Plans – Nurseslabs

  https://nurseslabs.com/brain-tumor-nursing-care-plans/

  Patients with a brain tumor may experience anxiety due to uncertainty about prognosis, fear of the unknown, concerns about the tumors impact on their daily life, and changes in cognitive function or personality caused by the tumor or treatment. […] Patients with brain tumors are prone to injury due to several factors, such as impaired cognition, altered sensory perception, and motor deficits. These can lead to falls, seizures, and other accidents. Safety and injury prevention for patients with brain tumors involves implementing measures to minimize the risk of falls and ensuring a safe environment.

• #1

  https://www.lettersinhighenergyphysics.com/index.php/LHEP/article/view/1072

  Implementing therapeutic communication and active listening can help build a trusting relationship, allowing patients to express their concerns and preferences openly. […] Moreover, nurses should facilitate access to multidisciplinary teams, including social workers, psychologists, and palliative care specialists, ensuring a holistic approach to treatment. […] By prioritizing both the physical and emotional needs of patients with brain tumors, nurses can significantly contribute to improving patient outcomes and quality of life.

• #1 Nursing Care Plan For Glioma – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-glioma/

  These nursing interventions aim to address the specific needs of patients with glioma, supporting their physical and emotional well-being throughout the treatment process. By providing personalized care, pain management, communication assistance, and psychosocial support, nurses play a critical role in optimizing patient outcomes and enhancing their overall quality of life. […] The nursing care plan for glioma adopts a patient-centered and holistic approach to address the unique challenges faced by individuals diagnosed with this complex brain tumor. Through comprehensive assessments, evidence-based interventions, and compassionate care, nurses play a critical role in optimizing patient outcomes and enhancing their overall quality of life. […] By providing pain management strategies, mobility support, and communication assistance, nurses address the physical impairments and functional limitations associated with glioma. Through sensory stimulation and swallowing management, they promote sensory perception and address potential complications related to the tumors location.

• #1 Brain tumor – Diagnosis and treatment – Mayo Clinic

  https://www.mayoclinic.org/diseases-conditions/brain-tumor/diagnosis-treatment/drc-20350088

  Our caring team of Mayo Clinic experts can help you with your brain tumor-related health concerns. […] Treatment for a brain tumor depends on whether the tumor is a brain cancer or if it’s not cancerous, also called a benign brain tumor. Treatment options also depend on the type, size, grade and location of the brain tumor. Options might include surgery, radiation therapy, radiosurgery, chemotherapy and targeted therapy. When considering your treatment options, your health care team also considers your overall health and your preferences. […] After treatment, you might need help to regain function in the part of your brain that had the tumor. You could need help with moving, speaking, seeing and thinking. Based on your specific needs, your health care provider might suggest physical therapy to help you regain lost motor skills or muscle strength, occupational therapy to help you get back to your typical daily activities, including work, speech therapy to help if speaking is difficult, and tutoring for school-age children to help them cope with changes in their memory and thinking.

• #1 Discharge Instructions for a Brain Tumor | Saint Luke’s Health System

  https://www.saintlukeskc.org/health-library/discharge-instructions-brain-tumor

  Hheres what to do at home after radiation therapy for a brain tumor: […] Call your healthcare provider right away if you have any of the following: […] Signs of infection around the surgical incision. These include redness, drainage, warmth, or pain. […] Confusion or hallucinations […] Fainting or blacking out […] Loss of memory or trouble speaking […] Double or blurred vision; partial or total loss of vision […] Numbness, tingling, or weakness in your face, arms, hands, legs, or feet […] Stiffness in your neck […] Fever of 100.4F (38C) or higher, or as directed by your healthcare provider […] New cough or shortness of breath […] Sore throat or white patches in your mouth […] Pain or burning with urination […] New or uncontrolled pain

• #1 Brain Tumor Handbook | Barrow Neurological Institute

  https://www.barrowneuro.org/resource/brain-tumor-handbook/

  Patients may have motor (movement) loss, weakness, or sensation changes if the tumor is located or pressing on the frontal lobe. […] Treatment for a brain tumor depends on the type, size, and location of the tumor. […] If the brain tumor is located in an area that can be safely reached in an operation, your neurosurgeon will work to remove as much of your brain tumor as possible. […] Radiation therapy uses x-rays and other sources to kill tumor cells. […] Depending on your tumor type, chemotherapy may be recommended as part of your treatment plan. […] The Ivy Brain Tumor Center at Barrow Neurological institute is home to the largest Phase 0 clinical trials program in the world. […] For brain tumor patients facing the fight of their lives, no stone should be left unturned.

• #1 Supportive Care for Brain Tumors | Ivy Brain Tumor Center

  https://www.ivybraintumorcenter.org/brain-tumor-care/supportive-care-for-brain-tumors/

  Supportive Care for Brain Tumor Patients: Enhancing Well-being and Quality of Life […] It is essential to consult with healthcare professionals to develop an individualized, supportive care plan that addresses a patients specific needs. […] A compassionate and comprehensive approach makes supportive care an invaluable resource in the battle against brain tumors. […] By integrating supportive care into the comprehensive treatment plan, patients are empowered to face their brain tumor journey with resilience and hope. […] Neuro-rehabilitation plays a vital role in helping individuals regain and maximize their functional abilities, enhance their quality of life, and promote recovery after brain tumor surgery and treatment. […] Palliative care is a comprehensive specialty care designed to support patients with a serious or life-threatening illness from diagnosis on, including during treatments and hospitalizations.

• #1 Supportive Care for Brain Tumors | Ivy Brain Tumor Center

  https://www.ivybraintumorcenter.org/brain-tumor-care/supportive-care-for-brain-tumors/

  Palliative care can be incredibly helpful to the patient and even the caregiver. […] Social work services are specifically designed to ensure that you have what you need to reduce stress and maintain your well-being, with a particular focus on the immense value of your quality of life during and after treatment. […] Social work services provide pertinent insight and support for you and your loved ones in numerous ways. […] Your social worker can help you and your loved ones understand and plan for future decisions about your medical care. […] Social work services are available to connect you with support groups tailored to your specific diagnosis or need.

• #1 Assisted Care Options – Learn More About Brain Tumors | ABTA

  https://www.abta.org/about-brain-tumors/treatments-side-effects/assisted-care-options/

  For brain tumor patients who need help with activities of daily living (ADLs), an assisted living facility can be a viable option. Your family member can enjoy as much independence as he or she can handle yet, at the same time, receive assistance with ADLs such as bathing, grooming, and eating. […] For brain tumor patients who require a higher level of attention from a medical professional, a nursing home may be a good option. Nursing homes have medical staff available 24 hours a day, every day of the week. […] Palliative care is specialized medical care for people with serious illnesses. In addition to being used throughout your brain tumor journey, this life-affirming approach to care may also be used for end-of-life care in a hospice setting. The focus is on providing you with relief from the symptoms, pain, and stress of your brain tumor, while improving quality of life for both you and your family.

• #1 Assisted Care Options – Learn More About Brain Tumors | ABTA

  https://www.abta.org/about-brain-tumors/treatments-side-effects/assisted-care-options/

  You do not have to stop other treatments in order to qualify for palliative care: it is appropriate at any stage of your brain tumor journey and can be provided along with treatments that are meant to cure. […] Even as you undergo treatment, you can ask the palliative care team to provide counseling services or help manage your side effects from treatment, such as headaches, seizures, fatigue, and mood changes. […] The palliative care team typically made up of a doctor, nurse, social worker and spiritual counselor will develop a specific palliative care plan for you, based on your conditions and personal preferences. Other physicians or nurses on your healthcare team may have additional certifications in palliative care.

• #1 If your brain tumour can’t be cured | Cancer Research UK

  https://www.cancerresearchuk.org/about-cancer/brain-tumours/living-with/cant-be-cured

  Gradually you will need to sleep more and more and it may become more difficult to wake you. Eventually, most people slip into unconsciousness. You might be unconscious for a few days or weeks before you die. During this time you will need nursing care to make you comfortable. […] Hospices look after people who are no longer having active treatment aimed at curing them. But you have treatment to control symptoms and keep you comfortable. There is 24 hour nursing care. […] Caring for someone who is dying can be a huge emotional and physical challenge. It’s important that you get all the help and support you need.

• #1 If your brain tumour can’t be cured | Cancer Research UK

  https://www.cancerresearchuk.org/about-cancer/brain-tumours/living-with/cant-be-cured

  Finding out that your brain tumour cant be cured is distressing and can be a shock. […] There is support available to help you cope with the emotional, practical and physical issues caused by your brain tumour. […] Some brain tumours grow very slowly (low grade) and cannot be cured. […] Brain tumours can also be fast growing (high grade) and come back despite treatment. […] Even if the brain tumour can’t be cured, treatment might shrink your tumour and slow its growth. […] It can control your symptoms for some time and make you feel better. […] You might have surgery, radiotherapy, or chemotherapy. Or a combination of these treatments. […] When brain tumours grow very large, the pressure inside your head increases, causing drowsiness. […] You might get headaches and sickness. These can often be controlled with painkillers and anti sickness medicine.

• #1 Brain Neoplasms Treatment & Management: Approach Considerations, Prehospital Care, Emergency Department Care

  https://emedicine.medscape.com/article/779664-treatment

  Generally, care of patients with a brain tumor is multidisciplinary, requiring the involvement of a neurosurgeon, an oncologist, a radiologist, and an expert in radiation therapy. The patient’s primary physician best manages coordination of consultants, but the responsible neurosurgeon should direct the treatment of specific postoperative complications or care. New occurrence of CNS tumor may require transfer to a facility with appropriate neurosurgical staff. […] Management varies greatly depending on tumor location, tissue type, and comorbid conditions. Surgical treatment options may include tumor removal or debulking, installation of a ventricular shunt, and placement of radioactive implants. […] Prehospital care is supportive and directed to the presenting symptom complex. For example, treat seizures in the usual manner. Airway disturbance, breathing difficulty, signs of pronounced elevation in intracranial pressure (ICP), and notable impairment of consciousness may necessitate definitive airway control with endotracheal intubation and, possibly, hyperventilation.

• #1 Nurses on the Front Lines Are Helping Patients Navigate Brain Tumor Cancer Care

  https://www.oncnursingnews.com/view/nurses-on-the-front-lines-are-helping-patients-navigate-brain-tumor-cancer-care

  Nurses are on the front lines connecting patients to available resources and walking them through the best treatment options. […] Dedicated oncology nurses are at the forefront of care to help guide patients through this daunting journey. […] Most patients with gliomas can receive treatment, although very few cases are curable. Available treatment options include surgery, chemotherapy, targeted therapy, and radiation therapy. Patients may also be eligible for clinical trials. […] The Brain Tumor Network is a valuable resource. This organization seeks to help provide patients with free, individualized navigation, help them manage their primary brain tumor diagnosis, and connect them to quality health care. […] Nurse navigators help patients understand their diagnosis, seek out expert second opinions, and investigate available treatment options.

• #1 Nurses on the Front Lines Are Helping Patients Navigate Brain Tumor Cancer Care

  https://www.oncnursingnews.com/view/nurses-on-the-front-lines-are-helping-patients-navigate-brain-tumor-cancer-care

  The nurse navigators with the Brain Tumor Network leverage a proprietary clinical trial matching system to run a personalized search for patients based on their tumor pathology, clinical history, and individual goals. […] Moving forward, clinical trials continue to represent the best opportunity for advancing treatment for these patients, according to Paabo, so it is important to help connect patients to these opportunities whenever possible. […] Despite the challenges in treating these patients, all the nurses agreed that connecting patients to clinical trials is an important step in helping patients find the best possible treatment for them. […] It is not our job to tell the patient what to do, but it is our job to give them every possible treatment option, even if it is not a clinical trial with our institution. […] Hendrickson concluded by noting that although the BBB is one significant challenge in treating glioma, research incentive is another.

• #1 Brain Tumor Care (Neuro-oncology) | Lehigh Valley Health Network

  https://www.lvhn.org/medical-services/brain-tumor-care-neuro-oncology

  A precise diagnosis is the first step toward the right treatment. Our diagnostic tests may include: Magnetic resonance imaging (MRI), Functional MRI (fMRI) localizes speech and/or motor functions in the brain, Molecular pathology examines the tumor’s molecular makeup for genetic mutations that we can target with treatment. […] A tumor board is a cancer care meeting to discuss each patient’s diagnosis and treatment plan. The tumor board includes many doctors who are fellowship-trained in their fields: Neurosurgeons are specialists in brain tumor surgery, Radiation oncologists plan radiation therapy treatments, Neuro-oncologists are specialists in chemotherapy and other medications to treat brain tumors. […] We have exceptional expertise in monitoring brain function during surgery so we can preserve neurological function.

• #1 Caring for the brain tumor patient: Family caregiver burden and unmet needs

  https://pmc.ncbi.nlm.nih.gov/articles/PMC2600839/

  The rapid onset and progression of a brain tumor, cognitive and behavioral changes, and uncertainty surrounding prognosis are issues well known to health practitioners in neuro-oncology. […] We found that the family caregivers in this study provided extraordinary uncompensated care involving significant amounts of time and energy for months or years and requiring the performance of tasks that were often physically, emotionally, socially, or financially demanding. […] Because the focus was on the patient, their own needs were neglected. […] We provide specific recommendations for (1) improving the delivery of information; (2) enhancing communication among patients, families, and health care providers; and (3) providing psychosocial support for family caregivers. […] Family caregivers felt inadequately prepared for the daunting tasks that they had to undertake.

• #1 Caring for the brain tumor patient: Family caregiver burden and unmet needs

  https://pmc.ncbi.nlm.nih.gov/articles/PMC2600839/

  Family caregivers also performed nursing duties, such as changing dressings and administering medications, without training tasks that are often carried out by trained health professionals. […] Family caregivers want to know the degree of recovery to expect. […] Family caregivers need to be prepared for the specific tasks that they will likely perform for the patient. […] Family caregivers were constantly challenged to solve problems and make decisions as care needs changed. […] The information needs of these family caregivers changed across the trajectory of the brain tumor. […] Caregivers reported a lack of needed information from the formal health system, they also recognized that the health providers are busy and were quick to forgive the lack of information. […] The psychosocial support needs of family caregivers of glioblastoma patients are likely to be greater, because there is little time to adjust or adapt to the disease.

• #1 Advice from the Brain Tumor Community – NCI

  https://www.cancer.gov/rare-brain-spine-tumor/blog/2020/brain-tumor-advice

  If you are newly diagnosed or living with a brain tumor, it can be hard to find support and resources. […] To help guide you through your brain tumor journey, patients, caregivers, doctors, and advocates share their advice. Use their words and the resources listed to help you positively cope. […] It is very important for caregivers to take care of themselves and share their own burdens . . . caregivers need care, too. […] Our program called ABTA CommYOUnity Connect provides one-on-one support to match patients, survivors, and caregivers with similar experiences and situations. […] A cancer diagnosis is life-changing for patients and their families, and we have the ability to help guide them. […] Stay informed. Doctors should speak to you in non-doctor language, so you understand your diagnosis and treatment options. If you dont understand, ask questions. […] The difficulties of a brain tumor have caused me to reflect on some important aspects of my life. The uncertainty I face is prompting me to pursue my goals with some haste. […] Join our Facebook group or follow us on X (formerly Twitter) to hear more messages from our brain tumor community.

• #1 Coping with a Brain Tumor | Cancer Support Community

  https://www.cancersupportcommunity.org/coping-brain-tumor

  If you take steroids, tell your medical team if you can’t sleep or have other new symptoms so they can adjust the dose. […] A caregiver is anyone who provides unpaid help, or arranges for help to care for someone with an illness or disability. […] It’s easy to forget to take care of yourself when you’re caring for someone else. […] Schedule self-care into your day. You can’t help others unless you take care of your own physical, economic, spiritual and emotional well-being. […] Speak with your doctor if you notice these types of changes. Many emotional shifts can be treated. […] If you must be the treatment decision-maker, remember that you can take time to ask questions, research options, and find support. […] Tips for Making Important Decisions include learning about the brain tumor’s type, location, grade, treatment options, and expectations for recovery and side effects. […] Palliative care provides comfort, symptom management, and quality of life tools.

• #1 Supportive Care | UCSF Brain Tumor Center

  https://braintumorcenter.ucsf.edu/supportive

  Navigating through brain tumor diagnosis, treatment, and even survivorship, can be an overwhelming time for patients and their families. Our goal is to ease some of the burden on you and your family, by offering the following services for our adult neuro-oncology patients. […] The Sheri Sobrato Brain Cancer Survivorship Program provides services aimed at enhancing quality of life for patients with brain tumors. […] The UCSF Neuro-Oncology Gordon Murray Caregiver Program supports family members and loved ones to help prepare them for their new roles as caregivers. […] Supportive Care includes various programs such as the Survivorship Program, which offers resources like Neurocognitive Care, Integrative Approaches, Exercise Program, Survivor Support Groups, Palliative Care, Survivor Peer Support, Patient Events, Nutrition Counseling, and Psycho-Oncology. […] The Caregiver Program provides resources, support groups, peer support, events, and consultations for caregivers.

• #1 Nursing Care Plan (NCP) for Brain Tumors | Free NURSING.com Courses

  https://nursing.com/lesson/nursing-care-plan-for-brain-tumors?quiz-view=open

  Monitor for the development of complications related to the brain tumor or its treatment, such as increased intracranial pressure, infections, or treatment-related side effects. Promptly address and manage any identified complications. […] Obtain feedback from the patient and their family regarding their satisfaction with the care provided. Assess the level of understanding, support, and communication, making adjustments to the care plan based on their feedback.

• #1 Brain Tumor Care (Neuro-oncology) | Lehigh Valley Health Network

  https://www.lvhn.org/medical-services/brain-tumor-care-neuro-oncology

  The neuro-oncology team at Lehigh Valley Topper Cancer Institute offers expert care for brain tumors and spinal cord tumors. We provide the most precise diagnosis and brain tumor treatments that remove the tumor while preserving brain function. […] If you or a loved one has been diagnosed with a brain tumor, you may be wondering what the treatment options are and what the future holds. Lehigh Valley Topper Cancer Institute is one of the few programs in Pennsylvania to have a neuro-oncologist. This neurology specialist focuses on cancers of the nervous system, including the brain and spinal cord. […] We hold regular tumor boards, cancer care meetings where experts from multiple disciplines meet to discuss your diagnosis and treatment so you get care that is tailored to your needs. […] We treat a range of brain tumors including: glioblastoma multiforme, gliomas, medulloblastoma, meningiomas, pituitary tumors and schwannoma. It is important for you to know that you will receive comprehensive support during your treatment. Your team includes a care navigator who explains your options, helps you schedule appointments and connects you with resources.

• #1 Nursing Care Plan For Glioma – Made For Medical

  https://www.madeformedical.com/nursing-care-plan-for-glioma/

  The nursing care plan also emphasizes psychosocial support and anxiety management to address the emotional and psychosocial distress experienced by patients and their families. By offering empathy, therapeutic communication, and resources for coping, nurses contribute significantly to the patients emotional well-being throughout the glioma journey. […] Furthermore, fall prevention measures and skin integrity management are essential components of the nursing care plan to ensure patient safety and prevent potential complications during treatment and recovery. […] By addressing the specific healthcare needs of patients with glioma and advocating for timely and appropriate interventions, nurses play a crucial role in facilitating the best possible outcomes. Through evidence-based nursing interventions and compassionate care, nurses contribute significantly to the successful management of glioma, supporting the patients overall well-being and optimizing their quality of life.

Zobacz więcej